SparkPeople Sleep Apnea Team Messageboard A place for those dealing with Sleep Apnea SparkPeople Sleep Apnea Team Messageboard July, August and September 2019 Sleep Chat Hi everyone. Trying to rustle up some lurkers with a new chat thread. <BR> <BR> Went to a fun bridal shower yesterday. We wore crowns with celebrity names on them. GD won in less than five guesses. She had Elvis. I had Lady Gaga. I do admire her. When her and Elton John sang together, I got goose bumps. It was quite beautiful although her get up was over the top. But then Elton John always used to dress over the top too. <BR> <BR> Only two more days till the cruise and then I ma... Sun, 23 Jun 2019 16:45:18 EST Article - CPAP is spying on you .... <link><BR>105/how-insurers-are-profiting-off-pat<BR>ients-with-sleep-apnea </link> Fri, 24 May 2019 18:10:35 EST 2019 Cleaning Reminder This list is a compilation of many sources. Please let us know your routines and how that works for you. <BR> <BR> Time to wash and change filters, do a thorough equipment check and cleansing and order replacement parts. <BR> <BR> Cleaning checklist: <BR> DAILY: Wash all pieces of mask with soap and water and rinse out hose. Change water in humidifier. <BR> WEEKLY: Scour humidifier tank, wash hose with soapy water, check filters <BR> MONTHLY: Wipe down machine, change and wash filters ... Tue, 23 Apr 2019 12:18:05 EST Great new Sleep Tracking Device The Precious, the One Ring to Rule them all !!!! <BR> <BR> Hi Sleep Apnea Team! I was semi-active 8 years ago, and just recently came back. I really want to share this with the team in case it can help anyone have a better nights sleep! <BR> <BR> My Oura ring came in!!! It is an amazing tracking device, which tracks sleep amazingly well. I have severe sleep apnea and insomnia and need all the help I can get to sleep, so I am soooo excited. It is pricey, but if you have a problem with slee... Wed, 27 Feb 2019 09:22:21 EST Wedge pillow Sorry I haven't been on in awhile! <BR> I wanted to update about how using the wedge pillow is going. I bought a wedge pillow from walmart and been using it for over a month now. My respiratory therapist recommended sleeping with my head elevated when I told her about my nasal inflammation, because I am generally the most inflamed while sleeping or after sleeping. I'm on four allergy medications that just don't help enough help sometimes. I don't know how to explain how the pillow works but I... Tue, 12 Feb 2019 18:23:26 EST December 2018, January, February 2019 Sleep Chat Welcome to the newest chat thread. It is winter here, but not for everyone, so thought I would just make this chat thread good for three months. <BR> <BR> Struggling mightily with all the fantastic food. However, the sleep is really good. So no complaints there. <BR> <BR> Do you have exciting plans to share for the holidays? Is this a hard time of year? How do you cope? Sun, 2 Dec 2018 22:14:40 EST Is anyone seeing a Sleep Specialist soon? If so, could you please ask if it is o.k. to put a few drops of Lavender Oil into the Water Reservoir? <BR> <BR> I read from someone unqualified that it COULD cause issues in the lungs given the long time they would be subject to the vapour that it gives off. I just thought it might give a more restful sleep for those times where sleep is a problem re stress, etc. ... that is NOT caused by Sleep Apnea <BR> <BR> Thanks, <BR> Kris Mon, 15 Oct 2018 05:17:19 EST Autumn 2018 Sleep Chat Hello Folks, <BR> <BR> If you can see this post, can you check in with a wave or smile or an update about your life and cpap use. Thanks so much. It will help me to see who is still out there. <BR> <BR> All well here. I am liking my new Dream Station apap. It changes pressure as needed. That is a big help. Also the Epson mask is a whole new world in masks for me. <BR> <BR> Just returned from a three day whirlwind around the Olympic National Forest. I got to hug some really big ... Sat, 6 Oct 2018 14:13:42 EST Sarah from Oregon Hi, I'm Sarah. I was diagnosed with moderate sleep apnea about a month ago. In 5 hours of sleep I woke up over 200 times. I have the titration study October 16th, the doctor says that the next study is to determine what cpap machine customization I need. It is a long process here in Eugene, OR, probably because I have Trillium, and there are far more patients than sleep doctors here, but I am thankful I may finally have answers to my health issues. <BR> It is frustrating that my regular doct... Fri, 28 Sep 2018 03:25:25 EST Hi - new to the team but not SP My name is Kris and I live in New Zealand. I have been a member of SP for over 11 years, and am on a number of teams, including as a Team Leader, including on the team that is thought to be the largest one on SP. I am also a Community Leader on the Community Message Boards. <BR> <BR> I was diagnosed with Serious OSA in March of last year. I was discharged from my Sleep Clinic sleep-over with a C-PAP machine the DAY BEFORE my birthday LOL! I was stopping breathing 60 times per hour, for 15... Sun, 26 Aug 2018 22:25:35 EST Week One Hello team! I have read so many of your stories, nice to know not alone. <BR> <BR> It was amazing the first night to wake up not in pain, and almost feeling refreshed. That was incredible for one night, no night time headaches. <BR> <BR> Having difficulties sleeping on my side with mask, still trying to adjust. The first night euphoria wore off after the struggles to keep the mask on last night. How do you know the mask is right for you? Do you have to adjust during the night? Any other ... Mon, 6 Aug 2018 17:06:41 EST Is my energy waning to early Hello everyone, <BR> I'm wondering if you can tell me if it's normal to be totally exhausted at about the point of 2-3 hours before bedtime. It's been so long since I have felt normal I don't really remember what normal is. I just no that no matter what time I got up in the morning I'm exhausted 2-3 hours before 9pm which is when I wind down for bed at 9:30pm. Is this normal? <BR> Thanks in advance. Fri, 27 Jul 2018 22:25:34 EST hi hi, <BR> just got my cpap machine and a new mask. getting used to it. finding it hard to stay asleep after the first day. Fri, 20 Jul 2018 16:06:41 EST Hello everyone I just found the team. I have been diagnosed with Sleep apnea since January 2018. The AHI at my sleep study was 107.8. I'm trying to loose over a hundred pounds in order to help my health over all but I'm hoping that my Sleep apnea will get better with the weight loss. <BR> <BR> I thank my lucky stars for my Cpap machine as it changed my entire world. I now feel rested for most of the day and have energy to get through the day. Sun, 1 Jul 2018 18:35:15 EST Hi, new to the team Hello everyone. I was first diagnosed with sleep apnea back in 2006. The doctor set me up with a machine and then I had no more contact or support from my doctor. At that time I did not know. So I quit using my machine. After moving to where we live now and trying to get my health in better shape, I was scheduled for a new sleep study test. Results came back and my doctor ordered me a new mask and changed the settings on my machine. There was a lack of communication at first and I did not rea... Mon, 11 Jun 2018 15:22:03 EST 2018 Cleaning Reminder This list is a compilation of many sources. Please let us know your routines and how that works for you. <BR> <BR> Time to wash and change filters, do a thorough equipment check and cleansing and order replacement parts. <BR> <BR> Cleaning checklist: <BR> DAILY: Wash all pieces of mask with soap and water and rinse out hose. Change water in humidifier. <BR> WEEKLY: Scour humidifier tank, wash hose with soapy water, check filters <BR> MONTHLY: Wipe down machine, change and wash filters ... Mon, 21 May 2018 13:52:58 EST SUMMER 2018 Pillow Talk or Sleep Chat I thought the pillow talk might get some people's attention. LOL <BR> <BR> I got the new nasal mask and it is amazing. I don't even want to use my favorite from before. I sleep better too. <BR> <BR> Go on Medicare in June, so may consider purchasing a new cpap machine at that time too. Mon, 14 May 2018 13:05:19 EST Anyone Purchased the CPAP Ultra Sonic Cleaner? Pickle asked this question on the wall. Hoping to get more input in a thread. <BR> <BR> I have not, for the same reason I don't have a ton of large expensive kitchen gadgets. By the time I get done cleaning them, It would have been easier and taken less room to have just used a knife. <BR> <BR> A daily wash and rinse with dish soap or shampoo followed by a good soak in a pan of vinegar water once a week keeps my equipment fresh. <BR> <BR> Fifteen years ago we were suppose to wash o... Wed, 14 Feb 2018 02:21:30 EST WINTER SLEEP CHAT 2017-2018 Howdy Folks. I announced on the Fall chat that I have a sleep clinic appt. on the 23rd. Looking forward to getting new parts hopefully. Wed, 27 Dec 2017 03:02:25 EST Autumn 2017 Sleep Chat Hi Everyone, <BR> <BR> Check in here and let us know how you are doing. I am not adapting well to my two new nasal pillow masks. The straps slip off my head and it is too easy to dislodge them with all my tossing and turning. <BR> <BR> Think I am going to buy a whole new comfort gel nasal mask and headgear. It has been my standby for years. At lest I have the others for back up if needed. <BR> <BR> Also, that new hose I bought sprung a leak. Don't know if I poked the hole in it sna... Sat, 14 Oct 2017 01:11:34 EST Whines and Pet Peeves I bought a new hose on line. It seemed perfect. My old hoses are pushing ten years old. I felt like it was a good idea to get a new one. <BR> <BR> Washing my new hose out a couple days ago, I noticed water spurting out the side. Initially, I thought "cheap" and considered sending it back to Amazon. However, I remembered that last time I took it off machine I had a major wrestling match with it between the bed frame and nightstand. It had somehow looped around the metal frame. I supp... Sat, 26 Aug 2017 11:34:25 EST dreamwear nasal cushion - breaking out I just got my CPAP machine and am using the dreamwear nasal cushion. I absolutely love it except that I keep breaking out under my nose where the mask part sits. I wash the mask daily with Ivory soap per the instructions I was given. Anyone have any suggestions? Sat, 15 Jul 2017 08:35:43 EST Summer 2017 Sleep Chat Hi Everyone, <BR> <BR> Wide awake and resisting going to bed. Need to shut the computer down, but must tell you I bought a small battery operated generator for my cpap. It is a lot cheaper than a cpap battery and much lighter weight than a marine battery. <BR> <link><BR>/ref=oh_aui_detailpage_o01_s01?ie=UTF8<BR>&amp;psc=1 </link> <BR> <BR> Will try it tonight. Let you know if it works. Sun, 9 Jul 2017 03:55:27 EST Show how you feel with an emoticon <em>15</em> Tue, 4 Jul 2017 11:28:19 EST DEVICES <link><BR>iant=36295921160 </link> <BR> <BR> This might be a great travel aid. Friend of mine ordered it. I will report back to let you know what she things. Has anyone else tried it? Fri, 2 Jun 2017 12:39:04 EST Sleep is so wonderful!!! I have looked at both of my blogs on here and they are BOTH about sleep!! I didn't realize how much sleep I was missing until I started sleeping through the night! <BR> <BR> My dr. who advised me to have a sleep study said my body was literally shutting down with the medical problems I was describing. It scared the day lights out of me!! So I did it... I went and had all the testing etc.. my husband has been on his cpap for at least 5 years. He kept telling me that I needed to get the sl... Fri, 5 May 2017 09:38:15 EST SPRING 2017 SLEEP CHAT Sleep chat???? Is that anything like talking in your sleep? <BR> <BR> So I am on week three of the Better Sleep Challenge. I am getting to bed before midnight and mostly getting about 7-9 hours of sleep. Shoulder still hurts like crazy, but it doesn't wake me any more often than the cpap mask for adjustments. <BR> <BR> Used the newer nasal pillow mask twice this week. Still wrestling with the headgear to keep it from sliding on my hair. I do like that it doesn't pinch my sinuses of... Tue, 4 Apr 2017 13:52:00 EST Spring 2017 Cleaning Reminder This list is a compilation of many sources. Please let us know your routines and how that works for you. <BR> <BR> Time to wash and change filters, do a thorough equipment check and cleansing and order replacement parts. <BR> <BR> Cleaning checklist: <BR> DAILY: Wash all pieces of mask with soap and water and rinse out hose. Change water in humidifier. <BR> WEEKLY: Scour humidifier tank, wash hose with soapy water, check filters <BR> MONTHLY: Wipe down machine, change and wash filters <... Tue, 4 Apr 2017 13:44:08 EST Better Sleep Challenge Week 2 Join Challenge and compete with me. <BR> <BR> Here is a good article for week 2 <BR> <link><BR>_articles.asp?id=373 </link> Fri, 24 Mar 2017 02:21:19 EST BETTER SLEEP CHALLENGE! So much has changed on Spark People, I no longer can even find the search bar to search for the Better Sleep Challenge. Does anyone here know how to find it? It is not on the Challenges page and there is no search bar and when I go to teams, it is not listed either. <BR> <BR> Thanks for your help. Tue, 14 Mar 2017 14:49:02 EST Cat on the Machine Not exactly like "Cat in the Hat." After a month of using my CPAP, and the past 2 weeks sleeping great, last night awakened gasping at 2AM. My cat had stepped on the switch on my machine and turned it off. Started up again, and all was well until about 4AM. I woke up, and heard the machine running, but was getting very little air. The old cat was sleeping..against the air intake! <em>198</em> <BR> <BR> I guess I can be thankful I'm not allergic to cats, but we are going to have to set s... Wed, 1 Mar 2017 09:21:27 EST Cpap pillows - do you use one? I just ordered one. I'm a side sleeper. Tue, 14 Feb 2017 13:36:10 EST Filters Check your filters! Do you need to change them? <BR> <BR> <em>590</em> Tue, 24 Jan 2017 13:17:27 EST Best Sleep What is your Best Nights Sleep? What makes it different from the nights you can't sleep? <BR> <BR> I sleep so much better when I am well hydrated earlier in the day, have not eaten processed foods for several days and get moderate exercise throughout the day. <BR> <BR> Tue, 24 Jan 2017 13:15:33 EST Cleaning the mask I am just wondering. Is it okay to use something like a Wet One to clean off the nose mask on a daily basis or should I use something else? I have the nose mask for my CPAP machine and I am new to the whole CPAP deal. I just started using my machine on January 5, 2017. Mon, 16 Jan 2017 17:27:08 EST Side sleepers? I wonder what suggestions there would be for those of us who sleep on their sides? Besides apnea, I have COPD, and lying on my back just doesn't work. Is there a mask, pillow, whatever, designed for the side sleeper? I have not ordered my machine yet, so am flexible. Sun, 15 Jan 2017 08:29:58 EST Winter Sleep Chat 2016-2017 Trying to see how many of are still lurking. If you are, I have a request. Can you go in research mode and find out what new sleep apnea therapies or equipment are available? Just find one thing you hadn't heard before and post it here. My 37 year old skinny athletic son was diagnosed with sleep apnea. The docs are giving him a dental appliance. I have some concerns because I suspect his issue is central apnea. He had this as a baby. I kept his crib right next to my bed, because I wo... Fri, 9 Dec 2016 14:21:31 EST Winter Cleaning Reminder Time to wash and change filters, do a thorough equipment check and cleansing and order replacement parts. <BR> <BR> Cleaning checklist: <BR> DAILY: Wash all pieces of mask with soap and water and rinse out hose. Change water in humidifier. <BR> WEEKLY: Scour humidifier tank, wash hose with soapy water, check filters <BR> MONTHLY: Wipe down machine, change and wash filters <BR> <BR> Equipment checklist <BR> FILTERS: Are they changed, do you need to order more <BR> HUMIDIFIER TANK: Is it scou... Fri, 9 Dec 2016 13:47:22 EST I don't know why I'm non-compliant. Help please. Hi guys, <BR> <BR> I confess and I'm going to blatantly honest, so bear with me please. This is sort of embarrassing. I've been non-compliant with my Bipap for about four whole months. I am, of course having daytime sleepiness and wake up multiple times during the night. The problem is I don't know WHY I am non-compliant. I would like to explore why I'm non-compliant