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4ROSEMARY's Photo 4ROSEMARY SparkPoints: (56,654)
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8/5/17 11:36 P

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There is a migraine team on SparkPeople, but unfortunately it isn't very active. You could read it for some information here:
https://www.sparkpeople.com/myspark/groups_individual.asp?gid=1481

I've found a lot of relief from migraines with a combination of things. Here is a thread explaining what helps me:
https://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x1481x64830944

I've been in your shoes before. When the migraines were bad, I often had to cancel plans. I was fortunate in that I work from home so could work when I felt well, and make up for time when I didn't feel well. It's difficult, but keep trying various medications and treatments until you find what works for you. When you feel confident that the migraines are controlled, then you will find the strength to tackle the other things. I understand how migraines just make you exhausted and make everything a struggle. Hang in there.

One word frees us of all the weight and pain of life:
That word is love. - Sophocles


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LADYSTARWIND's Photo LADYSTARWIND SparkPoints: (85,298)
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8/4/17 11:13 A

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Another suggestion to get yourself headed "out of the house" in a small but meaningful way and reconnect to other people and Life activities is to...Volunteer! (You can also learn skills that end up on a resume for future jobs...)

There are no limits to what you can do for others, whether it is using your current job skills, learning something entirely new to you, or just running errands. Check in your local newspaper, churches, Senior Centers and Residence Centers, Park system, National Park, Children's Center, Library, Hospitals, Food Banks, Habitat for Humanity, Meals on Wheels, Senior Phone Check programs,.... Every community has diverse needs!! Often there will just be one short project or an "occasional" need: I have a friend who works at the Library (when she can) and simply helps children find books they are interested in or showing people how to use the Library computer.... Another who volunteers in a community garden peacefully pulling weeds.... You can be Active, or quite sedentary depending on the task needed. Most groups are more than happy to teach you a small part of their operation or project, and thankful for whatever time you can come for.

Some of the areas I've volunteered in over my life include Civil Air Patrol (working with Search and Rescue, and teenagers...); Girl Scouts; an Emergency Management Group; a Ham Radio group; a trail work group; a Food Bank; Hospital Volunteer Desk and Infant Unit, and most recently, an archeology lab (at Fort Vancouver National Park).

Its amazing the people I've met...and the things I've been able to learn and do!!
All the best,
patti


Patti
"The only thing we have to decide is what to do with the time that is given to us."
Gandalf: Lord of the Rings


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SIMPLICITY-NOW's Photo SIMPLICITY-NOW SparkPoints: (610)
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8/2/17 4:18 A

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I can imagine that it's hard to adjust to big changes like losing your job and learning to cope with the migraines.
I too think you need to start with small steps.... I suggest you start by making sure you drink enough water. I also suggest that you start by taking a small walk every day. Five minutes is enough for the first few weeks, or just ten minutes. No more. Keep a log of whether you did these small things.

Also start posting a blog here at SP frequently. If you also comment on other people's blogs you will soon have friends and feel that you have support.

Getting help from a counselor or therapist sounds like a good idea.

I was in treatment for binge eating and I wrote down the things we were taught during that treatment in my blogs. Feel free to check them out, they offer a lot of insights and tips that might be helpful for you.



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ARCHIMEDESII's Photo ARCHIMEDESII SparkPoints: (202,648)
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8/1/17 6:42 A



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KENDRASTIC,

If you feel that you're ready to make a change, you really don't have to do a lot to start. I give all new members one piece of advice and it's this,"don't look at good health or weight loss with an all or nothing mentality". If the only healthy thing you did for yourself today was drink 8 glasses of water, that's still a step in the right direction.

Just start with a few simple goals you can stick to. Example, if you're not eating 6-9 servings of fresh fruit and veggies, set a goal to eat 2-3 servings each day for one week. if you're not drinking 8 glasses of water, set a goal to drink 2-4 glasses each day for one week. if you haven't been exercising, don't start with an hour a day, set a goal to take a 30 minute walk each day for one week. Once you've completed these goals, you do them again or you make new ones.

