SparkPeople Ulcerative Colitis Team Messageboard Colitis sufferers discussing treatment and coping remedies for this disruptive and often painful affliction. Do exercise and weight loss aid in relief? SparkPeople Ulcerative Colitis Team Messageboard just found out i have collagenous colitis not impressed with doctor....spent two hours waiting to get in to see the doc and when I finally went face to face with him all he did was tell me what it was I had and then told me to follow him out to the nurses desk where he asked her for a prescription pad...he wrote me out a prescription and while he did that..she handed me my follow up appt. for next year. I've never felt so rushed. I had to go home and got on the internet to even find out what it was that I had. ! So now I wait ti... Mon, 6 Feb 2017 13:51:07 EST Guidance Hello, <BR> I don't personally have GI issues but my husband does. He has gastritis and colitis. I often struggle cooking for him because he is very picky (rightly so) and everything bothers him. He is also allergic to oranges. (as well as the preservative citric acid-derived from oranges, which is used as a preservative in most foods!!) I have to tell is not listed on the bottle BUT it is in laundry detergent as well. ((TIDE))(we found out why he was itching and blistering everyti... Sat, 14 Jan 2017 10:08:47 EST Flareup of UC I also have migraines. There has been so much negative attention about taking prescribed pain killers that I tried using aspirin to manage the chronic migraines. As a result my hiatus hernia flared up and I am having constant bouts of running to the potty. I'm basically tied to the house. It's been years since my UC has been this active. Any suggestions to get it back under control? I've upped my ASACOL. Should I go off milk and dairy products? Tue, 25 Oct 2016 10:12:18 EST New to team, confused as Hell about my diet! Hi Everyone! My UC has been in remission for 4 years but decided to disrupt my life again last weekend. I joined SP to eat healthier and lose weight, but come to find out, the fruits, veggies, and whole grains I was eating are possibly responsible for my latest flare up. I'm looking for help and support. Tue, 26 May 2015 21:02:35 EST World IBD Day Hi everyone! I want to wish you all a happy World IBD Day!! I just found out that May 19 is a day to raise awareness for UC and Crohn's. I hope you are wearing purple to support the cause! Visit to find events in your area that are happening today! <BR> <BR> When I last posted on the message boards here, I was having trouble sleeping due to having to go to the bathroom any time I rolled onto my sides. I am happy to report that I have been almost entirely symptom-fr... Mon, 19 May 2014 14:46:28 EST Is this forum active? I am just wondering how active this forum is, I don't see hardly anything in 2013. I am hoping it is! Mon, 30 Dec 2013 19:31:39 EST Heard of or tried the new Low-FODMAP diet plan? After my latest colonoscopy, my doctor handed me a sheet of paper on the low-FODMAP diet, and said I should try this diet. I searched the internet and discovered it is a plan to manage IBS, and other digestive disorders. <BR> <BR> It for sure is a real change of lifestyle, one in which I am having to ease into slowly. It is gluten free, lactose free and only allows certain fruits and vegetables, and proteins. <BR> <BR> I looked for a team here at Spark for this plan, but none were found. I ... Sat, 14 Dec 2013 13:01:20 EST Anyone else have trouble sleeping? Hi everyone! I just joined the group yesterday. I've had UC since August 2008 and it's been quite a ride. Right now I'm in a small flare, but it's manageable. The trouble I seem to be having is finding a comfortable way to sleep! My UC affects my whole colon, but I'm particularly uncomfortable when I sleep on my left side. Lately I haven't been able to sleep on my right side either and I know sleeping on my stomach is out of the question. Sleeping on my back is the only option but it g... Sat, 2 Nov 2013 07:53:08 EST Vitamins and UC Hello there, <BR> <BR> I'm a 19 year old female and I was diagnosed with Ulcerative Colitis when I was 17. I haven't been in remission at all yet, and I've been taking Remicade infusions for a little over a year now. I was just a little bit concerned about vitamins or supplements. Is there anything I should know or read about vitamins and Ulcerative Colitis? I'm trying to find something that's also been approved by the U.S. Pharmacopeia or NSF international- just something that's been tested... Mon, 24 Jun 2013 19:57:52 EST I've figured something out that might help I was diagnoised in 1996 w/Ulcerative Colitis,I've had 3 blood transfusions & been in & out of hospitals alot b/c of it.I've tried Asacol,Pentasa those went straight threw me.I've tried Rowasa Enemas,Prednisone,Colazal this drug helped for about a 1st I got really bad headaches for a week then after about a muscles were going.So I stopped it all together.They were talking to me about Colostomy.Great I'm 39 yrs.old & a bag for rest of my life NO THANK YOU!.So recently I've been tak... Wed, 12 Jun 2013 02:17:12 EST food allergy test It turns out I'm lactose Intolerant. It was hard to find out for me because I don't like to drink milk, but I love different milk products like cheese, and ice creme. I was noticing discomfort, but usually do. When my GI suggested an elimination diet it was so confusing, and I was so sick at the time I didn't want to deal with it. However, I was put on meds that control flares from getting out of hand, but I was still having symptoms every day. I'm so thankful to find out my culprit is milk p... Mon, 11 Feb 2013 23:22:42 EST looking for answers l was told by my GI doctors that diet has nothing to do with Ulcerative colitis. I was hospitalized twice with awful flairs that I became very anemic from. I've always noticed how I feel esp after eating dairy, or gluten products. When my mom asked the dr. about gluten sensitivity he didn't really act like that was the problem because I didn't have Celiac disease. I decided for my own knowledge I'd go to a local allergist and have a food allergy test, and that's where I'm headed for this morn... Mon, 11 Feb 2013 04:53:40 EST milk fat <link><BR>13-milkfat.html </link> <BR> Hi all. Hope everyone is well. I came across this article from June and found it interesting because over the years I have had bouts of lactose intolerance and it seems that when I stayed away from milk my colitis was under control. For the past 4 years I have stayed away from milk as it seems I have developed an allergy to it (break out in eczema and the odd hive) and I have had no diarrhea. My hubby (who is an ... Sun, 27 Jan 2013 07:55:03 EST Newly Diagnose d....and Confused So I just had my first colonoscopy last week, required by the gastro dr. because of rectal bleeding. Nothing found except a small, flat "spot" they biopsied to be safe, and an area of mild"inflammation" which was also biopsied although the dr said it was likely caused by the prep I had just completed. So the gastro calls me today to tell me that based on the pathology of the inflamed area, she now has diagnosed me as having mild ulcerative colitis and wants to put me on mesalamine immediate... Mon, 7 Jan 2013 18:54:53 EST Specific Carbohydrate Diet Website updated If you were not aware (I wasn't), the Specific Carbohydrate Diet Website has been updated: <BR> <BR> Seem like diet-based solutions to UC & Chron's are getting quite popular these days. I hope they are right. Thu, 23 Aug 2012 16:11:46 EST Fasting to help Ulcerative Clotitis Hey, has anyone ever considered fasting to help with their UC? <BR> <BR> I ask because after I had a Moviprep to empty me out 24 hours before a sigmoidoscopy, I felt great, and my symptoms seemed to disappear for weeks. <BR> <BR> Here's a link to the BBC Horizon program which had a great program on fasting:<BR>2/aug/06/eat-fast-and-live-longer <BR> <BR> What do you think? <BR> <BR> Mon, 20 Aug 2012 13:58:04 EST Hello team UC! Hello, <BR> Thought I'd introduce myself. I am a 37 year old electronics engineer from the UK, who has been diagnosed with UC in Jan 2012. I had my first real flare-up last week, was hospitalised and given meds, which, one week later, seem to finally be having an effect! <BR> <BR> Hoping to be back into normal life in a few weeks time. Normal as in, trying to live with it, without it ruining my life. <BR> <BR> Love to hear from people in a similar situation, and work towards solutions for c... Thu, 16 Aug 2012 17:12:29 EST UC Team Members I was just wondering how us UC members are doing and if anyone reads this forum. I have been doing well and since I am on a lot of pain meds for a bad hip, my bouts with diarreha have subsided. Hope everyone's summer is great and we are all maintaining or getting better. <BR> Mary Sun, 12 Aug 2012 09:52:00 EST Hi just getting started here! I am a stay at home mom of 3 great kids who take up 95% of my time! I am a pretty positive person