with you in hopes I will just do what I should do, be compliant with my Bipap. <BR> <BR> I have a couple of issues.My mask. ... Sun, 30 Oct 2016 23:16:20 EST Autumn Sleep Chat 2016 Hello Friends. I know the team has been very quiet. In some ways that can be a good thing. It means we are getting our needs met with our sleep apnea and cpap issues. I can live with a quiet team. I just have to post once in awhile so the team doesn't disappear completely. <BR> <BR> So, the portable battery unit my son made for me to travel and camp with works perfectly. I used it at a state campsite near Yosemite a few weeks ago. Very nice. I also feel better that I have it in cas... Sat, 29 Oct 2016 00:37:43 EST Heated Resmed Climateli ne...Red? A while ago I noticed that my new climate line's wires were reddish in some lighting. <BR> Has anyone ever noticed the same thing?.....or does my line have a bad case of mold?? <BR> The red is just on the wiring. <BR> It is drying as I type, but I'm a bit nervous about this. I've never experienced this with my other climate lines.....or have I been unobservant? Thu, 15 Sep 2016 20:31:32 EST New CPAP technology Not sure how the micropap works for changing pressure needs. <BR> <BR> Not sure how it stays in the nose for people who toss and turn. <BR> <BR> Not sure how environmentally sound it is tossing a battery a day. <BR> <BR> Not sure it is cost effective at $3.00 a day. I have had my current cpap for over 10 years Ten years of micropap would cost around $11,000. I think my machine cost insurance around $2000. and you can buy machines for around $700. now online. <BR> <BR> Still, I love ... Fri, 9 Sep 2016 02:30:18 EST Traveling with standard cpap machine Hi everyone. You may have already talked about it. On Tuesday, I am going on my first air flight since 1998 and since I've had a cpap machine the last 10 years or so. I'm only taking a carry-on bag. Should I keep the cpap machine into the carry on or keeping the bag that it came in? <BR> <BR> Thanks for the tips! Mon, 5 Sep 2016 14:08:03 EST TRAVEL PAP Since travel batteries are so expensive, I asked my son the mechanic and builder of interesting things if there wasn't a way to hook the cpap to a marine battery for my cross country trip. <BR> <BR> Surprisingly he is all over the concept. He is working on a converter to keep the power at correct levels etc. He already had a battery off one of his old jet skis. I am one lucky mom. <BR> <BR> I told him I thought it was possible to strip the humidifier off my machine. (I haven't used it... Mon, 15 Aug 2016 13:39:42 EST Summer Cleaning reminder 2016 Before I post the checklist, just wanted to share that I haven't turned on the humidifier in ages, so had my son remove it. Cpap is tiny and travel size now. Boy was it filthy on the inside. Full of dust and dog hair. Nice to get that cleaned up. Also, I am ashamed that I hadn't changed my filters for awhile, so I decided to post the reminder in case any of you need to spiffy up your machine too. <BR> <BR> ******** <BR> Time to wash and change filters, do a thorough equipment check and... Mon, 15 Aug 2016 03:12:16 EST Summer Chat 2016 Yes, I know it isn't Summer yet, but we are getting closer. <BR> <BR> How is everyone doing? <BR> <BR> I need new tires according to my son. I also have a headlight with a bad wire. Sun, 22 May 2016 02:09:53 EST New to the team and new to apnea Well, I've probably been dealing with the apnea part for a long time - I can't remember the last time I felt rested! I was diagnosed with obstructive sleep apnea in March, but my insurance company took forever to confirm coverage. <BR> I started my trial with the cpap and nasal mask five days ago. I am having a hard time adjusting. First of all, I feel ridiculous, but that's my own issue. I'm waking up a lot at night so haven't really felt the benefits yet. I have a followup with my respirato... Mon, 25 Apr 2016 20:43:32 EST Any dental appliance users out there? Still anxiously awaiting the arrival of my mouthpiece which is being made right now...I can't wait to try it. I'm sooo hopeful that it will help. I'm sick of being tired all the time. Sat, 16 Apr 2016 10:02:35 EST Leaks starting early morning So I am a new CPAP user, just passed my 21-day anniversary. I was extremely lucky in that everything was going pretty smoothly. But the last 3-4 days, I have been waking up in the early morning with my full-face mask leaking and it has been increasingly difficult to get it to stop. Last night I had to keep my hand pressing it to my face to keep the seal. But I'm able to seat it fine when I go to bed (after a few tries, of course, but that seems to be par for the course). The leaks can be at a... Wed, 13 Apr 2016 09:57:50 EST New to this team Hello there; I'm from CT; have been dealing with sleep apnea for about 12 years and have had no luck with CPAP/bipap over the years. Am being fitted for a dental appliance; deperate....really hoping something will work. I'm falling asleep at work; tired of being tired. Wed, 6 Apr 2016 17:07:07 EST new to spark people <BR> Hello, I am new to spark people. I want to be honest. I know what I need to change to lose weight, but it is motivation all the way. I start to get motivated but after a week or 2 I lose my motivation to get into a healthier lifestyle. I weigh 338, and my sleeping schedule is way off. I am up almost all night and crash about 5:00 am and sleep almost all day. I want to change my sleeping habits. How do I go about doing this? That is my very first goal. My second goal is to get the requir... Wed, 20 Jan 2016 00:22:11 EST WINTER CHAT Sleep Apnea Team Time to start a new chat thread. I have noticed on Facebook that the gardening group has come alive again with plans and ideas for spring. Only two more months and it should be spring like in my neighborhood. In the meantime, I am trying to figure out what I want to do in the yard. <BR> <BR> On another chit chat front, I just watched the movie "Morning Glory" Oh my that is a must see. Old people and young people. I enjoyed the success and romance of our heroine, but Harrison Ford and... Wed, 6 Jan 2016 15:04:32 EST Chapped Upper Lip And Nasal Pillows Collapsing I got my CPAP 2 weeks ago. Everything was going great for the first week and a half. Then my upper lip starting getting really sore &amp; chapped. Also the nasal pillows seem to be getting really soft and feel like they are collapsing and I can't breathe. I wrote my PCP and called my DME provider today about it. <BR> <BR> I was using Carmax on my upper lip to heal and protect my upper lip which my doctor said was fine but the DME providor says it is too harsh on the equipment. She say... Tue, 17 Nov 2015 00:10:11 EST Sleep Apnea AUTUMN CHAT Hi Everyone. A quiet forum means that everyone is doing well with their equipment. I think that is good. <BR> <BR> My very close and long time friend, just got a cpap. She has the resmed apap and it is set between 4 and 7. She has a nasal mask and is still struggling with claustrophobia. I must remember to send her to the links from Lanky Lefty on how to beat that. <BR> <BR> Our little town is getting some national recognition for being Halloweentown and for still celebrating the mo... Thu, 1 Oct 2015 21:26:50 EST Weight Gain after starting CPAP therapy. Hello all. <BR> <BR> Well it's been over a week since starting my CPAP therapy. And I have to say I'm doing good. I've adjusted to it well and I am more alert and less tired. <BR> <BR> However I've gained 5 lbs. this week. No real changes in diet to explain the results. <BR> <BR> Anybody know what's going on? Did you experience this? Is there anything I can do to offset whatever is causing this? <BR> <BR> Just worried I'll lose all the hard earned weight loss progress. Fri, 21 Aug 2015 11:50:54 EST Tired of being tired. Howdy all, <BR> <BR> Been diagnosed with severe sleep apnea. AHI: 33. I go in for my second study with the CPAP next week, then I take it home. <BR> <BR> I'll be checking the team forums for any help or issues I might run into. <BR> <BR> I'm very optimistic about how this may change my life. Just tired of being tired, having very poor concentration and just being crabby all the time. <BR> Wed, 5 Aug 2015 15:54:55 EST Name Your Machine..... I thought that it might be fun to name your CPAP machine. So what I propose here is for you to get creative and then post your machine name! <BR> I have already done this to my machines: <BR> <BR> Flo - she's my main machine <BR> Wheezy - this one is my backup. <BR> <BR> If you can't come up with one then use one of the other ones that are posted. This way we can see which names are popular. <BR> <BR> Jerry Fri, 31 Jul 2015 11:43:16 EST Reasons for Having a Second CPAP So after doing a lot of furniture moving yesterday including the CPAP, I slapped it on and couldn't exhale. Not sure what the pressure was, but it was way too high. <BR> <BR> Thank goodness for the old reliable low tech CPAP that cost the insurance about $5000. because CPAPs were still new then. They leased it for three years before purchasing it. I grumbled a lot about price gouging, since it is just a vacuum cleaner in reverse. <BR> <BR> Really the parts and technology are probably... Sat, 18 Jul 2015 11:06:39 EST Sleep Apnea SUMMER CHAT 2015 Sleep apnea kills. We have spent the last week praying for my step daughter who was on a ventilator in ICU. We thought she had overdosed on her pain medication. Tuesday, I didn't have much hope for her. Today she was up and feeling contrite. <BR> <BR> She had neck surgery 15 days ago and was in terrible pain. She had an untreated UTI that she was trying to get rid of with over the counter drugs. Her arms hurt worse than ever and she had less use of her hands than she did before the sur... Sat, 27 Jun 2015 00:56:52 EST Do you have peripheral neuropathy I'm interested in the team as someone whose mom and husband have long had severe sleep apnea. Neither will wear a mask. I learned that both also have peripheral neuropathy in their feet. Does anyone else? Sun, 7 Jun 2015 10:02:25 EST Spring Chat and Support For Sleep Apnea 2015 Hi all. The good news is that I feel well enough to be outside doing things, so less time on computer. The bad news is that I miss all of you. <BR> <BR> Today the fatigue is worse, so more computer time. However, I did spend an hour weed eating the hay field that is suppose to be my lawn. Fri, 1 May 2015 19:54:15 EST What small change will you make today? I am really tired of not having my weight go down. But this is my own fault because I am not doing anything about it. So I have now officially started. Claiming this to the team makes me feel more accountable. <BR> <BR> At the start of the week I started no longer using creamer and sugar in my coffee. Now today I will have fruit and veggies in the form of a smoothie when I get home from work rather than having dinner before having dinner. <BR> <BR> So, what small change will do today? <BR> ... Thu, 23 Apr 2015 13:22:29 EST unconsciously taking mask off I wake up in the morning sometimes and the mask is off. I know I must have taken it off, but I don't remember doing it. How do you train yourself not to do this? Sat, 18 Apr 2015 07:18:07 EST Does the cpap plug up my nose or.... does it just plug itself up? I have allergies, too, and it's spring, so maybe the one side is just blocked. I just notice that, when I go to bed, the air is going through both sides of my nose. I wake up in the middle of the night because one side of my nose is plugged and it makes breathing through the cpap difficult. Anyone else experience this? Mon, 30 Mar 2015 08:19:17 EST The water tank.... Are you supposed to empty it every day? Clean it every day? I'm not sure and am hoping someone can tell me. Sat, 28 Mar 2015 22:33:48 EST HELP! It's only been a week since I started using my cpap I know but I feel worse. I woke this morning barely recognizing that I had it on which I think is a good thing but I have been all but falling asleep at my desk here at work. Am I doing something wrong? Is there more to get used to than the machine? Please any advice is welcome. I need sleep Thu, 12 Mar 2015 12:28:50 EST New to apnea I have been officially diagnosed with I guess mild sleep apnea....and was given a machine Tuesday (today is Thursday) Its too early to tell if it is working or if I like it or not. I have lots of questions about it. I am glad there is a team on here that can maybe help me feel better about it all and help me use it everyday and finally get some good sleep.....wait just any sleep would be nice at this point. <BR> <BR> So its nice to meet you all and I hope you can help me in my new journ... Thu, 5 Mar 2015 19:40:25 EST Nasal pillows Does anyone here use them? How long till you got used to them? Did you feel like you had to try harder to exhale when you first started therapy or is it just me? I think I was wearing them wrong. I just got my machine this week and tonight will be day 3 and I am hoping that I get used to it soon and start feeling better soon......I am so tired of feeling tired all the time. <BR> Thu, 5 Mar 2015 19:12:58 EST SPRING CLEANING REMINDER Ok, Ok, so it is not technically spring yet, but one can wish...... <BR> <BR> Time to wash and change filters, do a thorough equipment check and cleansing and order replacement parts. <BR> <BR> Cleaning checklist: <BR> DAILY: Wash all pieces of mask with soap and water and rinse out hose. Change water in humidifier. <BR> WEEKLY: Scour humidifier tank, wash hose with soapy water, check filters <BR> MONTHLY: Wipe down machine, change and wash filters <BR> <BR> Equipment checklist <BR> ... Tue, 3 Mar 2015 01:42:58 EST other sleep problems I'm wondering if anyone in here suffers from any other sleep problems. <BR> i'm only a few months into my therapy but i still have to sleep at least 10 hours a night to feel rested with the c-pap. Both my dad and brother have hypersonima and i believe i do too and have fought for years to get that sleep study done but my dr wouldn't do it. he finally gave in and let me do that at home one and found out that i have sleep apena. I have since gotten a new dr and he wants to wait a few months an... Mon, 2 Mar 2015 20:15:16 EST silly questions If i want to get a chin strap and a holder for my tubing and a heated tube would my insurance pay for that or should I just buy it online? <BR> <BR> How often do you really clean your equipment? I was cleaning my mask every night but now i'm only cleaning it every three days. I have yet to clean my tubing. <BR> <BR> What happens if you put not distilled water in the humidifier? <BR> <BR> <BR> <BR> Mon, 2 Mar 2015 19:43:26 EST Hello I found out in December that I have sleep apnea. I have been asking my dr to give me a sleep study for 4 years. both my dad and brother have hypersomnia so i was thinking i do as well since i fall asleep anytime i'm not moving including while driving....a lot. he just kept telling me i needed to sleep more and to quit my job that involved me working at night. finally my sleep got so bad that i went into his office and told him i wasn't leaving until he gave me a sleep study. so I got the at h... Sat, 28 Feb 2015 20:31:48 EST ROLL CALL Question of the Day 2/10/15 How did you first find out you had sleep apnea? <BR> <BR> I landed in the hospital for four days with chest pains and weakness. I had woke gasping. They thought I had a heart attack. I did not. I just had lowered my oxygen levels so badly I caused problems with my heart and health. Thank goodness the doctor asked my husband if I ever quit breathing at night. We both knew I had sleep apnea. We just did not realize how deadly it could be. Three months later with a sleep study behind me ... Tue, 10 Feb 2015 16:00:13 EST Hello from Ontario, Canada! Just dropping by to say hi to everyone. I've been using a CPAP for about 5 years now and absolutely love it. Ok...well, life would be great if I didn't need it, but I do. So it has become my new reality. <BR> I am a compliant user. So is my husband. One night we were away and decided to leave the machines at home to save us the "hassle" of bringing them. Well, that was a mistake! We never did that again. It is so NOT worth going without it. <BR> I use nasal pillows and my husband has ... Fri, 6 Feb 2015 11:39:50 EST Hello from Nebraska! I'm new to CPAP. I just got my machine yesterday and slept with it last night. I wore a