SparkPeople Taking care of an Alzheimer's spouse/parent/friend Team Messageboard Support for spouses/adult children/friends who are caregivers for a person diagnosed with Alzheimers/dementia/stroke disease. SparkPeople Taking care of an Alzheimer's spouse/parent/friend Team Messageboard Today, I am thankful for...... I am thankful for the love of my family. Tue, 4 Aug 2020 12:09:24 EST Thank you All My father passed away from the complications of AZD two months ago now. Although I never posted much on this site, your discussions and encouragement so helped me feel less alone during these hard times. <BR> <BR> As I leave this Forum, I can only say - <BR> <BR> Trust in God's wisdom, and you will endure and grow in your ability to love, and find love, during this awful time. <BR> <BR> Thank you all. Sun, 8 Sep 2019 17:06:32 EST What I know about ALZ ...I know it is a monster <BR> <BR> There are a few residents in the memory care that I visit that seem to have very regular visitors. A few seem to have no one. The lady that I visit &amp; take things to was transferred from a nursing home that is a few hours away. She has no known relatives. I still wonder if she might have a neighbor that might decide to visit her. With the HIPPA law you would not be told anything about a friend. She remembers little to nothing about her past. A few years... Sun, 30 Sep 2018 18:36:08 EST Caregiver Tips Provide simple instructions. People with Alzheimer's disease best understand clear, one-step communication. Mon, 27 Aug 2018 12:17:33 EST Post a food item. Post a food item. Sat, 13 Jan 2018 20:51:02 EST Post something pink. Post something pink. Sat, 13 Jan 2018 20:50:02 EST supporting my husband suffering from Alzheimers I am new to this forum and grateful to find it. My husband was diagnosed 2 years ago with Alz. and i have been able to get some supports in place for us both. We have moved to a new place, easier to keep and with social interaction nearby. I am attending a 12 week course at the Alzheimers Society. It is very helpful. On top of his ALZ he has peripheral neuropathy, painful feet which means he is on pain medication which is complicating things. I find this caregiving position can be very s... Thu, 18 May 2017 20:04:02 EST Wit's End I have had it with my mom today. Her calm-me-down Med is not calming her down. She is yelling for my brothers who don't bother calling or visiting her. And she has no clue who I am. She tried to hit me when I was helping her go to the bathroom. And then got mad at me because I stopped helping her. Days like this I want to be just like my brothers and walk away from it. Sun, 25 Sep 2016 15:44:46 EST What veggies do you like to eat? What veggies do you enjoy eating? Sat, 23 Jul 2016 12:51:27 EST Music Therapy This is the place to discuss music therapy . <BR> <em>335</em> <em>276</em> Fri, 10 Jun 2016 21:43:52 EST What is your favorite fruit? What is your favorite fruit? Thu, 9 Jun 2016 22:16:51 EST Another resource I use Facebook has a closed group (postings stay within the group) called Memory People. It is very active and has lots of experiences, resources, place to share and vent. Fri, 24 Apr 2015 14:29:57 EST New to the team Hi all. My mom (80 yrs) has Alzheimer's. She was diagnosed a few years back and has been doing ok. My dad (also 80 yrs) has been caring for her. Dad's health is not the greatest. He's retired military with 70% disability. Things kind of blew up the other day. I got a call from my brother and apparently my dad was having chest pains so my mom drove him to the fire station to be checked out. The said yes, he should go to the hospital. My mom drove him there and then drover herself home... Sun, 4 Jan 2015 15:08:59 EST feeling the need to move on It seem an almost impossible task to move on while caring for SW. Nearly, impossible. Today we went to the senior center. WE had lunch and I went to a class and yet I just could not get into the class with out worrying about her. She was sitting with another woman and she seemed to do OKay. I need to get out a bit more. It seems neither leaving her at home or taking her along works. Tue, 4 Nov 2014 17:29:21 EST Free Kindle book today only about caring for AZ There's a free book today on Amazon written by a daughter caring for her mother with Alzheimer's. Here is the link <link><BR>aughters-Bittersweet-ebook/dp/B00BZC9L<BR>BQ%3FSubscriptionId%3DAKIAI577GW2METHB<BR>3K7Q%26tag%3Dbookcycling-20%26linkCode<BR>%3Dxm2%26camp%3D2025%26creative%3D1659<BR>53%26creativeASIN%3DB00BZC9LBQ/?tag=casldica-20 </link> <BR> <BR> Here's a blurb about the book: <BR> <BR> When Lisa Hirsch found out her mother, Ruth, had been d... Fri, 19 Sep 2014 17:18:01 EST its not easy Well I am down 120 l pounds due to barriatric surgery. NOT bad in 7 months, but I am really struggling now. S W keeps trying to feed me candy. Very often successfully. I find exercise difficult as she cannot walk. AH, but it is time to develop a new plan. Any ideas? <BR> <BR> Sat, 26 Jul 2014 15:18:41 EST Blistering skin syndrome. Has anyone heard of Bullous Pemphigoid, AKA Blistering skin syndrome? My 91 year old father has been diagnosed with this. I thought at first he was scratching sores and then "picking" at the sores. Then some of the sores looked like they could have been blisters at one time. Took him to a dermatologist and he was diagnosed with this. A biopsy is required to confirm it. If you Google it there is more information. It is an autoimmune thing. Just wanted to share with you all what I learned. Thu, 19 Jun 2014 05:50:14 EST Trial Match Here is a link if you are interested in more information about the ALZ trial matches <BR> <BR> <link><BR>/find_clinical_trials_trialmatch.asp </link> Wed, 4 Jun 2014 01:41:00 EST What stage is your loved one at right now? Someone has suggested that we share with each other what stage our loved one is in and what care you & your loved one are currently at. Please share with the group what is going on with you & your loved one and their care! <em>247</em> Wed, 4 Jun 2014 00:21:50 EST New Spark teams pages I think we will have to just place ourselves on hold right now... I am thinking that Spark's new changes aren't really working right now... Let's see how it goes over the next couple days. <BR> Fri, 2 May 2014 01:24:35 EST what makes life worth while As caregivers we often turn our backs on what we love to do. With me its story telling. That part of my life has been tapering off as my wife requires more care. As I get things in order in Va. I hope to do more of that. Also I want to transition from the oral to the written word. I am also hoping to get into a better eating an exercise routine. <BR> <BR> What turns you on an how do you work it into your life? Sat, 22 Mar 2014 20:48:43 EST Let me know where you want this team to go.... I really want this team to thrive - but there is really only a couple ongoing posters... please let me know what topics & discussions you would like to have... so that we can keep this team alive! <BR> <BR> <em>381</em> Sun, 23 Feb 2014 02:06:52 EST Today I'll Looks like a pleasant day today, Into the 60s. So today I'll get SW out of the house. I hope t t find some where new to explore. Walking is a problem so we'll need to keep that in mind. If I take her away I'll give the family a break. Sat, 22 Feb 2014 08:58:08 EST We need to share more It is time to see more posts, from both those who have been here before and those friends who have not revealed themselves. Being a caregiver is not some thing we simply cannot do alone. It is far too heavy a burden to do alone Please come and join us. Of late us seems to mean t if you begin to share others will come as well. I don't think this team can be a replacement for face to face support. But if your awake at AM, you can share what's on your mind. You may not get an immedi... Fri, 21 Feb 2014 09:02:01 EST I think we have a break through! Mom's memory problems haven't changed a whole lot - but her reasoning has and her mobility has also! <BR> <BR> We started her on 3 tsp of Virgin Coconut Oil several months ago. We also went to a new neurologist - who took her off her long time medicine of Depakote (gradually of course) and all the parkinsons meds (prescribed by another neurologist). Lo and behold - Depakote side effects can be symptoms of parkinsons. <BR> <BR> Her only new med has been Baclofen - this prescribed by the ne... Sun, 5 Jan 2014 00:16:08 EST How were your Holidays? We had a pretty crazy holiday which wasn't good for Mom--- My oldest daughter graduated from college on 12/21 and so we took Mom with us down to the college and then we had Christmas with the family at our house the next day (Sunday). Mom was pretty cranky and cantankerous for most of the day on Saturday - but she favors my eldest daughter - so wasn't cranky to her! <BR> <BR> Sunday was nice / children/ siblings/ etc... came -- had a very good time! <BR> <BR> My inlaws came on Christmas Da... Fri, 27 Dec 2013 00:27:23 EST Now I'm confused They gave my wife a brain scan. They did not find anything. Only signs of normal aging. Doctor is out of the office until next week. ANY THOUGHTS? Mon, 23 Dec 2013 15:48:43 EST remembering the prime caregiver A great Christmas gift would be a night out for New Years. You know what they would most enjoy, <BR> Sat, 21 Dec 2013 20:31:59 EST changing our