and the lack of weight loss has me really thrown through a loop. I have decided that maybe this place can help me to loose the weight. I want to loose 28# but would be thrilled with anything at this point. I have started a meal replacement diet and that is going pretty well. I can seem to loose about 5-8lbs before I gain that back. My endocrinologsit said I could diet and should have succes... Mon, 6 Aug 2012 08:14:44 EST I'm new to this group My name is Laura. I had my fist symptom of UC when I was 15. I went undiagnosed until I was in my early 30's. I have been on 3 different medications. I also have had menstrual bleeding problems which my ob/gyn doctor had my taking anti-inflamtory medication, which created major flare ups. Since the medication was creating flare ups I had an ablation procedure and now, I have only had a couple of flare ups in the last 3 years. Yeah!!! Mon, 23 Apr 2012 18:53:49 EST looking for tips - had to go on prednisone! I am so trying to not dive into a self-pity party, but am extremely bummed that I started back up on prednisone. So far I'm slated to be on it for 8 weeks but every time I've been through this before I've gained weight, gotten crabby, developed moon face, lost sleep...and it didn't seem to help the flare up. <BR> <BR> I do NOT want to fall off the weight loss wagon just because I have to be on this drug. ANy tips? Thu, 22 Mar 2012 15:44:35 EST discouraged in the weight loss battle I am sorry, I feel like such a whiner. My colitis is well in control but my lack of weight loss is getting me down. I am finding it very difficult to track my food as most of what I eat I have to make myself and it is hard to figure out the calories. I seem to be focusing on what I cannot eat which is a huge list. <BR> No dairy not lactose but the protien itself triggers my ecema so that lets out everything from most bread to packaged meats, it is in almost everything <BR> No fat, I can ma... Sun, 11 Mar 2012 08:11:08 EST IBD & Nutrition I went to the CCFA program on nutrition last night. It was good to see a packed room; they had to keep adding chairs for a while. The speakers were a dietician and a gastroenterologist (if I'm remembering correctly; they didn't list them in the presentation materials). Although I didn't really learn anything new, I do think it was worth the rush-hour traffic I had to get through to reach the location (it took maybe 40 minutes instead of the expected 25). If nothing else, it confirmed that I'm... Thu, 26 Jan 2012 08:22:21 EST Free Educational Programs sponsored by CCFA I've learned through facebook about a couple of evening programs being offered on Nutrition & IBD: Choices for Adults and Kids: <BR> <BR> Jan. 25, in Takoma, WA:<BR>6281&view=Detail <BR> Jan. 25, in Chevy Chase, MD:<BR>97006?view=Detail&id=116341 <BR> <BR> I've signed up to go to the one in Chevy Chase, since it's close enough to me. <BR> <BR> If you want to see if there's anything of interest coming up i... Fri, 20 Jan 2012 11:32:27 EST New to Team Hey Everyone! My name is Heather and I'm from a small town in Alabama. I started having UC symptoms when I was 15 years old and was diagnosed when I was 18. I'm only 21 so I've had UC for about 6 years. The Doc started me off on Asacol and I didn't take my meds the way I should have so I got flare ups constantly. 2 years ago I started taking Remicaid Infusions every 8 weeks until my immune system started blocking the dosage. March 2011 I went through my worst flare up, it lasted for months. D... Thu, 19 Jan 2012 14:25:50 EST IBD Less Common in Southern States Interesting article in the Health News section of SP: <BR> <BR><BR>th_news_detail.asp?health_day=660604 Thu, 12 Jan 2012 10:23:00 EST Are you managing during the holidays? I'm curious as to how everyone's managing their UC during this traditionally unhealthy eating, no time for exercise season. Sun, 18 Dec 2011 11:22:06 EST Important Information About Medication I just read this article, which warns about skin cancer risk if you're taking Azasan, Imuran, or Purinethol: <BR> <BR><BR>th_news_detail.asp?health_day=659147 <BR> <BR> Be vigilant when you're out in the sun. Wed, 23 Nov 2011 08:24:25 EST J-Pouch Surgery Hello Everyone. I'm Lisa. I haven't been on SparkPeople for a while and I'm trying to get back into it. The daily grind has become very difficult for me because of my UC. I am using Remicade, Imuran, and Prednisone right now. In March, I will be having a surgery that to remove my colon and start working toward what is called a J-Pouch. Are any of you familiar with this surgery? Any input you can offer would be greatly welcomed. Tue, 8 Nov 2011 13:43:19 EST Constipation and UC Ok, so I have had no real issues since this summer. Feel pretty much back to my old self and back to the constipation. Yesterday, I tried to take Miralax, but that just bloated me to the point that I thought I needed to be popped. Any ideas of what else to try? Thu, 3 Nov 2011 13:07:40 EST Need some advice on meds/trea tments... So the verdict came in yesterday -- my 3 month+ flare up has now caused me to be categorized as a "steroid required UC" patient. In short this means that I have to stay on prednisone constantly (at least 20-30 mg/day) until we can find a new treatment plan. <BR> <BR> I've been given a few options that I need to research -- partly because I have school-provided insurance and don't know whether some options will be covered or not. So I'm looking for advice on: how effective these treatment... Thu, 13 Oct 2011 08:42:41 EST Fall and Winter Are Flare-up Season Did you know that? I didn't. I had my 6-month visit with my gastroenterologist yesterday, and he revealed this to me. I've been trying to get off Asacol and just take Imuran, but he doesn't want to change anything now because we're entering flare-up time. Evidently it's been proven statistically that more UC sufferers have more flare-ups in the fall and winter than any other time. <BR> <BR> So be vigilant! Watch your diet. Exercise as much as possible. And avoid stress! Do whatever you need ... Wed, 7 Sep 2011 11:20:16 EST Low Residue Diet Help Hi Everyone - I've been prescribed a low residue diet (along with prednesone) that will go on until at least November/December. I'm sure you all know that it's very restrictive. I'm packing on the pounds with the diet and meds! Do any of you have any suggestions on how I can be on this low res diet and maintain or lose some weight? Any recipe ideas? Wed, 7 Sep 2011 10:35:00 EST Ischemic colitis Hello, <BR> <BR> This is my second bout with ischemic colitis. Definitely not fun. I went to a Specialist, his recommendations were; Imodium when needed. Align probiotic occasionally to keep the colon healthy and Metamucil when constipated. I have always suffered with migraines and he said this is a variation of migraines due to the medications I take. I found this very interesting. Other then the two above conditions, I lead a very healthy and productive life. <BR> <BR> Is there an... Mon, 5 Sep 2011 18:12:00 EST Feeling Discouraged Been trying to get a flare up under control now for about a year and starting to feel discouraged. I tried Asacol but was up to 9 pills a day and still not getting relief from all the symptoms switched over to Lilada which did an OK job until it contributed to pancreatic attack. Because of that there is a whole class of drugs that are out of the running (6MP, mesalamine, etc) which means insurance will now cover remicade. The Remkicade is doing OK but still not controlling everything for the... Sun, 21 Aug 2011 14:35:17 EST Ischemic Colitis Just dropping by to say hello. I had an ischemic colitis attack in april 2011. Also some inflammation was noted. I just don't know what to eat anymore. My problem mostly contipation.Any suggestions appreciated. ty Sun, 17 Jul 2011 12:06:15 EST Flare Up Med Advice Needed!!! Currently experiencing a flare up and while not as bad as previous episodes, I'd still like it to stop. The doctor put me on 1.5x my normal UC med (Apriso) and it has helped with some of the symptoms, but not all. The only other option he claims is to go on 20 mg of prednisone. I ABSOLUTELY refuse to ever go on prednisone again -- particularly a dosage that is 2-3x the amount your body normally makes. Based on previous experience with extremely high doses and too fast tapering, I went thr... Wed, 6 Jul 2011 14:52:43 EST Hello! Hey all, <BR> I'm new to the group and the worst introduction is no introduction. I was diagnosed with UC at the age of 14, and diseases and high school are no fun mix. I'm almost through with college now, and it's a semester by semester struggle. I've had to retake classes because I'm in the hospital more than I'm in class. Currently, I'm starting my last semester of student teaching and am trying not to stress about the possibilities of things that could go wrong. <BR> I have UC in 100% of... Tue, 14 Jun 2011 22:44:34 EST Feeling out of it? I wanted to run this by others with UC to see if this is