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THIKCHIC's Photo THIKCHIC Posts: 89
4/29/11 3:49 A

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Hello my name is Susan, I am 46yo, I have been married for two year, living in CA., for I guess just over four now. I have 3 grown children and 1 georgous granddaughter that is just 7 Mos. I also have 4 stepchildren and I am getting used to being a stepmother to, stressfull!
I work from home parttime and the other time I do pretty much of nothing! Well, needless to say I was just told that I have Gastroparesis. So, not only am I new to SP, I am new to this TEAM !! ; ) I sure hope I can learn something here because I am CLUELESS! I am just happy to finally know why the heck my somach has been hurting for the past five or so years. SERIOUSLY! Any input would be greatly appreciated. Thanx!

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4/12/11 8:16 A

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Hello again,

I wanted to say thank you to the team for my "Relaxation Music" SparkGoodie. Relaxing in the evening after a busy day feels wonderful -- add in some relaxing music and I feel the stress begin to melt away. Provided a "Spark-tacular" start to my week!

Hope everyone is enjoying some beautiful Spring weather!

ANDREWS_MOM's Photo ANDREWS_MOM SparkPoints: (104,740)
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4/8/11 2:20 P

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Welcome to all of our new members!
Hope you find this site and our team a great place to gather information & resources and make new friends who know exactly what you're going through- which is tough w/ GP being such an unknown/little known illness.

Hope everyone is having a great day & feeling well!

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3/28/11 9:50 A

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Hi Everyone,

Thank you to Amy and the "Living with Gastroparesis" team for the "Yoga Mat" SparkGoodie and welcome message.

I have been diagnosed with Gastroparesis, and my physicians have been very helpful with their suggestions regarding diet and eating. One of the difficulties I face is the fact that I have been diagnosed with several medical conditions, and dealing with one, in turn, affects the others. It is an ongoing challenge to find a manageable combination/level of diet (what and how much to eat) and physical activity (what and how much to do) for the way I am feeling on any particular day.

I am looking forward to getting better acquainted with everyone as we share our thoughts and experiences.


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3/24/11 5:27 P

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Where do I start? We have 6 children between us, 15 grandchildren and 2 great-grand children. (My husband questions why our children didn't tell theirs about birth control) The grandchildren range from 21 to 3 in age, and the great-grand's parents are 19. I am usually busy with teaching knitting and/or quilting. Just finished up two classes this week. I started with a non-functioning thyroid at 17. Then 5 kinds of arthritis, and rheumatic fever. Then along came sleep apnea. And in 2007 diabetes. Last Dec was GRED and GP. Some days I wonder why I got out of bed and the others are good. I love it when I get told to "watch what I eat" but no clear guide lines on what not to eat from doctor. The fun thing is that what is on one food list as okay to eat, it's a NO-NO on the next list. Dairy make me ill fast. I have kept a food log for 6 months or more now, and know some foods really cause bad days fast! Have been able to lose 50 pounds through everything though so it isn't all bad!

Edited by: IAMMARIGOLD at: 3/24/2011 (17:30)
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3/24/11 4:02 P

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I was also diagnosed with GP in December. My GI doctor has me following basically a low fat, low fiber diet. It takes some experimenting to find out what is best to eat; everyone with GP is a little bit different with what foods they can handle and which they cannot. It might help to keep a food diary, and write down any symptoms you are having so you can at least rule out the "bad foods".

I have GERD and IBS along with mine also, it makes it hard to know what to eat at times!


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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3/24/11 11:45 A

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Hi! I am new to this group and have been dignosed with GP since Dec 23, 2010. I was in a control group(clinical trial for new drugs) for diabetics without GP - - - but the DR doing the study kept saying it appeared I did have GP, though it usually took years for it to show up and I have only had dibetece for 2 years, not the 10 or more years. He did the tests and confirmed I have GP. My question is with the diet restrictions, what do I eat? Was doing okay before this, but the foods on one diet are big "NO-NO's" on the GP diet he gave me. Plus I am taking Zenpep and Zegerid for GP. I also have GRED. Some days are good, some days are not so good.

LUCKY-13's Photo LUCKY-13 Posts: 11,837
1/24/10 8:39 P

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Hi Olivia,

We're here if you need us and there's info you can read if you want, just go to the Links section and it should explain a lot about GP. I tried to get credible sources for the info and hope it helps anyone who might benefit from it. Sometimes even family members understand more about it after reading about it.

I'll be interested in how your GI doc plans on treating it, if it's GP. Seems like the three common avenues are Reglan, Erythromycin, or Domperidone. All have pros and cons and I'd learn as much as you can before you take any of them.

