SparkPeople Fibro Warriors Team Messageboard Supporting one another as we learn how to deal with this condition and live our best life ever SparkPeople Fibro Warriors Team Messageboard Low magnesium? I have fibro and the gamut of metabolic disorders. I've been extra tired lately and ended up in the ER earlier this week with heart palpitations. Turns out I had low magnesium levels, low enough to need an IV drip before they let me go. I'm also borderline anemic, which is something I've had many, many times before. <BR> <BR> It's so hard to do the right then when I hurt so much from more than one issue, am so tired all the time and have enough bowel troubles to be just as scared of eating a... Fri, 28 Aug 2020 13:06:27 EST How has changing your diet helped with fibro pain? I have found a program that I initially started for weight loss that includes meal replacement products. It's been great for weight loss, but it is the other stuff that really impressed me. My fibro pain subsided substantially within a few weeks of starting this program. I have more energy than I have had in many, many years. Brain fog has cleared. I read all the literature about fibro diets, tried keto, paleo, and any number of other programs. For the most part I did't have the energy or cle... Tue, 15 Oct 2019 08:53:16 EST fibro headaches I didn't think much about why I was getting frequent headaches, until I read an article about fibro headaches. I mean my would come out of nowhere, and even intensify quickly to include nausea. The only thing I could think of to do was go to bed. After an hour or so of sleep the headache, nausea and light sensitivity would be gone. some times all day sometimes not, going back to bed and to sleep again usually helped if not just a dull roar . Not a good way to spend my day but better than havi... Sun, 19 May 2019 10:09:57 EST Good Morning! Good morning, My name is Pam and I have not been on Sparkpeople for a very long time. I see that much has changed and it will be like being a newbie. I hope to lose a lot of weight, and get to feeling better. I have Fibromyalgia/Chronic Fatigue, arthritis, diabetes, neuropathy,and depression/anxiety.I have had a difficult time dealing with the holidays. I also had to put my cat down in August and still not getting over it too well. Fri, 4 Jan 2019 07:43:50 EST Hello, I am Paula I am new to SparkPeople and happy to be here. I have been living with fibromyalgia for 20+ years. It can be a struggle...but for me, I stopped fighting it and work at living with it. I just turned 65yo and one of the things that I need to start doing for myself is to get moving. I have lost a great deal of body/core strength over the years due to inactivity. I also stopped taking medication (with Dr. approval) about 10 years ago. I was taking so much medication, with all kinds of side effect... Sat, 29 Dec 2018 08:37:41 EST Hello I wanted to do a quick introduction. I am 58 and diagnosed this year, but I think I have had fibro for about 4 years undiagnosed. Like everyone else I have fibro fog, vertigo, and pain but I really try to stay positive. Because of all the health issues this year, I got very sedentary. I am trying to recover and get better for me. Thanks. Mon, 24 Dec 2018 20:36:46 EST Diagnosed Just Today Hi, I'm 28 and was diagnosed just today. I also received a diagnosis of some arthritis in my knees and Ehlers Danlos with joint hypermobility. I am relieved that I finally have an explanation for why I'm tired all the time and why my body hurts and basically why I don't feel like a 28 year old. <BR> <BR> I am relatively stress-free but I struggle with insomnia already from ADHD and some of my medications plus PCOS has made me gain weight so I'm working on changing my medication and looking i... Mon, 10 Dec 2018 16:12:47 EST What helps you? Here's what's helping me. What treatments or actions help you? I'd love to hear! <BR> <BR> I'm going to share some stuff that's been helping me, because sometimes just knowing something exists can help us find solutions for our own stuff. (All caps to help ID the big stuff.) Please share what works for you because I could use your wisdom too! <BR> <BR> I've been finding help from TRIGGER POINT INJECTIONS from a holistic pain clinic, every 2 weeks. The pain doctor is super experienced and didn't jump straight to medi... Fri, 7 Dec 2018 21:33:40 EST Struggling I have really been struggling over the past week with depression and have not been able to sleep well every night due to a bad fibromyalgia flare, which then throws the whole next day off kilter. I know I need to get back on track because I am starting to gain back some of the weight that I worked so hard to lose. I know I need to stay away from sugar and excess carbs, which just makes the whole pain and sleep cycle worse, but I also tend to gravitatate towards those things when I am in pain ... Fri, 16 Nov 2018 00:33:36 EST New treatment plan - your thoughts? I went to a new pain clinic doctor, who actually seems knowledgeable about fibromyalgia! He had a multi-step treatment plan, and I was wondering what your experiences are. <BR> <BR> 1) Trigger point injections. <BR> 2) Pain specific cognitive behavioral therapy. <BR> 3) Exercise classes for pain patients. <BR> 4) CBD oil. <BR> 5) Meds as a last resort: muscle relaxant at night, Cymbalta. Tue, 6 Nov 2018 17:35:53 EST Lyrica I have been on LYRICA about 3 1/2 weeks and it seems to help some. My doctor started me at a really low dose. What are your thoughts and experiences with Lyrica? Tue, 6 Nov 2018 16:45:28 EST Hello/Newbie Hello I'm new to the group, but not SP. I keep coming back, to see if I can "finally " turn my life around and lose the (now) 70lbs I have gained in 2 1/2 Years, since my fibromyalgia diagnosis... I'm honestly tired of it controlling me.. That I hope I can gain control over IT! Always looking to make new friends and support others. <em>334</em> Mon, 8 Oct 2018 08:39:07 EST Needing help! After a year of multiple tests and diagnosis I did some research and suggested fibromyalgia and my doctor again. Finally I had a name and a reason why I was feeling and sleeping all the time. Well my doctor put me on the lowest dose of Lyrica and I felt great and no side effects! Then it stopped working and she upped my dose. This has happen to the point that I am on my max on Lyrica and my doctor said she could do no more. Well she has me scheduled for a specialist in November. They do... Fri, 31 Aug 2018 10:28:25 EST Hello! I'm trying to get back into SparkPeople, and taking care of myself. I'm 34, live with my partner and his two sons, and am a full-time student. I've been diagnosed with fibro for 2 years, but I have suspected I've had it since I was in the mid-twenties- it took my mom getting diagnosed with fibro to really help my doctors take my concerns seriously. <BR> <BR> I recently have been going to water aerobics classes again to deal with my pain. I've had back pain flaring up so I'm going to a stret... Mon, 27 Aug 2018 03:23:19 EST Having a bad fibro day I was diagnosed with fibro at a relatively young age... at least at the time my doc said I was the youngest he had ever seen... I was 17. At the time I was active and healthy and not overweight. <BR> Fast forward 20 years later and I am obese and inactive and yet I seem to have fewer symptoms than I had in the early years. <BR> <BR> Today, however is a bad day. I just woke up with it. Everything hurts. Just.... hurts. My feet are the worst and walking is agony... <BR> I just feel like no ... Wed, 1 Aug 2018 15:32:41 EST FM In your face No one ever told me, or prepared me for what happened when I broke a tooth. The tooth was fine, but the dentist had to smooth out a sharp edge and did not numb me. I felt every moment of it, the nerve reacted and the day after this took place I had a full on flare in my jaw, teeth, neck, back, and head. The only way I can explain it is TMJ/TMJD symptoms. <BR> <BR> For the past month and a half, I have had to deal with it. My doctor has me on muscle relaxers for sleeping while during the day... Sun, 1 Jul 2018 13:52:43 EST Saying Hello! Hello everyone, <BR> <BR> I was diagnosed with FM about 3 years ago. It came on after I had a MC, my first and only time I tried to get pregnant. 6 months later I had a full blow out flare, and things have not been the same sense. <BR> <BR> I have symptoms that make my doctor's mind boggled, its not fun to have these but it is strange that my doctor is learning along with me the things that can happen during a flare. <BR> <BR> Lots of luv to everyone with this diagnosis, stay strong and ke... Sun, 1 Jul 2018 13:31:05 EST Hi! Hi everyone, I'm new to the group. I just posted a blog entry about my story, but basically in October I was diagnosed with spondylitis and fibromyalgia as well as possible sjogren's. I'm happy to have some answers, but then was a bit depressed. Trying meds for the pain (anti-inflammatories) and now I'm ready to move forward, trying to help the pain and fatigue with healthy habits and not just meds. I'd love to make some friends that are going through this as well. Thanks! Oh, and I'm 36, F, ... Sun, 1 Jul 2018 11:03:40 EST Up most night <em>102</em> <em>102</em> <em>102</em> And have to take Mom for a Physical Appt. Tue, 30 Jan 2018 14:20:11 EST Finally a Diagnosis. Hi, I'm Maleah, an almost 50 year old from Oregon. I have been trying to figure out why I feel like crap for about 25 years now, and finally I'm moving beyond "It's all in your head" and "You're fat and just need to exercise." I remember the days when fibromyalgia was widely considered to be an imaginary disease, so I'm also working through that can of worms. I am in allover daily pain which has me going to work and back home and not much else. They are trying me on Cymbalta, which has help... Sun, 31 Dec 2017 03:02:58 EST HOLIDAY GREETINGS 2017 <link> ksgiving/history-of-thanksgiving/video s/kids-hiR>stor y-the-first-thanksg iving?m=528e394da93ae&amp;s=undefined&amp; amp;f=1&amp;amp;free=false </link> <BR> <BR> <BR> *****HAPPY THANKSGIVING !***** Wed, 22 Nov 2017 16:50:24 EST 20 years with fibro hi, living with it, but nothing helps. medication caused weight gain, and I can lose 20 # but it does not stay off. I need weigh 200 to get a new device to help me sleep. husband died 3 years ago complications due to leukemia. family ignores me for the most part. I have 4 brothers and 1 sister. 2 brothers out of town, one out of state. <BR> <BR> 2 brothers do help. one for a kitchen redo mistake and the other the oldest is helping me with finances. but the family does not ... Thu, 9 Nov 2017 07:52:58 EST Hello Hello! I am looking forward to getting and giving support. My goal is to improve and/or slow down my medical conditions. <BR> <BR> I am dealing with fibromyalgia, arthritis, neuropathy, migraines, type 2 diabetes, depression, fatigue, and sleep apnea. I am scheduled to see a neurologist because of brain lesions. My primary care physician believes I have multiple sclerosis as well. Mon, 30 Oct 2017 13:10:18 EST Sugar & other dietary changes to fight fibro Can we talk about how sugar affects your fibro? Or maybe it doesn't? What has helped you? Mon, 11 Sep 2017 14:48:49 EST Hello from Indiana :): Hi &amp; thanks for creating this forum. I haven't been very active on Spark lately, but am really trying to get back in the swing of things. Sun, 10 Sep 2017 11:59:41 EST Hi I was recently diagnosed with fibromyalgia. I've probably had it for years, but I hate to complain, and I was afraid people would think it was all in my head. All of the aches and pains, sensitivity and tiredness really got me down. When I finally told my doctor she touched me in a few key places and I couldn't believe how much she was hurting me. Then she told me I have fibromyalgia. I'm trying to manage it with diet and exercise and losing weight. It's the exercise I'm having trouble wi... Thu, 22 Jun 2017 03:53:36 EST new to the group Hi, my Name is Donna and I was diagnosed with Fibro back in 2006 after my Primary doctor said there was no such disease. He did a blood draw and said " you may have Lupus go see a rheumatologist. Great doctor who said I was a posted woman for Fibro with so many pain points. Long story short trying lose weight and feel better. One doctor wanted to give me lyrica <BR> but i told him no as it is not healthy fro any body in recovery. So all I take is 1, 200 mg motrin a day and try to red... Wed, 21 Jun 2017 19:49:20 EST Hi y'all from vegas... Yep a southern girl living in vegas. But I found on my tiny $720 disability a month it's the only place I can live if I am careful an not on the streets. I have been homeless many times. I have also found the state Medicaid here is the best I have ever had. I am 51 an starting spark all over again. This time last year I was on spark but my health spiraled out of control so I had to back off for a few months. So my homepage here is not current. I am slowly trying to get back into my healthy li... Sun, 11 Jun 2017 00:19:33 EST Does any medication help with the pain? Ok. I think my meds do help some or else I would not continue taking them. I am just getting tired of being in pain at least part of every day. Wed, 31 May 2017 18:48:49 EST Is strength training 2x a week enough? I was doing it 3x a week but I have to go down to 2x a week. 3x a week is just too much for my body. I hurt ALL the time. But will twice a week still be enough to help build some muscle? I am not looking to bulk up. I just want to build some muscle so I burn more calories since muscle burns more calories than fat. Tue, 30 May 2017 09:59:00 EST Does anything really help you? First off, i must apologize. I am sitting at my desk and i am in severe pain. My office is cold and i have the heater on. But my arms and legs and shoulders are aching so bad that it is all i can do to be here now. <BR> I have tried so many things. I have tried holistic things: acupuncture, acupressure, essential oils, deep tissue massage, gluten free diet, vegan diet, every over the counter rub etc known to man kind. <BR> I have tried the prescription route: lyrica (40 pound weight gain an... Mon, 22 May 2017 09:43:02 EST Hello. I was officially diagnosed 6 months ago. However, I have had these symptoms for 17 years and they jumped to significantly worse in 2012. It took me a while to find a doctor that would listen to me and not accuse me of faking pain for medication. I currently take a low dose antidepressant (supposedly it helps with pain and not depression at a low dose) and an incredibly high dose of Vitamin D. I have not been prescribed muscle relaxers or pain pills yet, as the doctor and I feel that exercise ... Tue, 18 Apr 2017 14:16:40 EST HELP ... SHARP SHOOTING PAINS Help please !!! I have constant pain throughout my