SparkPeople Caregivers Support Team Messageboard Being a caregiver is rewarding, but can also be very stressfull. This is a place for caregivers to meet, get tips, laugh, cry or vent. SparkPeople Caregivers Support Team Messageboard Caregiver, overnight. Lost sleep Hope’s for a good night sleep, would have been good , but not received, <BR> Going to Lenten learning after 08:35 Am weekday mass this morning, (signed up), despite the many wake-ups overnight. ( note: I need to be job searching for P.T. Work) <BR> My husband and I bedroom door was closed, yet, awakened to the sound on the other side, not an inside voice, a loud one, Sis says,” I can’t sleep”, my insides hurt, I think I have the flu”, me, groggy this the 3rd time, make some tea,.....I’m slo... Thu, 14 Mar 2019 07:49:06 EST Trying tp place hubby in a skillednursing facility 3-6 month wait or longer <BR> <BR> I had no idea about this. It is very frustrating. <BR> <BR> chris Sun, 14 Oct 2018 13:34:28 EST Chat Your Way through 2017 ! Let's put 2016 to bed and keep 2017 awake through December! <BR> <BR> Enjoy the 2nd Month of a New Year! Mon, 6 Feb 2017 11:37:41 EST Chat Your Way through 2016! <BR> I heard you Laura! Thank you. <BR> <BR> Let's start fresh with this thread and Let the old pass slowly into history. Start some new chatter and new venues for the coming year.. <BR> <BR> Lets ring in the New Together..... Michele Tue, 12 Apr 2016 13:50:07 EST I am wondering ? Hi my name is Alrae T for those who have not met me yet. I am a 24/7 care giver for my spouse, Denis, who had a traumatic brain injury while on vacation in Belize. He was struck in the head and left leg by a boats propeller. This left him with paralysis on his right side. He spent a total of 8 months in various hospitals before I brought him home. It has been 8 years now. Denis has deteriorated in the last year he is weaker and because the brain injury affected his speech (aphasis) he has har... Sat, 19 Mar 2016 09:43:19 EST Where did everyone go ? After 8 years of caring for my husband who has a traumatic brain injury and has paralysis on his right side. I came to realize certain things as inevitable. The first year was hard but I had a lot of support from family, friends, and parish. Denis spent 8 months in hospitals and because we were so active in our parish and community.We had people call and drop by for a visit. The ladies dropped off food for us the first few month and money was raised to help cover our cost while were were in M... Sun, 28 Feb 2016 14:50:03 EST Some things are inevitable ! After 8 years of caring for my husband He has a traumatic brain injury and has paralysis on his right side. I came to realize certain things as inevitable. The first year was hard but I had a lot of support from family, friends, and parish. Denis spent 8 months in hospitals and because we were so active in our parish and community we had people call and drop by for a visit. The ladies dropped off food for us the first few month and money was raised to help cover our cost while were were in M... Sun, 28 Feb 2016 14:40:27 EST One of those days My hubby, Denis, was admitted to the hospital this past weekend for yet another bladder infection. He came off the antibiotic on Monday and by Friday I had to call an ambulance to bring him to the Emergency department. <BR> After two days in intensive care on antibiotic, he rebound and is in a regular room today.He can only use one antibiotic,his body is resistant to all the oral medication and a few of the intravenous antibiotic. So the only one left is the one he is on now and we know at so... Tue, 23 Feb 2016 17:02:51 EST We are all going through struggles. I know that I am new here but I was hoping with this caregiver team that I would find kindred spirits. We all go through daily struggles as caregivers 24/7 and some of us get to go outside the home more than others. Life is about balance and even in the most trying circumstance I try to find that balance. I have been care giving for my spouse Denis for 7 years. He had a boating accident in 2008 and went from health and robust to totally dependent in one tragic day. We were two months from re... Sun, 14 Feb 2016 11:22:59 EST Asking for prayers Good morning! It has been since Oct 12th 2015 that my Denis has been struggling with an antibiotic resistant bladder infection. He has been on an IV Pump at home since October and the last dose goes in today. He is looking forward to a shower in his chair tomorrow after all these months. <BR> He has had bladder infection for 7 years on and off since his accident in 2008. He was in a rehab hospital when he contracted it. Since it is resistant to antibiotics there is only one intravenous antib... Sat, 6 Feb 2016 09:59:00 EST Nice to meet you Hi, I've just joined and would like to introduce myself. My name is Lara and I am a caregiver to my disabled husband. I've been taking care of him for just over a year following him suffering a series of strokes from an extremely rare disease called Moyamoya at the age of 33. Nearly two dozen strokes later, two brain surgeries across the country, and multiple stays in the hospital...the weight began to pack on. We used to be very active prior to his disability, I even ran in 5ks. This di... Sun, 31 Jan 2016 11:49:19 EST My life is changed, forever. my husband was just recently diagnosed with Huntingtons disease. Its fatal disease with no cure. There are tons of symptoms.. the brain is slowly dying and taking away my husband and making him into a different man. Right now he hasn't had any movement issues as of yet, right now its just easily angered/anger issues/easily irritated, OCD about everything (i can't do anything without being reminded I'm doing it wrong) very bipolar acting, on and off. I feel like I am watching my husband battl... Sun, 17 Jan 2016 17:10:38 EST What did you do today that was HARD? I've had to deal with a lot of challenges in my life, from childhood through two "difficult" marriages; plus with my health, especially since the brain/spinal injury. <BR> <BR> When I began a new chapter about 18 years ago with a commitment to my now-DH, the unrelenting pressure was greatly eased with his kindness and stability. <BR> <BR> Facing hard times is hardly new to me, but THESE circumstances are! DH has always taken care of me, and now the shoe is firmly on the other foot. <BR> ... Thu, 15 Oct 2015 14:17:03 EST Hello I just wanted to say hello. I am a working Mom with 2 adult children who are living with Duchenne Muscular Dystrophy. I feel blest to telecommute so that I am here for my youngest son on a daily basis. I am also blest to be in a very loving relationship with my husband who is very helpful with the boys and around the house. I am hoping to gain positive ideas about living a balanced life, spiritually, emotionally and professionally. I am grateful for this team and I hope to also share som... Tue, 13 Oct 2015 22:14:36 EST Just getting around to that introduction... Hi everyone. My sibs and I are caregiver for our mom, and to a lesser extent our step-dad. My sisters and I are also trying to take care of our brother, which falls mainly on me and brother. I'm not a day-to-day caregiver, so my challenges are different from what most of you are facing, but we are all struggling with this situation. <BR> <BR> My mom is 90, my step-dad is 87. My mom was doing really well (we thought) until she slipped on the ice in January and sustained a head injury. My bro... Sun, 23 Aug 2015 12:41:54 EST Seems like it is a long goodbye My mother is barely eating now. She puts food on her plate but only eats a few bites. On the surface she looks like she is doing ok, but she is so tired, and she begs for headache pills every few hours. I don't know if it will be her heart, or a stroke, or her COPD that finally takes her, but I don't think she will last more than a few months. All the relatives came last weekend, so that is done at least. <BR> <BR> The newest battle is with my husband's dementia. He was hallucinating th... Sat, 22 Aug 2015 00:17:06 EST New here Hi everyone, <BR> <BR> I am a caregiver who is disabled myself, I have physical ailments and I have bipolar disorder. I am the solitary caregiver to my mother and my father as well. My Mother has had brain surgery last November for water on the brain, she now has what is called a ventroperitoneal shunt, which drains the excess fluid around her brain. She had a myriad of illnesses afterward, a series of infections, shingles, diverticulosis, a seizure due to not eating, and major depression... Thu, 13 Aug 2015 09:32:03 EST New to team Hi everyone, I got this link from the depression group. Hoping it might help. Little bit about my situation: I am 35 years old and have struggled with depression since I was 16. For the most part I feel that I have it under control. But I got married last year and the planning of course was stressful. Just months before our wedding my husband achieved his goal of becoming a big rig driver. However, just 2 months after we got married he had an accident where he blacked, the doctors couldn't fi... Sat, 8 Aug 2015 17:56:48 EST Feeling so depressed I am a carer for my husband who has BPD and bipolar, he has been up and down(3-4 up and up to 12 weeks down) for over 15 years but it is getting worse. I have done my best over the years to help him but he will not cooperate with me or the doctors so I am at a loss at what to do, he has tried most of the tablets for both conditions. <BR> He hate it when he is alone but I need space to be able to cope, I go to several craft groups and most of my friends know my problems but I don't like to go... Sat, 16 May 2015 13:57:01 EST Hello I'm Michelle from Oregon. I work as a caregiver at a 68 bed assisted living facility. I have been a care giver for 20 years. I love working with the elderly and there are times when Its great to vent and share stories with people who understand what it is like to be in such a demanding career. I look forward to working on our journeys! Fri, 20 Mar 2015 18:09:55 EST Hi everyone! My name is Heather and I am a 34 year old mom of 1. My son is 7 and has aspergers syndrome, my husband is a truck driver and is out 2 weeks at a time, and my mom (who lives with us) was just recently diagnosed with cancer. Life around here is pretty stressful right now and I don't get alot of time to focus on working on me. When I'm not stressing out about everyone else I like to play video games, mostly sim type games or tycoon games.I am also going back to school to get my high school diplo... Tue, 20 Jan 2015 02:43:28 EST Having troubling prioritizing myself Well I am at my heaviest weight ever. I can't blame everything on my husband or my situation I know that I am the one shoveling the food in. Holidays were tough for me. We went to visit my father in law who has early signs of dementia and this being his first Christmas without his wife was very hard. I felt that all I did was work the whole time I was there. On top of that he was sick which got my husband and I sick. I thought there would be a little me time to at least use the treadmil... Sun, 11 Jan 2015 13:22:24 EST Heart Failure Hi, my name is Nancy and I'm the co-leader of Fighting Fibromyalgia. I just found this team while I was giving out my monthly goodies. <BR> <BR> I'm retired and have lived with my partner for 12 years. Last year he was diagnosed with congestive heart failure and atrial fibrillation. He's slowly lost all the energy we had when we first met. <BR> <BR> We live in my house and I've taken over all the chores relating to it as well as taking care of him. It's a daunting task. I don't know i... Fri, 30 May 2014 07:00:48 EST Hello, I am new to doing caregiving as work relate I have changed from working in the kitchen, to doing caregiver in an assisted living facility and started this month in doing so. To do a routine which should be easy to pick up and do, most of those I work with have a routine down I should have one soon. Tue, 11 Mar 2014 21:03:34 EST 2015.....Let's Chat! Restarted this thread because not able to edit the date. That is