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56ROSE's Photo 56ROSE Posts: 15,136
4/13/10 3:27 P

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Thanks so much for sharing this. I just found out this morning that my brother most likely has a cancerous tumor. I lost my Dad & sister from cancer, also. Another sister is a cancer survivor. You're so right about living in the moment! Take Care of one another! emoticon

Marilyn
Boise, ID
Mountain Time Zone

Everything you've ever wanted is one step out of your comfort zone.

The food you eat can be either the safest and most powerful form of medicine or the slowest form of poison. Ann Wigmore

Max Lifetime Weight: 215
SP Start Weight: 199
Maintaining since: April 2016
Initial Goal Weight: 178
Current Goal Weight: 170

Purpose is the place where your deep gladness meets the world's needs.
Frederick Bue


 current weight: 182.7 
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CINDERRELIC's Photo CINDERRELIC Posts: 7,827
4/13/10 3:16 P

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Hi Everyone,

I am new to this team, not to SP. My husband was diagnosed last November with Acute Myelogenous Leukemia (AML). We were told it was the worst you could get and the fastest growing.

He was in the hospital for Thanksgiving and Christmas and spent 3 months there. We almost lost him the last of January/first part of February when his liver and heart began failing due to the effects of the treatment. The doctors and nurses gave up on him and the doctor said he would not be able to have any more chemo.

They had just done a bone marrow biopsy and when I asked about his chances I was told that normally there would be a 20 per cent chance he would be in remission but a much higher percentage that there would be some good news if not remission. However, with his reaction to the chemo he was given less than a 10 percent chance that we would even get good news.

My dh gave up, said he could feel his life draining out of him (and I am sure he did) and wanted to call hospice so he could die at home, but I wouldn't give up until I could see the results of the test. I called for prayer from my spark friends, and friends and Christian friends all over the world and prayers kept pouring in.

They sent him spark goodies through me, along with well wishes and prayers. When the results came in the doctor expressed complete amazement. There were no blast cells!!!! He was in remission!!!

Now we are home and he is in out-patient chemo. He has had 3 chemo treatments since we almost lost him and has them every 28 days. We will find out Monday if he needs another round or not, but for now he is still in remission.

This has truly been a roller coaster ride that only cancer spouses can truly understand and we all know that remission is not a cure. We all need constant support and never know when the news can turn from good to bad or bad to good.

However, one nurse gave us such strength and hope I would like to share it. She would come into my dh's room every morning and on the board that had "Plan for the Day" on it she would draw a heart and write beside it TRUST GOD and that is truly the only way we could have made it through this far.

Yesterday was a good day for my dh, but today is a bad day. Whatever each day brings, we are just happy to wake up together. I find myself patting his knee as we drive down the road just to reassure myself that he is really here with me.

We have learned to be happy for each and every day we have together, however many days, months, or years that may be, but realize that we are given this time to for a reason and must never take it for granted as we did in the past.

Cancer really makes you live and focus on the "Now" rather than the past or future and I am not sure but what living in the present is not fullest and most aware form of living.



Edited by: CINDERRELIC at: 4/13/2010 (15:26)
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56ROSE's Photo 56ROSE Posts: 15,136
4/11/10 8:24 P

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emoticon emoticon emoticon Glad you've joined us! Sorry about your son... emoticon

Marilyn
Boise, ID
Mountain Time Zone

Everything you've ever wanted is one step out of your comfort zone.

The food you eat can be either the safest and most powerful form of medicine or the slowest form of poison. Ann Wigmore

Max Lifetime Weight: 215
SP Start Weight: 199
Maintaining since: April 2016
Initial Goal Weight: 178
Current Goal Weight: 170

Purpose is the place where your deep gladness meets the world's needs.
Frederick Bue


 current weight: 182.7 
184
181.75
179.5
177.25
175
CANDLE1956's Photo CANDLE1956 SparkPoints: (7,567)
Fitness Minutes: (1,877)
Posts: 342
4/9/10 12:47 P

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Just wanted to introduce myself to the team, I am new to this team. My son was diagnosed with NHL almost 4 years ago, so it is good to find a team that relates to some of things I encounter in my life.

 current weight: 249.0 
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ANGIEDW's Photo ANGIEDW SparkPoints: (0)
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Posts: 185
2/20/10 5:22 P

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Hello Tiffany,

My 10 year old son has leukemia and he was diagnosed 2 years ago New Years Eve. I am so happy to say that he is doing great now.

