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CARPROTH's Photo CARPROTH Posts: 19,335
7/24/14 10:33 A

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Hi Patricia,

I remember when you first contacted us and am so sorry your sister's cancer has metastasized. Even at that stage, treatments can drastically slow the growth/spread of the tumors. I no longer view cancer as a disease that can be cured, but as a condition to be managed - kind of like diabetes or aids - and the goal is to manage it long enough to eventually find a cure. Do you live in the same community as your sister and does she belong to any support networks there? Groups like Bosom Buddies and Susan G Komen have meetings of survivors and their friends/family that offer information, support, and a great place to vent. Being with other women who have "been there - done that" can help in coping with the physical and emotional toll cancer takes. Going to the meetings together could help strengthen the bond between you (it sounds pretty strong to begin with) or even if you met with groups separately in different areas, you'd still be on the same page when talking about her disease.

Stay strong,
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Carol

Carol


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Nothing changes when nothing changes.



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KIN59VARA's Photo KIN59VARA SparkPoints: (238,762)
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7/24/14 7:07 A

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I joined this team when a member of the team responded to a post about my sister. She has had breast cancer for years and has had a single mastectomy. The cancer has now spread and she is going through chemo and radiation. I want to support her and I felt that this team was the place where I could hear from people who have been there. She is tired and discouraged and the news is not good.

Patricia

Life isn't about waiting for the storm to pass, it's about learning to dance in the rain!!
- Vivian Greene

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BC3HAS's Photo BC3HAS SparkPoints: (31,897)
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6/8/14 11:00 P

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Thanks Carol. I'm looking forward to speaking with others going through or having gone through this journey.

Cyndi


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CARPROTH's Photo CARPROTH Posts: 19,335
6/7/14 11:57 P

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Hi Cyndi - you've come to the right place to vent and get support while going through breast cancer treatment. We're here to answer questions, give a virtual hug, and pass along tips and strategies that worked for us. Keep us posted on your progress -

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Carol

Carol


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BC3HAS's Photo BC3HAS SparkPoints: (31,897)
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6/7/14 1:44 P

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Hi! My name is Cyndi. I was diagnosed with invasive lobular breast cancer in my right breast on February 3rd. I began chemotherapy on February 26th. I had 4 rounds of adriamycin and cytoxan. I had a double mastectomy with reconstruction on May 23rd. The tumor in my right breast shrunk and there was cancer in two of my lymph nodes. This means more chemo and radiation for me. I see my oncologist tomorrow.

I decided to refocus my commitment to eating better and exercising. I did this after I got on the scale and saw a 5 pound weight gain. I believe that these changes will help me beat this cancer. I still have a long road ahead of me but I'm glad I found this group.

Cyndi


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FRAN641's Photo FRAN641 Posts: 1,274
5/3/14 8:40 P

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Thanks for the welcome Shari. I just talked to my buddy and she is doing pretty good after her first round of chemo. Just a tad queazy and has meds to handle that.
Take care.
Fran


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MOM2ACAT's Photo MOM2ACAT SparkPoints: (0)
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5/3/14 12:34 P

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Welcome to the team Fran!

I'm so sorry that your friend is having to go through this, but she is very blessed to have you for a friend, and it's great that her kids can talk to you too.


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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FRAN641's Photo FRAN641 Posts: 1,274
5/3/14 3:10 A

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I am new to this team. Not new to cancer. The reason I wanted to join this group is because another friend was diagnosed with breast cancer (stage 2 negative 3n) last week and lost a friend to this about 2 yrs ago and hate that it has struck again. She began chemo today and has a long road ahead. We live in different states and she is blessed with a close knit family that are caring for her. I have been in remission from my second bout of Lymphoma and in remission 2 yrs. I am supporting my friend with calls and letters. I am very close to her kids so we talk often too. My heart just aches for her and it takes me back to my own battle with chemo and relapse with more chemo and radiation. I feel like I am shell shocked (military term).


Fran
A sense of humor keeps things in perspective for me.


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LIVINMYDREAMS's Photo LIVINMYDREAMS Posts: 3,529
4/7/14 5:44 P

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Carol, thanks for bringing all of that to my attention. My main concern is this UTI and infection getting into my joints. I want to have nothing happen to my new knees. I love my new knees. I have a new life because of them! My husband was the main reason that I was even taking the med. He sort of insisted that I do whatever the MD wanted me to. He was afraid for me. But now he doesn't want to see me with infections, etc.

