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LUCKY-13's Photo LUCKY-13 Posts: 11,837
7/6/10 2:17 A

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Hi Lil-Angel-Wings,
I've been when you're at, and am still battling it. Don't give up the good fight!!

About 4 years or so, I lost over 100 pounds in about 4 months. I was really happy to be skinny, but I didn't enjoy how I got there. It wasn't until about this time that my GI (RIP) told me that all I could do is just eat whatever I could tolerate. And that's mainly carbs, meaning I put some of it back on and am now losing it again.

Tympani, another GP member, gave me a really great idea: blenderize your food. I've been able to cook things for my DH and manage to blenderize some of the dinner for me. All of a sudden I've got options other than carbs.

Give it a try! Just blenderize the heck out of some well-cooked veggies. Add some broth or milk to make a nice soup and enjoy.

Smoothies for breakfast are a great way to get some fruit (and even some veggies, like carrots) into you. Again, use your blender, put in some fruit (no seeds or chewy skins), some fat-free yogurt (get it with vanilla if you want it a little sweeter. I get the store brand), a banana for potassium and a handful of ice. Yummy! And the possibilities are endless.

Dairy has been pretty easy for me to tolerate as long as I'm using the Lactaid brand. Not everyone needs it, but it's a life-saver if milk, ice cream, or other dairy gives you gas and bloating. Eggs are the exception for me. Can't digest them no matter what I do.

Sometimes it feels like I'm my own guinea pig in a research project. And I've done a lot of studies at the local teaching hospital. But I get to treat myself better, listen to my gut (a lot like listening to your intuition), and stay determined to somehow deal with it.

Always feel free to come here for support, and we'll share anything we've learned!

Hugs,
Lucky

Edited by: LUCKY-13 at: 7/6/2010 (02:18)
Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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READINGDOC's Photo READINGDOC SparkPoints: (0)
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7/5/10 9:53 A

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Welcome to the team, Lil-Angel-Wings. Don't worry about putting on the weight. Most of us with GP find it is just the opposit -- we tend to lose weight, especially at first when we are trying to find out what it is we can eat. Our team leader, Lucky, is full of information, and the rest of us are full of advice as to what has and hasn't worked for us. Once again, welcome to the team -- I just really wish you didn't need us ( if you get my gist).

Lynda


Lynda


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LIL-ANGEL-WINGS's Photo LIL-ANGEL-WINGS Posts: 492
7/2/10 8:51 A

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just found this post ...so glad to know im not alone... my problems just started about 3 months ago and got to a point where 1 week ago i cut out all fresh fruits and vegys and salad emoticon and am not trying to figure out what i can eat. it seems like even alot of cooked vegys and even some canned fruits and dehidrated fruits are a big no no... theres a lot of good info here so i'll try some of the suggestions and see how i do....

i dread having to eat so many carbs... i just lost 92lbs and now i see the lbs piling back on... dont want that, so im really trying hard to figure this out quickly as to be able to maintain weight loss emoticon

Romans 8:38-39

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I Cor. 13

Rev. 1:7 Look! He is coming with the clouds, and every eye will see Him, including those who pierced Him, And all the families of the earth will mourn over Him. This is certain! Amen!

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LUCKY-13's Photo LUCKY-13 Posts: 11,837
6/17/10 9:54 P

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Hi FunShine,

I had a little success with Zelnorm but it didn't last for more than about a week. Seems it was taken off the market soon after. I also was under the care of some GI docs at the local teaching hospital for 3-4 years. We tried a lot of things and I was on Azithromycin for 2-3 years before it stopped working for me. I had better luck with Erythromycin (about 7 years) before I had to stop taking it. I was taking up to 6 tablespoons 5-6 times a day and not getting any relief.

I just recently stopped taking Domperidone, which your GI doc can prescribe for you if they get FDA approval. You have to order it from Canada or find a compounding pharmacy to make it for you (more expensive). I'm now going back to very soft foods and smoothies for breakfast. My digestion is at an all-time low. Stress does make it worse.

I hope you're able to find something that helps. Although the Domperidone didn't work for me, I have read posts where it did help people for more than 10 years. Have you tried it yet?

Hugs,
Lucky
emoticon emoticon emoticon

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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FUNSHINE0123 Posts: 3
6/16/10 11:02 P

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Super excited to find a forum about GP (& on one of my favorite websites nonetheless). My GP is more intermittent, but it flares up when I am stressed. At one point, I lost a bunch of weight because of it, but then I did Zelnorm (way back when) & it got better. Now it's back. I hate it because I can lose weight when I'm on a liquid diet, but then when I start eating I gain it back because of eating all the simple carbs & avoiding things like salads & fruits. I'll have to explore the posts more, but just wanted to say "hi!"

I am linking to the best site I have found with info about GP if anyone is interested: http://digestive.niddk.nih.gov/ddiseases/p
ubs/gastroparesis/

Side note: Miralax may take up to 3 days to work but usually has less cramping then other laxatives. It works best when taken every day, not just when you need it.

