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BECCABOO127's Photo BECCABOO127 Posts: 17,550
12/1/18 10:28 P

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I can relate. Fatigue dictates what I can do too. Glad u r feeling more positive!

If the mind mends, the body will follow.

Gluten free is working for me!

"If we did all the things we are capable of, we would literally astound ourselves." Thomas Edison


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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,040
11/7/18 1:53 A

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So glad you joined our team. Statistically, the UK has a huge number of people with CFS/ME. I read one report where they suspected it might be a micro-virus similar to Lyme's which makes it almost impossible to detect. I have a CFS diagnosis although I was bit by a tick . After a few years of crushing fatigue and severe vertigo that would hit me like a wall, one minute felt fine, the next I could barely make it to bed, I had some improvement changing the diet and then a huge jump in health when the dog bit me and I got cellulitis and spent three days in the hospital with IV antibiotics which happens to be the treatment for micro-organisms too. I pray you continue to healing. Pacing is still the biggest blessing in my life for helping me to be a happy and productive person.
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Cathy
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K-BOBETTY's Photo K-BOBETTY Posts: 336
11/3/18 6:05 A

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Hi All,

I've actually been a member of SP for nearly 10 years, but about 4 years ago had glandular fever and never got better.

After months of testing I was given a diagnosis of CFS/ME, which I'm sure you all find as pointless as I have. Other than a name it gives you nothing, there is no medical support.

I gained a lot of weight while on antidepressants for the CFS but this year seem to be managing to get it under control. Earlier in the year I was managing some Pilates and now I'm pretty much just walking but it seems to be going well with tracking what I eat.

So feeling more positive, even if the exhaustion is still dictating what I can do.

:)

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