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BRYEFIELD's Photo BRYEFIELD Posts: 23
8/3/13 5:15 P

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I had the orders for pulmonary rehab back in 08 when I was diagnosed at age 46. The problem where I live is that it's a 3 month program run during the day and I work a full time job. I called around trying to find a place to go but there's no 'after hours' programs and I actually had one facility tell me that they didn't want the elderly to have to drive at night. ugh - so I found some great sites, printed out the information and did a little with it, not nearly as intensive as therapy.

Live, Love, Laugh


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LUVSTOPAINT's Photo LUVSTOPAINT SparkPoints: (3,069)
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4/25/13 8:31 P

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I was happy to find this support group too. I hope we can help you. I often have problems with bronchitis and pneumonia. I also have to take prednisone along with the antibiotics. I had phenumonia from January through March and I didn't get better until I had four rounds of antibiotics and prednisone. I hope it is away to stay.

I have a nebulizer as well as inhalers. It seems to help reduce the phlegm. I also use oxygen at night because my oxygen level drops when I sleep.

Hope you are better soon.

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LUVSTOPAINT's Photo LUVSTOPAINT SparkPoints: (3,069)
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4/25/13 8:21 P

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You seem to be having some of the same problems I have, although I never smoked, I was exposed to second hand smoke as a child. I have asthma too. I never had it as a child. It developed about 3 years ago. My pulmonary doctor and my family doctor, plus my allergy doctor are trying to help me get better. I had pneumonia for 3 months this year.

No, I have not heard of pulmonary rehab. Wish I knew more about it. I have some exercises that I do as well and walking has always helped me to breathe better. I do try to walk as fast as I can.

Hope you are better soon.

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JWILLIS40's Photo JWILLIS40 Posts: 716
4/8/13 9:55 A

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Hello! I found out one week ago today that I have beginning or early stage COPD. I quit smoking in 2009 and started walking when I started my Stop Smoking Program to assist with that. Last July 4th I started having a burning sensation in my chest and breathing passages. My new doctor sent me for Pulmonary Function Tests and a chest xray, blood work was also done. Seems I have asthma and this has pretty much been one long asthma attack undiagnosed and thus untreated. Grrr. I am now on meds for this.

I was given breathing exercises to do, told to walk as fast as I could and still be able to carry on a conversation. It was also brought up about sending me to a Pulmonary Rehab. Has any one here ever been to one?

Ask, and it shall be given to you;
Seek, and you shall find;
Knock, and it shall be opened unto you: Matthew 7:7

Now the Beroeans were more noble minded than those in Thessalonica, for they recieved the word with the greatest eagerness of mind, carefully examining the Scriptures daily as to whether these things were so. Act 17:11


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3/29/13 1:14 A

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Hi Sunny,
I agree with you about exercise helping to improve lung function. I walk or do exercise of some kind daily too-- at least when I am well. I have problems with pneumonia and bronchitis too.
I also use oxygen at night because my oxygen level falls too. Your story is encouraging to me because I have never even known anyone who had COPD.

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3/29/13 1:09 A

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Hi, Team,
I am so happy I found this spark team. I have had asthma/COPD for the past three years. These years have not been easy for me due the bouts with bronchitis and [pneumonia. I am working to free myself of excess weight because my lung doctor says it will help with my breathing problems. I look forward to learning from all of you and I certainly sympathize with anyone who suffers from this condition.

Blessings to all
luvstpopaint

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MOGAL1946's Photo MOGAL1946 Posts: 20,648
4/17/12 8:37 A

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Hi Deanna & Welcome to the team. We are all here to support you both with the Asthma and with your Spark journey. Hope you are feeling better now. I think with the crazy weather we have had this past year it has affected a lot of our breathing problems. Keep us posted on your progress.