only possible by going to the very first post. <BR> <BR> Michele Tue, 11 Feb 2014 20:52:45 EST Hello Y'all Hello, I'm 43 caregiver to an aging father and a severly mentally ill and addicted sister. I never thought of myself as a caregiver but as I look back over the last 20 years, I guess I am. This was a troubling and difficult week and I am here looking for any support and ideas to help me through. I have begun going back to ACA meetings for support. I am a professional singer and actor and it is a challenge trying to find the balance between it all. Thanks. Sun, 9 Feb 2014 03:04:48 EST Hello to all Hello to all, it as been a while that I have put a note here. I have been working on losing weight an have been doing it for a while I am taking it slowly and working on learning the different ways of others that is doing the same things as I am here. Tue, 14 Jan 2014 17:40:58 EST Loved ones with mental illnesses? Hey! Is there anyone here who is a caregiver to someone with a mental illness? There's a Spark Team for us: <BR> <BR> SUPPORTING CAREGIVERS OF MENTAL ILLNESS SUFFERERS <BR> <BR> Right now there are only two of us there who are posting. This little group needs more active members. <BR> <BR> I'm a caregiver to a sick old man who also has Borderline Personality Disorder. Surely there must be other caregivers who take care of someone with not only elder issues, health issues, but also men... Mon, 13 Jan 2014 21:03:08 EST Reaching Out - GOOD day fellow sparklers from Washington State - where are you creating moments of joy? Wed, 31 Jul 2013 07:21:27 EST Hi Hi everyone! <BR> <BR> I'm the caregiver for my mom, who is a stroke victim. Add to that caring for my 17 month old son and you can imagine the chaos I deal with. <BR> <BR> Any tips for dealing with a now wheelchair-bound mother and a hyperactive toddler is greatly appreciated. Thu, 25 Jul 2013 18:11:44 EST thank you for being there Hello <BR> Today was not so bad, a funny caregiver gave me a break for two hours. <BR> When i get to laugh i am much nicer to my mother. <em>247</em> Mon, 22 Jul 2013 20:46:31 EST dementia caregiver <BR> I am so happy that i was directed towards this site. <BR> I am bored, lonely, angry caregiver Mon, 22 Jul 2013 12:34:38 EST I am the caregiver for my spouse! After taking care of her for eight years straight, with a diagnosis of MS, Lyme Disease of the Brain and Dementia I decided to take a couple of days away. I went to Florida had the best time. Nancy was in a Respite bed at a local Nursing Home. Before I left she could talk, feed herself and do simple things. Upon my return she is in full blown Alzheimer's. She just is gone, I blame myself for leaving her for five days. <BR> Journeywomyn Sun, 30 Jun 2013 05:27:03 EST What do you do to keep your life in balance? I am trying to give my best to my husband, but also want to take care of me. I try to have 2 hours per day for exercise, meditation and some fun. It usually works well in the afternoon. <BR> My husband gave me gift cards for massages. He couldn't shop but wanted to treat me. Sat, 16 Feb 2013 14:11:42 EST my mom passed away She died on Feb 2. <BR> <BR> My teen daughter held her hand all that last night until she was gone. My mom looked very peaceful. She had continually said she did not want to die alone, she was afraid to. We were all there for her. <BR> <BR> Thank you so much for being there for me, especially at the beginning of my mom's illness. I appreciate your support and I hope I remember to visit often to offer support to others. <BR> <BR> Tue, 12 Feb 2013 08:48:34 EST Hard to leave mom alone My brother and I are doing our best to tag-team it as much as we can and we've made a schedule of people to do "sleepovers" with mom, leaving just 2 nights without someone to be with her. <BR> <BR> As for the daytime, that's another story. I'll be with her 2 days of the week but the other three are just mish-mosh: a home health aide will come every day for 2 hours, but that's not very much, and the hospice is trying to find her a volunteer (they wanted to send a man over the other day to spe... Wed, 9 Jan 2013 08:28:12 EST Hello, My name is Christina Here I am again, frustrated at myself for losing focus another year later. Sparkpeople continues to send me updates and emails to remind me that I had a goal at one time to lose weight and get healthy. As I sometimes say, life gets busy and we forget about me. I'm told three times is the charm. My husband has joined the bandwagon on getting healthy with me this time. My dad passed away a year ago after a 10 year fight of Alzhemiers. Mom passed 2 yrs before. I now have two beautiful grandbabie... Mon, 7 Jan 2013 14:49:04 EST It's been hard to speak so openly about death My brother will come out and say, very matter of factly to my mom, "Hey, next week let's think about going to the funeral home." <BR> <BR> I mean I admire his forthrightness, but it intimidates me a bit. <BR> <BR> My mom was talking to the palliative care nurse and said, "I just don't want my kids to suffer, I don't want to suffer." It was hard to hear, same as hearing her tell her family (they live on another continent) and closest friends her situation. She did it all without shedding ... Mon, 7 Jan 2013 08:53:00 EST I'm eating to comfort myself...too much I've been eating *really* poorly lately to comfort myself. It *does* work, at least in the 5 minutes it takes to eat the pizza, fried chicken, mashed potatoes, chocolate cake, macaroni and cheese, empanada, hamburger, french fries, butter-drenched popcorn, M&Ms, etc. <BR> <BR> I'm thinking about laying off the sugar, esp now while my mom is ill. I don't know if it's very realistic. <BR> <BR> I'm just feeling very run-down and want to have more physical/emotional energy for everyone in ... Sat, 5 Jan 2013 20:10:36 EST My mom was given 4 months to live The oncologist verified that she has pancreatic and bile duct cancer. <BR> <BR> My brother told her everything. I called her and she was incredibly strong. She just said she wants to get her affairs in order and even plans on stopping by her place of employment to say goodbye. <BR> <BR> So now we're arranging for palliative care. <BR> <BR> I still feel guilty that I didn't go through all the hell my brother's been through today. <BR> <BR> Fri, 4 Jan 2013 13:12:58 EST How does a caregiver take care of themselves? I'm curious...all i can think about, do, feel, focus on is my mom and how she is, what i need to do on her behalf, etc. How do you fit in taking care of yourself when you also have a husband, kids, a full time job, etc?? <BR> <BR> My mom was admitted to the hospital today and my brother stayed overnight with her at the hospital but I just couldn't do it. I don't want to stay overnight. I feel like this is going to be a long, long journey and I have to pace myself. <BR> <BR> We went thro... Thu, 3 Jan 2013 19:12:31 EST Stroke survivors "rewind" recovery with illness My husband, who's a stroke survivor, recently had some major oral surgery. I expected him to be really groggy after the procedure, but I was unprepared for the extent of his setback and had not arranged sufficient care for us both. <BR> <BR> I forgot something his neurologist told me two years ago: when a stroke survivor has an infection or some other shock to the body (he didn't say it, but I bet major sedation dentistry counts), they can "rewind" (his word) their recovery, often seeming to... Sat, 8 Dec 2012 03:43:41 EST Howdy from New Mexico I'm Scott and among other roles i'm also the primary caregiver to my partner Wes, who suffered a MCA ischemic stroke in July of 2010. <BR> <BR> In the years prior to his stroke Wes often took Amtrak out to his hometown of Los Angeles to help care for his mother, who had a string of serious physical ailments. In May of 2009, those trips culminated in his mother moving to New Mexico to live with us because her progressive dementia rendered her incapable of living on her own. <BR> <BR> On... Mon, 29 Oct 2012 21:20:37 EST Hello, I'm new to this Team! I have been a caregiver for my dear Mom, a total of 5 years on Oct. 31. <BR> My step-dad passed on that day. Since then, I have conducted all of <BR> Mom's business and taking care of her. <BR> <BR> Mom will be 93 on Nov. 16. She has been falling lots for a few years. <BR> She has had mini strokes and a somewhat crippled foot~caused by <BR> a fall. In the last week of July, she took a hard fall and stayed in the <BR> hospital for 4 days. From there she was admitted to the nursing home. <BR>... Mon, 22 Oct 2012 14:21:57 EST Honest talk about caregiving- a new website. The website is finally getting some action. People talk about everything! <BR> <BR> Please give it a try and tell us if it helped you! thanks, Chris <BR> <BR> <BR> <link> </link> <BR> <BR> <BR> "How is Your Day going" is the forum that is the most active right now. good luck! Fri, 17 Aug 2012 17:35:56 EST Hi - I'm new to this team! I am 56 yro caregiver with my brother to our Mom. I stay with my Mom and her companion most of time. I am a widow of 2 1/2 years and I have one daughter. Thu, 12 Apr 2012 16:00:15 EST Hello all :) My fiancee Jim had a stroke a month ago & I am his only caregiver. I love him so much & it breaks my heart to see my very active darling in his current condition. He has no one but me & I make sure he never sees me upset or frustrated because, he has enough on his mind without thinking that he is a burden to me! I see little improvements each day but he has a long way to go.....right now we are learning a new normal. I'm glad to find this group <BR> <BR> Jeannie Sat, 17 Mar 2012 07:53:27 EST jokes for caregivers--to lighten up <link><BR>ve/spring2003.html#Anchor </link> <BR> <BR> <BR> chris <em>247</em> Thu, 26 Jan 2012 12:09:27 EST 2012.... let's chat!! :) can you guys believe it's 2012 alreayd??? wowzer's!!! <BR> Anyways, here's our chat thread for this year! :) Mon, 2 Jan 2012 14:42:08 EST Hello, It's Me! Even though my start date shows sometime in the past, I am officially starting my SparkLife this month. If you look at my SparkPage you will read why I am finally getting on board. Right now I am taking baby steps by lurking on the board and weeding through all of the many options and activities there are in SparkPeople. That's what I love - something for everyone! And it keeps me busy rather than eating. But as I get more active in managing my life, I will also get more active in the bo... Wed, 28 Dec 2011 10:08:20 EST Hi I was happy to find this group. I live with my Mom who suffers from neuropathy. I hope here I will find friends for support and I hope to also give support to others. Sun, 27 Nov 2011 03:10:47 EST SPARKS RALLY IN MONTREAL CANADA Are there any Montrealers in this group. We would like to invite you to our rally. It will be held in January (date to be confirmed). It will be a walk/talk/lunch activity. We would love to have you with us. If you are interested please contact me. dianne, Team Leader of Sparks Montreal. Fri, 18 Nov 2011 17:50:04 EST THINGS TO THINK ABOUT bY THE TIME YOU'RE EIGHTLY YEARS OLD <BR> YOU'VE LEARNED EVERYTHING... YOU ONLY <BR> HAVE TO REMEMBER IT. George Burns <BR> <BR> Have a good evening everyone. Mon, 14 Nov 2011 19:27:20 EST The Guilt of placing a family member into care I have had to do this several times in my life and it is always heartbreaking. My son with autism had to be placed "respite for almost a year" because I had had surgery and was unable to care for him. I had to place him again when he turned 15 as I was no longer able to care for him. My daughter was sent to "juvvie" because of her serious and dangerous behaviors. She now lives on her own. <BR> <BR> And now I am having to do it again with dh. I know it will be good for both of us. He do... Sun, 6 Nov 2011 19:47:42 EST DAY LIGHT SAVING TIME DON'T FORGET TO TURN YOUR CLOCKS BACK 1 HOUR AND ENJOY EXTRA SLEEP. ENNAID Sat, 5 Nov 2011 23:24:49 EST I'M NEW Hi everyone, I just found this site, it is really up my path as I have been a caregiver for longer than I like to think about. <BR> 1. I adopted a baby boy (supposed to have mild