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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
3/9/11 6:56 P

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My grocery store only has original and maple brown sugar. I love the maple brown sugar! I've tried Cream of Wheat also, but I didn't like it quite as much - I tried 3 different flavors.

I actually cook the Malt-o-Meal a little longer than they say you should, because I don't like it so runny - I like it when it forms a skin on the top. haha

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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MOM2ACAT's Photo MOM2ACAT SparkPoints: (0)
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3/8/11 5:08 P

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I use the Cream of Wheat too, I love the Cinnabon one!
My diet is low fat/low fiber also.

Edited by: MOM2ACAT at: 3/9/2011 (15:41)

My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
3/8/11 12:12 A

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Unfortunately, there isn't nearly enough money being given to GP research, and the 'treatments' that have been found are really only symptom management, not an actual treatment and definitely not a cure. So a lot of the management relies upon you understanding your GP and how to handle it mostly by yourself - usually with a specific diet that works for you.

The first start is a low fat, low fiber diet. Fat and fiber are difficult for your body to digest so limiting these and eating more carbs and a little more protein can help. General guidelines say less than 10g/fiber a day, though fat has no general limit - it is different for everyone, and even for different kinds of fats. A good idea is to minimize your diet to liquids and soft foods and learn to eat your 6+ small meals a day. Then slowly add in different foods and see how your body reacts. Since it takes 24-72 hours for your body to move foods from one end to the other (and with GP it can be even longer than that), take it slow and easy. As you find foods that work, keep eating those and move on to something else. Especially stay away from fruits and veggies to start - berries (due to the seeds) and root veggies are high fiber and should be avoided as much as you can.

My GP has my doctors and me confused right now. I was diagnosed in September 2010 but I have not followed any of the typical patterns of GP. I have severe flare-ups where I can barely eat anything (even water causes pain) and I have times when I'm beyond fine where I can eat pretty much anything without problems but have to eat 2400+ calories just to maintain my weight (I've been trying to gain a few pounds for months and I'm failing at it). But when I have flare-ups I've found that for me, fiber causes stomach pain, fat causes intestinal pain, too much protein causes kidney pain, and too many simple carbs causes issues with my brain. Basically, some part of my body hates whatever I eat when I'm having a flare.

Try to get into a nutritionist who has training in the GP diet. Let them know you're on SparkPeople (if they don't know the site, explain about the food tracker) and ask them for help figuring out your ranges for things like calories, fat, fiber, carbs, and protein.

One thing that has been helping me is I added a special measurement (where you track your weight and inches) to track my digestive ability on a scale of 1-5 every day. This way I can look at what I've eaten or done (like exercising or steps taken) during the days when I have a flare-up to try to find a common cause.

As for foods to try, there is a non-profit organization called G-Pact www.g-pact.org that is trying to get government funding for GP research. They have created a cookbook of recipes that work for some people who have GP. My mother bought it for me. Though I would suggest figuring out some basic foods that your body likes first before trying recipes.

Though for simple foods, my go-to breakfast is malt-o-meal and carnation instant breakfast. They are easy to eat, adds up to about 300-400 calories, and digest pretty easily. I have this almost every morning so I don't have to think about what to have and I can always add a banana or something else a short time later if I need it.

emoticon to the GP team and I hope you can learn some things here.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
CRAFTLADY8 Posts: 18
3/7/11 12:54 P

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Just found out about gastroparesis. My meds are 4xday, wow, helps alot. I find staying away from fried foods helps, along with small meals, avoid habit snacking at night. the sick to my stomach feeling finally gone. Stomach pains still come around periodiclly. I, too, had to push for testing. First celiac, that came back negative, thank goodness, because i like to bake. My gastroenterologist decided to check to gastroparesis and after the stomach emptying can, came back positive, on Reglan 4 times per day and its working so far. My worry are the side effects and you can only be on it for up to 3 months. what then?????? I guess I will find out at that time.

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3/4/11 4:13 P

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Welcome to the team!
I was just diagnosed with GP in December. I don't have vomiting from it, but my main symptom is pain. I also have GERD and IBS.

My diet that my GI doctor wants me on is basically low fat, low fiber, and eating "mini meals" instead of 3 big meals. It takes some trial and error to find out what foods you can tolerate, everyone's GP is a little different. I found out I do best if I eat my "dinner" at lunch time, and stick to soup or soft foods for dinner; otherwise the food just sits in my stomach at bedtime.


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



 current weight: -1.8  under
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AUTUMSUN's Photo AUTUMSUN SparkPoints: (5,410)
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3/4/11 3:10 P

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Hello all. My name is Melinda. I'm 23 years old. I suffer from Ebstein-Barr Virus, Depression, Sleep Apnea, Fibromyalgia, and to beat it all I just found out a week ago that I have Gastroparesis. I've always had the symptoms but since I wasnt throwing up my doctor chalked it up to acid reflux and gave me medicine for that. After a year of that it never worked so I stopped taking it and just decided to push through the problems. Ignoring it basically.
Now 10yrs later its gotten worse, I'd been throwing up every day (sometimes multiple times a day) for 2 months when I finally saved some money to see my doctor. He thought it best to do a Gastroscopy and thats when he found my problem. After 16 hours my food was still just sitting in my stomach.. He also found a polip that he biopsied for testing, havent gotten the results back yet.
But sadly my doctor didnt explain much about the GP other then my stomach doesnt digest my food so I have to take Reglan twice a day to help. Which has kept me from throwing up, and I'm eating smaller portains. And he also wants me to start a diabetic diet. I have no idea what kind of foods I should eat. When I read a little on it the other day it said there are different types of GP and that I have to figure out my own meal plans that suit me. Thats great but I have no idea where I should start.
So I figured I'd get back to Spark and see if I could find a group that might be able to help.
I'd like to find some GP recipes that help other people, and try them to see if they would help me too. But also, if anyone here can give me some advice as to where I should go from here that would be great.

Edited by: AUTUMSUN at: 3/4/2011 (15:14)
Baby due 2/2/18


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