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UNICORN212's Photo UNICORN212 Posts: 13,457
9/25/14 12:13 A

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Google is my friend....this is what I was remembering - particle repositioning. This is from medicine.net. I am sure you can find some UTubes on how to do them.

What is the treatment for vertigo?

Some of the most effective treatments for peripheral vertigo include particle repositioning movements. The most well-known of these treatments is the Epley maneuver or canalith repositioning procedure. During this treatment, specific head movements lead to movement of the loose crystals (canaliths) within the inner ear. By repositioning these crystals, they cause less irritation to the inner ear and symptoms can resolve. Because these movements can initially lead to worsening of the vertigo, they should be done by an experienced health care professional or physical therapist.

Cawthorne head exercises, or vestibular rehabilitation habituation exercises, are a series of eye and head movements which lead to decreased sensitivity of the nerves within the inner ear and subsequent improvement of vertigo. These simple movements need to be practiced by the patient on a regular basis for best results.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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TAPETUM's Photo TAPETUM Posts: 299
9/24/14 11:49 P

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I was there for karate and weapons training. It was an amazing trip, and a major sanity saver this summer. I was surprised at just how much of the island is taken up by the American military bases.

I'll check into the vertigo exercises - thanks for the suggestion. Anything that will help with his back and neck would be a major blessing. I have had a few karate students with vertigo issues in the past, so knowing about them will be a good thing.

-Cindy

In the end, only kindness matters. - Jewel


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UNICORN212's Photo UNICORN212 Posts: 13,457
9/23/14 12:07 A

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Wow, Cindy! I hope he gets his balance back! Check into vertigo online - I seem to remember reading about aome movements that help reset the balance. I'll have to see if the rolodex in my brain can regurgitate the info for you. Maybe some stretches will help his back. A chiro may help with both items. Worth a try!

Funny - I lived in Okinawa when I was a kid - military dad. I think I was 6 to 8 years old.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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TAPETUM's Photo TAPETUM Posts: 299
9/22/14 11:32 P

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My foot healed just fine - thanks for asking. It was in good enough shape to run a mile every night barefoot while I was in Okinawa briefly this summer. (Having to run a mile non-stop in Okinawa's humidity about killed me, but my bones held up fine.)

Interestingly, RCC is one of the cancers that doesn't really light up on a PET scan. The only radiology that shows it reliably is a contrast CT. I've been researching low-carb cancer diets, and no one seems quite certain about kidney cancer. It and melanoma are generally considered 'weird' in that their metabolism and spread don't really behave in predictable manners. That said, Rob has mostly been eating Paleo-ish - vegetables and meats, some fruits, very little by way of grains or sugars.

The biggest problem we're having right now is his back, which is only indirectly related to the cancer. From October to March he lost 60 pounds (which he thought was his awesome dieting skills, not cancer eating him - oops.), and then another 13 pounds of tumor-and-kidney for the surgery. The result seems to have thrown his sense of balance and his center of gravity completely for a loop. If he closes his eyes while standing, he will literally start to tip over. We think it's in reaction to this, but regardless, his back has almost completely locked up, starting back around January and getting progressively worse. Massage helps it feel better temporarily, and he's seeing a chiropractor when he can (3x a week when home, but he travels a lot for work), which also helps, but keeps being undone when he stuffs himself on a plane and then works 16 hour days for a week.

For example he was doing better with the back last week, after a week home. Then he flew out for work, spent the entire week working 6am to 10-11pm, and by the time he came back Saturday, he couldn't even get from lying down to sitting up on the bed without a lot of thrashing around and a lot of pain.

We're pretty sure of the cause; we know the probable solution (chiropracty or PT until the back calms enough for exercise, and then exercises to strengthen the back muscles and reteach him balance), and he won't slow down enough to use them. I think he's afraid that if he doesn't show he can do his job as well as ever, he'll lose it (not very probable - his own boss has been telling him to slow down a little). It makes me want to scream and shake him, except that he's already paying the price because it hurts him pretty immediately and directly.

-Cindy

In the end, only kindness matters. - Jewel


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UNICORN212's Photo UNICORN212 Posts: 13,457
9/20/14 11:55 P

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Cindy - At least if he had to do it, he had to do it right and get something rare. I sure hope the treatment kicks it to the curb! Scary that the first reaction is tumor growth....