body. I also get a lot of sharp shooting pains in my hips and lower back that sometimes shoot down my legs . The Dr .tells me that it is muscular.. <BR> Which tells me that it is my Fibromyalgia getting worse . I have to work full time and it gets harder on me every day . Any suggestions or advice? :( Wed, 1 Mar 2017 00:02:54 EST Hello from Northeast Nebraska! I'd love to know people from this area. Sun, 12 Feb 2017 16:03:17 EST Hello all! Hello all! I'm Blair, I'm new to the team but I've been fighting fibro since I was 16. I'm ready for it to stop controlling my life. Hope everyone has a pain free and productive day :) Mon, 30 Jan 2017 08:09:22 EST Hello All! Hello All! My name is Petrina. I am a 38 year old mother of six kids. I am new to this group--but unfortunately not new to fibromyalgia. Was diagnosed over ten years ago and have a mother with it as well! Fri, 20 Jan 2017 08:00:51 EST Gluten free and fibromyalgia Has anyone tried eating gluten free for fibromyalgia and does it help. How long did it take to feel results? Sun, 6 Nov 2016 07:52:28 EST Some resources for CFIDS/FM/ME Patients <BR> <BR> <BR> <BR> <BR> <BR> Sun, 16 Oct 2016 14:51:25 EST Hello All! Hi there everyone, <BR> <BR> I am newly diagnosed with Fibromyalgia and currently in a flare....I used to be highly active, but found the pain in my legs and feet are preventing me from even walking what I normally walk. <BR> <BR> I am not on medications for Fibro at all, just using OTC painkillers. <BR> <BR> I am about 60 pounds overweight and just trying to lose the weight and be active for me. <BR> <BR> I have an 8 year daughter who is on the highly active side and i just want to be... Sat, 8 Oct 2016 19:25:10 EST Losing my pain med--now what!? My Physical Medicine doc continued my Lyrica and Ultram (Tramadol) when I started going to him about 3 years ago. He added Cymbalta and I was pain free almost all the time. <BR> <BR> Now he is tapering me off Ultram with no hope of any other option. I was a month w/o Ultram when he was gone and my script was due. <BR> <BR> Thanks to the FDA, my Ultram is going away. Its considered an "opioid" what do they want? Me on heroin for relief? <BR> <BR> I'm up to Lyrica 150 mg 3 times a day. ... Sat, 1 Oct 2016 15:28:44 EST Hello. Hello. My name is Sherry. I hope to find suggestions for dealing with fibromyalgia flare ups; the pain seems unbearable at times. Any help will be greatly appreciated. Sat, 24 Sep 2016 16:58:20 EST Girlfriend Newly Diagnosed Hi guys <BR> <BR> My GF was recently diagnosed with fibromyalgia and I am starting understand the difficulties that she will need to face in the coming years. <BR> <BR> One thing I would like to know is that, are any therapy to help with the pain. This one article on Fibromyalgia pain ( <link><BR>pain-types-treatments-and-home-remedies/ </link> ), I was reading mentioned acupuncture, light massage therapy. <BR> <BR> I would like to know any therapies th... Mon, 11 Jul 2016 08:05:42 EST help with pain/injury Hello everyone! I have had arthritis since I was 15, and manage fibromyalgia since 2004 with daily pain meds, but I still need help. <BR> <BR> I have a pulling/tear like feeling in the back of my right ankle. It ALWAYS happens when I go back to exercising. I've only been exercising since Sunday, so obviously I don't want to quit exercising. I am already not "over doing" it. So my question is- what do you use for pulls/tearing feeling like this. I have not had my ankle checked before, so I w... Tue, 28 Jun 2016 15:33:15 EST frustration well, i was on Tylenol 3 and i was going to the gym several times a week and going to water aerobics etc. But my liver enzymes went crazy and i had to switch to tramadol. and i take codeine seperately. I am not feeling any better. I am so sore. Just switching the position in the chair at the house is painful. My taste buds are really messed up. I should be losing all sorts of weight. Everything i eat starts to taste weird after the 3rd bite and i end up throwing it away. But i am always hung... Mon, 27 Jun 2016 12:09:44 EST Tired of fighting Hello! My name is Melissa and I was diagnosed with FM at 30 (I had been dealing with it for a few years before the diagnosis), I'll be 44 Saturday. Somedays it's all I can do to get up and get to work. The older I get, the worse I get. Now with all the FDA worrying about too many people on pain killers, my rheumatologist wants to walk my off as much as he can. I just laugh and him and ask him what I'm supposed to do to pay the bills if I'm on the meds and still have flares? He just looks at ... Tue, 7 Jun 2016 12:11:32 EST Hello! I was finally diagnosed last year with fibro after having pain for 8 years or more. It was a relief to be able to call it something. I am lucky to finally have a young doctor that understands. I was sent to a pain clinic where we learned about fibromyalgia for 3 hours a day for 10 weeks. What I learned there helped so much. The pain clinic ended at the beginning of February. The hard part is maintaining the skills I learned without the support of the group and the mentors. <BR> <BR> I joined... Tue, 7 Jun 2016 03:06:33 EST Hi Everyone! Hi, I'm Krys. New to Sparkpeople but getting to be an old hat to Fibro. Been officially diagnosed for 3 years, unofficially it's been a lot longer than that. <BR> <BR> *waves* hi! Tue, 17 May 2016 22:05:33 EST Tapping away the reason I'm fat. I've been away from Sparkpeople for a while pursuing my soul self. I've listened to many seminars from speakers who have books published by Hay House and I find them all fascinating! Even miraculous! <BR> I've always bee quite open when it comes to the link between mind and body and spirit. I get hypnotized easily and have broken an addiction to chocolate that way. Through tapping nine meridian points while talking to myself about a thing I want to change about myself, I've also been able to... Tue, 10 May 2016 13:16:52 EST new to the team Hi everyone, I'm from Oakland, California, and look forward to meeting you all! Sun, 8 May 2016 00:00:51 EST Message Removed Message Removed Fri, 29 Apr 2016 23:52:37 EST New to this group Hi my name is Kathryn and i am trying to lose weight i am 270 lbs and i have Fribromyalgia and it is hard with the pain. I try to work through it and do my workouts any suggestions on some easy workout for me? <BR> Fri, 1 Apr 2016 10:08:27 EST positive for inflammation The last year or so I have been exhausted. My workouts have worn me out more so than normal. My blood tests always come back negative. <BR> <BR> no one can find out whats wrong with me. Its frustrating. <BR> <BR> However, I did get a positive result for a "vague marker" for inflammation which could be related to fibromyalgia. I have no idea. <BR> <BR> I also have pcos. I'm reacting well to my Metformin but this exhaustion is getting to me. <BR> <BR> I also have 3 kidz with autism and ... Thu, 31 Mar 2016 19:24:14 EST new My name is Brenna. I'm married with 3 kidz with autism. I don't have fibromyalgia but I did get a positive result for this vague marker for inflammation Thu, 31 Mar 2016 19:20:32 EST Hi there! I wanted to introduce myself to this rather large group. :) I live in southern Indiana, but I'm originally from SW Kansas. I'm a married mom of three, (two are moved out on their own, and my 18-year-old is still at home attending college.) I'm a preschool teacher for our local Head Start program, and have been doing that for a total of about 14 years. Back in 2009, I joined Spark People and over the course of just over a year, lost 81 pounds. When I turned 40, my body betrayed me and no ... Tue, 22 Mar 2016 19:20:09 EST Antidepressants for pain Hi I am new here. I have had fibro since the age of 12 and I'm 51. Recently I started taking Prozac for depression, but it did a much better job at controlling my pain for most of the day, so in the evening I would take Tramadol for breakthrough pain. Unfortunately, I had to keep raising the dose on the Prozac and I gained a lot of weight so in the end, it was doing more harm than good as I also have widespread arthritis and the excess weught makes it worse . Now I am waiting to see if my ins... Sat, 19 Mar 2016 09:37:33 EST Lyrica and mood problems I'm wondering if anyone else has had issues with mood swings/depression/pms like feeling while on Lyrica? I've been on it for a year now but over the last 3 to 4 months my mood has been getting more and more unpredictable. I've gotten to the point now that I feel like I am pmsing all month long. I originally thought it was a hormone imbalance but my gynecologist has checked and it's not that. Recently my husband was talking to a coworker who also has fibromyalgia and she described the ver... Sun, 6 Mar 2016 13:32:53 EST The joy of SAD and how to deal Does anyone else have a lot of troubles this time of year? I have SAD along with my fibro and depression. Of course, I live in the Midwest and have no means of moving away anytime soon. How do you deal? Thu, 22 Oct 2015 13:16:43 EST pain medication I have had absolutely no luck with any of the current fibromyalgia medications on the market. I had weight gain with lyrica, migraines with cymbalta and when we tried the second line antidepressants etc, i had migraines again. I am currently under treatment for tmj and seeing a neurologist for possible sleep study to try and pinpoint the source of the migraines. <BR> I am about to embark on a wellness program with an exercise physiologist for a prescribed exercise program that is modified sp... Thu, 22 Oct 2015 09:39:45 EST tired of being tired winter is worse hello everyone ... <BR> Let me give you a bit of background ...I am 43 yrs old work out low impact 3x a week min 2x (although I have to tell you it is hard for me since I used to work out so much before) story started with costochondritis and then leg pain that I couldnt walk ...we did all kinds of test to rule everything else out heart, liver anything and everything after a year they told me it was fybro...I have to say when the flare up happens I just want to sit and roll into a... Tue, 20 Oct 2015 08:46:58 EST Severe med interaction I suffer migraines on top of the fibro issues. I have been on Lyrica 150mg, 4x daily for almost a year. I have also been taking nortriptyline for headaches changing dosage for almost that long (doesn't work). My doc removed the second med and tried me on a combo of Cymbalta 30mg with my Lyrica. <BR> <BR> I experienced the most severe headache, nausea, body pain, dizziness symptoms I have EVER had in life. it was suggested that it might just be initial changes that come with using Cymbalta s... Tue, 6 Oct 2015 10:22:28 EST Message Removed Message Removed Sat, 1 Aug 2015 20:12:13 EST Hello from Montana! I have just returned to Spark People and found this team. I've had fibro for many years and have it fairly under control. My weight, however, is steadily increasing and I need a way to manage it. I cannot do cardio or yoga/weights without feeling like I've been beat up the next day, but know I need to add it to my routine. Planning on walking, but am not sure how much I need to do to make an impact on weight loss. Wish me luck! Jacki Thu, 2 Jul 2015 13:55:22 EST Hi All I'm new & just wanted to say hello! Having a lovely time these days, just trying to manage my fibro and an active toddler who just wants to run and play all the time. lol <BR> <BR> Hope everyone is having a good day today. :) Tue, 2 Jun 2015 13:10:56 EST Hello, i'm new I am a new member and just want to say hello to everyone.I wish you all a great week!! Mon, 18 May 2015 09:24:26 EST Explaining Fatigue Ok so since before I had my last child I knew something was wrong and it wasn't just being tired from pregnancy when I wold sleep all but 3 (maybe) hours out of the day and still feel tired. Well I have managed and gotten my days like this down , but it still happens. <BR> <BR> How do I explain not wanting to get out of bed to my husband? Bless his heart he wants to fix it and can't understand why the stuff he does to pep himself up doesn't work for me. Today for instance I got 11+ hrs ... Sun, 10 May 2015 23:11:07 EST New Spark Points Spark Coach Jen announced this on May 6th: <BR> <BR> "Hello <BR> <BR> Today we added the ability to receive SparkPoints for liking friend feed items, team wall posts, and blogs. This is a new SparkPoints task listed under the community section of Daily SparkPoint Challenges. You can receive 1 point per like, up to 5 per day. <BR> <BR> We also added SparkPoints for commenting on someone’s team wall post. These points feed into the existing Post to SparkTeam and Message Boards challenge also... Sat, 9 May 2015 20:08:47 EST Yesterday, Interesting... Yesterday was interesting. I did my usual speed walk with co-workers, but early since it looked like rain later in the day. My shins were BURNING when we got done, no biggie I walked it out. Got home, prayed, turned to my right and my whole lower back felt like I was getting hit with a paddle full of nails. I laid down because I couldn't move and I mean couldn't move. Lifting my head sent searing pain through my back and spine. It was horrendous. I stayed on the ground for a good 20+ ... Thu, 7 May 2015 11:31:35 EST New Hi, <BR> I'm new. a little confusing where to post. I have just restarted sp and just recently overexercised and caused myself a little flare. Ugh. I walk my dog about 2-3 miles a day. I added a little strength training (like 10 min) two days ago (a six minute upper body video from sp, and I think three min of abs with little dumbells from sp), and now I'm exhausted and in pain. I guess I need to add strength training even more slowly. Any advice? I want to get better, get fit, but it... Mon, 27 Apr 2015 19:20:54 EST treatment plan for me I don't know what i am going to do. I just know that my legs hurt really really bad. My arms hurt down to the bone. I feel as if i could just rip the bone out of my body, and go limp, i would feel better. but that isnt an option. I am so tired. I barely make it through the day. i get in my car, i stop by the store and pick up something to make for dinner and drive home. make dinner and colapse in a chair and don't move until time for bed. I am taking tylenol 3 every single night. Its better t... Fri, 17 Apr 2015 15:08:21 EST SAVELLA? So has anyone tried this drug? i just went back to my rheumatologist today and she gave me a prescription for the medication. Here is a little bit of my history <BR> 2009 dx with fibro. started on low dose lyrica it worked for awhile and pain came back <BR> increased the dose, worked for a while, increase dose, worked for awhile, add cymbalta, same story. on high dose of lyrica and cymbalta, 40 pound weight gain, then sudden onset of horrible daily migraines. history of melanoma so of course... Fri, 