a common symptom or not.... <BR> <BR> Basically I've been feeling completely out of it for the past couple of days. I can get up and function, but my head seems to be at least a step behind. I've been dizzy and feel like I'm working in slow-motion all day long. I don't necessarily have a headache but my head definitely feels off. My stomach and GI has also been very off and touchy -- ie feel nauseated a lot and not very hungry. A... Tue, 14 Jun 2011 13:16:22 EST sleep So they tell me to get more sleep and that I am tired because I don't get enough sleep (post menopausal thing) I have no problem falling asleep, usually between 9&10 at night. The problem is staying asleep. Either I get up to pee or my colitis triggered arthritis hurts and I have to move positions which hurts so I wake or I do the hot/cold thing and am throwing covers on and off. Any tips on how to get a good night sleep. It is fine for them to say get more but HOW!! Fri, 3 Jun 2011 06:33:04 EST 2 CT scans & scared. I had a CT scan May 10th & it came back showing a thickening of an area in the wall of my colon. They had two radiologists & two docs look at it & the doc personally called me within an hour to schedule another one & talk. The word cancer was thrown around. <BR> <BR> Had CT scan #2 today with bowel prep first (YUCK). Anyone ever have a thickening of their colon wall??? I am pretty scared. Colitis doesn't skip spots & this is far away from where my colitis is. <BR> <BR> I have lost 30... Mon, 16 May 2011 18:47:41 EST Long nights with UC I had a terrible night with UC. Vomiting, diarrhea like you are prepping for a colonoscopy, and a horrible stomach ache with gas. I am not sure why this always seems to happen at night. So after a few sips of water it is back to rest. <BR> <em>39</em> Sun, 1 May 2011 07:31:56 EST New to UC Team I am new to UC team. I was diagnosed with UC in December 2010. This is my second go round with the disease. The first time, a number of years ago, I had inches of my colon removed because of polyps and UC. I was free of the disease until December when it returned. I was on predisone and now Asacol for treatment. Most days are not too bad as long as I watch what I eat. I am also a heart patient and take blood thinner meds. I do water exercising at the YMCA. Have a good day everyone. Mon, 18 Apr 2011 16:10:26 EST Scopes Tuesday!! Ah yet again..........SCOPES. Upper GI endoscopy & colonoscopy. Bowel prep. All the joys of UC. I am scared. Scared because of my extreme weigh loss in the past two weeks. Afraid of hearing just how far it has spread. <BR> <BR> Wish me luck. I need it. Sun, 10 Apr 2011 10:45:35 EST New Probiotic I have been taking Align since I was diagnosed last May. It is ok, but the symptoms have not completely gone away. They are better. I was going to re-order on Amazon today and then I caught reviews for Advanced Probiotic Balance. It is a quarter of the price $15.99 for 120 and got better reviews than Allign. Anyone know anything about this one? I decided to try it. You can get 280 count for $28. Allign was $58 for 64 count. <BR> <BR> Because of the money I saved, I was able to get Zu... Sat, 26 Mar 2011 12:39:00 EST Hi gang - I'm new to this Team I just found this Team and discussion forum today while I was recording my food in the daily tracker. I'm glad to have some other folks to talk with that have the same condition. I was diagnosed with UC a few years ago. I'm 56 almost 57. I went for my first colonoscopy like you're supposed to when you turn 50 - well, actually I procratinated till I was 51! I thought everything was going to check out OK, so I was shocked when the Dr. told me I had UC all throughout my colon. He put me on... Thu, 24 Mar 2011 15:34:31 EST New here; not new to Colitis! Exercise advice pls Hello, <BR> I was diagnosed with severe pancolitis in October of 2009. By the time I finally went to see a doctor I was way under weight, anemic and essentially wasting away because I was scared to eat (I'd never had that problem in my life before! I'm a MAJOR foodie/cook) <BR> <BR> It took me a good while to get out of that flare. I was prednisone dependent so everytime I would drop to 20 mg I would flare back up. Subsequently, with the help of Asacol (3pills, 3x/day) and Imuran (125mg/day)... Thu, 24 Mar 2011 11:01:45 EST Has anyone tried to detox I know it would prob be a dumb thing for alot of people in our postion to try and do. But is there a detox that just helps with ridding of toxins , and not encourage bowel movements?? <BR> I have no large intestines left now but want to detox to rid toxins left from medication, but dont want to feel like Im ripping my intestines to pieces, there must be something that is mild that can help , maybe????? Or am I dreaming that i could do it?? <em>213</em> Fri, 18 Mar 2011 06:23:10 EST Coming out of a flare Hi Everyone,. <BR> <BR> I am new here but have a question which the answer may depend on the person. I started with a really bad flare a few weeks ago which landed me in the hospital last week. My Dr. put me on prednisone and a few antibiotics and I have been feeling better. I would like to start adding more fiber back into my diet but am not sure if i should wait a little longer. Any thoughts? Tue, 15 Mar 2011 16:05:31 EST So excited! We went for our workout at gym tonight and weighed in for week. I have lost a total of 15 pounds since I started. I thought I would have gained tonight but instead I lost the last 5. I know I have to keep working. I just keep hoping I can keep myself at or below 150 through the next month or two. We won an extra work out with our trainer. Did I say we "won" a chance to be torchered more? lol. Just had to share. <BR> Wed, 2 Mar 2011 23:49:31 EST new Hi I have just started exercising the last 3 weeks. The scales say I have lost weight. My problem as so many of yours is the cramps that come the days after. I am noticing I am ok on mon and wed night during my workouts but on Thursay and Friday I start feeling worse. I have had my symptons under controll the last few years not gone but definately better when they started. I also take asacol 3 tablets 2 per day. My doctor asks each visit about cutting it down but i tell her each time i try th... Sat, 26 Feb 2011 13:44:02 EST finally off prednisone Well after a little over a year and a half of a roller coaster ride trying to get under control I am finally off the prednisone. it will be 2 weeks this saturday. I am experiencing a lot of side effects from stopping though and was wondering if anyone else had ever felt this way. <BR> major headaches/migraines. nausea, getting a cold, sore muscles and joints all over, extremely tired most days......ive read that all are normal and i am fine with that as long as they go away soon. nothing ive ... Wed, 16 Feb 2011 18:48:01 EST Newbie - UC problems with exercising? Hi everyone, <BR> <BR> Thanks for being such a welcoming group. It's nice to know that there are so many others struggling with the same problems. <BR> <BR> After being sick on and off for almost a year, I was finally and recently diagnosed with UC. Unfortunately I was allergic to Asacol and had some pretty severe complications with my predinisone treatments. Fingers crossed, I'm starting to stabilize on the new meds (Apriso) - though some days are more of a struggle than others. <BR> <... Tue, 4 Jan 2011 20:39:01 EST Breakfast Help Let me first say I do not cook. I do not like oatmeal. I am trying to figure out something to eat for breakfast besides Frozen Pancakes and Turkey Sausages that will not affect the colitis. The normal high fiber breakfast obviously won't work for me... anyone have any ideas? Once in a while I will make eggs. Tue, 4 Jan 2011 11:26:30 EST Official 28-Day Bootcamp Workout Challenge Who's going to join this team with me? Christmas didn't send my weight up, the week after did! Gah! Spark's new team, Official 28-Day Bootcamp Workout Challenge <link><BR>ndividual.asp?gid=42559 </link> , looks like a great way to get back into the exercise routine for me. It doesn't sound like it will be too intense and discouraging to keep up with. Check it out, and post here if you're going to accept the challenge. Mon, 3 Jan 2011 09:09:18 EST Gluten Free? Hello! <BR> I am pretty new to the GF lifestyle. I recently went Gluten Free after a friend suggested that I try it. I have Ulcerative Colitis. I was diagnosed three years ago after suffering for two years without diagnosis. I initially found relief from medications however over the last eight months my medication has had to be increased twice. My doctor told me the next step was steroids... I continued to have issues when a friend suggested I try going gluten free. I was very wary at first a... Thu, 30 Dec 2010 13:06:02 EST Insurance & medication dilema. Okay...some know me here some don't. I got pregnant, went off all meds & then had a miscarriage at ten weeks. I have stayed off all meds since. My husband's health insurance broker from work just came & told