full mask. It went ok. My RT will call me on Friday or Monday to give me the report of how it went. My recent sleep study had me with only 5 times of apnea but 91 times of hypopnea with my oxygen sats dipping once to only 73%. <BR> <BR> I am completing 40 years as an International Worker with a Christian Mission. I worked as a nurse at a jungle hospital in AFRICA from 1977 until the end of November 2014.... Thu, 5 Feb 2015 07:09:31 EST ROLL CALL Question of the Day 2/2/15 Do you use a machine, appliance, or other method to treat Sleep Apnea? <BR> <BR> I have two ancient machines that both still work quite well. Mon, 2 Feb 2015 13:03:16 EST FEB 2015 CHAT AND SUPPORT Hello Folks, <BR> One good thing about the team being so quiet is that it means that we are probably all out living out lives rather than spending our days on the computer. Since I have felt so much better that has been true for me too. <BR> <BR> Walking and gardening and going to book club, TOPS, writing group, and visiting grandkids and husband have been keeping my days full and blissfully happy. I can remember long stretches of time (years) that were filled with illness and deaths of ... Mon, 2 Feb 2015 13:00:11 EST I'm Back! I wanted to briefly re-introduce myself because I have been off of SP for awhile. I was seriously injured last summer and have been recovering since then. I am able to walk short distances with a cane now and working hard to get my strength back and start losing all the weight I gained while I was inactive. <BR> I have been a CPAP user for nearly a year. I am one of the lucky ones--have had very few problems with my CPAP. In fact I love it. It has really changed my life and improved my health... Mon, 26 Jan 2015 22:35:30 EST Hello From Missouri Hello! I just rejoined SP last week. I started gaining weight back in 1977 when I was pregnant with my first child. It seems like I've been gaining ever since. I have decided to choose life over death not only for me but also for my family who have told me they would like to have me around for several more years. I had my first blood clot in a lung and 4th in a leg back in July 2014. I didn't realize my shortness of breath was due to the blood clot because of my size. My idea weight would b... Wed, 21 Jan 2015 22:25:45 EST Sleep aid? Not sure where to put this question, hope this isn't the wrong spot! <BR> <BR> I ran out of my prescribed sleep aid this week, and haven't jumped through the hoops to get it refilled (work has been crazy and I've been lazy). I've noticed the last couple of nights, I'm sleeping, keeping the mask on....waking up around my usual time...but man I'm getting tired again. I'm thinking I'm not getting the "good sleep" without the sleep aid. <BR> <BR> Does everyone here take one? I guess that's my ... Wed, 7 Jan 2015 17:46:55 EST WINTER 2015 CHAT AND SUPPORT FOR SLEEP APNEA Dear Friends, <BR> Decided to go ahead and get a jump on a new Chat thread for the New Year before we all get crazy with the holiday celebrations. I woke feeling really great this morning, so am assuming it is the extra water and fewer sweets making a difference or maybe the stars and planets are aligned correctly or possibly just a change in atmospheric conditions. Whatever is going on, I intend to embrace it and move forward into health even before the New Year. <BR> <BR> So, my Decembe... Thu, 18 Dec 2014 11:02:04 EST sleep apnea causes depression. . Hi, <BR> <BR> Snore... Oh, I'm sorry, I fell asleep! LOL. <em>102</em> <BR> <BR> I just want to say I experienced something very interesting about four months ago. My Bipap broke and I was waiting for another one close to three weeks. During that time I became very depressed. Some other things were going on in my life so I thought it was that, but in retrospect I realize my depression was sleep apnea related! After approximately a week of using my Bipap machine my depression lifted. I ... Mon, 17 Nov 2014 21:47:20 EST What small change will you make today? This is just a place to help make ourselves accountable in order to reach our goals. So go ahead and announce your simple plan(s) to the world, (ok, team)! <BR> <BR> Today I would like to start an organization habit by putting away 10 things a day. Yes this is slow but every journey starts with a single step. <BR> <BR> What will your change be? Wed, 22 Oct 2014 11:16:48 EST October Cleaning! Who is doing it? It's past time for me to give my machine a good cleaning and a new filter. This is my first priority for me when I get home from work tonight. So I am throwing this post in to the fray as a reminder to myself and others. If you could also be so kind, just do a quick reply to say what you cleaned and when. There hasn't been too much action on the board for a while and it would be good to know who is out there. So here's my post for tonight: <BR> <BR> 10/14/14 - Tank, Hose, Mask, Headgear, an... Tue, 14 Oct 2014 16:33:15 EST Have a couple of questions Hi everyone! <BR> I have been AWOL from Sparkpeople for awhile--I had a bad fall in July, broke my leg in 3 places and have had had very limited mobility since then. Fortunately I am now able to walk with a walker and hopefully will be able to start losing the pounds I put on during the time I was pretty much confined to the bed/recliner! <BR> <BR> My first question is--When I first put on my CPAP (nasal mask) at night I can feel the air blowing in my nose (my pressure is 12) but within a fe... Sat, 27 Sep 2014 20:26:09 EST Difference in Well Moisture Usage Happy Friday, All !! I hope that you all slept well last night. I have had a cpap for many years, and my husband has only had one for about 2 yrs. We both have the same Resmed machine, water well & heated hose ( not sure of the correct terms) . <BR> Our pressures are both 10. Because I have had a problem with allergies in the past ( stuffy nose), my specialist prescribed my machine to be set at a pressure range of 7 to 14 just in case I need a bit more pressure when my nose is stuffy and a l... Fri, 26 Sep 2014 08:52:13 EST AUTUMN CHAT AND SUPPORT FOR SLEEP APNEA 2014 Good morning. heading off to work in five minutes. In our rainy neck of the woods, we had a fabulous summer and just like clockwork, It is the first day of Fall and the rain starts. Not complaining. We need to get rid of the forest fires. Not sleeping well. The AHI numbers are around .3, so I am sure it is something food choices and anxiety, maybe spooky shows I have been watching on the computer. Probably time to juice the greens again and start walking longer distances, thou... Tue, 23 Sep 2014 11:33:44 EST 5 yr Bipap patient now non-compliant. Help! Hi guys! <BR> <BR> I know with your help I may be able to overcome this. <BR> <BR> I have been a Bipap and full face gel mask patient for approximately five years. <BR> <BR> I have Rheumatoid Auto-Immune Disease and a very bad back. My worst time is when I wake up. Lately, for the past three months, I've been waking up after 3 to 4 hours of sleep with a lot of pain and stiffness. I do some stretching and apply heat. Sometimes I need to take a pain pill. The problem I've been having latel... Sun, 14 Sep 2014 19:43:53 EST Recovery from chronic sleep deprivation I've been trying to find evidence based articles online about recovering from chronic sleep deprivation due to apnea. Specifically, I'm trying to find something to inform my expectations about how long it will take to pay back my sleep debt now that's I've started CPAP therapy. Or even if it's possible to do so. <BR> <BR> I've checked the forum & several online sources for apnea info, but can't find anything about recovery except as it relates to short-term sleep deprivation. <BR> <BR> Al... Wed, 13 Aug 2014 13:40:24 EST Howdy from New Mexico Hi, I'm new to this team, though not to SP. I was referred for a sleep study last Fall but couldn't get into the local center for a sleep study until February. That study resulted in a diagnosis of moderate apnea. It took three more months until the next available opening for my titration study, which was in May. Now, two months later and after navigating the maze of insurance authorizations, it looks like my autoPAP will be shipped to me in the next week. <BR> <BR> I'm really looking fo... Fri, 18 Jul 2014 16:12:19 EST Hiii! New to team, but not new to sleep apnea. Hi everyone! <em>20</em> <BR> <BR> And hi from Florida! I am a 64 year old woman, who has had sleep apnea, at least diagnosed 5 years ago. I'm sure I had it for years before, though. I have obstructive sleep apnea type. Plus I have Delayed Phase sleep Syndrome. That was diagnosed twenty years ago. My settings are high which requires a bipap machine. I had no idea there was a sleep apnea team on SparkPeople. How nice! Now I can share war stories. Lol. I am an RN and used to work in the h... Wed, 16 Jul 2014 13:44:24 EST SUMMER CLEANING REMINDER Time to wash and change filters, do a thorough equipment check and cleansing and order replacement parts. <BR> <BR> Cleaning checklist: <BR> DAILY: Wash all pieces of mask with soap and water and rinse out hose. Change water in humidifier. <BR> WEEKLY: Scour humidifier tank, wash hose with soapy water, check filters <BR> MONTHLY: Wipe down machine, change and wash filters <BR> <BR> Equipment checklist <BR> FILTERS: Are they changed, do you need to order more <BR> HUMIDIFIER TANK: Is ... Fri, 27 Jun 2014 15:34:24 EST MASK LINER QUESTION Has anyone used mask liners? Do you like them? How well do they work? What is your favorite brand? Fri, 27 Jun 2014 15:32:46 EST SUMMER CHAT AND SUPPORT FOR SLEEP APNEA Today is the longest day of light in the Northern Hemisphere. I am running on fumes. Got up at 4am (sky starting to lighten even then) to drive DD to work and got to see the sunrise at 5:30 just as I got home. Heading to bed. Sat, 21 Jun 2014 23:32:26 EST Future Therapy <link><BR>ew-implantable-device-helping-sleep-ap<BR>nea-patients/ </link> <BR> <BR> This might help the people who have tossed their cpaps. Those who don't stick with this team. But for those who can't stand the mask, here is an alternative. Thu, 1 May 2014 13:44:36 EST What is the best pillow for Sleep Apnea I have tried many pillows, down, foam, side foam, but none seems to give me <BR> a good nights sleep. Either they are too soft or too hard? Any suggestions? Sun, 27 Apr 2014 13:58:25 EST I got a good report today! I'm not sure if this is the place to post this, but just had to share my good news. I went in today to get my nasal mask (I had been having trouble getting a good seal with the FFM) and they checked the little card thing that keeps track of my episodes of apnea. I have gone from 57 episodes an hour on my initial sleep study to only 3 episodes an hour with the CPAP! WOO HOO! No wonder I am feeling better. the respiratory therapist said anything under 5 episodes an hour is considered normal for... Thu, 10 Apr 2014 17:40:02 EST Mask question I am currently using a full face mask. They originally recommended a nasal mask but I was afraid I would open my mouth and negate the benefits of the CPAP so we went with the FFM. I have been using it for about 10 days with no problems until last night. I have the option of switching out the mask for another one at no cost as long as I do it within 30 days. <BR> the problem I had last night was intermittent leaking. I kept waking up feeling like the mask was leaking air. I would readjust the ... Mon, 7 Apr 2014 12:32:00 EST REALLY stupid question!!!! This is probably the stupidest question anyone every asked! But I have been wearing my ffm CPAP for 3 nights now. the first time was a little dicey--I had trouble going to sleep and kept waking up. The second time I got everything adjusted and went right to sleep--only woke up briefly once. Last night I fell right asleep and didn't wake up til the alarm went off--didn't even have to go to bathroom which is a big difference! I didn't even feel like the mask was on, but it was and appeared to b... Tue, 1 Apr 2014 17:23:00 EST aromatherapy for cpap Has anyone tried aromatherapy oils with their machine? I saw a set up advertised that had a wafer with an essential oil on it in front of the air vent to give the air a nice fragrance. I love aromatherapy but was wondering if anyone else had tried it or if it actually worked. The machine does kind of have a plastic smell. <BR> Also one other dumb newbie question--do you change the water in the humidifier daily even if it still looks full? <BR> Thanks! Mon, 31 Mar 2014 22:01:22 EST New to the team and to CPAP Hi ya'll! <BR> I am a 58 year old recently diagnosed with OSA. I have been having severe sleepiness and lack of energy for several years now, as well as a worsening of my depression and general feeling of not being well. My sleep doctor and my psychiatrist believe that long standing but undiagnosed OSA is probably the culprit in all of these problems. I am also about 60 pounds overweight. <BR> Today was my second day (I work night shift) to use my brand new CPAP machine. I use a full face mas... Mon, 31 Mar 2014 02:23:39 EST SPRING CHAT AND SUPPORT for Sleep Apnea Been working almost full time for a couple of weeks now. Moving you all over here to chat to see if we can draw in some of the newer members. Probably won't get caught up for a couple of weeks. Have one more week of vacation leave I am covering at work. Wed, 26 Mar 2014 21:25:21 EST Hi Sparkers Been a 'hose head' *smile* for over 10 years now but I still have sleep issues. <BR> I joined the goal to get to bed on time every night since I have trouble getting to sleep. Maybe a routine will help. Go to bed at the same time and get up at the same time every day may reset my circadian rhythm. I've tried it in the past and it only lasted a couple days and I was back to my old horrible pattern. Doing it with others maybe just the ticket! <em>247</em> Mon, 24 Mar 2014 15:16:01 EST Solutions for Sleep Found this on my CFS/FM website: Much applies to us too. <BR> <BR> <link><BR>ons-sleep </link> <BR> Improving Sleep Environment and Habits <BR> <BR> Sleep can be disturbed by factors like irregular hours, a noisy environment, an uncomfortable bed or a noisy sleeping partner. You may be able to improve your sleep by changing your sleep environment and your sleep habits. Here are five ideas to consider. <BR> <BR> 1. Have a Comfortable Environment: Pr... Fri, 21 Feb 2014 23:52:54 EST SPRING CLEANING REMINDER Yes it is almost Spring. Is your machine and equipment sparkling? For your health it should be. Here is the same boring list. Read it again. I know this helps me. <BR> ****** <BR> Time to wash and change filters, do a thorough equipment check and cleansing and order replacement parts. <BR> <BR> Cleaning checklist: <BR> DAILY: Wash all pieces of mask with soap and water and rinse out hose. Change water in humidifier. <BR> WEEKLY: Scour humidifier tank, wash hose with soapy water, check f... Fri, 21 Feb 2014 23:50:30 EST February Chat and Sleep Apnea Support Here we are hoping for spring to come right around the corner. Many of you mentioned your cold temps. I think I bragged too fast last week. We are dropping into the freezing lever for highs this week. No moisture to speak of. Not good for the snow packs on the mountains. It will mean water shortages and more forest fires this summer. Of course it will mean more beach on the river. That is kind of fun. <BR> <BR> Have you cleaned your mask today? Mon, 3 Feb 2014 22:06:28 EST New to CPAP I've been on CPAP for almost 1 month. I was struggling to lose weight and my doctor couldn't find anything wrong so she set up with a sleep study and sure enough I had OSA. I've had my machine for almost 30 days now, but they still haven't got me the correct mask. Both my parents and one of my brothers have OSA (the other one has it but refuses to treat it, and my sisters probably have it but have never been checked) I also have a sister inlaw that was a respitory therapist I went in hav... Thu, 2 Jan 2014 18:46:38 EST New Year's Resolutions? Anyone make New Year's Resolutions? I've mostly stopped because I don't follow through. This year my goal is to try to figure out why I don't feel right. Last night was the first night since I've been on Christmas break that I didn't sleep 10+ hours! Tue, 31 Dec 2013 22:22:40 EST NEW YEAR, NEW HOPES CHAT AND SUPPORT 2014 Here we are. My first resolution is to be supportive to my friend with the foot ulcers. I am