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RJONES8194's Photo RJONES8194 Posts: 114
2/1/11 1:45 A

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Hello Patty,
It's nice to meet you and I would love to trade information. I really don't know anyone else who has either of these. Autoimmune disorders seem to run really high in my family but none have these particular ones.

The Raynauld's I've had for a while I guess but I never recognized it for what it was until this winter when the color change was really pronounced and the prickly fingertips. Wearing gloves seem to help with most of the problems I was having with it so far.

I do have one a problem with my fingertips turning bright red and swelling up till they are hard and bloated. It doesn't effect my whole finger just the pads at the top. If you use them very much they get almost a windburned feeling - burning and very sore. Is that a symptom of Raynault's or the Sjogren's. I seem to have a lot more problems from the Sjogren's Syndrome than I do with the Raynaults.


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1/31/11 10:19 A

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Hi Robbie,
I just joined this team as well. I have several autoimmune diseases and am going through diagnosis for Sjogrens currently. I have Raynaud's as well. How are you doing with your Raynauds? I know a lot of tricks to manage it if you have any questions.
Patty

RJONES8194's Photo RJONES8194 Posts: 114
1/30/11 11:39 P

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Hello,
I'm Robbie and I've been using Sparkspeople for a while. I did well for a time but let things get me off track and I got frustrated and quit. I made a new beginning this month. I have been diagnosed with connective tissue disorders and eplilepsy. They have told me they don't really know exactly what the connective tissue problem is but I produce lupus antibodies and recently was diagnosed with secondary sjogren's syndrome, and renault's phenomenon (? spelling). The flares seem to come and go with hormone fluctuations. I was really happy to find your group. :)


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RRAKAPUNK's Photo RRAKAPUNK Posts: 357
1/17/11 3:43 P

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Hi I'm Rita and I'm re-participating in Spark People and this team after a long hiatus.

It's been over 15 yrs since I was diagnosed with Ulcerlative colitis and 4 yrs since I was diagnosed with Scleroderma. I'm fortunate to be able to say that both are under control. Exercise has played a key role in keeping the scleroderma in check. I've also learned to be good at taking the few med's that I'm on since that keeps the colitis in check and no flares.

I've got a 2 yr old that keeps be busy and also inspires me to stay healthy since I want to be there for him.

Glad to be back

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CD3604344 Posts: 59,999
1/16/11 12:50 A

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Welcome EJ and Hello to all our faithful members!!

JHESI3's Photo JHESI3 Posts: 14
1/14/11 12:10 P

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Hi! My name is Jhesi. I am a 31 yr old vegan stay-at-home mom with two boys. I got sick in august of last year. In the process of trying to diagnose my involuntary movement disorder we discovered that I have Hashimotos. I just started blogging about my illness yesterday, would love for you guys to check it out and share how you handle doctors and prescriptions. Could really use some encouragement from someone who knows what I am going through.

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MOMMA48's Photo MOMMA48 Posts: 809,694
11/25/10 10:11 A

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emoticon Happy Thanksgiving!

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CD3604344 Posts: 59,999
11/24/10 7:25 P

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emoticon Happy Thanksgiving Eve emoticon

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11/23/10 7:14 A

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emoticon GOOD TO SEE YOU--YOU SO GOOD TODAY!!

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11/22/10 2:44 P

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emoticon Hurray it's almost Thanksgiving Day!!

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11/21/10 9:18 A

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emoticon SENDING YOU PRAYERS & WISHES FOR A BLESSED SUNDAY!!

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11/21/10 8:37 A

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MOMMA48's Photo MOMMA48 Posts: 809,694
11/20/10 8:51 A

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CD3604344 Posts: 59,999
11/20/10 7:59 A

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emoticon Have a super Saturday!!!

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11/19/10 10:17 A

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emoticon wish you a fabulous day!!

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11/18/10 5:49 P

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emoticon Happy to see you here!!

Edited by: CD3604344 at: 11/18/2010 (17:51)
MOMMA48's Photo MOMMA48 Posts: 809,694
11/18/10 9:17 A

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emoticon Have a great day everybody!

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CD3604344 Posts: 59,999
11/17/10 10:06 A

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emoticon You look so beautiful today!!! I really like your smile and those dancing eyes!!! You must be enjoying your life!!!

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11/17/10 7:36 A

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CD3604344 Posts: 59,999
11/16/10 11:35 A

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emoticon new members and emoticon to our good ole faithful members

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11/16/10 7:00 A

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CD3604344 Posts: 59,999
11/15/10 10:10 A

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emoticon anyone out there????

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11/15/10 7:45 A

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MOMMA48's Photo MOMMA48 Posts: 809,694
11/14/10 3:53 P

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CD3604344 Posts: 59,999
11/14/10 12:44 A

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emoticon This is a great day!!

MOMMA48's Photo MOMMA48 Posts: 809,694
11/13/10 9:51 A

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emoticon Hi everyone! Hope everyone has a super day!

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CD3604344 Posts: 59,999
11/13/10 9:25 A

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Wishing you an Awesome Saturday emoticon

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11/12/10 11:42 A

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emoticon and emoticon it's Friday! Have a great one everybody!

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11/12/10 11:42 A

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emoticon wishing YOU a super-awesome day!!

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11/11/10 7:10 A

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emoticon have a fantastic day!!

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11/10/10 9:36 A

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11/10/10 7:41 A

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CD3604344 Posts: 59,999
11/9/10 9:07 A

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emoticon so good to see your beautiful face today!!
like that smile!!!

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11/9/10 7:29 A

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emoticon Have a super day!

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SMBRYCE1's Photo SMBRYCE1 SparkPoints: (0)
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11/8/10 6:34 P

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hi all, and welcome if you're new :)

desertfoodlover.blogspot.com desertfoodlover.blogspot.com
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MOMMA48's Photo MOMMA48 Posts: 809,694
11/8/10 6:57 A

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CD3604344 Posts: 59,999
11/8/10 1:38 A

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emoticon stopping by to say HI

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11/7/10 9:25 A

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emoticon Hi!

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11/7/10 1:11 A

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emoticon emoticon

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emoticon wishing you a great day!!

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11/5/10 12:04 P

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emoticon emoticon emoticon have a great day!!

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11/5/10 7:45 A

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emoticon Have a great Friday!

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CD3604344 Posts: 59,999
11/4/10 9:39 A

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emoticon Hi & have a great day!!

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11/4/10 7:13 A

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11/4/10 1:28 A

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Welcome new members!

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11/3/10 9:12 A

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emoticon Have a great day!!

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11/2/10 8:23 A

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emoticon glad you're here!!

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11/1/10 7:29 A

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