From my own husband's cancer I learned that carbs and sugar feed cancer (which makes sense because they have you eat low carb for 24 hours before a PET and then fast, and then they give you radioactive sugar...which lights up any cancer). So maybe a low carb (or lower carb) diet would benefit both of you.

I hope your ankle healed well without any side effects or lingering problems.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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56ROSE's Photo 56ROSE Posts: 15,158
9/20/14 1:02 P

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emoticon Great that you've decided to focus on yourself during this waiting period! I hope the news is positive next month. emoticon

Marilyn
Boise, ID
Mountain Time Zone

Everything you've ever wanted is one step out of your comfort zone.

The food you eat can be either the safest and most powerful form of medicine or the slowest form of poison. Ann Wigmore

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Maintaining since: April 2016
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Current Goal Weight: 170

Purpose is the place where your deep gladness meets the world's needs.
Frederick Bue


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CHEYENNERAE's Photo CHEYENNERAE Posts: 2,081
9/20/14 12:40 P

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You MUST remember to take care of yourself too. I did not do that while taking care of my mom who had Multiple Melanomas. My weight was all the way up to 284 lbs. last year in March it is now much lower. Sadly we lost my mom last year on Mother's Day. She also had Bladder cancer first.

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TAPETUM's Photo TAPETUM Posts: 299
9/19/14 11:45 P

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Hello - I'm Cindy, and it only just occurred to me to look for a cancer caregivers forum on Sparkpeople. I'm so glad you guys are here.

This last February, my husband Rob, had some blood in his urine. The people at the urgent care center thought it was likely either a small stone, or an infection, gave him some antibiotics and a referral to an urologist. The blood cleared up within 48 hours, we assumed a kidney stone, and trucked on our merry way until the urologist's appointment, March 17. Rob went by himself, assuming he'd get a once over and a clean bill of health. Instead the CT scan showed a "very large" mass on his left kidney, and suspicious areas on his adrenal glands. He came home looking like he'd been whacked with a baseball bat - I will never forget the look on his face.

That was Monday. They scheduled bone scans and several other tests for Wednesday. Tuesday night I went out for an exercise walk, stepped off a curb wrong, rolled over my foot and fractured it. So we thoroughly confused the hospital personnel on Wed, when the two of us would come in, and they'd immediately orient on me as the patient, and we'd have to point them at him.

After all the tests were said and done, we had the single kidney mass, and two perfectly symmetrical masses in the adrenal glands. None of the tests, including a biopsy of the right adrenal, were conclusive as to whether the adrenal masses were adenomas (benign), or something else, and the symmetry was weirding the urologist and oncologist out. But they didn't want to remove both adrenal glands, because that's an instant case of Addison's disease, and with Addison's none of the immunological treatments (which are the only treatments with any full remission rate) can be used.

So in April Rob had a radical nephrectomy, removing the left kidney and adrenal gland. The final size on the kidney tumor was 10lbs(!), and unfortunately the biopsy of the adrenal gland showed that it matched the kidney tumor - Stage IV renal cell carcinoma.

Turns out that the symmetrical spread to the adrenal glands is a known, but very rare presentation of RCC. Rob is the 18th case on record - the last one was 5 years ago, in Greece. Generally they haven't done any better than the more normal presentations, and nobody is quite sure how it will affect the newer treatment options. So after much debate, and trekking to three different states for consults, we ended up in a Stage III drug trial at Vanderbilt in Nashville. Every three weeks we drive down for a day of testing and infusion, with a new CT scan every third visit. We just finished infusion #4, but we have no way of knowing yet if the drug is doing him any good, since the first effect of the therapy is tumor growth (and it's been growing quite alarmingly).

Anyway, right now we're in waiting mode. We should find out in late October whether this treatment is doing him any good. In the meanwhile, Rob is back at work (and working way too hard in my opinion), and I'm trying to find my balance again. We're hopeful, but wary. Way too many moments of hope have been snatched away from us this last few months.

Over the stretch from March to September my exercise completely went by the wayside, my diet crashed, and I've in general been ignoring my self-care in favor of focusing on Rob and our children (2 boys 14 & 16). It's not sustainable, so I came back to SP in the hopes of being able to put myself back on my priority list somewhere.


-Cindy

In the end, only kindness matters. - Jewel


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