SparkPeople Type 1 Diabetes (IDDM) Team Messageboard Team Type 1 IDDM is for people with type 1 Diabetes (Insulin-dependent, or IDDM) and their loved ones., to meet, share experience, tips and support. SparkPeople Type 1 Diabetes (IDDM) Team Messageboard New to the board II'm so glad I found a team that's just Type 1 Diabetes, I got the message and decided to intro myself. <BR> <BR> I've been diabetic since 1975 right after I turned 18, it came about after I'd went from 140 to 98 pounds in a weeks time and our family had just lost a 9 year old cousin to Cranial Meningitis and we were told if there were any unusual symptoms to get tested. I did and that's when they discovered my diabetes. <BR> <BR> Because I was the first in our family to have this disease,... Tue, 9 Apr 2013 18:29:56 EST A newby to type 1 diabetes I had to have surgery and had my pancreas and spleen removed. They transplanted what islet cells they could from my poor pancreas but I became an instant Type 1 diabetic after surgery. I had my surgery almost 2 months ago so I am still very new and they are trying different insulin pens to find the right one for me because right now my blood sugar is a little touchy. I would love to hear from other people that are new to insulin diabetes. By the way, I don't mind printing my age, I'm 56. <em... Thu, 21 Mar 2013 11:08:26 EST 40+ yrs IDDM Hi Everyone, <BR> <BR> New to Sparks but not to Type1!!!! Here to track my diet to address the low BGL's. Endo/DMT see me as a lost Hope everyone has a Ab Fab week Cheers. Sun, 17 Jul 2011 06:02:35 EST Back Again, now as a Pumper I've been inactive for several months because of an extended Winter cold, then a couple of months getting trained for my new Medtronic Paradigm Revel Insulin Pump. <BR> <BR> I've now been on the pump for a month, and just posted a new blog, One Month on my Medtronic Paradigm Revel Pump. Control is vastly improved and A1c went from mid 7's to 6.8 when starting pumping, now at 5.8! No more injections, just change the infusion site once every three days! <BR> <BR> My continued apologies to the... Sun, 19 Jun 2011 17:59:22 EST I'm back with apologies to Team Type 1 IDDM <em>24</em> <BR> I've been inactive in SparkPeople and absent from this Team for several months because of health issues and two months with a severe cold with secondary bronchitis and asthma. <BR> <BR> <em>245</em> <BR> My apologies to the entire Team and to any browsing Spark People who have dropped by. <BR> <BR> Before posting or making any administrative changes to the Team, I'll spend some time reading the posts and activity on the Team Forums, to get up-to-date. <BR> <BR> <em>22... Tue, 12 Apr 2011 03:05:50 EST Link to Type 1 News Hi Everyone! Hope you're all having a great week. <BR> I came across some exciting new research I thought you all might be interested in. <link><BR>s-transplants/#new-comment-list </link> <BR> <em>465</em> Wed, 13 Oct 2010 18:47:08 EST BG Balancing Act, Erratic BGs and Body-Mind Tools <em>7</em> <em>38</em> <em>195</em> <em>213</em> <BR> <BR> <em>245</em> <BR> Sorry I haven't posted for a few days. Tracking, analyzing and responding to a "blip" in bg control has required my largely undivided attention. <BR> <BR> Since I don't yet have a Continuous Glucose Monitor (CGM), I've been manually testing six or more times daily tracking incidents of severe highs while monitoring closely for precipitous lows caused by erratic response to the corrective Bolus injections.... Sun, 26 Sep 2010 20:38:38 EST New to SparkPeople & the group Hi! My Type I Diabetes (IDDM) was diagnosed in 1978, when I was just 7 months old, giving me a lifetime (32 years) experience in living with T1DM. I am on an infusion pump, currently using Novolog. I moved to the pump in 2001, to get off of the 10 shots a day routine (with no control - then my A1C was in the upper 14s). I just recently had my first A1C ever in the 7.8! The doc said it needs to be below 7 and I got mad because I wanted to throw a party! <BR> <em>224</em> <BR> <B... Fri, 10 Sep 2010 11:23:15 EST Diabetic Desperado! Hi everyone! My name is Angela and I have been a diagnosed diabetic for @ 20 years Type 1. I was