17 Apr 2015 14:30:02 EST I FOUND MY SOURCE OF FIBRO!! I'm not sure it's a "CURE" but it's certainly explains me! I have had gut issues I thought I resolved with diet (fiber) ... I know you all don't follow my blog but I've been here since my celiac diagnosis in 2006 trying to figure out why I hurt and I'm tired and I'm in pain. I about got all but 10-20% of the pain gone with diet and exercise. But stress is harder to handle with moving and marriage and kids and finances and blah blah! <BR> <BR> THE REASON BEHIND MY GUT ISSUES (AND REMEMBER! A... Fri, 3 Apr 2015 16:36:22 EST hello there Hi, my name is Debbie. I'm a nurse. I have been fighting fibromyalgia for several years now, i don't take any medication. I was on lyrica and the other medication cymbalta. but the medicine stopped working. first it worked, then my pai seemed to get worse and they had to keep increasing the dose. It just seemed like my pain became out of control and i ouldnt cope. Due to the high doses of the medicaiton and job stress, i began having horrible headaches on a daily basis. I eventually lost my j... Mon, 23 Mar 2015 08:21:18 EST New to the team Hello from Toronto Canada .... <BR> Well I am new to this team but not new to SP ...for the last few years it has been horrible ...dr and more dr and test after test to finally be diagnosed with Fybro and Costochondritis ..funny enough I got the costo first ...and I can tell you there is not a day that goes by where I can say I dont have any ...but there are days that I function better than others. <BR> I try to keep moving as they say it helps but there are days my muscles and j... Wed, 18 Mar 2015 09:02:02 EST New to Fibro I am rather new to Fibromyalgia. The last two years have been a nightmare. I did not know what was happening to me. Recently my doctor said he thought it was Fibro. I started reading and researching it and the symptoms described how I have been feeling. I hope to be able to learn more on here and to be able to help you all if I can. Sat, 28 Feb 2015 21:50:42 EST Funnies Did you know that SparkPeople devotes a whole site to funnies about losing weight and maintaining health? I just found it and here's the link to it. I hope you get a laugh out of them. <BR> <BR> <link><BR>.asp </link> Sat, 28 Feb 2015 19:22:04 EST Has anyone been on plaquenil? I started taking in on Jan 30th so it has just been 2 weeks. They said it takes about 4 weeks to start helping. After one week I noticed I started having diarrhea all the time but it has tapered off. Now I'm dealing with a lot of fatigue. I sleep a long time and then wake up feeling drugged and end up falling back to sleep. Now I have my sleeping schedule all turned around. Yesterday I went to sleep around 4am and slept all day long until my husband came home and woke me up. I got up b... Sat, 14 Feb 2015 03:43:56 EST New from Illinois Hello-- <BR> <BR> I was diagnosed with Fibro in June 2010. I am still struggling to get a handle on it. <BR> My page goes into more detail. I hated the doc who diagnosed me and since moving(we moved in nov14) I am hoping to find a doctor with more knowledge,and a better bedside manner. <BR> <BR> IT was through trial and error that I discovered carbohydrates cause inflammation which makes my fibro worse. So I generally stick to 100-120g carbs or less. I have also found some great stretch... Thu, 8 Jan 2015 23:12:07 EST New from Northern Utah Hi, My name is Angela and I have had Fibromyalgia for 7 years now. My mom has had it for 25 years, so she has been very supportive of me. Unfortunately, she is also very ill and in lots of pain. <BR> <BR> I used to be slim and active but medications and inactivity has caused me to gain weight and loose my strength . I have a son who is 15 with nonverbal autism that I had at age 32 so I know that if I want to be around for him as he grows older to care for him then it is vital that I be hea... Tue, 30 Dec 2014 22:32:51 EST New Me in 2015 Hi Everyone, I'm so happy to find this site! I don't know how much space I'm allowed so I'll get right to it. I want to tell you what has worked for me and what didn't. I was diagnosed in 2009 with severe Fibromyalgia 18 out of the 18 trigger points along with Severe Chronic Fatigue due to a virus I have that won't go dormant that causes flu like symptoms and from Viral Hepatitis I had with Mono at the same time in 2005. I received Social Security Disability because of these issues and ha... Mon, 15 Dec 2014 01:06:13 EST Newbie and just diagnosed Hello. I just got the word yesterday I have FM. My question is has anyone been on Topomax for FM? Did it work for pain? Weight gain? Scared to death of gaining weight. Thanks so much! Sat, 6 Dec 2014 17:45:15 EST starting over!! Hello my name is Debra I have decided not to give up on my goal to change my life for the better .I lost a great amount of weight and then I was just stuck because I couldn't loose any more. Its been almost two years since I tried to get back on track. So I am feeling defeated so I decided to come back to Sparkle and get support and possible find a group or walking group in Charlotte to help me get restarted and to give me some tips on how to get back on track, and me remain accountable. I j... Sat, 6 Dec 2014 08:33:12 EST New Year's Resolutions I know we're not supposed to make New Year's resolutions because most of them are broken by Valentine's Day, but let's try. <BR> <BR> Think seriously about what you'd like to do, that you have control over and that will be fairly easy to accomplish. Think about the steps you'd like to take to get there. (i.e. I want to take an online class: at beginning in February; I want to lose 2 pounds by March 1st by limiting my calories to 1500 per day.) <BR> <BR> If you are successful wit... Sun, 30 Nov 2014 07:49:15 EST What's New With You? Let's get this forum going people! How about a daily check in? And let's try to stay positive, but also use this as a way to discuss issues relating to fibromyalgia. <BR> <BR> For instance, today I was able to clean the kitchen, living, family, and dining rooms, including the kitchen and dining room floors. The weather is getting warmer (a whole 40 degrees), and the house is staying at a warm 70 degrees with the wood fire going. I'm tired now, and deciding between a nap and going to my... Sun, 16 Nov 2014 18:48:07 EST Laurie's Introduction Hi there--I'm glad I found a fibro board here. I've been living with fibromyalgia for the past 15 years, and I've got to say, it just never gets better. I am one of the lucky ones in that I was able to retire early (best husband in the world!), which has helped immensely. <BR> <BR> With all the medication I'm on (fibro, migraines, IBS, etc.), it seems they all have "weight gain" as a side affect. Go figure. When I was in school, I never struggled with my weight, although I always thoug... Fri, 24 Oct 2014 18:29:29 EST New Trophy Levels Coach Jen just posted this: <BR> <BR> Hi everyone! <BR> <BR> Just wanted to let you know that we added some new trophy levels today beyond 100,000 points. Here's a link: <BR> <BR> <link><BR>nts_icons.asp </link> <BR> <BR> Enjoy! <BR> <BR> Coach Jen" <BR> Sat, 18 Oct 2014 16:14:04 EST Symptoms I have been working on my symptoms list to help myself, my doctor, and to hopefully get disability. I am hoping you guys can tell me if there are any symptoms that I missed? <BR> <BR> Fibromyalgia Symptoms <BR> <BR> Whole Body <BR> Allergies to: pollen, dust, <BR> Amplified pain <BR> Anemia <BR> Asthma like symptoms <BR> High and Low Blood Pressure problems <BR> Bruises that come from an unknown reason <BR> Burning sensations <BR> Cannot Crawl <BR> Cannot Vacuum <BR> Can't do a ... Tue, 7 Oct 2014 00:02:25 EST Elise's Introduction I am restarting to lose weight but I am doing it differently this time. It is hard to lose weight but with the right mindset and the right support you can go far. One thing I realized for myself I cannot just have the mindset of I need to lose weight. I have to have the mindset that I HAVE TO LOSE the weight and not just for my health but for ME. I never thought of myself as a food addict because I only ate emotionally one time. But when I realized how I eat; I realized I <BR> am a food addi... Sun, 5 Oct 2014 18:07:00 EST New and don't know if I have fibromyalgia or what? I just turned 46 and have been bothered with some very "odd symptoms" since Jan of 2013. It started with itching in my scalp and face. My doctor immediately checked liver and kidney function. About a week after this, I started getting zapping sensations that jumped around my upper torso, mainly on my arms and even my knuckles. <BR> In March, I started getting extreme burning pain in the muscles of my back. <BR> In June, an enlarged axillary node was found after a routine mammogram. That's whe... Sun, 21 Sep 2014 22:17:08 EST New to the team! Hi! I'm new to the team. I have fibromyalgia (obviously lol), ELS, chronic migraines, bipolar, anxiety/panic attacks.. I saw this team and was so happy to discover it! My fibromyalgia is not being treated right now because my doctors are afraid of the possible interactions with my psychiatric meds. I go to see my pdoc next week and with her approval I can get started on meds to deal with this. HOORAY! I do have voltaren gel but it doesn't help much. I'm just looking for friends who understan... Thu, 18 Sep 2014 09:48:58 EST So proud of myself Last night we took the kids to an Astros game, we were invited by the March of Dimes for participating in the March for Babies walk in May. All the walking I did I so thought I was going to pay for it, not to mention I took my meds late and just knew I was going to oversleep as my body rejects anything under 6+ hours. However even walking over 12000 steps yesterday and not taking my meds until 11:30 and going to sleep at 1 I'm proud to say I woke up perfectly at 6:30 (only 30 mins late) and... Wed, 17 Sep 2014 10:28:47 EST Newbie hello all, <BR> I'm new to the board, but I've had Fibromyalgia since 2012. At the time I didn't know I did while I was pregnant with my last child. Which made him be my last child because my body hurt in places I didn't think of on a regular basis. I couldn't walk, sleep, move and the fatigue was doubled. When the issues really didn't go away after having him I went to the doctor fearing a Lupus diagnosis based on family history and the symptoms mirroring each other. <BR> <BR> It... Mon, 15 Sep 2014 23:33:36 EST Hi Hi. I am in need of motivation and support by those that understand what I'm going through, those that understand my fatigue, aches and pain. I hope to make some friends to help me through my journey of surviving the day to day fibro stuff as well as my weight loss. <BR> <BR> Thanks for letting me be a part of this team. <BR> I look forward to getting to know you all better and helping out where I can. <BR> <em>213</em> <BR> Thu, 11 Sep 2014 15:15:10 EST Hello all I'm here from California and looking forward to meeting people with the same, tiresome, and annoying condition...Fibromyalgia. Mon, 1 Sep 2014 09:36:33 EST just started today :) <em>362</em> Wed, 27 Aug 2014 23:40:07 EST Anyone from around Fargo, ND? Hello well I have many issues but was diagnosed with fibromyalgia on 10/9/2009 took just over 2yrs but also got the word I have Multiple Sclerosis on top of it the next day from the same doctor I was devastated but I have survived both but have gained just over 50 pounds since that day. Sun, 17 Aug 2014 16:30:17 EST Changes coming. Here's a message I got from Coach Jen: <BR> <BR> "Hi everyone! <BR> <BR> Just wanted to give you a heads up that we're making some design changes to the main Resource Center pages (like this one: <BR> on <BR> .asp ) and to article pages next week. <BR> <BR> Overall, the pages will have more image-based navigation to articles and a cleaner look. (I've seen them and they look really nice.) The article pages will be wider and cleaner looking. Today on SP w... Sun, 10 Aug 2014 15:39:22 EST what would you do to fit fibromyalgia I realised that I felt better when in a warmer climate by the seaside, so I have moved over 1000 miles to a new country away from my family to live here. <BR> <BR> Financially this is not easy and I really miss my husband who I love a lot but I am feeling better than i have done since I was first ill and I just wondered what other people have done or would be willing to do. Sun, 10 Aug 2014 06:52:46 EST Finally! I got my doctor's attention. I swear I have the lousiest doctor for someone with fibromyalgia. I had another doctor that was great and something happened and he suddenly left to work in another area. He is a fantastic doctor who actually cares. Anyway, they assigned another doctor for me and I've never liked her or felt she believed me. Right away she made it clear she didn't approve of the medications he had me on or how he had been treating me and she started changing everything. Anyw... Sat, 9 Aug 2014 23:00:53 EST Hi from Wisconsin I have had pain and "prickly sensations" for about a year now. The Dr. say it's fibromyalgia and that exercise is the best treatment. Mon, 28 Jul 2014 17:58:28 EST What hobbies do you do to keep your mind busy? I know it helps me to focus on something when I feel bad instead of laying in bed or just sitting around. I like to read but I often find I just can't focus enough to read. I used to knit but I was constantly making mistakes and losing track of my place in the pattern. I used to do a lot of things actually... I learned to make tatted lace with a shuttle and with a needle but I haven't picked that up in quite a while. I used to paint and draw all the time but I just find I can't do those t... Sun, 13 Jul 2014 20:47:41 EST New member Hello, <BR> <BR> 1st off I have been on Spark for a few years but inactive most of the last 2 years due to a very busy lifestyle. The site has changed so I am still feeling my way around. <BR> <BR> I am 38 as of this past Sunday. I have 3 adult kids that recently made me an empty-nester and a 7 week old granddaughter. My middle child is finishing Air Force Security Forces tech school then heading to Korea. <BR> <BR> Well I could go on and on to take the pressure off of myself but here... Tue, 8 Jul 2014 21:35:47 EST HI - I'm Debbie - I am new to this team! Hello there, <BR> I joined SP a few years ago for dealing with grief (dad passing), and also fibro. I stepped away from here for a bit. I am back for a couple of reasons. First - my journey. Finding me, my true passion, and also to be accountable for health issues. So, here I am and hope to get to know you. <BR> <BR> Debbie Sun, 29 Jun 2014 12:43:20 EST Howdy from Texas Hi everyone. My name is Tammy, I'm 37, single and my only child is my senior schnauzer, Josie. I want to lose about 100 pounds. I've done it before so I