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6/11/10 9:24 P

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Amen to that, sister!

Lynda


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TLUCIOUS1 Posts: 9
6/11/10 8:45 P

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Thanks for sharing. I see that it says you lost 95 pounds I also lost some weight. I went ftom 184 to 100 due to GP. People would ask me how did i do it and i would tell them whats wrong and they would reply i wish i had that. But people dont understand what they dont know or have because i would tell them no you dont. This is not the way you want to lose weight. Not Ever!

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6/11/10 2:30 P

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Dear JustGabby,
I just had surgery because of a small bowel obstruction caused by stool in the colon. Your medical history almost mirrors mine when it comes to the GP. One thing that I found that does help with nutrition is to get a GOOD protein drink -- gluten free -- and mix it with water for weight loss or milk for weight maintenance or weight gain. I agree with you completely -- GP NEVER TAKES A HOLIDAY! I do hope you feel better soon.
Lynda

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TLUCIOUS1 Posts: 9
6/9/10 1:06 A

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im taking miralax but it seems it takes forever to work. From time to time i drink dieters tea and i would have a bowel movement within eight hours and after going to the restroom my stomach still hurts. Sometimes it burns to. Thanks for sharing your info with me. It means alot. Because its hard to tell and share with your family when they dont fully understand what you going through. So its just nice to talk with someone who has the same thing. If the GP is not acting up then its my Lupus flaring up. But its all good im still here for my daughter and thats all that matter. Thanks again


JUSTGABBY's Photo JUSTGABBY Posts: 1,300
6/8/10 6:32 P

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Have your tried Miralax. It's available now over the counter. I don't know what I would do if I didn't take that. I know how bad the pain can be. Reason I have pain is b/c of constipation. Sorry to say, but I don't think the GP ever goes away. It just has bad days and better days BUT is never completely gone. My doctor started me on Miralax about 6 years ago and I still take it. About 4 months ago he gave me a script for Erythromyacin tabs. I take 4 a day. Emyecin stimulates your stomach to move like it's suppose to. Listen to me telling you all about it when I still don't understand GP after all these years. I love fruits and veggies but can't eat them b/c of GP. I can't lose weight without fruits and veggies so I guess I'm at a permanent plateau or just plain stuck. Keep in touch and I hope you get some answers, then you will be able to give me tips. To end this, GP is for the birds or should I say rats !!!! emoticon emoticon I've made a new goal to try to be positive even of GP. Wish me luck spark friend ! emoticon emoticon emoticon

TLUCIOUS1 Posts: 9
6/8/10 2:08 P

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thank you so much. This info helps alot

LUCKY-13's Photo LUCKY-13 Posts: 11,837
6/8/10 12:04 P

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I did some internet research for bloating remedies. Keep in mind, a lot of these remedies believe gas is the reason we are bloated - and it could be if we have food fermenting in our stomach. Here's what I found, and some might be worth trying:

"Cut down on salt and alcohol intake and increase potassium levels. Good natural sources of potassium include fruit (especially bananas), vegetables, pulses, nuts and seeds, milk, fish, shellfish, beef and poultry." Of course, this is great IF you can digest any of this!!

"Irritable bowel syndrome can cause stomach bloating. Treating ibs and digestive problems can be difficult and treatments should be discussed with your GP. Some of the more common remedies include anti-spasmodic tablets, peppermint oil capsules and charcoal products. Probiotic drinks and yogurts may also be helpful by encouraging good bacteria and helping to maintain a healthy gut." IBS and GP are often found together, so some of these might actually help.

"Taking time to eat slowly and chewing food properly can be helpful. Try eating smaller portions and putting the fork down between mouthfuls. Relaxation techniques or hypnosis may be the best long term solutions to help to deal with stomach bloating caused by stress." Stress can make GP worse, but for me, having GP IS STRESSFUL!

This article addresses some different causes and help for bloating:
factoidz.com/underlying-causes-and-t
re
atments-for-stomach-bloating/


I learned a lot from this article. It's kind of long, but it talks about causes, symptoms, recommendations, and more. Highly recommended. www.medicinenet.com/intestinal_gas_b
el
ching_bloating_flatulence/article.htm


Most of the information that I found became repetitive from what's already listed here. I'm not always comfortable trying things from the natural food store, but some people find help there.

Hope this helps.
Lucky

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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TLUCIOUS1 Posts: 9
6/8/10 3:10 A

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My doctor has done some tests. The latest one is endoscopy and he said i have alot of bile and my small or large bowel look twisted. So now he want to do an x-ray to make sure. But he just tells me to eat six small meals a day. Yeah ok i can barely get a slice of bread to stay down, how am i going to eat six small meals a day. Some times a think the doctor is not hearing me. I have been dealing with this for 3 years now i know hom much i can eat and he just keep telling me to eat six smalls meals a day and drink lots of water. I wish i could eat like that. Oh man i wish. But i just pray and keep going. Right now my stomach hurts really bad and its swollen. I did not eat anything so i dont know why its doing this. Sometimes my stomach just act up for no reason and out of nowhere it acts up. I dont understand. I hope my doctor can kind of make it better soon. Any suggestions for pain and bloating please let me know because i need help. I try to take pain pills but it does not help.

