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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
3/14/15 3:35 A

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In addition to what Nola said, sucking on candies, chewing gum, drinking carbonated beverages, and talking while eating can cause you to swallow excess air. Also, if you're not digesting properly and food is taking too long to move through then it begins to spoil inside your body, leading to a release of gasses (fermentation) which causes bloating. Holding in farts also adds to the problem, so if you have this problem find somewhere you can go to pass gas kindly and respectfully and let it fly. Don't hold in a burp either.

Make sure you're drinking your water lukewarm, or even heating it up slightly. Drinking cold/ice water constricts the blood flow to the stomach and causes the stomach muscles to contract. This slows digestion and promotes vomiting in people with GP. Also, be sure to drink it slowly throughout the day instead of trying to cram a lot of water in all at once. Don't drink water while eating, only before or 30 minutes after eating (besides sips to help swallow food).

Remember that foods like berries and meat have solids in them like seeds and connective tissues. These small pieces aren't digestible, and if you have problems moving solids then these will make it worse and can cause a bezoar in some people. Some forms of juicing remove the pulp of fruits and veggies, while others don't and even though they're not a visible solid they can still block liquids from passing through. (The pyloris only opens the size of a pinhead to start, then when it opens wider the body believes the rest is indigestible material, so if solids block the pyloris right away problems arise.) Forcing yourself to eat or drink when you have no appetite (remember the difference between hunger and appetite) means you might just be adding more to your already full stomach and making it even harder for it to pass through. Don't force yourself to eat or drink more food if you already feel full/sick or if you can't stand to think about food (no appetite). Better to wait a while. Also, don't exercise on a full stomach. Significant exercise with a full stomach promotes vomiting and stresses the stomach. Plus, when exercising blood flow is routed away from the GI tract and towards the muscles, heart, and lungs. Taking a slow walk, moving around the house, or very mild exercise does help wake up the GI tract for most people, just don't overdo it. Always take a multivitamin (gummies tend to work better than pills with GP), as this will supplement some of the vitamins and minerals missing due to GP issues.

I suggest checking in with your GI doctor soon, as there are some treatments that sometimes help with moving solid food out of the stomach. They sooner they're tried the better the effectiveness may be.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


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GRNDMOM43's Photo GRNDMOM43 Posts: 47,152
3/1/15 11:54 A

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emoticon to the team! It looks like your GP is more advanced than many of us. There are several support groups through Facebook that may be able to give you good information and hints. So many of us become nauseated with water. If you can add just a touch of juice or flavored liquid to your water it may help the nausea. Drinking through a straw may help you get the amt. of liquid you want without as much air and volume.
My Dr. has recommended that I have 2 liquid meals a day and then small solid meals otherwise. Pureed soups may be a good answer to getting more nutrients in without as much sugar.
I hope that you will check back with us and that we can be of help in the support for your GP life. When you are comfortable I hope that you will set up your page so that we can send Goodies and lots of support. Wishing you a Happy Tummy Day!
Nola

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3/1/15 11:40 A

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Hi welcome! I too crave the chewing. I like the idea of blended salads and puréed tuna salad and have tried these baby foods and smoothies.

Since I struggle with hydration, I try to now keep my foods very liquidy otherwise my stomach blocks up and I vomit.

I think for me I can handle near anything as long as the volume is really small like half cup solids and spaced out from liquids. Problem is I want more than that volume so I reserve liquid nutrition for my volumes. I mostly drink my food now bc my abdomen hurt so much on solid food. I don't do well on smoothies bc I lose track of the solids and they just build up in my stomach.

Exercise helps to get things moving but also can make me really nauseous. Getting discouraged and eating candy to avoid feeling sick is not a good plan - I tried it. I was an anxious mess!

Forcing self to drink fresh pressed juice when I have no appetite and feel full helps when I know I need nutrients and hydration. It also greatly improves mood and energy! Water on empty stomach makes me nauseous unless I eat a ton of crackers,

When people look at me with pity I say it is just adaptation. A bite of solid food makes me feel like I ate a rock but I can still get the taste. I get discouraged for sure bc I don't want to drink eat and feel sick and when do I am sad I drank too much or ate more than insides can handle.

I try to keep fueled so don't get over hungry and eat large volume. I am trying a juice feast right now to boost nutrient intake. Support of friends helps, and eating dessert and volunteering staying part of life.

Since I can't burp easily, I have a lot of gas so by end of day feel like a balloon and it can wreck my sleep. Exercising before bed helps move the gas around if not out - I highly recommend it!

I need help with sipping liquid meals - I just want to get them over with and move on to the next thing. Any tips welcome!