know it's possible but unfortunately I gained all of it back, plus some. I've recently lost about 30 pounds by cutting down on my sweets and walking. :-) <BR> <BR> I joined this group because my doctor told me that more than likely I have Fibromyalgia. We've ruled out Rheumatoid arthritis which I was worried about since my father has it. M... Sun, 29 Jun 2014 03:24:30 EST Hello New to this site, had fibro for over 20 yrs and like to keep up with any new information and can use all the support I can get. Live in rural NE so weather changes are a big issue with me. <em>524</em> Fri, 27 Jun 2014 21:01:31 EST . . <BR> Thu, 19 Jun 2014 19:45:50 EST Hi Everyone I'm new to SparkPeople and I've been busy exploring. A lot of options and things to do. So far I love everything I've seen. I was happily surprised to find a forum on fibromyalgia. I've been afflicted with this for years but I'm just now starting treatment for it and don't quite know what to expect. I felt so relieved and also less isolated when I found this site. I can't wait to read about other people's experiences and ideas. Thank you all for sharing your stories. Sat, 14 Jun 2014 08:42:45 EST Fighting Fibro Fatigue Hello Fibro Friends, <BR> The hardest thing for me on my quest for improved health, which includes losing 10% of my weight! is finding some "get up and go." <BR> <BR> It's like something is weighing me down in my chair, recliner, etc. Even when I'm making myself do the necessary household chores, I typically do no more than that. <BR> <BR> Yet I know aerobic and muscle-building exercises are so very important. <BR> <BR> HELP! Can you share any tips to fight fibro fatigue from holding u... Wed, 11 Jun 2014 10:50:39 EST Greetings!! I am from Minnesota, although this past winter I could have sworn it was the North Pole. I am ecstatically gleeful each time I look out the window at the green leaves and cherry blossoms. <BR> I have used SP in the past for a nutrition counter. <BR> I am looking forward to learning to exercise and eat with Fibro. <BR> I spend more days in recuperation than I do in exertion. I need some balance. <BR> I am grateful for the SP community and the opportunity to learn from SP. <BR> Thank you, a... Wed, 28 May 2014 22:27:10 EST Hello from Indiana Hi all...I am Christie and have been dealing with Fibro for the past three years. I really have a hard time this time of year with the humidity picking up...anyone else experience this? It is not pleasant. Looking to make some changes in my nutrition and find appropriate exercise that fits my mobility needs. Looking forward to getting to know fellow Sparkers! <BR> <em>244</em> Tue, 13 May 2014 00:27:51 EST Team Flags Which of our teams got the most points today? (Pennants can be found on your start page.) <BR> <BR> I gave Spark Bookworms 50 points today. Fri, 2 May 2014 15:09:08 EST Tears and smiles.... A special little boy, and a precious gift... <BR> <BR> <link><BR>-turns-20-into-priceless-gift/ </link> Sun, 27 Apr 2014 21:19:23 EST New Changes to Team Page Spark People will be making several changes to the team page. You can watch this video about changes to the Spark Team pages. <BR> <BR> <link> </link> <BR> <BR> The changes will be made in the next week Fri, 25 Apr 2014 13:32:40 EST Ideas to battle boughts of fatigue ? Ok , we all know that chronic fatigue is part of this illness , but periodically I go through weeks of SEVERE fatigue . It is so debilitating sometimes! It's like I can't get enough sleep or something. <BR> Does anyone else experience this? What do you find helps? Mon, 21 Apr 2014 14:12:48 EST Some music for the soul... Amazing group of men singing on Britain's Got Talent (can you say, "goosebumps"?) <BR> <BR> <link> </link> <BR> <BR> P.S. Happy Easter! Sat, 19 Apr 2014 14:33:42 EST Hello from Tennessee Hello I'm Gale and from Five Points, TN. I was diagnosed with fibromyalgia March 2012 after suffering with pain for years. I finally went to a rheumatologist and he started me on several medications, Cymbalta, Neurontin, Savella & tramadol. I still couldn't function very much but tried to work. He had me on such large doses of these meds that my blood pressure continue to go out the roof. All he would do is up my bp meds. Finally in June of 2012, I thought I was having a heart attach while d... Sat, 12 Apr 2014 12:02:19 EST Hello Hello. I am new to the forum. I am looking forward to have in the support from people,who actually experience fibro. I am blessed with a great support network . My husband, adult sons, as well as friends and co workers understand as best they can. But WE all know that unless you are IN it you can't fully understand it. I am not one to ever really whine about stuff either because I don't like to bring others down. <BR> Talk to you all soon, I'm sure &#128516; Sat, 12 Apr 2014 04:59:10 EST HI THERE! I have been a member for quite some time but I don't think I have ever introduced myself. My name is Gabi, I am from Rockford, IL. I am 56 years old, a recent widow with three grown sons. I was diagnosed 1992 with moderate to sever fibromyalgia and possible SLE in 1992.For me having support is crucial to my dealing with this insidious syndrome. At my highest weight I weighed right around 250 pounds and was miserable. I am now 75 pounds lighter and it really helps. I love to walk. <BR> I... Wed, 2 Apr 2014 20:11:30 EST Hello from Alaska Hello Happy Spark People, <BR> <BR> Just your typical, no-energy, quite exhausted lady here. I love knitting & reading. Watching the aurora or watching the cat are my usual outdoor activities. Tue, 1 Apr 2014 03:22:07 EST The power of words... My niece sent this to me. She's a mom with six kids, two of whom have CF, and she is a full time nurse, putting her husband through school. And she still finds the time to look for the bright things in life... <BR> <BR> <link><BR>3/Mormon-young-men-bring-smiles-to-36-<BR>girls-faces-video-reaches-thousands.html </link> Sat, 29 Mar 2014 02:24:02 EST need help! Hello Team, <BR> I'm new here needing all the help I can get! I stop eating flour and one of my fibro meds takes my appetite ( a plus <em>211</em> but I've got a ways to go! Tue, 25 Mar 2014 12:43:20 EST Has anyone ever had "shingles"? I am going to the Doctor on Monday but I was wondering if anyone has had shingles. I'm about 95% sure that's what I've got. Really severe pain and blisters on my rump. I'm taking ibuprofen for the pain and that helps for a little while but then it's back with a vengence. I was wondering if there is anything else I can do for it before I see the doctor. Fibro pain is bad enough but this is just over the top. <BR> <BR> Help! Linda Sat, 22 Mar 2014 22:32:22 EST I'm back! It's been a lo-o-o-ong time! TOO long. Six whole weeks, and the whole time I was pretty much living what my sister always says "you're not being driven crazy... it is your permanent address!" LOL <BR> <BR> It feels so wonderful to be sparkin' again. I really missed being able to KNOW how many carbs I'm getting, and how much sodium and potassium--- guessing was a real pain in the you-know-what!--- but the thing I missed the most? <BR> <BR> All of you! <BR> <BR> There's no place like home...... Sat, 22 Mar 2014 15:51:22 EST Hello, new from MN Just joined sparkpeople, I have no idea what I'm doing yet! Fri, 21 Mar 2014 19:49:04 EST Share Your Ways of Fighting Fibromyalgia This happened to me, so I thought it would be worth sharing should it work for anyone else: <BR> I started taking fish oil supplements a month before I was due to have a general blood work up. My motivation was to improve my HDL "good" cholesterol counts for the blood test, then continue for heart health purposes. <BR> After a couple months of taking fish oil, I realized that I had not been reaching for my pain "rescue" meds nearly as often as I had in the past. Those are the meds my doc give... Fri, 21 Mar 2014 15:35:45 EST This came from TROPICALSTARS (This post was from TROPICALSTARS. She posted in the "THIS AND THAT" Forum.) <BR> <BR> Hi all ì just joined and wanted to introduce myself. I'm Susan and was just told by my PT that I have the beginning stages of fibro, which explains a lot. What Do all you do that seems to help? I'm considering taking up yoga to stretch and have been trying to hydrate myself consistently vs. Only when I feel thirsty (hardly ever). <BR> Sat, 15 Mar 2014 07:57:46 EST Have You Huddled Today? With Which Team? I've huddled with Fighting Fibromyalgia and Spark Bookworms. Thu, 13 Mar 2014 09:34:08 EST Really Overwhelmed!! I'm still wandering around Spark and figuring it all out. There is SOO much helpful advice, articles, quizzes, groups and challenges. It's all really overwhelming me! When I'm feeling up to it and not in severe pain, I'm on here checking it out and trying to find exercises that I can do and look at how to eat healthy. Ive never been one to do either really but didn't struggle before like I am now with my weight, along with everything else I'm dealing with! Everyone has their own challenges th... Wed, 12 Mar 2014 05:51:40 EST Working out with a weak left knee and ankle I chipped a piece of bone off my left ankle tripping over a stick while walking to a bus stop two years ago (walked on it for two days before nearly fainting and deciding to go to emerge with Mom). It's aches nearly all the time and I'm trying to get more active to no avail. Any tips or tricks? Sat, 8 Mar 2014 14:14:52 EST Hello from Long Beach Hi everyone, <BR> this is my first post and I am happy to have found this site. I suffer from fibromyalgia and I don't have a support group or anyone to talk to. I have a treadmill but I don't walk on it very often. I'm always tired and I struggle to have a positive outlook on life. I'm hoping I will get some help from all of you. <BR> Thank you for letting me share. Fri, 7 Mar 2014 17:27:33 EST Fibro from a wheelchair The doctors figure I have had fibro for at least 30 years. It's been diagnoised with many other things over the years but put together they are all symptoms of fibro. <BR> I have been in a wheelchair for 9 years now due to arthritis in my back and knees which prevents walking to a great extent. <BR> Anyone have any ideas on how to exercise without wearing myself out? Fri, 7 Mar 2014 09:49:14 EST Message Removed Message Removed Sun, 2 Mar 2014 12:39:10 EST Hello from Oregon Hi, <BR> I am a kind of an oldtimer fibromyalgia sufferer. I was diagnosed in the 90's when they were still trying to decide if it was "real" or not. I was told to go on disability but I felt like a throw away person and I made a different choice. I became a truck driver. I worked my behind off in pain all the time. For a sometime stubborness and grit and setting my own schedual worked. Then it didn't. I had a baby, 4 different surgeries in 4 years and I have been fighting for disability sin... Thu, 27 Feb 2014 02:12:59 EST Hello Everyone I am 40 yrs old female who has been diagnosed with fibromyalgia 2012. Which is not the only the medical condition i have, suffer with chronic degenerative disc disease cervical spine as well with lumbar spine and degenerative and fraying of both shoulders. Which i now am not able to work and currently am receiving disability. It is all hard to except. I have tried so many treatments such as physiotherapy, laser therapy, massage therapy, aqua-fitness, trigger point injections, Acupuncture and ... Thu, 20 Feb 2014 21:25:01 EST Hello from Illinois! Hello everyone! I have been a member on here for a little while but haven't been active on here. I usually am on my phone and it's so hard to navigate spark from it. I have had fibro for 2 years now. I've put on 40 lbs pretty much since and I really need to get it gone. I hate getting dressed, none of my clothes fit and the ones I do wear just don't feel comfortable. I hate looking in the mirror. I've been pretty tired and achy lately. My daughter, job and relationship are being affected. I'v... Thu, 20 Feb 2014 11:17:49 EST Message Removed Message Removed Sat, 15 Feb 2014 10:24:35 EST Message Removed Message Removed Sat, 15 Feb 2014 10:07:19 EST Message Removed Message Removed Thu, 13 Feb 2014 10:49:58 EST Sorry, gang! My router and/or modem has an issue, so I'm at a friend's house right now... I'll be back in business soon, don't miss me too much, ok" <BR> Kathy <em>247</em> Mon, 10 Feb 2014 22:06:55 EST Hello, New Here HI Everyone, <em>213</em> <BR> <BR> Just want to introduce myself. I'm Nancy, and I live in California. I was diagnosed with Fibro (and Palindrome Rheumatoid) in the fall of 2012. I lost my job shortly after and so my insurance as well. I have been managing without medication for almost a year. Unfortunately, after going off the meds, I started gaining weight that I had lost the previous year, and am now at my largest ever. I'm not sure of my weight, as I don't currently have my scale. W... Thu, 6 Feb 2014 13:28:15 EST Hello Everyone! I have had Fibro for 11 yrs now. I was diagnosed after having an abdominal hysterectomy and never seemed to recover from the surgery. I suffer from pain and fatigue everyday. Three yrs ago I was told by my Dr that I was low on B-12 and Vit D. I take monthly injections for B-12 and 50,000 IU once a week for Vit D. My now wardrobe is snug and I refuse to allow myself to shop for bigger clothes. I am determined to live healthier and find an exercise program to stick to! I am very excited ... Tue, 4 Feb 2014 11:51:13 EST Introductions Hi! My name is Jennie. I am the stay at home mom to 3 amazing kids. Been married 20 years in March. <BR> <BR> I was diagnosed with fibro 6 1/2 years. I also have arthritis and was recently diagnosed with diabetes, neuropathy in my feet and high blood pressure. The doctors have me on a heart healthy diabetic diet. I found out about my high blood pressure when I almost passed out in a store and I had to be rushed to the hospital. The doctor said that my pressure was so high I could have had ... Sun, 2 Feb 2014 06:33:09 EST Message Removed Message Removed Sat, 1 Feb 2014 18:17:58 EST Message Removed Message Removed Thu, 23 Jan 2014 16:43:54 EST Message Removed Message Removed Sat, 18 Jan 2014 20:15:45 EST Paleo VS Gluten Free Okay people. Are you on any special diet to help manage your fibro? I'm kinda confused. My fibro doc said that many people find a gluten free diet helps ease some of the daily symptoms. However, I am reading that for my PCOS I need to go on the Paleo diet (which I am only just starting to read up on) but if I decide to incorporate both into my life, I will eat NOTHING. Pointers? What special diet (if any) are you on? What kind of success have you had? Fri, 17 Jan 2014 14:01:42 EST New In WA Hey all. My name is Amber. I was diagnosed with Fibro this past April after 2 years of fighting for tests and answers. I am a single