development delays.) Turned out that he had Autism, Frontal Lobe Epilepsy, severe mental retardation, Tourette Syndrome, Chronic Pancreatitis and Juvenile Polypsis (tumors in his intestine, for which he had to have removed 5 times. This is just to name a few. <BR> <BR> 2. After my son, we adopted an 8 year old g... Tue, 18 Oct 2011 20:26:08 EST Caregiver community website? Is there a website or more for caregivers with a forum? I've tried google, but I haven't be satisfied with the results. I'm especially looking for something aimed at caregivers in their 20s. If anyone knows of anything, please let me know! Thu, 15 Sep 2011 11:05:35 EST Hello My name is Lois and in the last year...I got married and became the caregiver for both my parents. My mom had a massive double stroke that paralyzed her left side. My dad had quadruple bypass her surgery. Its been very difficult trying to handle everything and still maintain my job as an administrator in an elementary school. The ironic part of my life is I was a teacher for special needs children for over 7 years. I gather God knew what he was preparing me for. My days seem to never en... Fri, 8 Jul 2011 22:39:40 EST Let me introduce myself! Hi! My name is Kim Cowan. I am a caregiver to my Uncle Terry. He is 57 years old and has cerebral palsy. He lives with my husband and daughter and me in Tennessee. Right now, Terry just got out of the hospital for colon reattachment surgery and a hernia repair. He is VERY weak from being in a hospital bed for 9 days, and is currently at a rehab facility. He may be there for a few weeks until he is able to come home. <BR> <BR> Terry was able to walk unassisted with a walker before his surger... Sat, 11 Jun 2011 23:01:23 EST Giving up I am giving up on taking care of DH. He doesn't want to live anymore and no matter what the doctors and I do he doesn't co-operate at all. I am at the end of my hopes and dreams, my patience and my happiness. <BR> <BR> DH's father died at an age of 49, his grandpa died at 46. DH will be 42 in 2 weeks. He thinks he has to die in his 40's also. There is nothing I can do anymore. So hard to see DH this way, knowing that I love him so much and hat I want to keep pushing him to get better. <BR> ... Fri, 3 Jun 2011 07:26:03 EST Keeping peace with step-DD <BR> My Step DD (who is bi-polar) expects me to call her anytime there is any change in her dad's health condition because it is her right to know everything after all she was his daughter first and my husband second. She believes her dad still owes her for her parents divorce 16 years ago, and our DSs and I are trying to ignore her. <BR> <BR> I have tried to explain to her that he does have his good days and his bad days and he is the most stable as he has been in 4 years (actually broke ... Thu, 7 Apr 2011 19:47:17 EST Why is it....? Why is it that I want to run away lately or just hide when DH is in a "weird" mood? Seems I can't do anything right lately. He gets upset for the tiniest things, things that ... I just don't know. <BR> <BR> Is it bad to say or feel I want a way out? Is it bad to say I don't know if I can keep going this way? Is it bad to say I am tired of this? Sun, 6 Mar 2011 02:10:08 EST Interesting story about caregivers Hi! I wanted to share this blog post with the team: <link><BR>_caregivers_survival_guide </link> <BR> Woman's Day's current issue is all about caregiving. It has some great resources. Interested to hear your feedback. <BR> Have a great day! <BR> Stepfanie <BR> editor, Tue, 22 Feb 2011 13:07:49 EST New to Spark Hello all. I am 63 and a caregiver to my husband, who is 15 years older and has Parkinson's disease, congestive heart failure and other problems. We are very limited in what we are able to do. I spend entirely too much time feeling depressed and need to focus on positive things, of which there are still many.I don't have much weight to lose, but do need to live healthier. I used to exercise, but am now totally sedentary. Am hoping to find inspiration here to help me get moving and live better... Fri, 14 Jan 2011 14:49:29 EST 2011 caregiver chat thread :) Good Morning and Happy New Year's everyone!! <BR> <BR> We stayed home yesterday, which was a good thing! I went to bed around 10, telling DH to try to wake me up around 11:30. I woke up around 11:45 (I think! My new watch seems to have gotten re-set sometime during the night- but I think it happened after this!)--- I laid there about 10 mins, I was too tired to get up. fell back asleep until almost 2 (this is when I realized my watch had been reset-- it said 6am july, to Dh out... Sat, 1 Jan 2011 12:21:24 EST Physical and mental illness Here are the pieces of the puzzle: <BR> My sister: <BR> -is divorced from her mentally and physically abusive husband <BR> -he calls her at least once a day "because of the girls" <BR> -she is unemployed and living with my parents (about 2 years now) <BR> -takes prescription meds for her back injuries (from incorrect lifting at a job) <BR> -going blind <BR> -is an alcoholic <BR> -not all there mentally <BR> -does not want to "give up" and fight for disability (can't afford the lawyers needed)... Wed, 13 Oct 2010 11:47:25 EST Favorite Sept. memories No matter which hemisphere you live in, September is a time of change. <BR> For most of us, it's back to school time, Labor Day holiday, and summer is ending & fall starts. <BR> <BR> What are some of your favorite memories or traditions for this time of year? <BR> <BR> We don't have kids, & live on a fixed income, but we always try to get a couple $ worth of school supplies to donate (to school supply drives).We also stock up on any school/ office supplies we may need (but don't seem to ne... Mon, 30 Aug 2010 11:21:57 EST will be MIA Just to let you all know that I will be MIA for a while. There has been an issue that I can no longer avoid if I want to save our family. <BR> <BR> I am not sure when or if I will be back. <BR> <BR> Thanks for all your support. Mon, 2 Aug 2010 11:24:24 EST Breakdown I don't know what it is but I am feeling so down lately, so helpless and so anxious. <BR> <BR> Yesterday I broke down. I cried after DH was told that PT would not help him anymore and he needs to get better on his own. He just took off back out to the car and I was left crying and picking up all our things. I cried all the way home, at home for hours and then at night again. I couldn't sleep again last night. I even ate a huge bowl of ice cream with lite cool whip and hot fudge. <BR> <BR> ... Wed, 28 Jul 2010 14:32:31 EST QOTW: favorite snacks sorry I haven't gotten to do this for a while.... <BR> but here's this week's Question of the Week-- <BR> <BR> What is your current favorite snack?? <BR> It can be something super healthy, but doesn't have to be! Remember, we can have 'treats' in moderation :) ! Sun, 13 Jun 2010 11:19:34 EST Emotional stress eater? get &give support & tips I'm sorry I didn't think of this before, since as caregivers, we have so much stress & emotions that we deal with in our lives, sometimes people try to deal with their emotions or stress by eating, but anyways, I though it would be a great idea if we could have a place to talk about struggles with emotional/ stress eating and to share tips on how to deal with it in a healthy way. <BR> <BR> <BR> Thank you to new team member MICHELE_SUE for giving me the idea to start this thread. I appologi... Fri, 11 Jun 2010 15:17:19 EST Caregiver Support Groups Hi, <BR> <BR> I was wondering if any of you attend caregiver support groups. If you do, do you like them and are they helping? If you don't, why not? <BR> <BR> I'm going to be attending a support group for Alzheimer's on Tuesday night (I've only been to one a few months ago), but I think I'll check with our local hospital, too, to see if there is a more general caregiver group in my area. Sometimes living in a small town limits my options. Sun, 6 Jun 2010 12:55:27 EST Where Are You From? Just wondered where everyone's from. I'm live in a small farm town in northern Illinois. Mon, 31 May 2010 20:49:01 EST Checking In Hi, <BR> <BR> My name is Christi. I'm divorced with no children. I live across the street from my parents. My dad has Alzheimer's. My mom is crippled from a head-on collision back in the early 1990's. <BR> <BR> Dad still remembers who we are and can speak, but he can't express himself (feelings, can't find the word) or remember what he had for lunch. He has a hard time reading and struggles to follow the plot of a movie. He mixes up his medications and has had a few inappropriate lang... Mon, 31 May 2010 19:06:31 EST Anyone else feel like that? I thought the stress will be less that DH is home for 2 months now but it actually has gotten worse. We are always on the go, barely home. My kids don't listen to me anymore. They totally ignore their Dad because he can't speak. Everything is up to me now. Even though I am sick I still have to pull all the weight around here. I just want to scream. <BR> <BR> Anyone else feel like this? Sun, 16 May 2010 19:46:54 EST Good Morning Hi, I am the sole caregiver to my husband who suffered a severe stroke in January this year. He is only 40 years old. I am also now the sole caretaker of our three children, ages 14, 11 (has ADHD) and 8. <BR> It hasn't been easy from the night DH had his stroke and I had to call 911 (they hung up on me after saying that if there is a change in his condition to call back - I am looking into legal actions). <BR> My family is all in Germany and they are too far away to help me out with either ... Wed, 12 May 2010 09:07:34 EST poll: Are you one of the '1 in 4 caregivers' who.. Today on Facebook, the group 'Campaign for Better Care' posted this as their status: <BR> <BR> <BR> In 2007, nearly 1 in 4 caregivers cut back on spending for their own health or dental care to help with the expenses associated with caring for their relative or friend. Invite your friends and family to join the Campaign for Better Care to help us ensure that caring for your loved ones won't mean sacrificing your own health! <BR> <BR> <BR> I think it's great that someone is finally tryi... Fri, 30 Apr 2010 23:17:45 EST Advice for newbies Sparkpeople can be a very overwhelming place for newbies (it even is sometimes for us old-timers! <em>246</em> )...even moreso for us that are alredy overloaded & overwhelmed with our jobs/ lives as caregivers. I thought it would be a good idea to have a thread where newbies could come ask questions/ get advice and whatnot. <BR> Sat, 10 Apr 2010 00:23:15 EST Signing off I have not been an active member of this team but I have appreciated having you there at the times when I have reached out for help. <BR> <BR> When I joined my MIL had been living with us for about 4 years. Last July she moved into an Adult Family Home under duress but forced by her doctor. We were supportive of his decision and it wasn't until we were confronted with it that we realized that we were in over our heads and that this was the healthiest move. <BR> <BR> She never really settled... Wed, 17 Mar 2010 00:44:29 EST How do you make time for yourself? I'm trying to figure out how I can make time to focus on myself, when most of my time is occupied caring for my daughter and father or working. I've been making an effort to be back on SP. I'm working 3pm - 11:30pm. About half of my evenings at work, however, I don't get out until 2 or 3am. I've been coming home, watching the local weather on the weather channel and then, getting online to spend about 30 to 45 minutes on SP. I'll track my food first, then try to post or blog if it's not too l... Tue, 16 Mar 2010 23:02:46 EST QOTW : what's in your garden? Okay, so it will be spring here in the North sometime eventually, I know people are probably already thinking about what' they want to grow in their garden this year, so thought that would be a good question to ask. <BR> Or, at the very least, we can talk about what would be in our dream Sun, 21 Feb 2010 23:34:58 EST QOTW: What's your favorite sport? what with the Winter Olympics going on right now, and the American Super Bowl just last week, I thought it