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NIKEGIRL1967's Photo NIKEGIRL1967 Posts: 478
1/24/10 11:52 A

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Yes, I am on 10mg 3X/day...I just started last Tuesday evening, the 19th, so today is my 5th day...the breasts are still tender...I am assuming he is going to keep me on this dosage for three months to start as that is what he wrote the script for; a 3-month supply...I have a follow-up appointment with him in six weeks...



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LUCKY-13's Photo LUCKY-13 Posts: 11,837
1/22/10 9:51 P

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I only had minimal breast tenderness, but it isn't an unusual side effect. Are you still taking 10 mg 3 times a day? If it gets worse or doesn't calm down, you might want to see your doc for some suggestions.

Has anyone else had the same problem when they tried Domperidone? Any suggestions?

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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NIKEGIRL1967's Photo NIKEGIRL1967 Posts: 478
1/22/10 3:55 P

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Thanks so much, Lucky, for the information...I did review both threads and found the information helpful...so, now I am on my fourth day, I think, of the Domperidone, and ummm - how do I ask this...hmmm..

will the breast tenderness ever go away????...lord have mercy!!..LOL!

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LUCKY-13's Photo LUCKY-13 Posts: 11,837
1/20/10 9:22 P

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Hi NikeGirl!

We have had a few discussions here about Domperidone, and I thought you might want to read this thread:
www.sparkpeople.com/myspark/team_mes
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geboard_thread.asp?board=0x26236x277R>46230


and then there's this thread:
www.sparkpeople.com/myspark/team_mes
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geboard_thread.asp?board=0x26236x290R>15404


I haven't been on Domperidone long enough to know if it's doing anything yet. For 4 months (or more) I was on 10 mg 4 times a day. Then this week I started 20 mg 3 times a day (always 30 minutes before eating).

I haven't noticed any of the reported side effects, but I know it's definitely not for people who have heart problems of any kind.

I'll be interested to hear about your experiences with it, and I'll keep everyone here updated.

Welcome aboard!!!! We're glad you're here!

Lucky

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


 current weight: 208.0 
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221.5
210.25
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JUDY_LYNN's Photo JUDY_LYNN Posts: 35
1/20/10 6:45 P

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Welcome NikeGirl1967! Sounds like you have been battling gastroparesis for a long time.

I don't have any experience with Domperidone as I am currently on Reglan, but I am thinking of asking my doctor to change to Domperidone. The thing is, I am nervous to go off the Reglan because I feel it does help me. So, I am curious to hear about how much Domperidone helps people too.

Anyway, welcome to the team.

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NIKEGIRL1967's Photo NIKEGIRL1967 Posts: 478
1/19/10 8:57 P

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Hey, y'all...around 2002-ish, I began to notice huge changes in my digestive system; i was gaining weight at a pretty rapid clip, was having cramps and abdominal pain a large amount of the time and was feeling like the food wasn't going anywhere after eating, sometimes resulting in vomiting it back up or feeling like I was going to vomit when I burped...i went to a few GI docs and was blown off with a diagnosis of IBS and was told to exercise more...in 2008, it was getting worse and worse; I was feeling very full very quickly after eating only a little bit...i tried going gluten-free for a few months but it really did not make a difference.

In 2009, I went to yet another GI doc and pleaded with him to help me find out what the hell was wrong...i was officially diagnosed with "severe gastroparesis" around May of 2009...it takes my stomach approximately six hours to begin emptying and actually I think it has gotten worse since then...he tried me on Eurythromycin but that did zilch...he said he did not want to try Reglan but that there was a medication called Domperidone that was not FDA-approved in the U.S. but was available from Canada...after briefly researching the drug on the Internet, I decided against it and told my doc thank you, but i will just learn to live with it.

Sufficed to say, I went back to see him at the end of December 2009, desperate and willing to give Domperidone a try...he is starting me on 10mg 3x per day...I took my first pill, very apprehensively, tonight...so, we will see...

I am down to basically a liquid diet all day and eat a solid meal at night...I drink a protein shake made with light vanilla soy milk, flax seed and Pro Complex protein powder for breakfast (8oz. is about all my stomach can handle without blowing up), 1/2 an apple mid-morning, a Protein Blast or Isopure protein drink for lunch, 1/2 apple mid-afternoon and then a solid dinner when I get home...the bloat is RIDICULOUS...if I eat a salad, as I did yesterday, I will be blown up for several days...when I go out with friends to dinner, I truly cannot eat or drink much at all and then get the questions as to why I am not eating...i try to eat clean, unprocessed foods but honestly, it is to the point that I become bloated at work even when I drink water.

One of the most difficult issues for me is getting the appropriate nutrition to fuel my workouts...I strength-train four mornings per week before work and do cardio after work/on weekends (the stairs at work, pilates, spinning and swimming)...during the summer, I participate in open water races...there are some days that I just do not have the energy because i can't eat enough...it's just effing ridiculously frustrating...and trying to drop the last 15 lbs. with this is just comical; one would think i would be dropping all sorts of weight but the less you eat, the more your body goes into starvation mode.

My doctors hypothesize that the gastroparesis came on due to all of the medications/narcotics I have taken on and off over the years for Rheumatoid Arthritis, which I have had since I was two (I am now 42)...my rheumatologist said that she only has one other patient who has R.A. and a severe case of gastroparesis.

So, here's crossing my fingers and hoping that the Domperidone works (with few or no side effects!!).

If anyone else has experienced Domperidone, I would love to hear about it.

President of MzFit Fitness, Inc.
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