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7/11/13 5:17 P

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Welcome to the team!
I was diagnosed with GP in December 2010. Mine was caused to radiation I had to my spine for cancer treatment; the radiation damaged part of my stomach. I am on ethromycyn (not sure of the spelling) for mine. One of the biggest adjustments for me was giving up some of my favorite foods, foods that are healthy for most people but cause pain for us. It was a lot of trial and error for the first few months figuring out what I could and could not eat.


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
6/11/13 12:41 A

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Welcome to SP and to the team, Alrmccall. There is a lot of information around our team, and several members, myself included, who have been living with GP for a few years now. Diabetic GP is the most common form, affecting around 20 million people around the world. Diabetic GP is often not as severe as some of the other causes, but it is often much more difficult to manage. Having a GI specialist and endocrinologist who are well versed on the condition as well as potential treatments is helpful, but the most important things to do are a) control your blood sugar (having it out of control will lead to further damage in the digestive tract) and b) learn about your GP diet. I have a thread about how to do that, but feel free to ask questions. You essentially need to relearn how to eat, as what has worked for you in the past won't work so well now. Considering the explanation of your attacks, perhaps you're having what amounts to 'dumping', where your pyloris won't open to allow food out of the stomach as it should, then suddenly it wakes up and opens wide. Hopefully as you relearn how to eat you'll be able to retrain your stomach to empty properly If you have not gotten a gastric emptying study (GES) I would recommend bringing it up to your GI doctor as it is the main diagnostic study for gastroparesis. It will also give you information that you can use as you go forward; essentially telling you how fast your stomach empties.

As for the domperidone (the generic name for motilium), be cautious with using it. It is not fully FDA approved in the states, so only a few doctors in the US are legally allowed to prescribe it (far fewer pharmacies in the US can fill it) and they must take blood and run an EKG every few months (starting at 1 month after beginning treatment) to watch for severe side effects. If your doctor has not talked to you about this, I highly encourage you to do so. I was on domperidone (the specialist I found was allowed to prescribe it and it was filled in the US) and even though my specialist was PA and I'm in MN, I had to fly out there several times for monitoring before we stopped the medication. It didn't help me at all (I have a rare cause), I couldn't afford $80/month, and the increased chance of side effects due to my other conditions and medications was not worth continued use to see if it might eventually work.

Keep a close eye on your weight. Having a dramatic weight loss like that could be a sign that you're having malabsorption or are not eating enough food due to the attacks. If you continue to lose weight you need to bring it up to your doctor; tracking the weight loss weekly will show the extent of the loss. Many people learn the diet and learn how to eat what their body will accept, which stops the unhealthy weightloss and allows them to live a healthier life.

If you have questions, please let us know. This can get overwhelming, but we've all been in your shoes - scared and unsure - and as you learn how to live with GP, you'll find a way through. It takes a lot of time and effort, but you can do it.

Edited by: 1STATEOFDENIAL at: 6/11/2013 (00:43)
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JBOYLES2 SparkPoints: (53,827)
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6/9/13 8:31 A

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did any of your doctors/health care team, talk to you about diet? And how to manage it with diabietes and GP? My doctor also recommends the molitium drug from canada, and I took it before when it was available in the US, and it did help taking it with each meal. Maybe try keeping a food journal if you don't already, to try and help you find what trigger foods may be worse for you.

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ALRMCCALL SparkPoints: (79)
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6/8/13 10:39 P

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I was just diagnosed with Diabetes 2 and Gastroparesis three weeks ago.
In April, I started having severe pain in my upper abdomen. It felt like a gallbladder attack, but I knew it wasn't gallbladder because I had it removed 18 years ago. I was already on Nexium for acid reflux, but this was such severe pain down in my belly. I had a few of those "attacks" while at work and had to leave and go home. At one point, I thought i needed to go the emergency room, but when I got there it was going to be a four hour wait, so I just went home. It was weird. I would be in pain for hours, and then BAM it would go away. I decided to get an appointment with a GI doctor. I went in they did some bloodwork and scheduled me for an endoscopy and ct scans ( I was scared because I had uterine cancer two years ago), The nurse called me back the next day and told me my glucose levels were over 300 and asked me if I had Diabetes. Well, to make a long story short, I was diagnosed with Diabetes and Gastroparesis after having multiple tests. GI doctor wants me to take Motilium from Canada. I ordered it, but don't have it yet. I just want to eat with no pain. I am learning all I can in the meantime. I have lost 35 pounds since Jan. most of it since April when the attacks started. I need to lose weight, but don't want to keep having this pain.


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