Hugs
Faith

Faith
RTKR - 6/23/11 - 305
Sept 2011 - 315
LTKR - 7/26/12 - 257
Jan 1st 2013 - 241
Jan 1st 2014- 231
Jan 1st 2015 - goal Onederland !!!**************************** One can never consent to creep when one feels an impulse to soar!


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CARPROTH's Photo CARPROTH Posts: 19,335
4/7/14 5:29 P

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Hi Faith,

I'm glad you reached a verdict about staying on/leaving the meds - it's your decision for your body and the right one for you. I also have two titanium knee replacements and was concerned about the surrounding bone deteriorating - now feel better about bone stability. Your last sentence had me smiling (ruefully): this is a team that no one WANTS to join - kinda like being family, if you've got it you're automatically a member.

Hope your continuing journey through wellness goes smoothly.

Carol

Carol


Shoot for the moon. Even if you miss you will land amongst the stars.


Nothing changes when nothing changes.



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LIVINMYDREAMS's Photo LIVINMYDREAMS Posts: 3,529
4/7/14 12:31 P

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Thanks everyone for your encouragement. I have gone off the medicine that my oncologist prescibed for me. Having a zero percentage recurrence rate on my Onc type dx test leaves me fairly confident that I will be ok and like was mentioned earlier, I really don't want my body so messed up in the meantime for what will probably never happen. I cannot afford to get infections that have a greater risk to my knee implants. Thanks for letting me vent on here and blessings to all of you who are going through really difficult situations right now. Thanks for letting me join this team.

Faith

Faith
RTKR - 6/23/11 - 305
Sept 2011 - 315
LTKR - 7/26/12 - 257
Jan 1st 2013 - 241
Jan 1st 2014- 231
Jan 1st 2015 - goal Onederland !!!**************************** One can never consent to creep when one feels an impulse to soar!


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MOM2ACAT's Photo MOM2ACAT SparkPoints: (0)
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4/6/14 11:44 A

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Welcome to the team Faith!
I am in treatment for stage IV breast cancer. I've been dealing with hot flashes for quite a long time. I don't know if they will ever go away completely, but they are not as severe as they use to be.

And please don't feel you are whining! If you need to vent, that is what we are here for. A cancer diagnosis is really life changing, no matter what the outcome. emoticon

Edited by: MOM2ACAT at: 4/8/2014 (18:27)

My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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BECKYANNE1's Photo BECKYANNE1 SparkPoints: (264,750)
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4/5/14 7:55 A

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I deal with the hot flashes and night sweats also, but mine is a cross between the Tamoxifin and the fact I had my ovaries removed the last surgery I had which thru me into instant menopause. After having the ovaries removed, I started on Arimidex, but I found myself aching alot and after everything I had been thru I didn't want to live with pain for 5 years so I went back on the Tamoxifen. I don't like the side affects and the chances of getting Uterine cancer, but I will stick with it. The night sweats got better over the winter, but we had a couple of nicer days last week and again I woke up during the night sweating. I hope this isn't going to be a repeat of last summer.

Becky


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LIVINMYDREAMS's Photo LIVINMYDREAMS Posts: 3,529
4/1/14 12:42 A

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Thanks so much Carol. My doctor asked me to give this one a try and if this Exemestane gave me significantly uncomfortable side effects he agrees that my risk of recurrence is not worth the discomfort. I had taken Anastrazole at first feeling really lousy the whole time. I would have not taken any because I really believe cancer will not come back. But my hubby was so freaked out with me having cancer that he wants me to do everything the doc wants me to do, although he does see the problems I have been having.
Another concern I have is that the pharmacist said I need to be careful because this will cause my immune system to be low. I have two total knee replacements, feel like I just got my life back (I will turn 60 next week) and there is a risk of infections going into implants. That would be horrible! I am fighting a UTI right now.

Thanks for giving me a place to share.

Faith
RTKR - 6/23/11 - 305
Sept 2011 - 315
LTKR - 7/26/12 - 257
Jan 1st 2013 - 241
Jan 1st 2014- 231
Jan 1st 2015 - goal Onederland !!!**************************** One can never consent to creep when one feels an impulse to soar!


