Group photo
Author:
CARLANNIE's Photo CARLANNIE Posts: 2,364
4/20/11 6:26 P

My SparkPage
Send Private Message
Reply
Hi everyone! I have been on SP for awhile now, and it just occurred to me today that their might be an LLS team here. And sure enough - here you all are!

I joined Team In Training this winter to get ready for a Half Marathon in Boise, ID on May 14. I will be walking it as I've had a hip replacement and running is not an option any more. My mother had Non-Hodgkins Lymphoma and passed away in 1995. It still seems like it was just last week, though. So I am Walking for her and so far have raised nearly $2,000 for the LLS. I have been so pleased and amazed at everyone's generosity in donating. I hope the funds will go to good use and find better and better ways to deal with these cancers, and one day eliminate them entirely!!! No dream is too big, right?

Everyone stay strong out there!



TARAHA's Photo TARAHA Posts: 764
3/29/11 12:17 A

My SparkPage
Send Private Message
Reply
The stories on this team forum are heart wrenching, hopeful and familiar. My mom was diagnosed with AML - acute myeloid leukemia in the spring of 2007. She has undergone 2 different series of chemotherapy. Both times going into remission. At the start of this year we found out she is coming out of remission again. She has chosen not to undergo any more chemotherapy. We are enjoying each day that we have. I am scared that as her health gets worse, I will fall back to my comforting mechanisms - mainly enchiladas, pizza and French fries. So far I have been embracing exercise! It is nice to be gave a place on Spark where people who are going through or have gone through like experiences can come for comfort and support.

Tara
Central Time Zone USA


 Pounds lost: 61.0 
0
25
50
75
100
JWARD199's Photo JWARD199 Posts: 2,493
3/18/11 5:24 P

My SparkPage
Send Private Message
Reply
FORMYHUSBANDJIM, I wish you and your husband the best on your journey. SEASTAR71, I'm very sad for your loss. We are not always active in this group, but you know you have the understanding of all of us here at SP L&L Society team!



 current weight: 180.4 
195
187.5
180
172.5
165
GERRYS-GIRL's Photo GERRYS-GIRL Posts: 131
3/2/11 11:47 P

My SparkPage
Send Private Message
Reply
I have been a member since 2009.

My husband, Jim, was diagnosed with Stage II Multiple Myeloma on May 11, 2010 after being plagued by various illnesses for over a year. I changed all my information to reflect my husbands info and am using this site to track his nutrition information.

We have just undergone an autologous stem cell transplant. He received his Melphalan on Sat, Feb 26 and his stem cells on Feb 28 and Mar 1, 2011. He is at day 2 today. We have not reached the danger stage yet.



What progress, you ask, have I made? I have begun to be a friend to myself.

Hecato, Greek philosopher


In a world where YOU can be anything . . . Be Yourself.


 current weight: 155.0 
182
171.5
161
150.5
140
MAGGIE805's Photo MAGGIE805 Posts: 2,135
2/26/11 9:26 P

Send Private Message
Reply
Hi, my name is Maggie and my husband was diagnosed with lymphoma in December of 2008. Over the last couple of years he fought this disease bravely and courageously everyday. He was my rock, my strength, and my soul mate as I was his. He unfortunately lost his battle January 20, 2010 and I have slowly started picking up the pieces over this past year.

In November I joined a support group here in San Francisco that are made up of primarily of spouses of lymphoma/leukemia patients that have lost their fight to this disease. They have been a tremendous help to me and I am so grateful for their support. I am very thankful for groups like this and would be a very different person without them. Now, it's my turn to give back.

Edited by: MAGGIE805 at: 2/26/2011 (22:22)

"Doing the impossible can be kind of fun."
~ Walt Disney

BLC 27 Blue Lion Tracker
BLC28 Ferocious Viking
BLC29 Minion Cadet Squad

Maggie (Southern California) PST


 Pounds lost: 18.3 
0
8
16
24
32
JWARD199's Photo JWARD199 Posts: 2,493
1/6/11 8:01 P

My SparkPage
Send Private Message
Reply
I wish these stories didn't sound so familiar. But treatments are so much better these days than in the 80s when my mom had lymphoma. She fought it with all she had for a year but it got the best of her. Today her story would be entirely different, I'm sure.