tested at 3 years of age, but diet and healthy lifestyle kept me going. Looking back there were obvious signs that I had it, but no one picked up on it until I temporarily lost my sight. I was repeatedly sent for pregnancy tests in my late teens/early twenties before the doctors bothered to test for diabetes. Even though I had been going to a family doctor who new history and everything. I slipped... Wed, 8 Sep 2010 19:09:03 EST Long Term Diabetes? Share your experiences! <BR> Wed, 8 Sep 2010 03:03:05 EST Long Term Diabetes? Share your experiences! <BR> Wed, 8 Sep 2010 03:01:58 EST Long Term Diabetes? Share your experiences! <em>282</em> <em>273</em> <em>220</em> <BR> <BR> There have been many changes and advances in treatment of Type 1 Diabetes that help with gaining and maintaining control. Please share your memories, reflections, and experiences. <BR> Wed, 8 Sep 2010 03:00:16 EST Long Term Diabetes? Share your experiences! <em>282</em> <em>273</em> <em>220</em> <BR> <BR> There have been many changes and advances in treatment of Type 1 Diabetes that help with gaining and maintaining control. Please share your memories, reflections, and experiences. <BR> Wed, 8 Sep 2010 02:59:21 EST Hi! I'm Wendy and I was diagnosed as being diabetic about 10 years ago. <BR> <BR> I was on medication until two years ago when my doctor added insulin after being in the hospital with DKA the first time. Then, this past July, I got really sick and I almost died. My sugar was 592 on August 12 when I went to the doctor. He put me in ICU for 24 hours. Then on August 16 he sent me home. Another bout of DKA. <BR> <BR> On September 30 I went to see him and I was taken off of the medication an... Tue, 18 Nov 2008 20:09:18 EST Exercise, Lower BG average, no junk food = WEIGHT GAIN! <BR> <BR> My boyfriend (24) has type 1 and has put the most effort he ever has into living healthy and getting fit. I am very proud of both of us for making great lifestyle changes, but his weight gain has been very discouraging to him. We eat healthy foods, exercise and love to take walks. My body has changed for the better, but he has just continued to gain weight and feels terrible about it. I remind him that he has accomplished A LOT and has a better BG average than ever be... Mon, 27 Oct 2008 12:53:40 EST Hello! Hi all! <BR> <BR> I've been on sparkpeople for quite some time and have really enjoyed myself. I was diagnosed on 8 Feb and just thought to look to see if there was a diabetes group. I am nervouse as I was already working to lose weight and now, as I understand it, the insulin makes it harder to lose. I'll be working harder now and need support in motivation to lower my weight even more now. <BR> <BR> I look forward to getting to know you all better! Sat, 23 Feb 2008 02:06:23 EST Symlin Anyone here on Symlin? I am...they told me it would help me lose weight. It totally hasn't. Any input? Tue, 12 Feb 2008 13:15:51 EST Type 1 - new to SP Hi there, I am a 44 years old type 1 for 14 years. I started to lose weight about a year ago after my liver was giving what appeared to be weird readings. I am down 50lbs and have been lifting weights for 6 months. Amazingly I am actually gaining muscle. All good. My A1C has also improved over the course of the year from 7.4% to around 6.6% but it was as low as 5.9% just before I started exercising. Weird I start lifting weight and my A1C goes up? I was on Lipitor but am now off, so I ca... Thu, 31 Jan 2008 22:40:08 EST Hi! New here. Hi! I'm a T1 diabetic on a Minimed 722 with a CGM. I'm here to lose a bit of weight and hopefully make and keep some healthy lifestyle habits. I have a diabetes blog online, at , and am looking forward to meeting fellow T1 diabetics in search of better health! :) Mon, 14 Jan 2008 20:29:53 EST mom of type 1 Hi! I am a mother of a type one diabetic boy. He is 7 now but was diagnosed at age 4. We are in the process of getting him on a pump. I think SP is a great place for recipes and advice. I also use the site myself to try to lose weight. Just wanted to say HI! Wed, 9 Jan 2008 07:17:23 EST Hey Hey When I see this group a song pops in to my head..." there anybody out there?" :) I hope