Hugs,
Lucky
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Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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LIVIGWIN Posts: 1
1/24/10 8:03 P

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Hi everyone,
My name is Olivia....I've been having problems with constipation and vomiting my whole life....I call them rotten egg burps...and then I'm sick. I have been having worse episodes this past year. I have been in bed from 24-72 hours with vomiting and diarrhea. I went to the GI doc this week, and he thinks I may have GP. I will be having my EGD and Colon test on Feb. 11. It is good to see that I am not the only one dealing with this.

I also have Fibromyalgia and IBS-C.....I take several different medications to try to live a normal life.....I work and have a wonderful husband and a 5-year old son. I will be keeping in touch and letting you know what my MD says.....

DIVA540's Photo DIVA540 Posts: 692
1/7/10 6:55 P

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Judy_Lynn,
When i was taking reglan, it made me MEAN..it made me hallucinate and it made me incredibly more violently ill to my stomach. Being in the medical field, you can imagine how bad that scared me knowing a drug can have that effect. I know that not all drugs are the same for everybody, but it is a strong drug, so pleaes be very careful while taking it. Good luck..

JUDY_LYNN's Photo JUDY_LYNN Posts: 35
1/7/10 5:59 P

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Welcome to the team PewTwo! I am on Reglan, and just wondering if you and Diva could describe the crazy symptoms so I will know what to watch for. At times I do feel some increased anxiety, but I'm not sure if it is due to the Reglan.

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DIVA540's Photo DIVA540 Posts: 692
1/2/10 7:18 A

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PewTwo,
Welcome to the team. I am so sorry for your losses. I know how stressful that can be. I too took the Reglan and it made me crazy. I am now an Erythromycin taker and find it so much better for my stomach. I am also an emotional eater and finally found myself sick of looking at me and decided that it was time to do something. It is hard to eat certain things still. I have more nausea than I do pain, and I HATE HATE being nauseous..
I hope that you find some good information here and that we can help you in any way we can in your journey to a healthy you. Take Care.
Eileen

PEWTWO's Photo PEWTWO Posts: 16
1/1/10 9:55 P

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Hi. I am renewing my interest in Sparkpeople and was happy to find this group. I was diagnosed with GP about two years ago. I started dropping weight because it was painful to eat. I had more pain than nausea. I lost 40 pounds in about 3 and ahalf weeks and the doctors ran every test imaginable thinking the worst. I just couldn't eat. After months of tests they finally did the gastric emptying test. My stomach was not emptying at all. I tried the Reglan which made me CRAZY. I lost a total of 85 pounds and finally refused to take the Reglan. My GI tried me on erythromycin..yes..a free antibiotic...and it helped. I was so sick, but being someone who was overweight my entire life, the upside was getting into a size I hadn't worn since highschool. I still have no appetite but due to emotional trauma...losing my dad and a dear friend...now that I am eating again...the weight is reappearing because I have learned to eat through the pain ...old habits die hard...finding comfort in food. So...Im back. I have gained back close to 50 pounds in the past year...I want it gone..the healthy way. I am a mother of two grown sons and grandmother aka 'Mimi' to an adorable 3 yr old Brennan and a sassy princess named Adalee who is 1! Looking forward to getting to know you all!

Edited by: PEWTWO at: 1/1/2010 (21:57)

I can do all things through Christ who strengthens me...He is my hope and my future!


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READINGDOC's Photo READINGDOC SparkPoints: (0)
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12/15/09 8:46 A

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Thanks Eileen,
Your suggestions are great. As for the nausea, that's my constant companion, too. Phenergan didn't work for me and neither did Zofran. My doctor put me on a strong chemotherapy patch that I change once a week called Sancuso. That works 95% of the time. There are still occasional breakthroughs of vomiting, but nothing like it used to be. My biggest symptom when I eat (pudding or mashed potatoes) or drink too much is stomach spasm for which I've been prescribed levsin to take prn.

If your phenergan ever stops working or has too many side effects, you may want to consider Sancuso, it's great!

Have a great day!
Lynda

Lynda


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DIVA540's Photo DIVA540 Posts: 692
12/14/09 7:30 A

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Lynda,
Welcome to our group, it's nice to have you. I too like you, face the fear of going out to eat. I have a rather large family, and being from the south, that's all we do.. lol lol.. When i was first diagnosed, may of my family members, and they are medical personnel as well, did not understand what was going on and how something like this could happen.
One thing you could do and i agree with Lucky, the people that you are closest to, print and have them read what it is all about. Educate them and it makes going out to eat and gatherings much more pleasant. I have learned to eat kids meals, and mashed potatoes. I can't eat veggies, unless cooked to death too, nothing raw, fruits or veggies, nothing. It has been a process. Have you experienced much nausea? That has been my biggest issue with having GP. I feel like Phenergan is as much a part of my life as my regular vitamins.
Please feel free to "ramble", we learn as much about our disease as you do, sometimes our best "learning" and advice is when we share the events in our life that happen because we have GP.
I have been able to travel with the applesauce in small cups, and jello that do not need to be refrigerated. I have tried pudding and it is not too bad, but i actually prefer mine REALLY REALLY cold. If you are going on a mission trip, try taking some packaged mashed potatoes and you may not be able to put butter and all that in them and be like normal mashed potatoes, but you get creative.
GOOD LUCK with it all and keep us posted.
Eileen

LUCKY-13's Photo LUCKY-13 Posts: 11,837
12/14/09 1:51 A

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Hi Lynda!