lives. Well, I am now in Va, back with SW abd the whol;e of my family. It is feeling good. Yesterday I was reallly quite tired out. I feel asleep around 6PM. I woke up at 1AM. Full of vim and vigor. <BR> Ready to start the day. Still hours to go until I can, SW really likes it here, As do I. It good for me to be taken care of. I think we"ll be happy here, Thu, 14 Nov 2013 01:46:05 EST coconut oil and dementia Interesting information about coconut oil and dementia. If my dad was still alive, I would be trying this with him. <BR> <link><BR>t=53 </link> Thu, 7 Nov 2013 04:25:14 EST the hardest question I think like most caregivers I have gotten to the point I can the job much better than I thought I ever could. I' m getting use to people looking at me as an interpreter. I am improving on taking things away from my things she has earned for with a life time of toil. Helping her obtain the services she needs. But I find one thing very difficult. Answering the question, "how's your wife doing? ". There seems to be no good answer. How should I answer that question? <BR> <BR> <BR... Sat, 2 Nov 2013 11:14:58 EST what would be helpful? As a caretaker I see getting other involved as good for everyone. Thanks to Leslie I've thinking. It would be good for S W to get mail. Mail with pictures in it would be even better. This could be done by the whole family. What could be better than mail with Grandkid picture. What small things might you ask others to do? Sun, 13 Oct 2013 05:59:49 EST post needed Hi Guys, <BR> <BR> Somehow, I feel we are fading away. Post are becoming fewer. This is a group, We may not need everyday. But it is one that is needed very much from time to time. We were posting pretty good for a while. Remember when you post great wisdom and information, it is helpful. But for I just need to know I am not alone on this struggle. Let us know you are still there. Fri, 11 Oct 2013 08:47:25 EST me space Some time ago, at the men's bible study I attended several people talked about having a special relationship with a tree . Doing our youth, It served as. A place to go figure out how we were doing. Did you have a tree? Do you have a special space now? Tue, 8 Oct 2013 10:01:23 EST GOAL details Hi everyone! I'm new member #105 - just joined the goal of taking one 15minute break just for me. What a fabulous idea! <BR> <BR> What did you do for you "me time" today? Sun, 6 Oct 2013 15:03:25 EST Feelings of inadequecy and guilt I am having so many feelings of inadequacy. Topped with feelings of guilt. After much prayer, we have decided to look into memory care facilities for my m-i-l. I never thought it would be so hard to do this. You think I would be jumping for joy! I now look at her and just feel so sad. Why couldn't we do the job in caring for her? I know there are many things I could and should have done better, but my frustrations sometimes got the best of me. Now I find myself having more compassion for he... Mon, 23 Sep 2013 12:05:51 EST what did you do to get healthy today We do need to do things for ourselves. A healthier life style is high on the list. What can you brag about today. It's past 5:30 and I've got nothing. It'll get back to before the day is over. <BR> <BR> Bob Mon, 9 Sep 2013 17:37:40 EST walkers? Does your loved ones use a walker? My Mom does and it's the standard kind with wheels on the back and tennis balls on the front. She seems to just "clump around" with that. <BR> <BR> I met a woman in the Walmart parking lot who had a really cool walker called a "rollator" - I've been doing some research on the internet on them. Does anyone else's loved ones use one of these & what advice can you give on the best brand to buy. There are tons of them out there! <BR> <BR> Thanks~ <em>360<... Mon, 9 Sep 2013 01:24:35 EST How many points on the wheel today? Please post how many points you won on the wheel today... you can also post your bonus wheel points if you'd like! <BR> <BR> 2 points today <em>24</em> Mon, 9 Sep 2013 01:21:23 EST Thoughts on the Exelon patch Hey gang, I have been quite absent from Sparkpeople lately due to an accident with my mother back in March. She fell and broke her hip/leg and the dementia has progressively worsened. She was previously on two memory meds, Namenda and a generic of Aricept. After this traumatic event I had to make the decision to keep mom in a care center permanently. The Dr put her on a new med, the Exelon patch. Wanted to know what your thoughts were and whether you've heard any good or bad feedback about it... Mon, 2 Sep 2013 18:59:52 EST get the story Don't. Let the stories die. I learn with my Mom, when she began telling the same old story, ask questions . Those stories are remember better than any thing else. Record or write their stories down or you will lose them. And while you are at it write you own. These are part of your history. I know by grandfather aS in the rainbow division in W W 1. But not much of his story. Maybe we should learn these things. We need to add to these things. Mon, 2 Sep 2013 18:51:21 EST Thoughts on the Exelon patch Hey gang, I have been quite absent from Sparkpeople lately due to an accident with my motherback in March. She fell and beyond her hip/leg and get dementia has progressively worsened. She was previously on two memory meds, Namenda and a generic of Aricept. Afterthis trauma I had tokeep mom in a care center permanently. The Dr put her on a new med, the Exelon patch. Wanted to know what your thoughts were and whether you've heard any good or bad stuff about it or even experienced anything with ... Mon, 2 Sep 2013 18:48:36 EST Birthdays / Anniversaries / Special Events I'd like to start a list of birthdays, anniversaries, etc... where we can each congratulate each other! You can list your dates or your loved ones with Alz, Dementia or strokes' dates. <BR> <BR> Leslie - My Birthday - 3/22/64, My wedding anniversary 10/20/1984, My Mom's birthday 12/2/44 <BR> <BR> Diane McCue bd 12-22-53 ann 5-3-03 Sat, 31 Aug 2013 23:44:31 EST Birthday s/Annive ersaries/Special Events boo <BR> Sat, 31 Aug 2013 23:40:42 EST feeling great joy A LONG time ago, I discovered one of the great joys of parenting. While you hear a kid rack out. You turn around and 'realized it was some one else's kid. <em>244</em> <BR> <BR> I just heard my wife on the phone 'tellingr my daughter she bought her a garden hose. I could <BR> Tell my daughter did not want the gift. Sometimes it is far better to just say thank you. <BR> <BR> <BR> <BR> <BR> <BR> Sat, 31 Aug 2013 14:28:56 EST Mom's Birthday Today is mom's birthday, so me, my sister, and mom's sister wanted to throw her a big party (the reason is kind of sad, though: we want to do something like this for her while she can still remember. So it sorta has a bitter-sweet feel to it, and yet it's the right thing to do.) <BR> <BR> Mom has talked for months about wanting to see her daughter who lives several hours from here, and has no idea my sister "will" be coming to the party! So I can't wait to see her reaction!!! <BR> <BR> So... Sat, 31 Aug 2013 09:23:48 EST Birthday s/Annive ersaries/Special Events ./ Sat, 31 Aug 2013 02:59:41 EST Birthdays/Annive ersaries/Special Events I'd like to start a list of birthdays, anniversaries, etc... where we can each congratulate each other! You can list your dates or your loved ones with Alz, Dementia or strokes' dates. <BR> <BR> Leslie - My Birthday - 3/22/64, My wedding anniversary 10/20/1984, My Mom's birthday 12/2/44 Sat, 31 Aug 2013 02:51:21 EST Birthday s/Annive ersaries/Special Events delete Sat, 31 Aug 2013 02:36:05 EST What now How do we know just what to do? ,Where should MOM live? How much of own life must we give up? How much should safety be a concern? This is a long term problem. Where other diseases upset our lives for monthes. We can plan for yeArs of things getting slowly worse.. Plans we make today may need be remade in six months. <BR> As for where MOM, My Mom lived ny herself in an apartment of seniors. This was a risk. BUT IT was what she wanted. ONLY seniors lived in her building, and... Thu, 29 Aug 2013 13:27:53 EST Vent away! Sometimes we have those days that we just need to vent! And maybe just venting on here will help and also the responses that you get can also help! Please use this thread to vent about anything! Mon, 26 Aug 2013 01:30:37 EST What is your me time? I set goal of doing 15 minutes of me time. NOW I must figure out what a mean by that. What. Is it you do? As I write this I believe it will be journaling. Still I want to explore other possibilities <BR> Sun, 25 Aug 2013 00:21:34 EST sometimes I feel like I have a two year old. Today s w and I had a problem with the mail. She wins millions everyday. They never do send a check. I KNOW I must get the mail before she does. BUT it does not always work. I hate to keep saying no. Fri, 23 Aug 2013 14:54:07 EST What can we do about "me" time Please share with other members what works for you to get some "me" time or if you need suggestions for your "me" time. <BR> <BR> I know that DH & I struggle with this - we did take a night away just the 2 of us and it was nice. <BR> But sometimes we just need that hour or so away. I went fishing the other night (just in the back yard in the pond) and Mom was freaking out and not remembering where I was and calling out for me continuously. My DD was home, but