mom to a 6 year old boy. I am trying to get on disability for my Fibro but having a heck of a time. Somehow, they don't think it's possible for someone 32 years old to have such an "invisible" condition. I am new to the healthy lifestyle (that I have yet to successfully incorporate into life) as well as dealing with the Fibro. I am hoping to not only find tips a... Wed, 15 Jan 2014 00:23:06 EST Message Removed Message Removed Sat, 11 Jan 2014 02:45:44 EST Message Removed Message Removed Thu, 9 Jan 2014 21:09:00 EST Goals for 2014 Hello everyone, I'm Katie :D I'm currently living in the deep freeze of North Dakota with my husband, two daughters (5 and 2), and my mother-in-law (all in the same house). I grew up in Fargo and my dad and brother still live here. I am currently working as an office manager at a technology/payments processing company. My true passion is to craft, and my life goal is to open up "Katie's Craft Nook." An ultimate craft room, full of all the equipment it doesn't make sense to purchase yours... Sun, 5 Jan 2014 09:24:01 EST looking for a fibro friendly physician in WNY area Anyone know of a great fibro dr in the Buffalo NY area. Neither my GP or my Rheumy address my fibro very well and i am constantly in pain. All i take is natural herbs and vitamins and a muscle relaxer. Thank you! Tue, 31 Dec 2013 12:39:39 EST Message Removed Message Removed Tue, 31 Dec 2013 11:47:18 EST What to eat?!? Hi everyone! <BR> This might sound crazy but I've read so many posts on the internet on what not to eat, Things that make FMS worse, or flare up. I'm wondering if you can tell me what DO you eat? Because the problem I have is that I don't eat. All day. And surprise, surprise, I have no energy and I feel terrible! Then I grab the nearest quickest thing available, which is usually not very healthy... I take medication that kills my appetite so I don't feel hungry and I'm sure my body is in star... Mon, 30 Dec 2013 14:32:35 EST 5K with fibro? Hi all! <BR> I'm new here to this forum, and to this site in general, so hello to all! <BR> I'm 43, I used to run/jog in my younger years. I was diagnosed with FMS a couple years ago and have not engaged in any exercise program since then. I have been walking and swimming though. I have been thinking about doing the C25K training program. I was wondering if any of y'all had any experience with that app, or with running/walking 5K races? <BR> <BR> Thanks!! Mon, 30 Dec 2013 14:11:36 EST Hi, I'm new! I was diagnosed over 12 years ago. It was wonderful knowing this wasn't all in my head. My then DH still thought it was and that caused a lot of problems. Happily, after a divorce I met an amazing man who understands me and doesn't belittle me when I can't do everything I'd like (or he'd like). <BR> <BR> I never really did anything for my fibro. I didn't really research it or take measures to make myself feel better. I ate a lot and stayed in bed a lot. <BR> <BR> But it's time for me t... Sat, 28 Dec 2013 13:19:16 EST Happy 2014! What do you want to happen in the New Year? Either for yourself, your family, or the world? <BR> <BR> I'd like to conquer the fatigue of fibromyalgia so I can live a fuller life. Sat, 28 Dec 2013 10:49:43 EST Beautiful poem... The best thing about this time of year <BR> Is the wonderful stories you get to hear, <BR> ..of courage and caring, <BR> ...of love and more, <BR> ...of opportunities <BR> Right at your door... <BR> <BR> Loved this. <BR> <link><BR>l=0 </link> Sat, 21 Dec 2013 19:09:45 EST Message Removed Message Removed Fri, 6 Dec 2013 21:51:24 EST Howdy from Texas Hi, I'm glad I found this team! I look forward to meeting y'all and sharing. Besides fibro I have diabetes and psoriasis. I live with my wonderful, beautiful partner, two doggies and two cats. My energy is dropping, must go ck my blood sugar. More later. <BR> Smiles, <BR> Gray Sun, 24 Nov 2013 16:19:16 EST SO CUTE!... <link><BR>ed/vDa0z0gEvI4?rel=0 </link> Mon, 18 Nov 2013 01:19:37 EST Trivia Challenge Have you tried the SP Trivia Challenge? You need to get three answers correct, then you win 3 points. Go to My Trackers/My SparkPoints. The questions can be found by clicking on "Answer Trivia Questions" 3/4 of the way down the first list. <BR> <BR> Today I got all three questions right the first time. That doesn't happen very often. <BR> <BR> What did you learn when you answered a question wrong? Share so we can learn something too! <BR> Sun, 17 Nov 2013 08:47:23 EST The BIG BLUE MARBLE?... <link><BR>-are-happening-to-astronauts-returning<BR>-to-earth?g=2 </link> Sat, 16 Nov 2013 17:29:28 EST I am new I am new to this team.. actually I have been a member before. and I am back. I think I live in some of denial hoping I really don't have the disease. when my symptoms flare.. my Dr. reminds me that I do. look forward to sharing with the team Thu, 14 Nov 2013 11:59:12 EST Jackie Evancho meets her match! Wow. <BR> <BR> <link><BR>-opera-on-hollands-got-talent.htm </link> Wed, 13 Nov 2013 18:16:30 EST New Girl Been an SP member since the beginning; not new to SP but am new to this team. <BR> <BR> I'm 55 YO; have fibromyalgia plus other issues that aggravate it. Really sucks the motivation to exercise right out of me. I'm not getting any younger and really REALLY want to lose my 80 lbs. I just cannot stay motivated. <BR> <BR> Thu, 7 Nov 2013 13:26:48 EST New to the team Recently diganosis with CFS and Fibromyaglia needing to lose weight and learn how to control my high blood pressure along with my fibromyaglia. My OBGYN doctor confirm today that I was at a slow suicide death . Have you every been told that you are slowing dying because of your weight . I have it hurt real bad. I have to go and have sleep apea test done something I thought I would never have to do I really need help losing the weight so please pray and help me through this. <em>39</em> Wed, 6 Nov 2013 23:19:45 EST New to Fighting Fibro Team Hi! I'm Laurie, I was diagnosed with Fibromyalgia two years ago. After six months of pain and frustration, visits to several different specialist, eliminating everything else that could possibly be the cause, I was diagnosed. I can pinpoint the exact moment it started. I had stomach surgery for reflux which makes it impossible for me to throw up (sorry if TMI). On Christmas Eve 2011 I got the stomach flu, I heaved for 10.5 hours straight. I told my mother I actually felt like my chest pl... Mon, 4 Nov 2013 13:21:08 EST Request for Poem Hi, I recently received this message and have looked in several places trying to find the poem. But no luck. <BR> <BR> If you read this poem or posted it to our forum, would you tell us where to find it? Thanks much. <BR> <BR> Nancy <BR> <BR> "Hello! <BR> I have had chronic fatigue and fibromyalgia for a few years now and when I signed on to the site I found a beautiful poem that helped me through some of it. <BR> <BR> It was about 3 months ago on the fibromyalgia group. Could you tell ... Sun, 27 Oct 2013 09:51:55 EST New Changes Coming Monday! Team leaders got this message this morning. Click on the link below to read about the changes. <BR> <BR> "Today we are very excited to announce the launch of a big enhancement to your SparkPeople experience. We know, we know: Change is often viewed as a dirty word. It's something people don't always like, especially from a website that you are used to using a certain way. But this change has been many months in the making and has even been tested and approved by a group of SparkPeople membe... Sun, 20 Oct 2013 16:41:52 EST Remember when? <link><BR>layful-siberian-husky-does-the-most-ad<BR>orable-thing-in-a-pile-of-leaves-video </link> <BR> this pup KNOWS exercise can be fun! I wish I was that energetic! LOL Sun, 20 Oct 2013 15:49:49 EST Message Removed Message Removed Sun, 13 Oct 2013 11:41:17 EST Not New to the whole Fibro thing Hello to All, <BR> <BR> Was diagnosed with this nasty ailment almost 30 years ago. It has been a tough go in life wiht it and the many challenges that come with having FM and CFS along with other health issues. Life is a challenge. <BR> <BR> I ended up adopting my first grand child and was working full time with a new born on my hands. Then was in a near fatal accident with my pick up truck. Life took a nasty turn for me. I had to head back to Canada to get health care that would help me a... Thu, 10 Oct 2013 14:56:45 EST Happy tears... A beautiful moment... I cry every time I watch this! <BR> <BR> <link><BR>ra-captures-firefighter-bringing-a-tin<BR>y-kitten-back-to-life/ </link> Wed, 2 Oct 2013 14:52:56 EST Starting anew! I am not new to Spark although as my fibro first started getting worse I really fell off the wagon. I am tired, or being tired! I am tired of hurting. I am pushing through and not going to let fibro hold me back from acheiving my dreams and goals. So I will be there hiking the AT with my husband come June! Tue, 1 Oct 2013 15:37:26 EST New From SC Hi everyone, <BR> This is an amazing site and I am hoping to be able to learn from each other. I have been living with Fibro since I was 32 and I am now 55. It has been a long hard struggle, but still moving on. I just moved to SC from the Middle East, so the stress of the international move (lived there for over 5 years and loved it) and new job and new place to live has been hard. <BR> I am happy to trip over this site. I really needed this at this time in my life. <BR> Good to meet you... Tue, 1 Oct 2013 06:46:58 EST Sorry - Our Docs Don't "Do" Fibromyalgia... I've been searching high and low for a doctor in my area that embraces both western and eastern treatments for Fibromyalgia. However, during my search yesterday, I was flabbergasted! <BR> <BR> Of those I spoke with, they 1) wanted to shoot me full of injections, 2) dope me on medications, 3) don't "do" FMS. <BR> <BR> Wait!? What was that last one? <BR> <BR> You read that right... I called rheumatologists in my are and was told "We don't 'do' Fibromyalgia." When I asked if they knew anyone,... Wed, 25 Sep 2013 09:22:16 EST I AM BACK Hi Everyone, <BR> <BR> I haven't been on for a long time. I had a problem working on the computer for any length of time because neck pain led to arm pain which lead to wrist and hand pain & my shoulders wouldn't go near a computer. <BR> <BR> I have heard about a couple things lately related to treatment of fibromyalgia & chronic myofascial pain. Has anyone heard of or tried a method that a Dr. David Brownstein came up with. Apparently, a chapter is included in his book available online. I ... Tue, 24 Sep 2013 15:22:19 EST Having to deal with it's in your head type people So I have a new roommate who thinks that fibromyalgia is all in my head. That if I didn't think about the pain it wouldn't be there. No one thinks of the pain 24/7. It's there and we just go on with our lives the best we can, but he just doesn't get it. Thank goodness I'm waiting on a reference, then I'll be able to move out of here and into a place for the elderly and disabled. But until then I have to put up with this guy's questions and I really have no clue as how to get it in his head t... Sat, 21 Sep 2013 13:56:55 EST An 86 yr old wonder! Just think of this as a goal you DON'T have to have! LOL <BR> She's amazing! <BR> I can only imagine her daily routines... <BR> <BR> Now I can picture me getting up in the morning as my version of the Olympics! LOL <BR> <link> </link> Wed, 18 Sep 2013 09:02:11 EST Just found this community Hello. <BR> I am Ed, 75 y.o. living in Thailand (retired). <BR> Back in 2006 I had an operation that fused my L2,3,4&5 vertabrae with two metal rods and eight screws. <BR> Not only do I have constant back pain which increases when I walk (I walk with a cane more for balance than support) but it has affected my left sciatic nerve so that there is always pain in my left leg. It also caused my left big toe to drop below the others so that when walking barefoot (which we always do indoors here in... Sun, 8 Sep 2013 21:47:33 EST New from AZ Hi everyone... my name is Karen and although I am new to this group I am not new to SP. I'm 53 and had a total thyroidectomy in June 2012. Since then my body has been going through numerous changes, the latest of which is a fibromyalgia diagnosis. I am a middle-school math teacher; if you look up the definition of MS teacher in the dictionary, you will see the word STRESSED! <BR> <BR> My doctor was able to provide me with enough samples of Cymbalta to last for about four weeks. By week thr... Wed, 4 Sep 2013 00:44:05 EST Cute and crazy... I know just how they feel... LOL <BR> <BR> <BR> <link> </link> Sat, 31 Aug 2013 23:50:54 EST New member Hello, my name is Debbie. I live in Cape Cod MA. I am 56 and I have had Fibro since 1986. <BR> This is my 2nd day and I am still learning about this site. I would appreciate any advice. Fri, 30 Aug 2013 10:03:25 EST Message Removed Message Removed Sat, 24 Aug 2013 14:03:14 EST New here but not new to fibro Hello all! I'm glad I found this group. I'm Karen and I live in KS. I was diagnosed with fibro about 8 years ago. I've learned to live with it for the most part but hate it. I teach, which I enjoy, but I hate the school year because it takes so much out me. <BR> <BR> Right not it's Friday and I've had students for the past 2 1/2 days. This is the third time I've started this intro but my brain is just not functioning! So for now I'll say hello and I'm looking forward to getting to know you ... Fri, 23 Aug 2013 19:22:51 EST using meditation for fibromyalgia pain <link> </link> <BR> This is a whispering meditation to help relax the body and mind...I have started to use it in the AM and then follow up with Rodney Yee's AM stretch for yoga... <BR> <BR> This combination as well as walking for 20 minutes in the evening has been helpful. My MD has also prescribed Cymbalta and I find I am doing better. <BR> <BR> What has been working for others to help with fibromyalgia??? <BR> <em>252</em> Thu, 22 Aug 2013 08:06:13 EST I just want to give up I really wanted to lose this weight, about 20 lbs, before my 50th birthday on 9/25, but it's not going to happen. And today my kids start back to school and I have such terrible pain and brain fog that I couldn't hardly function enough to make a to-go breakfast for my son. I was doing so well w/ the exercising and eating right for 4 weeks and lost 7 lbs, but then I hit a flare and I've not been able to bounce back yet. I feel like every day is trying to catch up with laundry, housework, et... Mon, 19 Aug 2013 07:24:50 EST the enigma of a butterfly I feel your pain; my path has been a similar one. My pain came so much earlier in life now that I look back in my childhood. The earliest episode as a baby they say, then a bad episode in 5th grade a talent show the excitement I guess brought on a server leg cramps in my