I know how you feel when everyone is eating around you and you're "drinking" your meal, when suddenly people around you realize you're not eating like they are. What helps me is educating and assuring them that you're OK, you're getting used to the routine and you're happy that you're in their company regardless of what you're doing.

It seems like once I act like GP is no big deal (and at times it definitely is) others start to calm down and stop focusing on what my limitations are.

Are you able to maybe have some soup if it's not chunky? Just a thought. For the celebration, if you're at a restaurant, see what they can come up with. Can you tolerate mashed potatoes? Rice? Well-cooked pasta without sauce but maybe with a little butter? And if they have a children's menu, there might be some possibilities there too. Maybe different juices or milk? Most restaurants these days are very accommodating in tailoring food for people with special needs. They want and need our business, so you might find them very willing to help.

On the pudding, you can buy the pudding cups that aren't refrigerated and then if you get access to a refrigerator, you can chill them. They're not too bad at room temp. I even get the applesauce in the small cups and eat them warm.

I used to drink Ensure a lot but got to where I couldn't tolerate the vitamin-y smell. But it did help if it was well-chilled or poured over ice and I used a straw. The straw helped to keep the Ensure just a little bit further from my nose! LOL

Despite the GP, you're wonderfully active and have a great attitude. Keeping busy does help keep food off your mind, that and drinking lots of water. I've been diluting cranberry or cranberry/grape juice (sugar-free) with water 50/50 and have been enjoying it. I can't tolerate V-8 (too acidic).

I'm headed in your direction with the GP. I am still able to eat and digest some carbs, and a few veggies if they're cooked to death, like squash, sweet potatoes. I've been a guinea pig for the teaching hospital here and everything they tried eventually stopped working. Now I'm on domeperidone but can't tell how much it might be working. The dose is still too low to get any benefits but my GI doc thinks it's important to keep it in my system so I can get acclimated to it.

You haven't rambled too much! A lot of times our questions, histories and answers are much longer than just a simple yes or no. And that's OK!!!

Hugs,
Lucky
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Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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READINGDOC's Photo READINGDOC SparkPoints: (0)
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12/13/09 2:19 P

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Hi Everyone!

I'm new to this team and relatively new to GP.

I'm a 63 yo proud grandma of a wonderful grandson. I have a fantastic husband of 39 years and two awesome grown sons. As for my other accomplishment in life, I'm a retired college professor of developmental reading. My time now is filled volunteering 25 hours a week at the local hospital in the medical records department and being 1st VP of the hospital's auxiliary. The rest of my time is filled with helping at church, taking care of my home, and it seems, visiting doctors (both for me and my husband).

I really enjoy playing the piano for hours on end, knitting and journaling. These activities keep my hands busy and help me keep harmful foods out of them.

I also enjoy walking at the gym and try to get there at least 3 times a week to walk 5k. I'm trying to build up to a 1/2 marathon in Memphis in 2010. That was planned for this year, but during the training I broke my leg in 3 places. That was a slight set back, but not a step out.

I am a strong believer in God and His grace and I believe that with His grace there is nothing I cannot overcome if it is His will -- even GP. If you get a chance, please glance at my SparkPage and you will understand what I'm talking about.

I am so grateful to have found this team. There have been many times when I have felt all alone with GP. I have only met one other person with this and they seem to have a very mild case of it, for which I'm glad. One of the biggest hurdles I face is how to eat (or rather drink) around others. For example, I'm going on a mission trip to Kansas for 5 days this coming week. My challenges are several: 1) how do I transport prepared pudding 450 miles without it going bad?; 2) how do I "eat" with the team on a regular basis without them feeling sorry for me or them feeling guilty about eating in front of me?; and 3) how do I "eat" in a restaurant for the big celebration when all I can do is drink Ensure or V-8? Any suggestions would be greatly appreciated.

I hope that I haven't rambled too much. It just feels so wonderful to have a GP lifeline. Thanks so much.

