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BELROSA's Photo BELROSA Posts: 697
1/25/10 7:22 P

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Hi JL,

Welcome to our group. I'm sorry you've had such a bad run getting good health advice from your Drs. Unfortunately it's very common in PCOS. Very few clinicians know about it and fewer know how to properly treat it.

PCOS - polycystic ovarian syndrome - is a bit of a misnomer actually. The real problem is insulin resistance. The symptoms of PCOS are different for everyone. For example not all women with polycystic ovaries have PCOS and not all women with PCOS have polycystic ovaries.

The dark ring on the back of your neck, under your arms and on your knuckles is called acanthosis nigricans and is caused by excess deposits of insulin which your body can't handle. It is a clear sign that your insulin levels are way out of control, so this is what you need to focus on.

If you are new to managing PCOS, I have put together a lot of information in a website to help educate other women. You might want to check it out, www.mypcos.info especially the "PCOS Plan of Attack" under "What is PCOS?" - it's a double sided page with lots of changes you can make to start getting things under control - a quick start guide, I suppose.

All the best and remember we are here for you. If there's anything you want to know just ask.

Belrosa

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
JLB0905 Posts: 7
1/25/10 1:29 P

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Hi there! I'm new to SP and to this board but am glad I have found it. I'll try to give the abbreviated version of my story...never had a weight problem growing up. In my late 20's I started putting on some weight but nothing crazy. Got married, then got pregnant and after having my daughter I started noticing changes. Acne in my 30's when I never had acne before, on my face, back, arms. Really bad on my arms. Then I noticed a dark ring on the back of my neck, darkness under my ams and on my knuckles. Went for my yearly checkup last year and she said I had PCOS. Well, I was surprised simply because I thought it was weird to get it that late in life and after having a baby.

I've never had irregular periods even after I got my period back after having a baby. I did breast feed and still my periods were normal and thankfully we didn't have any trouble conceiving. Dr put me on Metformin but I didn't notice anything different so I stopped taking it. I have gained 15 pounds in the last year adding to the 90 pounds I've gained since 2005.

I don't know what to do, I hate looking at myself. I'm miserable. I went to an endocrinologist who tested me for cushing's that was negative. Said I was IR and would end up diabetic if I didn't do anything but then didn't tell me what I was supposed to be doing! So here I am, hoping to get some answers. For one, do I even have PCOS?? And if so, what should I be doing for it??

THANKS!!!

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