shins, off and on the next few years we thought growing pains, at times rashes appeared thought to be allergies, first rash I remember, I had been at outdoor circus and ate raw peanuts so doctor thought she’s allergic or heat... Sun, 18 Aug 2013 17:29:39 EST From sunny Michigan Hello Everyone! <BR> <BR> I was referred to this team by Jamer123. Thank you Jamer123! *S* <BR> <BR> I’m Pamela Jenewein (aka PeaJay) from southwestern Michigan. In 2006 I was diagnosed with adrenal fatigue and hypothyroidism, then in 2007 perimenopause reared its ugly head. Last week was diagnosed with Fibromyalgia, but been enduring it for at least 4-5 years. My mother suffers from it, including Rheumatoid Arthritis and life long hypothyroidism. I’ve surfed the net to educate myself abou... Sat, 17 Aug 2013 12:31:19 EST The OWL AND THE PUSSYCAT <link><BR>c6Fmg&vq=large </link> <BR> <BR> The opening startled me a bit-- but this is SO cool!... <em>334</em> Mon, 5 Aug 2013 11:53:08 EST July begins with "J" and so does _____. ancillary Sun, 4 Aug 2013 16:25:51 EST Web MD article... Just an interesting little article on pain, some of which most of us already know--but there were a few things I didn't!... <BR> <BR> <link><BR>es/whats-your-pain-tolerance?ecd=wnl_c<BR>bp_072513&ctr=wnl-cbp-072513_ld-stry&mb= </link> Sun, 28 Jul 2013 20:28:49 EST SAN FRANCISCO MIST Amazing, beautiful little film... so peaceful! <BR> <link><BR>62 </link> Sun, 28 Jul 2013 20:11:16 EST Has anyone tried hynosis for reducing stress? I find the more stressed I get the more I eat so I'm trying a couple of stress reduction ideas I've heard about from one of my medical providers. A hypnosis CD and a subliminal suggestion CD. Just wondered if anyone had any experience and results from these types of tools? Sun, 28 Jul 2013 16:10:20 EST Fell, ouch! I was walking while talking to my DD on my ceoo and stepped into a hole just off the sidewalk. What a jarring fall, it took me a bit but I was able to make it home. Does anyone else get all hurty when they get jarred? It makes my muscles spasm and ache. <BR> No injuries, so I am lucky, but I went 15, 000 steps today, and now I am hurting so much I doubt I will sleep tonight. Sun, 28 Jul 2013 00:06:42 EST Fell, ouch! I was walking while talking to my DD on my cell and stepped into a hole just off the sidewalk. What a jarring fall, it took me a bit but I was able to make it home. Does anyone else get all hurty when they get jarred? It makes my muscles spasm and ache. <BR> No injuries, so I am lucky, but I went 15, 000 steps today, and now I am hurting so much I doubt I will sleep tonight. Sun, 28 Jul 2013 00:05:14 EST Nice to be back in Spark's Fibroland I've wandered away from Spark and slipped back into old habits. My weight crept back up along with the useless feelings of helplessness and depression. A couple of weeks ago, rushing to get my cat inside before a bad thunderstorm, I fell on my butt, breaking my pelvis and sacrum. <BR> <BR> I live alone, although I am lucky to have a few good friends. So I have the help I need. With the fibro, I am used to pain but the fractures have taken pain to a new level. The up side to this ... Wed, 24 Jul 2013 10:21:29 EST A Little Video from... Dr. OZ... <BR> <BR> <link><BR>a/health-guide/fibro-smart-tips-guide/<BR>manage-fibro-symptoms-video?eid=101068<BR>4918&memberid=54315416&_sid=null&#cmpid=sceml00 </link> <BR> Basic stuff, if you've had fibromyalgia for a while... but still good to know! LOL <BR> <em>407</em> Tue, 23 Jul 2013 21:48:33 EST New to team Hi there, I've been using Sparkpeople on and off for a couple of years now. I'm back after a spell of absence, a lot heavier than I'd like to be. Having fibro and joint hypermobility syndrome can make it difficult to lose weight between the medication and the restrictions in exercising. Hopefully hearing how others cope with it will help me. <em>30</em> Mon, 22 Jul 2013 08:02:55 EST Newbie to Fibro - learning to slow down and rest! Hi all, <BR> <BR> Been struggling with recovery from my 9th major surgery. Apparently enough trauma to trigger fibromyalgia. Argh...I've not slowed down in 40 years of working so it's like I'm having to figure out who the real me is at almost sixty. Taking Lyrica-Tramadol-Flexeril for pain and Effexor for depression 3 times daily. This cocktail works well but it doesn't leave me able to work in my profession as a project manager so I'm having to figure out a whole new career. Oh well, l... Sat, 13 Jul 2013 18:57:04 EST newbie hi all. i am so happy to have found you. for the most part i have lived with fibro. RA and lupus quite a few years and am always looking for support and to give support. <BR> hugs to all. <BR> Sat, 13 Jul 2013 04:28:29 EST Fibro Flare, Just whining I am in the worst flare I've had for years. Basically everything between my hips and shoulders are tight and in pain. I can't even walk upright. And I'm getting neck spasms. <BR> <BR> I've been going straight to bed when I get home from work so I haven't been eating dinner. I expect I'll have some weight loss this week but it hard to do it this way. I get really nauseous when I'm too hungry but despite being hungry, I can't bring myself to eat. <BR> <BR> I'm just whining I guess. It is just... Wed, 10 Jul 2013 18:44:22 EST Optional Changes Coming Here's a message from Coach Jen about some upcoming changes: <BR> <BR> "Hi everyone! <BR> <BR> We wanted to let you know about some changes that are coming tomorrow to calorie and fitness tracking. A few things to keep in mind: <BR> <BR> 1. These changes are TOTALLY optional to current members. So if you like the way things work now, you don't have to change anything. <BR> <BR> 2. Change is never easy, so we ask that you keep an open mind when reading the blog below and deciding whether o... Wed, 10 Jul 2013 12:56:32 EST What Natural Means do you use to fight fibro? I think I've tried everything there is to try in the 14 years I've had fibro, with varying results. But I'm back to fight another day --- Is there anything in particular that has really helped you aside from pain meds? If you use certain vitamins would you let me know how many mg and what kind? I know things work different for different people, but my fibro is getting worse as the years go on and I want to try something different. Some days I really would love just a back/shoulder/neck ma... Wed, 10 Jul 2013 12:46:33 EST HI - new, again... Hi, I joined sparkpeople last year and lost over 30 lbs -- but I've managed to gain it all back so I'm back again..... and fibro is a big part of my struggle. I get so tired and just don't care, up and down rollercoaster.... I've had fibro for 14 years. Erin Wed, 10 Jul 2013 12:43:19 EST Hi there! Hi everyone, my name is Kimberley and my doctor think I might have Fibromyalgia, he gave me a leaflet and put me on Cymbalta; I thought I'd do some research on it - it's nice to see so many support systems out here. <BR> <BR> I was suffering from headaches for about a year before I went to see my doctor about them because they were affect my ability in everyday life. I had a couple of the other symptoms, particularly memory problems. Then roughly six months into seeing him in had a blackout ... Wed, 3 Jul 2013 11:38:30 EST hi im new here 7/2/13 Hi everyone my name is vannessa and i just recently found out i have fibromyalgia back in april im still new to this concept of my life it all started back in september when i fell and got hurt and i was having issues with my back and feeling numbness in my arms... it didn't get worse till january when i was having so much pain that i was having issues walking and i went to my doctor saying there is something wrong. after 7 months of going to the docs and dealing with pain the doctors finally... Tue, 2 Jul 2013 20:39:21 EST Online Pharmacy I was wondering if anyone knows of a good, CHEAP, reliable online pharmacy. I have been using Wal-Mart and they are cheap enough, but I have a big problem with their pricing and policies. I can get nortriptilyn (Pamelor) 25mg capsules at $8 for 60 of them. I take 2 at a time which is 50mg a day. I wanted to get 50mg capsules (just to cut down on the number of pills I have to swallow) which I was told on the phone would be $4 for 30 of them. I got there and they were going to charge me $18 for... Tue, 25 Jun 2013 14:34:02 EST I am new as of 06-25-13 I am 48 years old and a single mom of 2 daughters. I have had Fibromyalgia most of my adult life. I also work a full time and run my kids to their appointment and activities. <BR> <BR> <BR> Tue, 25 Jun 2013 13:21:50 EST Hi! New here! Hi all! <em>213</em> My name is Sophie, I'm 27, I was diagnosed with Fibro in 1999 (13 years old) after close to 2 years of seeing doctors and specialists all over (and one quack, hehe). Finally was referred to a pediatric rheumatologist at Duke University Medical Center who made the diagnosis. Being young and having Fibromyalgia can be really frustrating, receiving any treatment to manage pain or even being taken seriously is something that really doesn't happen. <BR> <BR> I don't have a... Thu, 20 Jun 2013 19:27:57 EST Anyone find anything that helps w/ fatigue?? If I could just have a little more energy... I am constantly fatigued even worse if I have a flare. Has anyone found a magic pill?? Thu, 13 Jun 2013 14:39:49 EST New to the team Hi! <BR> <BR> I wanted to introduce myself. My name is Monica and I was diagnosed in January of 2012. I am an RN, but am disabled because of the fibro as well as degenerative disc disease and a dislocated pelvis. I am getting ready to go back to school for a Bachelor's Degree- hopefully I will get to go back to work! <BR> <BR> I have about 100lbs to lose and that scares me. Fibro didn't make me overweight, but it is making losing it a real battle. I am guilty of over-doing exercise and payi... Tue, 11 Jun 2013 04:00:28 EST Hello to all I have been sick and in pain for 6 months now. I have been to 4 doctors, 2 ER visits, I had 2 CT scans, a colonoscopy, endoscopy, swallowed a camera, had a bizillion blood tests. They decided that I have gastropareisis which is a paralized stomach. It is caused by the vagus nerve being damaged. But we couldnt think how it could have been damaged. I agree with this diagnosis but there is some thing else wrong. I have a lot of pain in my left side. My last doctor said if Im not better in 2 mont... Mon, 3 Jun 2013 23:18:14 EST I'm new I've been on SP off and on for a year or so, but I'm new to this team. My name is Lissa, and I'm 39, married to my best friend, and mother of 4. I was diagnosed with fibro about 2 yrs ago. I had thought I'd had it for probably 5 yrs before that but had somebody tell me I didn't, because I was able to get out and do things. Basically, I didn't hurt enough. I have what I call functional fibro. As long as I'm not flaring, I can generally carry on a normal day if I can get past the blahs and fati... Tue, 28 May 2013 13:53:06 EST whoa. Wasn't sure where to put this, but I really wanted to share it... <BR> <BR> A friend sent me this video--wow. This moved me to tears. I've totally been there on some of the things they touch on... my friend's message with it said that this was something everyone should see... and I agree! <BR> Thought provoking... <BR> <link> </link> <BR> <BR> Kathy <em>407</em> Tue, 21 May 2013 18:57:03 EST Bifocals and fibro Hi all, <BR> <BR> I just found out I need to have a separate reading prescription from my distance prescription. My fibromyalgia started in my neck and usually is worst there. I was reminded about pain from adjusting my neck yesterday while dealing with off kilter glasses (I broke them on the bridge and had to hold them together there with adhesive for a few hours til I could get to my spare ones). Instead of bifocals, I requested separate reading glasses. Can anyone tell me about any pr... Sun, 19 May 2013 01:15:42 EST Hey Ya'll I'm a Newbie Here! I was first diagnosed with fibromyalgia when I was 19, but back then nobody really understood it! I had some pain and muscle tension, but for the most part was able to deal with it. Then in 2005, I had a major flare. I woke up one morning and could barely move. I ended up having to quit my full-time job and was bounced around from doctor to doctor. Then we ended up moving and I found a fibro-friendly doctor who took the time to explain all aspects of fibro to me and would really listen to me!... Sat, 18 May 2013 16:35:32 EST Hello Hello, My name is Jennifer. I was diagnosed with Fibromyalgia in October of 2012 after a more than 2 year search for an answer. I had many symptoms for a long time before that, but I believe my last pregnancy in 2006/07 and some major stress in my marriage brought on a significant flare in 2010. This is what launched the search for answers. I am coming off of a flare now after a 6 month period of improved symptoms. During that time I began to question my diagnosis. After reading over a... Wed, 15 May 2013 15:45:02 EST What do you do for pain? I'm curious to know what other people do for their pain...I take Lyrica (which does more for my mental and emotional wellbeing) and then either 6 aspirin or 6 ibuprofin in the morning, for the pain. Even then about half the time I can't function very well. In reading the article Spark had today I realized that maybe controlling my fibromyalgia will make me more active and not the other way around. If you're willing to share I'm willing to listen.......... Wed, 15 May 2013 12:11:43 EST Hello There My name is Shannon and I am 34 and have been suffering with Fibromyalgia for over 4 years now. I was glad to find this team to be able to interact with other people who are going through the same things I am. I'm getting started back into my fitness routine so I hope to learn a lot from others who have been here before! Wed, 15 May 2013 10:38:27 EST All Or Nothing I'm one of those who think you should go all out and do all these exercises not thinking of the consquences. I had been involved in a MVA about 25 yrs ago and fractured the fifth vertebrae. It was a long recovery and it was all meds and no one including doctors knew what to do with me. The 5 yrs ago a pain specialist came in our area and he did what they call denervation where the nerves are burned. One side done 6 weeks apart with me a yr to 14 months pain free with my neck. However I also h... Wed, 15 May 2013 08:44:34 EST parasites... With the help of a holistic physician it's been discovered that I have parasites. I have been undergoing treatments to kill them, (yes, I've seen them with my own eyes!) and as the treatment has progressed, I have felt my depression and brain fog lessen. I have also been able to pin point when my "flare-ups" (abdominal cramping and pain, bloating and ulcer like pain have been from the parasitic activity in