would be fun to find out what everyone's favorite sports to do &/ or watch are :). Also, is there a sport you've never learned & would like to? <BR> <BR> I like walking. used to like running, haven't done it in a while. Love hiking & riding my bike (when the tires aren't flat!). Swimming is fun...except I really don't like to get my face wet. <BR> enjoy watching bowling (love to bowl, ... Mon, 15 Feb 2010 23:01:14 EST You know you're a caregiver when/ if... I thought it might be fun if we had a thread about some of the things we do/ things that happen that only us as caregivers would understand! <BR> <BR> yes, our responsibilities differ somewhat based on our caree's needs/ ability/ disability.... but that's part of what will make this thread fun, I think. Most of my posts will be about wheelchairs & the like, some of yours may be about caring for some one who has a mental illness, ect. It will be fun to see everyone's responses. serious or fun... Mon, 15 Feb 2010 22:52:24 EST Quick Introduction.. Hello. I'm not good at introductions but will briefly explain my caring role. <BR> I am a carer to my 18year old son who is autistic, epileptic, has mobility problems,psychotic, self-harms,high anxiety, agrophobia.......list goes on. <BR> I am a single parent and the demands of caring is exhausting - as i'm sure you all know. My son has mental age of 6 but hormones of a 20yr old!He requires 24hr care & lives at home with myself and two brothers. <BR> I don't get any additional support from ou... Sat, 23 Jan 2010 10:53:08 EST QOTW: what's your screen name mean? What does your screen name mean? <BR> <BR> Mon, 18 Jan 2010 01:05:03 EST What are your goals for 2010? What are your goals, or resolutions if you wanna call them that, for 2010? <BR> <BR> And what are your ideas for rewards for meeting your goals? <BR> <BR> I posted my goals in a blog last week. <BR> <BR> Not sure if I can remember them all, but here goes: <BR> <BR> -exercise at least 10 mins per day 5-7 days a week. <BR> -track at least one food item every day at least 5 days a week. <BR> -fit into my size 18 jeans. and then, of course, my size 16's <BR> -bike or run/ walk at least one ... Tue, 12 Jan 2010 00:25:14 EST Early 2010 Caregiver Chat thread :) HEre's our new chat thread for 2010! THis year, instead of having the same chat thread thread for the whole year, I thought I'd start this one for about the first half of the year, then around July I hopefully will remember and will start a new chat thread for the rest of the year. Let's see how it all goes! <BR> <BR> I've been dealing with indigestion/ acid reflux or something, plus a general lack of energy, plus being there for Tygh, so haven't been feeling like doing much, especially exer... Sun, 3 Jan 2010 00:44:41 EST My name is Kim - new member Hello, My name is Kim and I am a new member to Sparkpeople. So far I like it and I think this is going to help me. In 1999 I lost 160 lbs and after our youngest sons car accident that almost killed him and left him mentally disabled. We take care of him 24/7 and it can be VERY challenging. <BR> I have gained back 45 since his accident 5 years ago. I would really like to get refocused on this, for me. Mon, 28 Dec 2009 19:09:02 EST Anyone wanna join me in an end of year challenge? I was just sitting here reading some posts (from this team & others), and thought of a possible idea for a challenge, and want to see what you guys think/ if anyone else wants to join me. <BR> <BR> I've always thought that the 'loose a pound, donate a pound of food', or those 'loose a pound, add a $ to your savings jar' that some groups do, especially this time of year sound cool, but seeing as though I only loose 1 lb about every 3 months, i didn't ever want to join a challenge I knew I wou... Sun, 29 Nov 2009 18:36:58 EST QOTW 11/30 Holiday shopping I meant to ask this one last week, but had too much other stuff going on! <BR> <BR> Have you started your holiday shopping yet? are you finished already??? (lucky you!) did you go shopping on Black Friday? Sun, 29 Nov 2009 10:55:39 EST Holiday gift ideas for those we care for..... For my dear husband: <BR> <BR> -lift chair <BR> -diabetic shoes <BR> -some new sweatpants <BR> -a couple of scratch of lottery tickets <BR> <BR> I was just wondering what gifts you are thinking about for the person you are caring for. Please share as it could help spur ideas for others. Fri, 27 Nov 2009 07:38:44 EST A devotional just for us... I've been subsrcibed to Joni & Friends Daily Devotional for over a year now. Joni was paralyzed in an accident 20 or so years ago, and has developed a ministry for people with disabilities and their families. and part of that ministry is sending out Daily Devotionals. Most of the time they're about people with disabilities, but yesterday's was a perfect one for us :) <BR> <BR> <BR> Joni and Friends Daily Devotional <BR> November 20, 2009 <BR> <BR> <BR> It's All in the Family <BR> <BR... Sat, 21 Nov 2009 11:13:04 EST Opinions or advice on medical power of attorney I am running into issues with our mail order pharmacy when talking with them about DH's medication orders. Now they tell me I need a medical power of attorney for him in order for them to talk to me. <BR> <BR> Has anyone had a medical power of attorney drawn up for the person you are caregiver to? If so, do I need an attorney or can you point me to a web reference for them? Thu, 19 Nov 2009 07:25:39 EST QOTW: what kind of exercise do you enjoy? What type of exercise do you enjoy doing? <BR> What exercises do you NOT like? <BR> <BR> Sun, 15 Nov 2009 19:48:03 EST QOTW: What's your favorite color? What, if anything, is your favorite color? Sun, 1 Nov 2009 22:26:52 EST QOTW: Oct 25 What'cha doin' for Halloween???? What are your plans for halloween? <BR> <BR> Are you gonna dress up? <BR> <BR> Going to a party or trunk or treat, or hosting a party, or going to get a way and avoid it all? <BR> <BR> and, of course, what about the Halloween candy??? <BR> <BR> <BR> Oh, and as always, if there is anything you need help or support with, or would like to see on this team, just let me know :)!!! I can't read minds... <BR> <BR> <BR> Sun, 25 Oct 2009 23:11:03 EST QOTW: List 20 things you're thankful for! sorry I didn't post a QOTW last week...i think my only excuse was being tired, and busy with other stuff... nothing new there... <BR> anyways, I wanted to post this one because, while it's not Thanksgiving yet here in the US, it was last week in Canada & other parts of the world.... so here goes... <BR> <BR> What are 10 things you are thankful for? Sun, 18 Oct 2009 23:09:08 EST gel cushion for electric wheelchair problems Do or have you cared for someone who used a gel cushion to sit on in their wheelchair? <BR> <BR> Have there ever been any problems with the cushion, like it breaking or bursting? <BR> <BR> I discovered this morning that, along a small part of the front seam, it had burst, and the lovely gooey gel was starting to come out. I think, with all the wheelcahirs he's had , this is the first one where he uses a gel cushion. He's had the chiar four years this month, so one more year exactly until Me... Mon, 5 Oct 2009 00:45:30 EST QOTW: What are your October Goals? What are your goals for this month? <BR> <BR> My goals are to continue drinking my water, work to keep healthy diet principles in mind, get my weight back where I'd like it, exercise at least 10 mins if not more a day. <BR> <BR> What about you guys? Mon, 5 Oct 2009 00:11:12 EST 9/27 QOTW: the seasons are changing! IT's a new season! For us in the north, it's fall, and for those in the sourthern hempisphere, it's spring! <BR> <BR> What you you like or dislike about this season of the year? <BR> What do you enjoy doing this time of year? <BR> what exercises do you do & foods do you eat this time of year, and is it different that other times of the year? Sun, 27 Sep 2009 13:26:12 EST QOTW: What healthy snacks do you keep on hand? I thought it might be fun to start a Question Of The Week (QOTW)... I will try to post this quiestion on Sundays, but sometimes it might not be until Monday or later, who knows... Feel free to Sparkmail me if you have ideas for questions to ask. I will ask questions on all types of subjects, from health, to caregiving, to just general questions. <BR> <BR> so, my question for this week is: what healthy snacks do you keep on hand? Mon, 21 Sep 2009 12:03:43 EST hello, hi, <BR> <BR> i am taking care of my mother and the things that i have to do or put on a list and do later. i do most things around the house and even fix the meals and make sure she gets to the doctors appointments as well. i have been checking around and reading what i can on the web site about the things she has wrong with her and slowly understanding the situation and slowly getting a handle on this as well. she has copd/asthma, chf, morderate alz. i have been going thruogh the county li... Sat, 19 Sep 2009 10:38:54 EST An update on our living situation Hi everyone! <BR> Sorry that I'm not joining in the team chat etc. I've been trying to spark to the best of my ability which means that I usually focus on the two teams that I lead. Otherwise nothing would get done! <BR> <BR> Things are changing around my house so I thought I would take some time to write it out and post it here where others will relate... (sorry it's so long!) <BR> <BR> I am a 30 something and my husband just turned 40. He was the caboose of the family, his mom will be tur... Thu, 25 Jun 2009 12:10:53 EST Took DH To Emergency Today I don't know if this should be a new topic or not, but here goes. <BR> <BR> DH has vascular dementia, which is similar to Alzheimer's Disease. He has been getting weaker and more disoriented lately. <BR> <BR> The dr.'s office told us to call 911 to have the fire fighters pick him up and to have the paramedics evaluate him. As a result, they took him to the ER. <BR> His BP and pulse were so low, they kept him for the night. <BR> <BR> This isn't life threatening, but it is life disturbing. A... Wed, 10 Jun 2009 03:12:46 EST I am Tired of being caregiver From 1990 to 1999, I took care of my parents and brother as you all know. That I didnt mind, it was the least I could do for them. Now I am caregiver to ex-hubby, 2 grown daughters who are very dependent on me and 3 grandkids. Right now, I resent taking care of them all and mentally overwhelmed and tired out. I am contemplating moving out of state and let them deal with each other. My ex's dementia is getting worse and that adds to it. Last week, I went on vacation alone to a friends house an... Fri, 22 May 2009 17:30:18 EST What one pound of fat looks like <link><BR>lery_enlarge.asp?id=2405431 </link> <BR> <BR> Another member posted this picture to show what one pound of fat looks like. We have a tendency to disregard our one pound losses. In reality, it is something to be feel accomplished about! <BR> Keep up the good work! Tue, 19 May 2009 12:11:46 EST What happens when we are gone? I think I am probably not the only one worried sick about this. I am caregiver to two adult disabled children that will probably outlive me, or at least outlive the time that I will be able to care for them. Would love to hear from others on this topic. <em>24</em> Tue, 7 Apr 2009 17:28:40 EST Spoon theory- good article I ran into this and wanted to share it. It will ring a bell with some of you and for others... it will help you understand the loved one you are helping. <BR> <BR> <link><BR>n/BYDLS-TheSpoonTheory.pdf </link> Mon, 2 Mar 2009 16:54:32 EST A little about me Hi my name is Darhlia, my husband of 18 years is Michael and we have 7 children 17 yrs, 15, 13, 5, 3 and 18 month old twin girls, Last year we said goodbye to our beautiful son Noah he lived for 4 1/2 hours after eing born he was our sixth child we sent back to god. <BR> A few month after we lost Noah we found out that my husband has terminal cancer, he is still at home and probably only has a few weeks remaining. I am his sole carer as well as looking after the kids it is getting all a bit m... Thu, 12 Feb 2009 18:11:24 EST Get more FREGGIES and