Lynda


Edited by: READINGDOC at: 12/13/2009 (14:21)
Lynda


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LUCKY-13's Photo LUCKY-13 Posts: 11,837
11/23/09 7:38 P

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Jennie,

Sometimes that's all you can do - try and see what works. My GI doc says just eat whatever I can, and that's mostly carbs. Hard to lose weight when you eat a lot of carbs! It's like being on a high-carb diet! LOL

I started taking the domperidone about three months ago. The doc prescribed the lowest dose in hopes of avoiding side effects and my dose goes up every three months. Guess in December it'll go up to 20 mg, 4 times a day, for three months. I didn't feel like it did anything either, but he warned me I probably wouldn't be able to tell the difference, it was just to keep it in my blood stream.

Don't be surprised if what you can eat today doesn't treat you too well tomorrow. That's GP for you. There needs to be more research on this, and I think there will be as more baby boomers get diabetes - since it's pretty common for diabetics to have GP - but who know how long it could take to get FDA approval, and then how safe it is? Having been a "research rat" I'm kind of reluctant to try anything other than the domperidone right now.



Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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JENLEE9's Photo JENLEE9 SparkPoints: (0)
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11/23/09 7:16 P

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thank you very much for the words of support!! it almost seems silly to be struggling with my weight when I don't have much of an appetite but I get sick if I don't eat and get sick when I do eat! LOL

I am currently taking domperidone, have been since June of this year and not sure it helps a lot but too afraid to not take it. I tried the Regalin (not sure on spelling) and started to have anxiety attacks but it helped immediately with my stomach. I don't do much for stress relief which I know doesn't help, my issues is it hurts some days to move out of bed so much I just end up on the couch all day.

I have done some research on GP and still haven't found anything that really works for me besides avoiding fiber. Everything else seems hit or miss, very frustrating.

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LUCKY-13's Photo LUCKY-13 Posts: 11,837
11/23/09 5:30 P

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Hi Jennie,

Please don't feel that you have to be upbeat here. We all have bad days and good days, and sometimes the bad/good spills into weeks, but it's the support and encouragement of the group that can really help.

You've really been through a lot. Just having GP is enough for a lifetime, but sometimes there are other things that seem to kind of "follow" it. Like IBS, diabetes, reflux disease (GERD), gallbladder problems.

I'm not sure how much you know about GP, but we have some information and all you have too do is click on the link and read the article. The Links are listed to the left of the Huddle board.

It also sounds like you've got a lot of stress going on in your life, and I'm sure you know how stress makes GP worse. Are you doing anything (yoga, exercise, meditation, etc) for stress relief?

Never feel like you can't come here an vent, talk or ask questions. That's what we're here for!!

Hugs,
Lucky

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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JENLEE9's Photo JENLEE9 SparkPoints: (0)
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11/23/09 3:55 P

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Hello Everyone,

I am new to the group and to a point of feeling desperate to feel better. I was diagnosed almost a year ago with gastroparesis after multitude of tests to figure out why I have chronic pain in my right side and elevated liver counts - I did the stomach emptying scan (trying the process of elimination) and was diagnosed with GP at that time. The pain in still there with the elevated liver counts but now we now why I could barely eat at times or constantly feeling sick to my stomach. I also have fibromyalgia that has been a huge strain on me and now with the GP it seems like a battle of the chronic issues to which one causes the most issues. I have had ongoing issues with my "phantom" gall bladder that just appears and goes as it pleases (i had my gall bladder removed 10 years ago and had 2 surgeries after to remove gall stones) - I think that is all of the major issues, Lol

Stuff about me - My name is Jennie, I am 30 years old and have lived in Maine for the past 4 years - I am from Oregon originally. I left my ex of 10 years last Feb and in the middle of a long divorce process. I live with my amazingly wonderful boyfriend and his 5 year old son, my cat Murielle, our cat Binx and our dog Marley (pretty much our kids too). I am currently unemployed but taking courses for pharmacy tech (which i am loving).

interests - I am a homebody at heart, I like being outside but nothing beats cuddling on the couch with the ones you love!

I hope that wasn't too much of a downer, looking for support with losing weight and eating better to lessen my symptoms. Thanks :)

Jennie

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LUCKY-13's Photo LUCKY-13 Posts: 11,837
11/23/09 12:15 P

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Hi Judy_Lynn,
Welcome to our team. We're happy to try to help however we can.

There's a lot of GP articles here and all you have to do is click on the Links to the left of the Huddle section (by the way, the Huddle section is a great way to put in a small message or just say Hello, please feel free to "Huddle".) The articles I've found are very information and pretty easy to understand.

I agree with Diva, getting the gastric study done is really important. And I would also be careful with the Reglan. My GI doc took me off of it after he had seen several cases of the irreversible side effects, mainly involuntary muscle movements, like in your arms and/or head. If it even starts to happen, you'll want to stop taking the Reglan before it gets any worse. There's a big class action law suit brewing because so many people have these side effects and probably will have to live with them. There are other anti-nausea medications out there. I've been using trimethobenz (brand name is Tigan) for over four years now and it's wonderful. I take it 4 times a day and it even helps with gastric reflux (GERD) because the excess acid also makes me very sick.

