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10/5/14 10:42 P

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I was diagnosed with Grave's disease in my mid 20's when my oldest child was just a little over a year. I like you went hypothyroid before it turned Hyper. We had just begun to start trying for baby #2 and doing the Radioactive Iodine was the quickest/safest way to getting us back on track to trying for another baby. I have to say the hardest part was not being able to hold my son for 10 days after taking the radiation pill. After that I had to wait 6 months before we could actually start to try for another baby. For other reasons including the thyroid roller coaster hormone ride my body took it ultimately took me 4 years before baby #2 AND #3 arrived...yup twins through IVF.
I was started on 88mcg of levothyroxine after receiving the radiation and stayed on that dose for over 10 yrs. It was bumped to 100mcg a couple years ago and now I'm on 125mcg. All in all infertility aside I would do it that way again in a heartbeat. I was advised against surgery due to the risk of injuring the parathyroid gland that controls calcium. HTH!

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10/4/14 9:15 P

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I just completed an uptake and scan series and was diagnosed yesterday with Graves disease. Everything started for me in February this year when I went to my GP w/ complaints of severe fatigue, lack of energy and some weight gain even though I was eating less then normal. He ordered blood work to check my thyroid (big family history of hypo disorders on mothers side) and my vitamin D. Thyroid came back as Hypo and vitamin D was non-existant. I don't eat dairy at all, am a red head and light complected so I'm not outside much, plus I'm not a pill I wasn't surprised I was deficient in vitamin D. So he started me on 50,000 IU of vitamin D weekly and 25mcg of Synthroid daily. Over the next 6 months my dose was increased 2 times for the synthroid because I wasn't feeling any better and labs kept getting worse. When it came time to refill my next rx my nurse asked how I was feeling (rx was 100mcg at this piont), told her no changes yet so she talked to my GP and said I should come back for testing again. At this point my lab work showed that I had changed from Hypo to Hyper and levels were not good. I was then referred to Endo. After more blood work then another 6 weeks to deplete the synthroid from my system and yet more blood work, I was scheduled for the 3 part uptake and scan to evaluate further. I just had this done yesterday and endo office called with the Graves diagnosis. I have scoured the internet for side effects to the anti-thyroid meds and pro's and con's to the RAI vs surgery. I would like to hear some feedback on others experiences....maybe it will help me make up my mind. Either way it looks like I better become a pill taker. :((

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