It's sooooo hard to see the ones we love go through so much pain. I know how you feel. The absolute best advice my husband and I got was to take it one day at a time. Some days will be better than others.

You and your husband will be in my thoughts and prayers. I always have an open ear!



 current weight: 245.0 
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56ROSE's Photo 56ROSE Posts: 15,136
2/19/10 11:36 A

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emoticon emoticon emoticon Good advice here! Take care of you and take one day at a time!

Marilyn
Boise, ID
Mountain Time Zone

Everything you've ever wanted is one step out of your comfort zone.

The food you eat can be either the safest and most powerful form of medicine or the slowest form of poison. Ann Wigmore

Max Lifetime Weight: 215
SP Start Weight: 199
Maintaining since: April 2016
Initial Goal Weight: 178
Current Goal Weight: 170

Purpose is the place where your deep gladness meets the world's needs.
Frederick Bue


 current weight: 182.7 
184
181.75
179.5
177.25
175
ARTIE322's Photo ARTIE322 Posts: 725
2/19/10 10:29 A

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Hi, Tiffany.

I can certainly understand the pain and frustration you're feeling. My 35 yr old son had a dx of MFH sarcoma in Dec '08 and it's been a rollercoaster ride ever since.

Keep hope high, no matter how difficult life gets. I have also found blogging has help tremendously, but it's also a vey good idea for you to keep a journal, even if it's just a few notes on things as simple as what your husband ate. That journal can be invaluable somewhere down the road.

I echo Cindy's advice and urge you to take time for yourself. Don't ever become the martyr, that will do no one any good. Ask for help, and read, do research and don't be afraid to ask questions of the doctors and nurses.

Good thoughts and prayers go out to you, your husband and families.

Take one day at a time, keep putting one foot in front of the other. Don't look back except to see how far you have come. Take comfort in the expressions of caring from loved ones and strangers alike. Most importantly, believe in yourself. You have the strength to withstand any storm.



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SWDESERTLOVER's Photo SWDESERTLOVER Posts: 3,017
2/19/10 8:23 A

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Hi Tiffany. I'm so sorry to hear about your husband's diagnosis and what he's going through with his treatments. I know how devastating this diagnosis is, and how tough a lot of the treatments are. My husband has done extremely well with treatments, but I have friends who have had a very rough time with theirs. It can be so hard to watch because we can feel so helpless to do anything to help those we love. I think one thing that did help me so much was writing about this here on my blogs. My Spark Friends have been incredibly supportive and so often it helped to just put my feelings down in writing. Please remember that it's important to also take care of you. As caregivers, its easy to overlook our own needs to take care of our loved one. I had to learn to ask for help from family and friends and fortunately found that they were more than happy to help.

Know that my thoughts and prayers are with you and your husband during this time.
Cindy emoticon

Cindy
"May your trails be crooked, winding, lonesome, dangerous, leading to the most amazing views. May your mountains rise into and above the clouds."
Edward Abbey
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APRILTIFFANY's Photo APRILTIFFANY Posts: 15
2/19/10 7:18 A

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Hi, my name is Tiffany. I'm not new to spark but I am to this team. This last December, around the 12th, my husband of 1 year was diagnosed with stage 3 melanoma. They have been unable to find exactly where it started from but they were able to get some out of him. On January 13 he had a modified radical neck disection done where they cut him open from behind the top of the ear down to the front of his neck and over to the shoulder a little. They removed 45 lymph nodes and 2 of them were golf ball size. Less than a month later he went back in to have a port pu it. This Wednesday he finally started his interferon and it has been horrible. The first night we were in the ER until 2am because he was really dehydrated. We got that under control, but he is still hurting from everything and I hate seeing him this way. I'm 25 and he is 27, he is way too young to have to go through this and know that he will have it for the rest of this life. Any words of encouragement to help me get through the nights without crying or any advice is welcome. Sorry this was so long, but it feels good to get this all out.

 current weight: 264.0 
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