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SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (310,383)
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12/11/18 4:32 A

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Good luck,
Kris

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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,243
12/11/18 12:27 A

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www.cpap.com/productpage/resm
ed-airfit
-n20-nasal-cpap-mask-headgear
?gcli
d=Cj0KCQiAurjgBRCqARIsAD09sg8gK-z
Q
WCm5eaoG-Cgh14NUmlpVPVLNRUAX1UAthIxnV<
BR>ns3ypjz88IaAi3GEALw_wcB


Interesting side straps. I don't think this one will slide off at night at all. Wonder how it is going to work for side lying.

Here is mine. www.cpap.com/productpage/fisher-payk
el
-eson-2-nasal-cpap-mask

At least you don't have a unicorn horn so you can read in bed with glasses. This really is my favorite mask of all time.

And yes, the nasal pillows really irritated the nasal linings. I kept trying.

Cathy
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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,243
12/11/18 12:21 A

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I hope the new mask works well for you. I much prefer the nasal masks over the pillows.

Cathy
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GROGGY2018's Photo GROGGY2018 Posts: 140
12/10/18 6:16 P

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I got a different nasal mask to try, an Airfit N20, hoping it will help rule out if the nasal pillows on my other mask are causing any nasal inflammation. With my allergies I'm not sure how much the nasal pillows are really affecting my sinuses. Best part, I get to try it for free. Also on nights my nose is more inflamed I've woken up with the nasal pillow mask knocked off my face, and on a really bad night the machine says I took the mask off many times.

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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,243
11/11/18 9:18 P

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Glad you both adapted the exercises to work for you. I don't do it as long as he says. Wish I could find the vid of the lip exercise. Pull both lips inside your teeth. Keep them firmly together and slowly blow out almost like trying to whistle through your lips. Also releases the pressure. Takes less time too.

Cathy
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GROGGY2018's Photo GROGGY2018 Posts: 140
11/9/18 12:54 A

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I got lightheaded too, I had to go at a slower pace than the video. :D

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SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (310,383)
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11/8/18 9:48 P

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I tried following that but had to stop after a while because I started to hyperventilate, getting a bit lightheaded and nauseous LOL!

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GROGGY2018's Photo GROGGY2018 Posts: 140
11/8/18 7:33 P

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That video is great, I just gave it a try and it did reduce the inflammation a little. I never would have thought to look something like that up on youtube, thank you Cathy! Going to add that to my daily routine, especially in the morning when the inflammation is the worst.

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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,243
11/8/18 12:45 A

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www.youtube.com/watch?v=5zHK12LkUB4

There are dozens of these breathing techniques to get the blood circulating in your sinuses and decrease the inflammation. Here is just one. You might try a few different ones to see if any works better for you.

Flonase was my go to for emergency breathing help, but over the years, just putting the mask on is all I need to get everything to settle down so I can breathe. The brain is a strange and wonderful tool.

Glad your numbers are improving. You are going to be one of the successful ones. You are determined and willing to do the work.

Cathy
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GROGGY2018's Photo GROGGY2018 Posts: 140
11/7/18 10:06 P

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Will definitely try the coconut oil, I didn't think of that.
I have had one main issue with using the nasal pillow mask, I frequently have nasal inflammation which I realize I've learned to try and ignore over the years, I assume from allergies even though I'm on 3 allergy meds. The first night (Friday night) using the cpap I turned the ramp off because I felt like I wasn't getting enough air, and woke up with a very stuffy nose. Having to breath through my nose has made me more aware of how bad my nasal inflammation is, after 8 hours of sleep I had around 7 episodes per hour (which is still a far cry better than 40 per hour without it). The 2nd night I had same feeling of not getting enough air, I woke up at least a few times and had 10 episodes per hour. Then Sunday night I decided to use my neti pot and spray with Flonase right before bed, which helped, I could breath better when I went to bed but still woke up with a little inflammation and felt like I wasn't getting enough air; however, I only had 1 episode per hour!! Monday night and last night was the same, I continued using neti pot and Flonase right before bed and have only had 1 episode per hour each night. Also I haven't had a headache since I started using the cpap machine Friday night, it's definitely worth it!