FIBER! Sorry this post is so long... I hope you'll bear with me! <BR> <BR> I see there aren't any new challenges on this team and one teammate was interested in upping their fruits and vegetables (freggies) and upping their fiber. In 2008 my goal was to get 5 cups of freggies a day so I thought I would post what I learned... one of the things I learned was that just getting my freggies in was not getting me enough fiber so that has been my goal for 2009. I'm still working on that but I will also sh... Fri, 6 Feb 2009 14:07:32 EST does your caregiving involve physical stuff? is so, do you count that as exercise. or is it just part of the daily calories you burn just by "living" <BR> <BR> Jason really can't do much without assistance anymore, and its funny how heavy an arm can be when you are holding it up for somebody else so they can scratch their head. I've never counted this stuff as exercise, but wondered what everybody else did. Tue, 27 Jan 2009 11:06:14 EST new film on Alzheimer's I thought you might be interested in seeing this new film which is one family's experience with Alzheimers. You can view the trailer and get more information at this site. <BR> <BR> <link> </link> Sun, 18 Jan 2009 16:22:14 EST Introducing myself Hi everyone, I am new to this site and new to this team forum of course so thought I would introduce myself to you. I work in a care facility as a chaplain and coordinator of volunteers but recently had to place my mother in a care facility which gave me a whole new understanding for what families go though when their loved ones need care. I look forward to being a part of this Sparkteam. <BR> <BR> <em>67</em> Mon, 12 Jan 2009 21:15:17 EST Caregiver for Alzheimer's patient I would love to share stories with people who are caregivers of Alzheimers patients. I finally quit working outside the home last year to be home with my husband who had many difficulties being home alone. But I wouldn't trade being with him for anything. Wed, 7 Jan 2009 06:59:32 EST 2009 Chat Room :) since it's the new year, it's time to start a new chat thread! <BR> <BR> Hope this finds each of you well! <BR> <BR> Happy Friday & Happy New Year! <BR> <BR> It's sunny but windy (which makes it cold) here in sw Idaho. <BR> <BR> I'll chat with y'all later! <BR> Becky Fri, 2 Jan 2009 15:48:00 EST Hello, I am new I just joined today after a friend told me about her success here. I was browsing through the teams and was excited when I saw the Caregiver Support team. It seems I have been a caregiver to someone for several years. But now its full time. My dear husband had a Major Heart attack followed by all his systems closing down and he had to have intestine resection. We were home from the hospital 2 days when he had a Massive Stroke. He has come a very long way. To most, he would probably see... Sat, 27 Dec 2008 21:18:35 EST Merry Christmas & Happy New Year Merry Christmas & Happy New Year to all. Thu, 25 Dec 2008 23:37:31 EST New to the team My name is Dee. I'm 26, married to a 45 year old man and we have a 2 year old. <BR> <BR> My DH has a chronic condition that as yet is undiagnosed. He has episodes of nausea, relentless vomiting, abdominal pain, low-grade fever, and occasionally heart irregularities and disorientation. The episodes last 1-2 weeks and come every 2-6 months. He's also been diagnosed with chronic pancreatitis (which is trigger by the mystery illness) and GERD. I have my suspicions as to what his mystery illness ... Fri, 19 Dec 2008 09:16:29 EST share tips for eating healthy on a budget here... Anyone have any tips for eating healthy on a budget? share them here! <BR> <BR> Need some ideas on how to eat healthy on a budget? read through what others post, and/ or feel free to post your need/ request here. Sat, 6 Dec 2008 11:12:45 EST December Challange .....What is your game plan?? Now that the holidays are here once again, what is your game plan for dealing with them? And what are you going to do to help you stick to your game plan. Plans are all well and good, but don't mean anything if you don't stick to them (or modify them as needed) can you imagine trying to construct a house without sticking to blue prints?? <BR> <BR> My game plan is to stay even. I'm not going to kill mysel trying to lose weight over the next 4 weeks. But if I can stay even, I will be st... Sun, 30 Nov 2008 13:16:51 EST Thank You I cant thank everyone enough for all your prayers and support of my Dads passing.2 days before I was to fly back here to Ohio, My John ended up in ICU w/ seizures-sepsis of the blood,stool. Thank God my John is home now, 3 days ago and is slowly building his strengh. What I wanted to say was a LSW asked me if I had any support at home, without hesitation I said yes, I belong to a wonderful group called Spark, and proceeded to tell her about this wonderful supportive,caring group of people, so... Sun, 23 Nov 2008 05:21:55 EST November is National Family Caregivers Month I recieved this in an email. All I can say is thank you, thank you, thank you! We deserve a little recognition for what we do. <BR> <BR> <BR> <BR> November is National Family Caregivers Month <BR> <BR> National Family Caregivers Month, 2008 <BR> A Proclamation by the President of the United States of America <BR> <BR> <BR> During National Family Caregivers Month we recognize and celebrate the many individuals throughout our country who work each day to ensure a better quality of lif... Fri, 14 Nov 2008 08:48:59 EST Caregiver Bill of Rights I happened to be reading Annie's Mailbox, and copied this. It was sent in by another reader, who picked it up from the National Cancer Institute's website. However, I think it applies to all who are caregivers, not just those who are dealing with a loved one with cancer. <BR> <BR> <BR> Caregiver's Bill of Rights <BR> <BR> I have the right to take care of myself. This is not an act of selfishness. It will give me the ability to take better care of my loved one. <BR> <BR> I have the right t... Sat, 8 Nov 2008 17:19:17 EST Name a walking team Monday night I'll be meeting with a group of friends who are forming a team to walk in the Portland to coast relay (Teams of twelve walkers cover a total of 127 miles - 24 legs). We need to find a name for our team. Can you help? <BR> <BR> The team names are usually short (20 characters) and funny/a pun. For example, some teams have names like "Sole Sisters" or "No walker left behind" or "Sisters with Blisters" (cute, but names can't be duplicated). Teams can decorate their 2 vans with their... Sat, 8 Nov 2008 11:13:27 EST please say a prayer although we haven't met face to face I wanted to let my friends and great teams know my Dad passed away this morning. I fly to Boston tomorrow. we dont know exactly what happened. I will talk with everyone next week. fittingly my Dad will be buried on Veterans day. i dont know what else to say-God Bless Fri, 7 Nov 2008 16:07:13 EST I k somedays than the next day itnow its wrong but I am so full of hate now. John had a seizure this morning at 610am. It was the first since 7/24-when he was in the nursing home for over 2 years,he was having them alot more frequent. But today as I sit in the DR looking down into his BR. He just looks terrible. I hate the Doctor who wants to give John 2 enemas every night when John is already moving his bowels everyday. ITS THE BELCHING AND HIGH RESIDUAL! I hate myself for not taking Johns keys that night when I moved his car. I hate his "fr... Tue, 4 Nov 2008 18:19:16 EST oh theses dr's John went to the urologist,he believes its alot of scarring from the catheter,doesn't have a lot of urine retention so that's good. as always gave me a pill flomax to try for john's pain.. and as always,seems when no one has an answer they blame any and all symptoms on john head injury. I hope everyone else is alright tonight, no nurse for us the next 2 nights so by sat 4am I'm sure i'll be blubbering!!! Thu, 25 Sep 2008 20:46:14 EST Hi I'm glad to see that there is a Team for caregivers. It's very needed..I hope to hear form anyone who needs a good ear. <em>26</em> Tue, 23 Sep 2008 22:37:30 EST My Son I don't know where to start, maybe just vent? my son John turned 25 last week. on 04/15/06 he fell asleep at the wheel, recieved a severe head injury. My John had a trache,g=tube for a little over 2 years while he was in a nursing home. it took me a year to get my son home thru the ohio state waiver program, My John-John cant walk,talk eat. Im doing everything in my power to get him any kind of therapies. my husband took a lawn chair put wheels on it just to shower john,(state is slow)i have ... Fri, 19 Sep 2008 21:58:58 EST declaring someone incompetant My hubby had pneumonia several weeks ago.He was and still is hallucinating.He accuses people of taking his car and keys. He sleeps most of the time. He is incontinent of urine. I dont feel he should drive. I am not sure if he eats right, as he is a diabetic. I want to declare him incompetant and take power of attorney. THis friday,his doctor is my last hope. There are short periods of being lucid. Any ideas. <BR> Joyce Mon, 15 Sep 2008 23:43:01 EST scary, but funny... and true...:) This was posted on one of the other teams I'm on. ENJOY! <BR> <BR> Has this ever happened to you?? LOL <BR> Nah, this could never happen to any of us caregivers :) <BR> <BR> <BR> <link><BR>m </link> Sat, 13 Sep 2008 20:39:13 EST Hi, I'm new to your team Hi, I'm fairly new to Sparks. I officially joined at the end of July but have been adding new habits slowly. We just finished the first week of classes this past week and so I suppose I'm ready to be a little more active. <BR> <BR> I have a very full life. I have a full-time job. I have a five-year old son who just started kindergarten and a nineteen-year old who's staring his sophomore year in college. I am a caregiver for my husband who has been on full disabilty for 7 years and lives ... Sun, 7 Sep 2008 18:44:17 EST I Give Up Tonight, I have come to the conclusion,I give up. I am tired of being ill with 4 chronic illnesses. I am tired of allowing my 3 grown daughters and ex take advantage of me. The only one that can stop it is me, except for the illnesses. THey are blood suckers and drain everything out of me what they can, money,good nature,car and whatever they else they can. I really dont want to go on anymore. Everyone needs someone,I have no one except me. Even when I say,I am not feeling well, the give me t... Thu, 21 Aug 2008 02:28:17 EST "Tropical Thunder" A movie we won't be watching I got this in an email yesterday, thought you guys wi=ould like to know about it as well... <BR> <BR> From Dave Tolleson: <BR> <BR> Two weeks ago, the National Down Syndrome Congress joined with other national disability rights organizations to address the new DreamWorks Studios film, “Tropic Thunder”. In conversations with studio executives, our coalition was led to believe that the offending portions of the film were minor and obviously satirical, and would have little impact. <BR> <BR>... Wed, 20 Aug 2008 14:05:19 EST I'm down I'm down in weight. I have been on a plateau for what seems like weeks and it's falling again. I finally hit the 10 lb mark and am so thrilled. Everything seems to be going right as I finally got my SS appeal scheduled and I am losing again. I do all the right things even when I am on a plateau and know eventually it will catch up. It is just so great when it does. <BR> <em>244</em> <em>244</em> Tue, 19 Aug 2008 20:16:55 EST I hate dealing with the government I am so sick and tired of it all. I feel like just giving up on everything. Thu, 14 Aug 2008 20:49:51 EST Do any of you get mentally tired I have been a caregiver since 1990. In 1999, when my dad was the last to pass away. Now 9yrs laterl, I am doing it all over again. Dealing with 3 grown daughters, 3 grand kids and a ex hubby who is showing signs of dementia. Mentally I am worn out and feel like I cant take much more. I am going on a weeks vacation in Sept. Cant wait. THey do alright when left to do for themselves. The pressure they have me under is horendus. How do I keep form getting