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BELROSA's Photo BELROSA Posts: 697
3/16/09 9:15 P

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Hi Jen and welcome to our team. I suspected I had the condition for quite a few years before I was actually diagnosed (the first Dr didn't do enough tests to Dx properly so said I was fine) and I know what you mean about the sheer relief of finding an answer for things, especially the weight. It is important to get a proper diagnosis and just in case your Dr is a bit behind the game and doesn't know how, this is what you need tested;

1. A transabdominal and transvaginal ultrasound to determine whether your ovaries have undeveloped follicles or cysts. An ultrasound on

2. Blood tests:
2 hr Glucose Tolerance Test (GTT) including insulin levels and a glycosylated haemoglobin or HbA1c test,

Serum Sex Hormone Binding Globulin (SHBG),

Free Androgen Index (FAI),

Testosterone,

Dihydrotestosterone (DHT),

Serum Dehydroepiandrosterone Sulfate or (DHEAS),

LH,

FSH,

Prolactin,

Serum Progesterone,

Serum Oestradiol,

C Reactive Protein (CRP),

ESR,

Full Blood Count (FBC),

Thyroid Function Test (TFT including TSH and free T3 and T4) as well as Thyroid Autoimmunity studies (Tg Ab, antiTPO antibodies),

Triglycerides, HDL, LDL and total cholesterol levels

All of this should give you a basic picture of what you are working with and where you need to go regarding treatment.

The blood work should be done early in your cycle, suually on Day 3 (the 3rd day of your period), the reason being is that that is when your hormones are most 'stable'. You should have practically no progesterone, only a smidge of oestrogen, your LH should be very low and your FSH roughly 200 ng/ml. Often in PCOS the FSH is low and the LH is high which causes all sorts of problems.

The ultrasound should be done during the LH surge (around Day 12 of a 28 day cycle) to assess the thickness of the endometrium.

If you can manage to get in within the first 3 days of your cycle for bloodwork (usually FSH and LH levels), then you should also have some follow up tests later on in that cycle:

Around about Day 12 (of a 28 day cycle) they should be testing for the "LH surge" the time where the LH increases and becomes higher than the FSH level. If your LH:FSH ratio is ok, you should be able to use a home ovulation kit to detect the LH surge, so you know when to have the blood drawn to confirm it.

About 7 days after the LH surge is detected, they should be testing for progesterone levels, to ensure that ovulation occurred properly.

I hope this helps. Sometimes the Docs need a prod in the right direction. I went for another 4 years after my initial test (an ultrasound performed when I was pregnant, no bloodwork) not knowing why I had to work so hard to maintain a normal weight. It's always better to know what you are dealing with so you can be proactijavascript:void(0)ve about it and know what to do to help.

Good luck, let us know how you get on.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
JENSMITH76 Posts: 5
3/16/09 10:12 A

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I have not been diagnosed with PCOS but am 90% sure I have it. I have 2 children, but have been trying to get pregnant for the last 2 years. I have thought for quite awhile I might have a throid condition but kept putting off going to the dr. I finally made an appt with "the best" endocronologist around here, but can't get in until July. We decided to start tracking my ovulation with an ovulation "testing kit". Turns out I haven't ovulated at all this month. When I came across info on PCOS, it was like I was reading all about myself. The fact that it often goes hand in hand with thryoid issues and insulin resistance (again, not been diagnosed, but "had a feeling") convinced me even more. As I'm sure many of you understand, it's not that I want this disorder, or a thyroid issue, but knowing that if I do have these issues it explains so many other things makes me feel better. I was reading the symptoms (of both pcos and thyroid) and just kept thinking "how long have I had this and didn't know", "how much better could life have been had I realized this earlier". I had 20+ skin tags removed from my neck last year. I have had sharp shooting pains in my belly for going on 3 years. I've had so many symptoms that just kept getting passed over by a dr that I gave up even going (I haven't been in 2 years).
I've been a member on spark people for awhile. Last year (Jan 08) I did well, but then stopped logging on, excercising and eating right. It is so hard for me to focus that even sitting down and doing a weekly menu is hard. But I need to. Knowing what we know now about PCOS and how diet and excercise could truly not only get us healthy, but also allow us to have more children is more motivating and almost feels essential. I have a 5 and a 3 year old, both boys. I homeschool my 5 year old am involved in too much, but am trying to streamline our activities and cut out the unneccesary so that we can focus on our health. (My dh is also overweight). We both used to be in the military! We've just lost control over the last few years.
Anyway, I'm glad to be here. I hope I can get some wisdom and actually apply it. That is of course, the hardest part for me. Especially when I don't feel like I can focus or have energy. Thanks for this board!

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