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CARPROTH's Photo CARPROTH Posts: 19,335
3/31/14 9:13 P

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Hi Faith (what a beautifully appropriate name!),

I just had my 4-year checkup - still clean and now graduate to only 1 mam/year instead of the two since diagnosis. I had stage 1 class 1 hormone positive 2.5 cm tumor removed from my right breast. I also had a low onco dx score (mine was 6, not as cool as your 0) and had brachy (internal) radiation but no chemo. I was supposed to embark on a 5 year regimen of aromatase inhibitors, but had the complete grab bag of side effects with all 3 - bruising easily, muscle aches, bone pain (not just in the joint), hot flashes and night sweats that had me going through 3 pillowcases/night, a psoriasis glacier that began taking over my entire scalp, blood pressure that went from 120 over 78 to 154 over 92 as a 'normal' reading, and bones that were rapidly turning to swiss cheese. I had a baseline bone density at the start of treatment that showed the bones of a normal 38 year old woman(not bad for my 63 years). After two years of going through all possible drug options (even tried tamoxifen with no better results), I had another bone density scan which showed the bones of a normal 70 year old woman. I made the decision to stop taking them altogether - they are supposed to reduce the odds of a recurring tumor, but offer absolutely no guarantee. My odds were pretty good to begin with - these meds were ruining my health and I decided that if my cancer were to come back, I at least wanted to have a healthy body to put up a good fight. I did discuss it with my oncologist and he agreed with my reasoning and backed me totally. It's now been almost 2 years off meds and I just had my latest bone scan - density of a 52 year old normal woman. I'm also sleeping better (and drier), bones ache only in the joints, psoriasis is gone, and I'm back periodically raising weights during strength workouts at the gym.

It was a matter of asking myself which of 2 options I would prefer: 1) continue taking the pills and have my health and wellness deteriorate further , then if I did get cancer again not being able to combat it effectively; or 2) stop the meds and risk a slightly greater chance of the cancer coming back, but knowing I was in the best possible shape I could be to deal with it if that were to happen. You're the only one to weigh the pros and cons of continuing or stopping meds - doctors are there to advise to the best of their knowledge, but you know your body best and ultimately you are the one who will be living with your decision.l

Take care, sister,

Carol



Carol


Shoot for the moon. Even if you miss you will land amongst the stars.


Nothing changes when nothing changes.



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NILLAPEPSI's Photo NILLAPEPSI SparkPoints: (127,285)
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3/31/14 7:26 P

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emoticon to the team. You've come to the right place. emoticon emoticon emoticon

Keep smiling!!
Nillapepsi (Sheila) :-)

There is no passion to be found playing small - in settling for a life that is less than the one you are capable of living. ~Nelson Mandela~


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LIVINMYDREAMS's Photo LIVINMYDREAMS Posts: 3,529
3/31/14 5:29 P

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Hi everyone. I am new to this team but it has been over a year since my diagnosis of breast cancer. I consider myself very fortunate all in all. I had a mammogram in which a very small lump was found. I ended up haveing 3 surgeries for it. At first it was said to be infiltrating breast cancer and then after prayer and other surgeries it was said to be DCIS. My OctoDX test or whatever it was called had amazing results. Out of 0-100 % chance of breast cancer re-currence my number was 0. Zero. Amazing. All of the doctors in the tumor board were amazed and had never heard of anyone haveing that result. Yes, that was really great. I still had radiation treatments. But no need for Chemo. Thanks God. But they still want me to take pills to prevent breast cancer recurrenc. I don't get it. If my score was so low. The first pill I was on made me feel horrible. This one now is homonal. I have hot flashes, PMS type symtoms, and increased appetite and weight gain. Before I was diagnosed with breast cancer, I had lost 85 lbs,. Now I cannot seem to get amymore weight off. That is why I joined this group to see how others are doing losing weight while going through this journey. I know that having my life is huge compared to losing weight but I want to keep losing weight. I am still obese and need to for my health. I don't want ,y life to be all about cancer.

Please forgive me if I am whining while others may be going through much more difficult trials.

Faith

Faith
RTKR - 6/23/11 - 305
Sept 2011 - 315
LTKR - 7/26/12 - 257
Jan 1st 2013 - 241
Jan 1st 2014- 231
Jan 1st 2015 - goal Onederland !!!**************************** One can never consent to creep when one feels an impulse to soar!


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