I still have backaches every morning, I spoke with my respiratory therapist and nurse at my sleep center and they both recommended I elevate/incline my head with pillows when I sleep, they think it may help my back and reduce my nasal inflammation, also have an appointment with my regular doctor to check what else I can try to reduce my nasal inflammation. I have the humidifier on the cpap at 4, appears to work great, I tried it at 5 one night and it caused condensation in the tube and made weird gurgly sounds in my nasal mask.

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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,243
11/3/18 2:33 A

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Coconut oil works better than chapstick. Do a comparison study and let me know what you think. I know some people who love their chapstick, but it does have chemicals in it

Cathy
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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,243
11/3/18 2:31 A

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My back hurt too much to sleep on too. Then I got the cpap and was able to sleep on it again. I still toss and turn a lot, but my theory is that better sleep means more relaxed muscles and less pinched nerves.

Love your wide eyed pic. LOL

The Eson 2 nasal is the favorite mask I have. Never had much luck with the pillows. Slick hair and flat head and the tossing and turning knocks it off. But yes, less kitty whiskers from straps and you can read in bed with the mask on.

Sleep well my Oregonian friend.

Cathy
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GROGGY2018's Photo GROGGY2018 Posts: 140
11/3/18 12:15 A

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I got my cpap machine today!
I went with the Airfit P10 Nasal pillow mask. It's supposed to be the best option for when I toss and turn in my sleep and shouldn't put welts on my face. Also got some chapstick for my nose just in case I get irritation. But they're giving me a month to try it out and if I have any issues I can switch it out for a different mask.
I've been sleeping on my side a lot anyway due to back issues. I used to play clarinet in high school, then a couple years later in college is when the migraines started and is when my weight started steadily increasing, maybe there is a connection there.


Edited by: GROGGY2018 at: 11/3/2018 (00:17)
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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,243
10/29/18 5:17 P

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Until you get your machine there are a few things you can do that will help.

Do you sleep on your back? If you do, strap a fanny pack with a tennis ball in it to your back. It will wake you up every time you move to your back. Believe me waking frequently because you are annoyed is a lot better than not waking because you are not breathing.

Try to side sleep and if you can tuck a pillow under your chest and roll part way forward so you are inclined toward your belly that will help too.

Some people have bought wedges to raise their heads. But too easy to slide off and end up on your back again.

Another strategy was to raise the front legs of your bed up on stands. Problem with that is that you and your blankets slide to the foot of the bed. Also super annoying to bed partner.

Last one I can remember for when the power goes out or you don't have a machine is to sleep in the recliner chair.

Long term fix. Take up harmonica playing to strengthen soft pallet. Have you ever noticed that professional wind instrument players and singers don't generally have apnea. I believe at some point physical therapy will be helpful to some people.

Anyway, hoping you get that machine soon and that it is everything for you that mine is for me.

Cathy
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GROGGY2018's Photo GROGGY2018 Posts: 140
10/28/18 8:35 P

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My insurance still hasn't processed/approved coverage with Northwest Medical. I've called the insurance company twice this past week to double check. After I get my cpap I'm switching sleep doctors, was diagnosed August 9th, my symptoms have been getting progressively worse.

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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,243
10/18/18 2:05 A

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I am glad you got switched to Northwest Medical. I got good care from them years ago. They actually came out to my house with my very first cpap and helped me set it up in my room. I don't think anyone makes house calls now. But I would like to think they still had good customer service and billing.

Never heard of Lincare.

Now I go through Kaiser. So far that has been good too.