Thanks for sharing. We all have a story.



 current weight: 180.4 
195
187.5
180
172.5
165
MARIAMM4 SparkPoints: (0)
Fitness Minutes: (598)
Posts: 9
1/5/11 3:07 P

My SparkPage
Reply
My 4 year daughter was diagonosed with ALL (leukimia) 2 months ago. Amazingly enough after the first round of chemo treatment she was placed in remission. We still have 6 months of pretty hard core treatments which will be very difficult on her, but at least she is fighting to keep it away instead of getting rid of it.

I was following the Spark people program really well before this happened and now trying desparately to get back on the wagon. I try to just watch her and pull the will power I need from the strength she is using.

 current weight: 172.6 
175
168.75
162.5
156.25
150
BEAUTIFULBRE's Photo BEAUTIFULBRE Posts: 82
1/5/11 2:51 P

My SparkPage
Send Private Message
Reply
My husband was diagnosed with Lymphoma at the age of 20 (last year). It's been an uphill battle since, but I am blessed to have him. Cancer has been the best thing to happen to our marriage. :)

You all have my best wishes!! Anything is possible. :o)

 current weight: 232.0 
232
212.75
193.5
174.25
155
OPALRAIN's Photo OPALRAIN Posts: 107
10/29/10 7:22 P

My SparkPage
Send Private Message
Reply
Hi folks,

About two years ago, my doctor started noticing that my bloodwork was funky. My platelets were low, but not freakout-level low, so she decided to keep an eye on it and recheck... after a year of low platelets, she referred me to a hematological oncologist.

As of right now, I am cancer-free; but I am at a high risk for developing CLL (which runs in my family) or MDS. I've just been reading the book _Anticancer_ by David Servan-Schreiber, and I'm hoping that by eating the foods that will help my body fight cancer, I will stay cancer free or, barring that, be in the best shape possible to fight it if that ends up being my situation.

I'm 27 years old, and I'm not letting the cancer monster in my living room determine how I feel about my future.

So glad y'all are here.

 Pounds lost: 156.0 
0
39
78
117
156
JWARD199's Photo JWARD199 Posts: 2,493
10/21/10 9:46 A

My SparkPage
Send Private Message
Reply
Hope every thing went well at the Team in Training events last weekend.



 current weight: 180.4 
195
187.5
180
172.5
165
ACTIVE_AT_60's Photo ACTIVE_AT_60 Posts: 3,068
10/11/10 6:12 A

Send Private Message
Reply
Please send positive vibes to the thousands of Team in Training participants who are doing Team in Training events this weekend. Safe travel to all - congratulations on their accomplishments. I am sure there are lots more but the big one is the Nike women's in San Francisco.

JWARD199's Photo JWARD199 Posts: 2,493
9/14/10 8:22 A

My SparkPage
Send Private Message
Reply
Hi Aria. I hope your dad does well with his treatment. I'm glad LLS has been able to help your parents. It is great to have a society that can provide help and support.



 current weight: 180.4 
195
187.5
180
172.5
165
MALKS_ARIA's Photo MALKS_ARIA Posts: 2,566
9/13/10 9:37 A

My SparkPage
Send Private Message
Reply
Hi am Aria. I am 39 and my dad has been diagnosed with Multiple Myeloma and Leukemia for the last 7 years. He is currently receiving treatments at Univ. Arkansas Medical Center. My mom is his "caregiver" and i appreciate all the support The L&LS have given them.

~~~~~~~~~~~~~~~~~~
aria

3 pounds at a time!! I can do it!!

Small Steps pave the way to big changes!!

No matter the obstacles, we can climb over them!


 Pounds lost: 44.0 
0
37.5
75
112.5
150
JWARD199's Photo JWARD199 Posts: 2,493
9/10/10 1:16 P

My SparkPage
Send Private Message
Reply
I'm glad you are doing well Sara, and I hope all goes well with your daughter, Nica.

Working on getting stronger and healthier is my top priority right now.



 current weight: 180.4 
195
187.5
180
172.5
165
NICA_LOSN_IT's Photo NICA_LOSN_IT SparkPoints: (0)
Fitness Minutes: (4,525)
Posts: 1,045
9/10/10 11:09 A

Send Private Message
Reply
Jane - I am sorry to hear about your mom.

My story is that my 13 year old daughter was diagnosed with Hodgkin Lymphoma on July 7, 2010. She is going through her last 2 round of chemo (total will be 4 inpatient and 4 outpatient chemo). She will start Proton Therapy (a much better version of radiation) in about 4 weeks. She is doing very well, thus far. We are very hopeful and trust totally in a higher power to cure our daughter of this disease.