Setting simple goals is how a person can slowly ease into a healthier set of habits.

As far as exercising, what are you doing now for exercise ? If you've been sedentary, why not start with a daily 30 minute walk. Can you walk before the headaches start to bother you ? If you can walk for 30 minutes, start with a daily walk. cardiologists will tell you that taking a 30 minute walk each day can reduce your risk for heart disease by over 30%.

And I agree, you need to address your problems with binge eating. Have you talked to your doctor about this ? If not, your doctor could refer you to a good therapist who deals with disordered eating. Binge eating isn't about the food we eat or how much. Some emotion issue drives a person to binge. One thing to
do is the next time you feel like binging, stop. grab a piece of paper. write down how you feel. Are you angry ? Are you sad ? Are you upset about something ? Did you get into an argument ? Are you bored ? Write out your emotions on that paper. After the binge, look at the paper.

Something triggered that binge. If you can identify what causes you to overeat, that will help you reduce your binges. Many people binge because they are unhappy about something. If you're stressed out, you need to find ways to reduce your stress that don't involve food.

That's why I enjoy walking. Walking is not only great cardiovascular exercise, it's a great way to reduce stress.

Just a few thoughts.



SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (260,200)
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8/1/17 12:18 A



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Hi - I think that it is quite likely that there is more that is going on than just the migraines. I suspect that you would also benefit from some Psychological help. The reason I say this is because(copy/paste)

"Logically, I know the answer, take small steps. I'll feel better if I'm active and eating well. But I am still sitting here...and I don't know who I am anymore.

That IS a bulk of the answer, but it is how to motivate you to get there that you need, and this is where the Psychological help can be a big benefit. Sometimes Therapists do motivational therapy to get a person to a place where they can start to help themselves. At the same time perhaps they could teach you some relaxation techniques which could help to reduce the headaches as well.

You mention "...and most of the time outside work I spend in bed or on th couch.play games on my tablet or watch tv shows."

This wouldn't exactly help with your migraines. I think you would benefit from reducing that time and finding some alternatives to fill in some of the gaps. Perhaps you might be able to go for a couple small walks?

Good luck,
Kris


Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


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MARIA11X's Photo MARIA11X Posts: 546
7/31/17 7:41 P

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Hi Kendrastic,

I suffer from migraines also, due to a traumatic brain injury I had almost 10 years ago. after falling out of a vehicle (It's hard to imagine that it was that long ago, and also the realization that one moment in time can suddenly change a person's life).

My attacks have become less frequent over the years, so that's the fortunate thing. When I first had my TBI, I was not authorized to drive for at least 6 months, due to having a seizure after the head injury (state requirements). So I understand how you feel about not being able to leave the house, and feeling like you aren't doing as much as you would wish to. I've been there too!

What really helped me with my recovery was taking university courses and doing a "blended" program, where I attended classes two evenings per week for the in-person interaction with the professors and other students, and the rest of the coursework was completed on-line. Doing this helped me feel like I was working toward something and having a sense of accomplishment. I was able to complete my first Master's degree through this blended program.

I am now working on my second Master's degree, which is "virtual." I "attend" live sessions on-line through Adobe Connect sessions and the professor, students, and I interact in real time, live on camera and we are audio connected through our cell or landline phones. The rest of the coursework is completed on-line outside of the virtual class sessions. I chose this format because the actual campus is at least a 2-3 hour drive from where I live, and I did not want to have to move. Also, I travel sometimes for work, and it helps being able to be anywhere, in any time zone and not have to miss classes. My education is the key to furthering my future career goals, so I began with 2 classes a semester for both degree programs.

This has helped me to stay connected to the world without having to leave the house every day.

Be gentle with yourself, take the time to be well, and have patience. After my injury, I was forced to slow down. I had no other choice. I was super Type A personality, so my injury may have actually been a blessing. Otherwise I could have headed toward burn out or a heart attack or stroke, and I was only 37 at the time.

