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ARTMISTRESS78's Photo ARTMISTRESS78 Posts: 2,149
2/3/10 5:09 P

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it makes me sad that i know all those big words that you've been using in your posts. it makes me sad that any of us do. sounds like they're doing some very aggressive treatments, but i've talked to many people in these last two years that have went through the ringer and came through it and are now healthy as can be. hope that's your case. hope you are doing well...being a caretaker is the toughest job i've ever done. are you blogging your thoughts and feelings like i did? i find that really helps to get stuff out in the open. good luck to both of you, i'll keep an eye on ya.

I'll make the most of it, I'm an extraordinary machine. sarashawger.com


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SWDESERTLOVER's Photo SWDESERTLOVER Posts: 3,017
1/30/10 4:04 P

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Sounds like their situations are very similar. Tommy had a 3 cm adenocarcinoma at the head of the pancreas, but pathology showed clear margins after the surgery. 6 of the 9 lymph nodes taken were positive for cancer cells. He had 2 sessions of Gemzar (3 weeks on followed by one week off for each session). He's now having radiation every day for 28 treatments and is on a slow infusion chemo pump at the same time. They hook him to the pump on Monday and take it off on Friday. He hates wearing it all week, but at least he gets the weekends off and he's almost halfway through the radiation. After he finishes that, he goes back for 2 more 3-week sessions of Gemzar. Then they'll do his third PET scan and we're praying it will look as good as the last two. He's also had almost no side effects. No nausea, but a little fatigue from the radiation is all. We are indeed lucky that they did have operable tumors. Just hoping they get through this. I've read a little bit about the vaccine clinical trial. I hope that your Dad get great results. Let me know how that goes.
Take care of yourself also and thanks for the prayers.
Cindy

Cindy
"May your trails be crooked, winding, lonesome, dangerous, leading to the most amazing views. May your mountains rise into and above the clouds."
Edward Abbey
www.flickr.com/photos/cindymccrary/s
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AZALEA4's Photo AZALEA4 Posts: 23
1/30/10 2:52 P

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Yes, my dad had the whipple too. So far, they think it was successful (there were clean margins). But 7 lymph nodes were positive for cancer :( The only scan he's had since the surgery has been clean, but it seems like the cancer can come back really quickly. So it's just waiting and hoping right now. He's in a vaccine clinical trial right now, so we're hoping he's in the experimental group and that it will help. What kind of treatment plan is your husband on? Our doctor chose not to do radiation yet, so my dad's just on gemzar and the clinic trial vaccine. Luckily with this treatment, the side effects haven't been bad at all. He's still having some digestive trouble from the surgery though. I'll be praying for you and your family. The only way I can stay positive is just be thankful they caught it in time to do the surgery. I think only around 15% of pancreatic cancer patients can even have the whipple, so sadly, we're the "lucky" ones...

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SWDESERTLOVER's Photo SWDESERTLOVER Posts: 3,017
1/30/10 1:13 P

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Thanks Azalea and I'm so sorry to hear that your father is going through this same thing. I know what you mean about the statistics for pancreatic cancer; it is so very scary. Did you father have a whipple procedure? Tommy had one on September 14th, just 3 days after he was diagnosed. So far he is doing quite well and we're trying to remain optimistic, but also still afraid every time he has a PET scan. Thanks for the info about John Hopkins. I'm going to check that out now. My prayers and thoughts are with you and your family through all this.
Cindy emoticon

Cindy
"May your trails be crooked, winding, lonesome, dangerous, leading to the most amazing views. May your mountains rise into and above the clouds."
Edward Abbey
www.flickr.com/photos/cindymccrary/s
ets/


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AZALEA4's Photo AZALEA4 Posts: 23
1/30/10 12:37 A

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I'm so sorry to hear that Cindy. My dad was just diagnosed with stage 2b pancreatic cancer as well in October, so I know what you're going through. The stats on pancreatic cancer scare me to death. I basically cry everyday, I know how tough it can be. If you haven't checked it out, Johns Hopkins has a great pancreatic cancer message board for family members and patients to share news, support, etc. I really recommend visiting it. It's given me a lot of good info.

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56ROSE's Photo 56ROSE Posts: 15,159
1/15/10 12:26 P

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Bandit/Frodo: Hope your brother is still doing well! Thanks for the info.... emoticon

Marilyn
Boise, ID
Mountain Time Zone

Everything you've ever wanted is one step out of your comfort zone.