my gut and colon. I know that this isn't something very well treated or known of in a ... Sat, 11 May 2013 20:29:26 EST Hello there! Irish smiles! Hello everyone! I've come back and I'm under a new name (was "Excira"). Why? Because I've changed back to my old ways and I need your help. <BR> <BR> The last 20lbs I lost on SP has found it's way to my hips, thighs and other areas I dare not speak. Heck, I can probably fly to Hawaii with the wings I now have! <em>211</em> <BR> <BR> But this time, I have realized that my weight problem is not with just losing the extra pounds. I have a severe relationship issue with food and feelings of... Mon, 22 Apr 2013 11:37:53 EST BETTER THAN DANCING WITH THE STARS! <link><BR>a4_90 </link> <BR> I want to be like this--wow! LOL Sat, 20 Apr 2013 14:22:33 EST ANOTHER UNEXPECTED RESCUE... <link><BR>layer/bcpid1020658729001?bckey=AQ~~%2c<BR>AAAA7tL7Jbk~%2cPIa4ylnDNbjnj7ZbiOV8kbv<BR>ADabkL0oK&bclid=0&bctid=2115487651001 </link> <BR> <BR> When this comes up, click on the screen enlargement--you're going to want to see the details! Sat, 20 Apr 2013 12:41:14 EST Ventroloquism, anyone? Funny stuff! I'm STILL laughing! <em>246</em> <BR> <BR> <link><BR>oquisting-is-perfect-for-comedians-who<BR>-can-t-iuml-raquo-iquest-st-298683#Gi7<BR>Esbtlza3cvpGQ.01 </link> Sun, 7 Apr 2013 15:33:05 EST Hello to a support group I really need. I just found out I have fibromyalgia and would like support in dealing with it. I have been on sparkspeople for years now and it has really helped me keep track of my health. Thank you for the team. <em>2</em> Tue, 2 Apr 2013 13:29:55 EST A WHALE OF A STORY Loved this, it made me cry! SO cool... <BR> <BR> <link><BR>l=0 </link> Tue, 2 Apr 2013 10:52:28 EST Piercing pain I have piercing stabbing pain in my feet and legs especially my calves. It is preventing me from living a normal life. I am lying down in bed with the electric blanket too much!!!! <BR> I have tried sn Rx at one point in time but it did nothing. I soak in hot water in the morning to try and loosen them and begin my day. I sometimes need to go in the hot water again at the end of the day. If I could live in hottub I would. <BR> <BR> What have you done that had helped? Tue, 2 Apr 2013 08:58:29 EST Hi! I am Jane I have such pain especially in my feet legs and calfs. Burning, piercing pain. I soak in the tub in hot water a lot. I could live there. I tried one Rx once. It did nothing. I take Aleve. <BR> <BR> I need to work through this so I dont become 100% sedentary at this young age of 45!!!! Thus here I am looking for ideas and support. Tue, 2 Apr 2013 08:41:17 EST Unusual sensations in extremities Hello, I am new and I have a question. <BR> <BR> Lately I have had the strange sensation in my arms and legs. It is not a pain but like they are not my limbs. I feel like I have to think hard to make them work right and sometimes they don't respond exactly like I think they should. Holding a pile of magazines and my arms and they just let go or walking and my legs suddenly feel like noodles or like they weigh a thousand pounds. The other sensation is a tingling on my right side from shou... Tue, 19 Mar 2013 20:03:01 EST Can I join you all? Hi everyone. My name is Melissa. I am so excited to have found this group on this site. I am now 36 years old and very out of shape and overweight. I was first diagnosed with fibromyalgia when I was 19 or 20. I didn't really understand it at the time. I just knew I never felt well. I also was diagnosed with Chronic Fatigue Syndrome around the same time. <BR> <BR> I was able to deal with the pain and exhaustion through most of my 20's. I was very active and would be sore more often th... Mon, 18 Mar 2013 22:12:46 EST Nice to meet you Hi there, nice to meet (or whatever this is called) you all I've been at SP for over a year but didn't realize how much my arthritis and myalgia (in addition to ADHD) was hindering my whole life, including attempts to get in shape, exercise, lose weight, and just get out of bed some mornings. I'm a wife of 14 years and mother to an 11 yr old son and 9 yr old boy/girl twins. Multiple surgeries and inactivity have made range of motion difficult, and now I am determined to get as much movement... Sat, 16 Mar 2013 09:47:39 EST New I don't know if I have fibro or not. my grandma had it, great grandma had it, my great aunt does too and afraid I might have it. Sat, 9 Mar 2013 15:03:50 EST not sure if I have it my grandma has it, my great aunt charlet (grandmas maternal half sister) has it, my great grandma had it <BR> <BR> my husband claims that I have fibromyalgia because of my forgetfulness. i thought most women had it period from having kidz and having to keep track of so many things. <BR> <BR> but anyways. <BR> <BR> IF I do have it, and maybe have some EARLY signs of it, what are some things I can do, instill into my current routine to help myself or whatever? Sat, 9 Mar 2013 15:03:04 EST Is Childhood Intelligence Linked to Pain Problems I don't know how accurate this article is, but I was in the top 5% in the intelligence tests all through school, and ended up with fibromyalgia. However, I was overweight and was a smoker for ten years as an adult, which was part of their statistics. I'd like to hear from others about this. <BR> <BR> <link><BR>news_detail.asp?health_day=671164 </link> Wed, 6 Mar 2013 12:42:40 EST MUSIC BOX This has the look of a very classy animation project... real or virtual, it's pretty amazing--LOVE the music! <BR> <BR> <link><BR>l=0 </link> Wed, 6 Mar 2013 09:31:08 EST Tempurature changes??? My temperature has been really weird lately. At night I'll be too hot, so I'll throw off the covers only to be too cold3 minutes later. So I put 1 blanket onand 3 minutes later I'm too hot again. What's this all about? Any suggestions? Wed, 27 Feb 2013 00:30:20 EST Pain, numbness and tingling...? Sometimes when I am really behind on sleep or have added stress the outside of my arms will hurt and I have sporadic tingling in my hands and arms. Recently I've just had a tingling sensation on the outside of my hands, only the pinky side. Anyone relate and have more info on this? I know it has to do with tightness and possibly something being pinched, but beyond that.... Wed, 27 Feb 2013 00:28:48 EST How do you deal with the fatigue? I am always so tired. Sometimes I can sleep for 12 hours straight and then need a 3 hour nap during the day. And of course, this makes it extremely difficult to exercise or do anything else. How do you deal with it? Tue, 26 Feb 2013 17:55:16 EST What helps with your fibrofog? I am 25 and newly diagnosed. A lot of times, I will feel like I am in a daze or dreaming. I hope this makes sense! I heard this is called fibrofog. Is anyone else experiencing this and what has helped you? It is really hard to concentrate and sometimes I will totally space out and forget what I was doing. It is so embarrassing sometimes! Tue, 26 Feb 2013 17:49:58 EST Hey, I'm new. Hey! I'm Toni. <BR> <BR> I was diagnosed with fibromyalgia in June 2011. I'm not sure how long I've had fibromyalgia. It seems I had mild symptoms of it for a while, but thought my problems were just part of getting older. I went from extremely active to decrepit practically overnight, kinda like I got hit by a bus. <BR> <BR> I used to study martial arts (Kung Fu, Aikido, kickboxing, and Tai Chi) 3 hours daily, 4 days a week. I was often stiff before class, so I arrived 30 minutes early to... Fri, 22 Feb 2013 13:36:15 EST Hey I'm tired now from filling out my SparkPage stuff, and I've had another sleepless night, so I'm just gonna say hey! <em>213</em> I'm Toni. Thu, 21 Feb 2013 04:07:20 EST A-Z Easter Basket We have a topic here that says "What is your goal for today?" Well, for February, I'd like to challenge you to make a goal for a week: drink 6 glasses of water each day; walk for 10 minutes five days this week, eat 2 veggies a day for a week, etc. <BR> <BR> Once you've written your weekly goal here, come back at the end of the week and let us know how you did. <BR> <BR> My weekly goal beginning Sunday is to eat one serving of fruit each day of the week. <BR> <BR> Anyone want to join me in... Fri, 1 Feb 2013 14:01:06 EST What's your thoughts on artificial sweetners? I was diagnosed with Fibro 8 yrs. ago, weighing approximately 180 lbs. Since then I have been doing yoga and light exercises plus really started watching what I was eating choosing lower fat, fat free, sugar free options along with fruits and vegetables. Plus I drank green tea, water, coffee w/splenda packet and creamer, diet mountain dew with lunch or dinner (only one 8 ounce glass). Pretty much everything in moderation. I ended up between 132-138 lbs. <BR> Now fast forward to the p... Sun, 27 Jan 2013 15:25:52 EST SO HAPPY TO FIND YOU ALL! My goodness....I am a newcomer to Spark (well, a returnee after 5 years away) and I have been in a real fog for the past few days...seems like no one really family thinks fibromyalgia is just the doctor's excuse for not really knowing what is wrong with me and my husband never takes my pain seriously. I know he could be more supportive, but I don't know how to make him understand why some days are wonderful and some are just crap! I have always been such a positive, motivated... Wed, 23 Jan 2013 22:41:16 EST What are you proud of doing today? I rejoined Curves after being gone for a year. Tue, 15 Jan 2013 16:44:56 EST Message Removed Message Removed Tue, 15 Jan 2013 00:57:56 EST Hoping for friends who understand I am hoping to find others who have days where you feel like you're in pain and tired. It is so hard to explain how I feel to others. <BR> <BR> Joanne Sat, 12 Jan 2013 19:58:17 EST TWO MINUTE WORLD STORY i wasn't sure this fit into a 'delight' category, but it's certainly 'distracting!'--and interesting... It's a student video project... pretty amazing, but warning: includes some graphic war images etc... <BR> <BR> <link> </link> Fri, 11 Jan 2013 00:51:30 EST Hello all and Happy new year I am not one for New year Resolutions, but this year I am so ready to Fight this Fibro and get myself back!! I am tired of the meds and tired of feeling like crap! So I here i am!! <BR> <BR> I am Liz!! I am a Mom of 3 awesome kiddos that try their hardest to take care of mommy!! that seems a bit backwards but we all try to take care of the ones we love!! The medication side effects vs the pain is my struggle i am fighting right now! What one is worse!!? What medication has the best... Tue, 1 Jan 2013 20:24:41 EST What one thing would you like to do in 2013? I would like walk my dog on a more regular basis. Both she and I would benefit from it. Tue, 1 Jan 2013 09:05:41 EST The Holiday For most of us, it's a very busy time of year, and I am no exception... <BR> <BR>'s also a time of year when most of us reflect on the past and consider what we want to do in the time ahead of us. I do it a bit earlier... my birthday is three days prior, so... <BR> <BR> ...but I do the same at the end of every month... <BR> <BR> ...and every week... <BR> <BR> ...and even every day. <BR> <BR> Because EVERY DAY is a new chance to forge ahead, to track my progress toward my goals, to ... Tue, 1 Jan 2013 00:21:07 EST Holiday Greetings... Have a happy time with loved ones this season... <BR> <BR> <em>445</em> <em>460</em> <em>500</em> <em>446</em> <em>447</em> <BR> ... and a joyful and prosperous New Year... <BR> <BR> Kathy <em>445</em> Mon, 17 Dec 2012 19:09:37 EST MURDER IN CONN. HELLO everyone. i hope you all have a great saturday & sunday. <BR> <BR> 28 families in Conn. are NOT having a good weekend. <BR> <BR> such a HORRIFIC tragedy. <BR> <BR> even though we are several states away from Conn. our schools went on lock down after the shootings yesterday. <BR> <BR> when i heard about the shootings yesterday, my first thought was of Columbine massacre several years ago and the federal building bombing (killing almost 200 people) in Oklahoma City in 1995. <BR> <B... Sat, 15 Dec 2012 22:07:58 EST A State Photographer?? West Texas, and the music is by a man who has never had music lessons, he plays by ear, from the heart... <BR> <BR> <link><BR>e=0&byline=0&portrait=0 </link> Fri, 14 Dec 2012 22:06:57 EST Another Sparkteam. Hi. I keep joining new Sparkteams for support for all of my problems, and I'm starting to wonder... oh never mind all those negative thoughts.... <BR> <BR> So hi I'm Kitty (yes that's a nickname not a real name) and I was recently diagnosed with fibromyalgia, although I've actually had it since I was 11. I also started having problems with rheumatoid arthritis at about the same time. Yup. 11. Nobody would believe me. <BR> <BR> Actually I have had fibromyalgia, arthritis, hypoglcemia, hypothyroi... Mon, 10 Dec 2012 20:35:37 EST Anyone out there tried Topamax? I am trying Topamax. So far my pain is really better and I am sleeping better. However, again (like everything else I have tried) there are unpleasant side effects. My doc said one "benefit" would be weight loss. That would have been great but I can't say that I haven't lost any from taking this. So far I notice that some foods are beginning to taste lousy. Unfortunately, so is toothpaste! I have just a generally bad taste and I suspect--bad breath along with it. My face is tingling,... Sat, 8 Dec 2012 22:08:37 EST Energize63 Hi everyone I don't know where to begin except I need help. A year ago I had a total knee replacement with complications of not healing properly. Thru various Drs. they concluded it was a pinched nerve in my back. So 16 days ago I had back surgery. So far the leg is still shaking.