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CAREY.LISK's Photo CAREY.LISK SparkPoints: (0)
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8/24/10 4:08 P

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Hi and I feel you on this my twin sis and I are type 1 and we share an apt together and my two yr old neice was just dx'ed with type 1. we did get her on the pump it took a couple of months though and now she is doing well. she is so active and very busy in er own world and the diabetes does not slow her down. we have some many things we had to change measuring food for he and she can kind of let us know when she is low she gets this blank look on her face and just sits there with no energy which is so not her. we are still learning everything ourselfs as it is one thing for us to care for our own diabetes but to care for hers was a whole new world. I think the pump was the best decision we made as it i less sticks for her and more freedom with naps and meals and play which is all we wanted for her. she is on the CGM to which helps alot we are all three on the same pump and cgm so way easier on us too

"you CAN do ALL things through Christ which STRENGTHENS you"
phil 4:13


I don't believe in failure.

( this includes getting healthy!!)


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SUPERDUPER26's Photo SUPERDUPER26 Posts: 1,553
8/20/10 3:09 A

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Hi Lil,
Cool that the JDRF would set you up with another person! In case you aren't already bogged down with resources, check the ADA office your area to see if they have a FamilyLink group (formerly called Family Resource Network). There's one in my city and its pretty active, I know a lot of parents keep dragging their kids to the monthly meetings because THEY like getting together to discuss all the ins and outs of having kids with diabetes. Since I'm a "kid", I usually go off and supervise the kid stuff so I don't actually know the details of what goes on but it seems to me we should just host parent meetings half the time : )
Welcome to the team, I hope we can offer you some support and answer some questions, I know there's a handful of parents on here who have been in your shoes....
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LILSVENSKA's Photo LILSVENSKA Posts: 64
8/18/10 8:07 A

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Yes, I'm a stay at home mother which helps a lot. She goes back to pre-school in a few weeks which is scary b/c I have to give up some control. The school provides lunch and the nurse will be administering the insulin.

Thanks for the website. I'm always looking for new information. I have been in contact with JDRF (Juvenile Diabetic Research Foundation) and they set me up with another mother with a diabetic child.



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HMB621's Photo HMB621 SparkPoints: (4,136)
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8/17/10 10:27 P

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I am a type 1 myself, but I have a friend whose son was diagnosed at age 3. Fortunately, she was able to stop working and devote her time to caring for her 3 kids- especially with such a young diabetic. Anyway, she has gotten involved in the DRI- Diabetic Research Institute- and does a lot of fundraising for them as well as reaching out to other moms with young children with diabetes. You really should check out their site- I believe most of it (if not all) is devoted to parents of diabetic children.

I know it has to be so hard watching your child go through these things. I remember my dad telling me he wished he could take the disease himself when I was young. But I've had T1 22 years now, have no complications, and 2 beautiful children, so stay strong! I wish you the best.

~Heather

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LILSVENSKA's Photo LILSVENSKA Posts: 64
8/17/10 8:29 P

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No, she's not on a pump yet. The doctor's say that she isn't taking enough insulin yet (due to the honeymoon phase). In the last few days she has increased the need of more insulin. She's still on diluted insulin though and the pump works with regular insulin. Yes, the pump can distribute small amounts of insulin at a time but she's taking less than the pump can give out.

Thanks for your comment.

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TOOTIEFRUITIE1's Photo TOOTIEFRUITIE1 Posts: 87
8/17/10 7:08 P

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I am so right there with you. My son was diagnosed just after he turned four. I too had two more young children at home. It was overwhelming to me, to adjust learn everything I needed to know. I was concerned about not catching his low blood sugars. But you will learn the signs. I have had my son stumbling down the hallway at 23.

Words of advice: Keep a glucagon kit handy.
Keep a juice box handy.
Keep snacks handy.
If you plan to be gone from home for
more than two hours, take a small
cooler with your insulin and
needles in case of a high b/g.

And most of all...We are here for you. We will help you. This is a great support system. Use it. Complain to us. We have been there, we can listen or offer suggestions as to how to get through it. Hang in there.
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2NEEDLENOSES's Photo 2NEEDLENOSES SparkPoints: (16,301)
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8/17/10 6:37 P

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Welcome!

Is your 3-yr-old on an insulin pump? It must be hard to monitor a child who probably doesn't recognize the typical signs of hypoglycemia.

You've come to a good place!

Wilma

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LILSVENSKA's Photo LILSVENSKA Posts: 64
8/17/10 6:15 P

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Hello, I've been a member of Spark for about a year now and it has been wonderful. Back in March 2010 my 3 year old was diagnosed with type 1 diabetes. She was in the ICU for 3 days and in the hospital for an extra 2 days. It has been a dificult struggle to learn and take care of her while taking care of my other 2 children. I'm posting here to see if this can be an extra support for me and maybe I can help other type 1 diabetics with what I've learned.

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