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12/28/11 3:14 P

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Welcome to the team!

I am on ethromycin too; have been on it for a year now.


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
12/16/11 7:13 P

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Hopefully eating the foods as a puree helps then. This is why it's so important that each person learns what foods their body likes. Your body wants something different, so slowly try a few new foods and see what you can do. As you figure it out, share what works and what doesn't in our team. You may help others figure out what foods might work for them.

As for breads, I didn't even consider celiac's (people are always trying to convince me that I have it because they've never heard of GP) but I am wondering if you're choosing high fiber breads or sticking with the white breads. If it's the white bread, maybe there's something else in processed foods that's causing a problem for you. Maybe reviewing the ingredients in a few foods that don't work for you can help narrow down a specific ingredient, such as one of the preservatives.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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MARINDAKAYE Posts: 5
12/16/11 12:22 P

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Thanks for the tips. But I have found that the more processed foods don't sit as well with me. Breads are terrible (no it is not celiac's, they already ruled that out). Poultry is awful. And plain eggs do a real number no matter how they are done up.

1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
12/13/11 8:48 P

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Welcome to the team; glad you found your way here.

Be careful with a raw foods diet, even as smoothies, when you have GP. If you want to try it, start very slowly. The last thing you want to do is make anything worse. Even if foods are easy to swallow, it is the composition of the macronutrients that determine if they're easily digestable; fat and fiber are hard to digest while protein is a little easier and simple carbs need much less digestion.

Have you spoken to your doctor about the erythromycin? Have you tried seeing any GI specialists? There are new treatments that have been being developed in the past few years, and more not far on the horizon. The first step is finding a GI specialist who knows about gastroparesis and the available treatments. Their tests will determine the extent of the condition and help them find what treatment will help you.

I also suggest doing a little research on the condition. I understand being scared about it or not being knowledgeable about the body, but the more you learn the more you can do to help yourself. It will also help you to be able to more accurately explain your symptoms, as well as help as you find a doctor who can help you. There is information in the forums here, and you can check out www.g-pact.org and their facebook page. If you don't understand something you find, feel free to ask questions.

You say you're slightly overweight from trying to get what your body needs - remember GP causes us to eat differently than everyone else. Also, eating fibrous foods is dangerous as it can cause bezoars. Check out the forums on our team - it can help you figure out the diet that will help you feel better.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
MARINDAKAYE Posts: 5
12/13/11 8:22 P

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Hi all. I am new to the team. I was diagnosed with GP about two years ago. Before the diagnosis was issued I lost 19 pounds in one week and my blood sugar hit 36. I looked like a skeleton.
I am not slightly over weight from trying to eat enough to get what my body seems to need due to the lack of digestion and one high risk pregnancy.
I have a five year old and a one year old. I am a Yoga and Pilates instructor. I suffer from PTSD and depression.
I am hoping to try a raw foods diet by using mostly the smoothie method. And I am pretty clueless about my condition as I have pretty much hid my head in the sand on this matter and allowed the pain to keep me from my life.
They have had me on erethromiacin for the past year. I recently stopped taking it as I am not comfortable with being on an antibiotic for that long. Any advice that you have would be greatly appreciated.

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