Cathy
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SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (310,383)
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10/18/18 12:02 A

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I was really lucky in that the Hospital where the Sleep Study was done, gave me (as in no payment required) all the equipment I need. I just have to pay for any further parts replacements such as hose, filters, mask, when the time comes.

Kris

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GROGGY2018's Photo GROGGY2018 Posts: 140
10/17/18 7:36 P

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Since 1 hour ago, I found out Lincare is a horribly bad medical supply company whose call center is located in Florida, found out my insurance covers equipment from Northwest Medical which is a much better medical supply company and is local, that the sleep center had not yet faxed the prescription for the equipment, went to the sleep center to make sure that they faxed to Northwest Medical, called them to verify the fax was received, discovered that the sleep center misspelled my last name which would have been problematic for the supply company to obtain approval by my insurance company. Now Northwest Medical will call me as soon as they hear back from my insurance company and then I go to their shop and get fitted for a mask that wont hurt my face and get my cpap equipment.

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GROGGY2018's Photo GROGGY2018 Posts: 140
10/17/18 5:29 P

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I had my titration sleep study Sunday night and just got feedback from the sleep doctor. The study showed sleep improvement with the cpap and that a 9cm water lower-mid range pressure worked best...whatever that means. I did have gouge marks from the nose mask the next morning after the study that I am still feeling, hoping my insurance covers some decent mask options. The doctor told me they have sent a prescription to Lincare and that a respiratory therapist will call me by Friday with supply information. I have been googling info about Lincare, found that there is a physical location for a Lincare locally that sells medical supplies, same phone number that goes to a call center, wondering if they're an actual store where I can try on face masks to see what I like. My sleep doctor didn't mention needing a full face mask or chin strap, I think the cpap prevented me from needing to breath through my mouth.
emoticon

Edited by: GROGGY2018 at: 10/17/2018 (17:35)
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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,243
9/30/18 2:34 P

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emoticon emoticon

Cathy
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SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (310,383)
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9/29/18 9:00 P

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Sarah - when I went for my Sleep-over to diagnose, I was told that the type of mask you get if you require a machine, depends on whether you are an open-mouth breather (in your sleep) or nose breather. At the beginning, and before you go to sleep, they put monitors over you, and one of them is around the nose which shows on the computer monitor what type of breathing you do. I'm a nose breather so I got the one that just fits over the nose. I have never found that it stuffs me up, and up until then I got bad sinus congestion even tho' I was on a daily antihistamine. Using the Sinus Rinse was a huge factor in virtually immediate congestion relief, and now I mainly just use the nasal spray, (Beclomethasone) when I start to feel congested, as well as my daily antihistamine.

I have never found the mask to be uncomfortable and can sleep well with it on.

Kris


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GROGGY2018's Photo GROGGY2018 Posts: 140
9/29/18 4:16 P

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Thank you for the tips :)
The chance that it will work as well for me at reducing my allergy symptoms is another incentive I didn't even consider.

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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,243
9/28/18 8:11 P

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One of the problems with new mask users is the nose stuffing up automatically due to the unfamiliar pressure. It takes a while to adapt. So flonase or saline sprays seems to help that.

Sinus infections from March through June and even a couple rounds of antibiotics and prednisone were the norm for me from childhood. I have not had a single sinus infection since getting the cpap fifteen+ years ago.

Breathing clean filtered air all night and getting a good nights sleep really improves the immune system and allergy response. That will be one of the more pleasant surprises.

Don't be afraid to experiment with masks. I went through five ill fitting masks in six months. Finally found one that was small enough for my face but it put a dent in my forehead. Lived with if a few years when I was introduced to a flex frame mask. Loved it. Lived with it for 10 years. Kaiser doctor introduced me to the Epson 2 mask. It is the best yet.

