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ANDREWS_MOM's Photo ANDREWS_MOM SparkPoints: (103,796)
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6/29/11 3:10 P

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HI & welcome!
I am so sorry to hear that you, too, have gp. It's tough to deal with but I've learned to be very grateful for the good days and pray alot during the flare ups.....

I think what you'll find is gastroparesis is very individual in that everyone reacts differently and something that works one day may not the next. Alot of it is trial and error and trying to figure out what works for you.

I am not diabetic, have idiopatheic gastroparesis- had bileary dyskensia but had my gallbladder removed, and have colon inertia. I've been told nothing in my digestive system works the way it should. I just saw a top motility speciailist a few weeks ago. He ordered a whole battery of tests- waiting to see if insuance is going to allow them.

I hope you find some comfort in what works for you. I saw a nutrionist & that was a big help- just to be told from a professional that everything I was always told was not good for me is now ok and it's just a matter of what's good for you- finding your new normal.

Wishing you the absolute very best & if you ever want to vent or just chat or anything- just drop by my page!

hugs for a great day!
Amy

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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
6/27/11 2:17 P

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For me, it appears that most likely life-long undiagnosed (until last fall) GP that became unbearable last fall has caused me to have both reactive hypoglycemia and full blown type 2 diabetes (I've never been overweight in my life and I'm at the lower end of healthy now). These are opposite conditions, but in the diabetes test my blood sugars were over 200 for over 3 hours and my insulin was incredibly high at the same time and when I tested my blood sugars at random intervals after eating regular meals (sometimes a half hour after, sometimes 3 hours after, and in between) my sugars dropped way too fast and often went too low. My endocrinologist is incredibly confused, but I'm pretty sure it is just another complication of my GP.

When you can't digest foods fast enough, or sometimes you can and sometimes you can't, of course your body isn't going to know how to keep a stable blood sugar. I've found that for myself I have to pay attention to my body and always keep foods I know I can eat handy.

Have you looked into research studies on diabetic gastoparesis? At least in my area, they are more often studying diabetic gastoparesis than other versions of GP. If you can find a study nearby, maybe you can get into it and see what they can do to help you.

~ Sheri ~

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urnal_individual.asp?blog_id=5444844


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KKSTEIGERWALD's Photo KKSTEIGERWALD Posts: 2,001
6/20/11 5:06 P

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Hi RJZOMAHA! Welcome to the team and to Spark! I just joined this team about a week ago - new GP diagnosis here as well. Mine isn't diabetes-induced and i'm not diabetic, but I'm happy you're getting better control of your blood sugar levels. From what I've read so far there isn't anything that stimulates the vagus nerve, but I'm seriously hoping that there is. Best wishes with adding in physical activity and with dealing with all of this!

Stay Optimistic!

Edited by: KKSTEIGERWALD at: 6/20/2011 (17:07)
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6/20/11 4:33 P

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Hello everyone, I was recently "officially" diagnosed with GP although in retrospect, I've had it for quite some time. I was diagnosed with Type 1 diabetes 34 years ago and have been fortunate enough to avoid most long term complications, until GP. After years of trying to ignore my reality and save everyone else around me, I invested the time and perseverence into getting a diagnosis for my stomach discomfort. It has been frustrating because my doctors would assume I was a non-compliant diabetic since my blood sugar readings were so unpredictable regardless of my efforts to manage my disease, Over the past few years (post divorce) I incorporated whole grains, fresh produce and lean proteins into my diet and now I'm being told I can eat "white" breads when I have eliminated them from my daughter's and my diet. Some of the research I've done indicates better blood sugar control can lead to improved digestion, so I have eliminated the majority of carbs from my diet, including what most everyone else with GP eliminates. Fortunately, my blood sugar control has improved dramatically, which makes giving up so many of my favorite foods easier and makes me feel better. As I've improved my blood sugar control, I am trying to incorporate exercise into my daily activities but am having a slight difficulty with pump adjustments. Has anyone found if physical activity after a meal aides in stimulating the "broken" nerve? I look forward to anyon's feedback and am so grateful I am not doing this alone.

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