mental fatigue. Any suggestions would be... Sat, 9 Aug 2008 01:25:07 EST That was a doozie!!! Then <em>24</em> Now <em>30</em> <BR> Oh my goodness. I haven't had that bad of a cold in a long time! If I hadn't had the flu already this year I would have thought I was heading towards it. It all started Tuesday night with my DH saying,"My throat hurts." Next thing I know, I wake up Wednesday morning just completely swollen in the face,my throat closed up in pain, and a 100' fever. The worst part of it was that on Thursday my body started to get tired of laying down so long and I couldn't... Mon, 21 Jul 2008 03:11:52 EST I am a Newbie My name is Joyce,61 yrs old,a mother of 3 grown daughters and 3 grandkids. I take care of the daughters and grandkids and a ex hubby. I am on disability from OA,osteoporosis, chronic pancreatitis, fibro, and CFS. My family wont do anything for themselves. THey rely on me for everything. I have told them what they going to do when I die. THe use my car, ask me for money and the ex has parkinsons and showing signs of dementia. He wont drive unless I am with him,cause he dont know where to go fo... Sun, 20 Jul 2008 04:28:55 EST Will be out of town I thought I posted this here but will be gone a good part of next week(Tuesday to Friday) with hubbies medical appts. I only have limited internet access so may not post much. Will catch up when home. Fri, 18 Jul 2008 21:47:30 EST Love my job Hello Everyone, <BR> I am a caregiver, almost 11 years. I work as a Certified Nurse's Aid, in a nursing home. I love my job working with all different kinds of people, it's my second home and love being with them. Some of them are even family. I remember when my grandparents were living with us for some time. It was hard, but that was family. My grandma died, at a nursing home from cancer. It was the worse time in my life, she was my best friend. After she died we took in my mom's d... Thu, 17 Jul 2008 20:03:54 EST Very sad news. (Long post) <em>39</em> <BR> Today has been one of the worst days that I have experienced in a long time. I had a follow-up doctor's appt. to find out why I have been vomiting lately. It turns out that on top of the confirmation that I have acute (whatever that means) hypoglycemia, I also have acute gastritis that has caused an ulcer that has started bleeding into my stomach. That explains the coffee ground-like material in my vomit. She said that this has been caused by stress. Whatta ya know. She ord... Tue, 8 Jul 2008 22:40:06 EST What do I do??? I am really torn and lost right now and begging for your prayers. My name is Brandy and I have been a member of Sparkpeople for almost two years. I haven't posted on here in a long time because I have been going through some rough stuff. The main thing I'm struggling with though is my job. I have been a caregiver for a year and a half now and until recently have always loved my job. <BR> <BR> I say "until recently" because about six months ago my boss found out that one of the insurance com... Mon, 7 Jul 2008 04:02:46 EST Hello everyone I just happened upon this team by chance.I work in the assisted living field.When my shift is over I care for a 77 year old in the last stages of Alzheimers.Then I go home to live in the house of a81 year old man I began caring for 10 years ago. We moved him back to Georgia and he asked if we would move in and care for him.I have been here for 6 years now.He too is starting to have Alzheimers. Sat, 5 Jul 2008 19:25:54 EST New to the team I apologize in advance for this being so long. Thanks, Sandy, for encouraging me to post the e-mail I sent you about joining this group. <BR> <BR> I am in somewhat unusual circumstances. In technical terms, most people would not consider me as a caregiver. However, I need support, and right now, I'm not sure where else to turn. I'm usually very upbeat, but there are times when the circumstances really wear on me. <BR> <BR> My husband is still currently working; however, that could literally... Thu, 3 Jul 2008 13:36:19 EST HI Hey everyone - I'm a newbie. I'm 33 years old, married for 10 years and don't have any kids yet - we've been trying since Dec. - but no luck yet. <BR> <BR> I live beside my grandmother, who is 79 and look after her. Although I wouldn't change it for the world, sometimes I get lonely, stressed, depressed, you name it. She is fairly good health other than Ole' Arthur. But no one my age knows what it's like not to have a social life because you have other responsibilities - and i am so blesse... Tue, 1 Jul 2008 10:37:17 EST Hello from DENMARK! So my friend told me about spark and here I am. I am from Vegas but have been living in Denmark for almost 2 years now. My story is long...but I will try for the short version. I met a man online. We fell madly in love. Small problem was that he was Danish. I was not. After 6 months of talking EVERY day for up to 24 hours. (I was working freelance)I didn't get a phone call from him and I knew in my heart something was wrong. It took 3 days for me to track down the danish police to look for hi... Fri, 27 Jun 2008 10:55:25 EST I Want to go Home My husband is in the hospital which is 350 miles from home and I have been here with him sleeping in his room on a recliner for 5 days now and it looks like we are going to be here at least another 4 and I just want to go home. I can't go home but that doesn't make me not long for it. I am tired and sore and doing my best to be positive for him. Sun, 22 Jun 2008 16:00:32 EST New Today I am a caregiver to my husband who had kidney cancer which caused both to be removed, put on Dialysis, recieved transplant Sat, 7 Jun 2008 21:02:27 EST New Member Hi,my name is Phyllis and I was a caregiver to both my parents until my mom died 2 1/2 yrs ago.I take care of my dad,he's 85 and just diagnoised with neck cancer. I am also a caregiver yo my husband .He has been in the hospital since may 17,08 and we don't know when he's coming home. Please send prayers our way. Phyllis Tue, 3 Jun 2008 22:16:11 EST Food for thought Good afternoon all. <BR> <BR> I came across something today that scares me. <BR> <BR> It seems that the price of gasoline will be somewhere around $6.00 a gallon by the end of the year and could be even higher. We think the big oil companies control the market, they don't according the information I saw. It appears that the World Bank and The International Monitary Fund control the world oil supply and they dictate the market price of oil. <BR> <BR> To add to this mix, Iran (the 3rd la... Wed, 28 May 2008 18:13:57 EST Hello all Good morning all. I am my wife caregiver. She is bedridden because of several reasons. I am 67 years old and retired. My wife will be 65 her birthday. We live in what is called 'Green Country' in Oklahoma. Nice place to live. I realize that this is not much of an introduction, but more will come as you get to know me. Larry Mon, 21 Apr 2008 10:33:35 EST Hi all! My name is Jennifer and I have been a caregiver for about to months. My mom and dad had to move in with my family. My mom's health was so bad 2 months ago that we had to put her on hospice. I really thought that she was going to die. She has numerous health issues including her heart, diabetes, nueropathy, gout, lymphedema and the list goes on. My dad also had health issues. He had a stroke and had an aneurysm removed from his brain about 4 years ago. He is fine physically but has a lot of me... Tue, 15 Apr 2008 17:18:56 EST Im new here <em>252</em> Hi my name is Diane and I'm 57 yrs old and a full time Care Giver for my Husband for the past yr and 2 months. Ken had a massive Stroke which caused a head on collision with another truck. He was in a coma for 31/2 months. He is paralized on his left side.I think that I have been doing OK with this, but sometimes I cant stop crying. It gets real hard ,But I know he cant make it without me. I hope to here from you all, with some help on this matter.Thank you all, Diane <em>32</em... Thu, 10 Apr 2008 14:48:25 EST I'm new here Hello. I've been caregiver for my husband for the past five years following failed back surgery. He's now almost entirely wheelchair-bound and tied to his pain meds. I'm hoping this forum may serve as a sounding board as I work to keep myself as upbeat and fit as I can. Thu, 3 Apr 2008 23:52:47 EST Activity help I work in home health and take care of 6 clients and need activity ideas for a lady who is often confused and talks about things that are not real. How can I keep her mind off pretend (like she will walk around a look for her sleeping baby) and do activities?? Sat, 22 Mar 2008 18:59:57 EST new member I'm a caregiver for my girlfriend of 18 years. She has osteoarthritis, diabetic neuropathy, COPD and does not get around very well. I have time to go to the gym for an hour or so a day. I just joined sparkpeople a few weeks ago and just found this group today. It's nice to know that there are other people out there who are in the same boat as me. Mon, 10 Mar 2008 14:13:30 EST Intro Hi all, <BR> <BR> I've only been on Sparks for a little over 2 weeks. I did great the first week and bad the second week. <BR> I am a caregiver to my husband of 46 years who has failing kidneys, is diabetic and has very bad knees and has trouble getting around. He will be starting dialysis very shortly too. Also, his 84 year old mother lives with us who is legally blind. <BR> <BR> I think the stress is getting to me and I fell off the wagon this past week and gained the 2#'s back again.... Thu, 6 Mar 2008 09:45:26 EST New Member Hi, a friend from sparkpeople actually found this page for me and I sure am glad she did! I have been looking for something like this in my town but the town is very small and doesn't have many support groups like this one. <BR> <BR> I am 46 years old with a 21 year old daughter and have been caring for my 83 year old father for the past 10 years and my 72 year old mother up until I had to put her in a nursing home a year ago. I don't work outside of the home and have a very hard time ge... Thu, 31 Jan 2008 09:41:24 EST Hello , I'm new to this site. I accidentally came across the spark team website and realized this was the site for me. I just had my 52 birthday a week ago. I have a <BR> 26 yr old daughter and 7 years ago married a wonderful, understanding husband. After losing my job of 16 years in a company layoff, I became a full time caregiver of my parents in 2001, when my father was diagnosed with Alzheimer's and my mother fell and broke both her arms... so I understand the meaning of stressed out.... I hav... Mon, 28 Jan 2008 09:14:49 EST 2008 Team Chat how about we just have a "team chat" instead of by each month since there isn't a huge amount of activity here. So I'll start the thread and if they want to make it a stick, that would be great. if not, we can still keep posting to it. <BR> <BR> I'll start. Its been quite a week with the ups and downs with Jason's wheelchair. So now we are in the process of getting a new one. I HATE paperwork. Sat, 19 Jan 2008 11:01:58 EST Hi I have just joined today. A little about myself. I am 60 years old and have been a care giver for 20 plus years. At present I work in a special care home with 8 clients and do we do personal daily care. I have worked at two other larger special care homes and worked as a geriatric attendant in 40-bed nursing home for 10 years. I work 12 hour shifts and work 2 weeks days and 2 weeks nights. The nights are killers at my age. <em>249</em> Fri, 11 Jan 2008 10:04:39 EST AUGUST TEAM CHAT <em>213</em> Wed, 1 Aug 2007 16:46:33 EST CHALLENGE JULY 30 - AUGUST 5 This week our challenge is from Becky (RHALES199) <BR> <BR> <BR> You can do 1,2 or all's your choice. <BR> <BR> Here they are: <BR> <BR> <BR> A couple ideas I've thought of lately: <BR> <BR> 1) where we do some sort of exercise as many days in a row as we can. <BR> <BR> 2) EAt within our calorie range for as many days ina row as we can <BR> <BR> 3) 'Eat a rainbow'-- in other words, eat different colored foods. For example, white could be milk, green could be grapes or cabb... Mon, 30 Jul 2007 00:56:12 EST Weird