she is 19 and doesn't have th... Wed, 21 Aug 2013 02:05:45 EST Resources Please post any resource links you may have .... <BR> <BR> My main resource is the Alzheimer's Association <BR> <BR> <link> </link> they have local resources & support groups Wed, 21 Aug 2013 01:54:03 EST Don't Fight It: Go With It I watched a good movie at my mom's today. I think it was called "Down in the Delta" and there was one scene where a lady's mom (who has Alz) wanted to frost a cake--something her daughter knew she probably could not do. So she says, "I wish I could find me a purple grapefruit!" And the mother gets excited and goes to the fridge to find one. Her brother says, "A purple grapefruit?" to which she says, "You don't fight go with it"....meaning, you don't fuss at her to not frost the cake,... Tue, 20 Aug 2013 22:47:31 EST i need to push the reset button. VISITING my daughter for Labor DAY. A good to get away for a day. I'll to find a good activity then. In the DC area, I'm sure I'll find something. Tue, 20 Aug 2013 20:24:40 EST what do they say of you? For me I think notice I've always got smile and I make. people comfortable. At a reunion recently an old friend said I aways talked about the good in people. I really thought that special. <BR> Bob Sun, 18 Aug 2013 17:11:26 EST What To Do When a Loved One Won't Take Meds Right? Hi Folks! I've been having a problem with my mom that I just realized I had never brought to your attention..maybe someone here can help me. <BR> <BR> My mom (who we think may have alz.) a week or two ago got a blood clot in her leg. She's supposed to take blood thinners anyway, so I just know that the reason she got the clot is because she was not taking her meds like she's supposed to. (The doc put her on a different med to thin the clot away.) <BR> <BR> Sometimes when I ask her if she's... Fri, 16 Aug 2013 23:20:20 EST get aways. What the best things to do when do get away from the one you care for? Fri, 16 Aug 2013 14:37:32 EST ask the questions Your responses to Bellajeane and my questions were remarkable. I can tell many of you look in on this group often. Yet there are few posts. I feel the need for more. Judging my your quick response so do you. Please post. More. Even if it's ONLY complaining. Like why does the word checker here make me print one word in upper case. Wed, 14 Aug 2013 23:09:50 EST lonely caregiver Hello, I am a lone caregiver to my wife of 44 years. It is a lonely frustrating life. Our daughter lives in another state. Four hours away. I try not to complain too much. But also realize I speak for others in similar situations. IT is to watch the love of your life fade away and lose your main support team at the same time. In Nov.I am to undergo gastric bypass. I don't how I'll handle that. Still I feel I can find a way. I feel like I need help. But don' t really know wher... Tue, 6 Aug 2013 17:38:25 EST Let's make this forum more active! Sounds like we have a few new members - including myself - that would like to have this team more active! <BR> <BR> Let's start some new energy into this team - I would be willing to be a leader - looks like Margetoday hasn't been active in awhile. I am caring for my Mom who has Alzheimer's and I am really into getting all the answers we can possibly get to help our loved ones! <BR> <BR> I know that there are many of us out there facing these same problems! <BR> <BR> ~Leslie Mon, 5 Aug 2013 01:47:47 EST Publisher's Clearing House - Hi everyone - I just joined SparkPeople today and looked for a team like this right away! <BR> <BR> I am an only child and I take care of mama - and though I was going to cancel her PCH I find she will look at the ads for almost an hour - enjoying it so much I decided it really can't hurt. <BR> <BR> Even if we run out of drawer space - she gets so excited when a package arrives for her. <BR> <BR> Creating moments of joy - that's all we can do. Fri, 2 Aug 2013 23:53:25 EST Member # 100 Hi, I joined the team a few days ago, haven't had time to read the posts yet. My mother is 89 with dementia and lives with us. Sun, 16 Jun 2013 17:07:14 EST April 2013 - How's everyone doing? I know this hasn't been a very active page lately so I wanted to see how everyone was doing. <BR> <BR> Tomorrow I will take mom to a specialist - it appears that her lymphoma is back. Of course we won't know for sure until a biopsy is done but the CAT scans showed widespread swollen lymph nodes and, no surprise, lesions in her brain. <BR> <BR> Mom's worse fear was having Alzheimer's so we are trying to figure out if this necessarily a bad thing. She had breast cancer and lymphoma 11 years... Mon, 22 Apr 2013 20:06:11 EST Newbie Hi my name is Rashanna. I am a caregiver to my grandfather who has vascular dementia. I'm helping my grandmother take care of him. She stays in and I do the errands and help cook and all. He sleeps a lot but when he's up he says stuff like "I have to get home" and I have to drive him home. My grandmother tells him this is your home but I don't know if that's the best method because he keeps insisting it's not. My mom, their daughter-in-law, says we should just play along. He hasn't bee... Mon, 11 Mar 2013 16:31:50 EST Hi, Folks I was just posting on the parents of teenagers team, and realizing that's really not the biggest stress going on in my life, and lo and behold, here IS a team for one of my stresses! <BR> <BR> My wonderful mother-in-law was diagnosed three years ago. My husband and I are the ones who stayed in town, so we're the main support, although my father-in-law is *technically* her main caregiver (but he's 90, and never ever been a caregiver before, so, you know). They're in assisted living, luckily w... Fri, 25 Jan 2013 10:08:32 EST Message Removed Message Removed Sat, 12 Jan 2013 23:27:12 EST Hi I am wanting to know if there is anybody who has a family member with Lewi Body Demintia. <BR> I have had several family members with Alzheimer's and my heart goes out to each and every one of you who has a friend or family member that has been diagnosed with it. Sat, 29 Dec 2012 11:51:32 EST Christmas Presents? Any ideas for Christmas presents for our loved ones? <BR> <BR> One of the assisted living staff thought of this and they've promised to help her get it going. Mom LOVES music but can't work her CD player anymore. She LOVES listening to Pandora on my iPhone when I'm there. I found my old iPod Shuffle (you can pick them up used very inexpensively on places like eBay) and loaded it up with Mom's faves. <BR> <BR> Even though I have the original docking station, I found a small charger/spea... Sat, 15 Dec 2012 13:25:13 EST Newbie Hi! I'm not new to Sparkpeople but to this topic as my Mom had a stroke in August and I have been helping care for her since then. We new she had signs of Alzheimer's prior but seeing such a rapid decline in her mind has been surprising, sad and scary. Mon, 3 Dec 2012 09:19:06 EST What about me? I'm sorry if I offend anyone with this post. I'm 65 years old and my Sw has been slowly fadding out of life. Recently I told her she can no longer drive, She not totally lost it but <BR> can not function normally either. She lacks ability to do some things,desire to others, Among these is any thing physical. Its been years. For some time I've lived with this, Lately this becomes more difficult for me. I am looking for answers but I don't have the question figured out yet. Any ... Sun, 25 Nov 2012 19:22:42 EST Taking care of an Alzheimer's spouse/par ent/frien My name is Melanie Louise Jackson aka (Grease31), <BR> <BR> I have joined this particular team, as the title suggests Taking care of an Alzheimer's spouse/parent/friend, the reason why i have joined this team is that my beloved Uncle John Dixon, suffered from Alzheimers, & he lost his battle with the illness on Sunday night 18/11/2012. <BR> <BR> The only reason, i know about this, is that my Aunt Patricia Dixon (his Wife), rang up my Mum (Mary Large), & she texted my Sister (Helen Large), ... Tue, 20 Nov 2012 11:19:36 EST Alzheimer's Eating problems I am not sure if this has been brought up before, but I am needing help. <BR> I currently am the caregiver for my granny over the summer while my mum is at work. I have been running into issues with my granny eating and such. <BR> Today she she started eating butter directly from the tube and continued to yell at me that she had her bread which was the cheese. I am having difficulties helping to lead her to proper decisions. I don't try to point out that she is wrong or ask what she is doing.... Sat, 11 Aug 2012 18:47:27 EST falling My heart is weeping for my DH who keeps falling. I could not begin to count the number of falls, he is in a care facility and always wears hip protectors, sometimes uses a walker- often parks it somewhere and carries on without it. He fell twice today, both times he had the walker. I was there and managed to catch him as he went down backwards. Dr. is reducing his medication hoping that with help steady him. At present he has his knee, elbow, and arm banaged, couple of weeks ago he split ... Tue, 31 Jul 2012 22:51:18 EST How is your day today? I love reading Garfield comics. So many times I feel just like him! ha ha <BR> Todays comic was great.... <BR> <link><BR>va=1#inbox/13846527210e3f70 </link> <BR> I hope this link will take you to it!! <BR> JO <BR> <BR> No that