challenging her to three day cycles of healthy living. In the meantime, I plan to juice and eat lots of veggie soup. I want to feel stronger and more energetic again too. I have been a slug since Halloween. Too much sugar, wheat and processed foods. <BR> <BR> Chat about anything, but what is on your bucket list for this year? I am curious. I want to visit my Sis in Texas and I want to save eno... Tue, 31 Dec 2013 22:20:20 EST New to the Team, Not to OSA or CPAP I was diagnosed a number of years ago. I have never been able to get on track with my machine. Finding a mask that I am able to wear was the biggest obstacle. Well, finally found one I can live with (full face mask), but my machine is not working properly. The humidifier is not working, so I wake several times throughout the night with my mouth hurting a lot from being so dry. I have had it changed out twice and it is the same. If we change the settings, it produces so much condensation that ... Sun, 29 Dec 2013 18:58:50 EST Great hopes for CPAP! Was diagnosed with apea a few months back and got a CPAP loaner, but other health issues took priority. Did take time for three weeks' vacation in Virginia, where I thought I would be able to get used to the CPAP. No outlets in the bedroom we had (remote in the mountains -- gorgeous and exactly what we needed, except for the CPAP). Luckily, the provider has lent me the machine until end of May (because of the other health issues), so tonight is night 1 (again). <BR> <BR> Everyone I've spo... Mon, 16 Dec 2013 20:24:04 EST CPAP and migraines? I suffer from migraine when the barometer changes, and my CPAP technologist said that using the CPAP may cause them because it changes the air pressure in your head. Has anyone else heard of this, and have tips for dealing with it? In the alternative, does anyone have experience with CPAP helping alleviate or avoid migraines? Sat, 14 Dec 2013 07:17:57 EST DECEMBER CLEANING SCHEDULE Time to wash and change filters, do a thorough equipment check and cleansing and order replacement parts. <BR> <BR> Cleaning checklist: <BR> DAILY: Wash all pieces of mask with soap and water and rinse out hose. Change water in humidifier. <BR> WEEKLY: Scour humidifier tank, wash hose with soapy water, check filters <BR> MONTHLY: Wipe down machine, change and wash filters <BR> <BR> Equipment checklist <BR> FILTERS: Are they changed, do you need to order more <BR> HUMIDIFIER TANK: Is it scou... Fri, 13 Dec 2013 14:18:17 EST New Travel CPAP Machine This may come back to me as a warning but I thought it would be worth a mention. <BR> <BR> I saw on another board that I frequent a new CPAP machine that is about the same size as four smart phones stacked. This unit easily fits in the palm of your hand. So if there are frequent travelers out there it could be a good option. I don't have the link readily available but I know it can be found by googling HDM z1. I have also seen another travel CPAP made by Transend. This unit is not as small... Wed, 4 Dec 2013 14:41:23 EST DECEMBER APNEA CHAT AND SUPPORT Dusty and I decided it was cold enough and dark enough in our parts of the world to start a winter chat thread. Since there are so many of us now, I think I will go back to once a month, to make it easier for Newbies to find our thread. Also, it won't get bogged down for the poor souls that still have dial up. <BR> <BR> Ellen, I forgot about musinex. That should loosen the chest up. Thanks. <BR> <BR> Kathleen, I am sorry hubby is fighting flu. At least I have avoided the fever. also, ... Mon, 2 Dec 2013 21:56:06 EST Holiday Challenge FUN WITH CPAP Post ideas, pics, links here of fun things you can do with your cpap for the holidays and beyond. Here is my offering for today. <link> </link> Thu, 21 Nov 2013 12:52:50 EST Traveling with your CPAP machine~ I am going away this weekend. This will be my 1st time taking my machine along. My supply company gave me a travel bag to store it in. My question is -- what should I do about the distilled water? I really don't want to lug a gallon jug of water for 2 nights. I guess I'm thinking of just putting it some tupperware. <BR> <BR> Anyone have any better ideas for me? I'd love to hear any stories of traveling with your machine. <BR> <BR> Kristyn Thu, 14 Nov 2013 08:18:57 EST I have a question about the humidity I have always had sinus problems and after the first couple of nights of using my CPAP machine I found the moisture really helped. Then I found out if you have a cold you should increase the humidity to make things better. This has been great but I am wondering with all this humidity will the water build up in the lungs & cause pneumonia. I have been waking up with kind of a heavy feeling in the chest & coughing up lots of mucus. This could still be my cold but I was wondering if the CPAP ma... Fri, 8 Nov 2013 23:29:45 EST NOVEMBER CLEANING SCHEDULE Time to wash and change filters, do a thorough equipment check and cleansing and order replacement parts. <BR> <BR> Cleaning checklist: <BR> DAILY: Wash all pieces of mask with soap and water and rinse out hose. Change water in humidifier. <BR> WEEKLY: Scour humidifier tank, wash hose with soapy water, check filters <BR> MONTHLY: Wipe down machine, change and wash filters <BR> <BR> Equipment checklist <BR> FILTERS: Are they changed, do you need to order more <BR> HUMIDIFIER TANK: Is it scou... Sat, 2 Nov 2013 04:56:17 EST what do you like/dislike about your equipment I am kind of new to this whole sleep apnea thing. I had 2 weeks on the Resmed S9 then they put me on a Philips Respironics C-Flex. I have been on this for a week & 1/2 I found the tube on the C-Flex has a connecting piece that is too big & it keeps knocking the mask off my face. so my question is what kind of equipment do you use. what do you like or dislike about it? Thu, 31 Oct 2013 20:34:58 EST New CPAP user Hi, I'm Kristyn. I am so excited that I found this board. I have recently been diagnosed with having apnea. My problem is that I have an enlarged tonsil that is creating the problem. Although, I've been a life long snorer and may have had it before. I also have a lot of weight that I need to lose. This has been very motivating for me. This is my 1st week with the machine. I'm struggling with the fact that I am having a hard time staying asleep where before I always slept through the n... Fri, 11 Oct 2013 14:57:52 EST AUTUMN Apnea Chat and Support Hey friends. Looking forward to more active and lively support here. I love that each of you is making more progress each day. <BR> <BR> Jimmy, Thank you. I am going to send you a leader invite. You don't have to do anything but accept it right now. It will give you a chance to look around at the site and find out what your privileges are. After you are familiar and comfortable, I would love for you to send team goodies out to whoever you wish. I have actively ignored. them. I wo... Sun, 22 Sep 2013 16:33:44 EST CPAP CAN MAKE YOU MORE ATTRACTIVE. <link><BR>ap-younger-attractive-sleep-apnea-appe<BR>arance_n_3916443.html </link> <BR> <BR> Love the Huffington Post. Great article. Also check out slideshow at bottom. Wed, 18 Sep 2013 22:49:11 EST another newbie Hi I was just diagnosed with sleep apnea. I was a bit surprised because I never snore (although I have been known to sing from time to time) I am new to all this, any suggestions on what I need to ask, or features I should be looking for in a CPAP machine would be appreciated. Wed, 18 Sep 2013 20:17:49 EST AUTUMN 2013 Cleaning Schedule Time to wash and change filters, do a thorough equipment check and cleansing and order replacement parts. <BR> <BR> Cleaning checklist: <BR> DAILY: Wash all pieces of mask with soap and water and rinse out hose. Change water in humidifier. <BR> WEEKLY: Scour humidifier tank, wash hose with soapy water, check filters <BR> MONTHLY: Wipe down machine, change and wash filters <BR> <BR> Equipment checklist <BR> FILTERS: Are they changed, do you need to order more <BR> HUMIDIFIER TANK: Is it scou... Sun, 15 Sep 2013 15:18:02 EST Felling tired it's been hard getting to sleep and staying asleep, partly due to my cpap but also just me, it takes a bit to get started in the morning but I'm good and then it hits me I could just sleep till the cows come home <em>24</em> , what sucks is my dr stated if things continue he wants to put me on some meds stay more alert, I tend to that 1 in mil sensitive to meds <em>39</em> Fri, 6 Sep 2013 10:54:53 EST Chin Straps Dear Friends, What type chin strap do you use and do you like it? We have an uninsured friend on this team who is looking for one. Thu, 29 Aug 2013 05:14:18 EST first appointment So I had my first follow up and got to meet my doctor since my diagnosis, they did want me to go without the cpap until i saw him... nice and actually listened to me.. He will be helping with my asthma too :) so hopefully he can help at least my breathing and my chest pains here's crossing my fingers. I'm scheduled for lung test again Tue, 20 Aug 2013 14:51:45 EST SleepSeeker or SleepyHead software? I have a ResMed S9. I am curious on what software (if any) you prefer to track and view machine data. I downloaded SleepyHead from and so far I am impressed. I might like it better if I actually could discern all of what it is telling me on all of it's data logs. I haven't tried SleepSeeker from the ResMed site yet. Just trying to find out what folks prefer. Tue, 20 Aug 2013 00:28:53 EST 'Quattro Air' Mask Leakage I have been just starting out on therapy for about two weeks. I have been making progress with increasing my sleep time. My problem is I wake up to leakage after one to four hours of having the unit on. I try the subtle adjustments and lie back down and the leakage continues. Is anyone else having or had this issue? What have you done to alleviate the problem? Mon, 19 Aug 2013 15:29:19 EST So excited!! My home medical company just called! I pick up my machine tomorrow afternoon!!! I am so excited. Mon, 19 Aug 2013 13:47:36 EST Alarm Clocks As I wait for my machine to come I wonder if I'll actually hear my alarm clock over the machine. Does anyone have a problem of not hearing their alarm clock over their machine? I'm wondering if I should be getting a vibrating alarm clock. I'm also thinking about a Fitbit. I don't know yet how much, if anything, this machine & mask is going to cost me, so I don't want to needlessly spend money, but at the same time I don't want to rely on my husband waking me up every morning. <BR> <BR>... Sun, 18 Aug 2013 11:32:51 EST hi thanks for your concerns and advise, my asthma tends to flair if to hot and humid or to cold, lately it had been bad i try to stay in where it's cool but got take out my lil dog and run errands. <BR> i will be meeting this week with the pulmonary doctor and see if med need to be change takes longer to recover, Sat, 17 Aug 2013 23:04:29 EST flip flop was hard getting to sleep chest hurt, kept trying to catch my breath...(asthma been bad) tried both mask and finally gave up toke off and eventually feel a sleep, but toss and woke several times 2,4or5,7 i put my mask on at one point slept a few more toke off due to getting up and fell asleep till 10am figured no where to go today the ribs still soar.. Wed, 14 Aug 2013 15:07:40 EST good morning <em>224</em> I hope everyone slept well, once I fell asleep I managed 5-6hrs with my capa my best so far.... still lil sleepy .some stiffness but I'm good. Time for some stretching Tue, 13 Aug 2013 10:41:00 EST Counting Sheep <em>102</em> just wanted to say sweet dreams Mon, 12 Aug 2013 00:27:06 EST Titration study Going to my 2nd sleep study tonight. This time I'll get to wear a mask. This ought to be interesting! Fri, 9 Aug 2013 19:45:44 EST New Here but not new to cpap Hey Everyone, <BR> <BR> I've been a member of the Biggest Loser Challenge for several years. <BR> <BR> I just discovered this team. <BR> <BR> I've been a cpap user since about 2006. I did the sleep study and discovered I desparately needed a machine, my level, not sure which one was down in the 20s. <BR> <BR> Later my doc found I had a mass growing on my thyroid which turned out to be cancer. I had been under the care of an endo doc for 5 years and on synthroid. The cpap doc referred m... Thu, 1 Aug 2013 16:01:46 EST Ready to give up Hello, I am so frustrated I started using a Cpap machine o July 25th and the first two days were awesome. but now <BR> <BR> I have so much sinus pressure it actually hurts my head <BR> I am so short of breath that i went to the ER and had to get a chest x-ray and a breathing treatment <BR> <BR> I was fine before the CPAP. what am I doing wrong I really want to continue but I feel so bad. <em>46</em> Wed, 31 Jul 2013 17:30:50 EST Just diagnosed a couple of hours ago I did my sleep study Monday night. The doctor's office called me back and said it didn't look like I'd need to do another study, to go ahead and keep the follow up appointment. So, I did. He started rattling off numbers, 20 + episodes of sleep apnea in an hour. I don't remember if that was during REM sleep or not. I do remember that the # of episodes was higher during REM. My pulse/oxy dropped into the 80s also. I wish I had remembered to get a copy of my numbers. <BR> <BR> Anyway, ne... Wed, 24 Jul 2013 15:54:30 EST Check this thread. <link><BR>sageboard_thread.asp?board=-1x10648x48<BR>459880 </link> New user has a dinosaur for a mask. Go to the other thread with this link and see if you have any recommendations for him for a full face mask. Thanks. Mon, 15 Jul 2013 19:08:25 EST I'm new, anyone home? My name is Ellen and I've been lurking on Sparkpeople off and on for a couple of years now. SInce my dx with severe sleep apnea in April, I've become committed to losing a tremendous amount of weight (My alltime high was 265 during my sleep study and I've lost 11 lbs. over the past month, mostly by changing my diet). I'm having a hard time adjusting to my machine and mask, even though I have a state of the art bilevel machine (my pressures are set way high, 25/15) and I'm on my third mask, ... Tue, 9 Jul 2013 10:32:04 EST Summertime Chat and Support Hi troops, hope the good weather is keeping you busy with fun and healthy activities. I walked a linear trail yesterday with Buddy. Also getting some cleaning done around the house. Mon, 3 Jun 2013 17:06:03 EST beeping machine So my machine woke me beeping this morning. I added water, pushed buttons and finally put it on the floor so it would not be annoying. It didn't seem to be beeping when I woke. <BR> <BR> Has anyone else had alarms go off on their machine? What did it mean? Sat, 11 May 2013 16:45:09 EST Scared... Hi, Every one <BR> I am new here I was just told that I have severe sleep Apnea. The sleep study went well and they got all the data they needed. Then at the doctors today he said that my blood oxygen level dropped all the way down to 76% and that I needed to go to specialist right away. I know nothing about sleep apnea, so I'm doing some research but the online forum I read made it seem like the CPAP Machine was horrible. Fri, 3 May 2013 10:35:28 EST APRIL CLEANING SCHEDULE Time to wash and change filters, do a thorough equipment check and cleansing and order replacement parts. <BR> <BR> Cleaning checklist: <BR> DAILY: Wash all pieces of mask with soap and water and rinse out hose. Change water in humidifier. <BR> WEEKLY: Scour humidifier tank, wash hose with soapy water, check filters <BR> MONTHLY: Wipe down machine, change and wash filters <BR> <BR> Equipment checklist <BR> FILTERS: Are they changed, do you need to order more <BR> HUMIDIFIER TANK: Is it scou... Thu, 4 Apr 2013 17:42:16 EST Just Diagnosed Hi. I was just diagnosed with sleep apnea -- I haven't even been set up with a CPAP machine yet. That comes Thursday night. I'm quite concerned about the fact that I stop breathing at night, but I'm also concerned that I won't be able to sleep with a mask. <BR> <BR> Please, tell me this is all going to work out and I will feel SO much better. Mon, 1 Apr 2013 14:16:54 EST SPRING CHAT LINE April Showers bring May flowers. Hi Merri and everyone else. <BR> <BR> Merri, thanks for keeping the other chat thread going. I blogged about my hospital stay, so won't repeat it here. <BR> <BR> The flowers are blooming here. We had a few days of sun and milder temps. This is the perfect Oregon spring and much more typical than the last two years. I am seeing