JUSTGABBY's Photo JUSTGABBY Posts: 1,300
6/7/10 7:13 P

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I have been on Miralax for a couple years now and it does relieve the constipation to some degree. I also take erythromyacin tabs 3 times a day. My stomach can tolerate anything I eat BUT the problem is no matter what I eat/drink, the constipation occurs anyhow. Sure could live on liquids but I still get the bloating etc etc etc. I'm tired of trying to figure things out. My favorite foods are; any kind of veggie, and fruit, both just sit in my stomach. Then when the constipation gets bad, I heave with such force that I hurt all over and then I'm still constipated. It's simply that the food in my stomach is not moving and when there is no more room, it goes up. Sorry to be so graphic but to me GP is a very graphic thing. I also have other problems like with my heart and a lot of arthritis so I not only have the problem of GP food but also have the problem of sodium/edema. Day's like today, I feel so discouraged and although I know it's not true, it seems like I'm the only one in the world with this problem. Poooooooooooooor Gabby! Now she's having a pity party. Thanks for letting me go on and on and on. I guess GP goes on and on an on. emoticon emoticon

LUCKY-13's Photo LUCKY-13 Posts: 11,837
6/7/10 6:48 P

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Hi JUSTGABBY,

Believe it or not, bloating, constipation and stomach pain are complaints I've heard about from quiet a few GP members here, and have experienced myself. The symptoms and inability to eat certain foods vary from person to person, and even from time to time.

Miralax seems to be the latest "miracle drug" to help with constipation, although it can take an average of 3 days to work. The bloating can be from the undigested food that is fermenting in the stomach, or a side effect from some of the medications we get prescribed.

I asked your question about losing weight to my GI doc some months ago. His reply? Eat whatever you can keep down; calories are calories whether they come from carbs, veggies or protein. Rely on different forms of exercise to help lose the weight and keep our muscles toned. And if you think you can digest a multi-vitamin pill, then take one every other day, otherwise buy your favorite flavor of Ensure.

After my latest flare of GP a few days ago, and I had to stop taking domperidone, I'm back to lots and lots of carbs. I can't digest any forms of protein or eggs, and most veggies/fruit have to be peeled and cooked/blenderized to death.

I hate this.

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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JUSTGABBY's Photo JUSTGABBY Posts: 1,300
6/7/10 6:30 P

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My GP symptoms are completely different than most. My stomach is bloated nearly all the time and the main problem is that I get severely constipated to the point that the stomach pain is so bad that I want to go to the ER. Of course I don't b/c I know what the problem is. I'm here on SP to lose weight BUT how do you lose weight when you can't eat fiber. Salads are out of the question and that's the main thing I eat when I'm trying to eat healthy. Of fooey, I give up. It's so frustrating. I absolutely have to lose weight and I know what I have to do in the line of what I can eat that I do lose weight, BUT with GP, I can't eat that healthy stuff. A merry-go-round indeed with no stopping in sight ! Thanks for listening and I wish you luck in your trials ! emoticon

LUCKY-13's Photo LUCKY-13 Posts: 11,837
5/22/10 3:15 P

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TLCUCIOUS:

Sorry for the delayed response in your question. I'm ashamed I didn't see it sooner!

What have you and your doctor tried for your GP so far? Does anything seem to help even a little bit?

I understand about eating bread and finding relief. I've basically been on a "high carb" diet for years! Usually anything with fiber needs to be avoided, but everyone's GP seems to vary a lot. Sometimes it's worse than others, sometimes it gets worse over time, sometimes we find relief in something...it seems like the degrees of severity are all over the place, and what GPers can tolerate can vary a lot, but the one thing I have seen that we all seem to share: stress makes our symptoms worse!

I won't take so long the next time!
Hugs,
Lucky

Edited by: LUCKY-13 at: 5/22/2010 (15:16)
Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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TLUCIOUS1 Posts: 9
5/4/10 8:03 P

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Its good to know that there are others you can relate to and get feed back. I have Lupus too so I have to deal with flare ups that happens with my tummy to. I can't hardly eat any thing. It seems as if my stomach is super sensitive all the time. At least eating bread never did me wrong. Sometimes I dont know what to do and I dont want to be throwing up all day just to see what my stomach will take. I went from 184 to 95 pounds now. So if anyone have any ideas feel free to let me know. Feel better to all whose having stomach problems

TYMPANI's Photo TYMPANI Posts: 124
5/1/10 4:45 P

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Hi all! I'm sorry you are here, because that means you have tummy problems, too. But I'm glad to meet you, at the same time! Because it means I'm not alone. emoticon

I hope you all are well, today!!

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