didn't work... let me try again... hang on! ha ha <BR> Try this one.... <BR> <link><BR>html </link> <BR> This is for 7-2 so if you are reading this at a later date you can use to arrow to ... Mon, 2 Jul 2012 11:22:31 EST Such a great day for my dad I spent a good deal of the day at my Dad's house today. Jay, a man of all trades, was coming to do some repairs at my dad's. I need to be there because my dad forgets that someone is there and why and when he hears a noise he wants to know what's going on. It is easier if I am there and I can explain what he is hearing as if it was the first time. Jay went up into the attic to see if there was water damage because he found a hole in the roof near a dmaged vent. I went up the ladder and poked ... Tue, 26 Jun 2012 21:57:04 EST where is everybody? I have been looking through the lists of member for some of the teams I belong to. It is amazing how many people no longer participate on SP. I guess we all join teams for different reasons but the big plus is the feedback and support. So why is it many people on this team do not join in any more? I often come here looking for people who have gone through or are going through the same experiences that my family is going through. Sometimes I am looking for information that I don't have when I ... Wed, 13 Jun 2012 19:22:13 EST the guilt of it all My brother and I have power of attorney. I am the main caregiver for my dad. He is almost 90 and he still lives at home. He has red cross come in every day to take care of meds, shower and breakfast. I have hired one caregiver to come three mornings a week and take him out for a drive or a walk. Another caregiver comes each evening to make sure he is eating a good dinner. I have a pager that goes off each time Dad's door opens so if the door opens at a time when a caregiver is not there I can... Wed, 16 May 2012 21:48:41 EST New member Hi to everyone! I am a new member to this team. My mom is 81 years old and has had dementia for the last several years and of course its gotten worse. I have been on spark people since 2009 and as my moms dementia has gotten worse my weight has also gotten worse. My mom and dad (he's 83) live at home. Mom used to do everything and taught dad learned helplessness. Now he needs to pick up the slack and frankly stinks at it! I live two hours away and cant be there all the time. Its hard.... Tue, 1 May 2012 14:45:27 EST HOW DO YOU RELIEVE THE STRESS??? The stress of caring for a family member who has alzheimers is often overwhelming. During the years I worked on an alzheimers' unit it always saddened me to watch the family caregivers become mentally and physically drained or even die. Now I am witnessing my own Husband's health deteriorate as he struggles to deal with his Mother slowly fading away. Meanwhile, he has to manage, not only her medical needs, but also the financial plans established by her and her husband years ago. Not a d... Fri, 13 Apr 2012 23:51:27 EST Nervous to visit my dad My dad has been in the nursing home for less than a month now. He lives in SD while I live in IL. My hubby and I will be taking the twins up to visit next week for the first time. I'm nervous if he he's having a good day he will beg to go home. And also nervous if he's having a bad day he won't even know me. <BR> <BR> He has never met my twins and I don't expect him to know them. He will love seeing them, though, even though he may not know that they are his grandkids. <BR> <BR> On top... Mon, 2 Apr 2012 11:59:47 EST 84 yr old mother has dementia Hey folks, if you go to my spark page you can read the blog I posted recently that had to do with what I like many am dealing with these days. I remember the drive my mother once had that I have now and it breaks my heart to see her dwindling somewhere that right now she realizes she doesn't want to be. I take things day to day but with the advice of a few other folks on SP, I joined this team just to hear the daily trials and tribulations of care for a spouse/parent/friend with this horrib... Thu, 1 Mar 2012 14:25:35 EST Is this normal? : ) An introspection. This is NOT meant to scare anyone or cause undue distress, but I'm really curious. I'm working on my Master's in Christian Counseling, so while I'm taking a bit of a hiatus, I've been told that this is the perfect time to do some deeper introspective work on myself and will eventually assist me when working with others. SOOOO these thoughts aren't COMPLETELY random, but the surprise "result" is that I'm finding this process rather helpful. <BR> <BR> Now that we've all seen what happens whe... Mon, 6 Feb 2012 16:21:54 EST introducing myself Hi - I am a retired music teacher. I retired initially to care for my father, who was in hospice care for 18 months. During that time, my wife became more and more unable to cope with reality, began to lose her ability to find words, and finally almost two years ago was diagnosed with frontotemporal dementia. No know cause, cure, or treatment. She now lives in an adult home for dementia patients where she is safe, and where she receives the constant supervision and caring that she needs. ... Sat, 4 Feb 2012 22:04:34 EST Mom's VA award letter came today! I am SO relieved! Getting the Veteran's Administration benefit was supposed to be an 8-12 month process and it took less than TWO MONTHS! I think it helped that I went to the VFW (Veteran's of Foreign War) where THEY helped me and turned in the paperwork for me. <BR> <BR> This means that mom's savings will now last for almost THREE YEARS. This also means that I can get a part time job NOW and help supplement her income and keep her there even longer. OR if my business takes off . . . : ... Sat, 4 Feb 2012 17:52:57 EST General Discussions of Feelings, Concerns and Care Hi, Hope it is okay that I start this new topic. <BR> I have trouble knowing where to post my "just daily feelings". <BR> Each day can be such a struggle sometimes and other days go fairly smooth. It just helps to be able to come here and "spout off"! ha ha <BR> And it helps to hear how each of you are doing too. <BR> <BR> Right now things are not going very good for my DH. He has PAD which means his toes are all black and dried up, with dry gangrene, on his right foot. They were not a... Fri, 3 Feb 2012 12:39:11 EST Hello new here I am Wanda I live in Marietta, Georgia. My DH has dementia/ Alzheimer's <BR> He had strokes in 05. That's when the dementia started. The Alz. kicked in <BR> about 2 years ago. He is doing well for now. sometimes he does crazy things. Sometimes he really shocks me. (LOL) <BR> I have health problems myself and I get tired very easy. Because of Kidney <BR> issues I need to lose about 100 Lb. I am on a special Kidney Diet. <BR> I can use all the help/suggestions I can get. wanda Mon, 30 Jan 2012 13:06:51 EST PLEASE Check Your Loved-One's Feet! For those with loved ones in assisted living or rehab, PLEASE, when you go to visit, periodically check their feet. I was taking mom to a doctor's appointment & had bought her new socks & shoes. I was APPALLED at the condition of her nails. They were VERY long and a couple had even curled down and hitting the bottoms of her toes. <BR> <BR> I wanted to blow a gasket, but quite calmly talked to the nurse and asked her to arrange a podiatry appointment (they have a visiting podiatrist at bot... Thu, 26 Jan 2012 21:22:20 EST Going on Medicaid Hi team..... <BR> I am interested in discussion about having to go on Medicaid. <BR> I have not done this as yet but will have to in a couple of months. I know of no other choice. <BR> DH and I are both over 65 and do not have long term insurance. We do have great health insurance but have used up what it and Medicare will pay for in the Care Home. We had 100 days and have used that. <BR> <BR> I had to put DH in a Care Home four months ago. <BR> I have divided DH and my assests and his ... Mon, 16 Jan 2012 11:54:12 EST Un-Happy New Year - mom fell AGAIN! She was probably going from rehab back to assisted living this week, but mom fell again on her way to the bathroom! <BR> <BR> Of course her hip hurts and she had a bruised cheek and bruised & swollen ring finger. THANKFULLY there were no breaks. <BR> <BR> However, I'm not really happy because this happened at 2 AM. Mom's room mate (who does NOT have dementia) used her call button to get help. The nurse's aide came, took mom to the bathroom and then put her back into bed. When the nurse ... Sat, 31 Dec 2011 18:00:06 EST Notes from my county's Caregiver Workshop Hey Everyone: <BR> <BR> Someone asked me about a workshop I recently attended. Since it was in another thread, I decided to post it as a new topic hoping it will help those who are not following that other discussion. <BR> <BR> Kim <BR> <BR> SESSION ONE: What is dementia & Alzheimers? I won't go into this session too deeply because I think we all pretty much know what's what. <BR> <BR> We learned that there are 76 different "types" of dementia caused by various things (drug/alcohol, in... Tue, 27 Dec 2011 22:08:26 EST Hi I'm Kimpaints ....Kimmy to my friends... Hi I 'm Kimpaints...I have been a spark enthusiast for quite sometime....I weigh 7lbs more than when I first started SP...But that is a good thing...It could of been 50lbs more...Is this an active team???...Oh I hope so....I am taking full care of my Mother the