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12/18/11 10:32 A

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Hi Unicord, just stopping by to say hello and how are you and your dh? Stop by for a chat.

Dianne

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12/7/11 9:21 P

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I hope these will suffice! Big hugs to both of you - that is great news too!

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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12/7/11 9:12 P

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emoticon emoticon emoticon The tumor has not grown since June of this year. The dr. says it is probably dormant for now. Let's go out and celebrate both our good news. We deserve a drink emoticon

Take care Dianne

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12/7/11 7:28 P

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Woo hoo! The PET/CT scan is clear!

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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12/7/11 8:50 A

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Good luck on the results. Keeping you in my prayers.

Big hug

Dianne

P.S: Will keep you posted as I hope you will

Have a great day.


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12/7/11 12:16 A

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Dianne - I hope you get good news. My DH had his PET and CT today. Hopefully the cancer is gone, never to return. Results next Tuesday.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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12/6/11 9:48 P

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Only 10 days till moving day. I am waiting for the results of his last X-ray to see if his lung cancer has spread any more. Should have an answer in a few days. Last time it was the size of a large egg.

Hoping that it will be OK.

Good night

Dianne

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12/4/11 7:41 A

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Hi Nancy, I am sorry that you where feeling alone on this site. I have not checked it in a while . I am glad to hear that your dh is in remission and I hope all goes well with the tests and the dr.

I have been really busy, I am preparing to move my dh to an assisted living facility. Last Sunday he decided to heat up some soup, we had just eaten. I was at work for a couple of hours. When I got back and stepped out of the elevator all I could smell is burning and our apartment is at the other end of the hall. Anyway, he did not smell the burning, he did not notice the apartment filling with smoke. I removed the pan from the burner (this is the 3rd one he has managed to destroy) opened all the windows to let the smoke out. That's when I noticed that my smoke alarm never went off. It was only a month old with a new battery. Man did I get upset.

I decides to take a month leave of absence and stay with him all the time. I called the director of the ALF to bring the date of the move up from Feb 1 to Dec 16th. She said no problem.

I was apprehensive about telling him that but he took it like he has taken everything else in life. Well if it needs to be done it needs to be done.He is always so calm, at least on the outside and he is not one to complain.

Let us know the results of the test and I really hope that all is well.

Have a great Sunday.

Dianne

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12/3/11 10:10 P

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The PET/CT is scheduled for Tuesday morning. The oncologist appointment is scheduled for 12/13. I hate the suspense and the waiting.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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11/22/11 10:21 P

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Thank you WildHorseAnnie. He has a PET scan to schedule for the first half of Dec. We are both nervous about it! It is the first PET since the chemo!

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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WILDHORSEANNIE's Photo WILDHORSEANNIE Posts: 659
11/21/11 11:48 P

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How's it going? I haven't been logging on to sparkpeople for a long time, and came across this post, and it about broke my heart! Hope things are going better. I've been through all that you are talking about, and you can make it through this, believe me. emoticon

"Living a life isn't only having a job that is terrific, satisfying and exciting; it's loving people for who they are; it's not being judgemental; It's saving time for your family; Its's enjoying the things that matter to you; Its' giving to help those less fortunate; Its's protecting the environment so we can enjoy the seasons and feel the renewal of life that spring brings; Its's dancing and laughing and remembering those who paved the way" --Katie Hurley


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11/9/11 9:30 P

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God is good! The insurance company must have decided it was not a pre-existing condition and they are starting to pay the bills!

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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10/16/11 9:36 P

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DH's voice still has not returned to normal. He is worried that it will stay this way.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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RETIREDEDUGATOR's Photo RETIREDEDUGATOR Posts: 114
10/9/11 3:14 P

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REMISSION; that word has magic, don't you think? Wonderful news! emoticon

retirededugator@yahoo.com


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10/8/11 7:07 P

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Ya know? These doctors really need to be more truthful. The chemo sessions ended up being 17 days in, 1 week out. Then 18 days in and 1 week out. Then 18 days in, and 1 week out. That is a long way from what we were told in the beginning. Now we have to deal with the insurance companies and try to get someone to pay the bills....

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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10/4/11 11:55 P

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DH was discharged today and he is home. It was nice to see it in print on his discharge paperwork: In Remission

He is tired and a bit weak, but that should improve in a day or two.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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10/2/11 12:37 P

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The CT scan is clear and we are now in remission! Woo hoo!
emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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10/1/11 4:24 P

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This seems to be my personal diary.... The chemo treatment is over and he is on the healing drugs. The methotrexate level is .07 (it needs to be under .05) but his RBCs are very low. They are trying to wait, hoping his blood production will start to recover, but he may need a transfusion this time. His voice is bad - squeaky and strained, and he is weak. Chemo sucks. But hopefully he will be home in a few days. They did a CT scan of his neck yesterday, but we do not have any results back yet. I hope it is clear.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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9/24/11 9:02 P

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Well they admitted him for round three on Saturday. They started the chemo Sunday. Today is day 7, a recovery day, and they do the Vincristine tomorrow. The Methotrexate is Tuesday, then the healing stuff begins. Hopefully the cancer is gone and he will be done. Of course we will have to wait for three months for the PET scan to tell us if he is clear or not.