1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
6/27/14 1:16 A

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Welcome to the team, Housefairy. My apologies for not responding sooner (I've had a very rough few months, and it continues...). I'm glad you've found some things that really work for you! There are dozens, maybe hundreds, of different causes for GP, and while some of us know or figure out the cause over time and possibly help us manage the symptoms, not everyone finds out what caused it. The more important thing is learning how to manage it, live with it, and be as healthy as possible with it.

I see talk about baby food, juicing, and smoothies. There are people that live off store-bought and homemade baby food, though plenty of people don't like it. The reason babies can eat it is because they haven't yet developed all their taste buds. Our taste buds develop and change as we get older, even as adults. Still, having homemade baby-food-like "meals" can be better than the store-bought. (When I had my wisdom teeth out I loved eating all the desserts, but I wouldn't want to live off it for a long time.) Juicing can be a great compromise, as long as you're being careful about the end product: too much 'pulp' left over can mean less nutrients are included, but no 'pulp' could mean too much roughage. So finding what works for you can take time. I haven't tried juicing myself, as I don't have the time, money, or energy to put into it, but I know some people swear by it. Plus there's so many different mixes that can be made with different foods! Smoothies are good as long as we're careful what's going in them; we don't want to trust smoothies from fast food places, for instance. I've made those before, especially during some rough patches. I started with a base of plain or vanilla yogurt (sometimes greek, sometimes regular), applesauce, and carnation instant breakfast (so many good vitamins and minerals). Then I would add a little lite ice cream (less fat) or frozen yogurt and whatever else seemed good to me at the time, like a few pieces of fruit (tip: either cooking or freezing and quickly thawing fruits and veggies can break the cell walls to make them mushy and a little easier to digest). Finding what works for each person is the only way to sustain the diet long term.

I've spent a lot of time researching GP so I sometimes can help answer questions. There's some good people on our team, too (several are right here). It can be hard having to eat so differently than others, as so much of our lives is centered around food. Knowing you're not alone can help.

The quick version of my story: I have always eaten differently than others for my entire life. I didn't find out until 2012 (when I was 30) that I have a genetic collagen disorder, called Ehlers Danlos Syndrome (EDS), which makes my connective tissue too lose. This means my joints dislocate easily and my organs are not held in place properly, and it's progressive and incurable so it has gotten worse slowly over the years until it got really bad in 2012 (for a number of reasons). It got so bad I lost 40 lbs in 2 years and eventually lost the ability to eat. I traveled from MN to Philly several times to see a leading GP specialist, who put me on TPN (IV nutrition) for just a few months to help regain the weight. That plus quitting work and going on disability so I could take care of myself helped a lot. As I gained the weight and learned that due to my EDS complications I really only digest while laying down, I was able to start managing my GP and can eat a little more normally now as long as I lay down for awhile afterwards. So my GP management and 'treatments' are very unique, but I've learned so much about the more typical forms of GP that I do what I can to help inform and support others.

Again, welcome to the team. Glad you found us. It sucks to have GP, but it helps to find support from others.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
GRNDMOM43's Photo GRNDMOM43 Posts: 47,152
6/17/14 1:12 P

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Nola

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HOUSEFAIRY's Photo HOUSEFAIRY Posts: 60
6/17/14 12:43 P

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When I first started juicing (after hospitalization for 9 days), the first couple days was the hardest. But I finally got myself in a mindset that it was either this (juicing and/or puree with occasional "table" food) or tubes. I want to avoid the tube feedings and suctioning for as long as possible, and for me, this has worked. For me, preparing the foods and combining everything in the bowl or on the plate as if I was going to eat it from there and then from there putting in the blender or juicer seemed to keep the taste from changing. From there, it was just a matter of dealing with texture, to which I worked on replacing the negative thoughts with positive, and it has helped greatly. I use herbs for flavor as well as chicken/beef/veggie stock depending on what I am making to get consistency. I especially love my tuna salad pureed, just turned it into a spread instead of a salad. Most people who visit love it.

PS: Another way I added nutrients was to get Carnation Instant breakfast (chocolate) and used one envelop with yogurt vanilla ice cream and made milkshakes. (The chocolate ice cream bothered me, but yet the chocolate instant breakfast didn't, I don't know why, but it worked for me. Love smoothies. They are my "extra" treat when I am sick.

Edited by: HOUSEFAIRY at: 6/17/2014 (12:46)
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HOUSEFAIRY's Photo HOUSEFAIRY Posts: 60
6/17/14 12:37 P

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LOL, I agree. The only thing I liked was Tuti Fruiti (spelling?). I prefer to steam my own things, add either a little chicken or beef or veggie stock/water depending on what I am making, and puree myself...tastes much better than the baby food. I was diagnosed with anemia a few years back, but have managed with sunflower sprouts to keep from having any blood products. Sprouts have really helped tremendously to keep my nutrition up.