has Alzheimer's...She still is in her home with access to a car...I know that the worst is yet to come with her...She is a spoiled brat....I love her but she is like dealing with a spoiled child...She has always been self centered...Sh... Sun, 18 Dec 2011 22:10:24 EST Wheel Points 10/5 Tue, 22 Nov 2011 10:52:14 EST : ( Mom's got a broken hip A couple weeks ago mom was helping another resident in assisted living when she hurt her hip. At that time the x-rays showed no break. <BR> <BR> We don't know if they missed a hairline fracture OR (more likely) mom re-injured it. Mom had to have a partial hip replacement this morning. <BR> <BR> She's still doing a lot of sleeping, so I don't know at this point exactly how she is doing. Now I have to find a rehab place for her. Of course the one just a mile from my house is crappy. The ... Mon, 21 Nov 2011 19:41:12 EST SPARKS RALLY IN MONTREAL, CANADA Just checking if there are any Montrealer with this team. If so would you like to join us for a rally during the month of January. It will be a walk/talk/lunch. If you are interested please let me know and I will give you further information. Dianne, Team Leader, SparksMontreal. We would love to have you come. Fri, 18 Nov 2011 17:47:19 EST Things to think about..... A New Year's Prayer: <BR> <BR> God, grant me the senility to forget people I never <BR> liked anyway, the good fortune to run into <BR> the ones that I do, and the eyesight to tell <BR> the difference. <BR> <BR> Thought this was good for a chuckle. <BR> <BR> Have a good evening everyone. Dianne Mon, 14 Nov 2011 19:23:29 EST Another trip to the hospital Wednesday afternoon mom fell, but didn't complain about pain. Early evening she was in pain and the assisted living facility sent her to the hospital by ambulance. I arrived there shortly after her arrival. <BR> <BR> The EKG showed the heart of a 20 YO. : ) X-Rays & CT Scans showed no break and no brain bleeds. She did need a soft splint on her wrist. Today she was walking more slowly but wasn't in a LOT of pain. <BR> <BR> Better than THAT unlike her previous trips to the ER where sh... Thu, 10 Nov 2011 22:05:33 EST End of life struggles Hospice has given me the booklet on what to expect , and it is very on target , but it still is very hard to deal with. <BR> The other day while washing Mom and dressing her for the day the Hospice Aid was transferring her back to her wheelchair and trying to straighten her out when she gave a yell . she seems to have maybe strained some muscles in her chest and back . When trying to move her she is in pain. The nurse checked her all over and ordered some pain meds. <BR> Today she has been... Sun, 6 Nov 2011 20:11:51 EST DAY LIGHT SAVING TIME Hi everybody, don't forget to turn your clocks back one hours. We get an extra hour of sleep! <BR> ennaid Sat, 5 Nov 2011 23:21:49 EST A VERY stressful day In less than a week we've gone from mom living with us to an emergency placement in a dementia care unit at an assisted living facility. I TRIED to be responsible and work with the county BEFORE a crisis hit, but it hit sooner and harder than anyone anticipated. <BR> <BR> On Thursday the hospital was ready to release mom to me when she pitched a complete fit and threw a book at me (violence was one of my criteria). I refused to take her home, but they also saw that she needed to be there l... Sat, 29 Oct 2011 21:39:51 EST Mom is in the hospital Yesterday I spent 14 hours in the ER with mom (she was admitted). <BR> <BR> It was a miserable day starting with her being EXTREMELY agitated and belligerent. I forgot who had the idea of video recording the incident, but it REALLY helped! Thank you, thank you, thank you! <BR> <BR> I called the county "warmline" which is supposed to be a liaison between the family, social workers & arrange police & paramedics as needed. The guy said he couldn't help & I should call 911 and she should go ... Tue, 25 Oct 2011 20:10:50 EST HOW TO TELL YOU LOVED ONE THAT HE IS BEING PLACED? I have tried to keep my husband informed of what is happening but he keeps forgetting. I try to talk about it as little as possible but sometimes the subject has to be discussed. <BR> <BR> I am especially concerned for when I bring him to the hospital to meet the social worker, and also when he is actually moving. Mon, 24 Oct 2011 20:32:22 EST NURSING HOME SEARCH I visited my first nursing home today. It was so beautiful and had absolutely all that I would like to have for DH. But of course the cost went with the beauty. Way over my budget. I have an other 31 places to visit. Thu, 20 Oct 2011 19:17:11 EST NEW MEMBER <em>213</em> I just came across you site and I would like to join as my husband has Alzheimer (from a stroke he suffered in 2002). It is now progressed enought that now I am in the process of putting him into long term care facility. I have taking care of him through numerous illnesses for 17 years. Now is the time for me. I look forward to hearing from all of you. Have a wonderful evening. <em>220</em> <em>253</em> Tue, 18 Oct 2011 20:34:15 EST LOL (sort of) - Mom wants to "run away" Have you ever had one of "those days" when you really hope that the Alzheimer's wipes the slate clean the next morning? <BR> <BR> We had an awful day yesterday. Mom wanted to walk to the bank (it's Sunday), take out all her money (if we haven't stolen all of it) and "run away" to upstate NY. She was REALLY mad at me when I told her she must stay here in MD. She stayed in her room all day and carried around an envelope from her friend (in NV) - a "map" or "destination", her change purse an... Mon, 17 Oct 2011 03:38:32 EST Aromatherapy - Essential Oils Has anyone used essential oils / aromatherapy for your loved one (and yourself)? <BR> <BR> Since the sense of smell is the last to "go", it has been suggested to me to use lavender to calm mom now (or use it when she IS calm) in the hopes that when thing progress, associate the scent with the feeling of well-being when things progress. <BR> <BR> There are "lavender" lotions on the market, but beware, they are usually made with synthetic scents. It's easy to buy a bottle of lavender pure es... Sat, 15 Oct 2011 15:43:12 EST Mom has mild pneumonia Well the doctor called and the x-rays confirm mom has pneumonia, but it looks like we caught it very early. She only had a cough & snore throat - NO fever - so I wasn't even going to take her in. I figured since this was the first "sickness" since she's come to live with me, I wanted the doctor's advice on things like OTC meds, etc. <BR> <BR> Thankfully she's still not running a fever and is pretty chipper (though tired). Pumping the fluids. Fri, 14 Oct 2011 17:31:51 EST FRUSTRATED! Had to take mom to the doctor's today - she might have pneumonia. He sent us to get a chest x-ray. Had a "tussle" with the pharmacy - they sent me an automated voice mail saying there was a "delay" and they'd call back when the prescription was ready. Turns out they didn't HAVE the medicine. It was an almost FOUR HOUR delay getting her started on her antibiotic. <BR> <BR> THEN mom accused my sister-in-law of taking her pajama top. Mom's in MD, SIL in FL. Mom's a size 6 petite and my SI... Thu, 13 Oct 2011 22:37:24 EST Any hints on traveling with your loved one? My husband and I will be driving mom to her hometown (about a 7.5 hour trip) next month for her 90th birthday! She's in pretty good physical shape (she's starting a strength/flexibility class this week) and has a cast-iron bladder. <BR> <BR> Any hints on making the trip as easy on her as possible? <BR> <BR> BTW I brought her up from FL to MD in August on Amtrak's Auto Train which worked quite well. It was 17.5 hours overnight, but we had a sleeper car & I figured it would be better than 4... Sun, 2 Oct 2011 22:26:41 EST Small appetite! How many of you are dealing with diminished appetite? What do you do to make sure your loved one gets the nutrition/calories they need? <BR> <BR> I talked to a dietician the other day at the senior center and she said that what I'm doing made sense to her - I've started using liquid glucosamine and a powdered vitamin/mineral supplement. <BR> <BR> For breakfast I give her a mixture of 1 T peanut butter, 1 T coconut oil, 1 t Nutella (mom will eat ANYTHING chocolate), 1.5 t of powdered vit/... Fri, 30 Sep 2011 14:32:28 EST New to SparkPeople - New to Caregiving Hi Everyone: <BR> <BR> I'm Kim from Maryland. My almost 90 YO mother with moderate AD came to live with me in August. The transition has been MUCH smoother than I expected. <BR> <BR> Before coming to live with me, my brother Alan in FL was her care giver for 1.75 years. Before that she lived on her own in NV. When my sister-in-law had a stroke, my brother (of course) was unable to care for her any longer. <BR> <BR> I am fortunate that Alan had gotten her healthy - the reason we moved h... Fri, 30 Sep 2011 14:00:15 EST Dad passed away this Morning. ;( My dad passed away this morning very peacefully in Tennessee. My mom and my brother and his wife who had been caring for him since I left in August were by his side. He went downhill really fast this past month and stopped eating and drinking a couple days ago. He was never really bedridden until the last two or three days. I'm really sad, but I'm also glad that the end happened so quickly. I know he doesn't have to suffer any more. <BR> <BR> Thank