Sometimes I feel very alone going thru this. If it were not for my Spark friends and my co-workers, my only regular support seems to be my neighbors. I saw my sister today - she lives only 10 miles away. We met for lunch with some local sparkers. And I realized that the last time I saw her was 5/21 - at another lunch get-together with the local sparkers. More than three months ago. Pretty sad.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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9/14/11 11:23 P

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Well, his follow up appointment is tomorrow. Shall we bet on when they admit him for round three? Friday? Saturday? They seem to only leave him out for a week at a time. Hopefully this round will not be too rough on him, but I am thinking that each is worse that the one prior. According to the clinical trials, this round should be the last - the cancer should be gone. I pray it is so.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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9/10/11 7:05 P

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Ha - went 18 days this time. He got out this morning. Hopefully they will let him stay out for 10 days or so this time. He needs to recuperate, and his job needs him too, for at least a few days!

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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9/7/11 10:54 P

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The port was clogged - someone must have forgotten the flush procedure (DH now has to supervise the nurses?) and he is now on the healing drugs. Chemo levels in the blood are not low enough yet. He will probably not get out until Friday (just a guess on my part). They seem to like keeping him in for 17 days at a time.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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9/5/11 1:10 A

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Well, now DH is having trouble with his chemo port. It either has a kink in it or it is blocked. They are giving him the healing stuff thru a line in his arm, but he needs that port for the last round of chemo. I am hoping that tomorrow they can figure out what is wrong with it. The chemo he gets can not be giving in a regular vein. You would think that since he is in a hospital someone there could fix this? They were having trouble with it Thursday, and changed the needle because they thought that was the problem. They managed to give him the 24 hour chemo (though it took about 6 or 7 hours longer because they overfilled the bag) but he had to be upright most of the time - when he lay down, it would block and set off the alarm. Most of today he has been off the IV because they could not get the port to work. Sigh. This nightmare just keeps getting worse....

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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9/3/11 1:10 P

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My how things change. DH is really low today, and so am I. Today is day 11 of the second round. Last time he was in the hospital for 17 days, out only 7, then back in. With the condition he is in right now, they will have to let him stay out longer before starting round three.

I do not think either of us will survive round three.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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RETIREDEDUGATOR's Photo RETIREDEDUGATOR Posts: 114
8/27/11 4:20 P

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Hi Nancy, Just read your posts & wanted to tell you that every emotion you are feeling has been felt by all the families that have been in your position. Your husband will cope in his own way & you will too. I have been on & off sparkpeople since 2008. I've read many posts by people that really helped, supported,& informed me, but often I never replied to let them know. You said that you were looking for some support here, so I felt the need to reply to you. My 36 year old daughter has just finished week #5 of 6 weeks of radiation therapy for cancer in her bladder. She probably is facing more surgery in Sept. or Oct. so we have faced some of the same tests, scans, etc. that you have with your husband. The medical jargon can be so frightening; sometimes you just have to say to the docs, I don't understand, use plain English, please! As for financial problems, you can get a little help with gas/travel expenses from the American Cancer Society. Speak with a social worker at the clinic where your husband is being treated. I also know there is the family medical 12-week leave that he can request (& you if you work), but I don't know the rules about how long a job must be held open. The social worker might help with that too. Hope this helps a little; contact me if you wish, Vicki emoticon emoticon

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8/23/11 10:06 P

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DH is doing great. His blood work is back to normal even though he has only been out of the hospital for 6 days. So... (drum roll please) ...as soon as his room is ready, he checks in for round 2! I am trying hard to put a positive spin on this. I keep telling myself that in 6 weeks this should be done. 14 to 17 days in for round 2, a week out, then 14 to 17 days in for round 3, and we will hopefully have a clear CT scan and he will be cured.

This is happening too quick! I hope we can both handle this! I also hope they will keep is job open and we won't go bankrupt because of this. We still do not have bills, and we do not know who will pay for what...

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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8/18/11 12:16 A

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Lets see - when the doc says 1 week in and 4 weeks out, he really means 17 days in the hospital, then maybe 2 weeks out before we do it again? He is out for now (finally) but we find out next week what the next step is.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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7/30/11 4:00 P

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Why does it seem like he is shutting me out? He talks to everyone about it - neighbors, family, friends - but not me.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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7/29/11 7:14 P

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Well, it is Burkitt Lymphoma, but they say it is in the early stages, and they are putting him in the hospital for chemo on Monday. He will probably be there a week. After that, who knows. The doctor thinks he has a 90% chance, but this still terrifies me. I am having a lot of trouble with the crying. Tears are too close to the surface all the time.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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7/28/11 11:15 P

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Now the portacath has been - what - installed? Anyway, we meet with the oncologist at 2 tomorrow to find out what the results say and to see what the plan is. I am scared to death, but I can not let DH know that. I hope I can hold myself together.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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7/25/11 7:20 P

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Ahh - it is good to be home again! We were there from 11 to 3. CT Scan, PET Scan and MUGA Scan. Scrabble anyone? DH did well, though most of what he had to do involved lying still. Blood sugar is good, heart scan is good. The rest we have to wait for. Tomorrow is the portocath. And another 3 or 4 hours of waiting rooms.


~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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7/22/11 5:05 P

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I have been a Spark member for about a year and a half due to weight gain caused by the loss of my thyroid function. Now my husband has just been diagnosed with lymphoma, and they are trying to rule out Burkitt Lymphoma. We just received the diagnosis, and still have some more diagnostics, testing, scans and port insertion to deal with. I am reeling from the news. I hope to find some hope and support here.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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