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TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 3,545
7/24/15 12:00 P

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Thanks Shari! emoticon

Kay, I know what you mean about needing support if things go wrong. I do have friends and family in Spain and Canada for support, and I belong to a breast cancer association here in Spain. But I have limited Spanish, so the support here in Spain is limited by that. So I'm thinking having SP on board now should be enough, even if things go very wrong. But I reserve the right to change my mind, like you did. emoticon

Edited by: TIGERSEYEHEART at: 7/24/2015 (12:01)
MOM2ACAT's Photo MOM2ACAT SparkPoints: (190,535)
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7/22/15 3:50 P

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Welcome to the team! emoticon


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL Posts: 9,709
7/22/15 2:24 P

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It certainly makes sense! I just wanted you to be aware of the chemo thread because I found it so helpful when I was having side effects from my chemo. I actually didn't join the thread for the month that I started until I was almost half way through with chemo because I didn't have many problems with the first half of my chemo.

Kay from Tennessee



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TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 3,545
7/22/15 12:09 P

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Thank you for that suggestion, Kay. Yes, most of the sites I posted have forums. I considered joining one, but decided against it because I'm already on the computer a lot for staying in touch with my Canadian friends on Skype and email. I also belong to an online community of expats in Spain, which is more computer time. Plus there's phoning and texting with friends and family. So I don't want to do much more computer time. Doing my nutrition and exercise tracking I feel is the most important right now, and that's also a lot of computer time. That's one reason to like this SP group - it's a small group. The other reason that I decided on this forum is that I want my focus during this journey to be healthy living - not cancer - because cancer is already taking up so much of my time and energy. So the focus of SP is healthy living, with a small group devoted to cancer. To me, that's the balance that I want to have. Does that make sense?

SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL Posts: 9,709
7/22/15 8:03 A

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Christina, have you joined the thread on breastcancer.org for people starting chemo the same month as you? It was one of the most helpful things I have done for myself in terms of support during treatment. The group I joined still stays in daily contact almost two years later. We moved over to a secret Facebook group after chemo ended. We even get together in person now once a year.

Kay from Tennessee



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TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 3,545
7/21/15 11:33 A

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Hi Becky Anne. emoticon

Thank you for your welcome. This was my first morning waking up having you guys on board, and I feel so much better already!

In case anyone wants some excellent websites for cancer information, here are the ones I'm using:

www.cancer.org

www.breastcancer.org

www.cancer.net

www.chemocare.com

I hope those sites can help others. They're all very easy to read and extremely informative.

I just skim through information to get a general idea of what to do. I could spend 24/7/365 reading, but I know the dangers of this from the past in dealing with other illnesses. So I keep my research quick and simple.

Edited by: TIGERSEYEHEART at: 7/21/2015 (11:48)
BECKYANNE1's Photo BECKYANNE1 SparkPoints: (256,188)
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7/21/15 6:49 A

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Welcome to the team Christina! I'm sorry you have to belong to this team, but it is such a wonderful team for support! emoticon

Becky


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TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 3,545
7/20/15 6:41 P

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Carolyn, I really like your name. I had a close friend as a kid named Carolyn, so that's always been a special name to me. Thank you for giving me permission to still care about my weight. You say it so well. Yes, I still am human, even though I have cancer. So I still want the same things as before. And like before, I don't want to die and I don't want to suffer.

Kay, thank you for your encouraging story. I too thought I was a goner with stage IV. I had four tumours, but only two turned out to be cancer - one in each breast. I'll probably find out the results of the bone scan next Wednesday, so not too long to wait. Congratulations on getting through all that treatment, and thank you for being here to pave the way for others like me.

Sedonacat, thank you and right back atcha emoticon

SEDONACAT's Photo SEDONACAT SparkPoints: (147,749)
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7/20/15 5:27 P

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Christina, welcome but I am sorry you have to be in this grp. This is very good for support. We all understand your fears and are here for you. emoticon

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SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL Posts: 9,709
7/20/15 5:12 P

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Hi Christina,
Welcome to the team. I'm sorry that you have a need to be here. I was a long-time member of Spark before getting breast cancer almost two years ago. I had triple negative stage 2b breast cancer and did six months of chemo first (AC and taxol). I had a lumpectomy and axillary lymph node dissection next and then daily radiation for almost 6 weeks. I finished treatment a little over a year ago.

I lost 35 pounds while on chemo and have kept it off ever since. It seems like about half the people gain weight and half of them loose weight while on chemo. I did change my eating habits once I got cancer and pretty much stopped eating processed foods. I think that is why I was one of the "losers" during chemo and beyond.

I well remember how scared I was while I was going through all the tests before treatment started. I almost completely freaked out the day before a CT scan because I was convinced I was already stage IV. I hope your bone scan turns out okay.

We have a daily chat thread that I hope you decide to participate in. It's a good place for on-going, day-to-day support.

Wishing you the best with your treatment.

Kay from Tennessee



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CARO488's Photo CARO488 Posts: 981
7/20/15 4:05 P

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There's a Facebook meme going around that says people with cancer want only one thing- a cure. But I am here to tell you that people with cancer still have all the same wants they had before, including healthier, more shapely bodies for themselves and for their loved ones.
It's funny that you mentioned Caro in Spanish. I am definitely not the expensive type. :)
In my case it's just short for Carolyn.

Dance like no one is looking.

Love like you've never been hurt.

Live like you'll never die.


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TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 3,545
7/20/15 3:32 P

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Hi Caro. Thank you for the warm welcome. Yes, this is indeed a great team from what I've seen in the posts so far. Did you know that Caro means expensive in Spanish? emoticon

I see from your SparkPage that you gained 30 lb in a year from chemo. I've heard about weight gain from a lot of people and that's just one of the many, many side effects I'm worried about. Hopefully by hunkering down now I'll be okay. Or at least I won't gain. Or at least I will be eating healthy. Or...or.... Geez, I should just count my lucky stars that they may be able to treat me. It seems so trite now in the midst of this scare to be thinking about weight. Maybe it's because I'm new to this that I'm still worried about my weight, and with time I will think less of it? But is that a good thing? emoticon

CARO488's Photo CARO488 Posts: 981
7/20/15 2:55 P

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Welcome, Christina. This is a great group! I like your attitude! Best wishes for your journey to health.
Caro

Dance like no one is looking.

Love like you've never been hurt.

Live like you'll never die.


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TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 3,545
7/20/15 2:37 P

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Hi there. I just joined SparkPeople yesterday. I used to belong to SparkPeople about 10 years ago when I weighed 245 lb and this site was most helpful in reaching my goal weight. At this point I need to lose about 18 lb. But most importantly I need to start eating better and exercising, as I'm currently undergoing treatment for bilateral breast cancer. I had my operation in June and had my first round of chemo on July 8. I live in Spain and have limited Spanish, so I'm looking to give and receive support in healthy living, and especially when battling breast cancer.

I have one more test to check for mets - a gamma bone scan. I'm scared to death about treatment for the side effects. I have a year of chemo ahead of me. Radiotherapy is supposed to start in September, but I haven't met that doc yet to know for sure. There are so many unknowns ahead of me and that's the scariest part - the unknowns. So that's another reason to join this team - to be in the know. But the biggest reason to join is the heart that is here. I look forward to sharing our journeys together. Bless you all for being there. I hope to be of help to others too. emoticon

Cristina.

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