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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
1/28/10 9:00 A

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Pilates is a very good workout at keeping the flexability. That is good that you are doing it.

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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MANNISUE's Photo MANNISUE Posts: 141
1/27/10 12:21 P

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Thanks so much for the welcome! I am excited to be here. . .the SparkPeople experience has been tremendous, and has worked wonders for my mobility thus far. I am a Pilates fanatic as well, which I think has kept any real serious damage at bay. I still have pain intermittently, but I am able to work right through it. This has got to be my favorite team! emoticon

~The rain falls on the just and the unjust. The rain is neither just or unjust; it just is.~ unknown


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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
1/27/10 10:09 A

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MANNISUE Welcome to the team. Your exprience sounds simmilar to mine. But it was a Reactive Arthritis eppisode that brught it into light. I was just told that I had arthritis before that.

Exercise is one of the main keys to helping with the pain and stiffness. At first it well make you hurt more but eventually it will start making you feel better. It took me three months of physical therapy to get to the point where the pain of exercising became tolerable and the pain froem the AS started reducing. You need to stick with it or you will regress. I suggest that you go to a physical therapist so they can instruct you as to the exercises that will help the most. I do some awful strange exercises but they were designed to help keep the spine flexable. Stretching is also a very important part of maintaining the flexability. I spend 20 minutes of my exercise routine just doing stretching exercices.

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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MANNISUE's Photo MANNISUE Posts: 141
1/25/10 12:35 P

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I am jazzed to find this team. . .the support will really help.

Okay, my story: I was diagnosed with AS on the 8th of this month. I have struggled with uveitis and sacrociliac pain for the last ten years, being vaugely aware of this disease. . .first as suggested by my eye doctor and then testing positive for HLA-B27 antigen. My brother has reactive arthritis (Reiter's Syndrome,) and after this last year of more cyclic pain (moved now to my ribcage and neck) I got my stubborn butt to a rheumy. He's put me on Mobic with a Prilosec kicker for the tummy, and so far it's done okay. With exercise being so important to the management of this disease, I went back to my SparkPeople account and really got busy--it's taken on a whole new meaning! I may not be in an aggresive stage of AS, but I DO know what the pain is like. If anyone wants to chat, please let me know. emoticon

~The rain falls on the just and the unjust. The rain is neither just or unjust; it just is.~ unknown


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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
8/25/09 3:08 P

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Gail, Sorry I am slow at responding. You are very welcome in this team. As comes in many forms and what you have is closely related. So there is no problem with you being here.

Predisone is very hard to come off of. It has been just over a year when I was weaned off of it. At first I wanted to just go right back on because it did make me feel better. But it was causing bone damage and causing my teeth to fall apart. Sometimes the side effects are much worse then the benefits.

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


 current weight: 199.0 
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OPENMINDGAIL Posts: 3
8/9/09 9:35 A

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Hi, I'm Gail and have had spondyloarthropathy that was diagnosed in 1999.
I'm on humira, methotrexate and clinoril I just went off 2 years of maintence predisone 10 mg per day.... it's taken months to wean from that as every mg. caused flair up's (I had to wean 1/2 mg at a time).
I'm 51 yrs old and work in a cube, on a queue line that doesn't allow for leaving except scheduled breaks and emergent trips! Needless to say I like that I don't have to stand long but get stiff sitting such long periods. My back was the first area to get arthritis, but has been relatively pain free as long as I exercise/stretch. I get most of my swelling in the extremities now.
I would like to learn how others with this type of arthritis handle it and what exercises help. I'm still learning after 10 years (plus the years of going undiagnosed).
I hope it's okay to join this team, even though I don't have AS...it's the same marker-HLAB27 and similar treatment. I want to learn how to deal with this disease, get rid of this weight and keep the mobility I have.
I was so excited to see this team, most people don't understand this disease, I can't wait to start reading your postings.

Gail



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