him we need to keep our risk factors down to decrease our premium. This means minimal doc visits minimal major problems etc. Problem? I am in flare hell. Constant diarrhea. Even up a lot at night. Constant gurgling & churning bowels. Loud diarrhea at work....embarrassing. Mise... Sun, 5 Dec 2010 21:10:09 EST Just looking for a little encouragement! I've had a flare up since Spring. It seems the more I exercise the better it is. I am on suppositories but cannot do the recommended dose of 2X a day - so the doctor said it should just take me a longer to get into remission again. I have some really bad days and I have some really good days - it's just such an emotional rollercoaster being sick for so long. Sometimes I just breakdown and cry. It's just hard taking care of everyone else (2 kids and a husband & run a business) when I've be... Thu, 2 Dec 2010 16:42:45 EST Cold meds This team hasn't been active in awhile, so I figured I'd throw something out there. <BR> <BR> Have you guys noticed that cold medicine, like DayQuil and cough drops, affects your colitis? It always seems like whenever I am sick for an extended period of time the colitis follows. <BR> <BR> Also sugar substitutes really upset my stomach, it's actually a challenge sometimes finding cough drops with real sugar! Tue, 23 Nov 2010 07:38:49 EST Interesting Perspective from a Doctor My BF sent me this, which I find interesting. How does what this doctor says compare with your experience? <BR> <BR> <BR> AGA is part of a growing health-care community on Twitter and has interacted with a number of gastroenterologists who are active on the microblogging site. We enjoyed a recent series of tweets from Meenakshi Budhraja, MD, (aka @gastromom) about her return to academia after decades in private practice, so we invited her to expand her thoughts in AGA eDigest beyond Twitter... Fri, 29 Oct 2010 12:00:00 EST Changing med time? I always take my meds at the same time in the morning. However, I only brought enough with me for today not realizing what was going to happen at home. We are staying an extra day and not going back home until tomorrow. I will get there at 8:00 p.m. Is it ok to change the time I take my meds? Tue, 26 Oct 2010 11:22:59 EST UPDATE It is week 3 of my new lifestyle. I lost 5 pounds this week (for a total loss of 15 pounds). I also lost 2-1/2" (for a total loss of 9"). I know that I have a long way to go, but I'm off to a good start. <BR> <BR> I continue to need to your encouragement and your prayers. We can do it together! God Bless! <BR> <BR> <em>306</em> Mon, 18 Oct 2010 09:00:51 EST Prednisone :( Everything was going so well, and then the flare comes back. <BR> <BR> My doctor just called in some prednisone, the good news is that I know that will help, the bad is that I have to be on it for 8 weeks, starting at 40, tapering to 5. <BR> <BR> This sucks. I haven't been doing the greatest with my nutrition but I've been keeping fiber in check and avoiding greasy foods. When I eat too much it's usually because I eat too much of the healthy stuff. <BR> <BR> Hopefully I'll at least be a... Tue, 12 Oct 2010 16:02:20 EST Need Advice I'm making a very bold move. I am going to New Orleans with my husband on the 21st. When I was planning the trip, I had no concerns except for the hotel I ended up with...then decided we would deal. As we are getting closer to leaving, I am concerned about traveling with this disease. Any advice? <BR> <BR> I was smart and have afternoon and early evening flights as mornings are the worst. Don't know what to do about the rest. Mon, 4 Oct 2010 17:09:02 EST new this illness Hi!! I'm Deni...I've been with Spark for awhile, off and on...mostly off. Recently, I've been diagnosed with UC and today, they added, IBS and Lactose Intolerence. I am in the really mad stage, as I was NOT informed of what I could and couldn't have...what I could and couldn't do...what I should do, what I shouldn't do. What meds to take, what foods to eat. I just wanted to introduce myself, any help where to find information. My PA (who is really good...stayed and explained things to me for ... Tue, 28 Sep 2010 06:20:48 EST Eating Patterns Am I the only one who has found that you can not eat a lot in one sitting? I find it is much better to eat small amounts throughout the day. Your stomach definitely tells you when it needs food and when it has had enough. I exercised a lot today so I was starving at 9:00 tonight. I went for Frozen Pancakes and cantaloupe. I figured it wouldn't be smart to go for anything real fatty and I know pancakes are always easy on my stomach. Any one else have ideas for a late night snack that isn... Mon, 20 Sep 2010 22:15:52 EST Align Probiotic For anyone taking align, Amazon has a 63 count for $58. That's a darn good deal. Wed, 15 Sep 2010 13:21:26 EST Good article on probiotics I mentioned Kefir, a yogurt-like probiotic drink, in another discussion topic. This morning, a good article came up in a Spark e-mail that I thought I'd share. I added the link to the "Links," but here it is as well: <BR> <BR><BR>ition_articles.asp?id=576 <BR> <BR> I use it in smoothies and think it helps with my UC. Tue, 7 Sep 2010 09:14:39 EST What emoticon do you feel like today? <em>250</em> Thu, 2 Sep 2010 11:55:31 EST Hello from the Sunny Flare Up of CA Background on me: I was diagnosed with UC 2 weeks ago after being sick the last 3 years and finally 3 months ago I started bleeding so bad they did the biopsy's and found the UC (I had a nasty flu the end of may and the doc thinks that's what set the flare up off) <BR> <BR> I was diagnosed with ITP 2 years ago where they say my body destroys the platelets I guess...I typically run in the 80's & 90's but dropped in the 60's a few weeks ago. I am doing a round of non-oral steroids w/Asacol but... Tue, 31 Aug 2010 18:32:26 EST Sick of being sick! I was recentlyalmost off of prednisone, down to 5 mgs and then i started a flare that is taking forever to get better. Its been 3 weeks or better and I almost cant take anymore. I am back up to 40 mg prednisone, and the doc tells me not to eat a lot. ya right. hopefully getting better soon. I started imuran today, which i know is dangerous but i feel like i need to do something. I cant take it anymore.i am up all night in the bathroom mostly just feeling pressure to go. My husband is getting ... Tue, 24 Aug 2010 15:14:35 EST Can I do an office job?? So I had orientation at my new job today & found myself wondering....can I do an office job? My flare had me feeling like I had to go #2 all day long & I couldn't very well go to the bathroom constantly at this new job. So I held it in for hours at a time...since during a flare I usually go small amounts constantly I knew it would only be a little bit if I went. I had abdominal pain & low back pain. Rectal pain, joint pain & aches. I wanted to cry sitting in the chair listening to the la... Mon, 23 Aug 2010 21:10:45 EST Cycle and flare? I know I have read before that sometimes hormones can cause bowel changes in women during their monthly cycle, but I was wondering if anyone here experiences a mini-flare or diarreah during theirs? It seems nearly every month I have a mini flare around the time of my period, and within days of it ending my bowels are back to normal. Does this happened to anyone else? If it has, have you tried or done anything that seems to help it? Sat, 21 Aug 2010 19:11:24 EST Am I crazy?? I stopped taking my lialda hmmm not sure how long ago now. I know I talked about wondering whether I needed it & said I was going to talk to my MD. While I didn't Nurse Katie decieded to listen to that little voice in the back of my head which kept telling me I didn't need it anymore. <BR> <BR> I have been doing just fine & I am really surprised. No diarrhea, no bleeding, no pain. So, do I really have UC? My colonoscopy said yes but that was years ago now. I have had three of them but ... Sun, 15 Aug 2010 20:14:39 EST What foods can YOU eat? I know that we all have foods that bother us, and foods that we can depend on in a time of flare-up. I thought we could share from each one and maybe get some ideas as to what might cause a flare, and ideas for calming foods as well. <BR> <BR> For me, bad foods include all types of nuts, almost all dairy (except yogurt, and lactose free milk), whole grains, peaches, pears, certain types of apples (the grainy ones), celery, CORN and ALL corn products, including rice cakes (the second ingredie... Fri, 13 Aug 2010 08:47:27 EST Feeling rough today : ( Not sure if it is my UC or my period lol. I have the worst lower abdominal & lower back pain. UGH I went in & the stupid nurse practitioner told me it was lumbar strain. NO it isn't. I feel tender all through my abdomen but I am not having increased diarrhea. I am having nausea & total loss of appetite though. I wish my GI doc wasn't 72 miles from here & I also wish it didn't take 2 plus months to get in. I will have to call the nurse tomorrow. Plus I get to work tonight