Are you also keeping some kind of food journal? I found it really helpful when talking to my GI doc about what was happening. By keeping the food journal, they were able to see what was giving problems, that I'm lactose intolerant, have an iodine allergy (mainly from shell fish, especially shrimp), and then ordered the gastric empty study. Getting as many things under control that I can really helps.

Stress does make this condition worse. As does an underactive thyroid (a blood test can confirm if you have this, but it really does slow your metabolism down and really affects those of us with GP), blood sugar levels that can be very difficult to stabilize due to the slowness of digestion - and diabetes can make GP much worse. Other things include abdominal surgery, some cancer treatments, bulimia, anorexia, scleroderma, Parkinson's, and certain meds like anti-depressants and narcotics.

Quite the list!!!

I've had GP for 10 years now, but the team here has some members that have had it since childhood. For a lot of GP-ers, it does seem to get worse with age, but GP can be different for every person who has it.

Sorry I don't have a lot of positive info about GP and what's making it better. I know there is some research going on (this info is in the Links section also). I would read as much credible info as you can. Credible to me is the organizations and places like the Mayo Clinic. The links come from the most credible sources I could find. I stay off other chat rooms on the web.

I hope this helps and really hope you'll read the links. Ask more questions if you need clarification on the articles or there's anything you don't understand. Arm yourself with knowledge and you might find yourself knowing even more than some doctors you may have to see. This is one disease you can't be passive with. If you doc starts telling you about drugs that haven't been tried in a clinical study and that they think will help (off label uses) - be really careful. I've been a guinea pig for a well-respected research hospital and mainly learned what doesn't work.

As you can see, we're willing to share what we know, and help however we can. I'm thinking about starting another stress or venting thread for us. This time of the year, and usually, through the first of the year, we're all very stressed and venting helps to relieve some of the internal pressure. Stuffing your stress will only make you sicker.

Wishing you the best, and I'll help as much as I can. I work full-time so I'm not on the site all the time. And I'm on eastern standard time. Feel free to send a Spark Mail if you want.

Hugs,
Lucky
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Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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DIVA540's Photo DIVA540 Posts: 692
11/23/09 8:02 A

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Judy_Lynn,
I too suffer the most when it is stress induced. I have pretty much like you figured out what I can and can't eat and take my medicine and do o.k. most days. Yes, please have a gastric emptying scan done. That was the only way they found mine.
I have a STResssFUL job. I have learned to "talk" my way through most of my days. Just say- this place is not going to get the best of me. I truly realize that it sounds easier than it is, but it has worked. It also works in situations. I am flying again too, all the way to Ohio and back several times a month and also taking trips to Tennessee. I live in Georgia. I have just learned to not eat so much before I take a trip and I take things with me that will absorb the acid in my stomach, like pretzels, bread, ritz crackers, etc. I drink tons of water and stay away from tea, coke, etc..
Now don't get me wrong, there are days after being at work, that it takes all I have to drive the 15 minutes home, to take my pain and nausea medicine and climb into bed.
You are 1,000% correct, NO ONE knows what it is like to have GP. You may also be like I am and have a touch of IBS, since even the smallest thing like the mention of the banquet brings on an attack. After I was diagnosed with GP, and had a few episodes, we figured out it was IBS as well. Talk about a double whammy!! Try looking up IBS as well.

I am glad you joined our little group and hope that you will find all the information that you need, and hope that we can be of help to you. Join us in discussion groups and join the games, they are fun and a break from the routine. Welcome and take care.

JUDY_LYNN's Photo JUDY_LYNN Posts: 35
11/22/09 10:49 P

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Hi everyone, am I ever glad to have found you all. No one really understands what it is like to live with GP.

I have had this condition for about 1 1/2 years. I have had every test except the stomach emptying test. All of them came back normal. My doctor tried me on metoclopomide, and since it helped she gave me a diagnosis of GP. I think I may still ask for the stomach emptying test just to be sure it is not something else.

Anyway, with the metoclopomide, and modifying my way of eating through trial and error, I have the food end of my condition pretty much managed. I eat small meals, avoid high fat foods, etc. And take my meds. I also take Gravol (Dramamine) when I have an episode.

What I am still really struggling with is anxiety/stress induced episodes. The slightest bit of anxiety will bring on an episode. Does anyone else experience this? It sucks. I love to travel, but just the nerves about flying, being in a different setting, etc will bring it on. I think my travelling days are over. :( Today my husband started talking about a banquet we are invited to next week and I started to feel sick.

I feel like I could easily become a hermit and never leave my comfort zone. Strangely enough work doesn't make me sick. Even when it is stressful. Maybe I just handle it better.

