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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
1/26/10 10:49 A

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Kathy,
I can really feel for Dan. Sounds like he is in the same place I was two years ago. My doctor told me I had to exercise but it just made me hurt more so I would not do it. Finally, A year and a half ago he sent me to physical therapy, I thought I was in Hell! It hurt so bad and the therapist kept adding more exercises and more repetitions. I called the place a torture chamber. But then I started noticing that my pain was getting less bothersome. At the end of the three months of therapy the physical therapist told me that I had to continue to do the exercises or would just go back to being the same and probably get worse. I have stuck with it since by joining the gym program offered by the hospital's physical therapy department so I could keep in contact with the therapist. It was the best thing I could have done. My pain is greatly reduced. my flexibility is improved and I have a lot less stiffens. It was a life changing decision and one that you need to commit to. It does make a big difference.

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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MANNISUE's Photo MANNISUE Posts: 141
1/25/10 12:40 P

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Woosel. . . emoticon

The pain can be very disheartening, so I applaud your husband for taking the steps he's taking, and you for standing behind him. You are a GREAT coach. Keep on keepin' on, and if you need to talk; well, here we are!

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mannisue

~The rain falls on the just and the unjust. The rain is neither just or unjust; it just is.~ unknown


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WOOSEL's Photo WOOSEL Posts: 349
1/25/10 8:02 A

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Thanks for your kind words...
Dan (hubby) used to be VERY active, but for past 7-8 years due to pain and increased stiffness, he has practically not excersised at all. He also lost alot of weight due to colitis ulcerosis.
The FEAR of the pain kept him from moving as he should more than the pain itself.
Now that he sees me excercising EVERY day and being consistant in it, I tell him if big fat ole me can get my XXL body up and moving, so can he. :-)
He is now going swimming once a week and doing his back excercises 2-3x/week. Small steps but at least he is starting ;-)

We still do not have regular prescriptions for Humira. We live in Germany so the whole health insurance setup is different.
Doctors here have a certain authorized budget which they can use for prescribing medication (Humira is very expensive here), so his doc has to get his budget increased and the paperwork is taking a long time.
Dan got some samples and injected all 4 weeks instead of 2 weeks.
The irritating thing is all the time off of work he needs because he has to go to the doctor's every few weeks.

Thank you for letting me share, and pls keep your fingers crossed that he finally gets his prescription!

xoxoxo
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Kelly

His dream must have seemed so close he could hardly fail to grasp it.

F. Scott Fitzgerald, The Great Gatsby


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HALF2EAT's Photo HALF2EAT Posts: 253
1/24/10 11:33 A

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How is your husband feeling? Is he an active person? Was he before? I hope you keep checking in, I'll look for you. Keep your chin up. You're on the right track!

Erin emoticon

Make it a Great Day!!
erin :)
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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
1/19/10 9:23 A

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I know that having a good spouse to support you is one of the best things to help. It is good that your Husband is already starting on Humira. It should really help.

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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WOOSEL's Photo WOOSEL Posts: 349
1/7/10 11:28 A

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Hello,

I decided to join this team because the person I love most in the world, my very best friend & husband, was diagnosed in March with AS.
He just started on Humira last month.

We live in Germany and there aren't many support groups here, it is hard to get information / find people who know what you are talking about or can offer advice. It was hard enough to find a competent doctor - it took us almost 7 years to get the right diagnosis.

I want to support him as much as possible and think the contact with this team will help me understand better what he is going through and how I can help/be supportive.

Hope you don't mind.

xoxoxo
Woosel

His dream must have seemed so close he could hardly fail to grasp it.

F. Scott Fitzgerald, The Great Gatsby


 current weight: 218.0 
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