forsythia, camelia, daffodils, crocuses, snowdrift, lawn daisies and the dandylions are even threatening to come up. The moles are very busy. The star magnolia ... Tue, 19 Mar 2013 02:41:51 EST Hello! Hello all! My name is Kelly. I was diagnosed with obstructive sleep apnea about 7 years ago and I started using a CPAP machine about the same time. The change in my sleep patterns was immediate and I've never looked back - I refuse to sleep w/o the machine, even for a quick nap. Nice when I'm at home but not so much if I'm somewhere else. <BR> <BR> So, I want to lose some weight to try to lessen the severity of the apnea that I may not need the machine anymore. I don't even know if that... Mon, 18 Mar 2013 15:11:04 EST Good Soap Suggestions? I had been using Johnson's lavender baby soap for 2-3 years, but have developed an allergy to it. I am going to guess it is the fragrance & there is probably one w/out fragrance I could try. Couldln't figure out what else it might be. <BR> <BR> What are some of the soaps you find work well for you? I know I have an allergy to formaldehyde and formaldehyde releasing preservatives that are used in some soaps. Sun, 10 Mar 2013 22:12:34 EST HELP I haven't been able to sleep well for a long time. I have a cpap machine and it is working fine according to the clinic people, but my sleep is little or none. I lay there tossing and turning, and feel exhausted the next day. When evening comes I am so tired and drowsy I can't even sit and enjoy tv with my family. Actually there are days where I can't even make it through the afternoon without feeling exhausted. <BR> <BR> There are factors here to consider is guess. One is stress. My husban... Sun, 10 Mar 2013 08:25:38 EST Tracking Sleep with Fitbit I'm using my fitbit to track sleep, but don't think it means too much. Anyone have experience? It tracks any movement. I dreamed and felt I slept pretty well last night for 7+ hours but because I moved in my sleep fitbit says I slept only 4. Anyone else using this? Love to hear what you think! <BR> <BR> Tue, 5 Mar 2013 06:03:55 EST March Cleaning Schedule Time to wash and change filters, do a thorough equipment check and cleansing and order replacement parts. <BR> <BR> Cleaning checklist: <BR> DAILY: Wash all pieces of mask with soap and water and rinse out hose. Change water in humidifier. <BR> WEEKLY: Scour humidifier tank, wash hose with soapy water, check filters <BR> MONTHLY: Wipe down machine, change and wash filters <BR> <BR> Equipment checklist <BR> FILTERS: Are they changed, do you need to order more <BR> HUMIDIFIER TANK: Is it scou... Mon, 4 Mar 2013 01:37:36 EST How did anyone get used to using this machine! Ugh Well I have had my machine (adj rate) for about 1 1/2 months...I can't use it for more than 1-2hrs a night...ugh. Most of the time while wearing the mask, I am trying to get to sleep! Many, many nights I give up figuring at least a few hours of non-restful sleep is better than no sleep at all. Other nights, after a while I can dose off but something also wakes me and I have to take it off. I am figuring that it is the large amount of air pressure it takes to get me to breathe again. But ... Sat, 2 Feb 2013 22:25:52 EST new to this team, not to sleep apnea... Hi everyone!! Just introducing my sleep-deprived self. I'm Lana and lately even the machine doesn't help. I still don't sleep well. Sooooo tired... Thu, 17 Jan 2013 11:17:11 EST New Here Hi, I am returning to spark after 4 yrs. I am new to this team. I was diagnosed with sleep apnea a couple years ago but haven't used cpap faithfully. Doctor says my weight is part of the problem and after incident couple weeks ago that terrified me I have started using cpap regularly. And decided to lose the weight so I can enjoy my retirement. Wed, 16 Jan 2013 18:42:10 EST So frustrated... So, I have been with my CPAP machine for a little over a month now and I have never felt better! Well, except for last week when I was sicker than I have been in a long time but that was a big exception. Other than that, I am amazed at the affect the machine has had on me... I have more energy, I am getting stuff done.... the list goes on and on. So, why am I frustrated??? It's my husband.... <BR> <BR> He went for a sleep study before I did but did not go into a deep enough sleep because... Wed, 16 Jan 2013 13:12:52 EST Travel with CPap Machine Is there a smaller cpap machine available to rent for someone who is going to travel to Europe for 10 days? I told my sleep Dr. today about this site and he said to ask for a patient he has. Anyone know? Mon, 14 Jan 2013 18:29:22 EST Introduction I am a 65 yr old man in Ireland. I have had a cpap machine for about five years,. <BR> <BR> My relationship with the machine is fairly fraught, I wake up a lot during the night, sometimes thirsty. (I have a humidifier), sometimes, I need to go to the bathroom. <BR> <BR> These interruptions mean I sledom seem to get the three hours plus sleep ypou need to get any benefit. <BR> <BR> I am thinking of going for another sleep study. I am currently set on 13 (mm Hg/), I wonder is that too high.... Sun, 6 Jan 2013 18:35:53 EST New to the Sleep Apnea team... I have had sleep apnea since 2006. If I fall asleep in my lazyboy chair I snore so loud it wakes me up!! Sat, 29 Dec 2012 03:30:02 EST 5-Letter Word Game (A-Z) About Fri, 21 Dec 2012 09:51:30 EST New here... Just joined today.... I will try to give a little background without getting too windy! lol I was just diagnosed with Severe Sleep Apnea around Thanksgiving and just got my CPAP machine last Friday. I always thought I slept ok but was very surprised when they put me on the CPAP machine at the sleep study and I woke up wanting more sleep with the machine! I was anxious to get my machine because I knew I would start feeling better because I was sleeping better. After a week of use, I do fe... Fri, 14 Dec 2012 15:09:06 EST VINEGAR AND.....? Do you do regular (daily/weekly) cleaning w/ a vinegar and dist. water solution? My cleaning schedule includes a weekly soak of all my non electric equipment. The only thing is I then have half a bucket full of vinegar and water and it seems so wasteful. <BR> What do you do with your solution if anything, before tossing it? <BR> <BR> 1) all Bob's and my sunglasses and eyeglasses go for a soak. Then we rinse, towel dry and they are so clean. No film. <BR> 2) a few times a year I take my wi... Tue, 11 Dec 2012 11:40:15 EST CHAT LINE WINTER. Think hot tea, warm slippers Hi all pour yourselves a cup of hot tea to stay warm and for our Australian friends, you might want to consider iced tea. <BR> <BR> I wonder how our Aussie is and if he is in London yet. <BR> <BR> My friend, I have been taking to the doctors on Mondays has to have a skin graft next week. I hope she will finally start healing. Mon, 10 Dec 2012 20:50:02 EST Winter Cleaning Schedule Time to wash and change filters, do a thorough equipment check and cleansing and order replacement parts. <BR> <BR> Cleaning checklist: <BR> DAILY: Wash all pieces of mask with soap and water and rinse out hose. Change water in humidifier. <BR> WEEKLY: Scour humidifier tank, wash hose with soapy water, check filters <BR> MONTHLY: Wipe down machine, change and wash filters <BR> <BR> Equipment checklist <BR> FILTERS: Are they changed, do you need to order more <BR> HUMIDIFIER TANK: Is it scou... Sun, 9 Dec 2012 14:02:10 EST Finally!! Tomorrow I will be getting my machine Yep, started in September and just now will be getting my first machine. I seriously can not believe how long this process as taken...gee not like this can't kill me or anything people! Ugh! <BR> So anyway looks like I need the "cream of the crop" yep of course the most expensive out there...variable machine with heat/humidifier. Well at least this one worked at the 2nd sleep study....I really didn't think they would find something that would work for me. And yes, it was stated that I hav... Thu, 6 Dec 2012 13:16:06 EST New to sleep apnea and the team Hi. I have been recently diagnosed with severe sleep apnea after my husband demanded I see a doctor and have a sleep study done. I haven't been sleeping well for years. I will be getting my BiPAP machine tomorrow morning. I am very nervous because I am claustrophobic and have to wear a full face mask because I am a mouth breather............ I don't know how much more complicated I can make things than that. LOL Anyway, I joined this team for support and hints and tricks etc. to deal wi... Thu, 8 Nov 2012 13:36:29 EST Surgery before starting CPAP? Has anyone have surgery done before starting to wear the mask? Just thinking, sense the air pressure would have to be so high, surgery would hopefully help and lower the air pressure amount. Mon, 22 Oct 2012 17:56:52 EST 2nd sleep study here i come..... Surprise, surprise. Drs office just called to say that I need to have a second sleep study done. This one is for the air pressure; no question that I have sleep apnea. Diagnosed with severe obstructive apnea....95 events per hour! Ouch, ok I knew I was bad but wow. <BR> Anyway, I'm not looking forward to this study...they couldn't get the air pressure high enough to stop the symptoms (I have no idea what the pressure was at). I basically at a panic attack the last time and ripped the mask... Mon, 22 Oct 2012 17:16:04 EST HELP HELP I can not stand this air what did you do I just can not stand the air blowing in my face. Tried the nose thing then the mouth and nose. The air even though they say is very low and will increas later makes me want to hold my breath and I just cant breath and have to take it off to breath. It's like sticking your head out a car window at 55 looking streight forward and trying to breath. How did everyone else do this. I just dont know what to do but my heart doctor says this is killing my heart. help please. Wed, 10 Oct 2012 19:22:02 EST Finally have a sleep study scheduled!! Yippee, finally heard from the sleep study lab and my insurance will cover this! I have my first study scheduled for this Friday night. Ok getting excited about it (really want to know just how bad my breathing is) but also very nervous (don't like the idea of people watching me while I sleep). Oh well, at least I will get some answers soon. <BR> <BR> One question, does anyone have problems with pets getting tangled in the tubing? My husband thinks this will be a problem with my pugs. ... Wed, 10 Oct 2012 13:42:04 EST Hi I'm new to this team Hi! My name is Shirley. I am new this team. I was diagnosed with sleep apnea 3 years ago and I use my c-pap machine every night of the week. It has changed my life. So glad I have found this team, so nice to meet other people with the same problems. Have a great day! <BR> Thu, 4 Oct 2012 10:49:34 EST New to the team Hi everyone. I was diagnosed with SA back in December. After getting my cpap, my life has improved dramatically. I can't imagine trying to go without it for even one night. I've also got RLS which doesn't help anything. <BR> <BR> The two issues I'm having are excess gas in the morning and the indentation marks from the mask. I've spoke to my doctor about the gas and she said that it's because I'm losing weight. We've already bumped my pressure down a notch but I think I might need to... Sun, 16 Sep 2012 21:27:04 EST Dental Appliance Tortoise110 asked on another thread if anyone else was using the dental appliance for Sleep Apnea. She has had good experience with it. I thought it was a good question and deserved a new thread. <BR> <BR> Has anyone else tried the dental appliance or thought about it? Sun, 16 Sep 2012 04:37:27 EST New to this team Hi everyone! I was first diagnosed with sleep apnea last February, and only after my DH came with me to a doctor's appointment for what I thought was an unrelated problem. You see, I was sleeping a lot but not feeling rested. I was having trouble breathing and it was this concern (along with swelling of my ankles) that led me to see my doctor in the first place. My DH mentioned that I snored a lot and appeared to gasp for air during the night. I was then sent to a clinic and after using ... Fri, 14 Sep 2012 19:47:46 EST Experiences with my Cpap Machine My Cpap has changed my life in more ways than better sleep. I sleep on a lower bunk bed (use the top for storage.) I hang my mask when not in use on a loop hanging from the top bunk. One day when putting it on the loop while laying down, the mask dropped onto my left eye, hit my implanted lense, caused it to move and I had to have another cataract surgury to replace the lense. Have put in a lower loop so now if I miss, it falls to my side. <BR> <BR> Has anyone else had unexpected experi... Thu, 6 Sep 2012 08:05:25 EST SEPTEMBER BIRTHDAYS 2012 Anyone have a September birthday or know someone with a September Birthday? This is the place to honor yourself and others and let us indulge you with emoticons. Thu, 6 Sep 2012 01:51:04 EST CHAT LINE...AUTUMN, Crisp Leaves, brisk weather I know technically it is not Autumn yet, but I love the word and time of year. School starts. Remember the line from "You've Got Mail" about the "freshly sharpened bouquet of pencils". I can even smell the pencil sharpener in my mind. Homecoming is coming soon. Bonfires and school spirit. They sustain small towns and the big ones too. After that we have our little spooks and goblins to entertain us and lastly, my favorite holiday of the year, Thanksgiving. I do love Autumn. <BR> <BR>... Thu, 6 Sep 2012 01:49:28 EST SEPTEMBER CLEANING REMINDER <BR> **************************** <BR> Time to wash and change filters, do a thorough equipment check and cleansing and order replacement parts. <BR> <BR> Cleaning checklist: <BR> DAILY: Wash all pieces of mask soap and water and rinse out hose. Change water in humidifier. <BR> WEEKLY: Scour humidifier tank, wash hose with soapy water, check filters <BR> MONTHLY: Wipe down machine, change and wash filters <BR> <BR> Equipment checklist <BR> FILTERS: Are they changed, do you need to order mo... Thu, 6 Sep 2012 01:43:07 EST New to forum & Seeing Dr tomorrow for Diagnosis ?s Good Morning, I am new to this forum and have just started back with Sparkpeople. I need to lose about 30 lbs and have tried for several years with no luck. I have not been diagnosed yet with sleep apneas (obstructive) but I know that I have it and have since a child. <BR> <BR> Are there any specific questions that may be a value to ask the doctor tomorrow? <BR> <BR> Does everyone have to have a sleep study done? I do not believe that the full cost is covered by insurance. : ( <BR> Tha... Mon, 27 Aug 2012 11:29:02 EST new to cpap I was diagnosed with mild sleep apnea (just over the range for treatment) and restless leg syndrome. i am having a really hard time with this. I've tried several meds for the RLS but can't take any of them. I started using a CPAP 1 month ago. That is not working well. It's the usual problems with it being very bothersome at night. The medical supply company changed the size of the face mask and at least now it does not blow air up into my eyes. I bought one of the Contour sleep apnea pillows ... Fri, 17 Aug 2012 05:51:13 EST SIX THINGS YOU WOULD NEVER DO We had a challenge at Writers Workshop to list six things we would never do. Then we had to write about being forced into doing one of the things. What was interesting is what people chose to list. One of our writers is deathly afraid of water. <BR> <BR> Here are six: <BR> 1) jump out of a perfectly good plane with a parachute <BR> 2) eat escargot <BR> 3) snow ski <BR> 4) grow a beard on purpose <BR> 5) walk a tight rope <BR> 6) go on Survivor and survive <BR> <BR> What are your six? Wed, 15 Aug 2012 18:42:56 EST CPAP Decorating Contest Be honest! The cpaps are boring and ugly. Time to dust off the creative skills and decorate the thing. I found the most wonderful picture on google images of a bagpap resplendent in plaid. <BR> <BR> Please post your pictures in the team photos. Pictures in progress will be fun too. We can all have bragging rights. I was thinking of just decorating the machine in shabby chic till I saw the bagpap mask and headgear decorated in plaid. I am going to have to rethink my strategy. <BR> ... Mon, 13 Aug 2012 13:25:08 EST Quick question regarding mask/cushions OK it's not even to save $$ since my insurance covers my supplies, but they recommend changing out the cushions on my nasal mask