( I know give it time). <BR> Meanwhile I gained 20# from the knee surgery and another 20# overnight in the hospital. How can that happen? <BR> <BR> I need to get my eating habit under control. At least that... Sat, 8 Dec 2012 08:26:06 EST Message Removed Message Removed Fri, 30 Nov 2012 23:43:59 EST Hello Again! Hi All! <BR> I have been on a "hiatus" from SparkPeople for the past two years and I am ready to jump back into it full force! I am from Kentucky and just had my second child. Its hard dealing with Fibro and having two kids (a two year old and a four week old) but I am ready to stick with it and do everything possible to be healthy and well. I hope to get to know some of you and be a source of encouragement on your journeys Thu, 29 Nov 2012 21:02:51 EST Hi! I have had fibromyalgia for a number of years now. It got a lot worse a few years ago and now I am seeing a specialist and also getting pain management and sometimes PT in the pool. I do many things to help myself but I would like support as well. I look forward to checking out the group and looking forward to reading room material. I have bought a few books recently to help me on my journey. I haven't completely read them yet. I have browsed them. I have been occupied. I also suffered from c... Sat, 24 Nov 2012 17:03:23 EST When Did Your Symptoms Start? I had symptoms build up over time, but I can pin point on the calendar "the day it all began". Would any of you be willing to share your background of how it started for you? I'm curious if emotional or physical trauma, military service, moving, grief, etc play a part... <BR> <BR> I want to learn more, and if you're willing to share I'd greatly appreciate it. <BR> Wed, 21 Nov 2012 18:24:28 EST Counting Down By 4s Let's count down from 500 by fours. Get those gray cells working. I'll start. <BR> <BR> 496 Mon, 19 Nov 2012 16:48:36 EST Fighting Back I don't know if I've introduced myself, but I've been a spark member and used it off and on for 6 years now. 2 years ago I was diagnosed with fibromyagia, but I think I've actually had it for about 25 years now. I'm 43. My symptoms used to be mostly chronic fatigue and difficulty exercising, but several years ago the pain that I was experienced very lightly and sporadically increased exponentially and I began having days and weeks of barely being able to get out of bed, much less do anything... Sun, 18 Nov 2012 00:40:15 EST Howdy Doody from Utah. Hey all! I've had Fibro since I was in junior high. So from around age 14 and up, I've been fighting this and also been gaining weight. I have many other issues, but Fibro would be one of the main ones that keeps giving me excuses to not exercise. I was a very active and healthy child. Never gaining any weight until around age 14-16. Arthritis, Fibro, nerve damage from being hit by a drunk and other issues has made me very compliant with the 'no exercise, eat what makes you feel better' crowd... Sat, 17 Nov 2012 21:51:08 EST Hi all, JUST STARTING TODAY and hoping this works. Hello, I have been trying to loose weight on my own but it is not working. My son is getting married in October 2013 and I will not be comfortable at all being 210 pounds! My daughter in laws Mother is petite and skinny and I know I know I sound snippy but I just want to be proud of myself on the day of the wedding and be able to dance.!TO TOP IT OFF I GOT MY CHOLESTEROL NUMBERS YESTERDAY AND THEY ARE NOT GOOD AT ALL!!!!! <BR> Wed, 7 Nov 2012 15:52:29 EST Urinary Frequency This is a subject that not many people talk about. I'm just learning about it. As a matter of fact, I have an overactive bladder (spasms). (So that's what Depends are for!) <em>39</em> I've had UTIs before, but this is much worse. And there doesn't seem to be a cure. And I'm not THAT old! <BR> <BR> Anyone care to comment about this very sensitive topic? Fri, 2 Nov 2012 14:01:08 EST Anxiety attacks? Hi all! Hope you're feeling your best today. I am not <em>24</em> and am rather confused by the past few days. Thought maybe you'd have some insight! <BR> <BR> For quite some time off and on I have what I can only describe as trouble breathing (even though it's really not). It's not asthma or anything like it. I've had a half dozen tests and my lung function, etc., is fine. And I AM getting enough air, it just feels sort of tight in my chest and actually tender to the touch right below my... Mon, 22 Oct 2012 11:43:47 EST Hello from Florida! Hi! I'm here because I need to lose weight but it's so hard with fibro. Since I've joined here, I've started walking for an hour 3-4 days per week. I'm sore and tired but I'm slowly getting there. I've also lost 2 pounds. <BR> <BR> Sat, 20 Oct 2012 11:49:22 EST Amazing Kites... <link><BR>N_lIg </link> <BR> <BR> this has got to be one of the most amazing and PEACEFUL things to watch... wow, such a gift! <em>407</em> Sun, 14 Oct 2012 18:54:02 EST Hello from Orlando! Hello Everyone, My name is Margie and I'm 47 yrs old with 7 children and 3 grandchildren. Newly diagnosed with Fibro and major weight gain since June due many medical issues including being placed on life support for 9 days in June. I woke up on July 4th! I spent the majority of the first 6 months of this year in bed feeling sorry for myself and in severe pain. All I did was get sicker. Once I was placed on life support my family started planning my death. Thank God he had other plans fo... Sun, 14 Oct 2012 17:41:18 EST Is it Fibro Fog? I'm new to Sparkpeople and all the message boards and couldn't remember if I introduced myself. After scrolling through the posts, I found I hadn't. <BR> <BR> I'm 57 and have lived with FM since around the age of 35 and have osteoarthritis also and had a hip replacement 2 years ago. <BR> <BR> I really need to exercise to keep my pain levels down and with the help of lyrica during the day and amitripyline for sleep have been doing pretty good this summer. I discovered cycling and just lo... Sat, 13 Oct 2012 11:45:47 EST How Many Points Left 'Til Next Trophy? How many points do you have left to earn until you get to your next trophy? (If you don't know how to earn points, let me know and I'll explain.) <BR> <BR> 285 Sun, 7 Oct 2012 09:40:37 EST Fibromyalgia Diet I know that the foods fibro patients can eat vary person to person, but I wanted to get a general idea of what foods to avoid that help you. <BR> <BR> In the past, my fibro wasn't so bad but just lately I am in so much pain every single day. Sleep is hard to come by because I am in pain and get achy after being in a position for long. Daily activity is tough. <BR> <BR> I was on desipramine (I don't know if I spelled that right) but my Dr cut the dose by 2/3 for some reason. It wasn't help... Thu, 4 Oct 2012 10:57:18 EST A - Z Vacations Whether you're planning a vacation this summer or not, tell us where you'd like to go. <BR> <BR> A - Alaska Mon, 1 Oct 2012 07:41:10 EST Message Removed Message Removed Fri, 21 Sep 2012 19:28:27 EST new med My Rhumatologist just started me on Savella. I am praying it works. I need something to change in life and control pain better. Right now my pain is not under control. ANyone here use Savella? I had not heard of it until he put me on it Fri, 21 Sep 2012 16:36:39 EST Hello everyone, I am Renee and I am new to this. I am a 3 year breast cancer survivor, married to a wonderful man. I have a grown daughter and three grandsons. I used to be a labor and delivery registered charge nurse. I am going to lose my weight and be more healthy because I want to be rid of diabetes problems, back and neck disc problems, fibromyalgia, thyroid and high blood pressure problems. I have been clinically depressed most of the time since my dad passed away in 1968 but had dealt with it well up until I found I had breast cance... Fri, 21 Sep 2012 14:58:43 EST leg cramps I get terrible leg cramps in my calf's and thighs at night when I go to bed. My Dr. said to drink pickle juice for this. Now I love pickle juice in small amounts once in a while but I'm not sure how this will help. Any suggestions ? <em>40</em> Tue, 18 Sep 2012 17:41:15 EST hello from TEXAS Hi there! Just a quick introduction. I am 32, was diagnosed at 28. Both my mother and grandfather have Lupus along with several other Autoimmune issues. I have three kids, ages 11,8 and 5. I have been married for 12ish years now, to the same man, lol. My pain comes and goes. When i have a "flare up" it seems as though that part of my body is on fire. I dont take regular medication because it doesnt seem to help. I take as needed. I have a REALLY hard time doing what i need to in order to keep... Tue, 18 Sep 2012 12:35:19 EST Message Removed Message Removed Thu, 13 Sep 2012 12:50:41 EST Needing support and encouragement I was diagnosed with fibromyalgia earlier this year. I've actually been struggling with fatigue and pain for several years, but was able to manage the symptoms pretty well with healthy living. I even had a couple symptom free years. The last couple years I saw my flare ups happening with increased duration and frequency. <BR> <BR> Fortunately, I found a fantastic rheumatologist (Dr. Michael Powell in Sacramento), who diagnosed me and has been educating me and treating me with a multifac... Wed, 12 Sep 2012 16:43:29 EST First time doing something like this Hello everyone, My name is Holly and this is the first time doing something like this. My goal is to lose atleast 35 pounds and I hope that I can achieve this goal with the help of this site. I am very excited to get started. I am 41 years old and it is getting harder to lose this weight. I love to read, spend time with my family, and love my frenchie, and anything to do with bulldogs. I would love to have someone to exercise with, as I think it would help me to reach my goals faster. I also... Tue, 11 Sep 2012 09:53:53 EST Message Removed Message Removed Tue, 11 Sep 2012 09:28:23 EST Hello My name is Tasha. I'm a stay at home mother to a 2 year old girl. I just joined SparkPeople today in hopes of getting some motivation to lose this weight (which there is a lot of it). Not only am I battling the Fibromyalgia, but I also have PCOS which makes things even harder. I was just recently diagnosed, so I don't know to much about this condition. I just know that my symptoms are out of control, and this pain makes exercise next to impossible for me. Are there specific exercises out ther... Tue, 11 Sep 2012 02:30:51 EST Cymbalta & Hair Loss Lyrica made my vision blurry. I don't mess with my eyesight so that med was out. Neurontin made my eye lids twich. Again, I don't mess with my eyes, so that med was out. Neither med really helped the pain anyway. I am having wonderful results with Cymbalta and needling therapy. I am even planning on gong back to horseback riding lessons this Friday after being out since April of 2012. However, I believe the Cymbalta is making my hair fall out. I don't know what to do. <em>24</em> ... Mon, 10 Sep 2012 13:39:38 EST Graceful Hello I am in the starting stages some days are ok and others are not. I have inherited arthritis, and rheumatism. I need to start wearing lower heals due to my left foot swells. Things could be worse. I have accepted it and hoping it will all go away one day. I have two dogs who are a tremendous help who are my alarms clock and get me going and get my day started I don't know what I would do without them. This is a terrific website and great way to reach out to others. My prayers are sent out to a... Fri, 7 Sep 2012 23:22:17 EST Message Removed Message Removed Fri, 31 Aug 2012 13:04:43 EST Fibro Question I've not been diagnosed with Fibro, was just told they thought I might. I'm almost positive that I do with all the pain I have. Most of my tender spots are very tender. Anyway my question for you do any of you have neck pain. My right side of the neck is very tender and is hard to move in some directions. I've been doing therapy on it. Going to see Neurosurgeon Wednesday as I do have degenerating disc disease in my neck and spine. Though I have had the ddd for a long time and the MRI do... Fri, 31 Aug 2012 09:04:37 EST Hi There! Looking forward to getting to talk to you all and follow through with this new journey! Wed, 29 Aug 2012 15:19:18 EST Howdy folks! Hello, I'm new to SparkPeople. I am a 40-something female, married 12 yrs to my high school sweetheart of 26yrs. We don't have any kids except Nannette, my 2yr old mixed terrier. <BR> <BR> I am looking forward to being healthy & happy with myself again. I have too "many serious illnesses for someone my age" according to my doctor's, so I finally decided to get my rear in gear & lose some weight. <BR> <BR> I have to lose at least 150 lbs. I know that's a lot of weight but I'm looking at it a... Thu, 23 Aug 2012 12:16:38 EST Dealing With Feelings of Guilt & Failure I don't like feeling like a victim but I've had a long bout of acute symptoms lately that is really affecting my attitude and undermining my hope and optimism. I would be interested in how other people deal with this. Thu, 23 Aug 2012 11:17:32 EST What do you do to make money? Hello fellow fibromites! <BR> <BR> I've been on disability for almost 4 years now. I appreciate the check every month, but my husband recently had a pay cut and I'm trying to figure out what else I can do to try and bring more money in to pay bills, etc. <BR> <BR> Have any of you come up with some way to make extra money? I guess it would have to be something "tax-free", but I"m not sure what that is. I dog sit here and there, but lost a lot of clients when I had a terrible flare over sp... Wed, 22 Aug 2012 09:13:22 EST "100 Ways to Burn 100 Calories"... Good ideas... some of them mostly good for laughs, though, considering the fibro! LOL <BR> <BR> <link><BR>ways-burn-100-calories/tip/3 </link> Tue, 21 Aug 2012 07:49:03 EST Please Allow Me to Introduce Myself :) Hi everyone! <BR> <BR> I just discovered this team on Spark People and I'm so glad I found it! I am looking forward to the tips, advice, and support that this team can offer. It's nice to finally know that I'm not alone. <BR> <BR> My name is Becca. I have had fibromyalgia since 1996, when I was diagnosed after a car accident. I didn't know what it was back then since I was just a teenager, I just knew that my body hurt all the time. Then in 1998 I was in another car accident--this one was m... Sun, 19 Aug 2012 00:16:21 EST hi there just want to introduce myself, my name is debbie and started the sparkpeople program this week. my doctor and i just found out that i do have fibromyalgia just last week. been having it for some time now and didnt know it...anyways i hope i can follow along with some of the exercises and follow the recipes for me to loose the weight...i walked on the treadmill today for 20 minutes slowly at 1,5 speed and it felt like my legs were full of lead...anyone else have this problem? planning on usin... Wed, 15 Aug 2012 22:22:37 EST Best Exercises for Fibromyalgia I found this informative even though it leaves a lot unanswered <BR> <link><BR>how-fibromyalgia-friendly-exercises?ec<BR>d=wnl_fib_081412&ctr=wnl-fib-081412_ld-stry </link> <BR> Hope that it helps some people, Especially those just starting out. Wed, 15 Aug 2012 11:21:29 EST Uncontrollable itching I'm wondering if anyone else might have experienced, or be experiencing, similar symptoms to what I've come down with. All of the logical causes have been ruled out so the possibility that it's a weird fibro symptom is my only hope. My rheumatologist has never heard of anything like this in connection with fibro so you folks are my only hope. <BR> <BR> About six weeks ago I started developing body wide itching with no visible reason for it. There are no hives, no bites of any kind or any env... Tue, 14 Aug 2012 13:33:09 EST A kid with all the right moves... This kid has amazing talent, both acting and dancing... a nice little film short... <BR> <BR> <link><BR>nspirational-12-old-breakdancer-story-<BR>warms-heart-175252892.html </link> Tue, 14 Aug 2012 13:10:13 EST