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MOM2ACAT's Photo MOM2ACAT SparkPoints: (190,535)
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1/20/14 4:21 P

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Welcome to the team!

I think that's a good idea to check out the G-PACT Facebook page; I live in Michigan, so unfortunately, I can't be of much help with finding a doctor in your area.


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
1/16/14 5:51 P

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Welcome to the team. I don't have any info about GA, but I can tell you there aren't a lot of doctors who are knowledgeable about GP. Many have incorrect information and therefore aren't that great at treating patients, especially with moderate to serious ideopathic GP. It's often hit-and-miss. I recommend researching gastroparesis and learning all you can about the unique way your daughter's symptoms exist. When you know more, then you can fire the doctors who aren't helpful or aren't willing to learn and work as a team with the doctors who are willing to not only help but to learn.

You might get involved with the G-PACT groups on facebook to see if anyone can give you a recommendation for doctors in GA. I live in MN and failed to find a doctor who really knew what they were doing here (Mayo is HORRIBLE), so I had to fly to Philadelphia and see one of the leading doctors to get a proper diagnosis. I can no longer afford to see him, but he worked with my primary doctor here and that helped her to learn a little more about my needs and become more receptive to what information I gave to her. We often need to keep searching to find the right doctor to help us best. Therefore, the more we know the better equipped we are to find the right doctor, the right treatment, and even to figure out how to best live with the symptoms ourselves. That means learning a what/how/when/etc to eat. There is a lot of information on our team if you take some time to look around.

Let us know what happens with her testing (I'm assuming she's having a gastric emptying study) and what the doctors say. We may be able to help provide some information based on that. Also, know that while there are few treatments and no cures for GP, there are people (like G-PACT) who are pushing the government and doctors to do more research and studies on GP, develop new treatments, recognize that GP is not rare (about 1 in 25 people), and while many are only mildly affected, others are severely affected and medical personnel need more knowledge for treating everyone properly. Take some time to check G-PACT out.

~ Sheri ~

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BOROCHICK's Photo BOROCHICK SparkPoints: (2,734)
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1/15/14 10:02 A

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Hello,

I joined SP a few weeks ago for my own health and fitness needs, but discovered this team trying to find information and answers for my 21 y.o. daughter who is undergoing testing for GP. Please share if you know about doctors who specialize in diagnosing and treating GP in Georgia.

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