Group photo
Author:
TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 4,453
4/21/17 11:08 P

My SparkPage
Send Private Message
Reply
Hi Nancy. So sorry about your diagnosis. It's been a few months since you've posted this, so I don't know if you're still around or not. I'll answer anyway...

I'm six months out from finishing surgery, radiation and chemo.

Yes, hair loss may be permanent but it's extremely rare. No, I have not experienced this. My hair came back super thick and curly, when it was straight before. I love it! But losing my hair all over, not only my head, was one of the most traumatic experiences in my life. I became disconnected. I went on medications for several months and I needed a LOT of support.

Re the weight gain question... I gained 19 pounds in 6 months of treatment. But I've managed to lose that now and another few pounds. I could have gained a whole lot more during treatment because I'm an emotional eater. But I had a lot of emotional support during treatment (including here), so I wasn't overeating as much as I could have if I were unsupported. So to answer your question as to how to prevent weight gain, know your eating triggers/demons, and deal with them. Some will say don't worry about your weight during treatment, but if you're anything like me, that's a death sentence in and of itself. LOL!

I hope you're managing well, and that you have supports around you.

All my best,
Cristina xoxo

HOTROD53's Photo HOTROD53 SparkPoints: (45,297)
Fitness Minutes: (27,408)
Posts: 404
3/4/17 2:26 P

My SparkPage
Reply
How are you doing Nancy? I am a 15 year survivor!! I know the treatments are not easy but looks like you have gotten so great advise for the team.

Making changes one day at a time!


 Pounds lost: 62.4 
0
29
58
87
116
SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL Posts: 9,709
3/4/17 12:59 P

My SparkPage
Send Private Message
Reply
Hi Nancy,
Welcome and I'm sorry to hear about your recent diagnosis. I had triple negative bc that also spread to my lymph nodes. I'm 3.5 years out now. Do you know which form of BC you have? Hormone positive? Her2+? Triple negative? It will make a difference in your treatment.

Wishing you the best.

Kay from Tennessee



 October Minutes: 0
0
62.5
125
187.5
250
MATER88's Photo MATER88 SparkPoints: (198,957)
Fitness Minutes: (131,329)
Posts: 2,393
2/28/17 7:10 P

My SparkPage
Send Private Message
Reply
Good luck to you, Nancy. We will all be here to support you.

 Pounds lost: 20.0 
0
5
10
15
20
MAURIZIA's Photo MAURIZIA Posts: 13,793
12/22/16 3:26 A

My SparkPage
Send Private Message
Reply
Hi, Nancy. I am not a BC survivor. I do work with breast cancer survivors & patients.

Be sure to see a dietician. Most cancer centers have one trained in nutrition for people with cancer. If one isn't offered, ask. S/he can help you with a healthy diet.

Ask about cold cap therapy to diminish hair loss. Not everyone is a candidate nor is it available at all treatment centers.

Very, very rarely does hair not return & that is in cases of long term chemotherapy that is strong and extends across years.

If you haven't already bought a notebook, I would suggest you do so. Write your questions down between appointments and be sure to ask the docs or nurses. When they give you info or suggestions, write it down or bring someone with you who can take notes...or ask the nurses to write it in your notebook.

Ask the doctor if you can take a restorative or gentle yoga class. They may offer a class or know of one. Our Foundation offers them twice a week for free (in RI).

We also suggest you use plastic utensils to eat so you don't experience metallic tastes, particularly with some chemo and our survivors tell women receiving chemo to not eat your favorite foods during chemo. It can change your taste buds & your faves may not taste the same again.

Please Spark mail me if I can help.

Mauri, EASTERN TIME ZONE, NEW ENGLAND

"Start by doing what's necessary; then do what's possible; and suddenly you are doing the impossible." - St. Francis of Assisi

“Never be in a hurry; do everything quietly and in a calm spirit. Do not lose your inner peace for anything whatsoever, even if your whole world seems upset.” —Saint Francis de Sales


 Pounds lost: 7.5 
0
6.25
12.5
18.75
25
CARO488's Photo CARO488 Posts: 1,001
12/21/16 2:43 P

My SparkPage
Send Private Message
Reply
I also was diagnosed in Oct - nine years ago. I had a mastectomy, chemo, radiation, more chemo, and reconstruction. I lost my hair, and my big-toe toenails. A friend lost her fingernails, but I think that is pretty rare. My hair is back, the same color, or even darker, but it is thinner. But I am also older now, so maybe that is part of the reason. I did gain weight, 30 pounds in a year, I think because of the steroids. I am overweight now because I inactive. Well, no - I've always been inactive... emoticon

My nurse told me that I would know how chemo goes after the first time, but after the second, I'd be an expert. They gave me four different anti-nausea pills, and I needed them.But I had more problems from the Benadryl. When it became clear that I wasn't going to have an allergic reaction, they cut the Benadryl in half with each infusion. Of course, everyone reacts differently...

I went and got a wig before I ever started to lose my hair - it was one of the things that comforted me.

I hope you have some support people, and we will also keep you in our prayers. If you have other questions, let us know.

Dance like no one is looking.

Love like you've never been hurt.

Live like you'll never die.


 Pounds lost: 4.0 
0
15.25
30.5
45.75
61
LGIOWA's Photo LGIOWA SparkPoints: (138,498)
Fitness Minutes: (146,968)
Posts: 162
12/21/16 8:24 A

Send Private Message
Reply
Nancy, I am sorry to hear of your diagnosis. I did not need chemo, so I can't help you with your questions about that. What I do wish for you is that you are strengthened in faith as much as I was on my cancer journey! It can have it's perks, like seeing a nutritionist. Hang in there and you will be in my prayers.

 current weight: -1.0  under
5
2.5
0
-2.5
-5
SEAGLASS1215's Photo SEAGLASS1215 Posts: 629
12/21/16 5:36 A

My SparkPage
Send Private Message
Reply
Hi All,

I just found out at the end of October that I had a small cancer in my duct - had a lumpectomy and sentinel node biopsy, they found it had spread to one of the three lymph nodes they removed. It is Stage 1, grade 2. I start chemo on January 5th. Still wrapping my head around all this, cannot believe a simple mammogram turned my life around!

I am prepared for hair loss - not wanting it, but I know it is expected. My fear is that it might be permanent....has anyone experienced this?

Also - I know there are other side effects but one of my biggest worries is weight gain - I am already needing to lose 100 lbs to be considered at my deal weight, I cannot afford to gain even more. Any suggestions for preventing this?

I know everyone has a different experience in terms of side effects, just hoping to hear how others have coped.

Wishing you all the best of health and thanks in advance for any support and advice you might have.

Nancy

"A mistake made more than once is a decision."
"Whatever gets rewarded, gets repeated."


 October SparkPoints: 970
0
375
750
1125
1500
Page: 1 of (1)  

Report Innappropriate Post

Other Breast Cancer Survivors and Those Who Care Introduce Yourself to Team Forum Posts

Topics:
Last Post:
3/26/2018 12:20:56 AM



Thread URL: https://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x17755x65838971

Review our Community Guidelines