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PMVK276's Photo PMVK276 Posts: 15
12/2/20 9:49 A

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66 years young. diagnosed with lupus and vasculitis between retiring and COVID a 20 lb weight gain. starting over to take better care of myself and improve my health. put on alot of weight while on high doses of prednisone. could have eaten the wall paper if possible! i am determined.

optimistic!


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WLHOPE Posts: 4,131
9/22/20 3:27 P

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I have RA and low thyroid. The paleo diet helped me tremendously. The doctor had to lower my synthroid dose it worked so well. However I have had GERD for over 30 years and the acid has caused nut cracker esophagus and I have very large hiatal hernia. Doubled in size in the last 12 months. Scheduled for surgery in December. Has any one else had this surgery?

CTJENN's Photo CTJENN Posts: 978
9/13/20 9:34 P

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Graves and Hyperthyroid in remission here. I like the AIP Paleo diet for reducing inflammation and healing the gut, thought to be the source of many of our Autoimmune disorders/illness. I was really excited to see AIP recipes here on Sparkpeople!
As far as moving and staying motivated, I'm just starting over now. Literally this was my first full day since I've come back. I've asked the Spark Coaches about motivation because my shoulders are bad and one arm is going useless on me. I will try an activity from their suggested fitness routines on the site. Something better than nothing!



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BIRDLOVER-CJ's Photo BIRDLOVER-CJ SparkPoints: (39,370)
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8/3/20 11:57 A

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Replying to Rome42: Part of my problem as well is trying to figure out what I can eat. So many of the "good" foods upset my stomach, particularly what you would normally find in a salad. High fiber foods, high fat (so no high fat/low carb for me). Unfortunately, the stuff that sits best with me is something like a ham sandwich: lean meat, bread, cheddar cheese. Lactose intolerant as far as milk, cream, soft cheese. Went to a doctor who was SURE I had celiac and when I didn't, he just prescribed bentyl and then seemed to give up.

Edited by: BIRDLOVER-CJ at: 8/3/2020 (11:58)
CJ
Birmingham, AL (Central time)


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BIRDLOVER-CJ's Photo BIRDLOVER-CJ SparkPoints: (39,370)
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8/3/20 11:50 A

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I have SLE, Sjogren's, fibromyalgia, etc. I'm home alone 5-6 days a week while my husband works (we only have one car) and have a very hard time having any discipline. With no reason to get up in the morning, I have to try hard to get up and do housework, exercise, etc. I've been low energy and low spirited for some time. But someone took my photo at church yesterday, and I couldn't believe how fat I looked. I've known that for my health, I need to lose 50-60 pounds, but it seems absolutely impossible to me. I haven't lost weight since I was in my late 20s and pre-lupus, so how am I going to lose 60lbs at 58 years old with all these health problems?

I know I sound depressed (I do take meds for it), but I AM going to start trying again. I just have no expectations of success at this point.

Edited by: BIRDLOVER-CJ at: 8/3/2020 (11:51)
CJ
Birmingham, AL (Central time)


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STEPHLOKI's Photo STEPHLOKI Posts: 6,891
7/16/20 12:33 A

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Thanks for this thread. It is good to know I am not alone. I have RA and PCOS. The combination of these including the meds I take for RA make weightloss almost impossible. I loose weight when I go very low carb, but that always triggers a massive flare-up - which no one in Kenya seems to believe. Then I get a steroid injection and gain 5kg in the first 2 weeks and another 5kg over a month. So I do not do this any more. I try my best. I eat within the limit. Currently with Corona and working from home, I try to walk every day. But I am just there. Last 2 weeks I actually gained again and am hating what my body is doing.
So tired of being reminded every doctors visit that my BMI reads obese - yet if you look at me I am overweight not obese. I still wear size 16, american clothes I can even fit some 14.
Meditation and mindfulness really helps. Especially when you have body image and self hate issues.



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ATHENA2010's Photo ATHENA2010 Posts: 476
7/13/20 9:24 P

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I have fibromyalgia. Suffered for years now it is in remission but flares up if I push myself too hard. The best thing I have done for it is eat real whole foods, no more processed foods, sugars, or simple carbs. I also walk and do exercises on a chair. I feel better, my pain is reduced, and the weight falls off. When I slip and "treat" myself...I end up feeling worse and gain weight. I am struggling now (gained 15 pounds the last few months) but am determined to feel better and start losing again. I started back on SparkPeople and eating better. I hope you feel better and get the help you want!

Edited by: ATHENA2010 at: 7/13/2020 (21:26)

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MACKENZIE1313's Photo MACKENZIE1313 SparkPoints: (666)
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7/5/20 1:07 A

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I have sarcoidosis. This can make weight loss and exercise challenging because I have granulomas on my lungs, if I'm not careful my blood-oxygen levels can drop, and I get joint pain during flair-ups. Not to mention painful rashes.

But it took them 10 years to figure it out, and by the time they finally did figure it out I was in a wheelchair and couldn't breathe and had heart arrhythmia. For years they told me "just lose weight" as I continued to struggle and go downhill.

I'm walking now and my breathing is pretty good and I'm regaining my strength and stamina back, though, so I've come light years from when it was at its worst.

- Mackenzie
PATHFINDER52's Photo PATHFINDER52 Posts: 848
7/2/20 2:44 P

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As a nurse (45 years) and a health coach, I would send you to the US Dept. of Health website at:
https://www.womenshealth.gov/a-z-topics/autoimmune-diseases

One thing that is important in any autoimmune disorder is to manage your stress -- when we get overwhelmed, over tired, try to over-do, our stress level gets the better of us and with an autoimmune disorder, it can foster a flare-up.

Do consider meditation, guided-imagery, music therapy, aroma therapy or other methods for managing your stress levels and helping to keep your physical health on a more even keel.

--p

The fact that I can plant a seed and it becomes a flower, share a bit of knowledge and it becomes another's, smile at someone and receive a smile in return, are to me continual spiritual exercises.

-- Leo Buscaglia


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OHIOPHYL's Photo OHIOPHYL Posts: 34
6/27/20 9:34 A

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I had a kidney transplant 8 yrs ago and my meds keep my immune system very low. I am 75 so during this Covid 19 I am rarely going out. If your immune system is low be very careful.

NJJEZ1's Photo NJJEZ1 Posts: 652
6/5/20 3:22 P

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Hey folks, T 1 diabetes is an auto immune disease. Some researchers believe that
T 2 could be too.



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SOXGAL33's Photo SOXGAL33 Posts: 29
9/10/19 9:07 P

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I've got SEL or RA, not sure...no one will confirm for sure...but for me it's impacted how much I can exercise, as well as my moods. Anyway, I try to think of food as fuel. Good fuel in, some movement, some good sleep and I'm doing it. Frustrated by weight for sure...but as long as I'm playing my part...I feel better. I wish you well!


Edited by: SOXGAL33 at: 9/10/2019 (21:07)
ROME42 Posts: 1
9/8/19 4:47 P

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HI I have UC and recently started remicade, unlike majority of people with this rotten problem I gained weight from all the prednisone I took as well as not excercising. Im trying to get back to normal but battling what foods agree as well as getting back into the fitness regime. Anyone else been there? And what did you do to keep motivated?

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