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UNICORN212's Photo UNICORN212 Posts: 13,157
12/14/13 11:13 P

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Denise - I am glad he is doing so well.

I am sure you have trimmed what you can out of your budget already. have you tried getting help from some of the cancer organizations? Plus food banks, churches, etc. Don't wait until the savings is gone to apply for or ask for help. Do it now while you still have some resources left.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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WEBBQT's Photo WEBBQT Posts: 175
12/14/13 11:03 A

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Just thought I'd update. He only has 10 more radiation treatments left! He is out of sick days so no more pay checks. Haven't heard back from his insurance disability yet. Will have to fall back on his life insurance account. Thought it a bit crazy when we changed to universal life but so glad we did now!! Doc says for this far in he's doing great. Has lost only 10 pounds since starting radiation and that's great. He's down to only being able to drink ensure with ice cream and some hard boiled eggs to eat once a day. His spirits are staying strong which is so great for the family.

Denise
Everything is permissible but not everything is beneficial. I will not be mastered by anything.

It's never to late to be the person you were meant to be.

Even if you can't physically see the results in front of you, every single
effort is changing your body from the inside. Never get discouraged.

Weight loss happens the moment you don't give up.


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UNICORN212's Photo UNICORN212 Posts: 13,157
10/31/13 8:15 P

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Denise - That is great that they are willing to work with him. maybe they can find a temporary place to put him when he is ready. And it is always good to have enough savings for these things, but it is always better to be prepared in case the worst did happen.

Not to be morbid, but any of us can die at any time, so it is good to have your affairs in order. A man I know went to work one day and died at the job of a heart attack, sitting in his truck on a break. He had a wife and two young kids. No will, no savings. It was a horrible time for his family. He was 44.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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WEBBQT's Photo WEBBQT Posts: 175
10/31/13 10:49 A

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The school is working with him wonderfully. It's his doctor that says no work because of all the hard manuel labor, dirt and germs that go through a school bus garage. He wanted to work the phones at least during the bus routes but doc doesn't want him there at all. His speech isn't coming back as well after surgery anyway so phone conversations would be difficult let alone the stress there. He has been building up sick days since starting 5 years ago so right now we are just out overtime. Only time will tell how much strength he will lose but we are trying to somewhat prepare for the worse just in case (money wise anyway).

Denise
Everything is permissible but not everything is beneficial. I will not be mastered by anything.

It's never to late to be the person you were meant to be.

Even if you can't physically see the results in front of you, every single
effort is changing your body from the inside. Never get discouraged.

Weight loss happens the moment you don't give up.


 Pounds lost: 47.7 
0
16.25
32.5
48.75
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UNICORN212's Photo UNICORN212 Posts: 13,157
10/30/13 10:18 P

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Hi Denise! I had no idea that you were, but I am and it seems to come with the territory.

Re the radiation - though my DH did not have radiation, a friend at work did. She had breast cancer - twice. Radiation can cause burned skin. She said there was something over the counter called Domeboro. It's a powder that you dissolve in water and apply to the burn area. She said it was messy but worth it. She was able to work, but I remember her taking a lot of time off. Probably worked half days sometimes (she moved to North Dakota a year or so ago). Can his work be flexible with him, letting him do half days as needed?

As for you, try to carry healthy snacks. maybe a small cooler in the car? With all the running, it will be tempting to skip meals or grab fast food. Neither is good. Get celery sticks, carrot sticks, pepper strips, yogurt, etc for grab-n-go. Have stir fry ingredients & sauce handy and do meat and vegetable stirfry - it is as fast as McDonalds. In a pinch, Wendy's chili is fairly healthy. You have to plan ahead, and maybe spend a weekend afternoon prepping for the week. Watch carbs - they feed the cancer.


~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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WEBBQT's Photo WEBBQT Posts: 175
10/30/13 9:34 P

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Ok Nancy, how did you know I'm a stress eater! We are 30 minutes away from where he will get his radiation. So yes a lot of running. I'm a school bus driver so the plan is run my morning route, run him to treatment, run back to do afternoon route.
We are concerned about his recovery and if he'll be able to go back to work. He is the transportation director of the school district here - which is bus mechanic, bus driver, office manager, and he keeps everyone from arguing. I know each person recovers differently so it's wait and see. He is trying to do everything he can to be as healthy as he can which actually helps me.
Thanks for your reply.
Denise

Denise
Everything is permissible but not everything is beneficial. I will not be mastered by anything.

It's never to late to be the person you were meant to be.

Even if you can't physically see the results in front of you, every single
effort is changing your body from the inside. Never get discouraged.

Weight loss happens the moment you don't give up.


 Pounds lost: 47.7 
0
16.25
32.5
48.75
65
UNICORN212's Photo UNICORN212 Posts: 13,157
10/30/13 8:12 P

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Hi WEBBQT! I am Nancy, and the wife of a Burkitt Lymphoma Survivor, currently 2 years in remission. My husband is still working his way back to "normal" from the nearly 3 months of in-patient chemo from 2 years ago. Being a caregiver on a weight loss plan can really be a challenge, especially if you are a stress-eater and running to and from medical appointments with your DH. I am sorry you and your DH are going thru this, but glad they caught it early. And it is good that he went to the dentist, too!

The group is active on an as-needed basis, so I am sure some of the others will be popping in to greet you. Let us know how we can be supportive. Feel free to vent and/or ask questions!

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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WEBBQT's Photo WEBBQT Posts: 175
10/30/13 12:16 P

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Was getting ready to check my teams today and thought man it would be nice if there was a team for family members of cancer patients, and there is! Seems like there is a team for everything. My husband found out he has stage I Well Differentiated Squamous Cell Carcinoma the beginning of August this year. Was sent to a cancer treatment center because he had had bypass surgery when he was 32, so local doc was a bit afraid to do his surgery. Had it done at the hospital where his heart specialist was. Was told it was caught very early, just surgery and done. Even after the surgery, the surgeon said it was better than he expected and everything was great. The pathology report did not agree with the surgeon. The tumor was more aggressive than they thought, and had already tried to attach to the blood vessels and nerves in his mouth. The margins were way to thin in some spots too. So now he has to have radiation. Had to have his teeth checked which worried us because he hasn't seen a dentist in over 20 years! But his teeth were surprisingly healthy :o) only had to have 3 wisdom teeth pulled, lots of cleaning, and 1 root canal. Oral surgeon says his teeth can withstand the radiation now. He goes this Thursday to have his mask made and yes I'm teasing him about getting a mask on Halloween.
Glad to find a group that understands that weight loss is different for those of us that are caregivers. I know that I need to take time for myself and make sure I'm healthy for him, but it doesn't always work out the way I know I need to do it. I also find it hard to relate now to others in some of the groups that whine about things that seems so insignificant to me now. I would have understood them last year, but now it seems some of their issues are trivial. So what if they got stressed because their favorite tv show wasn't on. That's not a good reason to binge! Health just seems so different to me at this point, and so taken for granted by other people. Seeing my very strong muscular husband who could do anything become a week person who isn't allowed to do very much of anything and knowing it's going to get worse is just changing my perspective. I myself have played at getting healthy for years, but now I have to do it....just have to.

Denise
Everything is permissible but not everything is beneficial. I will not be mastered by anything.

It's never to late to be the person you were meant to be.

Even if you can't physically see the results in front of you, every single
effort is changing your body from the inside. Never get discouraged.

Weight loss happens the moment you don't give up.


 Pounds lost: 47.7 
0
16.25
32.5
48.75
65
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