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PRUPLEBEAR's Photo PRUPLEBEAR Posts: 23,123
6/20/12 7:26 P

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You guys are great! Thanks

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MOM2ACAT's Photo MOM2ACAT SparkPoints: (0)
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6/20/12 3:30 P

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Welcome to the team!


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
6/20/12 1:35 A

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I got that a year ago from a bunch of widgets they posted on their facebook page. You can look on their page and see if you can find them (there are a bunch of them). If you can't just save the one on my page.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
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My sparkfriends are my greatest support and I'm grateful for it.
PRUPLEBEAR's Photo PRUPLEBEAR Posts: 23,123
6/18/12 5:54 A

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Yes and I love that site! But I tried to find that little pic that you have on your page and could not!!! Where did you find it? You have been great!!! Thanks for everything!

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We are defined by the choices we make. Fight Club



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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
6/17/12 6:40 P

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Have you checked out G-PACT yet?

I'm glad you're willing to spread the word. If you need help finding information or if there's anything I can do to help answer questions, let me know.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
PRUPLEBEAR's Photo PRUPLEBEAR Posts: 23,123
6/17/12 1:03 P

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I think you are making a big diff in the life of many people! Keep up the good work. I have been telling eveyone that I have talked to sence Friday all about it and telling them where they can go to get info about GP. I hope that I to can share so knowledge like you have!

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We are defined by the choices we make. Fight Club



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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
6/16/12 9:11 P

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I've spent more than half my life researching the body, including my first 2 years of college I majored in Human Biology and Biology with a minor in Human Development, yet I'd never heard of GP either. I was dumbfounded because I had no idea that motility issues could even be possible. Since I was diagnosed nearly 2 years ago 50% of the doctors I've met have never heard of it and another 25% don't understand what it is or the wide range of severity and causes. (I went to Mayo Clinic in Rochester, who's supposed to be one of the best in treating it, and even though I'd been diagnosed a year previously they said there was absolutely no way that there was anything wrong with me. I've since been diagnosed with several conditions that can cause GP, most of which are more rare causes.)

Because it is so prevalent but so unknown, I will tell anyone who wants to know what GP is. I've spent a ton of time researching information about the condition, so I have plenty of information to offer. I've met several people who've said "I know so-and-so who has that", and I can give them information so they can better understand what their family/friend is going through. Maybe someday someone who I've talked to will be able to save a life by searching out help for symptoms that could be GP. I spent 29 years not knowing why I ate differently or would get sick from eating, so if just 1 person had mentioned it to me it could've really helped. That's why I share my knowledge.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
PRUPLEBEAR's Photo PRUPLEBEAR Posts: 23,123
6/16/12 5:35 P

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Thanks guys!!! I am gald I am not a lone! I have talked to my family and friends and not one of them had heard of it!!!!

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We are defined by the choices we make. Fight Club



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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
6/16/12 12:27 A

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I'm so glad you found our team, though it sucks that you've been diagnosed. You're definitely not alone - about 1 in 25 people in the US have some form of Gastroparesis - anywhere from very mild (eating a low fat and low fiber diet is enough to deal with it) to very severe (unable to eat anything by mouth). Yet many doctors don't know about it or understand it, so many of us felt totally alone before we got online and found others who also have it.

We have a LOT of information on our team, but there are always questions to be asked. Some of us were diagnosed years ago and have info we can share, and others are newly diagnosed and still learning themselves. Myself, I figure I've spent a few hundred hours researching everything I can think of with this condition, especially as my specialists and I are trying to figure out what caused mine. There are many causes, and treatments are sometimes tailored to the cause. Unfortunately no cure exists (some people are spontaneously cured, but it's rare) but we've been getting new treatments slowly emerging and promises from a drug company and the FDA to speed up the process to create new drug therapies.

As Creece1 said, seeing a nutritionist is important. They will help you create a (lifestyle) diet plan that will help you eat nutritious foods that are low in fat and fiber. You'll also need to take a multi-vitamin (ask your doctor for a recommendation) and you may need to supplement calories through liquids (your nutritionist will help you figure this out). We also have a few threads here that will help you figure out what foods you can attempt as you figure out what your body will accept.

We have a lot of great people here, so don't hesitate to share your entire story (what happened that you were diagnosed, what your symptoms are, etc) and your progress as you figure out how to live with this condition. Best wishes to you!

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
CREECE1's Photo CREECE1 SparkPoints: (0)
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6/15/12 10:27 P

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Welcome to the team. I found out recently that there are more and more people being diagnosed with GP. Also that it can be at any age and it doesn't have to be associated with diabetes. I don't have it real bad, but enough that it hinders me from eating the thing I like, such as salads. My suggestion is to see a registered dietitian that can help you with your diet specifically for GP. I did and it has helped me a lot.

'I can do all things through Christ who strengthens me.' Phil 4:13


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PRUPLEBEAR's Photo PRUPLEBEAR Posts: 23,123
6/15/12 12:14 P

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I found out today that I have gastroparesis. When I got on spark today I said " I bet I will not find a team for this! No way enough people have it" I am so happy I found this team!

I am also a DM type 2! This rocks! I was so worried that I would never be able to find some to help me and it looks like I have 135 spark members that will be able to!! So wonderful! I am going to go have alook around!

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