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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
7/22/11 11:22 A

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Eating 5-6x/day doesn't mean eating a full balanced meal every time. It can be eating a granola bar (if you can find one your stomach will accept) or a banana (again, if your stomach will accept it) or fruit leather or some small thing you can grab on the go. Depending on your caloric needs, you could do something like 3 meals of around 300 calories and 2 snacks of 150 calories to make 1200 calories. Or you could do 2 meals of 300 calories, 2 meals of 400 calories, and 2 snacks of 150 calories for 1700 calories.

I bring a cooler with me pretty much everywhere; it has snacks in it that don't have to be refrigerated so any time I need to grab something it is readily available. I shouldn't go more than 3 hours without eating something, so if I'm out running errands or away from the house I can grab something to tide me over for awhile. It's better than attempting eating at a restaurant and ending up sick from eating incorrectly.

As for the liquid diet, ensure and carnation instant breakfast are my friends when I'm having a flare. I can also have some of the soup-to-go meals from campells if it is bad but not horrible. It is really down to you figuring out what works for you. Once you find some foods that work for you those will be your go-to foods when you don't have the time to sit down and make a full meal.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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SHFLAG2007's Photo SHFLAG2007 Posts: 9
7/21/11 10:45 P

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thank you for the tips and encouragement. I am very excited to have found a GP team! I def do need to try and eat 5-6 times a day. My doctor has recommended that, but it has been difficult with my college/ twirling team schedule. I just need to lay the excuses aside and really focus hard on my eating habits. That is a really good idea that when it flairs up you do a liquid diet with malt o meal and stuff. I am gonna try that, because it seem like that would work well. Thank you again for the tips.

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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
7/21/11 10:18 P

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Glad you found us!
I know what you mean about the stomach and bloating. By the evening I tend to look like I'm a few months pregnant, but if I get 8-10 hours of sleep I wake up with a close to flat stomach. It makes it extra difficult to wear work clothes because what fits in the morning doesn't fit so well in the afternoon. What works for me (most of the time) is taking miralax every day. If I can keep food moving in my intestines, it helps. Also, eating smaller meals more often is important. Eating at least 5-6x/day is recommended.

I'm not surprised you're finding it hard to change your diet from what is healthy for most people to what works for people with GP. When I tell people I'm on a specific diet they immediately think I should eat fruits and veggies - but that is the WORST for us. I had to relearn how, what, when, and why to eat - and it is difficult to retrain your brain like that. The hard news is that every person's GP diet is different. You will have to learn what works in your body and what is bad.

For instance, my GP seems to be brought on by stress and exercise (anything that tightens up the muscles in my neck). So as long as I'm not in a flare-up, my diet is a little closer to 'normal'. When it does flare up, I'm pretty much on liquids and easy-to-digest things like malt-o-meal. Either way, I eat 6-10x/day to attempt to keep my blood sugar more normal and allow my body to pretty much work on digesting all day instead of in fits and spurts.

I hope joining us will help you figure out what works for you. Feel free to ask questions - everyone here is figuring it out as well.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
MOM2ACAT's Photo MOM2ACAT SparkPoints: (0)
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Posts: 30,457
7/19/11 6:09 P

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Welcome to the team Autumn!
I was diagnosed in December, and the biggest adjustment for me has been diet.


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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SHFLAG2007's Photo SHFLAG2007 Posts: 9
7/19/11 11:31 A

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Howdy! My name is autumn and I am 22 years old. I was diagnosed with GERD and Gastroparesis at the age of 18. I am having a hard time dealing with this because I feel and looked bloated all the time because my food won't digest. I have always been a somewhat fit person until now. I have to push even harder than ever before to loose weight and to feel good about my body ( stomach). I have not found a way to manage this very well. I am an athletic trainer so I know how I should eat and a general knowledge of what I should avoid, but the problem is trying to change my diet and lifestyle. I am sooo excited to have found this team. I do not know anyone with this problem and most of my family and friends do not understand the problem.

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