Anyway, a bit about me. I am 50 yrs old, married, with two grown sons that live on the other end of the country. I live in Alberta, Canada. We also have a cat and a dog. I work full-time as an accounting technician. It is boring, but maybe that is a good thing GP wise.

Looking forward to getting to know you and being part of the group.

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BERT_1960 Posts: 40
11/21/09 1:51 A

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Bert

Edited by: BERT_1960 at: 12/11/2009 (14:44)
Moderation is the key to good health.


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DIVA540's Photo DIVA540 Posts: 692
10/26/09 9:36 A

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Suzanne,
Oh I felt like I was reading my life story over again. I fought my diagnosis for 3 years.EVERY TEST i took came back negative. I was frustrated about what could make me so sick ,and not being able to eat. I am a southern girl and we love to eat. I kept throwing up, could not keep ANYTHING down, even liquids. I went to the Dr. had the gallbladder taken out and everything just as you did. Did more testing, and my tests ALL came back negative as well. Did the emptying scan, and it FINALLY told me that was a POSSIBILITY. Well, i was MISERABLE!! I FINALLY had my gastro doc refer me to someone that specializes ONLY in GP. I saw this guy and he has been GREAT for me. What other symptoms are you having? PLEASE be persistent in finding the direct cause of what is causing your problems and have your gastro send you to a GP specialist. We are always here if you need us and hopefully some of the info on the site and articles that are posted will help. Let us know how you are doing and what happens. Hugs!!
Eileen

DOMERSUZ Posts: 8
10/22/09 2:38 P

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Hello!

My name is Suzanne. I'm 33, a wife and mother of 2 beautiful little ones. My daughter is 2.5 and my son is 15 months. We live in Colorado. I work full-time so my life is just plain busy. I have 70 lbs to lose.

I do not have a gastroparesis diagnosis but my digestive symptoms fit and there is no better group for me.

Basically, I've been throwing up daily for 3 years. It started with my first pregnancy. I thought it was morning sickness but it never went away. It lasted until my daughter's birth. After delivery I was fine until I got pregnant with my son. I threw up the day I got pregnant and again didn't stop until delivery. It stopped after that but only for 2.5 months. In September 2008 I started throwing up again for no reason. The doctors thought it was my gallbladder so I had that removed but it didn't help. I've been working with a gastroenterologist with not much success. My symptoms are 100% consistent with gastroparesis but my gastric emptying study came back normal. I'm not convinced. Even my GI was surprised. All I do know is that no one seems to be able to tell me what's wrong and nothing seems to make the vomiting stop. It's changed my life and not for the better. I am so excited to have found a group that may be able to support me as I try to improve my health.

I'm looking forward to getting to know everyone!

LINDABERT's Photo LINDABERT Posts: 91
6/27/09 9:58 A

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Welcome Marissa!

Thanks for taking the time to tell us about yourself. You have been dealing with this for such a long time and I know that has to have been so difficult. However, we are here to help support you to, hopefully, make things a bit easier. It is very difficult for anyone who doesn't have this condition to understand what we go through. One thing I have found helpful is to take some smaller amounts of time for exercise each day. When I get up in the morning, I spend about 10-15 minutes doing some cardio with the radio on. Then, during the day, I try to park further away, walk up steps, etc. At lunch time or at the end of the day, some more cardio and some light weights that I keep at home. Doing this seems to work best for me, as I have the same time challenges. Another suggestion from the Dr. was to eat smaller meals throughout the day so that I am never starving, therefore not wanting to eat more at a meal than would be comfortable for me to digest. I have found this to work for me, though it isn't always feasible. Whenever I can incorporate both of these changes into my day, I find that I feel so much better.
I hope this helps you some and please keep us posted on your progress. We are here to listen and help.
Take care and have a nice weekend.
Linda

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HOKIEGRL11's Photo HOKIEGRL11 Posts: 249
6/27/09 9:37 A

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Hi! I'm a 25 year old grad student trying to lose significant weight despite my gastroparesis and asthma. I've had gastroparesis since I was 6 months old though it wasn't formally diagnosed until I was 13. It's been a constant struggle in my life and seems to make weight loss even harder because of the food restrictions (i.e. low fiber) and increased carbs I have to eat to battle the hypoglycemia. I can't tolerate vegetables more than once about every 48 hours. Because I can't alter my diet much I try to work out more but can't do much outside because of my asthma and allergies and have a very hard time getting to the gym when it's open. My challenge seems to be finding a balance between diet and exercise modifications without making myself sick in the meantime. I work 60-80 hours a week and am also a full-time student so time is a major issue but I'm committed to making time for myself to do this. If anyone has any suggestions just let me know!