The food you eat can be either the safest and most powerful form of medicine or the slowest form of poison. Ann Wigmore

Max Lifetime Weight: 215
SP Start Weight: 199
Maintaining since: April 2016
Initial Goal Weight: 178
Current Goal Weight: 170

Purpose is the place where your deep gladness meets the world's needs.
Frederick Bue


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SWDESERTLOVER's Photo SWDESERTLOVER Posts: 3,017
1/15/10 12:16 P

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Thank you so much. We appreciate all the prayers we can get.
Cindy emoticon

Cindy
"May your trails be crooked, winding, lonesome, dangerous, leading to the most amazing views. May your mountains rise into and above the clouds."
Edward Abbey
www.flickr.com/photos/cindymccrary/s
ets/


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HEALTHYBEAR24's Photo HEALTHYBEAR24 Posts: 13,101
1/15/10 1:35 A

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Cindy, you're in my thoughts and prayers.

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56ROSE's Photo 56ROSE Posts: 15,159
11/2/09 12:11 P

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emoticon emoticon Brenda! You sound busy! Glad you're Here!
Take care of YOU!

Edited by: 56ROSE at: 11/2/2009 (12:11)
Marilyn
Boise, ID
Mountain Time Zone

Everything you've ever wanted is one step out of your comfort zone.

The food you eat can be either the safest and most powerful form of medicine or the slowest form of poison. Ann Wigmore

Max Lifetime Weight: 215
SP Start Weight: 199
Maintaining since: April 2016
Initial Goal Weight: 178
Current Goal Weight: 170

Purpose is the place where your deep gladness meets the world's needs.
Frederick Bue


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BRENDA635 Posts: 4
11/2/09 8:33 A

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Hello everyone, I'm Brenda. I joined SP in September, but still trying to learn everything about it. I haven't had alot of time to do my own thing. I have a wonderful husband and a teanage daughter and I take care of my mother who has pancratic cancer. She was diagnoised last November and it has been a rough road for her. I am happy she has made it a year. I also do alot for my brother who has Ehlers Danlos. I try to get on SP as much as possible but somedays it just doesn't work out. Nor do I always get to workout. But keep trying.

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BANDIT/FRODO's Photo BANDIT/FRODO Posts: 79
10/15/09 3:33 P

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My brother was diagnosed in Sept 2008 he had chemo and radiation before having the surgery. Surgery they removed 80% of his pancreas, spleen and part of his bowel. He is doing GREAT now. He had his done at Cancer Treatment Center of America in Chicago. You might want to join pancreas-onc@listserv.acor.org they have a lot of good information. You all are in my thoughts. My brother is 52 now.

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HEILAS's Photo HEILAS SparkPoints: (0)
Fitness Minutes: (48,098)
Posts: 5,036
10/15/09 2:43 P

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Welcome. So sorry that you and your husband have this mountain to climb.

My advice is remain positive.

I pray the blood of Jesus over you and that healing will be forthcoming.

God Bless.

Heila, Cape Town, South Africa.

My God shall supply all your need according to his riches in glory by Christ Jesus. Phil. 4:19

The Lord sustains the fatherless and the widow. Psalm 146:9

Life isn't about waiting for the storm to pass... It's about learning to dance in the rain.


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56ROSE's Photo 56ROSE Posts: 15,159
10/15/09 1:13 P

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emoticon emoticon Cindy! emoticon emoticon emoticon emoticon You really have been through so much in such a short time! Hang in There! Glad you're Here!

Marilyn
Boise, ID
Mountain Time Zone

Everything you've ever wanted is one step out of your comfort zone.

The food you eat can be either the safest and most powerful form of medicine or the slowest form of poison. Ann Wigmore

Max Lifetime Weight: 215
SP Start Weight: 199
Maintaining since: April 2016
Initial Goal Weight: 178
Current Goal Weight: 170

Purpose is the place where your deep gladness meets the world's needs.
Frederick Bue


 current weight: 183.3 
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SWDESERTLOVER's Photo SWDESERTLOVER Posts: 3,017
10/15/09 1:11 P

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I'm new to this team, but not to SparkPeople. My husband was diagnosed with pancreatic cancer (Stage 2B) on September 10th. In a little over a month, our lives have completely changed. He's had a Whipple Procedure to remove the primary tumor, had a second emergency surgery that night to stop internal bleeding that developed, have met with his oncologist and radiologist, had a port put in, and been to more appointments than I ever could have imagined. We're still trying to come to grips with the fact that he has this very aggressive cancer and at the same time deal with all that goes along with it. Of course, I know everyone else here already knows all of this. I thought this would be a good group to join where I can meet other caregivers. Looking forward to reading what everyone else has to say and maybe picking up some advice along the way.

Thanks,
Cindy

Cindy
"May your trails be crooked, winding, lonesome, dangerous, leading to the most amazing views. May your mountains rise into and above the clouds."
Edward Abbey
www.flickr.com/photos/cindymccrary/s
ets/


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