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JUDY_LYNN's Photo JUDY_LYNN Posts: 35
3/16/10 7:44 P

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Welcome Tieesha! emoticon

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TLUCIOUS1 Posts: 9
3/15/10 11:37 P

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thank you so much for the ideas on what to do because I felt all alone. No one in my family has this so they dont understand. So I'm really glad that I join this group and know that I'm not alone in dealing with this disease.

Thanks again 1313LUCKY

LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/15/10 9:08 P

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Hi Tieesha!

The vomiting and limiting your diet is a big part of gastroparesis. There are going to be days when it seems like nothing will stay down, and you need to be gentle with yourself. I wouldn't eat anything that you know is going to make you sick. On days when you're having trouble keeping food down, I'd stick with liquids or foods like applesauce, mashed potatoes, and pudding - whatever soft foods you can keep down. You might have to start drinking protein drinks if eating meat is too hard on your stomach.

I would listen closely to what the doctors are telling you, and to do some research on gastroparesis. Check out our links here and try to learn as much about it as possible. Some days will be better than others, and the more you learn about this disease, the better you'll be able to help yourself. It can be different for everyone who has it, so it's important that you do things like eat 5 or 6 small meals, drink plenty of water or liquids that are good for you (not soda though), and try to avoid stress. Stress definitely makes gastroparesis worse.

Joining the group here was a great first step. Learning as much about gastroparesis as you can and what your body can tolerate is crucial.

Sending hugs and I hope you'll let us know how we can help.

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Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!

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TLUCIOUS1 Posts: 9
3/14/10 11:16 P

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hi my name is Tieesha and i just found out last year that i have gastroparesis and lupus. I went from184 to 94 pounds. I go months without food because when my stomach act up nothing will stay on my stomach. It's hard to go from eating anything that you can to can't hardly eat anything thing at all. At first i thought well those doctors dont know what their talking about I'm going to eat my food that i want. But after almost four years I realize that I have to just listen I try to find out what I can eat which is hard to because sometimes my stomach would take certain things and then for some reason it rejects it. I dont understand and the doctors cant tell me why that happens. Sometimes I spend the whole day throwing up because my stomach is rejecting the food. Sometimes I will get lucky and find something before I throw like ten times already. It's hard to deal with and sometimes I dont know what to do and my family dont understand. They just tell me to keep eating it no matter how many times it comes up. The thing is I dont want to be doing all that throwing up every day I just want some food or something to stay down. Well After a month and a half of my food coming up I finally got bread, jello, and crackers to stay down. I'm very happy about that. If anyone have any suggestions or ideas please let me know because I try everything that I could think even organic food to shopping at the whole food store to get my food. It's just when my stomach act up nothing works I dont care where it coming from or how fresh it is it just want stay and I have ran out of things to try or do. Thanks

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