you are all doing well. Thu, 6 Sep 2007 11:11:01 EST New to SP Hi..I'm new to SP, just found it a couple days ago. I looked for a diabetic group since I can't really use the standard SP diet, but I do need support. I am type one but was diagnosed as an adult...which meant a year or two of misdiagnosis as type 2! I was thin until I started insulin and have had major trouble trying to get it off! I've had a pump for nearly 7 years. Wed, 25 Jul 2007 23:06:46 EST Apidra Does anyone in here use it? I'm going on it tomorrow for two weeks during my insulin trail period. My doc forgot to tell me what to change the active insulin to and I was wondering if anyone had any ideas. <BR> <BR> Thanks! <BR> Fri, 6 Jul 2007 14:31:33 EST Guinea Pig Okay, so I'm doing an experiment with insulins. Dr.'s orders and all and hell, lots of free insulin. I have Novolog, Humalog and Apidra. I'm supposed to use one vial of each until it runs out and see how my BG's are doing. Then I get to pick whichever one is keeping my BG's the most stabilized. Bad's going to make me get up at 3 am for 3 weeks. :( Novolog doesn't seem to be doing it for me. Just thought I'd share. Fri, 29 Jun 2007 12:09:19 EST Type 1 in the media Just thought I would share this with you guys, it's about diabulimia. A girl that was interviewed, Lee Ann Thill is in one of my myspace groups and we've been talking about this in there. It's great to see SOMETHING about type 1 in the media. :) <BR> <BR><BR>d=3290905 Thu, 21 Jun 2007 14:20:51 EST Pumping Just thought I'd share how excited I am!!! I start pumping on Friday. I did a trial run with Saline over the weekend and can't wait to get off MDI's!! :) Mon, 18 Jun 2007 12:27:23 EST Calorie Question... I have a question. I adjusted my lbs/week goal and went edit my calorie needs (because I figured if I was going from 1lb/week to 1.5 I might have a lower calorie range), but when I went to edit it, it said that SP recommended I get 2000 - 2500 calories. The weird thing about that is that before, my calorie needs were 1200-1550. Isn't it strange that my calorie needs would go up? Or did I maybe have it wrong to begin with?? Anybody got any idea how to figure out if I went wrong somewhere? Mon, 11 Jun 2007 19:05:41 EST You ever have one of those days...? Hi gang. I'm just having one of those days... It's been coming on for a few days now, and I kinda saw it coming. It just seems like everything kind of comes together to make you feel like it's just not worth the effort it takes to get out of bed? Today started with the rash on our kitten's ears going from a few spots on the edge of her ears to engulfing her entire ears and making the fur on her ears fall off so I had to take her to the emergency vet... sadly, that's very close to being the... Sat, 9 Jun 2007 20:12:26 EST When you know you're going low Okay, what do you all do...besides mess with your pump? I mean, I know I'm going to go low just because I had a post meal of 76. I should get my pump today, btw. :) Wed, 6 Jun 2007 10:33:10 EST Bicycling Does anyone ride a bicycle? I have really enjoyed the exercise lately. Today we are going for 8 miles!! Sat, 2 Jun 2007 12:30:11 EST TalTexanna You have a striking resemblance of the girl that plays in Princess! Anne Hathaway, I think is her name! Thu, 31 May 2007 22:12:12 EST My Update! I am sorry for the long absence. I was finishing up the semester and then the kids were getting out of school and lately I have been doing alot of research on becoming a doula/childbirth educator/lactation educator. I know it sounds like alot. I would really LOVE to work with other diabetics especially those that are on a pump like me! Wouldn't that be awesome? <BR> So I have alot to think about. <BR> I have taken up bicycling lately. We got two new bikes on Monday and I rode for 6 miles... Thu, 31 May 2007 22:05:29 EST Where have all the chatty people gone?? Hi gang! I was just wondering where all the chatty people have gone. I miss you guys. I tried going back to the 'Managing Diabetes' forum, but honestly, I can't relate to them much. They're mostly type 2's and whine a lot. I'm sorry, but I have little sympathy for someone who complains