I didn't like the full face mask but had one to use for the stuffed sinus days. Problem was that I toss and turn at night and the full mask does not allow for much movement. The rigid frame gouged indents in my face. I tried three different nasal pillows, but because of all the sinus surgeries, the direct air pressure on the scar tissue hurt and gave me headaches. Also the headgear was not very stable when tossing and turning. I kept losing them. I like the nasal masks the best. So, as you can see I kept trying and finally found a mask after years that is almost perfect for my needs.

Cathy
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GROGGY2018's Photo GROGGY2018 Posts: 140
9/28/18 7:10 P

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My health has put my ability to keep a job and have a steady income very difficult this year. I'm hoping I actually get a cpap with a full mask since I am so predisposed to sinus infections from allergies, I'm on 3 allergy meds and use a neti pot when I get too conjested.
After so long with chronic migraines I am always desperate to find relief or ways to at least reduce how many I get. The sleep doctor thinks my migraine preventatives play a part in causing or intensifying my sleep terrors as well as causing some of my weight gain, if the cpap works as good as he thinks it will it could mean getting off the migraine meds eventually and that would be amazing.

Thank you for the encouragement, sounds like cpap will help me so much, P.S. I've always wanted to go to Halloweentown, have heard about it for years and sounds like a blast, someday I'll get there!

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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,243
9/28/18 1:58 P

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Welcome to the team Sarah,

We are fellow Oregonians, although I live up North past Portland. Our little town is currently in the process of gearing up for Halloweentown. Fun stuff. Grimm people are participating this year.

Yes, I had similar numbers years ago too. First night on the machine despite a painfully bad fitting mask, I felt a hundred times better, smarter and more awake at work. It was a miracle for me. In fact I am very aware that I was sleeping even better than I did as a skinny teen.

The mask is the hardest thing to adapt to. Just stay persistent and keep asking questions. You will find a whole new life out there for you.

Cathy
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SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (310,383)
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9/28/18 6:53 A

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Hi Sarah.

I am sure that you will notice a big difference when you start to use your machine. I was stopping breathing 60 times per hour and 15 seconds at a time. It was no wonder I was soooo tired every day. I was black under my eyes and was often 'baggy' too, and had been for a long time. It was in part related to allergies. The Sleep Specialist gave me a nasal sinus rinse as well as a nasal spray and said that it would fix it. It did, too.

I only had one study to diagnose and prescribe. I did the sleep study where they discovered the severity, and I was given the CPAP machine they used on me, adjusted to my needs, to bring home.

Good luck with your getting back to a normal, healthy life.

Kris

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GROGGY2018's Photo GROGGY2018 Posts: 140
9/28/18 3:25 A

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Hi, I'm Sarah. I was diagnosed with moderate sleep apnea about a month ago. In 5 hours of sleep I woke up over 200 times. I have the titration study October 16th, the doctor says that the next study is to determine what cpap machine customization I need. It is a long process here in Eugene, OR, probably because I have Trillium, and there are far more patients than sleep doctors here, but I am thankful I may finally have answers to my health issues.
It is frustrating that my regular doctor for the past 3 years never thought of referring me to a sleep doctor before, the sleep doctor told me headaches are common with his patients, migraines are less common but in my case it appears to, I've had chronic headaches and migraines for over 10 years, and have been on migraine preventatives for the past 3 years as prescribed by my regular doctor. Getting the sleep doctor referral all started with a food poisoning experience back in July, I was so sick that I thought I was having a heart attack which turned out to be tachycardia, a few days after that I saw my regular doctor for a follow up, I usually just saw her about my migraines and nothing else, but that visit she noticed how baggy my eyes were and I let her know about how my daily grogginess had become progressively worse and I was getting vertigo and motion sickness driving which has made employment very difficult, and I had night terrors for at least the past 2 years but just in the last few months or so they became progressively worse (screaming in my sleep without remembering I do except for feeling out of breath when I wake up). Plus, my weight that had been stuck around 250 for the past year then in the last few months started creeping up close to 270.
The sleep doctor has been encouraging, he thinks a cpap machine will help with a lot of my health issues.


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