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12/19/12 1:23 P

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Hi,
I'm Eileen and I started having angioedema, swelling of the face, throat, gut, etc. in 2004. After many trips to the ER I learned that I could treat myself at home with prednisone,and benadryl which I have since then. I went to an allergist and skin tests for everything under the sun turned up nothing. I started keeping track of things that caused swelling. My arm would swell up from blood draws, tape, the turniquet, latex, sun, nightshades (potatoes, tomatoes, eggplant, all members of the green or red pepper family). Scratching an itch, called dermatograpy. I could never plan to go anywhere because I never knew when my face would swell. I got so bad I couldn't get off prednisone long enough in between episodes and gained 30 pounds. My primary care provider put me on a nebulizer as I was wheezing, and having difficulty breathing. I was prediabetic, I had high blood pressure, and from the albuterol I developed atrial fib and ended up in the hospital. In the hospital the hospitalist commented that my thyroid medication was mighty high. They ran a thyroid panel and low and behold my thyroid was normal but my TSH thyroid stimulating hormone was not. For years, docs would order TSH alone to assess whether my medication is working. I would be abnormal indicating that I was low thyroid and they kept increasing my thyroid dosage. By calling pharmacies from my past I was able to determine that all the way back to 2004 I had been on very high levels of thyroid. My allergist took me off of my thyroid medication and guess what, no angioedema. When I got down to zero, Extremely low T3 and T4, they put me back on a low dose and gradually elevated it. As soon as my dosage got to 100 mcgs I had angioedema. I went back down to 88 mcgs and I stopped having it. My T3 and T4 were normal, my TSH was elevated. My allergist told me that 10% of angioedema cases are related to thyroid.

I tell this story to say that allergies are more complicated than we are led to believe. Another contributor to allergies is; elevated histamine. Histamine is released when the body confronts something it perceives as foreign. Histamine is produced in many foods and the body elevates histamine in response to many other foods that do not actually produce allergies. Google histamine intolerance for a list of histamine producing and enhancing foods. I hope this lets you know that you need to be a private investigator to discover what is at the root of your allergies. These things are not yet on the radar of physicians in many cases.

Edited by: IRISHBLUEILEEN at: 12/19/2012 (13:29)
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