Group photo
Author:
PEACEFULHOME11's Photo PEACEFULHOME11 Posts: 202
4/26/14 2:53 P

My SparkPage
Send Private Message
Reply
Hi Amy. I joined this group because my daughter was diagnosed with Type 1 diabetes last week. She is 10 years old. Perhaps we can be a source of support for each other. This seems like such a long road ahead, but one that we can manage and incorporate into our daily lives. I am Karen, and live in Cambridge, MA. I am known as peacefulhome11 on Sparkpeople. Hope you are holding up. I am still trying to get used to all of the carb counting, blood sugar testing, and insulin injections. My daughter will return to school next week for the first time since her diagnosis and will need to prepare for that this weekend. Hope all is well with you. Looking forward to talking further with another mother going through the same thing.

Karen

 current weight: 210.0 
220
202.5
185
167.5
150
_MOBII_'s Photo _MOBII_ SparkPoints: (21,474)
Fitness Minutes: (7,063)
Posts: 1,198
4/15/14 5:31 P

My SparkPage
Send Private Message
Reply
emoticon

Tracy, Illinois, CST

Man sacrifices his health in order to make money.

Then he sacrifices money to recuperate his health.

And then he is so anxious about the future that he does not enjoy the present;

The result being that he does not live in the present or the future;
he lives as if he is never going to die, and then dies having never really lived.
~The Dalai Lama


 Pounds lost: 55.0 
0
33.75
67.5
101.25
135
LITTLEWIND53's Photo LITTLEWIND53 Posts: 17,180
4/15/14 5:25 P

My SparkPage
Send Private Message
Reply
Great information, Tracy. Thanks for sharing it....

Linda

Leader: Living with Diabetes
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=10080


YOU can do it.
You CAN do it.
You can DO it.
You can do IT.
_MOBII_'s Photo _MOBII_ SparkPoints: (21,474)
Fitness Minutes: (7,063)
Posts: 1,198
4/15/14 2:59 P

My SparkPage
Send Private Message
Reply
Along with the message boards here, I also signed up on the message boards for the American Diabetes Association. The address is diabetes.org

I found it much easier to get information from the people who live with diabetes than to get info from doctors or Google.

The forums there are somewhat separated into type 1 and type 2 because the needs are different. It is also very active there...there are a LOT of people posting and a lot of good information. I have never asked a question there that has gone unanswered.

Tracy, Illinois, CST

Man sacrifices his health in order to make money.

Then he sacrifices money to recuperate his health.

And then he is so anxious about the future that he does not enjoy the present;

The result being that he does not live in the present or the future;
he lives as if he is never going to die, and then dies having never really lived.
~The Dalai Lama


 Pounds lost: 55.0 
0
33.75
67.5
101.25
135
LITTLEWIND53's Photo LITTLEWIND53 Posts: 17,180
4/13/14 7:52 P

My SparkPage
Send Private Message
Reply
I live in Canada and our program is a bit different than the one in the US, but the goal is pretty much the same.

Yes, I am supposed to cover my carb with insulin, but as insulin is a fat storing hormone, I am supposed to eat fairly low carb.

So what do I replace carbs with? They don't want us to eat too much fat, and too much protein is hard on the kidneys. I usually try to eat a balance, little potatoes (much as I love them) or corn, and I eat almost no bread at all anymore and I hate whole wheat pasta, (just not the same), but I try to eat lots of veggies when I can......

When my Dad was first diagnosed (way back in the very early 70's) he could only eat small amounts of carbs --- max 1/4 cup mashed potatoes at a meal, and never have corn or bread if he was having those potatoes....... Then they changed the program and he was allowed a lot more carbs (they called them starch exchanges in those days) but a few years later changed it again, I guess because too many people were not getting the control they wanted. Eventually they went to the "counting carb" system that we have today.......

When I was first diagnosed with Syndrome X, I was able to control my sugars simply with diet and exercise alone and managed quite well for quite a few years. Then I had to start on the pills and my control was not so good and eventually on to insulin. I had so much better control using the old exchange system. I do find it difficult to count carbs from all sources.

Are you teaching your son how to count carbs, take insulin, and all that jazz, or is he still too young to take it all in? Does he fight the needle or accept it as something he has to do?

Hope you are having a great Sunday......


Edited by: LITTLEWIND53 at: 4/13/2014 (19:58)
Linda

Leader: Living with Diabetes
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=10080


YOU can do it.
You CAN do it.
You can DO it.
You can do IT.
AMY1195's Photo AMY1195 Posts: 150
4/13/14 6:57 P

My SparkPage
Send Private Message
Reply
Thank you very much.

Yes I think the diet and lifestyle changes are similar. Do they recommend low carb for T2? I know with T1 they want my son to eat plenty of carbs just as long as they are covered by the insulin. I thought T2 was low carb, correct me if I'm wrong!

I think either way this team is a great resource.

~ Amy in MAINE!


 Pounds lost: 2.4 
0
31
62
93
124
LITTLEWIND53's Photo LITTLEWIND53 Posts: 17,180
4/13/14 12:35 P

My SparkPage
Send Private Message
Reply
Hi, Amy. Welcome to the team.

I was diagnosed over 20 years ago with Type 2, and even though I am now on daily insulin, I am still T2 -- I don't have children so I am not able to give you any insights into T1 and young children.

Having said that, I think that when it comes to food, there is not a huge difference between us. What is good for diabetics is also good for non diabetics, so ....... what works for T2's should also work for T1's. (Choosing wisely and portion control, and not going for long periods of time between meals or snacks.)

I think most of the active members of this team are also T2, but maybe one of them can give you more info......

Additionally, there is another group called Managing Diabetes Group and I know a few years ago that team had some T1's. It could be another great resource for you.....

Best wishes to you and your son...... emoticon

Linda

Leader: Living with Diabetes
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=10080


YOU can do it.
You CAN do it.
You can DO it.
You can do IT.
AMY1195's Photo AMY1195 Posts: 150
4/13/14 6:55 A

My SparkPage
Send Private Message
Reply
Hello

I'm a 25 year old mom (without diabetes) and found out my son has type 1 on March 24th. It's been pretty scary but we are getting used to it. Are there any other moms with young children managing diabetes? Or any of you diagnosed at a young age with type 1?

~ Amy in MAINE!


 Pounds lost: 2.4 
0
31
62
93
124
Page: 1 of (1)  

Report Innappropriate Post

Other Living With Diabetes Introduce Yourself to Team Forum Posts

Topics:
Last Post:
11/17/2017 4:15:29 AM
1/24/2018 8:30:58 PM
1/9/2018 12:37:57 AM



Thread URL: https://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x10080x57492757

Review our Community Guidelines