Best wishes!

Maria




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LUANN_IN_PA Posts: 27,037
7/31/17 7:33 P

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" I frequently binge eat. "
That seems to be the thing you need to get under control.
I know several people who overcame binge eating, with professional help. Have you sought any?

Weight CAN be lost with little or no exercise (although exercise is a very good thing!). But not when you frequently binge....

"We cannot change the cards we are dealt, just how we play the hand."
~ Randy Pausch

"There's a difference between interest and commitment. When you're interested in doing something, you do it only when circumstance permit. When you're committed to something, you accept no excuses, only results."
~ Art Turock

"We have a saying in Tibet: If a problem can be solved, there is no use worrying about it. If it can't be solved, worrying will do no good."
~ 7 Years in T
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7/31/17 7:32 P

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There are different types of migraine headaches do you know what type you suffer from? Do you have a script? If not, talk to your doctor about it. Oddly enough for the type of migraine I have hemiplegic I can head them off with a drug derived from caffeine. And since I feel "different" right before it happens I can often prevent them with a couple of cups of coffee. After that of course it could make them worse.

Screentime - i.e., games on your computer or TV time however may well make your migraines worse. If you have not already done so, change what you see on your screen to gray, white and black. A gray background with black type is easiest on the eyes. Also make sure the font is simle and large enough.

If you can however you may want to think of other ways to spend your time when you are not working - listening to music. Reading - but probably not on a tablet - A real book. When you are feeling OK you are bored. When you are bored, if you are at all like me you eat. Since you could also become nauseous. Migraines are no fun but you can work around them if you try to be creative.

Do you have any friends at home during the day - if you do, a board game or cards could help. How about family? Living with any or have any nearby? Visits can help a lot - they tire you out and then you can sleep which will help the migraine.

Do you pay attention to your migraine triggers? If you know what they are you can avoid them.

At 230 - how is your B/P and sodium and electrolyte level(s). Too high and you can get a serious migraine and/or another problem ... too low and you feel "sick" - or what I like to call unwell. I have a very low B/P and resting heartrate and low sodium ... I faint.

Migraines are serious as you know so you don't want to go it alone. If you don't have local support groups, there might be one on SP - or you may be able to find blogs to participate on managing your migraine symptoms so you don't hurt so much and can reach a better functioning level.

I only got 2-3 migraines a year - but my entire left side would go slack and I would have aura followed by blinding headaches. All I could do was go to bed in a dark room and wait for it to run it's course - in my case 4-5 days. I lived with that for 30 years. My recent (tho' strangely not my first - my fifth) brain surgery changed that. I haven't had a migraine since.

Good luck to you and don't be too hard on yourself ... just take it a step at a time and find real life support if you can. Sunny

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7/31/17 4:42 P

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Hey, Spark friends. I am having a very tough time right now and I feel very stuck.

I suffered from debilitating (often several month long) migraine attacks last year and lost my full time job. I started receiving Botox treatments from my neurologist and I am doing much better. But after so long away from my active life I am having a hard time getting back into the swing of things.

I only work two days a week (that is the max they allow because of my migraines and the risk I will be absent) and most of the time outside work I spend in bed or on th couch. I play games on my tablet or watch tv shows. I feel tired and unmotivated. I have lost a lot of my self-confidence. I feel like a flaky person and I often don't make plans because I know I won't feel like leaving the house or I will be sick and have to cancel.

I'm up to my highest weight ever, around 230. I frequently binge eat. I want to exercise but I feel that I have lost control.

Logically, I know the answer, take small steps. I'll feel better if I'm active and eating well. But I am still sitting here...and I don't know who I am anymore.

Thanks for reading this and for any words of support and wisdom. emoticon

“I am only one, but still, I am one. I cannot do everything but I can do something. And, because I cannot do everything, I will not refuse to do what I can.” -Edward Everett Hale


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