question I just started my program again after being away for about a year. I'm trying to be real faithful to my three goals (I tend to keep adding goals until I just give up). I'm just worrying about the three goals only now (it's real hard I need to learn to take my time, that there is no rush and no competition). Well I'm wondering when they say to drink eight glasses of water if other things count towards that such as milk or juice, does anyone know?? <em>91</em> I hope everyone is having a g... Tue, 24 Jul 2007 12:37:17 EST CHALLENGE JULY 23-29 This week, let's concentrate on getting the amount of fiber that Sparks recommends for us. I always seem to fall short of that goal. <BR> <BR> Good luck!!! <BR> <BR> Sun, 22 Jul 2007 18:32:18 EST New Member Hello, <BR> <BR> I am 42, married 9 years (together 14 yrs), 2 cats (daughters), and a Mom age 84. I have read some of the entries and wanted to cry because I thought I was the only one who felt the way I do. I am one of ten children (of course the baby), have congenital heart disease (have had 3 open heart surgeries, 2 open chest surgeries, and a pacemaker), and am the caregive of my mother whom we live with. I had been taken care of both parents until my father passed away 7 years ago. ... Tue, 17 Jul 2007 10:40:12 EST CHALLENGE JULY 16-22 Sorry for posting late, I've been really, really busy. <BR> <BR> This weeks challenge is from KNUCKLES145. (Thanks) <BR> Here it is: <BR> <BR> how about "something different" to get time away for yourself. Like I signed up for swing dance classes by myself (lots of couples and 5 single women in the class) I am sooooo tempted to not go back again, but I'm determined to go to all 6 classes in this session. <BR> <BR> Please post what you decide to do and how you liked it. <BR> <BR> GO US!!! Mon, 16 Jul 2007 21:15:11 EST CHALLENGE IDEAS NEEDED Please post any ideas you have for challenges here. <BR> <BR> Thanks alot, <BR> Vicki Thu, 5 Jul 2007 17:09:32 EST JULY TEAM CHAT Sorry for being so slow posting this,things have been hectic. Wed, 4 Jul 2007 22:13:33 EST CHALLENGE JUNE 25 - JULY 1 You know that everyone has that one food that you think you just can't give up. Well, I think we all have more will power than we think we do, so let's all try to go a whole week without giving in to the temptation. Please post what food you have a hard time going without, and whether you made it this week without giving in. <BR> <BR> Good luck to us all~~~ Mon, 25 Jun 2007 13:15:09 EST CHALLENGE JUNE 18 - 24 This week, let's concentrate on our abs We're doing two from SP. Just click on the 2 articles I've chosen under "Leader Selected Favorites" links under the "TEAM LINKS" tab. <BR> <BR> Good luck and please post, that's part of the challenge. <BR> Mon, 18 Jun 2007 19:13:26 EST Challenge June 11-17 Pick your own challenge and post results so that others may get an idea that will help them reach their goal. Mon, 11 Jun 2007 02:48:47 EST CHALLENGE JUNE 4-10 2 sets of 12 reps each, 2x this week. <BR> <BR> 1) Alternating Dumbbell Biceps Curls <BR> <BR> 2) Dumbbell Lateral Raises <BR> <em>85</em> Mon, 4 Jun 2007 14:43:36 EST JUNE CHAT <em>213</em> Fri, 1 Jun 2007 00:02:18 EST CHALLENGE MAY 28 - JUNE 3 This week I want each of you to try to do the challenge and post results. <BR> <BR> Stress can cause many different health problems including high blood pressure, headaches, weight gain etc. Take some time this week and recognize what is causing you the most stress in your life. Then think of a few ways that you can either reduce or eliminate that stress. <BR> <BR> Let's get healthier together. <BR> Tue, 29 May 2007 17:02:51 EST I'm A Caregiver To.......... Please post a message letting others know who it is you care for (past and present), and their disability or illness. The information might come in handy to someone who has a question about a particular subject. <BR> <BR> Thanks~~ <BR> Vicki Wed, 23 May 2007 15:13:37 EST CHALLENGE MAY 21-27 Here's this weeks challenge. <BR> <BR> 1) Eat less sodium <BR> <BR> 2) Eat more fibre Sun, 20 May 2007 21:23:43 EST CHALLENGE MAY 14-20 This week is easy. All you have to do is: <BR> <BR> 1) Get some extra sleep <em>102</em> <BR> <BR> 2) Drink more water while exercising <em>91</em> <BR> <BR> 3) Post results <em>17</em> <BR> <BR> ~~~~~~~~~~~~~~~~~~~~~ <em>250</em> ~~~~~~~~~~~~~~~~~~~ Sun, 13 May 2007 22:29:27 EST Challenge May 7 - 13 This weeks challenge is to relieve some of the stress associated with being a caregiver. <BR> <BR> Taking Care of You- Caregiver Needs <BR> <BR> Keeping your health is one of the most important things you can do. If you don't take care of your own health, you will find it increasingly more difficult to take care of the health of the one you love. <BR> <BR> WARNING SIGNS OF CAREGIVER STRESS <BR> Anger at elder, family, doctors, services <BR> Withdrawal/feeling overwhelmed <BR> Anxiety/c... Sun, 6 May 2007 18:43:07 EST Miscellaneous Facts <BR> 20 Interesting Facts You Probably Don't Know <BR> <BR> 1. A zebra is white with black stripes. <BR> <BR> 2. All the planets in our solar system rotate anticlockwise, except Venus. It is the only planet that rotates clockwise. <BR> <BR> 3. Hummingbirds are the only animal that can also fly backwards. <BR> <BR> 4. Insects do not make noises with their voices. The noise of bees, mosquitoes and other buzzing insects is caused by rapidly moving their wings. <BR> <BR> 5. The cockroach i... Fri, 4 May 2007 15:58:39 EST VIRTUAL WALK INFO For those of you who are wanting to do the virtual walk, we only have 9 days before we start. If you haven't joined us yet, please do so. If you <BR> want to be a member of our team, make sure you joined us, and are not still listed as an individual. <BR> <BR> Remember: We are walking as a team. Your movement along the virtual route is based on whether or not all of us on the team meet their own weekly physical activity goals. <BR> <BR> When the virtual walk starts, you can log your own res... Thu, 3 May 2007 14:44:16 EST MAY DAILY CHAT This is the May chat thread. Tue, 1 May 2007 00:33:58 EST CHALLENGE APRIL 30-MAY 6 Water <BR> If you are feeling drained and your energy levels seem to be at an all time low, ask yourself this; how much are you drinking? <BR> Dr Susan Shirreffs, an expert on dehydration from the Biomedical Sciences Department at Aberdeen <BR> University, says, "Most people probably need to drink between one and two litres of fluid every <BR> day to maintain their health. The situation can become serious. People who regularly drink very little are at long term risk for problems with their ... Mon, 30 Apr 2007 14:18:56 EST " FOUR " YOUR INFORMATION So that we can get to know each other a little, copy and paste this just for fun challenge. <BR> <BR> Four jobs I've had: <BR> <BR> <BR> Four movies I can watch repeatedly: <BR> <BR> <BR> Four places I've lived: <BR> <BR> <BR> Four TV shows I like: <BR> <BR> <BR> Four places I've vacationed: <BR> <BR> <BR> Four favorite foods: <BR> <BR> <BR> Four places I want to visit: <BR> <BR> <BR> Four places I would rather be right now: <BR> <BR> <BR> Four favorite things to do:... Wed, 25 Apr 2007 16:21:47 EST Challenge April 23 - 29 This week your challenge is to look at your exercise and nutritional trackers and see what area (eating less sodium, doing more strength training. etc.)you need to improve the most. Post what you choose. Then next week I'll give each of you a partner to team up with so that we will be accountable to another member and maybe that will give us the motivation needed to make healthier lifesyle changes. I know we are all busy, but this is very important to our health and I think it deserves what l... Sun, 22 Apr 2007 18:39:44 EST WORD OF THE DAY WORD OF THE DAY <BR> FOMENT <BR> Definition: <BR> to arouse or incite <BR> Example: <BR> The protesters tried to FOMENT feeling against the war through their speeches and demonstrations. <BR> Synonyms: <BR> foster, erupt <BR> Sat, 21 Apr 2007 14:00:04 EST WEB SITES Have any favorite web sites? <BR> <BR> Post them here for other members to check out! Sat, 21 Apr 2007 13:48:48 EST TODAY IN HISTORY TODAY IN HISTORY <BR> April 21 <BR> <BR> 1649 The Maryland Toleration Act was passed, allowing all freedom of worship. <BR> <BR> 1789 John Adams was sworn in as the first U.S. Vice President. <BR> <BR> 1828 Noah Webster published the first American dictionary. <BR> <BR> 1836 General Sam Houston defeated Santa Anna at the Battle of San Jacinto. This battle decided the independence of Texas. <BR> <BR> 1898 The Spanish-American War began. <BR> <BR> 1918 German fighter ace Bar... Sat, 21 Apr 2007 13:37:16 EST MOVIE TIME Everybody loves a good movie!!! <BR> Have a favorite? <BR> Seen a good one lately? <BR> Post them here. Mon, 16 Apr 2007 12:04:13 EST MINI GOAL MET- THIS IS MY REWARD Post here when you reach one of your goals. <BR> Let us know how you rewarded yourself. <BR> <BR> GREAT FOR M0TIVATING OTHERS!!!! Mon, 16 Apr 2007 11:32:45 EST Challenge April 16-22 Iron <BR> The World Health Organization estimates that 600 - 700 million people are deficient in iron, probably <BR> making it the most common nutritional deficiency disorder in the world. <BR> <BR> Low iron can eventually lead to a lowering of the pain threshold, an interference with the body's temperature control mechanisms, an increased likelihood of hairloss and a decrease in the strength of the immune system, making us more vulnerable to infections. Clearly, there are many reasons for... Sun, 15 Apr 2007 18:44:39 EST Hello everyone Hi, Im gladys from worcester massachusetts,I so new in sparpeople,2 weeks, also I a caregiver, home health aide for 5 years now. <em>220</em> Wed, 11 Apr 2007 19:36:14 EST CHALLENGE APRIL 9 - 15 Increase your social activity. By increasing social activity, you decrease loneliness. <BR> <BR> Examples: <BR> join a: <BR> bowling team <BR> walking club <BR> red hatters group <BR> women's club <BR> <BR> volunteer: <BR> girls or boys club <BR> food bank <BR> humane society <BR> hospital <BR> <BR> <BR> <BR> Mon, 9 Apr 2007 16:05:58 EST Only a Special Person...When Life Gets Crappy... grateful you have your shoes on! <BR> <BR> I was at work the other night, and my quadraplegic client was in the lift, on the way to the bathroom. She started her BM before we got over the toilet. I went to take the depends off and *PLOP* huge poo on the floor. Finally got the depends off, started rolling it up and *plop* smaller poo on the floor. <BR> <BR> Turned.... <BR> <BR> <BR> and stepped in it... <BR> <BR> <BR> what did I do? told myself I was grateful I had my shoes on, ... Sat, 7 Apr 2007 00:07:12 EST APRIL GROUP FORUM AND DAILY CHAT This is the new chat thread for April. Mon, 2 Apr 2007 16:40:28 EST CHALLENGE APRIL 2-8 Add 10-30 min. each day to your regular exercise. <BR> Some examples are: <BR> <BR> Running/jogging <BR> Jumping rope <BR> Swimming <BR> Roller skating <BR> Tennis <BR> Bowling <BR> Football <BR> Aerobics <BR> Cycling <BR> Weight lifting <BR> Walking <BR> Table tennis <BR> Golf <BR> Skiing <BR> Basketball <BR> Dancing <BR> Soccer <BR> Gardening <BR> Hiking/bushwalking <BR> <BR> Let's get moving!!!! <BR> <em>85</em> Sun, 1 Apr 2007 19:12:03 EST I'M STRUGGLING.... HELP PLEASE Post your struggles here to get support and suggestions from other team members. Tue, 27 Mar 2007 19:06:11 EST CHALLENGE MARCH 26 - APRIL 1 READ THIS FIRST, THEN READ CHALLENGE BELOW <BR> <BR> Focus on Eye Health <BR> Remember the old advice to eat carrots so you could see in the dark? <BR> <BR> To keep your eyes in the best of health, eat a healthful diet containing plenty of fruits and <BR> vegetables. Choose deep green and dark yellow fruits and vegetables like cabbage,cauliflower, <BR> brussel sprouts and broccoli. Lutein is found in high levels in egg yolks and spinach. <BR> <BR> Wear sunglasses to protect the eyes fr... Sun, 25 Mar 2007 19:31:25 EST Sorry I've been gone Hi Everybody, <BR> I'm sorry I haven't been posting. I've had alot of emotional stuff going on in my life. <BR> I found out that my husband of 15 years, had an affair with my sister in law (at the time). It