Linda-Missouri (CST)


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RUTHDEE2000's Photo RUTHDEE2000 SparkPoints: (60,900)
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4/15/12 11:44 P

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Hi everyone...all weekend I have been searching the internet for help with my asthma....I have got to come to terms that i have this illness and must get it under control...I had been diagnosed with a slight case..I thought..6 ,ago....I have a wreck of a body lately...life after 50 I guess...I have always been fairly active, and was doing well with my exercise program...that is until I started walking outside...its Spring,so off I go...I really had never heard of exercise induced asthma, i was just ignoring it...but getting weaker and weaker I go to the hospital with bronchitis...the antibiotic would not work alone so they have put me on predizojust for.afew days...also informed to stay home from work for the week...I really don"t have the energy anyhow...tonight I am finnally starting to feel better...but still have to use my inhaler..alot more then I ever have.....so hopefully this team will help me come to terms with thispain in the but condition....I already figued there will be no outdoor activaties until I can get this figured.....
The funny thing is I go to Sparkpeople almost daily,and it never occured to me that there was a team for people with breathing problems...I feel a great sense of releif and happiness, and I hope some of you can help me through this...being that its not going away..
Anyhow I live in Saskatchewan, Canada,...in the driest,windiest part of the praires....lots of pollen ...in the country....been here all my life.... I have about 30lbs I"d like to lose...I used to be more active....I'm also a celiac, so diet is always watching for alergens...ok ok ...I really do sound sad....
I really am an up beat person ...I guess this has gotten me down...maybe if I get a good nite sleep tonight I will be better...tired I guess.
Well hope to get to know some of you and maybe we can help each other on our weight lose journey....Deanna

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SUNNY332's Photo SUNNY332 Posts: 38,845
1/19/12 7:11 P

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Melody - I am one of those who believes exercise is the best treatment for COPD. I walk and bike every day and also do strength training (not real good about this lately). As a result, my PFT has not changed in the past two years which is a miracle as most COPD Patients loose lung function every year. Exercise has been my lifesaver. You do have to have some motivation. Breathing was mine. I just hate being short of breath. Even though I still have times that I have some shortness of breath, for the most part, I am so much better today than I was when I was diagnoses. I do use oxygen at night as my oxygen level falls when I sleep. I wish you well on your journey. Bless you as you certainly have been though a lot with your sister's illness and now her death. Be good to yourself and know that it all takes time. You didn't get sick over night and you are not going to get better over night. Best wishes to you and e-mail me any time. I will be here for you.

Sunny

Sunny
An Ordinary Woman, Extraordinary SPARK looking to have a little more JOY in my life.
Missouri USA
Central Time Zone



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BONNIE627's Photo BONNIE627 Posts: 7,061
1/18/12 9:51 P

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emoticon Melody.. you are sure in the right place.. I have know a couple of people who have come off of oxygen and envy them a lot, but then they put in a lot of work in building up their system which is something I have not done.. good luck on your journey here.. look forward to hearing more from you in the future..

Bonnie in Cincinnati


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MELODYSPARKLES's Photo MELODYSPARKLES Posts: 1,670
1/18/12 4:17 P

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Hello, my name is Melody, I have been with spark for almost 2 yrs. I had been making great progress, when my sister fell severely disabled with a brain injury. It was a long heart breaking journey that ended with her passing last month.

I was hospitalized 3 yrs ago with exacerabation of copd, and place on O2 for 1 1/2yrs. During this time, I slowly and I mean slowly got back to activity, and after 5 months, was walking 2 -3 miles a day, with many breaks in between..Had all the park benches marked for rest areas.

Long story, after my sisters demise, I put on an additional 40 pounds of stress and emotional eating. Now have diabetes. After my sisters passing I was really having problems breathing again. Was just released from the hospital for another exacerbation and wk long admission...Thank god, I was released without having to be on oxygen...

So Here I am, starting all over again, like a baby learning to crawl with so much shortness of breath.

But as my nurse at the VA told me today, the stars are aligned up for me to succeed, the grief I have had is subsiding, and the stress of all that had went on with my sweet sister are gone. It is time for me to look out at the horizon, and realize the next steps are for me...I need to loose 130 pounds to be at a real mileston. I am looking forward to this journey, one step , one meal, and one breath at a time....THank you

Take care of your body, it's the only place you have to live..."John Rohm"


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MLMILLER11's Photo MLMILLER11 SparkPoints: (12,803)
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1/17/12 10:49 P

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Thank you for the welcome, Bonnie. I have been reading through the SparkTeam Page. There is so much helpful information. It is hard to absorb it all; so I will be doing some rereading. I'm learning there is so much more I could be doing to make the quality of my life better. I'm sure I will be asking some questions as time goes along. Again, thank you.
emoticon

Marilyn
"And then the day came, when the risk to remain tight in a bud was more painful than the risk it took to blossom. - Anais Nin, Danish diarist"




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BONNIE627's Photo BONNIE627 Posts: 7,061
1/17/12 5:53 P

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emoticon to the team.. if you have any questions just be sure to ask..everyone here is at different stages and someone may have already been through whatever trouble you are having.. like Sunny said just keep moving.. my dr. said either exercise or sit down and die.. that was putting it bluntly... good luck to you in your weight loss journey

Bonnie in Cincinnati


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1/17/12 5:05 P

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Thank you, Linda, for the welcome. I have been thinking about going to Walmart to do some Walking.