you for the support that I've received... Thu, 15 Sep 2011 17:00:10 EST Feeling sad... My brother says my dad's situation is "grave" now. He completely stopped eating and drinking a couple days ago and seems to be slipping in and out of a coma. Hospice is giving him pain meds because when he does rouse, he seems to be in a lot of discomfort. I'm kind of in shock because it seems like he just went downhill really fast after I left Tennessee (and caring for him) in mid-August. I know it's really hard to tell with these things....he still may rally, but my brother doubts it. ... Wed, 14 Sep 2011 19:43:08 EST Getting to take a break Hi All, <BR> I just thought I would post here to let you know that I'm getting to take a much-needed break from caring for my dad (and mom). My dad has become very weak over the last few months and has many choking episodes. We just put him on hospice care. My brother and his wife are going to care for him for a while at my house in Tennessee. He has really changed a lot over the months that I cared for him so they are in for quite a challenge. My SIL went back to their home town for 24 ... Wed, 17 Aug 2011 18:45:29 EST Moving Mom to Care Facility We are quickly approaching the time to move Mom to a care facility. She has been fighting Alzheimer's for about 4 years and is now quickly losing the battle. There is a new Memory Care facility in town that is wonderful. We've been a number of times in the last 6 months and are convinced this is the right place for her. Unfortunately, Mom has always been the one "in control" in the family and we are getting major resistance. Getting her to stop driving last year was a major drama, and we... Mon, 18 Jul 2011 09:39:42 EST Anyone have food /eating tips? My Mother is losing interest in eating and on her bad days just tears apart her sandwiches and won't eat them. She is down to 2 meals a day if I'm lucky because she sleeps so much of the time. Breakfast is usually a decent meal but in the afternoon I never know how choherant she will be and most of the time she just moves the food around to make it look perfect on the plate or puts it in piles for her "Friends". <BR> She has a swallowing problem, is on thickened liquids so there is a limite... Thu, 14 Jul 2011 06:51:44 EST What stage/type of dementia? I had been thinking of posting a new thread about the seven stages of dementia that many people in the medical community use these days to help describe dementia. I thought it might be helpful us to communicate better with each other if we had a common language to describe how our loved one is along this continuum. Here's a link that briefly describes the seven stages. <BR> <BR> <link><BR>s_of_alzheimers.asp?WT.mc_id=stages_02<BR>&gclid=CIXypc3tyakCFcY... Wed, 22 Jun 2011 12:03:25 EST Hello So happy to find this team. I see it isn't to active but I've read through a few forums and I don't feel so alone. My mom had a stroke and is having memory issues. My dad was diagnosed almost the same time with dementia. He is angry with me all the time because I "stole" his money and took his car. I went for guardianship with him because he has spent their life savings and would continue to spend any income they have left. Last week he screamed obscenities in my face and tried to hit me with... Sat, 11 Jun 2011 22:39:17 EST Adult bib recommendation? I was thinking of ordering an adult bib for my Dad over the internet and wondered if anyone had any recommendations on what to get (or not to get). I've just been using a dish towel tucked into the neck of his shirt, but I was thinking a bib might be more comfortable. He's actually pretty neat eating still, but has a tendency to drool due to his Lewy Body Dementia. Fri, 3 Jun 2011 17:13:56 EST Motion Detector for Nights Hi all, <BR> I'm back in Tennessee for the summer and caring for my Dad every night. My brother cared for him over the winter and installed a motion detector in my Dad's bedroom while he was caring for him. It has made night time care so much easier. The motion detector senses when my dad starts to get out of bed and sounds an alarm through a remote speaker. I can carry the speaker with me to the kitchen if I get up before he does. <BR> <BR> My dad used to get up in the middle of the nig... Sat, 21 May 2011 11:35:03 EST Chair exericise Video I have recently been doing a chair exercise Stretching for Seniors video with my Dad. We only do it for about 10-15 minutes. I show him the exercise on the DVD first and then stop the DVD. Then we do the exercise 3 times. Sometimes he can do it by just copying my movements and other times I have to help him physically move his body like the exercise/stretch. He seems to enjoy the activity and says he feels better from the movement. <BR> <BR> He has very limited movement these days and c... Mon, 4 Apr 2011 09:32:39 EST Good exercise Here is a good exercise, now you don't have to do this as long as I did you can do this in 10 minute spurts and then work up to more as your strength increases. What I did was to take pops up little hills in our garden home subdivision. I did it for about an hour and I feel it in my rear and in my calves. If you have a dirt driveway or can't use a wheelchair in a certain area go to the mall or use a parking lot with the wheel chair. I hope this helps someone else like it has helped me! Mon, 4 Apr 2011 09:23:57 EST Hi - I'm new to the team Hi all - <BR> So glad to have this team as I need all the advice/support I can get! I'm mid-30s living in central Illinois and my 70-yr old father lives all the way in So.Dakota. He currently lives on the same farm as my younger brother, but I know he will need to move into a nursing home very soon. <BR> <BR> It is very hard to manage my father's care from so far away. My brother tries but he is generally irresponsible and has zero patience. On top of health issues my father is extremel... Thu, 24 Feb 2011 13:04:11 EST hi Hi i am new to the team. I am going to keep it short tonight, but i am 43 and I live with my husband who is 45 in our home with his 83 year old. She was diagnosed very early in her disease. I had worked around dementia in patients and started to notice the small signs. After the testing the doctor said that the brain scan only showed minimal changes that if it was his mom he would hope that she would get treatments which I agreed with. She is on aricept and seems to be doing fairly well with ... Sun, 20 Feb 2011 20:28:05 EST Your food vs. your ALZ family member's My mom craves bread and sweets. I'm having a heck of a time resisting. Her Dr. says to feed her what she will eat, so it means I buy them for her. What do you think? Should I not buy them and let her ask for them a million and ten times? ...or, should I just buck up and deal with the sugar, somehow... I've been living with her 7 months and have gained 10 pounds. I've lost 4 since I read the spark 2 weeks ago, but my resolve is waivering. HELP! Wed, 16 Feb 2011 21:17:26 EST Pray for my dad Please pray for my dad . He is not doing too well. He is in a retirement home and is in the later stages of Alzheimers. He is not eating or drinking. He seems to be having trouble swallowing. And he is not sleeping. He stays awake all night and although he will occasionally drift in and out of sleep in his chair, he is not getting a good sleep and is constantly tired. He is also getting very weak. I am very worried and his decline in the last few weeks has been amazing. He has lost 20 pounds ... Sat, 12 Feb 2011 14:32:29 EST ACTIVITIES you loved one might still enjoy <em>185</em> <BR> Here is a basic list that many with dementia can still do and actually enjoy. The focus isn't to get something done perfectly, the ideas is to make them feel useful and if it helps you out-- great; if it frustrates them, try something else. <BR> <BR> set the table <BR> fold laundry [I take out the things I prefer to have folded a certain way-- Yeah, I'm weird] <BR> Wash/rinse dished before you put them in the dishwasher <BR> sweep the floor <BR> vacuum <BR> dust <BR> cut... Thu, 10 Feb 2011 09:53:36 EST 2011 Walk to End Alzheimer's Each year, in SEP/OCT, the Alzheimer's Association sponsors walks around the nation to raise awareness of the disease and funds for research. I'd like to suggest that we set a team goal of having Sparkpeople teams in all of our home cities--Let's see if we can't support this great organization while we get some exercise and "spread the spark". You can already go to the alzheimer's association web page and sign up either as an individual or to start a team. I'v... Wed, 9 Feb 2011 22:41:52 EST New story re Alzheimer's research in NYTimes 12/13 <link><BR>alzheimers.html?pagewanted=1&_r=1 </link> <BR> <BR> The title of the article is: <BR> Insights Give Hope for New Attack on Alzheimer’s <BR> <BR> <BR> This is about research. Mon, 13 Dec 2010 18:25:45 EST Hello My Mom has Early on set Alzheimer’s. She was diagnosed at the age of 54. Early-onset Alzheimer’s is an inherited, rare form of the disease that affects less than 10 percent of Alzheimer’s disease patients. Early on set develops before age 65. My mom is now 58 and is still living at home. My father is her primary care giver and I make the 1.5 hour trek to go see them every other weekend. Fri, 10 Dec 2010 09:30:15 EST Assisted Living Hello there <BR> <BR> My mom has this