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KHELIA's Photo KHELIA SparkPoints: (6,224)
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5/6/11 5:38 P

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Hi Blue -
Moving is the most important part to fight AS. Im on high dose nsaid-drugs for two years now. I found out that i have to keep my daily dose at a level that keeps me moving.
Having been diagnosed with AS has been the most important thing in my life - the diagnosis gave me back all my possibilities.
I cut back activities the last 10 years due to my high fear of pain.
Now im back to yoga and back to dancing - i both stopped ten years ago.
I think Yoga helps me a lot.
and a special program designed for my by my physiotherapist. -shes specialised in AS and a Yoga-teacher too ;-)

Keep fighting
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BLUEFISH2's Photo BLUEFISH2 Posts: 3,876
5/2/11 8:00 A

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I have not had the bone and joint scan. I have done a lot of blood work and had an MRI of my back. I will mention the joint scan to my Doctor next time I go. I just went this past week and they are upping my anti-inflamatory meds. Since my diagnosis wasn't 100% I still feel like I'm not exactly sure what is wrong. I started swimming last week and am stretching daily. So far I'm just sore, but at least I'm doing something. I've am being more careful about what I eat as well. Hoping I start to feel better soon. Thanks for the support!

Be who you are and say what you feel because those who mind don't matter and those that matter don't mind. - Dr. Seuss



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HALF2EAT's Photo HALF2EAT Posts: 253
5/1/11 2:56 P

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Blue,
Have you had a bone and joint scan? That will confirm their diagnosis. Start the low impact exercise routine that Kerri (?) mentioned. The best thing for you is to not give into the pain. When you feel you are at your worst is when you need to move the most. You will know when to stop. If you have access to a pool, walking and leg lifts are the best. Try not to get too bummed out. It's been said: at least now you know. It took a long time for most of us too. I am so glad you found us! Please stay in touch.

Erin
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Make it a Great Day!!
erin :)
co-leader- ankylosing spondylitis
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KRICKET57's Photo KRICKET57 SparkPoints: (259,356)
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4/26/11 9:04 P

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The good thing is, you now know what is wrong. There are ways to deal with this illness and there are ways to ensure it does not ruin your life. Exercise is key. Start small with your exercise. Walking is the best thing for you so take your boys and go for a walk. Low impact fitness routines will help. I have been living with this for over 25 years and I can tell you there are days it hurt so bad I did not want to get out of bed. Those days I would slide off the edge of the bed and use the momentum to get me upright. I have been on anti-inflammatory drugs for many years but with my current fitness routine and activity levels I am on the minimum dose and am very active. My specialist says it appears the disease has burned itself out. What this means is that there should be no further damage done and I should not deteriorate from my current state if nothing changes. Not sure if any of this will help you but feel free to email me if you have any questions.

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BLUEFISH2's Photo BLUEFISH2 Posts: 3,876
4/23/11 11:14 A

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Hello! I was diagnosed as probable ankylosing spondylitis several months ago. After years of chronic pain by process of elimination my doctor has said this is the probable cause even though the MRI of my spine did not exhibit typical findings for the disease. It is all very confusing to me. I have done some research and the symptoms do fit. I have been struggling with mental and physical issues that chronic pain causes. I have two young boys and want to run and play with them and feel awful that most days I can't. I am also struggling with how to be physically active without aggravating the pain. How do you all work around the pain? Thanks.

Be who you are and say what you feel because those who mind don't matter and those that matter don't mind. - Dr. Seuss



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