every 2 weeks. <BR> <BR> I wipe it down daily, do a weekly 30 min soak in distilled water and white vinegar (my DME's recommendation). <BR> So QUESTION: why do I need to change it out every 2 weeks? Can I go longer? Obviously if my mask were leaking or raggedy etc, I wouldn't be asking this question. Is it vital that I change it out every 2 weeks and if so do yo... Mon, 13 Aug 2012 12:53:42 EST When did you ask for a new sleep study? I've lost 30 pounds so far (which is about 10-15 pounds less than when I had my original sleep study). I'm wondering how much weight is likely to affect the sleep apnea. I have to lose another 70 pounds so I'm not thinking anytime soon but I'm wondering, 50 pounds, 75 pounds or wait till I've gotten to my goal weight. <BR> <BR> <BR> What has been other people's experience? <BR> <BR> thanks <BR> Sun, 12 Aug 2012 12:43:10 EST Traveling with the C-PAP Machine I don't know about the rest of you but I really don't sleep well without my machine. I actually fell asleep without it last night and I feel like crude this morning...even slept later than normal. <BR> So...the thing is...I have to travel with it. Does anyone else not want to stay with family and friends when you travel just so they don't know that you have to wear a C-PAP? We have a family reunion coming up at the end of this month and I've been fielding all kinds of questions about why... Sat, 11 Aug 2012 10:40:39 EST C-PAP Hi Folks! I'm new to the team. I've been using a C-PAP machine off and on for several years. I can tell you that it makes a big difference for me. Just wish it was a little more comfortable. I sleep on my side so the thing frequently moves while I'm sleeping and scares the stuffing out of me. :) Wed, 8 Aug 2012 16:59:41 EST August Cleaning Reminder **************************** <BR> Time to wash and change filters, do a thorough equipment check and cleansing and order replacement parts. <BR> <BR> Cleaning checklist: <BR> DAILY: Wash all pieces of mask soap and water and rinse out hose. Change water in humidifier. <BR> WEEKLY: Scour humidifier tank, wash hose with soapy water, check filters <BR> MONTHLY: Wipe down machine, change and wash filters <BR> <BR> Equipment checklist <BR> FILTERS: Are they changed, do you need to order more <BR... Wed, 1 Aug 2012 22:03:59 EST How Has Your CPAP Changed Your Life? I know this could lead to a lot of long posts but I am looking for a 'long story short'. I will start. <BR> <BR> I have only had my machine for about 4 months. Before I was diagnosed with severe sleep apnea I had waited over a year to get get into a sleep clinic. I had been tired since I was about 19. (At the time I weighed about 125, a healthy weight.) I was 40 when I was finally diagnosed. The diagnosis showed I was waking up on average ever 45 seconds! Before I got my machine I was ... Wed, 1 Aug 2012 20:12:29 EST ever heard of a avap machine? Hi ! I've been through the mill and back, so to speak. I am now on an avap machine, something like a ventilator. I feel as though I've gone from bad to worse. Anyway, at least I'm sleeping at night now. Still having sob on walking, but that's supposed to be because of my weight, even though I have lost almost 60# since 2004. I am going slowly on purpose to retrain myself to change my lifestyle; this was my thought when beginning on Spark in 2010. At that time I had only lost 30#. You realiz... Sat, 21 Jul 2012 10:24:36 EST CPAP sleep study tomorrow night! Hi all, <BR> I'm Jenn. New to the group and recently diagnosed w/severe sleep apnea. I'm opting to go w/ a CPAP and see if I can loose some weight before considering having my tonsils removed (they are HUGE from having months of strep throat in the last year and are believed to be part of my sleep apnea issue (possibly a large part)). So, I have my 2nd sleep study tomorrow night. I've been told once study results are in I'll then get to choose my preferred CPAP. Anything I should know or... Thu, 19 Jul 2012 23:26:59 EST I have a quick question I use a Respironics Remstar with a humidifier. The DME rep and the instructions say to fill the humidifier reservoir to the Maximum line. But I don't like a lot of humidification (usually set at 1 or 2 as Texas summers are HUMID). So when I wake up in the morning I have 3/4 of the water still in there. I know it's not ultra expensive but why waste it? Does anyone know if it functions just as well only being filled to 75% or even 50% capacity? The reps. therapist at the DME provider is on... Mon, 9 Jul 2012 22:18:15 EST Using Apap Since January - AHI Readings Rising? Hi everyone, so glad I found this group! <BR> <BR> I was diagnosed with mild sleep apnea in January of this year. I've been 100% compliant with my therapy, but recently my AHI readings are much higher than they've ever been - from 10 to 15 or so. My initial AHI at diagnosis was only 7.1. <BR> <BR> I've lost weight since diagnosis (about 10 pounds) so why would it be going up - and in such a short time? Any ideas? <BR> <BR> When I get back from vacation I'm going to have my DME provider se... Mon, 9 Jul 2012 00:36:48 EST Back to SP .... new to CPAP This has been an ongoing struggle for me. Way back 25 years ago (I was thin then) I remember going to the doctor, telling him how I often woke up gasping for breath and I felt as if my heart was hammering. He kind of said "yes, uh huh?" Fast forward to 7 years ago. I had 2 sleep studies which were rousing failures as they expected me to go to sleep at 10 and go home at 5AM. (I usually fall asleep around 2-3AM). So I had studies where I never slept and just had a tech constantly telling ... Wed, 4 Jul 2012 00:57:02 EST Educational cpap videos <link><BR>ideos.html </link> Tue, 3 Jul 2012 23:37:15 EST Distilled Water Does anyone know why it must be distilled water? <BR> More importantly where do you store the water? <BR> Can it go in the fridge so its cool? <BR> Must it be used for cleaning the equipment? Mon, 2 Jul 2012 12:38:28 EST July Cleaning Reminder **************************** <BR> Time to wash and change filters, do a thorough equipment check and cleansing and order replacement parts. <BR> <BR> Cleaning checklist: <BR> DAILY: Wash all pieces of mask soap and water and rinse out hose. Change water in humidifier. <BR> WEEKLY: Scour humidifier tank, wash hose with soapy water, check filters <BR> MONTHLY: Wipe down machine, change and wash filters <BR> <BR> Equipment checklist <BR> FILTERS: Are they changed, do you need to order more <BR... Sun, 1 Jul 2012 13:39:14 EST JULY BIRTHDAYS 2012 Anyone have a Birthday this month? Let's Party! Happy Birthday! <BR> <em>283</em> <em>232</em> <em>468</em> <em>236</em> <em>335</em> Sun, 1 Jul 2012 13:38:30 EST Newly Diagnosed My name is Jennifer I am newly diagnosed. I did one sleep test but didnt sleep much so I redid it several months later with a cpap machine and clocked in at 30.6. Basically I stop breathing every two minutes on average which I am told is pretty severe. How can you go years without knowing this? Sat, 30 Jun 2012 12:33:26 EST cleaning well chamber Hi! I am wondering if any of you have had this problem. I have had my water chamber for the first time in the last six months and have used a cpap for about twelve years. <BR> <BR> I have the resmed S9 machine with a well that does not open. There are only 2 only openings- one is much smaller that a dime and the second is about the same diameter as the tubing since this is where it attaches to the machine. <BR> <BR> Resmed suggested that I use a mild dish detergent that rinses easily lik... Tue, 12 Jun 2012 20:32:59 EST Sleep Study Results AHI - 121.1 I got my sleep study results today. My doctor was quite concerned that I have not looked into this sooner. My AHI is 121.1 for the study without any REM sleep. He was also amazed that I managed this while sleeping on my side with my mouth closed the whole time. I did well on a very low pressure (5) and actually had some REM sleep while on the CPAP. I am now waiting to get a call about getting a CPAP for home. The adventure continues...... Mon, 11 Jun 2012 21:44:12 EST How did you know you had sleep apnea? Hello! I wanted to know how most of you found out you had sleep apnea. I have been having problems sleeping and sometimes catch myself at a pause of breath while waking up or falling asleep. I went to do a sleep study a couple months back and I was so nervous during the study that I barely slept. By the time I got my results back it came out negative. However, I still have trouble sleeping because it's always on my mind. I don't wake up gasping for air, nor do I snore loudly, but I do wake up... Mon, 11 Jun 2012 14:01:35 EST My introduction Hi, Dan here. <BR> According to my wife, and I believe her, I have had sleep apnea for the last 10-15years, started while I was still in the Air Force, and has continued since. Of course, my weight gain has accelerated since "Uncle Sam quit breathing down my neck", and that has seemed to make the apnea worse this past year or so. Unfortunately, I continue with working shift work, the shift changes every few days with 1-2 days off in between if I am lucky. I have noticed recently a tendenc... Sun, 10 Jun 2012 12:48:17 EST JUNE CLEANING REMINDER **************************** <BR> Time to wash and change filters, do a thorough equipment check and cleansing and order replacement parts. <BR> <BR> Cleaning checklist: <BR> DAILY: Wash all pieces of mask soap and water and rinse out hose. Change water in humidifier. <BR> WEEKLY: Scour humidifier tank, wash hose with soapy water, check filters <BR> MONTHLY: Wipe down machine, change and wash filters <BR> <BR> Equipment checklist <BR> FILTERS: Are they changed, do you need to order more <B... Wed, 6 Jun 2012 01:26:15 EST What does this all mean? I am not officially diagnosed but I sure it is coming at my next appointment. I had a sleep study last night. My mind was racing and I finally fell asleep at 1:00AM. The technician woke me at 2:30 and said I met the criteria "very quickly" and put me on CPAP. It took me an hour to get used to it and I slept for 2 hours when they woke me up to go home. As I leave they tell me I may need to repeat the study because they prefer 2 hours to verify criteria and they did not have enough time to ... Sun, 3 Jun 2012 18:07:18 EST Lynnwood541 I would like to thank Blue Kittygp.come, I'm sorry I don't know how to add a friend. Tue, 29 May 2012 21:36:23 EST CPAP lover having WLS on Wednesday Grand Intro Drumroll please.....I have Sleep Apnea and have used my CPAP since 2006....Would like to meet new friends, and share my knowledge of Sleep Apnea and my journey with Gastric Sleeve Bypass Surgery coming up Wed May 30th, 2012. New to SP I am looking to help and share my stories with others. Nice to meet you - Glenn Tue, 29 May 2012 00:54:56 EST Questions, Help, Please I've had a CPAP for yrs and have tried 4-5 different masks. Now I'm using one that I tried before and seem to be having some success, only: <BR> <BR> 1. I go to sleep and wake up in the same position and horribly stiff. <BR> 2. Don't dream, much. <BR> 3. When I wake, still feel like I need more sleep. <BR> 4. Sometimes I wake dizzy and nauseous. <BR> <BR> Is any of this normal? Any other insights? <BR> <BR> Thanks. Mon, 28 May 2012 13:05:55 EST Effect of weight loss on CPAP pressure Hi, everyone -- I have lost approximately 30 pounds, and I plan to lose about 40 more. I have an auto PAP, so I can switch from CPAP to APAP mode if needed. I currently use my machine in CPAP mode at the pressure I was prescribed after my sleep study, when I was at my heaviest. I was wondering whether other team members who have lost a significant amount of weight found that their pressure needs changed as a result. I've heard some people say that their required pressure went down, while ... Mon, 14 May 2012 17:20:53 EST fatp1 Hello, I am new to spark people and I have a trach in my throat and I HAVE TO LOSE 140 TO GET THE TRACH OUT, and I would love all the help and guidance I can receive. Sun, 6 May 2012 23:02:15 EST Hello Hi, everyone! My name is Sara, and I was diagnosed with severe sleep apnea a little over a year ago. My sleep study showed that I was getting 0% REM sleep. I have been using my CPAP machine faithfully, and life is so much better now that I am able to get restful sleep! <BR> <BR> Sara Mon, 30 Apr 2012 18:11:32 EST Basic Info on Other Sleep Disorders <link><BR>roblems/sleep-disorder-types?cbr=advpm<BR>_mn&eid=1010663011&memberid=24690914 </link> Thu, 12 Apr 2012 15:12:29 EST Weird Creases and drinking your water This morning I have railroad ties on my arm. They have not gone away. I just realized they were from having the hose wrapped around my arm. The other realization is that obviously, I am dehydrated or my skin would have plumped back up by now. <BR> <BR> Even as older people our creases should plump up within an hour or so if we are properly hydrated. So here is my three day challenge to increase water consumption. Record your kitty whiskers (from straps) and other weird creases and then g... Wed, 11 Apr 2012 11:31:38 EST CHAT- Flowers and Showers and Sunshine too. The sun is glorious this morning even if it is only 28* out at the moment. Suppose to get up to 60 today. Better get off here and get ready for work. Sat, 7 Apr 2012 11:24:24 EST Hello!! Hi everyone, I'm back to the site after a stint in 2007. I'm older and wiser and ready to try this stuff out for good. <BR> <BR> I was diagnosed with sleep apnea when I was in college, I would say in about 2004 I think? I always remember how I realized something was wrong. I was cleaning apartments at the school I went to while the students were gone for the summer, and I was constantly falling asleep...I even fell asleep one time while cleaning the inside of a refrigerator. It's a mirac... Fri, 6 Apr 2012 10:51:46 EST Last night dreams were weird, even by MY standards Have to share this, just so that I can get it written down before I forget it. <BR> Dream 1 - I was in a car/SUV/some type of vehicle and a some sort of rescue vehicle drove up in front of us and a nurse got out and handed us a newborn baby boy to take care of until his adoptive parents came to get him. This sounds straight-forward, but all the details were surreal - like he was swaddled, but still kept slipping out of my hands. Suddenly we were at a house and there were a bunch of toddler... Sat, 17 Mar 2012 10:30:03 EST REALLY, REALLY TRYING THIS TIME! just joined and hoping that if I can stay away from my vices"so I will not need the surgery I am considering "the sleeve"! I have never really lost weight just kept increasing over the is the time to think about the future and my children! I'm wishing anyone reading good luck as well! Wed, 7 Mar 2012 22:42:06 EST NEW BEE HI MY NAME IS KATHY <BR> <BR> AND I PERFER TO BE CALLED KATHY OVER BRAYSHOME. <BR> <BR> IVE HAD SLEEP APNEA GOING ON 2 YEARS <BR> <BR> THANK YOU Tue, 6 Mar 2012 19:09:44 EST New Girl Hi. I'm Lori. I just had a sleep apnea test this weekend. My doctor and I are relatively sure I have sleep apnea. I keep waking up from snoring and choking. <BR> <BR> I had just started a job I loved about three months ago. I was asked to resign just over a week ago. My last week of work, I just couldn't get out of bed. Despite sleeping for over 80 hours that week, I just crashed. Every bone in my body hurt. I couldn't function. I couldn't remember things, etc. I spent a few days just freaki... Tue, 6 Mar 2012 00:33:18 EST tired and frustrated I was diagnosed several weeks ago with sleep apnea. I've had my titration study done. Now I am just waiting for the paper work to go through so I can get my prescription to get my CPAP. but its taking forever! I think the Dr. is on vacation. Meanwhile, I am getting more and more exhausted. My life is on hold. I can't function, I've had to cancel clients. I've had to quit doing things i enjoy, i'm just too tired. I can hardly type this. I need to start CPAP but I'm not looking forward to that.... Wed, 22 Feb 2012 09:30:59 EST adjustable cpap Hi ...just had to share. <BR> I have been holding off using my new cpap because I was anxious about the possibility of bph being inhaled since it is in the well of the humidification unit. I have used a cpap for about 12 plus years and am really feeling the result of the dryness since I have never used an attached humidifier. <BR> <BR> I broke down and used it 2 nights ago. I cannot remember when I have had a better night's sleep. I hit the pillow and then it was morning. I have not done ... Tue, 14 Feb 2012 22:03:06 EST just got diagnosed Hi i just got diagnosed with sleep apnea. I am to get titrated for CPAP soon. Has anyone tried a dental appliance? Mon, 13 Feb 2012 11:06:22 EST Water in hose The last couple of nights I've been awakened by the noise made in my hose by what I assume is condensed water. Does anyone have a solution for this? <BR> <BR> Thanks. Mon, 6 Feb 2012 11:17:43 EST Cat loves my CPAP hose Does anyone have any good suggestions to discourage my cat from entertaining herself with my CPAP hose? It's a Fisher Paykel machine and because it has a heated coil, they specifically state in their manual not to put the hose under the covers. I did it anyway after the first two holes (which I repaired with Tuck Tape) but it causes problems with overheating. I love her but three nights ago she waited until I was asleep and put several more holes in the hose while I slept. The hose costs ... Sun, 5 Feb 2012 00:47:53 EST Acupuntcture and Sleep Apnea <link><BR>/05/acupuncture-and-sleep-apnea.html?u<BR>tm_source=apneatreatmentg&utm_medium=e<BR>mail&utm_term=2&utm_content=Tell%2BYou<BR>r%20Sleep%20Apnea%20to%20Stick%20It!