awful disease and we see her getting worse. She is not eating, will not exercise much. She is down to 100 pounds. Twice a week she goes to a wonderful assisted living place so she can be around people her age. When she goes she is a different lady, she as life in her eyes. She is happy! She told me about a month ago she wants to live there. When she is there the 2 days i don't worry about her because I know they are taking care of her. I work a l... Sun, 5 Dec 2010 08:56:11 EST Transition to nursing home My father just entered an Alzheimer's unit at a nursing home. Home health care was not working anymore and he was trying to go find his boyhood home and his parents. We (siblings and my mom( are trying to help him transition as easily as possible by visiting and spending a lot of time with him. Now we are wondering if this is holding him back from transitioning. He is not sleeping much and keeps wanting to go home. We moved much of his bedroom furniture to the home, his collections (he has... Wed, 1 Dec 2010 00:26:56 EST wishes alzheimer's came with... An instruction booklet... as I'm sitting in the hospital with my dad tonight...I had to make some very hard decisions and I'm very thankful my husband was here to help me know what to do...for an update...he has been staying in an assisted living facility while we complete the addition on to our house to bring him home for me to care for...he called my gradparents very upset and told them he was checking himself out in the morning @ 8 AM he had been railroaded into all of this and he was goin... Sun, 7 Nov 2010 23:09:06 EST Advice for what to say. My Mom has had ad for probably 12 or 13 years now. She just turned 63. She has been living with me since 2006. She is at the stage right now, where she can't carry on a conversation. She says words that don't fit, and she is very distracted. Sometimes it is hard for me to figure out what she needs, because she can't think of what she needs to say and then says, "Oh, I am so tired!!" She can't tell time, or count money, and she hordes toilet paper, and other things!! She needs help in t... Sat, 16 Oct 2010 19:57:58 EST Need some extra patience today!!!!! I feel terrible today. My Mother, who has ad, is driving me CRAZY!!! I love her, and I feel so bad that I feel this way, but I do!! I just want to go screaming down the road right now!!!! <BR> I can't even have a conversation with my Mom anymore. She and I were so close, and other than my husband and his family, she is all I have. And I can't even talk with her about anything anymore. <BR> She has been following me around for 4 straight days now, telling me about her cat, (who hasn't... Fri, 8 Oct 2010 10:39:36 EST Hello My name is Martha. Two years ago my husband was diagnosed with Alzheimer's. We have our own business and my husband is still able to work with more help from me. I home school the three youngest daughters; one daughter and one son are graduated, but still at home. One son is married and has 1 daughter and one on the way. <BR> <BR> I joined Spark People last year sometime, but never carried through with the (or any) program. I am a "stress eater" and I have had plenty of reasons to eat.... Sun, 26 Sep 2010 00:28:53 EST Hi... I'm so excited that I found this group...I'm really hopeful that it is EXACTLY what I need...somewhere that I can come for hope, ideas, and possibly answers...I am 30...and it seems to be a very young age to have been dealt the hand that I have...My Daddy is 59 and we have been fighting this since I was 17...My mother left after 35 years of marriage b/c she was selfish and just couldn't handle all of what was happening...His care fell on me and my family for 4 years...I cooked for him, payed ... Mon, 13 Sep 2010 13:36:47 EST I'm getting really tired of caring for my parents. I just wanted to acknowledge how tired I am of caring for my parents right now. I love my Dad (who has dementia), but I'm ready for my "shift" to be over. I'm fortunate that my brother and I swap out being the main care takers of our parents in Tennessee in six-month shifts. I'm right at five months right now and I'm ready to go home to Illinois. It's 28 more nights to go.... <BR> <BR> I think I need to talk to my brother about doing something differently. I don't think I can go through... Sat, 28 Aug 2010 12:39:36 EST Hi From HI!! I live in a rural community where outdoor activity is difficult to access as mush of the land is privately owned and fenced. My husband and I both take care of my elderly mother-in-law who has Alzheimer's . Thu, 12 Aug 2010 16:20:33 EST Do you have "Fat Clothes" in your closet? I am very curious to find out how many of us keep 'fat clothes' in our closet, once they no longer fit. I used to do this but now, as soon as they are too big-- out they go; to Goodwill, Salvation Army, or to my church. This helps me to keep from 'back sliding' too far-- I'll have nothing to wear! <BR> <em>9</em> Fri, 9 Jul 2010 14:46:35 EST Alzheimer's & Medications I am wondering what medications are being used by families for their AD person. <BR> <BR> My mother is on Aricept only. Drs want to add Numenda but I'm not sure adding will make any difference. Once meds are started, it is difficult to get doc to agree to drop them. <BR> <BR> What is your experience? <BR> <em>24</em> Mon, 24 May 2010 12:10:12 EST New to group. My grandmother moved in with my Dad a couple months ago. She is doing fairly well but Dad does not seem to think so. <BR> <BR> I helped care for my mother-in-law for the last couple years of her life so I know what bad is and grandmother is in the early stages. <BR> <BR> She can stay alone for short periods if Dad would let her but he wont. (This is all about a key she could not get to work and he is scared she well get trapped in the house.) So I am staying with her three to four times a ... Tue, 18 May 2010 18:19:53 EST MAY - JUNE 2010 CHECK IN AND CHAT!! I am very much looking forward to the warm summer days. I really want to stay focused this summer! Sun, 2 May 2010 12:11:20 EST Consignment Shops... Any Luck? <BR> I am determined not to buy clothes that will fit for a short time and am wondering what everyone else is doing to 'make do' while losing weight. In the past, I've had a closet full of 'small' clothes to fit back into, but this time around, I don't. I'm looking for suggestions and comments, tips and tricks regarding consignment shop shopping... <em>9</em> Sat, 1 May 2010 11:13:07 EST Things to do to pass the time? I was wondering what other people have found to help our loved ones pass the time. My dad tends to sit all day and just stare into nothing. A couple things I've found are: walking with him (we do laps inside the house) and watching Leave it to Beaver (Nexflix instant streaming) and Andy Griffith show on TVLand. He's not a big TV fan, but he will watch about 30 minutes at a time max. <BR> <BR> Any ideas? I was thinking about getting an exercise DVD for seniors with just chair exercises a... Mon, 26 Apr 2010 12:11:46 EST This or That?? More Fun! Just pick which you prefer out of the 2 items listed. Then, post a new question for the next person. <BR> <BR> Sweet pickles or Dill pickles? Mon, 19 Apr 2010 10:53:33 EST When is enough enough? I had mom to the neuro today. He is concerned about the recent foot drop she is experience, as am I. Testing will include neuroconduction, MRI, among a few others. Short of being a nuisance, it is not bothering her. I am thinking these tests are unnecessary at this point [she's 84 with Alzheimer's and even if the DO show something-- nerve damage?-- what can/will they do? We have already discussed it and she does NOT want ANY invasive procedures-- NONE. I'm afraid that includes having her perm... Mon, 12 Apr 2010 15:09:05 EST What's your non food treat for the day? It's important to do something special for yourself at least once a week to feel special and worth all <BR> your hard work. I think today I will take a few moments to ..... give myself a manicure and a facial. Sun, 11 Apr 2010 09:23:45 EST Describe your mental well being today! Anxious! I have to get my car fixed! Sat, 3 Apr 2010 12:05:30 EST What is on your 'Go To' list? Do you have a list of things other people can do to help you out? How often do people say 'I'll come over and give you a hand' but when they get there, they/you don't know what to do? So often we feel we need to 'visit' with them instead of accepting the offer of help. I am guilty as sin of doing this-- because I feel guilty to ask other for help [just ask my kids!