happened about 10 years ago. But when I found out, it was like it had just happened. I have been emotionally drained ever since. <BR> He is the love of my life and without him there is no life!! <BR> I didn't know where to turn or what to do. All I have done is cry. <B... Sat, 24 Mar 2007 20:20:13 EST CHALLENGE MARCH 19-25 POSITIVE POWER <BR> <BR> The positive cycle of forgiveness <BR> <BR> Are you holding grudge against someone? Is there someone you just can't seem to forgive? Do you allow that grudge to determine your behavior? Grudges and a non-forgiving attitude do nothing but harm both parties. You might feel like you're "winning" by not letting someone off the hook, but you're only increasing your own worry and stress. Bitterness can lead to hate, which can sour a life. Today, write a letter explainin... Sun, 18 Mar 2007 18:51:07 EST HOUSEHOLD TIPS Six Energy Saving Tips for the Dishwasher <BR> Adapted from Consumer Guide to Home Energy Savings, by Alex Wilson, Jennifer Thorne, and John Morrill. <BR> <BR> Whether buying a new dishwasher or using an existing one, you may be able to save a considerable amount of energy by changing the way you operate it. <BR> <BR> Simple Solution: <BR> <BR> 1. Use energy-saving cycles whenever possible. <BR> <BR> 2. If your dishwasher has a booster heater, turn down your water heater thermostat. ... Mon, 12 Mar 2007 15:21:21 EST March 12-18 Challenge BETTER BODIES <BR> <BR> IF YOU HAVE BACK PAIN, THESE WILL HELP. <BR> IF YOU DON'T, THEY WILL STILL STRENGTHEN YOUR BACK. <BR> <BR> There are only four of these, so try to do them at least 3 times this week. <BR> <BR> <BR> 1)Opposite Extension <BR> What does it do? Strengthens and stretches the lower back. <BR> <BR> Kneel on your hands and knees on a padded surface. Place knees directly under hips and palms directly under shoulders. Pull your abs in and don't allow your back to sag. Tilt ... Sun, 11 Mar 2007 14:58:47 EST March 5-11 Team Challenge Blood pressure <BR> Most studies show that a reduction in salt intake reduces blood pressure, the effect being greatest in those with high blood pressure, the obese and the elderly. <BR> <BR> Try to add extra low sodium foods this week. <BR> Here's a selection of Foods High in Potassium, Low in Sodium (when unprocessed) <BR> <BR> Avocado, apricot & other stone fruit. Bananas, lentils, kidney beans, split peas Dates, <BR> raisins & other dried fruits <BR> <BR> Herbs &spices e.g. parsle... Sun, 4 Mar 2007 15:38:51 EST MARCH 1 CAREGIVERS SUPPORT GROUP FORUM THIS IS THE NEW GROUP FORUM STARTING MARCH 1ST. <BR> THIS IS SO THE MEMBERS OF THE TEAM WHO HAVE DIAL UP <BR> DON'T HAVE TO WAIT SO LONG FOR THE PAGE TO LOAD. I'LL START A NEW THREAD EACH MONTH. Thu, 1 Mar 2007 00:41:56 EST DAILY MOTIVATOR UNCONDITIONAL HAPPINESS <BR> <BR> Happiness is not the result of favorable conditions. That's backwards. Favorable conditions result from happiness. So what does it take to be happy? Nothing more than a willingness to be happy. <BR> <BR> Happiness comes from the way you respond to life. There are people who have every reason to be miserable, but who still live with happiness and joy. In every life, there is room for happiness. <BR> <BR> Everyone has challenges. Everyone has disappointme... Wed, 28 Feb 2007 17:06:14 EST CELEBRATE HERE <em>244</em> <em>67</em> <em>104</em> <em>243</em> <em>179</em> <em>236</em> <em>250</em> <BR> <BR> Have something to celebrate? Post it here. <BR> <BR> This topic was suggested by Judy. (KOCHSTER) <BR> <BR> THANKS JUDY!!! Wed, 28 Feb 2007 16:30:40 EST Welcome Team Moderators <BR> <em>235</em> <em>242</em> <em>244</em> <BR> <BR> I'd like everyone to welcome the new team moderators, Marianne and Judy. I think it is only fair to officially make them the moderators since they both have been doing the job. I asked them to look out for new post and members, since I am not always available to log onto the team and see what is going on. I may also ask them for help concerning new ideas for the team. They also do a great job of offering advice to me... Mon, 26 Feb 2007 21:34:45 EST Challenge Feb. 26-March 3 I'm going to start posting the Positive Power, Better Bodies and Fit Forever seperately because I think having all three in one week is to much to do along with all of our other exercise routines and team challenges. <BR> <BR> <BR> HERE'S THIS WEEKS CHALLENGE: <BR> <BR> POSITIVE POWER: DO YOU LIKE YOU? <BR> <BR> Make a "why I like myself" list. Think of all the things you like about yourself-- are you honest, creative, intelligent, compassionate, loyal, or kind? Think of all the reasons ... Sun, 25 Feb 2007 22:18:49 EST Challenge Feb.19-25 POSITIVE POWER <BR> <BR> DON'T WORRY, BE HAPPY!! <BR> <BR> Are you a worry wart? <BR> Alot of us worry what people are thinking about us. We worry about our jobs, money, the weather, other people, etc. Do you often say things like, "did I lock the door?, did I shut the window? did I turn the iron off"? Worry is often unfounded and is a great way to make you age quicker. Don't waste time worrying unless you have proof that there is something to worry about. Learn to go with the flow. <BR> St... Sun, 18 Feb 2007 14:14:02 EST NEW TO THE TEAM? INTRODUCE YOURSELF HERE TELL US A LITTLE SOMETHING ABOUT YOURSELF AND WHO YOU'RE CARING FOR. Mon, 12 Feb 2007 22:56:56 EST Challenge Feb. 12-18 <BR> POSITIVE POWER~~~~ <BR> <BR> Remind yourself of the things you are grateful for. <BR> <BR> Stresses and challenges don't seem quite as bad when you are constantly reminding yourself of the things that are right in life. Take 60 seconds each day to appreciate what's good in your life. It'll make a BIG difference. <BR> <BR> <BR> <BR> BETTER BODIES~~~ <BR> Combating winter infections <BR> A healthy diet may help strengthen the immune system and give your body the best chance of fig... Fri, 9 Feb 2007 01:07:02 EST Where I'm from Hey, thought it might be fun to tell a bit about where we are from, especially when I got confused about a place on the challange topic!! <BR> Ok I'm from Bendigo, which is central Victoria in the great land "down under" Australia. Bendigo was settled in the early 1850s as a gold rush town, and was really built on gold, we've got some lovely old buildings that were built from the gold, well from the money the gold generated lol. We even had our own stock exchange once upon a time. Um theres a... Tue, 6 Feb 2007 21:35:29 EST Thanks Just wanted to say that I thank all of you for being so supportive of each other and giving pep talks, motivation and advice to whoever needs it. Also, for all the prayers said for other team members. You're all doing great and I'm proud to have each of you as members of this team. <BR> <BR> Vicki <BR> <em>220</em> Mon, 5 Feb 2007 22:21:46 EST Challenges for Feb. 5-11 These are for anyone who wants to participate. I know some of us belong to many groups and have many challenges, so you can do 1, 2, 3 or none. It's up to you. If you decide to join in, and want to post your results, please do that here. <BR> <BR> Feb.5-11 challenges: <BR> <BR> Positive Power~~~~ <BR> Take extra care of yourself this week. <BR> Take a bubble bath, get your nails or hair done. If you haven't done one of your favorite things in awhile, take some time this week to do that.... Sun, 4 Feb 2007 16:53:35 EST Anyone Up For A Challenge? Would any of you like to start having challenges? We could have exercise and/or diet challenges. I know that we are all of different age and weight, so the exercises could be modified to meet your own personal needs. I'm not that flexable yet, so sometimes I have to adjust the exercise to my body. <BR> Think about it and post your thoughts here. <BR> <em>213</em> Thu, 1 Feb 2007 22:20:17 EST Quick and Easy Recipes I'm not crazy about cooking, and love to find quick and easy recipes. If you have one that you like, please post them here. <BR> <em>4</em> Thu, 1 Feb 2007 22:12:21 EST What do you do for exercise? Post what you do for exercise Do you walk outside, use a treadmill, do a certain dvd, practise yoga or tai-chi? Maybe you can motivate others to try something new. <BR> <BR> <em>216</em> <em>57</em> <em>135</em> <em>231</em> <em>237</em> Thu, 1 Feb 2007 22:06:45 EST To close or not to close...That was the question Just thought I'd let everyone know that most members voted to keep the team open, so open it will stay. I'm so glad because I started this group to help other caregivers and if I closed it, I would have felt bad that there were others out there that could have benefited from joining. But, since a member brought the subject up, I felt I had an obligation to see what the rest of you thought. <BR> If anyone ever has a question or suggestion, please feel free to sparkmail me and we will go from t... Mon, 22 Jan 2007 20:15:36 EST No Good Very Bad Day I'm not sure if everyone in here works with the elderly or not. I used to work with elderly altzheimers patients but currently I work as a caregiver for mentally retarded and physically disabled adults. I recently had a new client added to my caseload and I've been having a very difficult time with her. She has a lot of anger issues and gets set off very easily. Example she doesn't like crowds, she thinks everyone is always talking about her, she doesn't like loud noises.. very paranoid a... Wed, 27 Dec 2006 02:45:24 EST caregiver stress I was given this letter at the center where I volunteer with demienia and alzheimer pateints and I thought it might help at this time of year <BR> <BR> Ten Sings of caregiver Stress <BR> <BR> 1. Denial about the disease and its effect on your love one. <BR> <BR> 2. Anger about limited treatment and that others don't understand. <BR> <BR> 3. Social Withdrawal from events that used to be fun. <BR> <BR> 4. Anxiety about the future and facing another day. <BR> <BR> 5. Depressi... Mon, 18 Dec 2006 14:32:03 EST FYI for Caregivers Starting in a couple of days I will be posting valuable information to help in the care of our loved ones. Also will be posting tips and information we all may find useful in helping each other as well as those we care for. <BR> <BR> My name is Jaymie, I am a Christian Mother of a 37 year old Daughter who has been disabled since birth. <BR> <BR> I have learned in order to be of value to her I also need to take care of myself in the process. <BR> <BR> I too have a disability and so I have d... Mon, 30 Oct 2006 19:12:03 EST Last Resort Newbie Hi everyone. My name is Judy. I am 58 years old and obese. I have been obese for a very long time. I have lost and regained weight many many times. I am now having serious joint problems and other health problems. I will be disabled permanently if I do not drastically reduce my weight to a healthy level. I already am using a cane in certain situations. I have trouble sleeping because of joint pain and am not able to turn easily in my bed so I wake up often. My husband is also overweight. He a... Tue, 24 Oct 2006 15:28:07 EST Suggestions This site was created for you so you could chat with other caregivers, vent, tell how you have made daily rituals easier to do, or just tell a funny story or joke, because everyone need laughter in their lives, especially those with alot of stress. <BR> If you have any ideas of how this site can be made better, please post them here. Thu, 19 Oct 2006 19:23:48 EST A Few Guidlines To Follow 1) No bad language or inappropriate talk. I want everyone to enjoy being a member of this team, and don't want anyone to be offended. <BR> <BR> 2) Please post in the proper thread. It will make it easier for me to keep on top of things that way. <BR> <BR> Other than that, feel free to post about whatever you want (as long as it would not offend anyone)and <em>235</em> Sat, 14 Oct 2006 19:31:08 EST Funny Stories and Jokes Know a funny story or joke? Please post it here. Laughter does a body good. <em>246</em> Fri, 13 Oct 2006 23:42:32 EST Introduce Yourself Please introduce yourself so that we can get to know each other. Fri, 13 Oct 2006 23:38:27 EST Caregivers Support Group Forum This is where we will have general discussions <BR> Fri, 13 Oct 2006 23:37:06 EST