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7/6/10 2:03 P

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Welcome, Floating to Sea! I'm really sorry that you even need this team but I'm really glad that you have found it if you need it.

I truly understood what you described what you said in your introduction. I too am bi-polar and have difficulty with the medication and the gp. I have been on an almost completely liquid diet since last August. The only things that I eat other than liquids are "tubers." In other words,if it wasn't grown in the ground, I don't eat it and even then it has to be cooked a certain way. I can eat potatoes (but not French fries), mostly baked, carrots, thoroughly cooked, and beets(pickled are great!). For protein I can have very lean chicken breasts that have been baked, or baked turkey breasts. Certain fish is OK. White bread and pasta again, is OK. Creamy peanut butter and jelly (not jam or preserves) are a feast. I have found that certain cheeses are also OK. A snack for me is a smoothie or chunked cheese.

I have lost 100 pounds since last August. Not all of it has been from gp, I have had some other health issues this year, but a big chunk has been from gp.

Lucky is a wonderful source of information and a great comfort to all of us on this team. Once again, I'm both glad and sad that you're here.

Lynda


Lynda


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LUCKY-13's Photo LUCKY-13 Posts: 11,837
7/6/10 2:20 A

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Hey girl! Hope you're doing alright!!!

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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FLOATINGTOSEA's Photo FLOATINGTOSEA Posts: 3
4/4/10 9:13 P

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Domperidone caused me a LOT of pain. The pain plus nausea was enough to make me quit after a few doses. Reglan made my depression so much worse. The others we haven't bothered with. Right now I take Amitiza despite the can't-breathe-tight-chest feeling I deal with for an hour or so. It beats dealing with the food that stayed down staying in my intestines forever! I also take the max dosage of Zofran and Aciphex.

I try to eat a low fat [I also have a wonky gallbladder] low fiber diet. I cut out everything that is hard to digest. One day I'll be fine with something and the next I'll puke it up. It is weird!

I've researched a lot on GP, joined forums and seen countless doctors so I'm actually pretty well versed. Doesn't really make it any easier though, haha.

Thanks for the welcome!

In order to be irreplaceable one must always be different - Coco Chanel


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LUCKY-13's Photo LUCKY-13 Posts: 11,837
4/4/10 8:10 P

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Hi Peg and welcome to the GP team!

Looks like you've had a really rough time and some uncaring docs, but you're a survivor! I hope by now you've found some better doctors. Finding ones that are up-to-date on GP isn't always easy as you can tell.

I'm still trying to get the hang of Domperidome. I'm not an advocate of Reglan because of the irreversible side effects that are possible - although I was on it until a good GI doc took me off it. Have been on erythromycin, azithromycin, Zelnorm, Amitiza, and a few other things - even in research studies - but finding something that works can seem futile.

From time-to-time, I find myself having to go to the liquid diet, but since my dose of the Domperidome was increased lately, I'm doing a bit better. A few weeks ago I was able to digest scrambled eggs - the biggest improvement so far. Tried tuna with mayo and couldn't tolerate it, maybe it was too greasy even though I was using low-fat mayo.

Usually the easiest things to digest are carbs (not the fried ones though! Takes too long for them to digest), puddings, baby food, instant potatoes, some soups. It's as if GP is different for each person.

And as if that isn't enough, stress can make it a lot worse. Also seems like other GI-related issues are common to those with GP, like GERD, IBS, gall bladder problems, diabetes...

I wish I had some better answers! I DO know that there's more research going on right now than ever before. With the increasing numbers of people getting diabetes, more research dollars are being awarded so that researchers can try to find ways for us to deal with GP, or even one day be cured of GP. Gotta have hope!

There's probably not a lot you haven't heard or learned on your own about GP, but you might want to check out the Links tab (let me know if you don't know where this is at) to see if there's something that maybe you haven't run across yet.

Hugs,
Lucky

Edited by: LUCKY-13 at: 4/4/2010 (21:17)
Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


 current weight: 208.0 
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FLOATINGTOSEA's Photo FLOATINGTOSEA Posts: 3
4/4/10 7:23 P

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I'm Peg, 22, from the St. Louis MO area. I'm engaged to a wonderful guy [6.5 years!] and "mom" to a bunch of furballs.

I was diagnosed with GP about a year ago after throwing up for 2 years [3.5 now!] I also have severe GERD and IBS with constipation. I've had to have multiple polyps removed from my esophagus and I go every year for an endoscope to make sure my Barretts Esophagus is under control. I also have PTSD and Bipolar. I worked as a Vet Tech until they had to let me go [running off to vomit during surgeries isn't very awesome!] I had to go on Disability 2 years ago and am now training a service dog to get back on my feet. He fetches the vomit pan like a champ! My fiance just wishes he could dump it in the toilet. haha

Being chronically ill has dramatically changed my life. 3 years ago I was preparing to go to college, planning a wedding and living life like any normal 19 year old. Now I know every trash can and bathroom within a 15 mile radius, I always carry a big bag full of extra shirts, wet wipes, and puke bags. I have to eat around appointments and time with friends so I don't throw up at a really bad time. I've lost a lot of friends and a lot of opportunities. It's been extremely hard.

Since December I've been getting worse. I don't tolerate Domperidone or Reglan and I'm not comfortable with some of the new procedures out because, well, they're so new. I had a really bad month in March. I dropped 40 lbs and could barely eat anything. I became severely dehydrated and weak. I've finally started keeping some things down, mostly Ensure [thank god for Capella flavor drops!] I'm off to see a specialist with more knowledge in late May.

Throughout all of this, especially the last couple of months, I've had a lot of frustrating experiences with doctors. I was left for 2 hours during an upper GI because a nurse "forgot" about me, my Primary Care Physician has mocked me and refused to help me saying I needed a mental hospital, and my GI specialist has blown me off. I've felt pretty helpless and alone through it all.

My weight has always fluctuated but I'm ready to get back to a healthy weight. I recently found out I have a bicornuate uterus so having children might be harder than my fiance and I expected. I want to be in the best shape I can to increase the odds of having a healthy pregnancy and baby. We hope to start trying in the next couple of years if I'm feeling good enough! I'd also like to go back to school and snag a degree in Library Science or Web Design [I go back and forth a lot!]

Anyway! I love meeting new people and trading advice on how to deal with this craziness.

In order to be irreplaceable one must always be different - Coco Chanel


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