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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,745
6/26/15 9:51 P

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I take Provigil...honestly, I'm not sure if that is what is giving me less fatigue or just coming out of a flair and having a cardiac stent placed so my heart is getting more oxygen...

I notice when I take tension headache which is a combination of Tylenol and caffeine I get a little boost...I really can't take too much caffeine because of the heart thing...

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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HLD_MILLER's Photo HLD_MILLER Posts: 69
6/25/15 4:11 P

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I have been taking the Tecfidera for 5 days now and so far I have had no side effects. I hope this keeps up and works well for me. I am just getting over my first major flare up and I do not want another one any time soon. My ring and pinky fingers are still a little numb and I get some tingling when I move in certain ways, but most of my symptoms have cleared up. Now if I could just do something about this fatigue. Does anyone take any of the medicines they offer for fatigue, and if so, how do they seem to work?

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6/22/15 9:22 A

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That is good news it's working for your husband. There are so many new MS meds out! My sister is taking 2 I've never heard of, too.

Before my next neuro appt. I better do some research!

Martha

ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,745
6/21/15 12:58 P

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I am very glad to hear about the Tecfidera...I take the copaxone with an auto injector so it is quite easy...three days a week...I have a sensitive stomach so I don't know if it would work for me...glad it is working for him...its wonderful to just take a pill...

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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HLD_MILLER's Photo HLD_MILLER Posts: 69
6/20/15 5:19 P

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Thanks for your response Kathryn. I am glad that it seems to be working well for your husband. I can only hope I have similar results. emoticon

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KATHYRN218's Photo KATHYRN218 Posts: 384
6/20/15 2:36 P

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My husband has been on tecfidera for just over 3 weeks now and has had NO side effects so far. He started with the taking an aspirin eating a meal then taking the pill - had no GI upset or flushing - after a few days on the full dose he went down to a baby asa full meal then pill and still no probs. He is now just making sure he eats a meal before taking it and it seems to be working well.

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HLD_MILLER's Photo HLD_MILLER Posts: 69
6/20/15 2:14 P

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I got my definitive diagnosis of MS yesterday and started taking Tecfidera today. Has anyone else taken this medication, and if so, how did it work for you? Were there any side effects I should be aware of? My neurologist said many people experience stomach problems while taking it and switch to something else within the first couple months. I am hoping it works out ok for me, I am a little worried about having to do medicine by injection. My fiance seems really creeped out by the idea and I don't want to make him feel uncomfortable.

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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,745
5/28/15 9:01 P

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Here I am! and doing good! I had an 80% blockage of the main artery that supplies the heart so this was a big deal and my blood pressure is so much better...

I get a few days to rest up and to get back in the swing of things...thank you everyone for thoughts and prayers!
L Ezz

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


 current weight: 191.4 
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MAMABUGAZ's Photo MAMABUGAZ SparkPoints: (22,581)
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5/28/15 5:24 P

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Hope your procedure went well. When you're back on the boards, please let us know how you're doing, Ezz.

~ Faith

~ Faith
Leader: Doing It With Multiple Sclerosis;
Plateau Busters!!!!;

2005-2009: 185 lbs. Some minor yo-yo-ing.
2010/Sept: 180 lbs; Waist 46"
2011/Jan 1: 160 lbs; May 22: 133 lbs for DD's wedding
2012/Jan 1: 119.8 lbs; May 1 117.2 lbs
2013/Jan 1 - 121.2 lbs
Monthly wt is in my SP intro

Reached 118 lbs for about 6 months;have gained.
Goal range: 107-118 lbs/W31.5. Under 123 OK


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5/27/15 9:36 A

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9 stents? Wow! I'm thinking about ya today, Esmerelda1220.

ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,745
5/26/15 8:15 P

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My husband was taking with my neighbor's son. There is a lady where he lives that has 9 stents! So that makes me feel a little better...

Should be OK...

Thanks for thoughts and prayers... emoticon

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


 current weight: 191.4 
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CD15535034 SparkPoints: (2,597)
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5/25/15 9:49 P

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Now, that's scary stuff! Obviously, our thoughts will be with you Wednesday.

It is comforting to know how far our technology has come. emoticon

Martha

ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,745
5/25/15 9:01 P

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I am very happy with my Copaxone...I had my first flair in 10 years and a couple of Medrol dose packs did the trick....

I do have a another problem...which I thought might be MS, but turns out to be cardiac in nature...let's us the word "appears" to be...so I am having a cardiac catheterization on Weds to rule out a blockage in the main artery to the heart. if it's there they put in a stent...if it's a false positive...I have no clue....but these symptoms keep on popping up with strenuous activity so I'm thinking a blockage...
I'll be off the boards for about a week....but I'm still doing well in the weight dept...
ezz

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


 current weight: 191.4 
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MAMABUGAZ's Photo MAMABUGAZ SparkPoints: (22,581)
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5/25/15 3:49 P

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MS patients are often offered a choice of various medications. Back in the day that my MS began, we had only the four injectible ABCR meds to choose from (Avonex, Betaseron, Copaxone, Rebif). I started on Betaseron, but am now on Copaxone.

Now, there are additional choices, such as some of the oral meds, and an IV med.

The side effects that I experienced with the injectible meds are minimal. Some site reactions, but I've found ways to avoid those. Some people, with A, B or R, also experience flu-like symptoms.

Hopefully, a med can be found that is effective, and with minimal side effects. For me, without Copaxone, my MS was very out-of-control with frequent and severe flares. The meds are more than worth it, for me.

~ Faith

~ Faith
Leader: Doing It With Multiple Sclerosis;
Plateau Busters!!!!;

2005-2009: 185 lbs. Some minor yo-yo-ing.
2010/Sept: 180 lbs; Waist 46"
2011/Jan 1: 160 lbs; May 22: 133 lbs for DD's wedding
2012/Jan 1: 119.8 lbs; May 1 117.2 lbs
2013/Jan 1 - 121.2 lbs
Monthly wt is in my SP intro

Reached 118 lbs for about 6 months;have gained.
Goal range: 107-118 lbs/W31.5. Under 123 OK


 current weight: 121.6 
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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,745
5/23/15 4:31 P

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Anytime anyone reports a "side effect" to the FDA it has to be included with the packaging... But you can look up the drug and see the percentage of that complaint...I wouldn't be afraid to start a DMG...if you do get side effects you discuss it with your doctor..I happen to take Copaxone. I have the typical bee sting reaction at times...no flu symptoms... Nothing like that and it has helped tremendously...discuss how you feel with your doctor...

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


 current weight: 191.4 
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CD15535034 SparkPoints: (2,597)
Fitness Minutes: (549)
Posts: 136
5/22/15 10:04 P

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It takes awhile to get the right dosage and type of meds, because everyone is different. That's why it's really important to find a Neurologist you both feel comfortable talking to.

I've been seen by 4 Neurologists (over 20+ years). Each doctor is different. I finally found a woman that was very interested in MS and she's worked out wonderful.

Teaching hospitals are usually the places to find clinical trials going on, I think.

YES, it can be difficult to work when you start a new med or change dosages. But, it can be managed!

KATHYRN218's Photo KATHYRN218 Posts: 384
5/22/15 8:21 P

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As my husband and I prepare for the first appointment with the Neuro after my husbands diagnosis of MS _ i have been looking at the medications covered by our insurance - and am finding all the complaints and side effects sounds as disabling as the MS. Are they really that bad? Would he be able to work while taking medication?

The lack of knowledge remains so frightening. So far his Dx is RRMS.

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