feeling like ... Wed, 21 Jul 2010 21:14:07 EST Wondering what you did... My doctor had me on prednisone and i am almost off of it. Hopefully in the next 4 to 6 weeks. I used to take asacol but he switched me to lialda a few months ago. The lialda is working fine but it is REALLY expensive. Does anyone know of anything that does the same thing but costs less? And also was wondering how long you had to stay on lialda after getting off prednisone (if you were on it) before not having to take it any more? <BR> <BR> Thank you Fri, 9 Jul 2010 22:13:44 EST Clean Eating Katie has mentioned trying to eat clean a lot lately. I hadn't thought about it much, but I pretty much try to do the same thing. What is it? In a nutshell, it's eating fresh rather than processed and packaged foods as much as possible. In trying to deal with the dietary restrictions of UC, I've found that making my own meals from fresh ingredients is the easiest way for me to know what I'm putting in my gut. Yes, I can read all the nutrition labels on packaged stuff, but there's quite often ... Tue, 29 Jun 2010 12:51:22 EST I have a love hate relationship with my UC meds. I REALLY REALLY want to quit taking them....not because I want to be sick trust me I don't. I have been on the dang pills forever now though it seems. I have been on them for 67 pounds of weight loss. I went from junk food junkie to active health nut. Part of me REALLY wants to know if it has made a difference or not in my UC. However, I am too fearful of stopping my medication. So will I be on it FOREVER...ugh. It took so long to hit remission and now MOST of my flares are small altho... Fri, 18 Jun 2010 18:53:38 EST New UC treatment in the future????<BR>_news_detail.asp?health_day=640076 <BR> <BR> Interesting article. Wed, 16 Jun 2010 21:32:23 EST A funny thought. I was reading about someone doing a colon cleanse. I thought to myself you mean people actually TRY to give themselves diarrhea??? I don't need a colon cleanse....mine cleanses itself just fine. In fact, I try to prevent one ha ha ha. It just struck me as funny. Mon, 7 Jun 2010 09:36:53 EST Ugh! New and this mess is confusing! Hi, I am new to both the team and Ulcerative Colitis. I have had problems for a couple of years and thought that it was due to not having a gallbladder and eating the wrong foods. Well finally got my insurance kicked in and had a colonoscopy last Friday and the results showed I was wrong had this problem. So at least now I know what is wrong with me. But now, have to figure out what I can eat and can't eat. It affects my life in so many aspects. I am on predisone right now. I go back to... Thu, 27 May 2010 12:42:25 EST Fiber? I'm just wondering if anyone here has had a doctor or dietitian tell you how much fiber you should be getting in a day. It's something I recently started tracking and I definitely have more problems on my high-fiber days. Thu, 13 May 2010 20:54:19 EST New here Hi, I'm new to the team and happy to be here! I've had colitis or about 10 years now and it sucks big time. I'm actually doing pretty good, been in remission for awhile now (flax seed and probiotic yogurt are my best friends now). <BR> <BR> Thu, 13 May 2010 20:52:30 EST Crohn's Dating Service My husband sent me this article about a Dating Service that connects people with chronic diseases. At first I was a little skeptical; it shouldn't matter if a person has a chronic condition if you love them. But the more I think about it, the more sense it makes. <BR> <BR> <link> </link> <BR> <BR> What do you think - Good idea or bad idea? Fri, 30 Apr 2010 15:46:31 EST Prednisone makes me moody Does anyone else feel like prednisone makes you flip out over the littlest things? I used to be a very laid back person, then I had my twins and pretty much all my patience went out the window. But even since I have been taking this med I feel like I am angry all the time. And snap at stupid things. <BR> <BR> I am going to talk to my GI doc this week and tell him to get me off of it ASAP and onto something else if necessary. <BR> <BR> Thanks for letting me vent! Sat, 17 Apr 2010 22:01:22 EST Pregnant! Hello team! Well, I found out a few days ago that I am pregnant! It is my first pregnancy so I am a bit nervous. My husband and I said we would start trying, but I had no idea it would happen so fast! I have a doc appt on Thursday so I can ask the doctor abt. my UC, etc...I had already asked my GI doc abt asacol while pregnant and he said it should be fine. I was wondering if any of you all had been pregnant while also dealing w/ did it work out? My UC is under control now for ... Sat, 17 Apr 2010 12:51:49 EST health insurance :( Hello team! I have been teaching in a public school system for 11 years and have had group health ins. w/ them the whole time--no probs! (as a side note, I have had UC since I was 15--so, for 18 years)...well, now I am moving to Virginia to join my husband who is already there--I had to stay here for an extra year to finish my doctoral comps and dissertation proposal, but now I am ready to go in June. <BR> Of course, here it the prob: my insurance runs out on July 31 of this year...I have an... Tue, 13 Apr 2010 22:28:28 EST health insurance :( Hello team! I have been teaching in a public school system for 11 years and have had group health ins. w/ them the whole time--no probs! (as a side note, I have had UC since I was 15--so, for 18 years)...well, now I am moving to Virginia to join my husband who is already there--I had to stay here for an extra year to finish my doctoral comps and dissertation proposal, but now I am ready to go in June. <BR> Of course, here it the prob: my insurance runs out on July 31 of this year...I have an... Tue, 13 Apr 2010 22:27:49 EST new member Hello everyone! My name is Shannon and I was diagnosed w/ UC at age 15 (I am 33 now). It is under control w/ Asacol and doing well...I actually have a checkup colonoscopy in a couple of weeks (fun!). Anyhoo, I have been doing SP since November and am really close to my goal weight... <BR> I am glad I found this group! <em>213</em> Tue, 13 Apr 2010 22:21:25 EST new to this and in need of some advice and help hello, my name is Lianne and I am 47 years old. I am an american living in Germany. A friend of mine sent me to this website because of my various health related issues and my eating concerns and weight concerns. In 1997 I was diagnosed with ulcerative colitis and really have not basically been told very much about it. I have been depressed for umm..95% of my life, if you want to know why I will tell you another time, or maybe once I get to know everyone. Anyway, after coming here to Germ... Wed, 31 Mar 2010 16:25:47 EST Has anyone heard from Lisa? That's Superwoman_Lisa. I'm a little concerned because she hasn't been active here for some time and was having a number of health issues. I sent her a SparkMail message but haven't heard anything back. I'm keeping her in my thoughts, since I'm not the praying type. Tue, 30 Mar 2010 12:17:24 EST Log-in points So how many log-in points did you get on the wheel today? I got 4. Tue, 30 Mar 2010 12:10:27 EST Still really sick. Day four....feels like day forty to me. I don't think I have felt this awful in a long long time. I have been basically couch ridden all day today. Got a walk in yesterday and thought wahoo I am feeling better. No such luck. Went in & had labs done today. The doctor wanted me to come in tomorrow for an appointment. The problem is my GI doc is a 60 minute drive from here...ah the joys of small town living. That's pretty tough when you feel this miserable. I am supposed to work tomorro... Thu, 25 Mar 2010 19:11:17 EST Grrrr flare!!! I haven't had a flare in a long time. Yesterday I had a terrible migraine & had to take ibuprofen because I was literally on the verge of tears. That is all it took for my tummy to act up. I am just bummed out. I haven't been able to eat since I had my protein shake yesterday morning & NOTHING sounds good at all. I of course also get the "arthritis" that goes along with my flares so my joints aches & kept me up half the night. BOO. Just wanted to vent to people who understand. Tue, 23 Mar 2010 09:09:48 EST IBD in TV/Films My husband and I were catching up on some episodes of The Sopranos this weekend and were very surprised when we heard a mention of IBS and Ulcerative Colitis. It was in Season 5 episode 5 I believe, when Adrianna starts having severe stomach issues caused by the stress of having to snitch to the FBI about her fiance and family in the mafia. This episode was released in 2004, and I find it amazing that the disease was out there in the mainstream way back then, and yet still no one knows abou... Mon, 22 Mar 2010 12:01:05 EST Medications I am curious if anyone else takes Lialda for their UC? It has been wonderful for me. Instead of taking twelve pills a day I only have to take 4 extended release pills one time a day. It has helped my so much with being consistent and taking my medication