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JOURNEY557's Photo JOURNEY557 SparkPoints: (17,772)
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4/22/11 1:52 P

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HI Nikki~
Wow 17 is very young to be diagnosed with AS. I was diagnosed about 5 yrs ago, I'm now 54. I had always seemed to have back pains from a young age, but then I was pretty active. As I got older, my activity slowed down. I also got to the point that I couldn't walk. I went to a Rhuemotologist. After testing, she put me on Enbrel. What a difference that made! I'm also on anti inflammatory. So far I haven't had any stomach problems.

Recently I found that I also have Fibermyalgia. So now I to a Neurologist and have acupuncture done every three months or so. He also put me on cymbalta which helped me sleep. I now have a new Rheumotologist and he has me on Lyrica. And now I'm on Humera instead of Enbrel.

But even with all this medicine...the best thing I can do for myself is to keep moving. The less I move, the harder it get my movements back.

I know that the doctors say its better to start these meds to help curtail the aging process early. I'm glad you've caught yours now, there is so much new insights to AS and Fibermyalgia now.

Good Luck, and Best Wishes!
Mary emoticon

I still find each day too short for all the thoughts I want to think, all the walks I want to take, all the books I want to read, and all the friends I want to see.
- John Burroughs, essayist and naturalist


We could learn a lot from crayons: some are sharp, some are pretty, some are dull, some have weird names, and all are different colors.... but they all have to learn to live in the same box.

♥.*)♥ -::- ♥~**♥~.* ) ♥
Mary


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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
4/15/11 10:19 A

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Welcome to the team Nikki,

Khelia made a very good point. Keeping everything moving by exercise is the best thing for pain reduction. It might not feel like it at first. I know when I started physical therapy it made me hurt even more, But after a few weeks I started noticing that the pain was getting to be less and less.


Mark
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Co Leader: Ankylosing spondylitis is anky-losing bad habits!
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KHELIA's Photo KHELIA SparkPoints: (6,224)
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3/22/11 5:47 A

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Welcome Nikki -

Glad you found this team emoticon

Dont feel bad about taking "pain-killers". Those "pain-killers" wont take your pain away in first line, in first line they are anti-inflammation meds.

One of the most important things with as is moving. To have a good physiotherapist setting up a personal tailored program of excercises.
But you need to be mostly painfree to do these excercises...
You see - Its kinda circle... so take them without bad feelings.

I had lot of trouble with gastritis too, so i canged from Ibu to a cox-2- inhibitor and its works very well for me.

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PREVIDENT's Photo PREVIDENT Posts: 6
3/20/11 2:39 A

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Hi everyone, my name's Nikki. I've been a member of Sparkpeople for awhile but have not done much. Well..I've decided to come out of my shell and participate a bit more. I was diagnosed with ankylosing spondylitis when I was around 17. This was when I began experiencing immense hip pains. The pain came quite sudden and I was unable to walk for about a year. I'm 19 turning 20 next month, and things have been getting better very slowly. The specialist gave me 3 cortisone injections altogether in both hips. I'm thankful that I can walk and do normal routines now. Sometimes my spine feels stiff, or one of my hips hurt, but it's better controlled. I first took Naproxen, but about 2 week ago, my stomach was hurting and I felt nauseous. I went to the doctor and she said the medicine was irritating my stomach lining. So I had to stop the naproxen for about 10 days and she gave me Arthrotec instead. I'm still apprehensive about taking pain killers, but I also want to be able to walk and enjoy life pain-free. I guess...I'm hoping to find some support here. I get good support from my mom and friends, but sometimes they don't fully understand. I don't expect them to fully understand because they haven't gone through this. I also want to learn more about this and gain insight from others who are going through similar things... Anyhow, I thought I'd officially introduce myself. Nice to meet you all :)

Edited by: PREVIDENT at: 3/20/2011 (14:15)
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