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6/17/14 12:18 P

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Speaking of baby food, when I was first diagnosed with GP, I had read that some people with that were eating baby food. I tried some to get in more servings of veggies, but I just didn't like any that I tried; it really made me wonder how even babies can eat that stuff, lol.


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

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EXOTEC's Photo EXOTEC Posts: 3,327
6/16/14 7:55 P

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Juicing just seems weird to me. I know it's very popular. I'm sure it's very healthy too, and would be a great way to get the nutritional value of veggies.... but it's sort of akin to eating baby food, to me. Besides, what I'm really wanting is that cold crunchiness of veggies. Crispy salad, carrot stix... I'm just out of luck, alas.

...the problem with people these days is
they've forgotten we're really just animals ...
(attributation forgotten)

We did not create the web of life; we are but a strand in it.
~attributed to Chief Seattle

We don't have souls. We ARE souls. We have bodies.
~C.S. Lewis


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HOUSEFAIRY's Photo HOUSEFAIRY Posts: 60
6/16/14 6:49 P

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Hi Exotec. Have you tried juicing your salad? It didn't sound great to me either, but what I do is make my salad normal, put all the things I want in it in the bowl with the dressing, and then put contents of the bowl into my juicer. I know it isn't the same as chewing it, but for me, I think it tastes as good, and get all the nutrients. It helps with my cravings.

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EXOTEC's Photo EXOTEC Posts: 3,327
6/16/14 6:30 P

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My GI troubles are, no doubt, related to my scleroderma.
I was recently "threatened" with a GP Dx despite having none of the "typical" symptoms (no nausea, no spontaneous vomiting). I discovered (on my own, I might add) that the symptoms I do have are/were being caused by meds I'm on for other symptoms. I've stopped one of them that I didn't need to begin with. The other I can't stop, so I'll have to find some way to manage it.

I suggest you look into any meds you're on, and research the info for professionals, not just the patient info. It will tell you how it works, and a better listing of side effects. This may not be your trouble, but it certainly pays to be proactive on your own behalf. None of my several specialists put any of it together. In fact, my endocrinologist, when I described the symptoms, actually exclaimed "good!", because slow gastric emptying is one of the actions of this med he'd had me on. I'm off it now... but it will take another month at least to clear from my system. Boy was I mad.

At least I'm not faced with a liquid diet, which is how my gastroenterologist was leaning. I'm still not allowed any roughage, which is killing me. I cheat a bit with some very soft-cooked veggies occasionally. But I'm craving salad, and I can't handle it.
Meanwhile, a higher-level GI specialist changed my rabeprazole to omeprazole (which I've taken before and doesn't work for me anymore)... and my regular gastroenterologist is out of town until the 23rd, so I can't even get a renewal of the rabeprazole. I'm on OTC Zegerid™ until I can plead with her to go back to her therapy. In the interim I'm gulping sucralfate and not able to eat much of anything. I had poached eggs and a piece of toast for lunch and I've been queasy every since.

Hope you can find a solution. It's pretty certain we can't just depend on our doctors - even the specialists!

Edited by: EXOTEC at: 6/16/2014 (18:32)
...the problem with people these days is
they've forgotten we're really just animals ...
(attributation forgotten)

We did not create the web of life; we are but a strand in it.
~attributed to Chief Seattle

We don't have souls. We ARE souls. We have bodies.
~C.S. Lewis


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GRNDMOM43's Photo GRNDMOM43 Posts: 47,152
6/16/14 5:25 P

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The cause of my GP is unknown but I have probably had it for years although it was only diagnosed about 2 years ago. I do best at stage 2 GP Diet plan. I have a mild case but am not able to take the medications. I eat one solid meal and the rest puree or liquid. Best wishes on finding what works best for you.

Nola

Kansas~ CST
Each step taken is a calorie left behind!

Don't quit! Tomorrow is another day to Sparkle.







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HOUSEFAIRY's Photo HOUSEFAIRY Posts: 60
6/16/14 4:33 P

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I am sorry to hear that. Prayers and hugs

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6/16/14 4:23 P

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Welcome to the team!

My GP was diagnosed about 4 years ago; mine was caused by radiation treatments I had to my spine; some of the radiation damaged some of the nerves in my stomach. I've been fortunate as I have been able to manage mine with medication and diet.


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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HOUSEFAIRY's Photo HOUSEFAIRY Posts: 60
6/16/14 8:39 A

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Hi Everyone. New to the forum. I have had idiopathic gastroparesis for nearly 5 years now. Would like to share tips and support with those that would like to. :)

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