every single day. Mon, 22 Mar 2010 09:08:49 EST Pedometers MNNURSEKATIE's blog about her pedometer brings up a question I have that some of you might also be wondering about. What's the best pedometer to get? I've got no idea about these, other than a free one that came with something I bought but never worked. An example of getting what you paid for. Hahahahaha. <BR> <BR> So what do all of you people who use them recommend? Sat, 13 Mar 2010 10:22:24 EST New to UC and Spark Hello all, <BR> I am coming back to Spark after a brief visit months ago. I was diagnosed with UC in August. Although mild, I feel like a wrestle with something related to UC every day. Now that I am feeling well again I am trying to address the weight gain I have experienced since being diagnosed. I went from eating fairly healthy and being a good weight to losing 20lbs when sick to now a 20+ lb weight gain. Talk about a yo-yo! I attribute the weight gain to eating all white (pasta, rice, e... Tue, 23 Feb 2010 09:26:27 EST New member from MI I am signing on today as a member of the Ulcerative Colitis team. I am currently in "remission" and have been for almost a year. My problem is not the exercise...I exercise 5-6 times a week at a gym. My biggest problem is not eating correctly. It's as if I am trying to eat everything I can before I flare up again and then can't eat. Do any of you feel that way, too? Sun, 21 Feb 2010 14:18:10 EST Crohn's Colitis I saw my GI this week and they scheduled my colonoscopy for later this month. I also told him about the fistula and he said that Fistulas are more indicative of Crohn's rather than UC. He also told me Crohn's can affect any part of the digestive system and that there are three forms of it. You can have it in the small intestine, the colon, or both. So, because the Crohn's blood tests that were done last year, we may never know for sure, but I might have Crohn's Colitis. (That's what he called... Fri, 12 Feb 2010 13:00:13 EST Fistula Diagnosis I was told today that I have a Rectovaginal Fistula and I should go see my GI. After doing a little bit of research to get a better idea of what that was, I discovered it's a connection formed between organs, kind of like a tunnel. This can lead to fecal incontinence because flatulence and feces can leak through that connection into the vagina. <BR> <BR> Most Fistulas have to be surgically repaired, so I will be making an appointment to see my GI very soon. If I do have to have surgery for i... Thu, 28 Jan 2010 22:22:23 EST Hi I'm ashley Good morning all, I'm ashley and I was diagnosed with Ulcerative colitis when I was 10. I have struggled with this disease to say the least. Because of this I have had several surgeries. I'm sick of this disease!!! Because of the stuff I have gone through I now use food as my crutch. Sat, 23 Jan 2010 11:21:12 EST Low Potassium Twice now, I have been treated for low potassium at the hospital because of the UC. While doing some research for the trivia quiz, I found a web page that talked about potassium deficiency and apparently UC puts at higher risk of potassium deficiency. I also discovered orange juice is a good source of potassium, which is great cuz I LOVE OJ, and when I'm sick, I even crave it. Thu, 21 Jan 2010 15:54:31 EST Rejoining the group I would like to re-introduce myself to the group. My name is Christine, I’m a 33 year old single mom of a 3 year little girl name Brianna. I joined this back in 2008 but due to being so sick for pretty much 08 and 09 I have not been on here. But its 2010 and I feel better than I have in 19 years except for the fact of needing to lose weight. I dealt with UC for over half my life, back in Jan 2009 I went for my year exam and it showed my colon was 90% covered with UC, the medicine was not work... Thu, 21 Jan 2010 11:14:00 EST Spark Your Body Boot Camp Is anyone signed up for this? <BR> <BR> I have and started yesterday. I doubt I'll be able to do the whole thing every day, but I think it's a good way to get in at least 10-15 minutes of exercise each day. The first couple of daily videos have been short and easy to adapt to your own energy level. Some days I feel energized, but other days it's a struggle to do much of anything. I know I feel better if I do some kind of exercise, and the additional 30 minutes of cardio in the Boot Camp fits... Tue, 5 Jan 2010 11:33:25 EST Fibromyalgia & UC Does anybody else have Fibromyalgia and Ulcerative Colitis? I have both along with Hypothyroidism and I have had flare-ups with both in the past but not simultaneously. Lately it seems as if both are flaring up together and I'm wondering if they aren't somehow intertwined. What I do know is that both conditions affect the joints and cause pain and fatigue. Unfortunately thyroid disease also causes pain and fatigue so I have muscle/joint pain and severe, chronic fatigue coming from 3 direction... Mon, 4 Jan 2010 21:26:59 EST Hello, my name is Janice! I was first diagnosed with UC in 1987 and have had very few flareups although I take a number of medications. I had my last colonoscopy in July 2008 and all was well. I will probably be having another one this year and I am not looking forward to it. Sun, 3 Jan 2010 16:25:59 EST Long Distance Running for Crohns/Colitis Sufferers I thought I'd throw it out there to the group. I just trained for a half marathon with a group of people with Crohn's or Colitis. One of our coaches even has Crohn's and has run marathons. And she thinks that long distance running is a good activity for people with IBD. <BR> <BR> When you run for extended distances/times, your body goes into fight-or-flight mode and your digestive system temporarily shuts down. So even though you are bouncing around which i thought would upset some tum... Mon, 28 Dec 2009 17:21:12 EST How did you do over the holiday? I seem to have managed to get through the holiday eating extravaganza without a flare-up. Admittedly, I did my best to avoid foods I know will cause problems, but I know I did eat a few things inadvertently. And I did drink some wine along with everyone else, which can cause problems sometimes. <BR> <BR> How did everyone else do? Sun, 27 Dec 2009 14:05:01 EST Problems with Dairy??? I started a new way of eating called the Great Taste, No Pain system that a friend of mine with UC swears by. When I was first diagnosed with UC, I started having to cut certain things out of my diet. Coffee (I still pout about that one), alcohol, spicy food, fried food, you get the picture. According to this new system, which by the way seems to be helping, there are only certain foods that are good to eat with dairy. However, I noticed lately that I do not tolerate dairy like I used to. My ... Thu, 17 Dec 2009 15:38:40 EST What's Your Go-to Breakfast? We all know that a good breakfast starts the day off right. My favorite, standard now, breakfast is fried potatoes with an egg fried over easy on top, accompanied by a slice of bread, with about 1 oz. of dark chocolate for dessert. <BR> <BR> What's yours? Sat, 5 Dec 2009 12:09:01 EST grain-free diet plan Anyone trying to lose wt on a grain-free diet plan? <BR> I have tried sticking to a grain-free, sugar-free plan and I feel best doing this. I can't say my UC is in full remission since I still have symptoms so I am trying this route with lots of probiotics. Sun, 15 Nov 2009 11:39:36 EST Camp Oasis? I heard about Camp Oasis while raising money for CCFA and it sounded like the coolest idea ever. A camp for kids with IBD! I've only met one lady whose child has attended and she had rave reviews. <BR> <BR> I was wondering if anybody had any information or experiences with Camp Oasis? Has anybody attended or sent a child there? Tue, 20 Oct 2009 13:12:36 EST CHIA SEEDS!!!! you NEED to try them!!! okay, guys- I had to bring this up to everyone because I've never done so well with my UC before, ever! and I've heard testimonials from people with crohn's as well. I have been diagnosed with UC since I was 13, been on high doses of steroids and all the typical medications (including remicade). I am no longer being treated or seeing doctors because I turned 23 and was dropped from my parent's insurance plan and have a pre-existing condition- no health care for me. But it's okay! I took matte... Sat, 19 Sep 2009 11:22:51 EST Newbie Intro Yo, all! I joined this group hoping to get advice about UC and weight loss. Hoping, of course, that weight loss will help the UC. Wed, 29 Jul 2009 11:58:25 EST Crohns and Colitis Team Challenge? I got a flyer in the mail this weekend from a charity group related to the Crohn's/Colitis Foundation of America; they are putting on a half marathon in Las Vegas to raise money for research. My husband and I were super stoked to participate, but it sounds like the only way you can enter is if you join their training club, raise a huge donation and then the group pays for your travel and hotel costs. I'd love the chance to raise money for research, but I am a bit of a Vegas snob and want