&u<BR>tm_campaign=apneatreatmentguide </link> I love acupuncture, but don't know of anyone local that does it anymore. It just always made me feel better and cleared up my sinuses. It also reduced the back pain. I love that it might tone muscles too. Fri, 3 Feb 2012 11:15:24 EST Post Here If you are doing Throat/Tongue exercises Just curious if some of the cpap mask haters have joined me in exercising the throat and tongue to help ditch the equipment at some point. Thu, 2 Feb 2012 11:56:33 EST Valentine and St. Patricks Day CHECK IN AND CHAT The sun is shining and I feel wonderful. I wanted to post a Spring Check in and Chat, but since it is still winter, I decided to focus on the next two holidays that tend to side rail healthy eating. <BR> <BR> In addition to discussing whatever we want here, I would like for us to list some healthy ways to transition in to spring. This is also the Lent season, but I don't want to chase away people that may not be as passionate about Lent as I am. Oh and of course there is the Super Bowl ... Thu, 2 Feb 2012 11:46:44 EST Orofacial Exercises for reducing Sleep Apnea Okay, many of you will remember me talking about this a couple of years ago when I pointed out that singers and wind instrument players don't have apnea. The researchers are starting to catch up with me and some speech pathologists are embracing it. <BR> <BR> I challenge you to experiment with one exercise a day. If we can at least lower our pressures to avoid the wind storm and aerophagia (air in gut) it would be wonderful. <BR> <BR> <link><BR>s-... Mon, 30 Jan 2012 13:11:56 EST Wobblywildwoman Apnea Screener Welcome to the team and thank you for sharing in the Spark Mail. This is the thread that I am going to use to post links for you. I do encourage you to share on the team, because we have several great members with good ideas and helpful thoughts. Most of them have been through what you are going through too. We want to help you get the support and equipment you need. <BR> <BR> First link is an apnea screener <link><BR>est/ </link> <BR> <BR> This l... Mon, 30 Jan 2012 12:31:16 EST heated tubing Hello there, I finally got my auto pap with heated mist and heated tubing was and option that was covered. The way he explained it, it sounded good so I got it. Does anyone have any experience with this type of tubing? <BR> <BR> I have yet to use my machine. I have avoided it for 2 days. It seems like a rocket ship to me compared with my retired dinosaur. <BR> <BR> I mentioned BPA to the med. supplier and he had no idea what I was talking about. I was concerned about the plastic reser... Sat, 28 Jan 2012 15:57:50 EST frustrated I am frustrated, the my mask is not working for me, I don't know why, It has got to the point where i have even slept without it on for a few nights because it is getting worse. <BR> <BR> It seems to be cutting into my nose and there is the sound of leaking air, Could it be related to the really hot weather in South Australia.... I suspect that the mask is too small for me, The DME provided me with a small mask, it worked ok in winter but now we are in summer it is not working. Wed, 18 Jan 2012 06:36:51 EST hello / weight loss This may post twice. The first time, I am not sure what happened: <BR> Hello everyone. I have been using my machine for one week now. I do feel better already. I dreamt for the first time in years last night. I think I have had sleep apne for 20 years, but have managed it well being young, in great shape, and a very healthy weight. After kids, I no longer had time to excercise, or nap, the both my kids were not good sleepers, so in addition to the apnea wakenings, I was also up a lot ... Tue, 17 Jan 2012 08:48:46 EST hi everyone! This is all new to me. I'm from Copperas Cove, Texas. Any members close by? I'm in the 50+ age catagory and I have diabetes aand need to loose 100+ pounds. Im kinda looking for a buddy/friend in same boat. I have never posted to a board before. I have face book only to see my kids post and keep up with them. looking to really make this work and hear from someone. Mon, 16 Jan 2012 21:30:09 EST new machine Is anyone familiar with a new (do not know if it is new, but it is the first time I have heard of it) <BR> c pap machine that adjusts in pressure to your breathing? <BR> <BR> Mine is broken and I am able to get another covered by my insurance, but will need to pay additional money to get the above model. <BR> <BR> I have allergies and am congested at night much of the time. My ENT suggested it, but I do not really know how much experience he's had with it. <BR> <BR> What is it call... Sat, 14 Jan 2012 20:15:06 EST SP FEATURE Privacy WARNING A new feature on SparkPeople automatically added a "Share Bar" to our blog entries. <BR> <BR> If you'll notice your own blog now there is a "Share" bar at the top of the blog. That means if someone likes your blog entry they can "share" on their Facebook wall!! <BR> <BR> To delete this "Share bar" feature from your blog do this: <BR> <BR> Go to your SparkPage. <BR> Click to Edit the page. <BR> On the top right Un-check "Show share bar on my blog posts". <BR> Save your changes. " <BR> <B... Fri, 13 Jan 2012 21:49:42 EST ALTERNATIVE TREATMENTS <link><BR>sleep-apnea.html </link> <BR> <BR> So you know you have apnea, but you don't have your machine, or your power is out, or you hate the cpap mask so much you want to get off the machine. Please use this thread to include links to information about alternative treatment. In the meantime, if your machine is working USE IT! Sleep apnea kills. I almost died. Even if you don't die, each apnea event makes it harder for your body to recover, leav... Thu, 12 Jan 2012 17:11:19 EST I am new! On Monday, I joined SparkPeople. Because it was 2:30 AM. A few hours later like 10:30 AM, I was still awake and not been to sleep yet. At 3:30 pm. I tried to get into my Spark People Account and of course, I could not remember if I had even joined or not! <BR> <BR> My Sleep Apena Machine broke in November. I have been trying to get an appointment with the Sleep Apena Doctor. I had my Sleep Study Test, but have not gotten the results back yet? <BR> <BR> Should I change doctor's? <BR> Any wa... Wed, 11 Jan 2012 18:59:06 EST New Member Hello! I'm new to SP, and thus to the board. :) I am so glad to find this board!!! I've had a BIPAP machine for a couple of years, but I can count on both hands the number of times I've actually tried to sleep with it on. I went into this process thinking how wonderful it would be to actually wake up feeling rested, but I haven't been able to: <BR> <BR> 1) fall asleep easily <BR> 2) keep the mask on my head all night once I'm asleep <BR> <BR> I have terrible trouble falling asleep when... Tue, 10 Jan 2012 23:45:26 EST I'M NEW HELLO SPARK FAMILY I HAVE SLEEP APNEA BEEN SURFING WITH IT FOR 7 YRS NOW Tue, 10 Jan 2012 17:25:48 EST Another new member Greetings and Happy New Year everyone. I just joined Sparkpeople on January 5. I've been on CPAP for almost two years now. It seems to be working well even with these 25 extra pounds but I know I would feel better and sleep even better if I could get it off and keep it off. I was actually very thin when my sleep apnea was discovered - the result of a run-away thyroid gland that was burning calories faster than I could eat them. When that stabilized, the weight started coming back on as f... Tue, 10 Jan 2012 14:29:14 EST HI Hi, I'm Jazaray. Nice to meet everyone. <BR> <BR> Thanks, <BR> Jazaray Mon, 9 Jan 2012 22:54:44 EST Registered Sleep Tech with Apnea I just joined Spark and was thrilled to see a group for sleep apnea. I am a registered and licensed sleep tech, and I also have apnea. I am glad to help answer questions if needed. Good luck to everyone with their goals! Sat, 7 Jan 2012 04:26:12 EST Tech support We have a new member who has experience with cpap equipment from the DME point of view. Check out this thread and ask questions. <BR> <link><BR>sageboard_thread.asp?board=-1x10648x45<BR>857583 </link> Fri, 6 Jan 2012 19:18:39 EST New member Hi all, <BR> <BR> I don't have sleep apnea but I work for a DME that supplies them and know alot about the condition so I thought it might be helpful to have someone on the team who could give perspective from that angle, answer questions, etc. Just here to be a resource for everyone! Fri, 6 Jan 2012 09:36:12 EST Savor the Season Slow Down <link><BR>indfulness-Savoring-the-season-by-slow<BR>ing-down </link> <BR> Check out the link and report back on one thing you did to slow down and enjoy. I found such joy in practicing this with the 24 Days of Christmas, that I wanted to continue it. <BR> <BR> Today, I savored repotting some bulbs. I look forward to seeing them bloom in a couple of months. I got joy from getting my hands dirty while Buddy watched and barked at the neighbors cat. <BR... Mon, 2 Jan 2012 05:09:52 EST Main Message Board Forume Hi,my name is Dora,I'm 61 yeaes old.I have many health problems,sleep apnea,acid reflux,Diabetes 2,nerve damage,muscles and back problems.Over the years I have lose weight,but these last 10 Ifind I take it off ,2 years later it;s back on.I find it harder to lose weight,because of my health problems,of which I have others not mentioned.This is the first time I have come on line about my health issues.I need to lose 25 - 30 pounds,or I will need to go back on diabete and high blood pressure pil... Sun, 1 Jan 2012 05:32:50 EST New to the team Hello everyone - My name is Kerry and I'm new here. Looking to get a new lease on life and get back to where I feel good. Guess I'm feeling that I'm much to young to feel this old :-) And yes...I have sleep apnea. <BR> <BR> Looking for all the help / support I can get! Fri, 30 Dec 2011 22:31:29 EST New to Sparks and new to team Hello. I am new and hope to get healthier. I am 63 and decided it was time to do something. I don't seem to have any energy when it comes to spending time with the grandkids or with my Cadette Girl Scout Troop. I am a Sleep Apnea person who has been on the CPAP since 1996. I have tried different masks and found that none of them seem to work completely great. My biggest problem is leakage. Most of the night is no problem as once I go to sleep I do not move, but when I start waking up a... Wed, 28 Dec 2011 15:36:06 EST Things to share Taking a leap of faith that we are all honest during this season of love and compassion. I have spare hoses. They are all used, but still no leaks. I also have an old machine (pre computerized memory card). I have saved it for emergencies, but realize now since a dear team member sent me spare masks, that it is better to share and open my heart than to hoard for an emergency. <BR> <BR> Many of our new members have to wait a long time to get new equipment and some of our old members are i... Thu, 22 Dec 2011 13:05:49 EST New to the Team and the mask(sorta) Hi I'm Janay. I was tested for sleep apnea last year. I got my machine and everything and HATED IT. I admit I never gave it a real shot and figured I was doing well all this time without it, I would just ignore it. So I lost the machine when I was moving from one place to another. So now I have gotten serious with my weight loss and I exercise everyday for 30 minutes and eat fiber rich foods within my calories and I still can't lose the weight. I know without a doubt the last piece of the puz... Mon, 19 Dec 2011 16:16:50 EST tumbled off the cpap sleep wagon Hi I seem to have dropped my cpap mask of the edge of a bed. or um sat on it on the bed. Some how I have managed to dislodge a part of the mask near the bridge of the nose and now there is so much air escaping that it isnt working properly. I did this late last week and havent used my mask for two days now, <BR> Today I am back to being tired and sleeping all day, <BR> I dont have the money to buy a new mask at the moment and it is a requirement of keeping the machine on loan from the hospit... Mon, 19 Dec 2011 00:43:01 EST New Member from Spokane I'm trying to lose 10+ pounds in a Biggest Loser challenge at my workplace. My goal for now is to track the number of calories I've burned each day. I love healthy recipes, especially those that use some amount of prepared foods such as those at Costco. Sat, 17 Dec 2011 14:51:56 EST Claustrophobia, anxiety and the mask Found Lanky Lefty again. He is my favorite tech. <BR> <BR> I know the new people to the cpap and mask tend to fight it mentally even if the fit is good. Here are some strategies to help. <BR> <BR> <link><BR>a_Anxiety_and_CPAP.html </link> Fri, 16 Dec 2011 03:17:13 EST New Member from Mississippi Hi, I'm Carrie and I have sleep apnea. <BR> <BR> In September, I was officially diagnosed with sleep apnea, but I don't know which kind. I didn't really know what questions to ask when I talked with the doctors. Now, however, I do. When I get my titration study done on Dec. 27, I will know what to ask. I know the questions because of forums like this one. Everyone who has gone through this, and learned some of the tricks, should be teaching us newbies what to do and what to ask. I'm gl... Wed, 14 Dec 2011 15:06:32 EST Sort-of New User Good Morning Everyone. <BR> I am new to this group and searching for information and answers to some of the issues I have run into. <BR> <BR> I was diagnosed last October as having sleep apnea. I have been falling asleep at inappropriate times since I was 18. (It started in my college classes - needless to say, I had to drop out of school.) <BR> <BR> The provider worked with me right through to the end of January, trying different masks. It turned out that my skin is very sensitive so ... Mon, 12 Dec 2011 10:41:01 EST New to team Hi, I am so glad I found this forum. I have been dealing with EDS for years, and finally I have a doctor who thought it was more than just being a busy mom. She sent me for a sleep study, and it appears that I have Central Sleep Apnea, along with periodic limb movement. She has put me on carbidopa/levodopa at bedtime and I am going in for a titration study on Sunday. I am a little freaked out because both my older half- brothers died around age 50 of heart attacks, and now I am 50 and fin... Fri, 9 Dec 2011 13:27:12 EST What part of your machine did you clean today? Just a challenge to help us remember to keep the cpap Sparkling. <BR> <BR> I am cleaning my mask and hose when I send this and checking my filter. Wed, 7 Dec 2011 12:07:02 EST WINTER CHECK IN AND CHAT Hi Dear friends both old and new. Hope that this winter brings good sleep and serenity to your lives. I wrote my newsy chat on the Autumn thread. <BR> <BR> Barb. I am praying for healing for you. <BR> <BR> Wed, 7 Dec 2011 11:49:15 EST THOSE CLEAN MACHINES.. ....better for your health Time to wash and change filters, do a thorough equipment check and cleansing and order replacement parts. <BR> <BR> Here is an equipment checklist <BR> <BR> 1) filters: Are they changed, do you need to order more <BR> 2) humidifier tank: Is it scoured and smelling fresh? Do you need to buy more distilled water? <BR> 3) all pieces to mask: Is it washed, does any part need replacing. <BR> 4) hose: Are