Marilyn
"And then the day came, when the risk to remain tight in a bud was more painful than the risk it took to blossom. - Anais Nin, Danish diarist"




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MLMILLER11's Photo MLMILLER11 SparkPoints: (12,803)
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1/17/12 4:53 P

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Nice to meet you, Sunny. I have slacked a lot on exercising this Winter. During the summer I walked and was pleasantly surprised at how well I did. I was afraid with COPD and oxygen I wouldn't be able to do it. I hope to get into a better exercise routine. I know what you are saying about eating large meals. I skipped lunch yesterday and ate a large dinner because we went out to eat. I only went over by about 150 calories but I felt so stuffed and uncomfortable. I still felt stuffed when I went to bed last night. I have more energy when I don't over eat. With the tools and support I receive from SP I think I will have a successful weight loss jouney.

Thanks for the message and stay in touch.
emoticon emoticon

Marilyn
"And then the day came, when the risk to remain tight in a bud was more painful than the risk it took to blossom. - Anais Nin, Danish diarist"




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SUNNY332's Photo SUNNY332 Posts: 38,845
1/17/12 10:09 A

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Marilyn, you just told my story. I quit smoking in 2003 and was diagnosed with COPD in 2006. Exercise needs to be your best friend. Do what you can do and don't quit. My doctor told me I could "give up" or exercise - it was my choice. I exercise faithfully and the past two years, my Pulmonary Lung Function has been stable. The other thing that really helps me is to eat smaller meals and snacks between the meals - a good combination of carbs and proteins. If I eat a big meal, I find that it really slows me down.

BTW, my name is Marilyn also and I also live in Missouri - Northeast area up by Hannibal. It is indeed a small world. I go by the name of Sunny - a name given to me by friends as I raise Ornamental Sunflowers (what else is a gal from Kansas who now lives in Missouri suppose to do?).

Nice to meet you and best wishes on your spark journey. Sunny

Sunny
An Ordinary Woman, Extraordinary SPARK looking to have a little more JOY in my life.
Missouri USA
Central Time Zone



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MOGAL1946's Photo MOGAL1946 Posts: 20,648
1/17/12 8:24 A

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Hi & so glad to see you here so we can motivate one another through the healthy lifestyle and tips on how to make it through each day with COPD. I like to walk too......when the weather is nice. Sometimes when it is cold I will go to Walmart or Target and walk the aisles or use the Leslie's Walk Away the Pounds. Have a great day & Welcome to the team.

Linda-Missouri (CST)


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MLMILLER11's Photo MLMILLER11 SparkPoints: (12,803)
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1/16/12 11:26 P

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I my name is Marilyn. I live in West-Central Missouri about 90 miles Southwest of KC. This has been home all my life. I joined SP week ago. I still have a lot to learn about the web site but so far I love SP. There are so many tools to keep me motivated. I have COPD. I stopped smoking in November of 1994 but the damage was already done. I became very ill in November of 2010 and was diagnosed with COPD. Actually, the last 2 or 3 winters before 2010 I had some bad bouts with a lot of congestion and coughing but I did not go to the doctor. Shame on me. It I had taken better care of myself I probably wouldn't be on oxygen. But I am 2/7. I don't suffer with a lot of phlegm and I get around good. I am able to go for short walks if I keep an oxymeter with me so I can rest if my oxygen drops too much or my pulse rate gets to high. I am not sure what a safe pulse rate is for someone with COPD so I usually try to keep it about 80-90 but that maybe playing it to safe. My goal is to lose 159 lbs in the next few years. I hope to lose 80 lbs of that this year. I am glad to have found a team who can help me with some of these issues. Thank you KCMETROGIRL for inviting me.

Marilyn
"And then the day came, when the risk to remain tight in a bud was more painful than the risk it took to blossom. - Anais Nin, Danish diarist"




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