SparkPeople BRAIN BUDDIES! Neurological Conditions Team Messageboard http://www.sparkpeople.com/myspark/groups_individual.asp?gid=18470 This SparkTeam is for anyone Living with, or just plain interested in, any condition occurring in the brain. Support Members Welcome. SparkPeople BRAIN BUDDIES! Neurological Conditions Team Messageboard http://www.sparkpeople.com/assets/nav/nav_logo_v3.gif http://www.sparkpeople.com/myspark/groups_individual.asp?gid=18470 intercranial pressure,v vestibular migraines&compl http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x72585849 Does anyone here deal with any of the following also? intercranial pressure,vestibular migraines-with the vertigo&amp;complicated migraines Tue, 5 Nov 2019 10:42:53 EST new to this team http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x72403578 hello, i am suzi. had a TBI about 15 years ago. i walk, but not independently, i need assistance. i am paralyzed on my left side. would love to hear from those in a similar disabled state. <BR> <BR> <BR> <BR> yours truly, <BR> <BR> suzi Sat, 5 Oct 2019 13:06:53 EST Missing Me http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x71643923 Hi, I'm a teacher turned after school care coordinator. I had my second diagnosed concussion in March. I say diagnosed because, let's be real, I grew up in the 70s and 80s when head traumas weren't taken as seriously and my mom only took us to the doctor for sports physicals and if someone had broken a bone or needed stitches. I can look back at memories from my childhood that would have had me taking my kid to the ER - head over heels on my first ten speed bike on asphalt? Falling/rolling... Wed, 29 May 2019 20:49:38 EST New member http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x70954960 Just wanted to introduce and see what your group is all about. Understand its anything neurological,,,Thats a huge area to cover. I have been dealing with everything from brain tumors and treatments to seizures for years now. Thought I was on the upturn in life as I get ready to retire, but apparently my brain has other ideas. Weight, health and medications just don't seem to mix well, which brings me to sparkpeople, and hopefully like minded people. I am a positive person, stronger tha... Fri, 8 Feb 2019 21:08:51 EST Join our Challenge! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x68438164 <link>https://www.sparkpeople.com/myspark/<BR>sparkchallenge-accept.asp?cc=K9CJ3QRAK<BR>V1O8LRAWKJ5AD85Y </link> Sun, 4 Feb 2018 12:09:46 EST 2018 NEWNESS http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x68205305 Well, so what are you hoping for this year? I am working hard at setting myself up for SUCCESS. YOU? <BR> Tips? <BR> Challenges? <BR> Coping skills? <BR> <BR> Ideas? Mon, 1 Jan 2018 11:22:07 EST Topamax? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x67136443 Has anyone been prescribed this for the prevention of Headaches? If so, how effective was It? Sun, 9 Jul 2017 14:37:49 EST Summer 2017! HOPES? Plans? Accompli shments? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x66896509 OK. HEY THERE! <BR> If you are new, check in! If you are old (Like ME!) keep this going!!!! <BR> <BR> My HOPES! A successful event in the middle of June called the Different-Abilities Walk, Roll &amp; Stroll. This is our 3rd Annual and I am really worn out... Most of the job is on me :/ <BR> <BR> PLANS? MORE CAMPING! Less whining! :) <BR> <BR> Accomplishments? So far my 5x7 work out has been successful. I am averaging about 35-37 miles a week. I would like to get to a regu... Mon, 29 May 2017 20:05:04 EST Just Call Me TBI from Texas http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x66590122 It's taken me a year to figure out and accept that today may be as good as it gets, and tomorrow I may have forgotten that again, but I'm looking for support of the new me. Sun, 9 Apr 2017 16:13:45 EST I share my Life from Tennessee http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x66063330 What a blessing this intimate group is to be in our lives! I am so glad I came across this group with such a fun and inviting name. <BR> <BR> My name is Tonya and I live in TN, managing a life altering diagnosis of genetic brain abnormality PVNH ( Periventricular Nodular Heterotopia) In easy to understand terms, the grey matter of my brain migrates to places it should not be, clusters with other grey matter, forms nodules( tumors), and continues migrating. My doctors say I have the best min... Sat, 21 Jan 2017 18:36:29 EST Hello, I am new to the group. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x64529127 Hello. I am 38 year old mother of two. I was diagnosed with epilepsy at age 10. I have recently gone through a difficult struggle with seizures. I was placed on new medication which caused a 30 lb weight gain. I am hoping to find support and encouragement from those who understand what it is like to struggle with a chronic neurological condition. Fri, 10 Jun 2016 13:29:21 EST for myself and Ashlea http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x64422724 I am living with my almost 20 year old daughter who has among other issues, an NBIA disorder caused by 2 brain lesions. life is never boring when you throw in her muscle myopathy and her psychosis. of course then you have all of her little things like chorea, anxiety, depression, ADD, eczema... oh, did I mention I work too. yep! BUT only when she is at program or at community hab with her person. I manage to work about 15 to 20 hours each week around her schedule of programs and weekly appo... Thu, 26 May 2016 07:03:00 EST One of the Best Videos I've Ever Seen http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x63679230 Hi everyone, I'm new here. <BR> <BR> I just found this video on SparkVideos, and I sobbed all the way through it. This guy gets how hard it is to be sick and disabled and to have to do this almost completely on your own. We all have different medical situations, and not everyone will have that kind of progress that fast, but we can all reach for a little bit better tomorrow than what we had yesterday. <BR> Check it out! (plus, you can get points at the bottom for watching): <BR> http://www.s... Mon, 15 Feb 2016 11:41:29 EST Emotional Freedom Technique http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x63659704 I found that EFT (or tapping) is a great way to uncover and correct negative thoughts or emotions that are holding you back. A recent video <link>www.thetappingsolution.com/2016Video<BR>Series/nick-ortner-explains-tapping-post/ </link> discloses just how EFT does that. Fri, 12 Feb 2016 17:14:16 EST Hello From Florida http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x61250123 Looks like I'm the first one introducing myself in some time... I was in a vehicle accident 11/20/2013. Although at first it seemed like a "simple concussion," 2.5 years later I am now been diagnosed with Post Concussive Syndrome and a host other related issues. Whats affected my health the worse is the fatigue. <BR> <BR> I hope to be back under 200 this time next year. <BR> <BR> I'm the father of four daughters, 13, 18, 21, and 24. I have not been able to return back to work but prior to... Fri, 17 Apr 2015 22:55:18 EST I smiled this morning http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x60396896 We had sun for a little bit this morning. Ah, bright sunlight despite the crisp weather. I must have been a flower in a past life? Wait, can you be reincarnated as a plant or does it have to be an animal. Clearly this is a belief system that I know a lot about. :) Tue, 20 Jan 2015 11:26:00 EST A giggle for you http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x59518455 Happy Halloween!! <BR> <BR> <link>blog.theanimalrescuesite.com/spiderd<BR>ogprank/?utm_source=social&utm_medium=<BR>dotd&utm_campaign=spiderdogprank&utm_t<BR>erm=20141017 </link> Mon, 20 Oct 2014 23:58:56 EST A GREAT BIG HELLOOOOOO to FAll 2014!!! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x59163131 OK. Hello? Anyone there? So many new groups have formed and I know I can't keep up with them let alone my own stuff for the most part. <BR> <BR> Anyone there? How are you??? <BR> <BR> Hugs from WA STATE <BR> Barb Tue, 16 Sep 2014 11:04:04 EST Is this where I should be? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x59086800 Okay, here goes! <BR> <BR> I've had lots of neurological problems for a long time. I think a lot of it started with a head injury more than 40 years ago. I fell off a horse and had a severe concussion. I bled from the ear and actually lost my sight for a couple hours. (That was pretty terrifying. I thought it would not come back!) They did not know much about traumatic head injuries back then, but in light of recent reading, I think the injury accounts for some problems I have had for ... Mon, 8 Sep 2014 23:26:46 EST A Blog to remember... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x58002703 http://karaswanson.wordpress.com/2014/05/2<BR>6/i-guess-theres-a-little-more-to-it-t<BR>han-that/#comment-1777 <BR> <BR> I love this blog. It is such a big help to me each month. :) Mon, 26 May 2014 11:17:24 EST New Here Heya! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x57075014 Hey I'm Kate, I have a Traumatic Brain injury, it gets in the way of everything. I have permanent nerve damage which causes my muscles to fire constantly (called hyper tonic muscles) It's been 13 almost 14 years of living with it. <BR> <BR> Im trying to stay positive through it all, I have soo much pain though. <BR> I have alot to be happy about, I just got engaged to my wonderful boyfriend, I wake up every morning and I'm alive, I can walk talk and do everything I put my mind to, <BR> ... Mon, 10 Mar 2014 13:22:46 EST *waves.* http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x55682178 Hey there. :) This is a step for me to actually talk to people about this stuff, and I'm so glad to have found a group that has the same issues. <BR> <BR> My name is Christina. A few years back I was diagnosed with a Chiari I malformation. Mon, 18 Nov 2013 15:19:40 EST New Member-Just Diagnosed With A Meningioma http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x55275544 Hi, my name is Robin, and I was just diagnosed with a meningioma, about a month ago. It was found by accident, when I had a brain MRI to rule out MS. Luckily, I don't have MS, but the radiologist report stated that I have a meningioma. Besides having no clue what that meant (and when the dr. told me, benign brain tumor, I was shocked), I'm dealing with the usual emotions that one goes through when being told news like this. The first week, I walked around like a zombie in disbelief. However, ... Tue, 15 Oct 2013 17:21:10 EST SAH Survivor http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x55148823 Hello everyone, I am 61 years old and 17 years ago I woke up with the 'worst headache of my life'. An artery had ruptured in my brain & I knew instantly that I was dying. Miraculously, after bleeding for a short time a clot became stuck in the tear of the artery and gave me time to get to the hospital and be flown to Seattle to a trauma center. I had brain surgery & successful clipping. I am one of the few people to survive a sub arachnoid hemorrhage with virtually no deficit. I hope to be a... Sat, 5 Oct 2013 09:44:51 EST Chiari patient new to SparkPeople http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x54672519 Hello everyone, my name is Amanda. I am 20 years old, from Rhode Island. I was diagnosed with type 1 chiari malformation when I was 16 years old. I have yet to go through with the decompression surgery, as the whole idea terrifies me! From reading through some of the message boards on here I have seen that there are many people here with Chiari. This makes me hopeful, as I have been trying to find ways I can exercise without straining myself and causing those awful headaches!! Mon, 26 Aug 2013 22:19:21 EST Anyone have issues with strength training? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x53633566 I know I need to do it in order to remedy my muscle weakness. My parents set me up with a personal trainer when I was 12 because it was already an issue then. But over the next 6 years, things got progressively worse instead of better, and since surgery 8 years ago, I just haven't been able to get on the strength wagon. (I can't get BACK on because I don't feel like I was ever really on it to begin with...) <BR> <BR> I just feel like it's really HARD, no matter how I try to modify things.... Thu, 6 Jun 2013 15:01:10 EST Living with Acqueductal Stenosis http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x53621621 Hi everyone, <BR> <BR> I'm Sarah, and as the title of this thread says, I'm living with acqueductal stenosis. I've had it pretty much my whole life as far as my doctors can tell. It resulted in hydrocephalus which got progressively worse until I was 18, when I finally had it surgically corrected. It's left me with a learning disorder, muscle weakness, and low endurance. I'm hoping SP can help me get into the habit of exercise, since I never really developed that habit growing up. I'm ve... Wed, 5 Jun 2013 18:19:25 EST Late night lurker http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x53516989 Hello, <BR> <BR> I have been reading posts on this board and decided to join this team because I think you all may understand where I am coming from. <BR> <BR> I have a lot of health issues, and so I have a lot of teams here on SparkPeople to choose from. I never seem to connect with anyone or even to stay around very long at a time. <BR> <BR> In the last year I have been told that I have the symptoms of a TBI. I have no memory of this, but my husband can remember one time about 30 years a... Wed, 29 May 2013 00:16:34 EST rain, rain go away http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x53220703 Hi <BR> I live in Jacksonville, Fl and it's been raining since Thursday. It's good for my garden but not for driving. I'm going yo have to really fight with the weeds next week. A lot of flooding. Not helping my depression Sat, 4 May 2013 20:03:44 EST Do Tell: Your struggles, accomplishments & dreams! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x52672686 <em>306</em> <BR> <BR> Alright Brain Buddies! Tell me your news! <BR> <BR> My Struggles: Using food to take the place of ______ (love, fun, happiness,etc.) <BR> Balancing working out energy with energy use for daily life... <BR> Being KIND to myself! <BR> My Accomplishments: <BR> Making plans and moving forward on them... this involves using my BRAIN which is hard some times but I am working it! ... Sun, 24 Mar 2013 14:07:39 EST Need help to WIN a handicap accessible van http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x52567483 My boyfriend is a paraplegic and we are trying to win a handicap accessible van so we can let him be more active. I also have a medical condition that leaves me constantly off balance and I will need a scooter to get around to keep me active as well. <BR> <BR> We are trying to win a handicap accessible van and it is based off of votes. Would you please vote for us to win at: <link>www.mobilityawarenessmonth.com/entra<BR>nt/mike-greer-grassy-creek-nc/ </link> <BR> <BR> Please share this... Sun, 17 Mar 2013 00:09:42 EST New to Board Chiari Patient http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x52428296 Hi, <BR> I am a chiari patient who went through the decompression surgery in 1994. I have recently been having problems again and the MRI shows that all the bone that was removed in the original surgery has grown back. Another surgery is in my future but at this point the spinal fluid is still flowing at a decent rate so the surgeon is recommending putting off surgery for as long as possible. <BR> I didn't know that a second surgery was even a thought but I guess it is. I do realize at my cu... Thu, 7 Mar 2013 11:59:01 EST frustrated. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x52427490 Sad face. <BR> <BR> I am frustrated. I have found myself caught in a cavern here... no one around... talking to self sometimes... <BR> To Self: Are you obsolete? Have you passed your pull date? others here are 'spark motivators' (yes, jealous... I am not one--though I have given lots of support I guess that is not me). <BR> <BR> What to do???? Thu, 7 Mar 2013 10:59:20 EST pediatric brain tumors http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x51775974 I am a grandmother of a 5 year old boy who is fighting a brain tumor. Ben has a benign brain stem tumor. he has had 3 major surgeries to remove it but since it is in a bad place they can't get it all. he is now undergoing chemo to stop the growth and make it a dead tumor. This has been the most stressful time in my life, and i have let myself go. i need to lose this weight and take care of myself. i have a hard time with stress eating. i mindlessly find myself munching and it shows...how do y... Tue, 22 Jan 2013 19:48:14 EST Howdy! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x51626027 Hi! I'm Doug. On 18 Nov 2005, my oldest son, Carson, was hit by a car when he was in the crosswalk right in front of his school. The driver ran the stop light. Carson received a severe traumatic brain injury and was in a coma for a month. He was 13 at the time. He made a lot of progress and was even able to complete his Eagle Scout requirements. The brain injury affected his left arm and leg, caused his eyes to diverge, and he can't speak clearly. He uses a wheel chair mostly but can ... Sun, 13 Jan 2013 19:33:36 EST Cavernous Malformation http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x51553810 Hello All! I was diagnosed with a cavernous malformation in 2009. I have now had 6 bleeds (been experiencing symptoms from my sixth bleed since September 2012). When I have a bleed I am constantly light headed and I have dizzy spells also. The left side of my body goes numb, my vision blurs and I have difficulty concentrating sometimes. I also have a bobble head effect where my head constantly feels like it flops to the right/back. I had to stop working in November when I started fallin... Wed, 9 Jan 2013 11:35:40 EST MRI http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x51528846 I will be having my MRI done this month to see if brain tumor has stopped growing. Please pray <BR> Thanks <BR> I am grateful for each day Mon, 7 Jan 2013 22:25:42 EST In new therapies again... Equal weight gain? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x50858564 I guess you can call it a twelve year tune-up. Occupational, speech, physical, mental and a few new ones... Acupuncture, cranial- sacral masa age and some others. I definitely needed them. Maybe not as life saving as the first time but almost. Selfishly, in the back of my mind, or should I say what's left of it, is my weight. I don't want to back track. Just gained almost 3 pounds. A little worried. But I know it's a life thing not a fad or fast thing. I'll get on it with the change of positi... Fri, 16 Nov 2012 22:06:02 EST Anyone with chiari 1 and syringomyelia?? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x50818465 After a long sick road I finally got a diagnosis and had surgery in August. Looking for anyone with the same conditions. Tue, 13 Nov 2012 22:09:16 EST Another new member ... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x50690644 Greetings! <BR> <BR> New here -- I live in the Pacific NW, retired early in 2003, returned to school that year to finish my undergrad degree in music. Got my degree in 2006, and went on to grad school for my Masters. <BR> <BR> I was diagnosed in Nov 2010 with a small-ish meningioma, on the left side, just above my ear. It showed up when I had an MRI done to check for a pituitary adenoma (which i also have, but it's non-functioning). At that time, the meningioma was 1.1cm x 2.2cm. Had anothe... Sun, 4 Nov 2012 19:25:14 EST New Here http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x50286296 I have Idiopathic Basal Ganglia Calcifications (sometimes called Fahrs Disease/Syndrome). It is a genetic disorder where calcium is stripped from my bones and diet and delivered to my organs but, primarily (as the name implies) to the Basal Ganglia region of my brain. In my case, it's not limited to the Basal Ganglia. It is scattered throughout my brain. It's also on my lungs and on my heart. It is always fatal. There is no treatment and no cure. There are no clinical trials. All they can do ... Sun, 7 Oct 2012 18:58:09 EST Anyone with Epilepsy? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x50133561 I found out I had Epilepsy in 1996. It has been under control I'd have about one a year until I hit my freshmen year of High School. I started to have about 3-5 a month. I was put on 1000mg of Keppra and 1000mg of Lamictal. I've been on those meds for over 10 years. I was seirzer free for over 5 years. I have 1-2 a year now. I'm trying to find a few people who are trying to lose weight that have delt/dealing with epilepsy and trying to lose weight. After I had my daughter I lost 40lbs. Then w... Thu, 27 Sep 2012 13:41:53 EST Hi all! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x50041630 Hi everyone. My name is Nickie. I joined the group because I have Agenesis of the Corpus Callosum (ACC). If you haven't heard of it I will explain. ACC is the absence of the connective tissue (the CC) between the left and right hemispheres. It is kinda rare; only about 1 million people in the whole world have been officially diagnosed. There are still many out there that do not know that they have it and probably never will. ACC is connected to autism and autism spectrum disorder. It also cau... Fri, 21 Sep 2012 14:31:01 EST Hey Everybody! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x49819776 Howdy! <BR> <BR> Most of this I just copy and pasted from another TBI forum on here. I've already met Barb and I look forward to meeting everyone else. <BR> <BR> My name is Jared, I'm 22 years old, and I'm an engineering student at Ohio University. <BR> <BR> A little over a year ago I was struck by a hit and run driver on campus. I didn't break any bones but I hit the asphalt hard enough for my left eye to shift and my brain to bleed. Long story short(It's been a long year.), I had to tak... Fri, 7 Sep 2012 20:07:34 EST patience http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x49559049 Since I've become ill, I'm learning to take one day at a time and to be grateful for the things I can do Tue, 21 Aug 2012 11:41:39 EST new to group. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x48984770 Hello everyone. My name is Michel. i have 2 boys ages 10 and 13. I live in Texas. in May 2011 i was 6 months into my divorce from my (now ex) husband of 10 years. I went to the eye Dr because i could not see out of my right eye. that was a Thursday. She told me i needed to come back on Monday. i did. she told me that something was wrong, but it was fixable. i told her i wanted a Dr in Houston. so she sent me to a nuro-ophthalmologist. i had an appt. that Friday. that Friday i found out that i... Sat, 14 Jul 2012 20:51:51 EST Exercising as an aneurysm survivor http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x48326321 I was recently sucessfully treated for an aneurysm and am going back to light excercise....walking my dogs <em>41</em> <BR> <BR> I am excited but anxious because I don't want to do too much too soon. Has anyone else out there gone through anything similar? I usually put on ankle and wrist weights for a little added resistance. Any suggestions? Fri, 1 Jun 2012 12:19:37 EST Acupuncture http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x48293173 I haven't been on any teams I belong to in a long time, there is just too much going on right now that I find myself without any extra time to catch up. <BR> <BR> As many of you remember, my husband had a stroke back in January of 2010. Since then we had up and downs, mostly downs. He is finally gaining weight but he is depressed and angry (at me) and depressed and alot more. <BR> <BR> I signed him up for acupuncture because I heard so much about that helping stroke victims that I thought ... Wed, 30 May 2012 11:36:27 EST Becca http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x46557367 Hi, all! <BR> <BR> My name is Becca, and I'm new to SP. I started suffering from epilepsy in 2009, and my boyfriend of almost 7 years has been reluctant to talk about trying to have a baby...until now! <BR> <BR> Just before the seizures got really bad, I had been tracking my calories (along with fat, fiber, protein, and carbs), and walking about 7 miles a day. I lost a little over 20 pounds in about 5 weeks, then. I've since gained 15 of it back. I'm a lot heavier than I am comfortable bei... Mon, 13 Feb 2012 00:12:35 EST Ducy's New Life http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x46269139 Hello, it is nice to meet everyone! <BR> <BR> In a nut shell, in Feb 2010, afters years of migraines, I found out I had a brain tumor the size of a gulf ball, in April 2010, I had it removed, in June I got married, pregnant in August, had a baby in April 2011, and now I am suffering from seizures and haven't been able to find a job in forever. During this time frame, my weight has been all over the place. Now, It seems like the only thing I do have control over is my weight and exercise.... Fri, 27 Jan 2012 10:51:17 EST Arnold Chiari http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x46227445 I was diagnosed with Arnold Chiari when I was 18 and had decompression surgery at that time. My symptoms became much better after the surgery, but I still have some residual problems that I have learned to deal with. I became and RN and have taken care of few patients over the years with the same condition. I work in ICU at a major medical center. I am very lucky and I thank God for the opportunity to help others. I hope we can help each other get into shape. Wed, 25 Jan 2012 05:25:27 EST New with MG http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x45769308 Hello <BR> I'm Debbie. Not new to SP but I'm trying to find info and support or people with MG (Myasthenia Gravis) as I was diagnosed with this disease in November. If anyy of yo yoI'm all for learning about this. <BR> <BR> Have a blessed day. <BR> <BR> Mon, 2 Jan 2012 11:48:13 EST New to Group http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x45594737 Hi, <BR> <BR> I've been reading some of your bios and pages and I guess it's time to introduce myself. My brief basic bio - 52-years-old, Canadian, female, married, 2 dogs, 4 cats, marionette maker, costume designer and builder, writer, love cooking, working to lose 80+ more pounds. <BR> <BR> I wish I could explain my neurological condition as easily, but I'm not 100% sure. So the long story... <BR> <BR> I woke up December 3, 2002 with MS symptoms that lasted for about 6 weeks. During thi... Wed, 21 Dec 2011 01:21:44 EST Arnold Chiari I Malformation http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x45534497 Hi. I have just spent the last 8 months recovery from Chiari Decompression surgery with complications of cerebral spinal fluid leak and bacterial meningitis. 1 surgery turned into 5 surgeries with my first surgery being April 6/11 and my last one being December 5/11. I have basically been sedentary for this time. Since my last surgery (to remove the peritineal shunt) I have started to get my energy back. Now I need to undo what the last 8 months has done. Weight gain. Fri, 16 Dec 2011 08:35:28 EST Newer member in remission 4 years http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x44120258 Hi All, <BR> <BR> I was a part of this team a while back but had to redo my entire account with SP. I love that this team is still here as brain conditions are just not "popular" like other conditions. I am a brain cancer/tumor survivor and just hit 4 years in remission this past July. I still definitely have times when it's like somebody hit the pause button and I can't think, or I go blank mid sentence or lose my balance, but I know just how important support systems can be. So I am gl... Fri, 16 Sep 2011 15:52:55 EST New Member with Acoustic Neuroma http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x44051528 Just wanted to make a post as a new member to the group. I was diagnosed with an acoustic neuroma about 15 months ago. Went through Cyberknife radiation therapy last July and have been adjusting ever since. ANs are build up of swam cells on the 8th cranial nerve--that go from the brain stem into the ear. They control hearing, balance and are next to the facial muscles. After CK my tumor swelled a bit so the hearing loss and balance issues I had go much worse for a bit and my face would c... Mon, 12 Sep 2011 21:01:43 EST Stupid Barometric Pressure! >.< http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x43178262 I think it's worse in the summer than almost any other time of the year. For me, it's when it moves up or down quickly....it makes my Chiari symptoms flare up. Aside from the heat, which does it too. I don't know if it causes swelling in some scar tissue or what...I don't know what's actually happening in there. I just know it hurts, and it makes me dizzy, and I should buy stock in an ibuprofen company as much as I take. ;o) It sucks! <BR> <BR> I've only been a diagnosed Chiarian for a... Mon, 25 Jul 2011 08:52:18 EST New Member - Chiarian. :o) http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x42948539 Hello, everyone!! <BR> <BR> I'm new here, and looking for a team of supportive mates to lose weight with. :) I'm in Central Ohio, I'm 35 years old, I have three kids and three step kids between 16 and 10 years old. I was diagnosed with a 7mm Chiari Malformation with 90% CSF blockage in October of 2009. <BR> <BR> Just previous to my diagnosis, I had lost 140lbs. I was feeling great! Then my symptoms crept up and attacked me....I ended up depressed out of my mind on bed rest. I ate an... Tue, 12 Jul 2011 13:47:19 EST Tourette http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x42763865 Hi, I'm Heather and I'm new to SP. I have Tourette so I thought I'd join this group. Sat, 2 Jul 2011 12:15:06 EST Anyone nauseous all the time? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x42712789 I am wondering if anyone here is always nauseous? Do you take any meds for that or just ive with it? <BR> <BR> DH is nauseous all the time and no one can figure out what is going on. Wed, 29 Jun 2011 16:25:09 EST Hello from SoCal!! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x42692954 Hey everyone, I'm Sarah! <BR> I was diagnosed a few months ago with Type 1 Arnold Chiari malformation. My condition makes it very hard sometimes to work out because of piercing headaches if I over extend myself during the workout BUT in everyday life my headaches have become less and less frequent because of the working out. <BR> I am very commited to losing weight and keeping my health in check because aside from being overweight and the Arnold Chiari which apparently I've had since birth I ... Tue, 28 Jun 2011 17:25:20 EST Post Meningioma Walking In. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x42599953 Hello there. <BR> <BR> A couple of years ago, after my temperament became poor, after being sick a lot, after getting a limp while I walk and dropping things with my left hand, after months a horrific headaches...I got sick one night. The next morning I barely aware. An ambulance called. I remember my mother (visiting) dressing me in pajama's and being helped down the stoop my the ambulance fellows. That it. <BR> <BR> The next thing I recall is looking out an open door, seeing that I am in... Thu, 23 Jun 2011 16:01:15 EST Chat with the BRAINIES!!! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x42321775 <em>3</em> <BR> <BR> Hi Everyone!!! <BR> This is a NO-STRESS reminder to check in with us Brain Buddies... For some reason, many of my email notices are not getting to me, and I forget (cuz, um... I have a brain issue) to check in... so Rondarc gave me the thought to start a 'chatty spot'. I LOVE it!!! <BR> What to say??? Oh Dear what to say???? <BR> <BR> Hello! <BR> U OK? <BR> I am losing my --- inches, waist, brain, MIND (LOL), temper (!) or_______! <BR> I need support... <BR> ... Wed, 8 Jun 2011 23:03:22 EST We aren't using the forums... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x42233042 Is it just me or is it everyone who is just not spending any time on the forums? I think that between blogging, logging and working out (hahahha! Not enough for me) we are just not out here asking questions and keeping up with one another. I am a bit concerned (mainly-selfishly for myself) that we might fall apart... I can't handle that folks!!! NO way NO HOW can I handle my Brain Buddies falling to the side of the tracks! I know we are all busy and doing our bestest. <BR> <BR> Any ne... Sat, 4 Jun 2011 14:21:29 EST New to Group http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x41651359 Hello, My name is Kristi. I am new to this group. I have been on Spark for a while. I was diagnosied back in Sept of 2010 with Chiari Malformation I. I went to New York in Jan 2011 to see a doctor up there and make sure that this is what I really had wrong. I was told by the doctors in New York that yes I did have it, so on April 5, 2011 I had decompression surgery with a dura plasty surgery. I am about 80% better, so I am doing good. I have gained about 10 pounds since last Feb 2010. I have ... Thu, 5 May 2011 19:02:37 EST feeling set back 5 yrs http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x40215250 I am at a point where I am not feeling sorry for myself, but at the same time feel sorry for my husband. We have been together for also 10 yrs. <BR> When we met I was still teaching, has recently been divorced and did not know that amount of damage that I has sustained from my ex husband in regarding my brain. <BR> It took the dr's five years to finally get all the pieces of the puzzle together. Then I finally, learned how to "cope" with memory issues, the quick here then gone forever, though... Sun, 27 Feb 2011 21:34:05 EST Shamrock Marathon/Team Tourettes http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x39913085 My children and I are signed up under Team Tourettes to signed up to run for the Team during the weekend for the Shamrock Marathon in March. My son and I are running the Townehome bank 8K and my daughter is doing the Operation Smile Final Mile for kids. My son was diagnosed with Tourette's almost 5 years ago and is doing great with it. We also have a donation page for anyone that would like to donate to Tourette Syndrome Association for the race. We have a goal of $1000 that we are greatl... Mon, 14 Feb 2011 13:12:50 EST New member in group http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x39888580 My husband was diagnosed with Alzheimer's about 1 year ago and that has been stressful for me. <BR> <BR> I recently have been seeing a neurologist for various symptoms the orthopedic doctor said were probably neurologic: Headaches, blurry and double vision, facial pains, etc. The neurologist sent me for MRA, MRI and two blood tests to rule out myasthenia gravis, all of which were negative. He did prescribe about 5 or 6 different medications, 4 of which I am continuing on. Mestinon which ... Sun, 13 Feb 2011 11:37:53 EST 1 year "anniversary" of DH's stroke http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x39158071 It has been a year and 3 days. A year full of anguish, desperation, sorrow, adjustment (?) and hope. Hope that things will get better for DH, hope that he will accept his condition and hope that we can live with the changes. <BR> <BR> We are all still trying to figure out how to live with DH's disability. Live with the pain that every day brings when things are still the same. It's so hard to see this man, husband and father be just a shell of himself. The one that took care of things like t... Fri, 14 Jan 2011 13:03:37 EST New: Meningioma, monocular vision & epilepsy. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x38675481 Just a quick hello! I've struggled with weight most of my life, but was quite athletic when younger. The past year I packed on 70 pounds while believing I had MS. I actually had a skull base meningioma, which was resected this fall. Recovery is slow but sure. I also now have epilepsy, and between the meds & healing, am really struggling with fatigue. Additionally, I lost all vision in my right eye, so am adjusting to the impact on balance & coordination. <BR> <BR> I'm also a mom to a yo... Mon, 27 Dec 2010 12:00:59 EST HOLIDAY'S A PLENTY! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x38411097 Hi Everyone! <BR> As this year comes to a close, I wanted to check in and take a few moments to say hello! <BR> Hope everyone is doing great! This year has been filled with ups/downs and a few more downs... <BR> <BR> Dear old friends have recently lost family members... both my parents have been gone a long time... But it still hurts. I grieve for my friends. <BR> <BR> Both of my daughters have had wonderful pregnancies this year--one is still waiting (grin). We also were blessed w... Fri, 10 Dec 2010 21:41:13 EST NOVEMBER 2010 http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x37944104 Rather than a 'get up-n-go' type zippy note to all, I am going to 'get real' today. <BR> <BR> I am worn. Torn. <BR> Too many times in my day people tell me to 'hang on'. Stay Strong. Pray harder. Give it time... <BR> <BR> So today, in the midst of a grey, foggy, waterlogged mid-November day, I am letting off some steam. I guess I could blog this--might be better suited. I dunno... Maybe I will cut and paste it in. <BR> <BR> I am fed up with my teeny brain that forgets half what... Mon, 15 Nov 2010 14:38:16 EST pineal cyst http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x37517282 Hello <BR> I'm new. I have a non cancerous pineal cyst. Any body out there with the same thing? <BR> <BR> The only thing I know is that this condition messes with sleep patterns would like more info. Mon, 25 Oct 2010 04:06:18 EST Anyone heard of Aricept for stroke victims? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x37299224 Took my DH to the doctor yesterday and he suggests that my DH start taking Aricept ! It is a drug that is FDA approved for Alzheimers patients but not FDA approved for stroke victims. Doctor heard that it has helped some stroke victims with memory problems. <BR> He is taking 5mg daily for 30 days and if we see ANY improvement in his memory, the doctor will up the dosage until he gets to the maximum dose allowed. I tried to "google" this to see if I could find any trials or studies but could ... Wed, 13 Oct 2010 22:04:43 EST OCTOBER! A NEW CHALLENGE TO US ALL! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x37150362 <em>465</em> <BR> <BR> SAVE ME BRAIN BUDDIES! This has been a challenging time for a bunch of us, and it is normal to want to hit the 'delete' or 'retreat' or 'decline' button. Or the 'life snooze'. <BR> <BR> SO!!! A CHALLENGE IS COMING YOUR WAY!!! <BR> <BR> I challenge you to EACH post one positive every day right here under the October topic!!! I want this month to FILL UP TO THE BRIM!!! Why? Cuz I need it and I am a selfish dork. <em>33</em> <BR> <BR> SO! GET A MOVE ON BU... Wed, 6 Oct 2010 14:44:19 EST new to sparks and new to brain surgery http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x36836007 Hello. I am a 30 year old 259.8lbs man with a 10 month old daughter and an amazing wife living in beautiful british columbia (canada). <BR> about 4 months ago I woke up with my left arm and left side of my face numb. my wife finally convinced me, a couple hours later that I should go see the doctor. At that point my left leg also started going numb. the doctor, not surprisingly, assumed I was having a stroke and called a cab to take me to the hospital (because he figured it would be cheaper ... Tue, 21 Sep 2010 18:14:28 EST Multiple Brain Injuries http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x36677955 I'm Lynette, and I'm 44, weigh 263, and live in Salt Lake City with my 14 year old cat. <BR> <BR> In kindergarten we moved into a grand old Victorian mansion with a great staircase. I liked to ride down the banister. Within weeks I tried to carry something as I rode down and I fell. I started sleepwalking and had vertigo after I recovered, and there were a few hallucinations when I would get a fever, but I overcame everything but the vertigo over the years. A neurologist friend of mine told ... Tue, 14 Sep 2010 05:15:52 EST SEPTEMBER!!! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x36659687 <em>465</em> <BR> <BR> In the Pacific NW we tend to have some rain in late August and early September, then Indian Summer... AHHHH! It is my favorite season. The air is crisp, like fresh apples and the farms are full of corn mazes and pumpkin patches. My llamas begin curling up earlier in the evening and all the stuff we couldn't burn over the summer gets out of here before the heavy rains come. It is a busy time. <BR> <BR> This year has been very different for my household. Not on... Mon, 13 Sep 2010 10:42:06 EST *A*U*G*U*S*T* >>>>>WE ALL DESERVE A HUG<<<<< http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x36019842 I know I need one, and I am sending one out to each and EVERY ONE OF YOU! <BR> <BR> <em>247</em> <BR> <BR> This has been a long summer! But it hasn't... But it has... <BR> <BR> How is everyone doing? <BR> <BR> Don't forget to keep up all your GREAT WORK! <BR> <BR> <BR> <BR> Barb Thu, 12 Aug 2010 23:08:24 EST will be MIA http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x35787520 Hi Spark Team! <BR> <BR> I will be MIA for a while. I don't know how long or if I ever will be back. We have a family issue with DH that needs to be taken care off before my family falls apart. There will be a major decision on my part that I need to address. I don't want to deal with it but I can't avoid it any longer. <BR> <BR> Thanks for all your support and prayers. If it isn't too much to ask for maybe you can continue to pray for us. Mon, 2 Aug 2010 11:28:50 EST Chiari Survior-New to Group http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x35582423 Hello, My name is Hannah. I am 26 years old and have survived with Chiari for over 26 years. It wasn't until I was 15 however that my mom knew what was wrong with me. I then had surgery 5 months later on February 11, 200. My doctor was AMAZING. I am one of the few lucky ones who haven't had to had a repeat surgery. The doctor took out some of my skull and first vertebrate giving my brain breathing room. I lost a lot of weight right before I found out what was wrong with me. The doctor said I ... Fri, 23 Jul 2010 07:16:22 EST HEY! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x35581497 Hi! My name is Paige Elise and I have Tourette's Syndrome & Obsessive Compulsive Disorder. <BR> The medication I have been taking for about 5 years has caused me to gain about 100lbs that I am obviously trying to get rid of! <BR> I love making new friends so add me please! <BR> :) Fri, 23 Jul 2010 04:36:16 EST Money and STRESS!!!!! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x35480294 I was looking at another topic and thought... hum... how is everyone ELSE doing with this blasted and wasted economy? <BR> <BR> Myself, UGH. I have been POOR. Was RAISED POOR. Had my kids and was POOR. Then I met a man with a similar feeling of savings, as I had---I have always been thrifty--but was married for 16 yrs to a 'debtor' (a person who is addicted to signing his name on credit slips). <BR> My current husband and I have had many bad times, but the ONE thing we have always do... Sun, 18 Jul 2010 15:38:58 EST Visiting a neurosurgeon http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x35389699 Hi..I had an MRI last week after having headaches and was told today they see an benign Angioma in my brain. I am scheduled to see a neurosurgeon in 2 weeks,,I am pretty scared..I have very little info but would like to join this team for some support. Tue, 13 Jul 2010 19:37:49 EST JULY BRINGS THE HEAT AND A LOT OF STUFF GOING ON!! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x35279021 ********************* <em>67</em> ********************* <BR> <BR> SIZZZZZZZZLLLLLLLLLLE!!!!!!!!!!!! <BR> <BR> WOW. Last week we were wishing for more pellets for the stove! Today the AC will run like crazy! <BR> <BR> How are YOU holding up in the HEAT!?! Are you hydrating yourself well and doing your workouts either EARLY or LATE or in an AC area? <BR> <BR> I am still swamped with the FINAL (thank goodness) shower for my daughter. Thank goodness the heat is supposed to be lower th... Thu, 8 Jul 2010 12:07:42 EST June brings _____! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x34602811 For myself, June brings soggy pastures and wild iris. To sheer early (the llamas) or to wait? And this year a round of PARTIES. <em>236</em> <BR> <BR> My daughter is due at the end of August, as are two of her other sisters-in-law (well, let's just say we have the summer covered!). So, the first party is next weekend. Two weeks after that is another and then about a month goes by and there is one last one! She did not have any true bridal shower when she got married (out of state) so... Sat, 5 Jun 2010 09:50:14 EST Gamma Knife vs. surgery http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x34478515 I was just curious to see if anyone has ever had a brain tumor and was given the option for the gamma knife procedure? What was it like? How long did it take? Was it your choice or the recommendation of your doctor? What are the risks involved? How long until you started feeling better? <BR> Anyone have surgery to remove a brain tumor? What was that like? How did you feel after? How long did it take to get back on your feet? Was anything lost (sensation, hearing, etc.)? <BR> The reason I am a... Sun, 30 May 2010 18:29:34 EST How is everyone today? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x34359426 I was just wondering how everyone is doing today? Hope you all have a great day. Mon, 24 May 2010 19:38:03 EST Guess what? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x34272961 I am so happy and nervous. DH is cutting grass on the riding lawn mower! I am keeping an eye on him but so far so good. <BR> <BR> I had to tell my friends here on spark. <BR> <BR> <em>224</em> <em>334</em> <em>213</em> Thu, 20 May 2010 14:13:57 EST deleted http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x34206544 deleted Mon, 17 May 2010 17:36:52 EST MAY IS HALF OVER AND I FORGOT TO CHECK IN W/ Y'ALL http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x34116655 Hey there Brain Buddies. I am so sorry--I forgot all about sending out this message to my Brain Buddies Pals. Thank you SDANLSON for reminding me!!!!! <em>213</em> <BR> <BR> How are we doing? I am eeking out more workout time, but still no magic loss of weight (however I am stronger--I can tell!). How about the rest of us???? <BR> <BR> Emotionally, and physically, and brain wise, not so hot. I am losing chunks of time--big ones. Not passing out or anything, but BIG sections of t... Thu, 13 May 2010 13:50:53 EST New to site http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x33981254 Hello all! <BR> I am new to the group and web site. <BR> Since I have no pituitary gland I am now on a LOT of different medications. <BR> I more than tripled my weight, topping out at well over 450 pounds. <BR> It is a struggle everyday to lose weight! <BR> I've made a good friend, Richard Simmons. He's helped me loose about 100 pounds. But I'm needing more help. That's why I am on here now! <BR> Also, in 1998 (5 years after my first surgery) I had a second surgery - the tumor had came b... Fri, 7 May 2010 13:44:34 EST Can anyone recommend a good book http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x33761450 Can anyone recommend a good book about strokes, recovery and anything else that is important to know and that is also easy to understand? <BR> <BR> I got some papers from the hospital back int he day when DH was still there but I would like something that is not quiet so scientific. One you don't have to have a medical degree to understand. <BR> <BR> Thanks. Wed, 28 Apr 2010 11:00:05 EST Need your opinion / input please. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x33163992 I will try to make my long story as short as I can. My DH had a stroke last April, was told on a scale from 1-10 it was a 7. Pretty bad. Anyway, his friends and their wives were great the first few months, visiting him at the hospital and then at rehab. They only came to our house once to see him and that was LAST JUNE when he first came home from rehab! <BR> They have not called, sent a card or email since last June. We did not even get a Christmas card from any of them. 9 months of nothing.... Fri, 2 Apr 2010 22:08:38 EST New Member dealing with Acoustic Neuroma http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x33142190 Hi, I am new to this group and to Spark People. I am on a journey to get healthy and loose weight. Since my surgery I have kind of lived in my own world and now I am trying to get out and make changes. Thu, 1 Apr 2010 22:41:23 EST Acoustic Neuroma Surgery http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x33141957 Is any one dealing with all the side effects of this type of brain tumor? I had my surgery in 2000 for a 4.5 Acoustic Neuroma. They did not get all of it and it started growing rapidly and I had radial surgery. I am deaf in the right ear and HOL in the left already. My right eye sees at 20/400 and balance issues and headaches are daily. They also think I had a post oppertive stroke. I have just stayed at home for the most part and now I am trying to mix with others again, lead a healthy life... Thu, 1 Apr 2010 22:32:27 EST What do YOU have planned for April? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x33121241 Well, as many of you know--I missed updating March. March is a very tough month for me--I think I will now go to an 11 month calendar and Miss March altogether! <em>198</em> I can do that--right? <BR> <BR> SO! April. RAIN and Daffodowndillies (if you are from the Tacoma, WA area you understand me). There is a huge festival that kicks off the 'social season' (ahhahahahahahahahahhhaha-in Tacoma?) every year. Oh get over it Barb, it is the start of summer countdown! hahahha <BR> <B... Thu, 1 Apr 2010 07:05:47 EST new member with MS http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x32647126 Hello, <BR> I used to be a ballet dancer, and now I have MS. Multiple sclerosis has a lot of cognitive problems as well...any one like me? <em>212</em> Fri, 12 Mar 2010 16:57:11 EST Hi - Newbie With A VERY OverActive Pituitary Gland http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x32566519 Hi there, <BR> <BR> Im from England and thought your group was about what I'm looking for! <BR> <BR> Not only am I horribly overweight, but I also have an over-active Pituitary Gland - actually, when I say 'over-active' I mean it's at Olympian Medal standards and I am seriously thinking of entering it into the 2012 competitions... <BR> <BR> Dont know if you guys know what it is - but its a powerful litle sucker for being the size of a small pea. Its in the centre of the brain and Ive decid... Tue, 9 Mar 2010 18:42:32 EST Brain Cyst possible Cancer http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x32281401 Hi everyone! I found out on Monday that I have a cyst in the brain via CT Scan. I saw it today via MRI Scan. It has a black circle in one image, and a white circle in another image. I just don't know what to do about this. Any advice would really help. <BR> <BR> Alia Fri, 26 Feb 2010 23:33:20 EST FEBRUARY -- MORE THAN CHOCOLATE HEARTS AND FLOWERS http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x31682662 Hello everyone! Well, the month of January is gone. I am of the mindset that it is a good thing! <BR> <BR> How are we all doing? There are some days that I get nothing done in my 'health stuff' but my water drank. Then there are days that I go and scoot myself closer to a healthy me!!! I like those days much better. <BR> <BR> May we all have a HEALTHY HEART HOLIDAY! And a FULL month of BETTER DAYS! <BR> <BR> HUGS TO ALL! <BR> <BR> <em>306</em> Thu, 4 Feb 2010 08:09:57 EST Meningioma Tumor http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x31600389 Hi folks, <BR> I have been on and off Spark People for probably 5 years now. I orinally was on it to lose maybe a few lbs , and I loved that when I used this system it worked. I also was a much healthier person to begin w/ back then:) <BR> Since then I have attempted to log on and get started again, but after a week or so I give up. Not because I don't want to be here, but that 'life' keeps getting in the way and I have less and less time to think about being fit , or in worse shape than I us... Mon, 1 Feb 2010 13:51:55 EST How many of you had a stroke? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x31405993 I am just wondering and trying to get as much info as I can. <BR> <BR> How many of you had a stroke and what was your recovery like? How much did you recover? How long was your recovery? Do you think that your family chose the right rehab facility? How did you feel during your recovery? <BR> <BR> Thank you for any info you can give me. It's much appreciated! Mon, 25 Jan 2010 17:13:04 EST anyone have a cavernous malformation? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x31380546 Hello all! <BR> I was recently diagnosed with a cavernous malformation on thanksgiving of '09. There doesn't seem to be anything they can do about something like this and MRI's every 6 months but thats about it! They don't like to do surgery as it is very risky and sticking sharp objects into my brain stem is not the first thing they want to do. I was wondering if anyone has this condition or knows of anyone who has it? <BR> I am getting married in 4 months and would like to have kids not to... Sun, 24 Jan 2010 21:17:23 EST Trying to survive my DH's stroke http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x31299115 Hi, my DH (he is only 40 years old) just had a severe stroke 11 days ago. I was the one that was there with him when it happened and I am the one that called 911. I was told that he would have died within minutes if I hadn't gotten help when I did. It's been 11 days but they seem like yesterday but also like it just happened. We don't know what caused the stroke, even with all the testing the doctor doesn't know. <BR> Two days after the stroke I was told there was no hope of survival. When t... Thu, 21 Jan 2010 19:17:37 EST I think I can, I think I can, I think I can .... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x30968885 Ummm well, I've joined ... & figured my way round some of the website, and I'm nervous, and excited and .... I live in New Zealand. <BR> I have had Coeliac Disease since I was very young, and never really had issue with extra weight. I was always very busy, and ate quite well. I must have had a good metabolism as I could eat pretty much whatever I liked. <BR> I was diagnosed with acromegaly a few years ago, and had surgery and radio-surgery for a pituatary tumour, and since then have found ... Mon, 11 Jan 2010 04:40:50 EST 'IT'S A NEW DAY, A NEW DAWN, & I AM FEELIN' FINE" http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x30683885 <em>412</em> <BR> <BR> TICK TOCK... WELCOME TO 2010!!!! <BR> <BR> OK! I do not normally put out 'resolutions'. I find I am NOT good with them... I am however going to give myself a 4 month challenge, at a time... <BR> My weight has been stalled--and I didn't really 'step up the workouts' like I had wanted to before the holiday... so. I am doing that now. I am going to UP my yearly SparkAmerica Minutes -- this is sort of silly, but an easy to make goal since I went way over last year... Sat, 2 Jan 2010 12:04:45 EST New With Chiari Malformation and PTC http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x30681093 I have had the PTC officially 11 years, but tests say unofficially almost 20. The Chiari I was diagnosed with 2 years ago when my Shunt failed and a second opinion was ordered. <BR> <BR> Losing weight is really challenging when even walking is a challenge. But I have a Husband and a 7 year old that I homeschool that need a wife and a mom. They can't very well have a mom who can't function, so I need to get as healthy as I can under the circumstances. Sat, 2 Jan 2010 10:45:07 EST Staying Centered when Off Balance http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x30529233 Hi there! <BR> This post is kind of a play on words. <em>100</em> <BR> <BR> By "centered" I mean staying out of the "hot" zone as much as possible. The hot zone being the things that lead to huge frustrations, melt downs and render me totally unable to function. <BR> <BR> By "Off Balance" I am referring to the days that are the most challenging regarding physical balance, dizziness, motor skills off, memory gone with the wind.... You get my drift if you're on this team I'm thinking. <BR>... Sun, 27 Dec 2009 02:45:03 EST Simplicity http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x30379438 I've been a sparkler for years and took a break. I'm working on some new goals and back. While I'm not looking for alot of "welcome back" responses, I would love it if anyone knows if there is a way to sort of create what and how much a person views when they log in. <BR> Is there anyway to get away from all of the visual stimuli on this website on every single page? <BR> <BR> I have a number of neuro types of conditions and brain deterioration. While I love alot of the content and tools he... Thu, 17 Dec 2009 06:43:34 EST What to do about memory lapses? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x30192869 I have a problem with memory lapses and find it quite embarrassing. Almost to the point that I don't want to talk to anyone or engage in conversations with lots of people. What do you do when you have a memory lapse? What do you say to get back into the action again? <BR> Mon, 7 Dec 2009 12:27:06 EST DECEMBER 2009, THE GOOD... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x30095415 OK. I suppose I should do this in 'blog form' but I honestly can't remember how right now... I posted the 'good' so I am going to work at focusing on that...right now I am anything but... <BR> <BR> The good... Got my barn chores done before the phone started ringing off the hook with bad news. Glory Maye, my little girl llama had lots of kisses for me this morning, and I am so glad. She is such a blessing. <BR> Next... The sun is shining. It is VERY cold outside, but the sun is shin... Wed, 2 Dec 2009 15:33:47 EST Mid-way through November... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x29796856 Well. I went to my daughters to paint-clean-clean and paint. Oh, and clean. <BR> We ate too much sugar.... I got a zit! <em>243</em> <BR> <BR> <BR> hahhahhaah! Serves me right! <BR> <BR> I am home now, and one of my llamas is ill, so I will be spending extra time with her. But, I have lots to keep me active, as there are 6 others waiting for their time with the LlamaMama! <BR> <BR> As I said, my eating has been horrid. However--I have been VERY active. Nothing like deep cle... Tue, 17 Nov 2009 09:45:26 EST hi everyone! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x29582467 my name is eileen. i am a 52 year old 3 time stroke survivor. my last bleed was when i was 27, the first when i was 14. <BR> cat scan revealed a AVM, so they thought at the time. but no one could explain why it was only partially leaking and why i had not had a full blown rupture. location was too "eloquent" as they said, so its not repairable. i attribute this miracle as a gift from the hand of God. <BR> with baby #2, now in a high risk group, i had a focal seizure and that put me in a hos... Sat, 7 Nov 2009 07:01:33 EST NOVEMBER! GET A JUMP ON YOUR RESOLUTIONS NOW!!! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x29488946 Does anyone remember the old Van Halen song 'JUMP'? <BR> I have it spinning through my head, with memories of little children jumping with me in my teeeny tiny living room... And giggles! <BR> <BR> I hate setting my 'resolutions' in January. I feel like that from October through December are some of the WORST times for gaining weight, and getting down. I used to start in September--but (HEY! I have a brain injury you know!ahahahah) I am here on November 3rd to get it going!!! I hope y... Tue, 3 Nov 2009 07:39:04 EST Just a newsy bit'o stuff... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x28944211 Hi everyone, <BR> <BR> One funny thing that happened on my way to SPARKS was that I found out--totally by happenstance, that one of my dearest (sounds so much better than oldest) friends, was on here too! How Weird is that, since she lives like a kagillion miles from me... <BR> <BR> If you go to her spark page, she has a photo over looking her lovely bay... or lagoon. Well, it fought back last week. You see, my darlin' girl PammiePoo, lives in American Samoa. Her lagoon has changed. ... Thu, 8 Oct 2009 13:45:18 EST OCTOBER!!!! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x28908209 <em>431</em> <BR> <BR> OK EVERYONE!!! CONFESSION IS GOOD FOR THE HIPS... <BR> <BR> Peanut Butter Cups. YEP. Others were weaknesses as well, and I really never ate them at other times, but at Halloween time, I just really went GaGa over these. <BR> I would begin buying the big bags, and um... go through that one, and another, and another... as the month went on. NOT GOOD! <BR> <BR> I have evolved over the years. I don't buy these any more... I get low sugar gummies in little bags,... Tue, 6 Oct 2009 22:22:41 EST Hi to all http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x28563656 Hi all.... my name is Robin and I look forward to chatting with you all. I was lucky enough to have had my brain aneurysm found before rupture and had it fixed! LIFE is great with a small exception of the weight gain I have now hanging around. :o) I wish you all great days ahead. Mon, 21 Sep 2009 17:44:29 EST September always feels FRESH to me! How about YOU? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x28214293 Between new pencils and paper and crisp apples right from the tree (can you tell I am a PAC NW GAL?) I love September. January is gloomy here, and fickle... so I always look on Sept. as the new beginning. <BR> <BR> How is everyone doing? Currently, I am still 'steady' at 15 lbs. gone. However, two new meds have been added--both which can cause weight gain, so I am pleased! I guess... Yes I am. <BR> <BR> Lots going on here. Seems like yesterday was May. <BR> How is everyone? <BR... Sun, 6 Sep 2009 11:34:34 EST It is August and it is HOT... How are U? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x27431731 Hi Everyone! <BR> <BR> Welcome to our new members, and I am thankful for all of us. <BR> <BR> Things for me right now are somewhat topsy turvy. <BR> <BR> Let's check in and see how we are all doing? OK? <BR> <BR> Barb Sun, 2 Aug 2009 21:55:25 EST Grey Ribbon Crusade http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x26817416 I know the grey ribbon is for brain tumors, but I thought this might be of interest to all of us here. <BR> <BR> The Grey Ribbon Crusade is a group of more than 50 brain tumor charities (including us - the Musella Foundation) working together to speed up the search for the cure of brain tumors.. <BR> <BR> The founder of google wants to give away a lot of money. He is using a poll to see what the public thinks is the most worthy cause to give it to. Working alone, none of the brain tumor or... Mon, 6 Jul 2009 21:07:05 EST JULY! WHAT DOES THIS MEAN FOR YOU? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x26728180 <em>232</em> <BR> <BR> What does the month of July bring or hold for you? Are you looking forward to vacation? Have you stepped up your workouts since it is nice out? Do you wish for snow (hahhhahahha)? <BR> <BR> My personal plans for July include having my granddaughter here for about a week (oh, yes, Mom is coming too, but does she count? <em>100</em> <BR> <BR> I will continue on my stamina building plan. I continue to find old clothes that fit me again... This is a GOOD thing! ... Thu, 2 Jul 2009 12:51:28 EST hi i am new here, from england http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x26657762 hi. i am linda i am from england i had an accident 25 years ago wich caused a blood clot on my brain. it was removed but to this day i still can`nt walk unaided , i need a wheelchair out doors and my left arm/hand is very weak Mon, 29 Jun 2009 16:54:55 EST I'm new/Anyone else with a Chiari Malformation? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x26505630 I can't remember if I posted in here or not. I guess that's one of the reasons I'm in the Brain Buddies group, huh? <em>20</em> <BR> <BR> My name is Diane. I'm a SAHM to two little girls (ages nearly 2 y.o. and nearly 4 y.o.). I was diagnosed with a Chiari Malformation about a month ago. My main symptoms are headache and fatigue. I'm ruminating over whether or not I should have surgery. <BR> <BR> My symptoms have made exercise very difficult for me and when I'm not doing regular cardi... Mon, 22 Jun 2009 19:43:12 EST TBI and energy level http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x26479179 I have been working out for 2 weeks now. I know with the TBI I have been tired and always took a daily nap or 2. I thought with working out I would (should?) have more energy. On days I work out I'm do-less. I only get done what needs done and I go to bed early. I am more alert in the morning, after noon I have lots of trouble focusing and in the evening I have reached vegetable state. Has anyone else noticed that there is no extra energy after working out? Sun, 21 Jun 2009 19:41:11 EST Burning Sensations in your head http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x26288322 Has anyone else had burning sensations in your head? Mine would build up and go away. Now it burns a straight burn without change degrees. Sat, 13 Jun 2009 13:21:54 EST Hello ---TBI here http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x26279611 Hello team mates <BR> I have a TBI I suffered in a vehicle accident in May 2007. I want to thank everyone who has posted their very personal stories and feelings. I now know I am not alone with my condition and what I am left with. I have more questions than answers and can't find a doctor to give me answers. I have thought I was nuts. I do feel relief that I have fellowship here. <BR> Thanks again Fri, 12 Jun 2009 23:54:54 EST JUNE IS HERE!!! How is everyone doing???? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x26035942 How is it going? <BR> Anyone dealing with extra health concerns or fears? <BR> Anyone have a big SUMMER plan? <BR> <BR> I hope folks are seeing progress. I am learning my progress will be SLOW but at least I am more <BR> STRONG, TONED, STAMINA FILLED, A LITTLE LIGHTER, AND FEEL GOOD ABOUT SOME OF MY ACCOMPLISHMENTS. <BR> <BR> HUGS TO ALL BRAIN BUDDIES AND BEYOND! <BR> <BR> Barb <em>252</em> Wed, 3 Jun 2009 11:05:31 EST MAY>>>JUNE IS NEARLY HERE! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x25783677 OK! I just spelled MAY wrong (I caught it though!) and it is nearly the end of that month, going into next month and I have been <em>102</em> at the wheel. Lots going on though, so here I am, late but here! hahahhaha <BR> <BR> Did anyone in our team get to the convention? I would have loved to--and was down there the following week, but um...no one was still there (grin). <BR> <BR> Today is my <em>503</em> <BR> <BR> I don't know how to put that onto my sparkpage, but maybe I wi... Sun, 24 May 2009 19:38:35 EST R THERE OTHERS LIKE ME? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x24439579 HELLO MY NAME IS PAM. I HAVE BEEN HAVING NUERO PROBLEMS FOR SOME TIME. THE DOCTORS HAVE PLACED ME IN THE MIGRAINE WITH COMPLICATIONS GROUP. LIFE ON SOME OF THE DAYS IS JUST TO HARD! THEN, SOME DAYS I THINK I'm NOT SICK AT ALL. I HAVE A CYST, THE SIZE OF A QUARTER, IN MY BRAIN THAT THE DOCTORS WILL NOT EVEN THINK TO BE A PROBLEM. I HAVE PAIN A LOT! MIGRAINES SOMETIMES. AND MY DOCTOR WOULD LIKE ME TO BE ABLE TO TALK TO PEOPLE WITH THE SAME THING. I HAD CHIARI MALFORMATION SURGERY ON MY BRA... Sat, 4 Apr 2009 23:54:10 EST APRIL IS HERE! FINALLY! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x24435048 MAY THE <em>67</em> SHINE ON YOU MORE THAN THE <em>27</em> FALLS! <BR> <BR> ARE WE ALL KEEPING UP OUR <em>216</em> WORKOUTS OR ARE WE BEING <em>102</em> LITTLE BABES? <BR> <BR> REMEMBER TO TRACK YOUR GRATITUDE AND LET US KNOW ANY MORE GOALS YOU MEET, WANT TO MEET, OR ARE CLOSE TO MEETING!!! <BR> <BR> <em>252</em> <BR> <BR> YOU GUYS ROCK!!!!! Sat, 4 Apr 2009 20:35:54 EST Aneurysm, Brain Cancer and more http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x24355464 My name is Katherine and I had a brain aneurysm 2/27/07 (isn't that a nice number to remember?). It was clipped and I live on. I experienced the world tilting to the side, brain fog, being lost, inability to say words I wanted to etc. I'm "all better now", yet there are times still that it is hard to have a timeline in my head of the past. <BR> <BR> I'm still working on other health issues - low thyroid and possible hemochromatosis. <BR> <BR> I love to walk, live in the Seattle area, ... Thu, 2 Apr 2009 02:11:05 EST I just can't believe this!!!!!! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x24349823 I just read this SP article and it makes me scratch my head and go hmmmm, see what you guys think. Be sure to get your points for reading this article! <BR> <link>www.sparkpeople.com/resource/motivat<BR>ion_articles.asp?id=402 </link> Wed, 1 Apr 2009 21:45:31 EST Fitness Maps http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x23921371 SP is at it again!! They've got another new feature called fitness maps. <BR> <BR> "We're very happy to announce Fitness Maps. This feature allows you to measure, save, and see how far you walk, run, or bike when exercising outdoors. What we love about this feature is that its very easy to use. Just: <BR> 1) Go to the Fitness Maps page (it is located under Healthy Lifestyle/Fitness, in the center of the page) <BR> 2) Enter the starting address <BR> 3) Click points on the map to draw your ... Wed, 18 Mar 2009 18:46:42 EST Another NEW feature - Friend Feed http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x23773890 SP has come out with another new feature. Not sure if this will help us or just confuse us more!! LOL <BR> <BR> "Next Monday, March 16, we will launch a new feature called Friend Feed. This will enable you to see the community activities of all your mutual SparkPeople friends on one page." <BR> <BR> <BR> If you haven't already heard about this, follow the link below for all the details. <BR> <BR> You might want to change your privacy settings and there is also a link that shows you who... Fri, 13 Mar 2009 18:45:06 EST New team page features!! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x23680609 In case you haven't seen them yet, there has been some big changes made to our team page. Check out our team page and this link will explain what has been changed. <BR> <BR> There are a lot of really cool changes for those of us (me) who have a hard time remembering what to do next, LOL. I love the idea that the blogs are now at the top! <BR> <BR> <BR> <link>www.sparkpeople.com/mypage_public_jo<BR>urnal_individual.asp?blog_id=1866147 </link> Tue, 10 Mar 2009 20:26:55 EST Recap of FEB Goals and stuff for March http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x23444014 Morning All! <BR> <BR> OK...below are my FEB goals and how I did. <BR> <BR> ***My goal this month is to increase my time on the elliptical from 5-6 minutes 3 x per week to 10 min 3x per week. I have upped my cardio challenge too, and doing pretty well with that. <BR> I am also working (thanks team members!) on having a GREAT START of the DAY ATTITUDE! What an easy thing to think of and it really DOES make a difference. <BR> <BR> --My elliptical time has gone from 6 minutes 3 times pe... Tue, 3 Mar 2009 13:39:11 EST Hello http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x23412481 Hi there - I'm from the UK & I'm new to the team but not new to SP - been sticking to meal plans (well not exactly but same calories!) & managed to lose some weight recently. I've just been diagnosed with an Arnold Chiari I malformation. At the moment I'm waiting to talk to the neurosurgeon but not sure what he'll want to do yet. <BR> <BR> I can't do any jumping about type exercise or exert myself much at the moment & feel a bit wonky - even yoga seems to be causing prblems, but am trying t... Mon, 2 Mar 2009 16:35:03 EST Mega March Madness (SP Style!) http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x23362430 So??? What are folks plans and hopes for the month of March? <BR> <BR> Honestly, I haven't really thought through all mine, so I am going to stick this on here and hope someone gives me a silent PUSH to put it on paper! <BR> <BR> <em>249</em> Sun, 1 Mar 2009 10:32:44 EST I am back after more then 3 months http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x23224646 I had my brain surgery 13 November and finally got to go back to work 2 weeks ago. I had to have speech therapy, had stomach tube for a month. I am basically doing good besides dealing with a few things like my right eye which may come back some. My mouth gets very dry I drink water all the time, even waking up every few hours any ideas are welcome. I am living and have lost 25 lbs. Tue, 24 Feb 2009 19:59:27 EST Mixin' it UP! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x23208432 OK. I have huddled (URG) at 176 for MONTHS. SO! A couple of days ago, I spent some time on here (SP) and did some changing up... I switched my ticker (that had not moved in MONTHS, did I mention that?) from total lbs to pounds lost. I also switched my icon, to a star (because dang it I SO deserve it). <BR> I switched my photo of Lil' Dude (my young male llama, who is actually nearly full grown now) to um...ME. It is not a new photo (here is my honesty) and I use the same one everywher... Tue, 24 Feb 2009 11:16:35 EST Poor balance exercise ideas http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x23084193 Any ideas for more than walking and "housework" for getting fit. <BR> I have trouble going "down" curbs & steps; picking things up off the floor; and my judgment is bad, making on & off treadmill very alkward. <BR> Some days all I get is walking "to & from", and climbing in & out of my truck... Fri, 20 Feb 2009 09:02:51 EST Late FEB lag... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x23059354 Watching the news this morning, gave me a chance to ponder a bit... GMA has been doing that fitness group (OK, can I just say Diane Sawyer is SO NOT in need of a makeover--she is like 65!! I wish I looked like that! envy... back to my topic ;0) <BR> <BR> They spoke with Cheryl Richardson, the 'Live your best Life' coach. Mainly they spoke of taking on Itty Bitty steps to gain - regain control over life that gets in the way of our health. I really like this approach so much. <BR> I went ... Thu, 19 Feb 2009 12:19:50 EST Finding SparkPeople overwhelming http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x22898223 I have been on SparkPeople for about a month now. At first I didn't have time because I was studying for an exam. Then it took me ages to find my way around. I find that there's a lot of interesting stuff here, but it's too much. I don't have time for it all. I've got limited resources and other more important things. <BR> <BR> I also find that what are 'baby steps' for other people are mountain-climbing for me. Like the 'fast breaks' for the first 2 weeks. Well, after four weeks I still hav... Sat, 14 Feb 2009 09:51:56 EST Symptom's which hold us back from LIFE... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x22896959 OK. I just dropped a note in to another section, and mentioned the word... Sundowning... I had heard the term somewhere--can't recall (ha! me? not remember ;0(???) So, in my backwards way, I did a google on it. Not shocked, but yes, upset... It is mainly mentioned in Alzheimer's patients. Hm... maybe that is where I heard it... My grandmother had Alzheimer's, and YES (!) I am concerned about it. HA. If I have lost this much of my life to my TBI's, what else is up 'fate's sleeve'? <BR... Sat, 14 Feb 2009 08:58:35 EST New For February ..Hopes? Goals?? Dreams??? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x22506076 Remember when you were a kid in grade school and the coolest thing was to decorate a bag for your valentines? I was one of the kids (before they required every student to give every class member a card) who got very few cards...but those I got were treasures to me. And I worked very hard at making them for my classmates. My first crush...Randy W. Oh my... <em>198</em> Dreamy (grin). <BR> <BR> Now I love Valentines Day. I have collected hearts forever... I don't go for extravagent, ... Mon, 2 Feb 2009 10:45:17 EST Howdy!! Good news!! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x22042898 hiya folks! I'm still pretty under the weather... my sleep's messed up again, I'm often physically too tired to do much of anything, my ataxia's terrible (I've hadta start drinking from toddler-type cups so I don't spill or worry about breaking a glass if I drop it...and I don't use sharp knives anymore...) my memory's often a write-off and my balance often takes mini-vacations... =) <BR> but the good news is... <BR> <BR> MY TUMOR'S FINALLY STARTED SHRINKING!! from may to October, there was ... Mon, 19 Jan 2009 16:36:02 EST Do you have any GOALS you are working on for 2009? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x21583199 Hey all! <BR> I am not into 'resolutions' but do find that setting goals is good for me (I call it 'meet it or beat it') so I will start out with just a couple for my first quarter of 2009--I personally like to break the year into quarters... I don't know why! But I do. Maybe it has to do with being in the school system for so many years...I dunno! <BR> <BR> Barb's Goals for Jan-Apr 2009 <BR> <BR> A) Log in to here EVERY OTHER DAY AT THE LEAST! <BR> B) Track my work in my calendar..... Wed, 7 Jan 2009 12:53:06 EST Newbie seeking team mates. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x21423207 I HI. <BR> I joined Spark 2 years ago. <BR> Then my world was turned up side down, and I retreated to food, my comforter... <BR> I've been clumsy for years... <BR> so nothing new stood out in particular. <BR> When I feel this time, I broke 1 ankle, and sprained the other... thrillsville. <BR> By the time I finished physical therapy I had made great strides in picking up crap with my toes... alas, this was not a skill I might ever have use for outside of physical therary. <BR> My therapist re... Sat, 3 Jan 2009 15:08:05 EST Hello...I'm new here http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x21241951 I am new to the Spark website and this group. I am living with TBI that occurred in 1994 due to a car accident. I hope to find some new friends and support here. It was great to find a group with individuals who are experiencing the same issues I deal with every day...It sometimes seems as if I'm the only person whose life was completely altered by someone else (running a red traffic light) Being disabled has enabled me to grow in many ways and I am grateful for a group like this as I conti... Mon, 29 Dec 2008 00:55:33 EST Hi http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x21239067 I've been with Spark for quite a while but just realized there might be a site about brain illness/injury... and there is!! I have a non-operable grade II brain tumor dx 4.5 years ago. I have many symptoms and a complete life change from it but try to take positive from each day and filter out the negative (that means I want no stories about people whom you know who have died from brain tumors!)(they don't help). My husband, mother and father and step mom have been an awesome support group... Sun, 28 Dec 2008 22:16:35 EST After the Holidays! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x21195780 How was everyone's holiday? Did the one you care for enjoy it? My husband, who has Alzheimers, seemed to enjoy it. He definitely enjoyed opening his presents. Fri, 26 Dec 2008 19:43:26 EST Hello everyone http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x20938513 i am glad i found this group. I have recently been diagnosed with a brain liaison. I am having seizures, it will be good to talk to people who are going or understand what i am going through at this time. They have put me on carbamazepine <BR> and what to monitor me for the next while to see if it stops the seizures. Can anyone tell me about this drug, i have so tired since i started it and my headaches are worse then ever. Sun, 14 Dec 2008 14:37:24 EST New Here! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x20652100 Hi everyone! I am new here. I have been with SP a while now, and have recently gained back all of my weight and a few more pounds due to a lot of stress. My brother recently had a ruptured brain anurisum and is now in rehab. It has been a slow stressful process, but he seems to be doing well. Anyway, I thought this might be a good place for me since there are not many support groups where I live and sometimes I just need a place to talk about what going on. I'm not sure if this is really... Tue, 2 Dec 2008 23:31:21 EST Upcoming Holidays! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x20297566 Well, we had an early Thanksgiving last week. My daughter and her hubby were here for four lovely days (they own a pub in Atlanta, and cannot get away very often). It was short but GREAT! <BR> I will still do up a small turkey, just because we love it and it goes so far... but we had a lovely pre-dinner of roasts and many veggies and lots of love and laughs. It looks as though the actual Turkey Day will be without kids... as everyone has other places to be. That is OK, though, as there ... Tue, 18 Nov 2008 07:06:22 EST Brain Games http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x20289794 Hi everybody, <BR> <BR> On your SparkPoints page, you now have a link to play a brain game. I've played a couple and they are fun and and can be as challenging as you want. They really make you use your brain!! <BR> <BR> Check'em out, see what you think. :) <BR> <BR> Mon, 17 Nov 2008 21:17:49 EST sleep apnea http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x19780905 I had posted a while back,can't even remember what team, but anyhow, now that my John has the CPAP, the nurse couldn't understand why the Dr didn't also order the pulse ox machine. So anyhow not sure when John will get it but when he does, I do have an older one that has the heart rate to w/ it and wondered if anyone on this team could use it. Id be more than happy to send it to someone who could use it. I also have some suctioned tubing, John doesn't have his tracheostimy anymore YEA--- so a... Thu, 30 Oct 2008 08:11:36 EST New dailySpark e-mail newsletter http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x19774097 Hi everybody, wanted to pass on this info. <BR> <BR> Getting your daily dose of healthy lifestyle news just got easier. The dailySpark is excited to announce email subscriptions. Now you can be among the first to know about contests, new posts and product reviews on the dailySpark. By signing up to receive email notifications from the dailySpark, you'll never miss a motivating story by Coach Dean, one of Stepfanie's product reviews or Coach Nicole's fitness tips. <BR> Great news, isn't it? ... Wed, 29 Oct 2008 22:00:55 EST Hello - my boyfriend's story http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x19596887 My boyfriend of 15 years has not been himself for a while. It was very frustrating - like living with a stranger. I thought it was because he wasn't eating (he had been diagnosed pre-diabetic and gone on a diet). Well, about a month and a half ago, he said he started not feeling like himself. He was having anxiety attacks, and he thought it was just because he hated his new job. I started watching him when he had them, and they didn't look like any panic attack I had ever seen. I started tak... Thu, 23 Oct 2008 16:16:45 EST Let's have some fun http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x19505077 Hi everyone. <BR> <BR> We all need to laugh, so here's a fun thing to do. I read this on another team I'm on and got a great laugh out of it reading everybody's responses. <BR> <BR> <BR> What's your new name? <BR> <BR> Sometimes when you have a stressful day or week, you need some silliness to break up the day. Here is your dose of humor... <BR> <BR> Follow the instructions to find your new name. <BR> <BR> The following is excerpted from a children's book, Captain Underpants And th... Mon, 20 Oct 2008 18:09:54 EST Just found out I have acoustic neuroma brain tumor http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x19476683 I am 54 and live alone on NVA. I just found out that I I have acoustic neuroma brain tumor (which is non cancerous). I had the CAT Scan is when they noticed it and will have a MIR of the brain 28 Oct. I cried about 1 hour on Wed when I found out, now been researching info about this and the operation I will need. I am scared which is normal but taking it one day at a time. I can say at one time I would had got a qt of ice cream and ate it in one day so far I have not done that. I think... Sun, 19 Oct 2008 21:23:30 EST Upfront http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x19475787 I don't mind sharing. I am 54 years old and have been diagnosed with ADD, clinical depression, and generalized anxiety. Neurological disorders are no different than disorders elsewhere in the body. Take diabetes for example. If you had diabetes you would not get far by hoping it will just go away and you will not get far without both medical and clinical support. Discussing with others who are or have been down that same path is also quite helpful at times. My second career in nursing h... Sun, 19 Oct 2008 20:50:46 EST HELLO AND NICE TO MEET YOU http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x19474255 <em>30</em> HELLO AND I HAVE BEEN A MEMBER BUT NOT REALLY BEEN ON SPARK TO MUCH BUT I SEEN THIS GROUP AND IT REALLY INTRESTS ME ,I HAVE A SON WITH EPILEPSY HE HAS HAD IT SINCE HE WAS 2 AND HALF NOW HE IS 12,IT HAS BEEN A REALLY ROUGH LIFE FOR HIM ,BUT HE IS SUCH A GREAT KID.I HOPE TO CHAT ALOT WITH YOU GUYS <BR> THANKYOU KELLY Sun, 19 Oct 2008 19:54:39 EST Hi to all you wonderful people http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x19449656 I just joined this team but I've been reading your topics for months now. This is a great team. It's really good to know there are others out there who understand what we go through, pretty much on a daily basis. Looking forward to getting to know you and giving all the support I can. <BR> <em>213</em> Sat, 18 Oct 2008 18:08:02 EST traumatic brain injury http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x19056894 the more i investigate spark the more i find,love these sites, and all people. everyone is so helpful,supportive. im waiting for my husband to help me get my son up so am writing this quick,trying to keep an eye on John. he had a closed head injury 4/15/06, has a shunt. he was in a nursing home a little over 2 years before we were able to finally get john home thru the ohio state waiver program. i just love that child,hes such a good child. anyhow we went to the sleep apnea place and the tech... Sat, 4 Oct 2008 16:27:41 EST Coming Back to Basics http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x18565091 Hi All, <BR> <BR> I realized that I have been AVOIDING this... I am BACK! <BR> <BR> I have been fairly active, just not keeping up with the online 'stuff' well... so here I go... I have joined the group 10,000 steps--as I find I will use and wear my pedometer. My hope is that by combining all this, I will start to see a real change--which isn't happening without it. <BR> <BR> Thanks for being here... Sorry I have gotten out of touch. <BR> <BR> Wed, 17 Sep 2008 15:44:26 EST Sorry I haven't been around much... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x17465029 hey...sorry I haven't been around much lately... I'm afraid I'm having more difficulties lately. <BR> <BR> The doctor said "don't worry" about my last MRI (July 24) but I have a copy, and I can see quite clearly that there are more tumors there than there were on the April scan... I'm sorry, but that'll make anyone worry! <BR> <BR> I'm having more side effects... besides the fatigue (which isn't going away, tho I should be getting stronger post treatment, not weaker!) my left arm is being... Thu, 7 Aug 2008 14:24:31 EST Hi, I'm new and wanted to introduce myself http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x16495480 Good morning to everyone, <BR> I just found this group after looking in all the wrong places earlier. My dearest friend is the primary caregiver for her husband, who is a TBI survivor. He started off with a seizure which led to the discovery of a meningioma. Following surgery, he suffered a stroke. It has been a few years now, but we were out of touch for most of that time, so I am just now finding out about it, and I am also now living with them and assisting her in caring for him. <BR> He i... Tue, 8 Jul 2008 02:55:48 EST New here! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x16368755 Hi there, I'm new here... I've been working on trying to lose weight for the last three or four years now, but working really hard at it for the last year and a half. I have a fairly rare neurological condition called trigeminal neuralgia... it's a disorder of the 5th cranial nerve. It causes a lot of pain, and normally hits people in their 50's and 60's. I was diagnosed at the age of 28, only about three or four days after I was hit with it full force. I suffer from the atypical form, me... Thu, 3 Jul 2008 01:35:02 EST first attempt http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x16234648 I am Suzanne and I am still pretty new to Spark, so I haven't tried to post anything before. I don't know how to find the best group for me, but since I was professionally disabled by a TBI (Traumatic Brain Injury) a number of ago this might be a place to start. State run disability services were not much help over the years. I have some permanent vestibular disease, but can get around fairly well. I have a tendency to have several falls a month and have a chronic anxiety and depression p... Sat, 28 Jun 2008 18:05:50 EST Hey there, new here... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x15691638 Hi. My name is Barb, and I am a newbie to SP and this group. I am 49 and am a TBI survivor (of nearly 4 years). <BR> <BR> I deal with fatique, frustration, aphasia, headaches and lack of stamina. Up side is, I am functioning fairly well if I pace myself. I work very hard at keeping 'it' together. <BR> <BR> My first accident was when I was 'head-butted' by my daughter's horse (he thought he was a lap dog <em>2</em> <BR> <BR> Since then, I have sustained a second TBI (nearly at the... Tue, 10 Jun 2008 17:27:58 EST Neurologocal disease http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x14337999 Hello it will be nice to communicate with people with balance problems and tremors. I deal with them daily. Currently I go to a neuro center for therapy and am waiting for a brace for my back. Thu, 24 Apr 2008 17:05:20 EST what a crappy day http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x18470x13916386 after having travelled 12 hours through a blizzard and then a rainstorm, today I went to the dr and discovered that my tumour is grown again and I'm probably going to need surgery. what I don't know is how soon. <BR> *sigh* what a day. <BR> <BR> Thu, 10 Apr 2008 21:56:57 EST Different Neurological Conditions http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x18470x12275814 Welcome! The main purpose of this Forum is to teach others about our conditions, and perhaps find the similarities between them. <BR> <BR> My Condition is a primary Brain Tumour. It causes many secondary problems such as balance and vision problems, Memory Loss, Migraines and other headaches, Sleeping disorders (for example, I haven't slept in about 24 hours, and even then it wasn't GOOD sleep... so please excuse me if I'm incoherent!) and temperature sensing problems. I also think I have a ... Thu, 14 Feb 2008 12:31:01 EST