to... Mon, 27 Jul 2009 10:55:50 EST hallo everyone from a newbie i like to introduce my self <BR> i have been diagnosed with UC 5 years ago <BR> after almost dieing from this devil of a illness <BR> i flare every few months, and i have not been able to travel,or eat in a Restaurant since i got sick <BR> i am housebound 70% of the time <BR> it has taken trail and error to find a way to be able <BR> to keep a healthy weight without gaining a lot with prednisone I'm glad to have found this forum and maybe i can learn some moore coping skills from other membe... Sat, 25 Jul 2009 15:42:11 EST new again.... Anyway! Alrighty, so i was on spark people two years ago, lost 45-50 pounds, working out 5-6 times a week, doing awesome, then BAM!!! Hospital, steriods, first flare up, and doctor told me i had UC. <BR> I didn't know what was going on, doctor told me that it was my entire colon, up to my small intestine. He told me that he's neve had someone come in with such a problem and it being their first attack. <BR> ANYWAY!! I gained 20 pounds in my first week on steriods, was on them for a good 4 mo... Sun, 12 Jul 2009 10:59:12 EST Food/Drink you love but had to give up for UC I still miss coffee. Fri, 26 Jun 2009 15:16:40 EST Keeping a job with flare-ups How do you avoid losing your job when you get sick and have to miss work? Even if you go to work sick, if you are hospitalized, you certainly can't go then. Fri, 26 Jun 2009 15:06:34 EST High Fiber Diet.....BAD for UC? My GI has me a low fiber diet, especially until I'm in full remission. <BR> <BR> I was on a very high fiber diet before I had the flare-up. I'm starting to wonder if there is not a connection. <BR> <BR> My GI said too much fiber can "overwork" the colon. <BR> So at least for me, there might be a connection. Fri, 26 Jun 2009 15:04:56 EST Disabili y/Social Security Is there anyone that was able to get on Disability with Ulcerative Colitis? <BR> <BR> I recently lost my job because I had a severe flare-up that included 2 hospital stays and weeks of recovery. <BR> I'm trying to get on disability. I was just wondering if anybody else had tried and if you were successful. <BR> I've already gotten my first rejection letter, so the next step is to find a disability lawyer. Fri, 26 Jun 2009 15:00:51 EST anyone on remicade? My doctor wants to put me on remicade b/c nothing else is working and I can't take prednisone due to a horrible reaction I had to it. I would love to know your experiences and side effects and know if anyone was on it while pregnant or nursing. <BR> Thanks! <BR> Tue, 7 Apr 2009 02:31:16 EST new here:) hello! I am a 28 yr old mother of 3 who has had ulcerative colitis for about 3yrs now. I am currently undergoing remicade treatments every month. I have been doing well until about a week ago and now am having another flare up. I have been on every medicine under the sun:) Mon, 6 Apr 2009 14:47:47 EST CCFA walk Hi, <BR> I'm an UC patient (remission for close to 10 years now) with several relatives with either UC or Crohns. I have actively participated in the CCFA event through most of its previous names, currently Take Steps. I have been able to glean good information about our disease along with info on the latest research from their site. I know times are tough and would not force anyone to do so, but if anyone is interested in sponsoring my walk, I've provided a link. Hope all are well. If I... Sun, 8 Mar 2009 12:56:31 EST Infertility, Pregnancy and UC Has any one else had issues with infertility and UC. Back in 1995 I had my one and only Dx flare of UC - That landed me in the hospital for a total of 13 over the course of one summer ultimately resulting in a total colectomy with a diverting illeostomy later reversed. I had a difficult post-op period but for the most part after the first year or so things have been good with the occasional episode of pouchitis but now as a result of the surgeries, <BR> post-op infections and adhesions I am n... Sat, 7 Mar 2009 22:09:32 EST Losing Weight w/ UC when You Can't Certain Things? I am reaching out for a buddy or two...I having been trying to psych myself up to start a lifestyle change that will allow me to lose weight...but I have to admit--I am discouraged. How can you succeed if you can't eat raw vegetables and very few fruits work either? <BR> <BR> How have you dealt with this issue? And the issue of fatigue? <BR> <BR> Please (PU-LEEZE) talk to me!!! I really want to get this started, and am truly looking for support and to provide it to someone else. <BR> <... Sat, 28 Feb 2009 13:50:50 EST GOOD NEWS! Hi, All: <BR> <BR> After having UC for 12 years I was told at my last colonoscopy in June of 2008 that my UC was gone. However I had a rather large polyp that the doctor was concerned might have been cancerous. A biopsy was taken and it was cancer-free. <BR> <BR> I had a Flex Sig done in the office on Wednesday. I was told that the polyp was almost completely gone. Words cannot describe how happy I am. I thank God, my doctors and the support which I have received from my Spark friends. ... Mon, 26 Jan 2009 00:13:03 EST newbie with UC Hallo everyone <BR> <BR> i joint SP for the fitness info , and i was happy t see this site for uc, I have been ill with severe <BR> UC for just over 3 years , i never forgot the day i felt something was terribly wrong inside of me i almost past out at work from the pain in my stomach, and it went downhill from there, in and out of the hospital, and at some point last year my GI doctor said he would be surprised if i am alive by x mass last year....i fired him .i have a great Dr now and fight... Fri, 9 Jan 2009 22:03:33 EST I DID IT! Dear Friends, <BR> <BR> I was concerned that I might have gained weight over the holidays, but I got on the scale today and I lost 10 pounds in the last month giving me a total loss of 50 pounds. I now have only 90 more to go. I know that I can do it in 2009 with the support of my family, friends and my Lord. <BR> <BR> Good luck to you in 2009 and as always, keep in touch. <BR> <BR> God Bless, <BR> <BR> Yvonne <BR> Tue, 6 Jan 2009 09:58:35 EST HAPPY NEW YEAR Hi! 2009 is going to be a wonderful year for us all. I lost 40 pounds in 2008 and my goal is to lose 100 more before the year is over. I know that I can do it with the support of my Spark friends and the comfort of my Lord. <BR> <BR> Have a wonderful 2009 and keep in touch. <BR> <BR> God Bless, <BR> <BR> Yvonne <BR> Thu, 1 Jan 2009 17:29:24 EST What Have You Found That Helps? What types of "alternative therapies", rather than prescription medications, have you tried that helped alleviate the intensity and / or frequency of flare ups? Sun, 28 Dec 2008 01:33:02 EST Juice Just wondering if anyone has ever tried Mangosteen juice? I had a friend with Crohn's disease and it did wonders for her. She is off all of her medications now and completely back to normal, eating anything she wants, just from drinking a few ounces of this juice per day. I'm just curious if anyone else has had similar results. <BR> Tue, 9 Dec 2008 20:31:06 EST ugh...not again!! just had to vent - i've been so healthy for ALMOST a year (halloween will be exactly one year since i was admitted to the hospital for two weeks!), my remicade has been awesome, but now, all of a sudden, i *think* my UC is acting up! i've had a really really stressful week - a friend lost her dad, and i've been super busy with work - and i've been getting used to my new, healthier diet - fruits, veggies, etc. for about three weeks now. for the last week, my tummy has been out of control! i'm ... Tue, 28 Oct 2008 22:10:44 EST I don't know what to do. I've had serious digestive problems for years. My doctors have narrowed it down to two potential diagnoses: UC or Crohn's disease. The potential for either scared me so much I never went back and have been suffering in silence for a year now with a couple of brief periods of remission. <BR> <BR> I have tried and tried to identify my triggers, but it seems completely random. I can no longer eat out in any restaurants because I've slowly crossed each one off the list when I get sick after e... Thu, 23 Oct 2008 13:19:25 EST Hi - glad to have found this team! Hi, <BR> I'm brand new on sparkpeople and just found this team. I saw the one for ibd but it didn't quite match my issues. I've had ulcerative colitis for 35 years now (since I was very young!). My doctor taught me at a young age not to let it bother me, and it hasn't (very much). I know I don't have a very severe case of it and am grateful, but I also didn't know what I was doing for most of my life. Just eating whatever I wanted and usually having D! <BR> <BR> Well, two weeks ago I had a ... Sat, 6 Sep 2008 17:21:22 EST can UC be gone for good? I was on the CCFA Bulletin board and someone made a comment asking if their UC could be gone for good. I can't find the thread now but I was wondering the same thing. I asked the doc how long my daughter would have to be on meds, he first said indefinitely. Later