}. <BR> <BR> I decided this needed to change-- and NOW! I am compiling a list of the things others can do for us. It is very spe... Fri, 2 Apr 2010 09:31:29 EST Return of the Multi-Gen erational Household Very interesting study/article on the changing demographics of the American household. <BR> <BR> <BR> <link><BR>urn-of-the-multi-generational-family-h<BR>ousehold </link> <BR> Thu, 18 Mar 2010 11:21:38 EST Helpful Hint #1 I reversed the bathroom door this weekend. Had to find out the hard way that if Mom falls, which she did, I couldn't get in without squishing her, which I also did. <BR> <BR> By having the door open OUT into the hall, I can get in at any time, she CANNOT get locked in, and if necessary, the hinge pins are now on the outside, so we can even take the door off in a jiffy, should that be necessary. <BR> <BR> It seems like a 'no brainer' now, but it never occured to me until AFTER an acccident... Tue, 23 Feb 2010 10:20:20 EST New to this Team Wow. I am so glad I found such a team within Spark! My mom [age 83] was just officially dx with Alzheimer's. We all she was headed there and that's the reason she's moved in with my husband and me. She's losing herself. By that I mean she no longer does or enjoys the things she used to, even those things she did last summer. No longer seeks out things to do like gardening, reading, and thank GOD she 'gave up' driving. Truth is, the family began disabling her car and then taking her places she... Wed, 27 Jan 2010 13:24:53 EST Hi! Hi Everyone! <BR> <BR> I'm Lisa. I live in Santa Barbara, CA. My mom has Alzheimer's and has been in a nursing home for the last 5 years. I try to go to see her each day, but since I work full-time and have my dad living with me I don't always make it. My goal this year is to get in the healthiest shape possible, so that I can take care of my folks better. Sat, 9 Jan 2010 23:09:28 EST How was your Christmas? I had to work and my daughters and son spent part of the day with my mother. Sun, 27 Dec 2009 10:55:18 EST DOCTOR APPOINTMENT My Mom goes to the Doctor on Friday He is going to do another Memory Test. Wed, 16 Dec 2009 22:02:26 EST FYI - Interesting tidbits This forum is for any informational tidbits. Thu, 3 Dec 2009 09:35:20 EST Tip of the day! I thought it would be fun to give 1 tip for the day...any tip. It could be a fitness or weight-loss tip or just a general tip to make life a little easier. <BR> <BR> <em>3</em> Tue, 1 Dec 2009 10:38:52 EST mom an I, on thanksgiving day we spent the day at home watched the parade and did some exercises during commercials. we eat a light lunner, chicken noodle soup, dessert was a small piece of apple pie. It was just the two of us and that was fine for us, her one sister called and was going to come over on t-day, but was not feeling good,(tooth pain) she i on medication to take the swelling down so she felt like staying an resting, didn't want any company. We watched some movies and gave the pets some extra love (dogs, small... Sat, 28 Nov 2009 10:19:11 EST How did you handle Thanksgiving? Tell us how Thanksgiving went for you and your loved one. Sat, 28 Nov 2009 09:53:44 EST hello to everyone I saw this on the teampages and come to say hi !! I am taking care of a parent that has azl. (moderate), and overhelmed with the information that is out there on the web and in book form, I feel that it is to much to take in all at once. not sure when this started showing up in the last few years. Last year it was more prominate when seeing the doctor,and chose to see a specialist and then got her onto meds for the desiase?rite now it is helping very much. Fri, 27 Nov 2009 11:35:37 EST Wheel of Fortune This is just for fun! <BR> <BR> n - - - - - - - - - - c - - <BR> <BR> <BR> This has something to do with eating healthy! <BR> There are 9 letters in the 1st word and 5 in the 2nd word. Please only post one letter unless you think you can solve the problem. Have fun! <BR> <em>58</em> Fri, 6 Nov 2009 20:06:49 EST Let's write to Oprah! There is a link on where anyone can write in and suggest a show topic. Here's the link: <BR><BR>lu <BR> gId=216 <BR> <BR> I just wrote to Oprah at that link and suggested making SparkPeople and Chris Downie a show topic. <BR> <BR> Here's what I wrote (simple and to the point): <BR> <BR> Please consider having a show about and it's founder Chis Downie. His vision has created a website that has encouraged 1,000's of people ar... Thu, 8 Oct 2009 15:44:09 EST is this happening to anyone else? my maternal grandmother has dementia and she is living with my parents and i. she is starting to not be able to complete a thougth. she would start telling us something and then completely stop talking right in the middle of a sentence. and when she stops, it is like she wasn't even having a conversation with you. Sun, 4 Oct 2009 20:05:36 EST I just wanted to say "Hi" this morning I know we are all busy with our own lives and caring for our loved ones, but I just wanted to say "hi" and extend a hug to each of you this morning. <BR> <em>247</em> <BR> It's nice knowing that each of you is out there. We are not in this alone. <BR> Kay Sat, 26 Sep 2009 08:49:27 EST Alzheimer's support group I went to the first Alzheimer's support group since June today. What a positive experience to have people who have and are walking the same road open up their hearts and reach out to help. My problems aren't any smaller but they are a little easier to carry tonight. I'm just heading out now to walk with a fellow member for awhile. I also told our group leader about the fantastic support offered at this site! Thu, 17 Sep 2009 19:31:26 EST A little tired..... My dad has not been sleeping well this week which means I have been up a lot the last few nights. I know this is not uncommon with dementia. I've been fortunate to be able to nap for several hours the last two days. <BR> <BR> I've just really slacked off on exercise. I just wanted to write about it. The naps have helped and I WILL get back to exercising! <BR> <BR> I'm grateful for this time with my dad, but it can be tiring. Sun, 13 Sep 2009 19:23:51 EST guidelines to placement I know that every case is different but other than some safety issues what clues do you look for to determine when you are getting closer to the time you should be considering placing the patient in a facility? Every day is not the same and sometimes the markers I look for aren't progressive. It's like one step forward and two steps back. I guess I'm more worried about placing my dad too soon but I don't want to place home in a position of danger either. Thu, 3 Sep 2009 20:36:10 EST Interesting sites/links <em>48</em> As I come across links I think might be of interest, I'll post them here. I hope you do the same. This is my area of interest; I know that it's not for everybody, but I hope it helps someone if not for their loved one, for themselves. <BR> <BR> They may not ALL pertain to Alzheimer's but also to other neuro degenerative diseases/problems. <BR> <BR> Harold Kraus: <link> </link> and from there: <link><BR>ten/anno_symp... Wed, 2 Sep 2009 15:52:25 EST Saying hello Good morning, and thank you Walnut, for inviting me to the team. You must've seen my comment for the Obesity and Alzheimer's SP blog. <BR> <BR> (I don't know why, but People's Pharmacy links don't ever work for me. The link provided doesn't work. My best advice is to provide the link for the original google search: <link> </link> and click on the first article - it'll work, I tried it again.) <BR> <BR> I've personally had dementia and recovered, my father has Alzheimer'... Wed, 2 Sep 2009 10:10:50 EST I cried last night. Last night, my dad woke up confused around 1 am and got dressed in the dark. This is not uncommon for him. I woke up around 2 and went to his room to check on him. He was scared because he didn't know where he was. I talked to him for about 20 minutes explaining to him that he was at my house (he's been spending the nights here for two monthns). <BR> <BR> I realized after a few minutes that my explanation wasn't helping because he didn't know who I was. That's happened before in the m... Sun, 30 Aug 2009 17:10:01 EST Larger brain...lose weight!! Hmmmm...interesting!!!! <link><BR>urnal_individual.asp?blog_id=2348043 </link> Wed, 26 Aug 2009 12:15:24 EST Wish list! I came across this article and I thought, Wouldn't this be nice to have specialized units for Alzheimer's/dementia relatives to give the caregiver's a break! Do you know of any such type of units? <BR> <BR> <BR> <link><BR>90712_New_market_for_special_end-of-li<BR>fe_care_that_is_______INPATIENT.html </link> Sat, 22 Aug 2009 17:22:32 EST LOG IN POINTS TODAY 5 Sat, 22 Aug 2009 08:31:44 EST What's in a name? Team, Do you have a better name for our group...I thought of it real quick and maybe we should add dementia in the name??? Let me know what you think? Also we can use the homework assigment forum for anything that we feel can improve the care of our loved ones. I did pose a question about diet under the homework assigment. Please respond and tell me what you think (look under the homework assignment)? <BR> Thu, 20 Aug 2009 08:41:14 EST Chit-Chat We have a new co-leader!!! Yeah!!! This forum is used for any topic you want! Thu, 20 Aug 2009 08:34:06 EST Homework assignment Team members please read this article and make a comment on it in this thread. Just click on the link to get the article. <BR> <link><BR>_comments.asp?id=353&type=1 </link> <BR> <BR> <em>58</em> <em>149</em> Sun, 9 Aug 2009 08:25:50 EST Your loved one!! Tell us about your loved one that is dependent on you? Tell about your support system to help you? <BR> <BR> <em>2</em> Tue, 4 Aug 2009 18:22:05 EST Stumbling blocks This forum is to talk about the stumbling blocks that you encounter taking care of your loved one. <BR> <BR> <em>198</em> Mon, 3 Aug 2009 08:31:54 EST Hello Hi read some blogs and realize that there is no support for relatives of Alzheimers. I am an RN and I am glad to get this group going. Taking care of a relative with Alzheimers can be very draining and exhausting and you need support to keep going to stay healthy!!! Sun, 2 Aug 2009 22:55:53 EST