NEALSNEWS's Photo NEALSNEWS Posts: 74
5/19/09 9:50 P

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Thanks to everyone for the warm welcome! I had someone give me Jordan Rubin's book "The Maker's Diet" but that didn't give me much info that I hadn't already tried. However, from that book I found out about the book "Restoring Your Digestive Health" by Jordan Rubin and Dr. Steven Brasco.
I was on Phase 1 for about a month, then on Phase 2 for several weeks and am now eating a mix of his Phase 3 diet and Sally Fallon's Nourishing Traditions diet, and when I'm having problems (flare ups) living on his Brasco broth which is a chicken vegetable broth.
I don't say "I'm cured" but that "I'm managing my illness."
Along with the diet I am taking lots of supplements.
Also, to make sure I'm explaining all of what I'm doing I didn't have real relief from the intense pain till my family doctor decided to try me back on pancreatic enzymes despite the fact that the gastro doctors didn't feel I needed them. I'm taking those with each meal and a gut relaxer.
My pain used to be between a 7 and a 9 and is now between a 1-3 level. I can't describe what relief that is. I feel like I have a life back.
I also was living with the severe nausea and vomiting and I turn into a baby when I have nausea.
Well, enough on that! I just thank you for being here and hope I can enjoy fellow-gp'ers trying to hang in there!
Thanks for the tip on the yoga. I've never tried that but I do not a brisk walk helps me. I just got to where I was lucky to be up and trying to care for my family, let alone find the time for exercise!

Tami

"..and the blood of Jesus Christ his Son cleanseth us from all sin. I John 1:7b


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LINDABERT's Photo LINDABERT Posts: 91
5/19/09 5:02 P

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Howdy Tami!

We are so glad you have joined us. I agree with Diva that it sounds like you have really had a particularly tough time with everything. Hope you are feeling much better and enjoying the spring weather. My doctor recently told me that yoga sometimes helps with gastroparesis. It doesn't cure it but it teaches us to relax and breathe, and opens us up, thereby alleviating some of that pressure we feel. He said several of his patients have tried it and it seems to be working for them. I told him I am game to try anything so maybe that would be something to think about when you are feeling better.
Stay strong and know that we are always here for you. Take care and be well.

Hugs,
Linda


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LUCKY-13's Photo LUCKY-13 Posts: 11,837
5/19/09 3:38 P

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Welcome Tami!

We'll do our best to answer questions and encourage you when you need it. Feel free to have some fun playing the games, there's articles to read, and the threads might also be useful as we're good at sharing info on gastroparesis (GP).

We're glad you've joined our team!

Hugs,
Lucky

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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DIVA540's Photo DIVA540 Posts: 692
5/19/09 8:23 A

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Tami,
WELCOME!! I am so sorry to hear about your illness, I have been in medicine for 24 years and bless your heart, you got a nasty bite of it all. I pray that you are well on your way to recovery with it all. I am glad that you have returned to us, :) and hope that we can help in anyway.. How have you started dealing with your pain? I know that having just GP is tough enough. Good luck with getting back on track. Thoughts and happy wishes to you and know that we are here anytime you need someone.

Eileen

NEALSNEWS's Photo NEALSNEWS Posts: 74
5/19/09 12:46 A

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I hope I'm putting this in the right place on the forum! I joined last week but just now have had time to introduce myself. My name is Tami and I'm a 53 year old mother of seven children, happily married to my sweetheart for 35 years!
Last year in March (right after celebrating our anniversary) I became critically ill with clostridium difficile, which is a serious bacterial infection in the bowel. I also had pancreatitis and was in the hospital for 12 days.
I came home still very ill and have stayed in extreme pain since then. In the course of many, many tests and visits as far as to Cleveland Clinic I was diagnosed with gastroparesis. I also have lactose intolerance, I've had small bowel infections, eosiniphils in the large and small bowel, muscle wasting and many other problems related to my terrible illness last year.
Just in the past month have I finally found some relief to my pain, nausea and vomiting. (That's another story entirely!)
I hadn't even been on Spark's much since I was ill but am ready to get back in there and try to get my health and fitness back to where it was when this happened.
I hope to be an encourgement and to get encouragement here.

Tami


"..and the blood of Jesus Christ his Son cleanseth us from all sin. I John 1:7b


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LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/27/09 10:00 P

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Hi Adee!
Welcome to the team, and please DO NOT EVER feel like you have a dumb question!!! We've all had a lot of questions, done some research, learned what works for us (most of the time. Like Linda wrote, at times this changes from one day to the next and especially over time), but anytime you have questions or need to talk, please feel free to come here or even Spark Mail one of us and we'll help the best we can! We're very willing to tell what works for us, what we feel is helping, and whatever we learn.

Unity is definitely strength when trying to understand gastroparesis! We'll help however we can, and we're really happy you're here!