he said that if you were symptom free for 5 years they would take the meds away. <BR> Does this seem the same as what you were told? Tue, 15 Jul 2008 12:50:45 EST I have never heard... I have had UC for 4 years. I am currently in a really bad flare up! I have never heard of the blood type diet? Is sugar hard on the colitis! I am a vegetarian and I have a really hard time. Right now I am on vegatable broth to try and ease this last flare up. I was so glad to have found you guys,I have needed some answers that I just did not have a clue on. Thu, 10 Jul 2008 18:32:20 EST HI! I'm new and have a dumb question... I've had UC for 10 years now, but have not ever met anyone else who had it. I'm so glad to have found you guys! I was wondering...having just started this new "diet" thing....and please don't think I'm totally dumb...but, does anyone know how increasing fibre affects colitis sufferers? Does it cause more gas and diarrhea? <BR> <BR> Thanks so much! Sat, 28 Jun 2008 22:17:36 EST daughter just diagnosed :( I am glad to have found this team. My 12 year old daughter has just been diagnosed with ulcerative colitis. Actually we are waiting on biopsy results to try to distinguish it from Crohn's. <BR> She was in the hospital for 3 days with IV steroids, then sent home with a pic line for another 6 days. We switched to oral prednisone now along with Imuran. <BR> She seems to be doing fine, no blood, no diarreah. Our follow-up appt is next week. <BR> I have walked around like a zombie ever since. I am... Tue, 10 Jun 2008 11:13:19 EST I am new Holy cow I am so glad I found this group, when I first signed on here there was no ulcerative colitis group, so I am glad there is now. I am 26 with 4 children. I have had ulcerative colitis since I was 22 but just recently got diagnosed with it about 4 months ago, I had been bleeding for a long time and they could not find the reason until I had a form of a colonocopy. Sat, 24 May 2008 13:29:21 EST no loseing any weight I lost 30lbs last year on weight watchers before I had UC. I decided to try this after my last flare up ended and have not lost a single pound and have been dilligently working out and following everything. Because I am new to UC I was not sure if it was that of just a plateau. I am not on any medication because I have a reasonably mild case and only have flair ups a couple times a year. If anyone has any advice it would be helpful. Wed, 23 Apr 2008 08:43:00 EST I used to have UC - now I have a J-pouch Hi - this was the closest group I could find to join that might understand what I am going through. I had UC for a long time and finally lost my large intestine to the disease about 5 years ago. Now I have a J-pouch and it is afflicted with chronic pouchitis, which means I still have inflammation in my intestine. As my Dr put it - "I didn't completely cure you". So now I take cipro every day - thanks god I didn't have to take prednisone - and I have to eat a low fiber diet. <BR> Yeah - low fi... Tue, 22 Apr 2008 12:24:45 EST UC is beatable Hi! I hesitated to join this group because although I suffered terribly with UC from the age of 5 until I was in my 30's I no longer deal with the bleeding, diarrhea, or pain of the disease. They say I am in remission, but I would rather think I just don't have it anymore. From a very young age I was on all sorts of medication (sulfa, cortisone enemas, donnatal, prednisone, etc) and none of them helped me at all. I became very anemic to the point that doctors did not know how I could continue... Sun, 6 Apr 2008 14:30:39 EST hello just saying hi <BR> <BR> i was diagnosed 6-7 years ago. My UC is a bit odd in the sense that i have server constipation (yuck) when i have a flare up- sometimes it takes weeks to become completely empty. I have extreme fatigue when this happens and because of the build up I have pregnancy like bloating (which is not that attractive...when you are not pregnant. the bloating and the pressure actually push on nerves which cause my right leg to go numb...when I have flare ups my legs often feel ... Sat, 22 Mar 2008 00:54:41 EST new to uc Hi, my name is katie. I just joined spark yesterday and came across your group. I was just diagnosed with UC in may of 07, and I currently have the option to take meds because it's a mild case. I'm really just looking for support and information on this. My mom is scared to death about it and likes to tell me all the bad things that because of it. My fiance is very supportive but dosn't really understand and like to cook the fatty foods that trigger flare ups. I am getting a pretty good unde... Fri, 21 Mar 2008 09:33:26 EST Intro and THE DRED PREDNISONE question. Er... "dread," rather. LOL <BR> <BR> Hi everyone. I'm Heather, and I was diagnosed with UC in February of 2006. I'm currently in remission thanks to Remicade and 6MP. I'm on a quest to be as healthy as I can be with my condition, and that means losing some of the weight I've gained since I got sick. <BR> <BR> My question is this: I have Remicade treatments every eight weeks. For those unfamiliar with the process, I have to take 20 mg of Prednisone the day before, the day of, and the day aft... Thu, 6 Mar 2008 21:36:29 EST New Member glad to find this team Hello everyone my name is Christine. I’m a 31 year old single mom of a 1 year old. I have been living with UC for 18 years. I was around the age of 13 when I first had problems, and it scared me to death. I would not even tell my mom till it got to a point I had to. For the next 4 years I was in and out of hospitals with flare ups. After becoming an adult it would come and go every few years. I was told several years ago that I would be on medicine for the rest of my life. In 2005 I stopped t... Sat, 23 Feb 2008 11:37:26 EST NEW MEMBER Hello. I am a new member to this team. I was diagnosed with about 4 years ago. I don't take my meds regularly (Asacol) because I don't see any changes when I take them. I am looking in to more holistic approaches. <BR> <BR> The first flare up I had, which caused me to get diagnosed, I thought I was dying. It felt like the Alien was trying to come out of my stomach. It was even worse than giving birth--and I thought there was no pain worse than that. Since then I haven't had a flare up... Fri, 1 Feb 2008 07:00:52 EST New Member Hi, my name is Janelle and I was diagnosed with UC 12 years ago and this is my longest time without a flare up which is now 6 mths. Other than being flare up free during my two pregancies, this is the longest. I am not on meds anymore. They didn't work and I was tired of being huge from the Prednisone. So, I use the Rowasa at really bad times. But, I have found that losing the weight and low stress is the key. Which this is hard! I am a worry wart. I worry about my family along with the worl... Thu, 24 Jan 2008 15:43:29 EST NEW MEMBER I am glad to have found this fantastic resource for both diet and talking to others with the same chronic illness. I have had UC for about 5 years. I have been drinking green tea for the last several months and this seems to help lessen the need for my Asacol. Mon, 21 Jan 2008 10:09:34 EST hey can any here help me with a problem hey i just found the site and glad to i always wanted to chat with ppl that know what i'm going through . <BR> i've had uc for almost 2 years now i am on Med's and i get flares all the time, but i was wondering if anyone knew what to do about the anxiety that goes along with the uc <BR> it's been a persisting problem that i just can't cope with and its hurting my life, can anyone help? <em>39</em> Sun, 20 Jan 2008 02:34:53 EST New member Hi. My name is Stacy. I was recently diagnosed with Colitus. I am trying to manage my weight and diet to alleviate the symptons and hopefully stay off the stronger medicines. Thu, 17 Jan 2008 20:29:56 EST Weight Loss after Prednison <em>15</em> <BR> I find that my weight yo-yo's with this disease. They actually think I may have Chrons but I have had chrons/colitis for 10 years now. I am 27 years old and currently at my heaviest. I am 5'5 1/2 at 171 lbs. (10 lbs from the last two weeks on prednisone) How do you cope with trying to loose this type of weight? What works for you? I find I am constantly struggling with it. Any advise is welcome!!! Wed, 9 Jan 2008 12:04:04 EST Weight Loss after Prednison <em>15</em> <BR> I find that my weight yo-yo's with this disease. They actually think I may have Chrons but I have had chrons/colitis for 10 years now. I am 27 years old and currently at my heaviest. I am 5'5 1/2 at 171 lbs. (10 lbs from the last two weeks on prednisone) How do you cope with trying to loose this type of weight? What works for you? I find I am constantly struggling with it. Any advise is welcome!!! Wed, 9 Jan 2008 12:00:22 EST new here hi, im Katt, and new to this site. im 26 and was diagnosed with UC in 2005. im looking to lose between 15 and 25 pounds, regain my energy and muscle tone! i somehow lost those along the way:) Sun, 6 Jan 2008 18:02:09 EST