about having to restrict their diet and take oral medication. Cry me a river. I have to restrict my diet, take insulin (granted, I'm on the pump - thank God - but it still requires an injection every cou... Thu, 31 May 2007 18:56:09 EST It's been a while... Hi guys! It's been a while since any of us have posted, and I was just wondering what everyone was up to. I'm doing alright, just hangin' in there. Hope everyone is doing ok! Sun, 27 May 2007 17:12:01 EST So sad... Okay, so I have been away for a little over a week now, just dealing. My 4 1/2 month old nephew passed away last Friday. Really, he was brain dead on Thursday but the parents decided to come to the agreement to take him off of life support of Friday morning after my husband and I could arrive and spend a few last moments with him. His death was determined a SIDS death and the whole thing was just very heartbreaking for all of us. My hubby and I took off Friday for a mini-vacation to just ... Tue, 22 May 2007 16:34:55 EST Question about a1c's Okay, I dumb or something? I've had type 1 for over 9 years and I have always been told I needed to be fasting to have my hba1c test my new endo is telling me I don't...I'm so confused...are they idiots or am i one? <BR> <BR> Also, I've been away, sorry, I just kind of fell off the planet for a while...very disturbing week. :( Thu, 17 May 2007 16:11:40 EST My New A1c First off, sorry for being MIA. Its been crazy busy around here. <BR> I went to the dr. on Thursday and had my new A1c run. I went from being 11.6 down to 7.9!!! I was so excited! Tue, 8 May 2007 17:35:15 EST Article differentiating between types of diabetes I was really excited to see this article on SP today :) <BR> <BR><BR>n_articles.asp?id=832 Tue, 8 May 2007 17:18:48 EST Had a hard day... Hi gang! I've had a pretty long/hard day and just thought I'd post to say hi. On a positive note, my bg has been well within range all day. I think all I need is a good night's sleep and a cuddle from the hubby. Mon, 7 May 2007 18:12:50 EST Inexplicable Highs Okay, so, for the last week my bg has been running higher than normal... a good 50-70 higher than normal fasting and it just gets worse from there. Whereas my usual pre-meal is anywhere from 90-130 it's now consistently 180+. Previously my post-meal bg was anywhere from 140-170 it's now 220+ no matter how much I bolus or how few carbs I eat. And if I check a few hours later than that it will have come down MAYBE 10 points. If that's the case, I'll bolus again to bring it down, but it does... Wed, 2 May 2007 11:06:37 EST Pre-cardio snacks? What do you find works for a pre-cardio snacks to prevent lows? I haven't gotten the hang of lowering my basals so I find it easier to just quickly eat something. I've been having 2 Raspberry Newtons before my walk but I know I'm going to get sick of them soon. :) Tue, 1 May 2007 22:51:32 EST Back in the saddle I lost my way for a few days but I'm back! My mom was hospitalized last Wednesday so I went down to NJ Friday-Sunday to see her and spent the weekend eating junk food. :) Tue, 1 May 2007 10:21:02 EST Water water everywhere Yesterday morning, before the alarm went off, I was having this dream about not being able to find a glass of water. I kept half waking up, then going back to sleep. Finally, I realized that my mouth was dry and I had to pee. I got up, got a drink, used the bathroom, then decided to test myself. I was at 205 mg/dl! <BR> <BR> I've had dreams relating to lows before (dreaming about cake and pies and candy, lol) but never highs. Has anyone else had this? I figure maybe since I'm in such tight c... Tue, 24 Apr 2007 14:00:37 EST DKA story? Ok, I had just a small brush with DKA but then again, not really...LOL! I had bg's of about 300-400 and was on MDI (this was last Feb.) I was breaking from my pump b/c of insurance issues...anyhoo. So I was on my Novolog all day long, actos, symlin and 60u of levemir (pen) at night. When I went to the hospital with lower back pain and high sugars and a UTI he said if it weren't for my levemir I would have been in DKA. That is as close as I have gotten to this. My husband does not under... Mon, 23 Apr 2007 