Lucky
emoticon emoticon

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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DIVA540's Photo DIVA540 Posts: 692
3/27/09 7:51 A

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Welcome Adee,
I am glad that you found us. I hope that you find some helpful info and support here in this group, it has been wonderful for me. Just know that you will be facing some ups and downs, and if you need some tips, or need to vent, give us a yell!! No question is too crazy or too much when you are battling this disease on top of trying to lose weight and be healthy. Keep your chin up..

LINDABERT's Photo LINDABERT Posts: 91
3/27/09 12:22 A

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Welcome, AdeeMae!
We are glad you found us and are here to help. Yes, I am sure the diagnosis of gastroparesis explains a lot of things for you, although it is difficult to understand how it all applies sometimes. You will adapt and, even though it is hard, learn the things to stay away from, which is different for everyone, and even for yourself, at times. Just hang in there and know that you aren't alone and have people to talk to when you need to.
Take care and be well!
Lindabert

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ADEEMAE Posts: 1
3/27/09 12:08 A

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Hi All,
I am Adrienne or AdeeMae for short. I live in Oregon, I found out last week that i have gastroparesis, it is nice to finally have a diagnosis to why i always feel cruddy, and a group of people to answer my questions (hopefully they are not all that dumb).

-adee

LINDABERT's Photo LINDABERT Posts: 91
3/1/09 8:10 P

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Hi, Katie!
Welcome to the team. Glad you found us and we are here to listen and to help. Many of us that have gastroparesis have found that we are a unique group and noone understands the struggles we have with food. The only ones who understand are people who have this condition. Sharing information, being able to vent and ask questions and overall support are what we are all about. This team was started in Sept. because I thought that if I had this condition that I had never heard of, others must be out there too. Lucky and I, together with the rest of the team, are here to listen so please feel free to say what's on your mind.
Also, welcome to all the new members and a big hello to everyone. Stay positive and look forward to spring, a time of hope and renewed energy.


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KHALVE's Photo KHALVE Posts: 66
3/1/09 8:01 P

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Hi, my name is Katie. I live in Washington (for now...hope to move to Indiana in the next year)
I have been suffering from severe nausea 24/7 for the past year along with stomach pains daily. My original doctor blew me off and called it depression related. I switched doctors and she ran every test she was qualified to run, then sent me to a gastroenterologist. He ran every test he could think of and low and behold he found out I have gastroparesis. My stomach empties severely slow he said. This was diagnosed just about 3 days ago. I am really struggling with changing the way I eat. My nausea is way less now that I am working hard to eat very little at a time and eating non-fat low fiber foods. But with having a husband and 2 kids who can eat normal, it makes it a little depressing for me.
I really feel that being in contact with people who truly understand what I am going through will really help me. I think it will help me so I get less discouraged.

"Life is not measured by the number of breaths we take, but by the moments that take our breath away."


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LUCKY-13's Photo LUCKY-13 Posts: 11,837
2/23/09 6:41 A

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Hey there DIVA540!

It's great learning more about you!

I live in north central Florida, not too far from Georgia. We're almost like neighbors! LOL

Also like Andrea Bocelli. First time I heard him I almost cried. His voice is so full of passion.

You wouldn't believe what I do for a living: I manage a test center where we deliver NCLEX exams (amongst others). My NCLEX testers are always so nervous and my heart goes out to them. We're always trying to calm them before they take their exam.

Hugs going out to you,
Lucky

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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DIVA540's Photo DIVA540 Posts: 692
2/22/09 8:50 P

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Well, I am 38, single, I am from Georgia. I am a May baby- the 16th,and I am a true Taurus in every sense of the word. I work in the medical field, have for 24 years now. I started when I was still in high school, worked part time after school, fell in love with the nursing field, and never looked back. I am the care taker in this family. I am a great listener and have big shoulders for you to lean on. I give great advice( or so I am told) ( funny how you can give it, but never follow your own.. lol lol ) I love my family,they are VERY important to me. I am loud, brassy, sassy, quiet, funny, serious, moody, grouchy, happy, and everything rolled into one. Most importantly, I am VERY LOYAL!! Once you and I have become friends, I have your back. My friends are very important to me and I will do anything for them, and they will for me. I have a few VERY CLOSE personal friends, that I keep closest and then all my other friends. I have 2 "GOD" sons, who I treat like my own. Mitchell is 3 and my heart, and Bradley is 10 and he is my rebel!! They are my world. I love to scrapbook, quilt, and read. I am a big music fan, but do not like rap. I love Andrea Bocelli. If you have never heard of him, you should check him out. Very soothing music. Pretty much it in a nutshell.

LUCKY-13's Photo LUCKY-13 Posts: 11,837
2/20/09 10:10 P

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We're interested in who you are, how you're doing, what makes you YOU! Information that you could include: where you're from, your age, your birth day, single/married/other, kids?, do you work outside the home?, what do you like to do for fun? These are just some suggestions.

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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