~~~~~~NICA~~~~~~

Every day in Africa, a gazelle wakes up and thinks, "Today I must run faster than the quickest lion, or I will be killed." Every day in Africa, a lion wakes up and thinks, "Today I must run faster than the slowest gazelle, or I will starve." So whether you're a gazelle or lion, when you wake up, you better get running.


 current weight: 352.2 
352.2
306.65
261.1
215.55
170
ACTIVE_AT_60's Photo ACTIVE_AT_60 Posts: 3,068
9/8/10 10:06 P

Send Private Message
Reply
I thought I would let you know about a project I am involved with Spokes of Hope. You can read more at www.spokesofhope.org and follow them as the blog is updated spokesofhope.blogspot.com/

SARABOURG's Photo SARABOURG Posts: 25
9/8/10 10:02 P

My SparkPage
Send Private Message
Reply
Jane, I am sorry to hear about your mom. I do agree with Jan. After spending a lot of time in the oncology unit I met LOTS of people who had gone through radiation several years earlier and were there with leukemia or lymphoma.

As for my story.....I was 31 1/2 weeks pregnant and they diagnosed with acute myelogenous leukemia. that was 10/15/09. i delivered my son 4 days later and we both left the hospital 11/17/09. (i of course, had to keep going back for consolidation chemo) my last chemo treatment was in may and I got my hickman taken out june 17th. (yay!) It was good to feel like it was finally over!! I am trying to get as healthy as possible now so I never have to leave my family like that again. emoticon

 Pounds lost: 8.2 
0
8
16
24
32
ACTIVE_AT_60's Photo ACTIVE_AT_60 Posts: 3,068
9/5/10 10:52 P

Send Private Message
Reply
Jane, developing secondary cancers to cancer treatment is not uncommon. If she had gone to the Mayo clinic, may not have changed things - I am sorry to say.

Your account about how you feel about her and how she 'return' and embrace you is fabulous. Treasure it. Not everyone experience that.

As for my story - I am a nurse practitioner - I work in palliative care (not to be confused with hospice).

JWARD199's Photo JWARD199 Posts: 2,493
9/5/10 1:26 P

My SparkPage
Send Private Message
Reply
I've posted this on the Susan G. Komen team, but it seems appropriate here as well.

My mother had breast cancer in 1973. She trusted our family doctor, who did a mastectomy. She was treated with chemo and radiation, lost her hair, had a fever most days, but she made it through the ordeal. She lived for another 10 years, supposedly cancer free. However, such was not the case. In 1982 she found out she had Non-Hodgkin's Lymphoma. Again she went through chemo and radiation, however, a year after her diagnosis, she died. I will always think that the lymphoma was related to the breast cancer, and I wish so much that we had insisted she go to Mayo or a cancer treatment center back in 1973. I never go a day without thinking about her. On rare occasions I dream about her and can feel her warm embrace.

I'm now the age she was when she had breast cancer (55). I'm taking better care of myself than she did, but that may not be enough with cancer and lymphoma in my direct family history.

What is your story regarding leukemia or lymphoma?



 current weight: 180.4 
195
187.5
180
172.5
165
Page: 1 of (1)  

Report Innappropriate Post

Other The Leukemia & Lymphoma Society Introduce Yourself to Team Forum Posts

Topics:
Last Post:
New
6/26/2018 6:30:04 PM



Thread URL: https://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x43873x36498978

Review our Community Guidelines