SparkPeople Restless Leg Syndrome/Willis Ekbom Disease Team Messageboard http://www.sparkpeople.com/myspark/groups_individual.asp?gid=14908 Gotta move those legs? Are they keeping you awake at night? What helps? What doesn't? Here's a place to ask questions, offer support or just chat in the wee hours when nothing else seems to work.... SparkPeople Restless Leg Syndrome/Willis Ekbom Disease Team Messageboard http://www.sparkpeople.com/assets/nav/nav_logo_v3.gif http://www.sparkpeople.com/myspark/groups_individual.asp?gid=14908 New Member--Is anybody home? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x74167320 Looks like this isn't a very active group. I just had another bad night with RLS and came here hoping to find tips. Requip DOES work for me, but I'm pretty much useless the next day with grogginess. Mon, 10 Aug 2020 18:15:51 EST Is this team still active? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x63112623 Hi there, <BR> I suffer from restless legs and iron deficiency anemia. I also have epilepsy and had thyroid cancer. I'm wondering if this team is still active as I would love to find what others are doing to tackle the restless legs. Thu, 3 Dec 2015 09:09:34 EST Trying Something New! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x60683272 Having entered the state of Menopause, I'm finding difficult to take off the weight. So I'm giving Bob Harper's (from The Biggest Loser) Skinny Meals plan a try. Not only do I feel better, but I lost 4 pounds my first week. It is a lot of planning and prep, but totally worth it! Tue, 17 Feb 2015 07:51:01 EST Has anyone found Cymbalta helps their RLS? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=17396x14908x59647974 I've just started taking Cymbalta for depression but have been told that it could either make my RLS much worse or much better. Any experiences? Mon, 3 Nov 2014 07:10:10 EST Message Removed http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x59375556 Message Removed Mon, 6 Oct 2014 11:27:01 EST Message Removed http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x58865728 Message Removed Sun, 17 Aug 2014 11:07:02 EST Message Removed http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x57729637 Message Removed Fri, 2 May 2014 11:18:15 EST Hi! I'm new to this Team Forum http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x55925367 I was diagnosed with both Obstructive Sleep Apnea and Restless Leg Syndrome about 17 years ago while spending a night in a Sleep Lab. I've been on various drugs to relieve the symptoms. Within a few minutes of sitting my legs will often "itch" and I start wiggling them back and forth or put my feet up on my toes and jiggle my legs up and down. It is difficult having a nap in the daytime which I sometimes need with other chronic conditions because within minutes of laying down, my legs will... Mon, 9 Dec 2013 19:38:46 EST How is everyone doing? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x55541929 Loved to hear from you all! Wed, 6 Nov 2013 18:03:31 EST Message Removed http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x55478955 Message Removed Fri, 1 Nov 2013 18:22:10 EST Getting back on program http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x54801787 I've again, failed miserably at leading this team. I promise to do better. I have gained some weight back too as a result. Goes to show if I stay active (have been doing SparkCoach, but it's not enough) I keep the weight off. I VOW to get back down to where I was. <BR> <BR> Let's do this! I know I can! Fri, 6 Sep 2013 09:09:45 EST So sorry! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x53710607 I have been busy and away from SparkPeople for a while. I'm back and will try to stay active. Hope you are all well. Wed, 12 Jun 2013 09:18:00 EST 50# in 2013 http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x52440245 no more excusses im ready to lose these 50# and it begin today Fri, 8 Mar 2013 08:59:31 EST 2013 my time http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x52120225 hi my name is cyndi im 56 yrs old im married to my best friend i have 2 children and 2 grandchildren i like to read i have alot of medical problems and i know by losing weight and changing my life style i will live a longer and happier life and beable to spend the time with the grandchildren Thu, 14 Feb 2013 08:40:35 EST Introduction & a question please http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x51235888 Hi, I joined the team because my daughter is having what I think may be symptoms of RLS. <BR> <BR> Have any of you every felt that your "toes" wanted to jump off of your feet? (My mother and sister have RLS and they tell me they have to keep moving their legs and they have sometimes said they felt like their legs wanted to "jump off" but not their toes.) <BR> <BR> My daughter feels she needs to move her feet, but she said it doesn't help when she moves them. She says that if her toes has ... Sun, 16 Dec 2012 22:51:24 EST Do you experience this with your RLS. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x51186323 I found a couple of triggers that send my RLS symptoms into high gear: <BR> <BR> 1. If my foot or feet fall asleep from sitting incorrectly I have RLS symptoms for the rest of the day and sometimes into the next one to two days. <BR> <BR> 2. If my feet get too cold, I have the same result. <BR> <BR> Do any of you experience this? <BR> <BR> Wed, 12 Dec 2012 15:32:41 EST Do you have Fibromyalgia too? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x51186305 I was diagnosed with Fibromyalgia last year and I recently heard that RLS typically accompanies Fibromyalgia. Do you agree with that and/or have you been diagnosed with Fibromyalgia as well! <BR> <BR> I am very curious to find out and even maybe learn what other medical conditions you have to contend with on top of RLS. Thanks in advance for your help! <BR> Wed, 12 Dec 2012 15:30:11 EST Good Night Last Night http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x51174499 My legs didn't bother me much last night after taking .Mirapex. Got a really good night's sleep Tue, 11 Dec 2012 17:24:11 EST New to Group http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x51159347 I have had restless legs for a long time. If fact, most doctors had no clue what the problem was and I had never heard of restless leg syndrome. Then I saw it mentioned in a magazine and knew immediately that was what was wrong. Years later, I had a sleep study done and was diagnosed with what I already knew I had. <BR> <BR> I would classify my problem as severe. Without my medication, I really cannot function. I get 20-30 mnutes of sleep at night and that is not all at once but a few m... Mon, 10 Dec 2012 13:21:21 EST November Challenge! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=24550x14908x50646565 The November Challenge for the RLS Support Team is very basic, simple, and is also the core of our weight loss progress and goals. <BR> <BR> NOVEMBER CHALLENGE: <BR> Log and and track every "Bite, Lick, Taste, or Drink" (BLTD) that enters your mouth on your SparkPeople Account. Be sure to JOIN the Team Goal so we can track how you do. The winner will be crowned KING or QUEEN for November. <BR> <BR> Good Luck! I know you can do this. <BR> <BR> <em>306</em> ! <BR> <BR> Gigi <BR> Leade... Thu, 1 Nov 2012 16:13:00 EST What's are some things on your bucket list? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=24550x14908x50457110 Hmmmmm....... <BR> <BR> I want to run a marathon. Fri, 19 Oct 2012 09:22:04 EST Change the word. Change or rearrange one letter. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=24550x14908x50305652 Starting Word is - card <BR> <BR> First change - care Mon, 8 Oct 2012 22:21:31 EST What is your favorite dessert? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=24550x14908x50305389 Should I really ask this question on this site? Lol.... <BR> <BR> I love Creme Brûlée. YUM! <BR> <BR> Mon, 8 Oct 2012 22:04:45 EST What will you dress up as for Halloween this year? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=24550x14908x50287328 We do an outreach event at our church called, "Trunk or Treat." It is a safe and fun alternative to traditional trick or treating. We invite the entire community and all church members. Each person decorates the trunk of their vehicle with some sort of theme or prop(s). Children come by each vehicle and we hand out candy to them. Last year we made our trunk look like a pirate ship. My husband dressed as a pirate and I was his Pirate Mistress. <BR> <BR> This year, we are going to do a C... Sun, 7 Oct 2012 20:20:04 EST Tell about a proud moment in your life! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=24550x14908x50271449 I finally graduated from college with a Bachelor of Integrated Studies: English, Anthropology and Administrative Systems at the age of 50. I was also a multiple Honors student and graduated Magna Cum Laude, with Departmental Honors in English. <BR> <BR> My only regret was that my parents weren't still alive to see me graduate. <BR> <BR> Renie Sat, 6 Oct 2012 17:06:30 EST Most Embarrassing Moment http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=24550x14908x50269148 In eighth grade while working for the school office as an assistant, I was delivering a summons to a student who had to go to the office and leave campus for a doctor appt. <BR> <BR> In my walk to the student's classroom, I went by the classroom where my boy crush was. While still walking and staring into the classroom of my beloved I walked directly into a metal pole bumping my head, and it made the loudest noise; it echoed down the hall so loudly. The whole classroom of students, includi... Sat, 6 Oct 2012 13:16:03 EST Fun Facts About Me http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=24550x14908x50269116 Gigi is a nickname given to me by my kids. It stands for "Grandma Gina." Sat, 6 Oct 2012 13:12:43 EST When is Your Birthday? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=24550x14908x50269109 June 11, 1963 Sat, 6 Oct 2012 13:11:47 EST I'm new to this knee http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x50130310 Hi everyone, my name is Shirley. I have RLS and can remember having it as a child even. Over the years it has gotten worse to the point of having to take a pill every night. I just joined SparkPeople last week and just happened upon this team! I am so happy I did. I could really use some support. I don't know why the last 4 nights my legs have been bothering me even after taking the pill. Some nights I think I am just going to go crazy! Thu, 27 Sep 2012 09:50:42 EST Magnesium, rest, low stress, and exercise http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=17396x14908x49940710 My doctor recommends 250mg of magnesium twice daily, rest, low stress, and walking. I have been doing all of these for two months and have seen a huge improvement! On the days I do no walking, I have more symptoms. <BR> <BR> So worth it! Fri, 14 Sep 2012 23:16:40 EST Just diagnosed http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x49535206 Hello everyone, <BR> <BR> My name is Gigi and I was diagnosed with RLS about 3 weeks ago. What a nightmare! I have read some of your posts and think I am going to try Klonipin tonight to see if I can get some adequate sleep. It seems like a catch 22; RLS keeps me awake at night, and the more tired I am from lack of sleep the worse the RLS symptoms bother me. I also have Fibromyalgia which I believe to be often accompanied by RLS. I look forward to learning more, helping where I can, and... Sun, 19 Aug 2012 22:34:26 EST ready to begin again http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x49252694 hi my name is cyndi and im ready to make a lifestyle change once and for all Wed, 1 Aug 2012 07:15:19 EST Shake , twitch and roll...I'm new here. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x40417430 I'm new to the team but an old hand (leg) at restless leg syndrome. A lot of people with fibromyalgia seem to get it. I take requip for it and it's been effective for quite a while. One thing that I have noticed is that I absolutely have to take the requip between 8 and 11 or all bets are off. I may try to sleep but my legs twitch a marathon all night long. I wonder...does that count as exercise (just joking, of course!) Tue, 8 Mar 2011 08:46:06 EST Hi! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x39973993 Hi! My name is Sarah and I'm 25. My gramma, my mom, and my aunt have RLS and unfortunately, so do I. I have had problems with it for the last 10 years. I'm glad to have found this SparkTeam and hopefully learn some ways to cope without medication as I have no insurance to get meds and once I do, Hubby and I will be back to trying to conceive and won't be able to take those meds. Thu, 17 Feb 2011 00:22:50 EST Daily Motivation... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x39465539 January 26, 2011 <BR> <BR> ACCEPT CHANGE WITH A SMILE <BR> <BR> Sooner or later you'll experience a crisis in your life, and how you meet it will determine your future happiness and success. <BR> <BR> Since the beginning of time, everyone has been called upon to meet such a crisis. <BR> <BR> A closer look will show you that most "crisis situations" are opportunities to either advance or stay where you are. In fact, most changes in your life will take place out of either "inspiration" or ... Wed, 26 Jan 2011 14:25:40 EST Daily Holiday... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x39439898 A Room of One's Own Day (Jan 25) <BR> Delight in the private sanctity of your own space today. No matter how big or how small, a room of your own is a gift to be cherished. Tue, 25 Jan 2011 15:55:51 EST Hot bath for relief http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=17396x14908x39357232 When nothing else works and I'm desperate, I get in a t ub of hot water and sit. Most of the time it relaxes my legs, once in a while it doesn't. I don't know what I would do with out pramipexole (Mirapex). After years and years of suffering this is the only thing that helped, its not perfect, sometimes I have break throughs. It still has helped me so much. <BR> <BR> Don't know why recently in my posts some words show up in blue print???????? Sat, 22 Jan 2011 10:17:54 EST 2010 coming to an end... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x38652725 Wishing everyone much happiness in 2011!! Sat, 25 Dec 2010 21:08:04 EST Medicine http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=17396x14908x38220288 I have had RLS for 30 to 40 years, tried everything, been to many, many doctors. I now take Mirapex (pramipexole) and it helps better than any thing I have ever tried. RLs is a trial and error disease, what works for one may not work for another. Wed, 1 Dec 2010 08:49:56 EST needing sleep http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x37847289 HI there, I am back, Have been way too busy for this, but my legs are keeping me up for 3 nights now. I must get some sleep instead of walking the floor. I am able to sit at the pc for a bit, so I thought I'd ask what vitamins or something am I missing? One person said magnesium, but that' don't help, Then I am reading about iron. Guess I need to try that. <BR> I have requip, gabapentin lortab,prozac, etc. I can take those and no results. I have had 2 sleep labs and both come up with ... Wed, 10 Nov 2010 10:29:27 EST Idiopathic- Hypersomnia http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x37541244 Good morning: I hope we have a little discussion today. <BR> <BR> I was wondering if anyone has heard of or maybe has, idiopathic-hypersomnia, meaning unknown-excessive sleep. <BR> <BR> I just read about it from a fellow that posted on RLS.org. I have never heard of it before. This fellow was just diagnoised with it. He thought before that he had PLMD. But the doctors said no, he had idiopathic-hypersomnia. <BR> <BR> Doctors know little about sleep problems. To bad for us that have ... Tue, 26 Oct 2010 07:30:02 EST New shakey lady here http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x37180737 Hello, <BR> <BR> I'm Haley and I am so relieved to have found this Sparkteam!! I have had RSL since I was a little kid and being older now, I want to controll this. Thu, 7 Oct 2010 22:33:19 EST Yeah, me too... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x37092628 I actually have an appointment tomorrow morning to discuss my sleep study. They determined that I do not have sleep apnea but my legs keep waking me up allllllll night. So they proved what I already knew and are getting paid for it LOL Well now we'll see what they do about it. I am already taking requip twice a day (before sleep study). I am pretty sure he's going to put me on iron. I should mention, they are trying to keep the requip low since it can lower blood pressure and I already h... Mon, 4 Oct 2010 02:35:59 EST Hi- I'm new to team http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x37070476 Hello, I'm Jo I have had RLS since 2007. I'm 27 and live in nashville. Mine is pretty mild. I was on requip for a while but stopped taking it so it would be out of my system to start a family. My dr told me to wean off and start taking prenatal vitamins (i guess the iron helps or something) Now I rarely have symptoms. Yesterday I was diagnosed with a rare blood disorder. In my research on of the possible symtoms includes jerky movements of limbs- I've noticed that sometimes I get RLS feeling ... Sat, 2 Oct 2010 22:46:08 EST HELP! HOW DO I COPE WITH RLS W/O EATING? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x35371547 I have been getting RLS every night, and how do i cope? I get up and eat something. Cereal with milk, italian ice, whatever I have that is sweet and will get my mind off of the extreme discomfort and frustration I am feeling. Does anyone else have this problem, and how do you cope with nighttime sleeplessness, as well as the resulting day time exhaustion without eating? Mon, 12 Jul 2010 23:44:56 EST I found relief!!!!! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x35124100 I can't believe it! My doctor took me off ibuprofin for my fibromyalgia and put me on something called tramadol, which, I believe, is the generic for ultram? maybe? correct me if I'm wrong----anyway, for the first time in my life I can lay in bed and think: "My legs are content!" Because, I'm sure you know, even if you are relaxed and about to go to sleep and you think that, RLS will start! I tried other stuff, too, like mirapex, and it didn't work for me. I've had sleep problems all my life ... Wed, 30 Jun 2010 13:59:11 EST Another twitchy woman http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x34383773 Good day to all of you who have shared my restless legs and my pain. <BR> I am new to the site and have felt a bit odd talking about RLS to people. <BR> I take requip, ambien and use a C-Pap and still wake up twiching.After reading articles will try iron supplements . <BR> I wish you all a rest filled evening Tue, 25 May 2010 20:56:53 EST *waves hello* http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x34231259 I'm Monica a newbie to the team, but not to SP. 31 and had RLS for some time, though not 100% sure how long. <BR> <BR> I'm on Requip for it, but it's a love-hate relationship. It works, and stops the tingling, and let's me sleep, but if I don't take it with food, it makes me sick as heck. <BR> <BR> Glad to find a group for this here :) Tue, 18 May 2010 18:36:24 EST Another RLS sufferer here http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x33350574 Sorry that you all have the same horrible condition I do, but I am glad to have a group to discuss things with. I've had RLS since I was a child. But I didn't know that's what it was. Family would ask why I would sit there with my legs always bounching while I was watching tv, or laying on the floor playing board games. Now in my adult life, it has interferred with sleep, work, even sitting and reading or watching tv (still). Been on Mirapex, now on Gabapentin and taking extra iron. Been havi... Sun, 11 Apr 2010 01:17:04 EST Gabapentin http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x30634175 I have been on Requip for 5 years, and just saw the endless list of side effects. I now know why I have had such health problems for the past several years, including gaining 55 pounds. Saw the doctor yesterday and he put me on Gabapentin. From what I read, this drug has a lot of the same side effects. Has anyone taken this one, and if so, how have you responded to it? Thu, 31 Dec 2009 13:53:52 EST TEAM COMMUNICATION http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x30633579 Question: where is the team communication and <BR> support???? no one daily chats, no challenges. <BR> <em>39</em> Thu, 31 Dec 2009 13:28:48 EST Hi, I am new also. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x30418816 I have had RLS for several years now. It's gotten so much worse and now the legs want go go all day, sometimes I get it in my arms also. So far nothing seems to help, I am on Requip and the Dr. keeps raising the dose, which doesn't help. he just now gave me neurontin to see if that helps. I have have many surgeries, back fusion, hips, I wonder just how much that has to do with this problem. Knowing won't help but any advice might. Many years ago quinine was good and I could get it over ... Sat, 19 Dec 2009 14:26:33 EST Hello - I'm new to Twitchy Legs and SparkPeople http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x30415568 Good Morning: <BR> <BR> My name is Louanne, and I'm new to this group and SparkPeople. I will be hitting the ground running come the first of the year. I have suffered from RLS for 25 years. At first they thought it was MS, when they didn't know what RLS was. I have taken Requip for about 5 years, and am up to 5-6 mg. per day. Just two nights ago I read the side effects of this drug and realize it could be the main reason I have put on 55 pounds in the past 5 years, along with some othe... Sat, 19 Dec 2009 10:31:44 EST help our soldiers for Christmas http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x28803462 HI!!! My daughter is in the Army, her unit went over seas to Iraq this past August. Thanking God daily that she is NOT one of them. But her unit is, So I am asking anyone who wishes to send holiday greetings or holiday items to these men and women to please do so. here is the APO addy for them. just put on it "ANY SOLDIER" It will be distributed to them. If you have female things then put women on the label. <BR> <BR> Thank you in advance for all of our children serving our country Tracy <B... Fri, 2 Oct 2009 06:47:40 EST Hi I'm new http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x25405793 I have terrible RLS at night. I have to keep 'stretching' my feet to the point where the muscles on the tops on my feet are very sore. I can get up and walk the house for hours and I'm so tired I could cry. I've tried things like mirapex, red rice yeast, and quinine but they haven't helped. I'm interested in what others have tried! Thanks Sat, 9 May 2009 14:42:54 EST New to the Team http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x25154654 Nice to see I'm not alone with the RLS. Mine always acts up at the most inopportune times....during meetings, during my train commute home, and of course when I'm ready to go to bed. I feel like a 2 year old who can't sit still ... it can be embarassing. Thu, 30 Apr 2009 10:59:58 EST Bye http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x22022089 <em>253</em> <BR> Not too much activity in this group except daily posting of points and trying to 'clean up' so I can focus on just a few groups. Wish you all well and take care! Dee Mon, 19 Jan 2009 06:41:48 EST New symptom http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x21735019 In addition to my legs feeling "twitchy/crampy/jumpy/achy" (I never can come up with the right description) I have now been getting similar sensations in my feet. Does anyone else have this problem. It's definitely new for me, as in the past, only my legs seem to have been the problem. Sun, 11 Jan 2009 13:57:51 EST Natural or Herbal Solutions - what has helped you? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x21729125 Here's another thread for any herbal or other natural solutions you have found helpful. Is there an herb or product you use that has helped your symptoms? Do you have a link to information about it? Sun, 11 Jan 2009 10:56:25 EST Diet Strategies - what has helped you? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x21729086 I was wondering if there are any diet strategies we could share with each other. What specific changes have you made to your diet - add or remove - that has helped your symptoms? <BR> <BR> We have a thread on meds and perhaps we can start other threads for non-diet or non-med related solutions. Sun, 11 Jan 2009 10:55:09 EST Old Member Intro http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x21445649 Hi - recently found out my spark page and posts are open in a google internet search of my user name. For that reason I've changed my user name but by my profile photo of my kitty you should recognize me. Just wanted to post so you'd know... :) Sun, 4 Jan 2009 09:22:15 EST Ace Bandages? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x20863317 Anyone else find that wrapping the legs in ace bandages helps calm RLS? I've tried that too in times past and it helps. Have to try that again. Thu, 11 Dec 2008 06:13:59 EST Wine... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x20863311 does anyone else find that wine aggrevates RLS? <BR> <BR> Love my glass of wine at dinner and had given it up in times past and found my legs a bit calmer at night. Recently going through a bad RLS spell again and gave up wine and legs are a BIT calmer at night. Thu, 11 Dec 2008 06:13:10 EST New here from New Zealand http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x20804849 I was blown away when I saw this team and read the information here. I have had twitchy legs on and off since I was a teenager but never mentioned it since it wasn't a problem then, just weird. It is getting much worse now I'm 53. Some nights I just want to cry with frustration when my legs jerk in big spasms for hours when I'm trying to relax. <BR> <BR> I have mentioned it to doctors, but they don't take any notice, just blame it on diabetes or MS, although this started long before I had ei... Tue, 9 Dec 2008 06:12:52 EST Hi I am new here also http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x19257761 I am glad I found this team. RLS is horrible. I can be dead tired and not be able to sleep because as soon as I hit the bed my legs start this involuntary movement. I feel like I could run a marathon, but the rest of me would get left behind. Looking forward to getting to know all of you! Sun, 12 Oct 2008 00:39:39 EST How many points from the wheel today? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x19233077 Post here how many points you got on the wheel today. <BR> <BR> Today I got 1 <em>46</em> Fri, 10 Oct 2008 20:00:09 EST Hello, I am new here http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x18906525 Hi, Ijust joined and hope to find lots of info and support, I have several medical things wrong with me, but my restless legs drive me the most crazy I think. I also feel bad as I am sure that though my hubby is one of those people that can sleep through anything that my moving around so muh has to disturb his sleep. I was put on gabapentin about 2 months ago, It does help me as the dosage has increased, I am currently on 800 mg. at bedtime. <BR> Anybody else on this? <BR> Looking forward to ... Mon, 29 Sep 2008 15:02:40 EST Introducing: Wilma http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x17373038 Hello friends: <BR> <BR> I'll try to write you an introduction to me that kinda explains me. I was born in the Netherlands in 1954 and immigrated to Canada in 1976. I live in Lethbridge, Alberta Canada. I have never been at my "ideal" weight. I entered the world at 10 lbs. and have been growing ever since, except for the period with diet centre, when I got down to 200 lbs. and gained it all and more back. I have been on low call diets on and off since I was a young teenager. I also hav... Mon, 4 Aug 2008 20:42:20 EST Hi I am new and think I might have RLS http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x17061063 Hello, I look forward to getting to know each of you and learn more about RLS. I just seem to have urges to move my legs at night when I am trying to fall asleep. Like a jerking feeling and no matter what I can't resist moving. I have been having to take tylonal pm at night to settle down and sleep. This is all new to me and am hoping to get some help. Fri, 25 Jul 2008 20:39:06 EST Magnetic Therapy http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x17009138 Has anyone else tried to use a magnetic anklet to help their RLS? Did it work? Thu, 24 Jul 2008 11:17:53 EST New to the team http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x16343412 I just found the team. Untill a week ago I was doing very well in not haivng issues. But this whole week I have not slept much at all. I hate dealing with my legs. I was wearing a magnetic anklet and that was helping but it seems that it either is no longer working or it is just getting worse. Oh my name is Melissa. Wed, 2 Jul 2008 09:43:28 EST new to group, not RLS. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x15163301 I've had RLS since I was a little girl, but back then it didn't have a name. Finally I have an answer for this crazy feeling! Fri, 23 May 2008 11:18:13 EST Hi I'm New http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x14891336 Hi I have had Restless Legs for at least 5 years now I am sure alot of it was because I am Obese and maybe losing weight will help. Well I am working on the losing weight but I still would like to find something to help my legs. I have some nights where I can't sleep at least till 4 or 5 in the morning. I need my sleep. I just can't take thins anymore. But I don't really want to take another medication. Tue, 13 May 2008 16:36:52 EST IMPORTANT ANNOUNCEMENT! New team leader! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x14397399 <BR> <em>215</em> <em>215</em> <em>215</em> <em>215</em> <em>215</em> I just wanted to let you know that Sharon (SYSSRV) has stepped up and will be the new team leader. <BR> <em>235</em> <BR> I have some new obligations that are taking up so much of my personal time...I am really pulling back from Spark teams, and keeping my time on the computer limited. So...knowing that you all deserve more than I can offer at this point in time, I am thrilled that SYSSRV is taking over! <BR> <BR> ... Sat, 26 Apr 2008 20:17:01 EST Yep, I am new http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x14268778 Hi all. My name is Karen. I've had RLS for many years and didn't know what it was until about 7 years ago. I hate it. I'm on Requip for it and it seems to work. Doesn't help that I have osteoarthritis in my knees either. I didn't even know that there was actually a name for what my legs were doing until this lady asked my if I had RLS. Of course I said what is that. She explained it to me and "omgosh" I had it. Tue, 22 Apr 2008 15:55:23 EST New to the Group http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x14201549 Hi,In the past 6 months, I have been diagnosed with RLS. It was discovered in a sleep study. So, at night, my sats were in the low 80% and my legs were moving every 1 1/2 minutes. So, I am now on a CPAP and mirapex. I was on requip, but that stuff really hit me hard with the other drugs I am on, so I had to discontinue it. The mirapex seems to be giving me some GI problems, but hopefully, they will settle down. I am anxious to see if anyone has ideas besides the medications to treat thi... Sun, 20 Apr 2008 16:56:34 EST I'm new to this team! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x13995543 I've had RLS for several years now. My mother has it, but not as bad as I do. My grandmother had it, and it probably caused her final demise after she had her leg amputated from gangrene. The nursing home didn't notice it on her heel after she fell and broke her hip. I bet she was constantly moving up against the bedpost from RLS! <BR> <BR> I take Requip for mine which aggravates my issue with weight loss since it upsets my stomach when I take a hold tablet so I eat something when I go ... Sun, 13 Apr 2008 18:57:48 EST naked legs anyone ? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x13682861 Does it make a difference to anyone else whether their legs are wrapped in pajama legs/gown or bare? If I have clothing on mine it's much worse than just loose bedclothes. <BR> Ghislaine Thu, 3 Apr 2008 21:19:02 EST Welcome new members! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x13518501 Usually I try to welcome everyone individually. Each of you becomes so special to our little team! But I have had a lot going on as of late and have not had much free time to spend on the computer. <BR> <BR> So, all of you newbies, you're just going to have to settle for a group welcome! and here it is! <BR> <em>229</em> <em>229</em> <BR> <em>235</em> <em>235</em> <BR> <em>229</em> <em>229</em> Sat, 29 Mar 2008 20:47:42 EST Welcome new members! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x13518497 OOPS COMPUTER PROBS! DO NOT REPLY! Sat, 29 Mar 2008 20:47:35 EST Welcome new members! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x13518495 OOPS COMPUTER PROBS! DO NOT REPLY! Sat, 29 Mar 2008 20:47:28 EST Welcome new members! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x13518493 OOPS COMPUTER PROBS! DO NOT REPLY! Sat, 29 Mar 2008 20:47:23 EST Welcome new members! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x13518490 OOPS COMPUTER PROBS! DO NOT REPLY! Sat, 29 Mar 2008 20:47:15 EST Welcome new members! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x13518483 OOPS COMPUTER PROBS! DO NOT REPLY! Sat, 29 Mar 2008 20:47:05 EST sodium http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x13474428 Good morning. In my intro I mentioned that my legs had been horrendously worse since I went on a salt binge last week and that they used to alway be that way before I reformed my eating some. Since then I have flushed out a lot of the fluid retention and I feel a huge difference even in the daytime. Last night I slept more and better. I don't know whether it is related but I definitely feel motivated not to find out the hard way. No more salt attacks. <BR> Ghislaine Fri, 28 Mar 2008 07:04:28 EST what a find! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x13376094 Hi! I'm 52, mother of two grown kids, stepmother of two grown kids, owner of a cat (or is it the other way around?). Had RLS for years including several years of horrible arm movement. I recently went off all prescription drugs I was taking for other things. Used to take Klonopin for this but had to stop for other reasons unfortunately. Last week I went on a salt binge for the first time in two years and now I am going bonkers with this, which led me here... <BR> Ghislaine Mon, 24 Mar 2008 21:32:44 EST Hi---another newbie http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x13362775 I'm from the Seattle area. I've been married for 41 years and have two grown children and 4 grandchildren. I have 100 pounds to lose and I have several chronic health problems. I've had RLS for about 5 years and am on Mirapex ---2 tablets 3 times a day!! I'm waiting to get in to see the neurologist but because I haven't been in since 2004 I have to see his nurse practitioner in May! Mon, 24 Mar 2008 13:29:42 EST HI....I'm new http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x13342903 Hello all.... <BR> <BR> I am 46 yrs old. I have been married for 16 years and I am the mother of 3 beautiful daughters and one handsome grandson. <BR> <BR> My goal is to lose 100 lbs and be a mentally and physically happier person. <BR> <BR> <BR> <em>213</em> Sun, 23 Mar 2008 17:31:26 EST tossing and turning newbie http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x11775028 Hello everyone!!!! I can't believe I found this site!!! I have been up all night and now all day with rls. no matter what I do, they will not stop. I have eaten a banana, drank milk, hot shower, massaging them. ugggghhhhh! <em>198</em> Tue, 29 Jan 2008 11:15:25 EST Weekly Check In..... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x11688819 Good morning, all.... <BR> <BR> I thought it would be great if we check in with the team from time to time...perhaps on a weekly basis. Share a little about ourselves (not just about our nutty legs!) and provide support in ALL areas of our lives. <BR> <BR> I'm going to start, and hope you'll all join in so we can get to know each other.... <BR> <BR> I've had a weird week. Started by a lazy, REALLY lazy, weekend on the coast. We hadn't been to our home there since the big storm and were thr... Sat, 26 Jan 2008 13:23:55 EST Mirapex Issues http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x11482939 Is anyone here on Mirapex?? If so, do you have any problems with compulsive behavior? <BR> <BR> I've been on Mirapex for almost a year now and I'm finding myself having shopping and food issues that I've never had before. I almost feel like I have ADD along with OCD. Ugh :( <BR> <BR> Sun, 20 Jan 2008 08:22:02 EST Worse after exercise??? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x11321526 So yesterday I started week one of the couch to 5K challenge. It wasn't bad other than it was freezing cold and I only got through 20 minutes of the 25 minute challenge before I couldn't feel my ears and my inner ear was hurting (note to self... Wednesday do it inside in the gym!). <BR> Anyways, so after ward my legs were really bad and were having muscle spasms even though I stretched them really good before and after. <BR> Does anyone else have this problem or am I just a freak of nature (... Tue, 15 Jan 2008 09:03:04 EST Computer crashed http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x11021935 Just a quick note from a friend's house. My laptop crashed big time...it was old and past its prime. So no surprise. I can check stuff at work on a limited basis....but you may not be seeing me until I get things squared away. <BR> <BR> Hubby is taking me shopping in a little while. <BR> <em>17</em> <BR> I'm eating well. Still going strong! Sun, 6 Jan 2008 16:09:38 EST Newbie here http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x11018951 My name is Bekah. I am 26 and I am here to lose about 50 pounds. I live in Michigan with my husband, brother, and 3 kids <BR> It is so cold and my motivation went south with the warm air. <BR> I am not very good at tracking my food, it takes time which I don't have a lot of. <BR> I have a gym membership but I haven't been in a while. I need help motivating myself to do the things I need to do! <BR> I really hope that SP will help me. <BR> Good luck to everyone and myself as well!! Sun, 6 Jan 2008 14:15:57 EST intro http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x11003675 well! the day finally slows down enough for an intro lol. <BR> <BR> my name is lizzy, and i've been dealing with rls for several years now. my grandmother and mother had it, and perhaps other relatives as well...so it was fairly inevitable that i would have it, too [then again, there's not much that our medical history DOESN'T have lol] <BR> <BR> most of the time i can deal with it and it's no problem, but sometimes it just rears its ugly head and it's hard. i want to ask my doc about mirap... Sat, 5 Jan 2008 22:36:09 EST Houston heebie-jeebies http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x10978947 Hello from Houston! I was diagnosed with RLS a few years ago. I've had symptoms for most of my life, but my grandmother always just called it the "heebie jeebies" and I thought it was just a normal symptom of being tired. Little did I know that there were medications for it. I take Requip to control my RLS occasionally, but may start it full-time since it seems the symptoms are getting worse and occur almost every night. I'm glad I found a group of similar folks here on SP. Great to mee... Fri, 4 Jan 2008 23:35:55 EST HI from Illinois http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x10876391 I have severe restless leg sydrome and been suffering with it for at least 10 years. I take Mirapex which help a lot, but it is very expensive and I just lost my job and my health insurance. Lately, my symptoms have gotten worse. I sympathize with everyone here. This is a very uncomfortable and sometimes debilitating condition. <BR> <BR> Blessing to all. <BR> <BR> Candy <BR> <BR> Tue, 1 Jan 2008 21:34:38 EST Hi From NC http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x14908x10273558 Hello, sorry I haven't introduced myself yet. My name is Yvonne or Von for short. I was diagnosed with RLS 10 years ago. Have tried many different meds but the only thing that works for me is Mirapex 3 X a day. Add on Raynauds Disease, Arthritis and horrible bunions and gosh I feel a lot older than 54! But all things I have learned to live with it. I am married 36 years (to the same man!) and work full time plus have a closed aviary business with 25 birds! Gosh I'm making myself tired!! Just ... Mon, 26 Nov 2007 21:11:54 EST So what is working for you? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x9604097 I started this team, because my legs were literally making me crazy! I was power walking daily, and then couldn't sleep at night. I am amazed at the responses I have been getting, here, on a couple of threads where I posted the start of the new team, and privately. <BR> <BR> Magnesium. Several people mentioned that has helped them....what is YOUR experience (if any) with it? I still haven't tried it. <BR> <BR> My legs have settled down...why? Seems the power walking (good for me, and bad f... Sat, 20 Oct 2007 13:00:39 EST They're driving me CRAZY! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x14908x9486858 I have never been officially diagnosed with RLS, but for the past 25 years, I've known I had it...It feels like my thigh bones are being tickled...the twitch, the urge to move, the need to stretch. <BR> <BR> Until recently, it's never been a big problem. I'd occasionally have difficulty sitting through a concert or theater performance if I was tired, and sometimes when I first went to bed, I would have to get up and walk a little or stretch my thighs to get them to settle down. <BR> <BR> L... Sun, 14 Oct 2007 13:07:13 EST