00:22:31 EST Anyone like Freebies? Here is a free pedometer... <BR> Fri, 20 Apr 2007 12:15:33 EST Littleengine Where in TN do you live? I am in Clarksville. I saw that you look close on the team map. Thu, 19 Apr 2007 19:10:27 EST T1 "quiz" by the CDA Reposting this from a livejournal diabetes community. It's related to what we were just talking about with writing letters to editors. <BR> <BR> "The CDA has a quiz for people with type one. I'm... fairly upset by it. It's here: <BR> <BR><BR>22CA9EF9F4152A41BFF4BF9837105.aspx <BR> <BR> It draws from a database of questions, so you might not see the same questions I did. Example: it asks: <BR> 2. What do diabetes pills do? <BR> <BR> - They help keep... Thu, 19 Apr 2007 14:09:06 EST insulin:carb What is your insulin to carb ratio? <BR> I take 15u every meal plus a 1u per 5 carb ratio. Thu, 19 Apr 2007 08:53:24 EST camping This was on one of the other forums and thought about it this morning... <BR> We are getting ready to go camping this weekend. Does anyone else camp? If so, how do you do your diabetes with the camping? I took my pump off for the weekend as I am more physical when camping with paddling the canoe and fishing. Thu, 19 Apr 2007 08:52:28 EST exubera This is the inhaled insulin...anyone tried it or know of anyone on it? What is the experience? Thu, 19 Apr 2007 08:50:10 EST Complica tions... Have you had any complications with your diabetes? <BR> Wed, 18 Apr 2007 23:34:18 EST Orals and Insulin? Do you take any oral meds with your insulin? <BR> I don't think mine helps any but I have Actos 45mg. <BR> I also take Lexapro 20mg to help keep the edge off of my day, was given this after my stroke. Wed, 18 Apr 2007 23:33:50 EST What insulin are you on? What kind of insulin do you use? <BR> I am on Novolog. I used to be on R/Nph mix (long time ago) and then went to Humalog but developed a pregnancy I am with Novolog. Anyone have experience with Apidra? I was told you can pump with it too! Wed, 18 Apr 2007 23:32:33 EST How many children do you have? As I said previously diabetics are not seen with more than 2 children so I am curious how many everyone else has. We have 4...Jacob is 8, Emily Rose is 7, Jesse is 5 and Elizabeth Anne is 3. Wed, 18 Apr 2007 23:30:49 EST Your diabetes story... How did you find out you had diabetes? <BR> I found out at a walk in clinic. I was so sick with bronchitis and had a UTI and did a urine test and I was red flagged for a huge amount of glucose. I had gained 65 pounds within a month and a half from my depo shot (bc). <BR> I was sent to an endo for further testing and found out I had a slight case of T2. I was just diet and exercise control. Then I started having babies and each pregnancy progressed my diabetes and I was put on shots in the... Wed, 18 Apr 2007 23:29:34 EST How Long have you been diabetic? I have been diabetic for 11 years. Wed, 18 Apr 2007 23:25:31 EST No carb treats/snacks? My favorite is string cheese. It has calcium and protein and it doesn't raise my blood sugar! I'm a big carb lover so I usually don't find non-carb items satisfying. This, on the other hand, makes me forget that there are no carbs. <BR> <BR> What are your favorite no-carb treats? Tue, 17 Apr 2007 14:50:32 EST Water requirements I've been doing really well with the 8-8oz glasses of water a day suggestion on SP. So well, in fact, that this weekend when I didn't get my 8 glasses, I was thirsty all day! I kept thinking my BG was high but lots of testing and re-testing proved otherwise. How weird. Mon, 16 Apr 2007 11:29:14 EST 80% of the US doesn't know t1 exists This is a depressing study: <BR> <BR><BR><BR>lang=en_US <BR> <BR> Some key stats: <BR> * 78 percent of those polled did not know the difference between type 1 and type 2 diabetes <BR> * 67 percent of the population mistakenly believed there is a cure for type 1 diabetes <BR> * Only 51 percent knew that there were two types of diabetes <BR> <BR> I don't know about all of you but I'm sick of being seen... Sun, 15 Apr 2007 19:23:59 EST GREAT endo appointment today! I had a pump follow-up with my endo office today. The nurse practitioner I see, Gayle, was really happy with my progress and