there any air leaks? Have you run soap, mouth wash or other cleanser through it? <BR> 5) hea... Wed, 7 Dec 2011 11:32:05 EST diagnosed in june Hello I am new to SP and I was diagnosed with severe sleep apnea in June this year, I believe i have had it untreated for many years. I am using a cpap machine and it is very helpful. But I am not making the most of the machine and am lucky i havent consistently had colds. because i havent been cleaning it regularly enough. <BR> <BR> this is one of my challenges and I might even set it up as a goal on mytracker to clean the cpap mask cover daily, and clean the filter once a month (at least) ... Tue, 6 Dec 2011 21:49:18 EST Introducing myself... Hello, everybody! <BR> Just discovered SparkTeams a few days ago, so I thought I'd join a few that were of interest to me... like THIS one! <BR> I was diagnosed with OSA in March of 2007, and got my CPAP in April. It was pretty rough at first, but I've established a certain amount of peace with it since then. However, one of the many motivations for me to lose weight is the possibility that I might one day be able to put it away and NEVER have to use it again. I was already overweight when... Sun, 4 Dec 2011 20:46:24 EST TRY THIS INSTEAD OF THIS....... I had a wonderful light meal last night. It got me to thinking about substitutions. <BR> <BR> Try Organic Roasted Red Pepper and Tomato Soup with some chedder cheese grated on top instead of Cambells tomato soup with crackers. <BR> <BR> <BR> What are some of your substitutions? Thu, 1 Dec 2011 13:42:06 EST EAT FOR BETTER SLEEP<BR>it/get-to-sleep-guide/what-to-eat-for-<BR>better-sleep/ <BR> <BR> quote******* <BR> <BR> "My teammate started raving about her surge in energy thanks to a new 'whole foods' approach to meals," Jenniffer says. <BR> "I was so tired all the time. I seriously thought I had a sleep disorder. Suddenly I wondered, could it be my diet?" After hearing her friend describe how she was sleeping better and waking up raring to go, Jenniffer decided to clean u... Thu, 1 Dec 2011 13:38:42 EST new here Hi there im mike im new here and working on losing wieght this time really trying lost 5 pounds so far this week Wed, 23 Nov 2011 22:25:33 EST I need some sparkle in my life I have tried just about every diet out there. I have not tried to diet for over 3 years because of my lack of sucess in previous diets. I am here to try to find that motivation again to try to lose some weight. I have a lot to lose so I am hoping that this will be the place to jump start it all for me. Mon, 21 Nov 2011 14:03:22 EST Equipment "improvements" Okay, seems that CPAP masks are like New Balance shoes -- no sooner do you find a model that works for you that they change it. <BR> <BR> I managed to find a mask I liked (Mirage Swift) over the course of my CPAP trial. So, it came time for me to buy my own equipment, and the respiratory therapist brought in the newer model (I think it was the Mirage Swift FX). I hated it! So -- fortunately, I have a good relationship with this guy -- he exchanged it for what we thought I had been using. So ... Fri, 18 Nov 2011 17:01:11 EST New to Sleep Apnea team My name is Becky. I have been using Spark people off and on for a few years. I have found the site to be very useful when I am faithful. Just found this team. My husband has a CPAP machine, and about a year ago, he suggested with my "sleep sounds", I should ask my doctor about Sleep Apnea. Kaiser has a well-oiled sleep department and soon, I had my own device. Now we have HIS and HERS. One night my sweet husband quipped " Pilot to co-pilot...good night" Sat, 12 Nov 2011 17:22:02 EST recover from illness faster after CPAP?? Anyone notice whether or not they seem to get sick less, or get over illnesses faster after going on CPAP/being treated? <BR> <BR> I usually get a few colds a year, and I just got my first once since starting CPAP. It used to take me weeks to get over a common cold, but now it's been 3-4 days and I'm already feeling significantly better. Still battling a stuffy nose, but overall it doesn't seem like it's taking the same toll. <BR> <BR> Just wondering if this was a fluke thing, or if other ... Wed, 9 Nov 2011 20:10:53 EST Hi started today, but didn't do so great! But I will do better tommorrow! That "PMS" cravings got in the way today. UGH! Sat, 5 Nov 2011 21:08:48 EST Anybody use the SleepWeaver soft cloth nasal mask? Still new to all this sleep apnea stuff and struggling -- with the help of a therapist -- to find a mask/machine combo that works for me. I found the SleepWeaver mask on the internet (produced by Circadience), was attracted to this soft, plastic-free mask, and ordered one, which I got last week. It is SO much more comfortable than anything I have tried so far but such a problem with leaks. Has anybody here tried it? Any advice? I see my respiratory therapist on Wednesday, and I'm sure he'll b... Tue, 25 Oct 2011 02:20:04 EST Mask leaves marks on my face Hi! <BR> <BR> I've been using a nasal pillow mask for over a year and I noticed lately that the marks left on my face in the morning are more noticeable and last longer. <BR> <BR> Any suggestions to make it stop or make it go away. <BR> <BR> thanks! Sun, 16 Oct 2011 23:52:58 EST rash on face I dont know why but I have a permanent red mark on my face, it is like a rash it itches. I use a full mask and I do wash it regularly. some mornings are worse than others and it does not go away threw out day, though it doesnt get worse. any ideas? Tue, 11 Oct 2011 09:24:27 EST "running" in my sleep My husband tells me that I "run" in my sleep almost every night. I don't notice it myself and don't feel like I have to move my legs so I don't know if it's restless leg syndrome or not. It wasn't commented on during either of my sleep studies (with and without the BiPap) <BR> <BR> Does anyone else do this or know anything about this? <BR> <BR> Thanks! Mon, 10 Oct 2011 18:41:18 EST AUTUMN CHECK IN AND CHAT This is my favorite time of year. Pumpkins, new school clothes, harvesting, warm sweaters, golden and red leaves. I even love Halloween with all the little goblins pretending. I think I never grew up which is why I enjoy playing with the preschoolers so much. Dressing up is great fun and I think that is the appeal of Halloween. Of course I remember crisp Autumn days waiting till after dinner to go trick or treating. The neighbors were the first kids out and they would swing by to colle... Mon, 26 Sep 2011 13:44:42 EST Where do You Eat? Be Mindful <BR> The kitchen will work, too. Why? Because experts believe that eating in the kitchen or dining room, rather than the living room in front of the TV or the office in front of the computer, will help you focus on your food -- not what's on the screen. And that's important, say a growing band of researchers. They suspect the real culprit in the growing obesity epidemic may be a bevy of bad behaviors that fall under the category of "mindless eating." It's a distracted kind of eatin... Mon, 19 Sep 2011 12:45:47 EST Allergies + Mask Hi All. I'm new to SP and to this group, but I'm looking for some suggestions. I'm struggling with seasonal allergies this fall and as soon as I put my mask on, it puts pressure right at my sinuses and makes nasal congestion worse. So basically, I haven't slept well in about a week and a half and it's making me crazy! Anyone else have this problem? How have you handled it? Recommendations? I'm getting desperate for a good night's sleep! Sat, 10 Sep 2011 23:25:17 EST Hello Hi! My name is Suzee. I've been on SP for about a month now. Enjoying my journey so far. I was diagnosed with Sleep Apnea about a year ago. <em>213</em> Thu, 8 Sep 2011 00:17:15 EST Hi I'm new and was surprised to find a group of people like myself. Have had my CPAP machine for a month now and hubby is sooo happy!! LOL Mon, 5 Sep 2011 18:01:38 EST Sleep Apnea and Narcolepsy Anyone have both sleep apnea and narcolepsy? I was just diagnosed about 3 weeks ago with severe sleep apnea. My symptoms of daytime sleepiness and fatigue have increased since starting to use my Cpap machine. They are now going to do another sleep study this week on me to see if I have narcolepsy. Sat, 3 Sep 2011 19:19:41 EST Hi! I was just diagnosed with severe sleep apnea a little over a week ago. I have been fatigued for a couple years and had been desperately searching for an answer. For the last couple months the fatigue has become overwhelming. I am having a hard time doing the most basic daily activities. I am 39 years old and otherwise healthy. I should not feel like this. I got my Cpap machine and have been using it. I have had a lot of trouble finding the right mask. I have not felt much benefit yet but am h... Sat, 27 Aug 2011 17:32:41 EST What mask do you use and why? I got the Respironics Mirage Quattro mask. <BR> <BR> I knew I needed a full face mask because I was sure I couldn't keep my mouth closed all night.I wish I'd had a chance to try the Quattro FX mask, but I think there were four masks for me to try at the sleep center. One was a hybrid mask, one was a nose-only mask, one had nasal pillows and the last was the Mirage Quattro. <BR> <BR> I have a cover around the mask that has a cushion for the forehead bar. I got them from Pad-a-cheek. I also ... Thu, 11 Aug 2011 14:32:10 EST Dream thread I thought it might be interesting to have a place to talk about dreams. Do you dream? Do you remember your dreams? Are there any common themes? Any thoughts as to why? Just for fun. :) <BR> <BR> I've been dreaming about bugs, lately. I had a stinkbug invasion last year and it's about that time! I also am debating on calling the landlord again because I had a problem with carpenter ants due to a clogged drain-pipe, not to mention someone on a forum was talking about Palmetto bugs and tarantul... Wed, 10 Aug 2011 15:43:13 EST How long until you felt less tired? Hi folks! I've been sleep-deprived for years, literally. I wonder how long it took each of you to start feeling less tired during the day? I just made it to the three week mark, using my mask every night and I think I've slept well but I still want more sleep! <BR> <BR> I'm yawning all day, having trouble staying focused and if you handed me a pillow at any minute and told me to "go to sleep," I know I'd be out cold in 10-15 minutes. Fri, 5 Aug 2011 10:54:14 EST Anyone else have/had a fibromyalgia diagnosis? Hi folks! I'm 31 and diagnosed with fibromyalgia. Well, in June I got my Sleep Apnea and Upper Airway resistance syndrome diagnoses. <BR> <BR> I am wondering if anyone here had symptoms like: pain all over the body (roaming pain), unrefreshing sleep, problems remembering or thinking of words...? <BR> <BR> Did you have a fibromyalgia diagnosis? <BR> <BR> How are you doing now that you got treatment for sleep apnea? <BR> <BR> I'm wondering where I may go from here. I'm two and a half wee... Sat, 30 Jul 2011 22:37:01 EST Benefits of using the machine... The last few months of pregnancy, I was able to "borrow" an automatic machine, and actually had a good sleep. Now, I am using my machine again, and am finding that I don't feel as rested during the day, and I am having problems. It is hard keeping the motivation up to keep the machine maintained, and to use it all night every night. So, I want thinking about all the reasons I use the CPAP (apart from the long term consequences). So far this is what I have come up with: <BR> <BR> -I can stay ... Sat, 23 Jul 2011 19:17:03 EST the s9 cpap machine does anyone else have this machine i like it although the only problem i have with this machine is it uses the slimline hose and it breaks on me just wondered if anyone else has this problem. Fri, 22 Jul 2011 17:56:22 EST Sleeping Aids and Safety It will be some time before I get squared around with my CPAP and my question is: <BR> <BR> Before you were diagnosed and got your machine, did you ever take sleeping aids (pills) to help you sleep? I'm afraid to try them because I'm thinking if I fell into a deep (blissful) sleep would I wake if I can't breathe. <BR> <BR> I live in northern Louisiana where the heat and humidity are very high and I don't even try to think about going to bed at a decent time. I will try to go to sleep arou... Tue, 19 Jul 2011 15:44:42 EST Sleep Study Scheduled Hello everyone I am just at the beginning stages for diagonosis. I met with the Dr on Monday the 11th and have my sleep study scheduled for Aug 13th. The Dr believes that I have obstructive sleep apnea. To add to the issue I may have to have my tonsils removed as they are quite enlarged. He wants to wait til after the sleep study is conducted but is pretty sure he will start me on a cPap right away and see if that helps. He is hoping that my tonsils will no longer be enlarged when the un... Wed, 13 Jul 2011 22:01:45 EST Mike and Molly's CPAP Good Article to ponder. By the way, I love Mike and Molly. I think their struggle is real. Including thier missing the point periodically. I spent too many years doing some of the same things. <BR> <BR> Link is at bottom <BR> **********Mike & Molly, a traditional CBS sitcom with three cameras and a laugh track, is the most controversial new show on television this fall. The show is about an obese Chicago couple in the early stages of their relationship. <BR> <BR> Health pundits rail on ... Tue, 5 Jul 2011 17:32:14 EST Laughter for exercise <link><BR>r_health.htm </link> <BR> <BR> Well, here we go.This is along the lines of David Letterman's Top Ten Lists <BR> From the home office in Sleepy Eye, Minnesota The Top Ten Alternative Uses for CPAP <BR> <BR> 10.) Leaf blower. <BR> 9.) Indoor kite flying. <BR> 8.) Blow out dust and dirt from computer keyboards. <BR> 7.) Attach to flagpole to keep flags flying on windless days. <BR> 6.) Blow up balloons for parties. <BR> 5.) Hair dryer. <BR> 4.) ... Mon, 4 Jul 2011 01:12:18 EST What IF the POWER Goes OUT! Teddy asked a really great question. What are our resources? <BR> <BR> She recommended sleeping in a recliner which will help keep the palate open using gravity. <BR> <BR> Other links and ideas: <BR> <BR> Battery packs aren't cheap but might be worth it. <BR> <link><BR>-battery.php </link> <BR> <BR> Converters for tapping into car batteries <BR> <link><BR>rters-converters.php </link> <BR> <BR> Generator,... Sun, 3 Jul 2011 17:06:32 EST SUMMER CHECK IN AND CHAT Starting a new thread for any dial up friends we have. <BR> <BR> Barb let us know how that new mask works for you tonight. Sun, 26 Jun 2011 00:28:48 EST Sedona's CPAP Congrats on getting the new cpap. Let us know how your first night went! I loved mine instantly, but hated the mask. Still it was worth a good nights sleep. Fri, 24 Jun 2011 15:07:36 EST Three Foods that Eat Your Bones and cause fatigue <link><BR>t-your-bones-and-what-you-should-eat-i<BR>nstead/ </link> <BR> <BR> Good article. Let me know what you think. We probably would all sleep better if we ate better. Thu, 23 Jun 2011 18:17:05 EST Blueberries and other healthy foods Challenge Help me make a list of 25 healthy foods we can take to a church potluck or family picnic. <BR> Copy and paste in reply then add to the list. <BR> <BR> 1. blueberries <BR> 2. <BR> 3. <BR> 4. <BR> 5. <BR> 6. <BR> 7. <BR> 8. <BR> 9. <BR> 10. <BR> 11. <BR> 12. <BR> 13. <BR> 14. <BR> 15. <BR> 16. <BR> 17. <BR> 18. <BR> 19. <BR> 20. <BR> 21. <BR> 22. <BR> 23. <BR> 24. <BR> 25 Wed, 22 Jun 2011 00:47:51 EST Greetings! Hello Everyone! <BR> <BR> I am a thirty two year old chick from a small town in Manitoba, Canada, I am on maternity leave right now, I have a 2 month old son and a 3 year old - things are often busy! <BR> <BR> I found out a year ago that I have sleep apnea, the apneas themselves were not hugely significant, but there was somethig like over 600 apneas in a one hour period. My guess is I have had apnea for a long time. I believe that a complicating factor for me, is that I have an overbite, w... Sun, 19 Jun 2011 10:54:34 EST Happy to be here I am originally from Ma and live here in Fl. for the past 14 years. I amv61 yeas old and widowed. I have 2 wondwrful sons & 2 grandsons that I adore... I just battled a stage 3 overian cancer... And just received my I survived report from my doctors. I can now get back on track and start a new dventure in life by loosing weight and getting healthy once again. Thank you sparkpeople so glad to have found your site Sun, 19 Jun 2011 09:37:08 EST