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9/10/09 11:20 A

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I first heard the word PCOS about 18 years ago when I was trying to get pregnant. In 1991 I had surgery on my ovaries and did get pregnant, but miscarried. I got pregnant again 4 months later and had a son who is now 16. My doctor retired, so I was on a search for a new one to help me. I was shocked. When I told one doctor about my symptoms and that I thought I produced too much insulin, he called me fat and lazy and said I was just looking for an easy way out. He made me cry and feel really bad about myself. So, I gave up. A few years later, while having an annual exam at a new gynocologist, he talked to me about PCOS. He was very nice and said his wife suffered from it. I had another surgery to "zap" my ovaries and to get rid of endometriosis then began on clomid and did IUF, but nothing! Finally, the mehtal and physical pain became too much and I begged my doctor to give me a hysterectomy. It took him an hour to get through all the endometriosis to even reach my female organs. He said my ovaries were plastered to my uterus and there was no way I could have ever had another child. I was happy to hear him say that ... not because I didn't want more kids, but because I would have hated to have the hysterectomy if there was even the slightest chance of having another child. I thought "no ovaries, no more PCOS!" WRONG
PCOS does not stop once your ovaries are out!! PCOS is just a symptom of a bigger problem. I have struggled with weight since 4th grade. The only times I lost weight were when I was pregnant or on fertility meds. I was recently diagnosed with diabetes, but am working VERY hard to get that under control. I found out 3 weeks ago and have lost 13 pounds already and my blood sugar has dropped considerably. I have cut out all sweets and only eat whole grains, lean meats, and lots of fruits and veges. It was a big wake up call for me.
I believe that PCOS (or whatever the bigger problem is) is hereditary. My grandmother and her sister only had one child and their other sister did not have any. I am built like her and looking at pictures I can see her skin tags and thinning hair. I know in my heart she must have had this too. My father was diabetic and had thinning hair, skin tags, and heart disease. He had the same build as his mom, too. I think if they could find that "gene" that they could wipe out PCOS. We just need to make everyone aware of it!! And lobby for some research studies. I don't want to pass this down to my child and grandchildren.

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