control. She called me one of her most motivated patients! I've never been called that before! :) <BR> <BR> She also wants me to think about the continuous glucose monitoring sensor. Is anyone on the minimed one? She showed me the new sensors and they're pretty tiny! <BR> <BR> I'm pumped and wanted to share it with some people who would understand the feeling after a ... Fri, 13 Apr 2007 15:14:35 EST stem cell therapy My mother-in-law heard a report on the news this morning about some researchers that have done some research into the effects of stem cell therapy. They have seem some success - one individual was able to be off insulin therapy for 36 months! HOWEVER, the study was conducted on 15 people, had no control group, and one of the 15 had either no change, or very little (I'm not clear on which). Also, the time off insulin therapy spanned from 1 month to 36 months. It's all very new, but it loo... Wed, 11 Apr 2007 11:03:35 EST Pumpers? Hey, anyone here pumping? I just started on a Paradigm 722 about 2 weeks ago and I'm loving it. <em>213</em> Sat, 31 Mar 2007 00:35:55 EST Omnipod Any thoughts? I'm curious about it. Mon, 26 Mar 2007 16:07:04 EST Testing How often do you guys test your BGs? I've been testing 6+ times a day, before and two hours after my meals and then if I feel off. Well, my doc refuses to give me strips for testing for more than 4 times a day. I'm going to an endo in a week, but this doc has got to go! I was just curious how often everyone else tests. Tue, 20 Mar 2007 14:52:34 EST Symlin Just wondering if anyone is on it or thinking about using it? Tue, 13 Mar 2007 10:36:25 EST low glycemic index diets I was wondering if anyone in here had tried eating a diet of foods with a low glycemic index, and if that had helped keep their blood sugar from spiking? Mon, 26 Feb 2007 18:42:04 EST New to this team Hi! I've been reading/posting in the other diabetes team and saw a reference to this team when I was browsing the older topics today and thought I'd post here. It's nice to have other type1's to talk to and bounce ideas off of! Sat, 24 Feb 2007 16:01:05 EST Cinnamon I recently heard that taking cinnamon in the pill form can help reduce the amount of insulin you need to use to keep your sugars down. <em>91</em> Have any of you tried this? <BR> <BR> Happy New Year! Tue, 2 Jan 2007 19:42:58 EST Low blood sugars? Hi all! I was wondering how you're coping with low blood sugars now that you're on the spark. Lately, I've been having really low readings in the mornings-- which tends to accompany exercise. My husband usually gets me some juice to get me going in the morning and I've adjusted my basal rates a bit. Is anyone else experiencing this as well? <BR> <BR> And are your blood sugars erratic at all? Mine have been really up and down during the day. GRR! Sat, 16 Dec 2006 12:54:34 EST Anyone use Symlin? One of my big concerns has been my weight-- which as we all know is related to the amount of insulin we take on a daily basis. So my dr. put me on the new Symlin, which is supposed to be good for both 1s and 2s and helps over time to lower your over all basal and thus helps with weight. <BR> <BR> I've been trying to use it, but it's hard to be really consistent with it; and I'm particularly afraid to use it in the morning (my biggest carb meal) because when I work out, I do so in the morn... Wed, 13 Dec 2006 14:04:27 EST Med change I am working towards using a pump...The doctors just changed my insulin from 70/30 to Lantus and Aspart. I'm not having fun. My BS are all over the place. Just wish I could get it under control...Can't wait for the pump. Thu, 7 Dec 2006 07:50:07 EST Hello! <em>199</em> <BR> <BR> I am new to this site, but I was having trouble finding a team that dealt with Type 1 diabetes, so I created one. I only know three other people around me that have Type 1 diabetes, so it is hard to find opinions from people who truly understand what is going on... I use an insulin Pump (Minimed, Paradigm), and I recently got a Dexcom monitor (24 hr glucose monitoring system). I love the pump, and have mixed feelings on the Dexcom. If anyone else is using they De... Sun, 19 Nov 2006 21:06:28 EST