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VELVETSAPPHIRE's Photo VELVETSAPPHIRE Posts: 819
10/2/08 2:50 A

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Hi Lindsay,

Thanks for your sweet reply and encouragement. I really appreciate it and appreciate the info about the PET scan. My husband talked with the doctors office about the PET scan and they said those aren't usually done on the prostate BUT, the link a friend sent me about them does mention it and it also mentions an MRI which I mentioned to my husband yesterday.

Ricky is going to call another doctor who does the laproscopic surgery and make an appt to go in and hopefully he will be better than this other one who just keeps disappointing me over and over again. The one who did the biopsy took 45 minutes to tell us some of the options but when we asked any direct questions, he gave us flippant answers and that is one thing I don't tolerate ~ my husband is less likely to make comments about things like that.

I have post polio and also suffered with Epstein Barr Virus for 5 years so I have seen a lot of doctors through the years back in OH where I am from and I have never EVER met doctors like some of these here in TX. Makes me wish we lived in OH again where I could have some peace of mind over who is treating my husband ~ and me when I need it.

When my friend emailed me information about the PET scan, he said it cost around $5,000 when he had his a few years ago. He was told by the doctor in Lubbock that they have a pilot who flies to CO each day to pick up the dye used for this and he said he received a letter beforehand telling him if he didn't show up for the test, he would still have to pay $5,000 for the supplies and all.

So now I am interested in the MRI which I know can also show hot spots and isn't quite as expensive but still very efficient. Hopefully this next doctor will agree to get his insurance approval and have that done so we can at least get some idea about the size of his cancer.

Good luck to you as you also deal with this problem. We'll be keeping y'all in thought and prayer.

God bless,
Carol

hope this all makes sense... I've only had 3 1/2 hours sleep the last 48 hours and I'm running on nerves right now so I'm going to bed with the hopes I can sleep tonight :)

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(.( ;. Carol *)♥
.* ) .*) -::-
(.( ;.*)♥ *)-::-

I am a polio survivor

Jesus is my Savior and King, the only Messiah I need
LCARP203's Photo LCARP203 SparkPoints: (0)
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10/1/08 11:55 P

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Hi Carol,

I am so sorry to hear about your husbands recent diagnosis. It sounds like you guys have dug your heals in and are finding out about all your resources and options.

Unfortunatly, I do not have any information on prostate cancer as we are dealing with another type of cancer. But, the process is similar for all types of cancer. One thing I will tell you is to really make sure that the PET scan is covered! We thought one was and so did the DRs office, but we are finding out that it was only covered if a previous test was inconclusive.

Keep us posted and let us know how your journey to healing is going. Welcome to the team!

Lindsay

--- Lindsay ---

" Potential is a static, but attitude is a driving force." -Nilesh Pampattiwar


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VELVETSAPPHIRE's Photo VELVETSAPPHIRE Posts: 819
9/30/08 5:53 P

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Hi everyone,

I just found this while browsing so decided to join, learn, stop in and say hi. My husband turned 50 in January 2008 and was just diagnosed with prostate cancer in Sept so we are now in a bit of turmoil as we try to figure out what all the alternatives there are and feel a bit overwhelmed as we deal with all this.

The options the doctor gave us were freezing, radiation beam and radiative seeds but all those (from our understanding) would only work in the direct area treated. Last option he gave us was surgery and my husband does have a date set the end of Oct for that but he might opt to go another route if we can find something that will be a better course of action.

We had a friend who told us about proton therapy (for brain, lung and prostate only) so we've been checking into that with MD Anderson Cancer Hospital in Houston. He talked with a woman there yesterday who said the treatment is for 8 weeks, 5 days a week for an hour each day. One nice thing about the proton therapy, for anyone who is interested, is it only kills the cancer cells and nothing else, unlike the radiation beam which can damage nerves and many other parts of the body.

Had another friend who had cancer a few years ago and suggested he get a PET Scan which will pinpoint any hot spots of cancer and let us know exactly where the cancer is and how big or small it might be. When our friend had that done, he said it showed exactly where the cancer was so the doctor was able to do less cutting and went right to the spot and removed it.

If anyone has any other suggestions or can expound upon what we have already learned, we would sure appreciate the information. We put our trust in God but we also know He expects us to learn and do what we can.

Thank you for taking the time to read this.

Carol

.* ) .*) -::-
(.( ;. Carol *)♥
.* ) .*) -::-
(.( ;.*)♥ *)-::-

I am a polio survivor

Jesus is my Savior and King, the only Messiah I need
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