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DIVA540's Photo DIVA540 Posts: 692
10/7/09 9:14 A

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Tiff,
Hi and welcome to our little gang. You are having the exact same troubles i am having and continue to have. I too am doing the whole liquid thing, to keep me from being so sick. You are lucky that you can eat yogurt. I have found that anything with lots of fiber is no good for me. I also can't eat raw veggies, or fruits.Pretty much feel like i can't eat anything and when i try, i get so much pain that it is unbearable!!!
I am currently only taking EES ( erythromycin) i take it 3 times a day, and here lately it works better AFTER i eat instead of before, it used to be the other way around.
I hope that as Lucky said, you take a look around the site here and look up any information you can find on GP. We are always here if you have any questions, or just need to vent. Sending healthy hugs and thoughts.

Eileen

TIFF1480's Photo TIFF1480 Posts: 5
10/3/09 4:52 P

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Hi,

Right now I'm on 10mg 4x a day plus I take one 250mg Erithromycn a day as well. I was on Reglan before, but had a lot of the bad side effects so my doctor took me off it. I have only been on Motillium for a month, it doesn't seem as strong as the Reglan, so they may have to increase my dosage as well. I agree, it definately is trial and error and everyday seems different. I can not take fiberous foods well or anything with more then 8 grams of fat in it. I generally have liquids all day or yogurt and try to eat one solid meal a day. It has been working well so far. I usually have dinner and all other meals or liquid or yogurt. This way if I get sick from my dinner, I'm at home and won't feel horrible at work.

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LUCKY-13's Photo LUCKY-13 Posts: 11,837
10/3/09 2:19 P

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Hi Tiffany! Welcome to Spark and the Gastroparesis team!

I think most of us are eating whatever we can keep down. Some days are better than others in regards to what will stay down.

You might find some of the links we've posted to be helpful. The links will give you info on the condition and diet suggestions. A lot of times though it's trial and error.

How is the Motilium working for you? I'm on Domperidone, which is the same thing, just a different name. I would love to compare notes with you on it as I'm on my second month of the 10 mg dose and after the third month my doc wants to increase it to 20 mg. I don't think there are many of us on the GP team using domperidone right now.

Let us know if we can help! Do check out the links and see if there's info you can use. Briefly stated, anything with fiber generally gives GP patients a lot of grief (meat, fiberous veggies and fruits, whole grains). It just depends on how bad your GP is.

HTH,
Lucky

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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TIFF1480's Photo TIFF1480 Posts: 5
10/3/09 1:58 P

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Hi my name is Tiffany. I'm new to Spark. I have Gastroparesis and am currently taking Motillum for my condition. I still have to watch what I eat very carefully and usually end up getting sick or in pain due to foods I eat. Honestly, I have not received much guidance on what's good to eat and not with my disorder. So any help you can provide would be greatly appriciated.

I have struggled to lose the last 15-20 lbs that really need to come off. So I'm really going to try hard this time to make it happen. I need to lose this weight by next summer for my next vacation.

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